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106]
Original
Article
Abstract
Background: Chronic renal disease and hemodialysis cause numerous psychological, social, cultural, and spiritual challenges for
both patients and their families. Overcoming these challenges is possible only through providing holistic support for the patients.
Today, despite the support provided by family and professional caregivers for the patients, patients still express dissatisfaction
with the support provided and believe it to be inadequate. In fact, patients and family caregivers and healthcare practitioners
seem to have different understandings of the notion of support. Thus, the researcher decided to examine the concept of support
from the viewpoint of hemodialysis patients.
Materials and Methods: This descriptive phenomenological research was conducted on 17 patients with end‑stage renal
disease (ESRD) who were undergoing hemodialysis. Purposive sampling was performed and continued until data saturation.
Data were collected through 30–60 min unstructured interviews and analyzed using Colaizzi’s method.
Results: From the analysis of data, 4 themes (psychological support, accompaniment, social support, and spiritual support)
and 11 sub‑themes were obtained. Psychological support consisted of two sub‑themes of psychological support by healthcare
practitioners and emotional support by family and relatives. Accompaniment included three sub‑themes of assistance in
transportation, providing and using medicine, and daily activities. Social support was identified with four sub‑themes of promotion
of the society’s understanding of the patients’ condition, improvement of communication with others, the need for employment,
and independence. Spiritual support was identified with two sub‑themes of the need for faith and trust in God or Imams and the
need to resolve spiritual contradictions.
Conclusion: The results showed that from the viewpoint of the participants, the concept of support consisted of psychological
support, social support, accompanying the patient, and spiritual support. Hence, it can be concluded that this concept should be
considered in healthcare planning, in order to improve the health and quality of life of these patients and their adaptation to the
disease and its treatment process.
T
he burden of chronic diseases, such as chronic world.[2] In 2013, 1,500,000 people in the world, 25,000
renal disease, is considered to be one of the greatest people in Iran,[3] and 1500 people in Isfahan Province were
challenges of the health systems of the 21st century. reported to have undergone hemodialysis.[4]
It is anticipated that by 2020, there will be 1200 cases of
end‑stage renal disease (ESRD) per million population.[1] Although hemodialysis prolongs the life of patients, it also
In ESRD, the irreversible damage caused to the kidneys imposes many restrictions on them that may lead to physical,
renders alternative treatments necessary for the sustenance psychological, social, and economic complications.[5] It
can also be the leading cause of depression, anxiety, low
self‑esteem, impaired mental impression, and hopelessness
1
Department of Critical Care Nursing, Kidney Diseases Research
for the patients. Many patients experience a state of conflict
Center, Faculty of Nursing and Midwifery, Isfahan University of
Medical Sciences, Isfahan, Iran, 2Department of Adult Nursing, Faculty Access this article online
of Nursing and Midwifery, Nursing and Midwifery Care Research
Center, Isfahan University of Medical Sciences, Isfahan, Iran Quick Response Code:
Website:
Address for correspondence: Dr. Hojatollah Yousefi, www.ijnmrjournal.net
Department of Adult Nursing, Faculty of Nursing and Midwifery,
Isfahan University of Medical Sciences, Hezarjerib Avenue, DOI:
Isfahan, Iran. E‑mail: yousefi@nm.mui.ac.ir 10.4103/1735-9066.164514
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Sadala (2006) argues that nurses plan their treatment After obtaining the required license from Isfahan University
process without taking into account the experiences of of Medical Sciences, Isfahan, Iran, the researcher referred to
patients undergoing hemodialysis and this is the cause of Al‑Zahra Hospital, Isfahan and presented her introduction
patients’ dissatisfaction despite the great care and support letter to the authorities and obtained their approval. Then,
they receive. Therefore, given the different aspects of after selecting a suitable environment for the interviews,
support, it is impossible to develop an appropriate program the researcher selected the participants from among the
for these patients without understanding their perception hemodialysis patients using purposive sampling method.
of the concept of support.[11] Next, the researcher introduced herself, offered the required
information, explained the objectives of the study, and
Hitherto, many quantitative studies have been conducted informed the participants that they could leave the study
in Iran with an emphasis on perceived social support whenever they wanted to. In addition, the patients were
and the status of patient support. For example, Rambod assured that the information would be confidential and the
and Rafii (2009) have examined patients’ perception of name of the patients would not be expressed anywhere.
