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Paul Farmer
injury.
Given our consensus on some of themore forms
conspicuous
of suffering, a number of corollary questions come to the fore.
Can we identify those most at risk of great suffering? Among
those whose suffering is not mortal, is it possible to identify
those most likely to sustain permanent and disabling damage?
Are certain "event" assaults, such as torture or rape, more likely
to lead to late sequelae than are sustained and insidious suffer
as the or of racism? Under
ing, such pain born of deep poverty
this latter rubric, are certain forms of discrimination demonstra
more noxious than others?
bly
Anthropologists who take these as research questions study
both individual experience and the larger social matrix inwhich
it is embedded in order to see how various large-scale social
forces come to be translated into personal distress and disease.
By what mechanisms do social forces ranging from poverty to
racism become embodied as individual experience? This has been
the focus of most of my own research inHaiti, where political
and economic forces have structured risk forAIDS, tuberculosis,
and, indeed, most other infectious and parasitic diseases. Social
forces at work there have also structured risk formost forms of
extreme suffering, from hunger to torture and rape.
Ac?phie's Story
For thewound of the daughter ofmy people ismy heart wounded,
Imourn, and dismay has taken hold ofme.
Is there no balm inGilead? Is thereno physician there?
largest dam.
Before 1956, the village of Kay was situated in a fertile valley,
and through it ran the Riviere Artibonite. For generations, thou
sands of families had farmed the broad and gently sloping
banks of the river, selling rice, bananas, millet, corn, and sugar
cane in
regional markets. Harvests were, by all reports, bounti
ful; life there is now recalled as idyllic. When the valley was
flooded with the building of the dam, the majority of the local
was forced up into the stony hills on either side of
population
the new reservoir. By all the standard measures, the "water
In 1983, when
I began working in the Central Plateau, AIDS,
although already afflicting an increasing number of city dwell
ers, was unknown inmost areas as rural as Kay. Ac?phie Joseph
was one of the first to die of the new syndrome. But
villagers
her illness, which ended in 1991, was merely the latest in a string
of tragedies that she and her parents readily linked together in
a now familiar to those who tend the re
long lamentation, by
gion's sick.
The litany begins, usually, down in the valley hidden under
the still surface of the lake. Ac?phie's parents came from fami
liesmaking a decent living by farming fertile tracts of land?their
"ancestors' gardens"?and selling much of their produce. M. Jos
eph tilled the soil, and his wife, a tall and wearily elegant wom
an not as old as she looked, was a "Madame Sarah," a
nearly
autumn 2009 13
What would you have me do? I could tell that the old people
were uncomfortable, worried; but theydidn't say no. They didn't
tellme to stay away from him. Iwish they had, but how could
... I knew itwas a bad idea then, but I
they have known? just
didn't know why. I never dreamed he would give me a bad ill
ness, never! I looked around and saw how we all were,
poor
how the old people were finished ...What would you have me
do? Itwas a way out, that's how I saw it.
village.
Still looking for a moun prensipal, Ac?phie began seeing Blan
co Nerette, a young man with own: Blan
origins identical to her
co's parents were also "water refugees" and Ac?phie had known
him when they were both attending the parochial school inKay.
Blanco had done well for himself, by Kay standards: he chauf
feured a small bus between the Central Plateau and the capital.
In a setting characterized by
an
unemployment rate of greater
than 60 percent, his job commanded considerable respect. He
easily won the attention of Ac?phie. They planned to marry,
and started pooling their resources.
AUTUMN 2OO9 15
Chouchou's Story
"History shudders, pierced by events ofmassive public suffering.
Memory is haunted, stalked by theghosts of history's victims,
capriciously severed from life ingenocides, holocausts, and exter
mination camps. The cries of thehungry, the shrieks of political
prisoners, and the silent voices of "the oppressed echo slowly,
painfully through daily existence.
?Rebecca Chopp, The Praxis of Suffering
autumn 2009 17
law (i.e., the military) led to blacklisting. For men like Chou
chou, staying out of jail involved keeping the local attach?s
happy, and he did this by avoiding his home village. But Chou
chou lived in fear of a second arrest, his wife later told me, and
his fears proved to be well-founded.
On January 22,1992, Chouchou was visiting his sister when
he was arrested by two attach?s. No reason was given for the
arrest, and Chouchou's sister regarded as ominous the seizure
of the young man's watch and radio. He was roughly marched
to the nearest military checkpoint, where he was tortured by
soldiers and the attach?s. One area resident later told us that the
prisoner's screams made her children weep with terror.
