From a Burning House: the HIV/AIDS Narrative

Andrew O’Day

In the developed world, the AIDS pandemic originated in the United States among the

gay community. While we must acknowledge the impact of HIV on other groups (bisexual

men, women, drug users and haemophiliacs such as teenager Ryan White who wrote an

autobiography), this paper will concentrate on relevant prose narratives in the anthology

From a Burning House by gay men living in the United States, and published in 1996 when

HIV was still felt to be a death sentence. 1 It is beyond the scope of this essay to look at the

novel, poetry, theatre, and film and television drama, dealing with the illness, and these have

been covered quite extensively by, for instance, Steven F. Kruger, 2 David Roman3 and Patrick

R. Hart,4 especially from the 1980s and 1990s. There is also no room here for investigation of

the multitude of other non-fictional prose narratives by gay men living with HIV in the

United States but the Burning House anthology features a variety of writers dealing with a

range of pivotal themes and can be read alongside social histories. This paper will investigate

the cultural work done by the AIDS narrative in this collection, the literary techniques which

are employed and a form which is apparent.

1
Irene Borger, ed, From a Burning House (Pocket Books 1996)

2
Steven F. Kruger, AIDS Narratives: Gender and Sexuality, Fiction and Science (Garland 1996)

3
David Roman, Acts of Intervention: Performance, Gay Culture and AIDS (Indiana University Press 1998)

4
Patrick R. Hart, The AIDS Movie: Representing a Pandemic in Film and Television (Routledge 2000)
 Many...investigations of autobiographies and life stories, particularly those that...
examine narratives of difference, add a sociocritical turn to constructivist
perspectives. Narratives that explore certain individuals and groups self-identified by
gender, race, sexuality, class, or ethnicity tend to validate the telling...in terms of how
they can be seen to respond to the dominant tales of social identity and power within
and against which they are produced.5

Jennifer Brier points out6 that a dominant tale, which is of relevance here, is that in the

Reagan Republican administration, the secretary of the Department of Education, William

Bennett, and the under secretary, Gary Bauer, distinguished between the ‘innocent victim’ of

AIDS – such as the blood transfusion recipient – and the ‘deserving person’ with AIDS who

engaged in, what one of Bauer’s aides referred to as, ‘irresponsible sexual behaviour’. This

was homosexual intercourse to which the New Right stood opposed, taking every opportunity

to reinforce the need for heterosexual marriage and conformity to traditional gender roles. It

was because of this that the Reagan government were slow to respond to the pandemic. The

disease did not come to public attention until it affected widespread society other than

homosexuals, bisexuals and drug users, and until it affected public figures such as Rock

Hudson. All this, including the initial acronym GRID which was employed (Gay-Related

Immune Deficiency) is outlined by Randy Shilts in his book And the Band Played On,7 and in

a multitude of other histories.8 Shilts argues that Patient Zero, Gaetan Dugas, was a sociopath

who spread the virus intentionally. Whether this is true, or as Richard A. McKay argues, a

5
Martin Kreiswirth, ‘Merely Telling Stories?: Narrative and Knowledge in the Human Sciences’, (2002) 2
Poetics Today 310
6
Jennifer Brier, Infectious Ideas: US Political Responses to the AIDS Crisis (University of North Carolina Press
2011)
7
Randy Shilts, And the Band Played On (St Martin’s Press 1987)

8
e.g. Perry N. Halkitis, The AIDS Generation: Stories of Survival and Resilience (Oxford University Press
2004)
fabrication,9 the book is a useful history of what Martin Kreiswirth in the above quote more

generally calls ‘dominant tales of social identity’ and ‘difference’, and what Lisa Jane Disch

calls ‘marginal stories’,10 which are also seen in writers’ pieces in From a Burning House.

