Professional Documents
Culture Documents
learning disabilities
July 2015
1. Introduction
This report tells the story of a group of about thirty people who met five times to talk
about how to be better at including people with learning disabilities in research about
their lives. This is called participatory or inclusive research.
The meetings were organized by Jane Seale, Melanie Nind, Rohhss Chapman and
Liz Tilley and funded by the Economic and Social Science Research Council
(ESRC).
Lots of different kinds of people came to the five meetings (we called them
seminars). There were researchers, practitioners (for example support workers,) and
of course people with learning disabilities.
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What?
We ran five seminars over two years, each seminar talked about a different topic.
Seminar
January
2013
Seminar
April
2013
Seminar
2013
Seminar
April
2014
of
Data analysis
participatory research
Seminar
2014
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Why?
The main aim of the meetings was to talk about participatory
research with people with learning disabilities; the things that
make it difficult to do well and new ways of doing it well.
How?
In
each of our five seminars we tried to do different things so that everyone had a
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After each seminar we put copies of all the presentations on our website. You can
access them using this address:
http://participat.blogspot.co.uk/
Who?
Lots of different people gave the presentations or lead the discussions including
people with learning disabilities, practitioners and researchers.
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Participatory Researchers
It does not always have to be people from universities who start off participatory
research projects. People with learning disabilities can start them.
We need to spend more time sharing the results of participatory research with
people with learning disabilities so that we can show how it can make a difference
to peoples lives.
Doing participatory research is not always easy. People do not always agree.
We need to keep on talking about how to make participatory research better.
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High quality participatory research happens when there is high quality support
from good support workers.
If we develop new ways of supporting people with learning disabilities we can
contribute to new ways of doing research.
Support for participating in research should be part of funded support
packages for people with learning disabilities.
3. Contact Us
If you would like to talk to us about our research our contact
details are:
Liz Tilley, Faculty of Health & Social Care, , Open University, Walton Hall, Milton
Keynes, MK7 6AA, elizabeth.tilley@open.ac.uk
Rohhss Chapman, Carlisle People First Research Team Ltd, Cambeck Bridge
Cottage, Brampton, Cumbria, CA8 2AU, rohhss@yahoo.com
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