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User Story Scott McGuire

MyTobii lets your Scott is a loving husband and father in his


personality shine early forties. He has an upbeat personality,
through appreciates socializing and living life to the
fullest.

Scott has been living with ALS for over


ten years, gradually losing control
over his limbs and voice. But thanks
to MyTobii P10, an eye controlled
communication device, he can reach
out again.

“My name is Scott McGuire. I’ve been


married to my wife, Heidi for 13 years and
we have a 4-year-old son, Gavin. I live at
home and have in-home nursing care. I have
an upbeat personality and I’ve always been
outgoing, happy, competitive and a glass-
half-full-type of guy. I enjoy socializing
with friends and family. I enjoy watching

Tobii_UserStory_Scott_220909_USENG
sports and movies. I used to enjoy outdoor “I can’t do anything for myself. The only with a terminal disease or traumatic injury
recreation of all types: mountain biking, thing I can do is work on my computer that permanently strips away your ability
fishing, hiking, yard work. I also enjoyed through a mouth switch and when my to speak, every little step toward getting
teaching and coaching.“ mouth stops working, the MyTobii will your voice back means a lot.
be all I have. My major frustration is
“My interests today include watching my communication.” Scott was overwhelmed by the possibilities
son grow up, working on my computer, offered by MyTobii P10.
designing all types of media, fantasy Back up to speed
football, on-line poker, and keeping in touch Eye control has brought Scott back up to “I couldn’t believe it was that easy!
with family and friends through email and speed in his communication, something Communicating is now way less taxing and
Facebook.” that means a great deal to him. He can less frustrating.”
now communicate with people outside his
Losing the ability to communicate immediate sphere and with much fewer Being able to have meaningful face-to-face
“I was diagnosed in November ‘97. No misunderstandings. In his own words: interaction is one thing. The other thing
known cause why certain people get that Scott appreciates is the possibility
ALS, just lucky I guess. Today I can only “The MyTobii allows me to communicate to read news, search for information,
move my face a little bit. But I still have my with people who don’t normally know what chat with peers, listen to music, shop
wits about me!” I’m saying.” and play games. Through the Internet he
has the same access as everyone else to
It’s easy to understand the frustration Some people say that losing the ability entertainment and social interaction. But in
associated with losing your voice when you to communicate is like being trapped in Scott’s case, it is so much more valuable.
hear Scott talk about his life. a void. Others compare it to being on
the brink of an explosion. When you live

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