This means that narrative does not just tell official stories, replicating societal norms, as some

argue; narratives can be examples of heterodoxy as opposed to hegemonic.11

To give more of a context, From a Burning House is a volume of mostly prose, but

also some poetry and drama, written by gay men participating in The AIDS Project Los

Angeles Writers Workshop, led by Irene Borger, and was not originally intended for

publication. By contrast with the Names Memorial Quilt, where panels were woven by the

loved ones of the deceased as memorials, this collection is ‘a tapestry of writings’ (see back

cover) by those with HIV/AIDS, revealing theirs, and others, predicament. The tapestry is an

image associated with textuality, found in Greek mythology where a raped Philomela has her

tongue cut out but weaves her tragic narrative into cloth. The pieces hence differ from case

notes by doctors and, because of the nature of the illness, are first-person ‘narratives of

difference’ responding to ‘dominant tales of social identity and power’. They are examples of

pathography, being trauma narratives concerning experience rather than just diagnosis and

9
Richard A. McKay, ‘Patient Zero: The Absence of a Patient’s View of the Early North American AIDS

Epidemic’ (2014)

<https://www.press.jhu.edu/journals/bulletin_of_the_history_of_medicine/future_publications/pre_print_content

/McKay.pdf> accessed 10 March 2016

10
Kreiswirth (n 5) 311 quoting Lisa Jane Disch, Hannah Arendt and the Limits of Philosophy (Cornell
University Press 1994)
11
Kreiswirth (n 5) 310-312
observation from the outside,12 therefore differing from Rafael Campo’s The Poetry of

Healing: A Doctor’s Education in Empathy, Identity, and Desire (1997).13

‘Narratives of difference’ can be seen in the Burning House collection where writers

deal with the issue of growing-up gay such as in Alan Erenberg’s ‘The Humming Story’, and

Ezra Litwak’s ‘A Pair of Figure Skates’. For example, in Erenberg’s piece, his father would

make a humming sound every time his son did something ‘queer acting’. 14 Meanwhile,

Litwak remarks that he felt like a ‘sissy’ in the pants his mother had bought him and how he

disliked his non-hockey skates.15 He states ‘I was different from the other boys. I would never

be like them, swaggering with their easy macho, flirting with all the girls’. 16 However,

‘narratives of difference’ can also be more medical, including how the virus was caught.

Writers express themselves in pieces which deal unapologetically with promiscuous

gay sex and attraction. These pieces are in stark contrast to Panos Christi’s ‘My Day in

Abanoz’ where it is stated that ‘the real thing’, that one’s ‘first “real” fuck’ would be with a

female prostitute.17 They include Litwak’s ‘Christopher Street’, and Donald Colby’s

‘Bathhouse’. Colby’s piece concerns the narrative progression from being HIV-Negative to

12
Anne Hunsaker Hawkins, Reconstructing Illness: Studies in Pathography (Purdue University Press 1999) 1,
3, 12
13
Arthur W. Frank, ‘Illness and Autobiographical Work: Dialogue as Narrative Destabilization’, (2000) 23
Qualitative Sociology 143-149
14
From this point on, I use the authors’ names rather than the term ‘narrator’. We can only assume that the
accounts mentioned in this essay are reliable, although this is not necessarily always the case of
‘autobiographical prose’.
15
Borger (n 1) 20

16
ibid 21

17
ibid 39
being HIV-Positive and celebrates in a forthright manner the sexual encounter which led to

this. Colby writes of a man who ‘wrapped his body around’ him ‘like a huge fist’ and who

‘ordered’ Colby ‘in a coarse whisper to grab hold of’ his ‘ankles’ and ‘went at’ him ‘forever’

while Colby was high on drugs. Colby remarks that ‘Something had changed’ and that

‘something horrible had been planted in’ him.18 There is therefore a sequence of events,

characteristic of narrative.