On January 25, Chouchou was in a ditch to die. The
dumped
army scarcely took the trouble to circulate the canard that he
had stolen some bananas. (The Haitian press, by then thor
muzzled, did not even broadcast this false version of
oughly
events.) Relatives carried Chouchou back to Chantai and their
under the cover of on the of
daughter night. By early morning
January 26, when I arrived, Chouchou was
scarcely recogniz
able. His face, and especially his left temple, was misshapen,
swollen, and lacerated; his right temple was also scarred. His
mouth was a pool of dark, coagulated blood. His neck was pe
striped with deep lash marks. His buttocks were macerated, the
skin flayed down to the exposed gluteal muscles. Some of these
autumn 2009 19
suffering is not only its immensity but the faces of the anony
mous victims who have little voice, let alone
rights, in history."7
Third, the dynamics and distribution of suffering are still
interpretation.
Similar insights are
central to liberation theology, which
takes the suffering of the poor as its central problematic. In The
Praxis of Suffering, Rebecca Chopp notes that, "In a variety of
forms, liberation theology speaks with those who, through their
suffering, call into question the meaning and truth of human
key texts bring into relief not merely the suffering of the
wretched of the earth, but also the forces that promote that suf
autumn 2009 21
autumn 2009 23
ity of the poor majorities. A wall between the rich and poor is
being built, so that poverty does not annoy the powerful and
the poor are obliged to die in the silence of history"29
autumn 2009 25
Acknowledgments
I have the usual debts to faithful readers such as Haun
Saussy and Jim Yong Kim, but wish also to acknowledge the
constructive criticisms of this issue's editors and of Didi
Bertrand, Ophelia Dahl, Johanna Daily, Jonathan Mann, Joe
Rhatigan, Joyce Bendremer, and Vinh Kim Nguyen.
Endnotes
1. JeanWeise, "The Interaction ofWestern and Indigenous Medi
cine inHaiti in Regard to Tuberculosis/' Ph.D. Dissertation, Depart
ment of Anthropology, University of North Carolina at
Chapel Hill,
1971.
2. The names of theHaitians cited here have been changed, as have
the names of their home villages.
3. For a recent review of the effectsof inegalitarian social structures
on the health of wealthier populations, see Michael Marmot, "Social
Differentials inHealth Within and Between Populations," Daedalus 123
(4) (Fall 1994): 197-216.
4. Some would argue that the relationship between individual
agency and supraindividual structures forms the central problematic
of contemporary social theory. I have tried, in this essay, to avoid what
Pierre Bourdieu has termed "the absurd opposition between individ
ual and society," and I acknowledge the influence of Bourdieu, who
has contributed to the debate on structure and For
enormously agency.
a concise statement of his (often revised) views on this
subject, see
Pierre Bourdieu, In Other Words: Essays Towards a Reflexive Sociology
(Cambridge: Polity, 1990). That a supple and fundamentally non-de
terministicmodel of agency would have such a deterministic?and
pessimistic?"feel" is largely a reflection ofmy topic, suffering, and
my fieldwork site.
5. Paul Farmer, "Culture, Poverty, and theDynamics ofHIV Trans
mission in Rural Haiti," inHan ten Brummelhuis and Gilbert Herdt,
eds., Culture and Sexual Risk: Anthropological Perspectives onAIDS (New
York: Gordon and Breach, 1995), 3-28.
6. For an overview of the human rights situation during the recent
coup, see Americas Watch and the National Coalition forHaitian
Refugees, Silencing a People: The Destruction of Civil Society inHaiti
(New York: Human Rights Watch,1993) and William O'Neill, "The
Roots ofHuman Rights Violations inHaiti," Georgetown Immigration
Law Journal 7 (1) (1993): 87-117. I have reviewed these and other re
ports in Paul Farmer, The Uses ofHaiti (Monroe, Maine: Common
Courage, 1994).
7. Rebecca Chopp, The Praxis of Suffering (Maryknoll, N.Y: Orbis,
1986), 2.
AUTUMN 2OO9 27
nisms by which apartheid and the South African economy are related
to disease causation, see Randall Packard, White Plague, Black Labor: Tu
berculosis and thePolitical Economy ofHealth and Disease in South Africa
(Berkeley, Calif.: University of California Press, 1989).
19. "Vicente Navarro, "Race or Class versus Race and Class: Mortal