social support,[9] Haririan et al. (2011) have evaluated Finally, after obtaining their willingness to participate and
information and instrumental support in these patients,[12] they signed written consent forms, the time of the interviews
and Rambod et al. (2012) have examined the quality was scheduled.
of life of these patients and its relationship with social
support.[9] However, it is noteworthy that in most of these On the day of the interview, the researcher held a
studies, the attitudes of respondents have been limited to face‑to‑face interview with each patient in a suitable room
a predetermined framework and only the social aspects in Al‑Zahra Hospital. The interviews began as unstructured
of support have been addressed. In a qualitative study, interviews and were continued using exploratory questions.
the patients’ perception of support resources in coping Each interview lasted for 30–60 min. With the consent of
with hemodialysis has been evaluated.[13] Understanding the participants, the interviews were recorded using an MP3
the concept of support, as a general and comprehensive player (Creative model). At the end of each interview, the
concept, from the viewpoint of the patients helps participants were informed about the likelihood of another
professional healthcare practitioners, including nurses and meeting to complete and clarify the interviews. Although
domiciliary caregivers, to develop a realistic care‑support the participants agreed to this, a second interview was
program.[14] To provide an explanation of the concept of necessary in only one case.
support from the perspective of hemodialysis patients, a
deep understanding of the meaning of support is necessary. After the interviews, each recorded interview was listened
Moreover, the descriptive phenomenological method is the to several times and, using ONE NOTE software, they were
most suitable method to obtain a deep understanding of transcribed verbatim and numbered by the researcher. Data
experiences and the complex phenomena.[15] Hence, in saturation was reached after 17 interviews. Sampling lasted
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Sometimes, concealment or fear of social stigma reduces Some participants, because of numerous problems and
the relationship of the patients and their families with other prolonged duration of the disease, had experienced spiritual
people. In fact, families, regardless of the communication and religious contradictions. This was more prevalent in
needs of the patient, try to maintain the position of other younger people.
family members through hiding the disease.
Participant 8 said that s/he has always been thinking about
Participant 16 declared that within the last 14 years that his/her relationship with God. S/he believed that because of
he has been undergoing dialysis, his mother has hidden the illness, s/he has lost all his/her opportunities. S/he asked
his disease as she does not want to jeopardize his sisters’ why God does not heal him/her if He can, and wanted an
chances of marrying. Therefore, they have refrained from explanation in this regard.
any contact with most of their relatives.
According to the participants, being hopeful of the
These patients have to follow a specific schedule and spend grace of God and reliance on him, and asking Imams
much of their time in the dialysis ward. This often interferes for help together with prayer brings them peace and
with their work and leads to the loss of their jobs. helps them to cope with their disease‑related problems
much better and easier. Hence, they demanded spiritual
Participant 2, who was a truck driver, said that as he is often support and believed that strengthening their spirituality
traveling, he cannot refer to the hospital according to the is the only way to resolve their spiritual and religious
scheduled sessions. He stated that if he refers to the hospital contradictions.
three times a week for dialysis, he will get fired from his job.
Participant 1 stated that she had asked her daughter to let Asgari et al. (2010) conducted a qualitative research on
her take care of her personal affairs or help her daughter the perception of chronic renal disease patients of support
with her work, but her daughter did not allow her. resources in coping with hemodialysis.[13] They extracted six
themes that included being unified with the family, informed
The participants’ statements imply that increasing the confidence in doctors, empathy and responsibility of nurses,
society’s understanding will have a significant impact on gaining spirit from adapted patients, feeling valuable when
the people’s support for these patients. Hence, using these accompanied by relatives, and satisfaction with supporting
patients in jobs commensurate with their capabilities and organizations. Most of these themes are in line with those
limitations and helping them to maintain their independence of the current study.
is essential and will enhance their social relationships.
The participants also expressed that they need to be
Spiritual support supported emotionally by their families. In Iran, family
Participants declared that they needed to enhance their members are emotionally dependent on each other and
faith and trust in God or spiritual forces, and some of them when one member becomes ill, s/he is supported by the
sought support to resolve their religious contradictions. family more than ever. However, sometimes, families are
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