Similarly, in ‘A Letter’, Tony Gramaglia details promiscuous gay sex which led to his

catching HIV in a ‘narrative of difference’. He recalls fantasising years later about the sex he

had with a man but, while Gramaglia remembers ‘[c]alling’ the man ‘into’ his body and

‘feeling’ him ‘ooze out’, Gramaglia does not remember his name, what he was actually

called, meaning the letter begins ‘Dear ...’. 19 Although Gramaglia thinks that their encounter

was the ‘source of’ his ‘dying’ he does not blame the unnamed partner since this was in 1982

before anyone really knew about HIV.20 Rather, Gramaglia blames the heterosexual county

prosecutor of Cincinnati, who ‘closed down the radio station while a gay man was on the air

talking about some new disease and instructing about what he thought might be safe

sex...condoms...Because this man said it was obscene’.21 Gramaglia states that had he known

then ‘[m]aybe...things could have turned out differently’. 22 The county prosecutor, therefore,

brings about a certain narrative progression (how things turn out) and Gramaglia’s piece

challenges society’s homophobia.

18
ibid 95

19
ibid 102

20
ibid

21
ibid 103

22
ibid
 The volume does not only include pieces which deal with promiscuous gay sex but

also contains pieces which concern gay relationships and AIDS in contrast to the dominant

heterosexist society. Some narratives of concern here are Litwak’s ‘Meeting Barry’, 23 John

Mulkeen’s ‘Court’,24 and Steve Maher’s ‘Laurent’,25 among others set in a hospital. Droze

Kern’s ‘The Kern Brothers’26 differs, dealing with gay brothers who were always able to

confide in each other except for the silence surrounding one’s death from AIDS.

There are also pieces that deal with the physical plight of those living with AIDS in

wider dominant society. It is Joe Hogan’s ‘Warts and All’ which concerns the need to measure

up to society’s image-consciousness. The piece moves from Hogan examining the appearance

of a wart in his bathroom mirror27 to him in his place of work at a department store looking in

the dressing-room mirror and seeing more and more warts on his face as time progresses. 28

We are told that the floor manager, Mr. Sheridan, ‘was always talking about image

consciousness and how important first impressions are in making a sale’. 29 Mr. Sheridan

demands a doctor’s letter that Hogan is fit to return to work but Hogan tells him ‘matter-of-

factly’ that he would be returning to work ‘warts and all’. 30 This piece differs from Ricky

23
ibid 80-81

24
ibid 236-239

25
ibid 240-252

26
ibid 253-257

27
ibid 120

28
ibid 121, 122

29
ibid 121

30
ibid 128
Hoyt’s ‘The Vanishing’31 where we are told of someone who at first tried to conceal his body,

where marks had disappeared, from his lover.

Moreover, homosexuals with AIDS were seen as an abomination before God by many

heterosexuals and not holding religious values and the narratives in the book are ones of

‘difference’. In ‘Court’, Mulkeen’s boyfriend, Court, enters a Catholic church, an institution

which Mulkeen does not ‘think Court had been to...in ten years’ and, although Court had his

head in his hands, nothing happened. 32 Meanwhile, in Maher’s ‘Laurent’, the title figure ‘had

lost faith in God’ as a result of being a bastard child, banished, with his brothers, to the back

of the church.33 These prose narratives differ from various others dealing with religion and

struggling with one’s faith and AIDS and being in church with AIDS.34

Some of the prose pieces in the Burning House volume are meta-narratives about the

act of narration and reception. The narratives in the volume were at first orally delivered in

the Writer’s Workshop and received by listeners, which makes them rather distinctive, but

through the act of publication are, for us, written narratives. Narratives were originally

delivered for a community that stands apart from heterosexist society and is ‘different’.

