Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author CORNERSTONES OF PRACTICING PPC

Nancy diane Mannelli
Nancy diane Mannelli
Email:
ndmbrewer@msn.com Responding to the ethical claim of the child/family

Phone
•The extreme vulnerability of the dying child and family imposes an ethical claim on the
caregiver.
•The practitioner in end-of-life care is not free to opt in or opt out of this claim.
Mobile phone •By assuming a professional caregiver role, the practitioner accepts an ethical obligation to the
child and family.
Adopting a collaborative relational stance
Please underline the most •Clinical practice in pediatric palliative care is fundamentally relational.
appropriate category for your
abstract •It involves a “two-way” rather than “one-way” relationship with child and family.
• Pain and other symptoms
•Engaged practitioners must be capable of moving fluidly between the position of “expert” and
the position of “learner.”
• Palliative care for cancer patients
•Children and families are regarded as experts in regard to their own experience.
• Palliative care for non cancer Cultivating cultural humility
patients •Requires capacity for awareness and self-critique regarding one’s own culture
• Paediatric palliative care
•Involves effort to understand the world from the viewpoint of the child and family
• Palliative care for the elderly
•Expresses commitment to understanding similarities and differences between own
• The actors of palliative care
values/goals/priorities and those of the child/family
• Latest on drugs
•Applies also in relationships that seem to be from “one’s own” culture
• Bureaucratic pain
•Includes understanding of medical world as culture
• Illness and suffering through
media Developing reflective practice
• Marginalisation and social stigma •Reflective practice examines the question: What do I do in practice, and how do I do it?
at the end of life •Reflective practice is an epistemology of practice, a way of knowing and doing at the same time.
• Palliative care advocacy projects
•Reflective practice embodies several concepts:
• Prognosis and diagnosis  self-awareness (values, thoughts, feelings, assumptions);
communication in  practice-based learning (learning by doing); and
different cultures  tacit knowledge (knowing in action).
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to metropolies

• Space, light and gardens for the

Session: Paediatric palliative care
terminally ill patient
• End-of-life ethics Chair. Prof. Cornaglia Ferraris
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support
• Volunteering in palliative care