Arthur W. Frank points out that ‘Stories call individuals into groups, and they call on groups

to assert common identities’35 but Frank was not thinking of a workshop of writers. In ‘The
31
ibid 314-318

32
ibid 238-239

33
ibid 250

34
Terry Boyd, Living with AIDS: One Christian’s Struggle (C.S.S. Pub 1990); William E. Amos, When AIDS

Comes to Church (Westminster Press 1988)

35
Arthur W. Frank, Letting Stories Breathe (University of Chicago Press 2010)
First Day’ Gramaglia states ‘Why are we here? Why am I here? To write stories. To tell

stories. To be voices that are heard’.36 He continues ‘Our camaraderie in this room transcends

this disease. We are connected by our willingness to create stories and our need to be heard’. 37

In another piece, ‘Okay, So I’m In This Bed’ Gramaglia is witness to all the suffering at the

hospital.38 In ‘Pilgrim’ Brent Bellon remarks that ‘There is no shame among’ the writers since

they ‘all share a similar story’,39 and this idea of storytelling also surfaces in Jimmy

Drinkovich’s ‘The Westbound Train’.40 In ‘J’ the author Colby and J only share their sexuality

and a common interest in writing where J’s ‘work was...an interesting snapshot of life as a

gay Latino man with AIDS’.41 Meanwhile, Colby writes in ‘Memorial’ that those with AIDS

are all ‘witnesses for one another’42 but that in telling the story of someone who has died

‘nothing will come’43 so there is the issue of silence. In ‘The Lost’ Steve Smith curses his loss

of memory since he was ‘intended to bear witness...to all those men’ who had died. 44

Additionally, the desire to tell stories about relationships comes across in Christopher

Gorman’s ‘Fragment’,45 and in Nathan Clum’s ‘The Fragility of Paper’.46

36
Borger (n 1) 220

37
ibid

38
ibid 196-197

39
ibid 187

40
ibid 296-297

41
ibid 214

42
ibid 217

43
ibid 216

44
ibid 307

45
ibid 268

46
ibid 228
 People with HIV/AIDS are also stigmatised and there is a silence surrounding the

disease. In ‘The First Day’ Gramaglia says that he will tell his story in ‘bookstores and at

auditoriums, in publications and on the radio’, 47 thereby reaching wider society. Gramaglia’s

‘The Photograph’ concerns the silence involved in someone’s passing: ‘I am still waiting for

the minister to say something about AIDS at this service. Some acknowledgment of what

killed my friend. But there is none’, 48 ‘I think they are brave, his mother and father...They

haven’t told anyone. Never mentioned the fact that their son died of AIDS’, 49 ‘Hold this

picture. I tell his younger brother...He wants to know if his brother had AIDS. I know he

already knows...Yes, I say. I am not able to lie about this. I don’t want to. I want to tell

everyone here that he died of AIDS’.50 This is what is being done in this volume.

We saw that in ‘Bathhouse’, there was a celebration of gay sex and that there was a

move, typical of narrative, from being HIV-Negative to being HIV-Positive. ‘A Letter’,

meanwhile, explicitly revealed that gay sex was contrary to mainstream heterosexist society’s

ideology, which affected the way things turned out for someone. As Shlomith Rimmon-

Kenan, amongst others, has pointed out,51 narratives involve events in a sequence with a

beginning, a middle and an end. Kreisworth, meanwhile, points out that there is a ‘bivalency

of narrative’ where there is the time of the told (past events) and the time of its telling. 52 For

example, it was not known at the time of ‘Bathhouse’ and ‘A Letter’ that events would lead to

a person becoming HIV-Positive. Litwak’s ‘Used To Be’, meanwhile, at first celebrates the
47
ibid 220

48
ibid 298

49
ibid

50
ibid 299

51
Shlomith Rimmon-Kenan, ‘Concepts of Narrative’ (2006) Collegium

52
Kreisworth (n 5) 303, 308-309
past from the perspective of the present. He states: ‘I used to be healthy. I used to be

stronger...There is a terrible yearning for the past when the future is so frightening. There is

an anger at the present for making me let go of what used to be...I don’t want to be sick. I

don’t want to die. Not yet’.53 Litwak remarks that there is a ‘judgment’ in this. These people

are apprehensive about the future (and find it ‘so frightening’) because there is a long wait for

HIV to develop into AIDS; no one is sure if, or when, this will occur. Litwak does conclude,

however, by suggesting that the past is idealised and is ‘not how it really used to be’. 54 For

example, as seen, writers, including Litwak in ‘A Pair of Figure Skates’, have pointed to the

difficulties gays faced in growing-up.

II

We now turn to look at some of the literary techniques employed in the AIDS

narrative. George Lakoff and Mark Johnson argue that we use metaphors unconsciously all

the time in speech and writing.55 Susan Sontag argues against metaphoric thinking about

illness56 but concedes that we ‘cannot think without metaphors’. 57 Sontag expresses that there

are two main metaphors used for AIDS. One means by which HIV/AIDS is understood is as a

plague. Sontag writes that plagues are not simply diseases that are fatal but ones which

transform the body into something alienating like leprosy and syphilis 58 and also that plague
53
Borger (n 1) 148

54
ibid 149

55
George Lakoff and Mark Johnson, Metaphors We Live By (University of Chicago Press 2003)

56
Hawkins (n 12) 22-23

57
ibid 23

58
Susan Sontag, Illness as Metaphor & Aids and its Metaphors (Penguin 2002) 131
tends to originate from somewhere else, somewhere foreign,59 and is a species of invasion

often carried by soldiers.60 Sontag details the way in which accounts of HIV/AIDS see it as

having started in the Third World ‘dark continent’ of Africa. 61 The plague is thought to be

inescapable62 and is not only a judgment on certain groups but becomes everybody’s

problem.63 The second metaphor, related to the first, is of AIDS as war. Sontag states that

‘The virus invades the body’ and that ‘the disease (or...fear of the disease) is described as

invading the whole society’.64 Sontag writes that before the advent of AIDS ‘Medicine had

been viewed as an age-old military campaign now nearing its final phase, leading to victory. 65

‘The advent of AIDS’, continues Sontag, ‘made it clear that the infectious diseases are far

from conquered’. However, Sontag ends the book with a punch by pointing to the problems

with the AIDS as war metaphor stating that we are not being invaded, and that the ill are

neither unavoidable casualties nor the enemy.66 While it is harmful to see the ill as an enemy

invading the whole of society with a virus, as long as we accept that and do not take the

metaphor too far the AIDS as war metaphor can be acceptable. Also worth mentioning is that

unlike in her discussion of tuberculosis, Sontag does not give many examples of AIDS as

plague and as a war. There are also other metaphors for HIV/AIDS which add to Sontag’s.

59
ibid 133

60
ibid 134

61
ibid 137

62
ibid 139

63
ibid 150

64
ibid 151

65
ibid 158

66
ibid 180
 Metaphors and similes can be found in social histories of the AIDS crisis such as

Shilts’ And the Band Played On. There is a focus on HIV/AIDS as war when a simile is used

that ‘The epidemic would cleave lives in two, the way a great war or depression presents a

commonly understood point of reference around which an entire society defines itself’. 67 The

epidemic is set against the fight for gay rights,68 and cuts short the victories gays were

achieving. There is mention of how gays were shielded from a backlash 69 but also that AIDS

was seen as God’s judgement by some. AIDS was seen as a new ‘gay cancer’ or ‘plague’,

especially by the gay community, but also, as noted earlier, by the government, but becomes a

more general plague with an epigram of the Biblical Fourth Horseman at the start of a section

of Shilts’ book. There are also other metaphors. There is personification when Shilts remarks

that ‘To be sure, Death was already elbowing its way through the crowds’ of a gay parade. 70

We are told that the ‘spectre haunted’ people.71 Gay men are also seen as participating in a

‘lottery of death’72 and another metaphor is introduced when a doctor says early on, ‘We’re

seeing only the tip of the iceberg’...in what would become the all-encompassing metaphor for

the AIDS epidemic for years to come’. 73 This is a reference to the Titanic disaster like the

book’s title where the band stoically played on as the ship sunk. It is alongside social histories

like this one that we can see writers employing metaphor in their accounts in From a Burning

House.

67
Shilts (n 7) 12

68
ibid 27, 32

69
ibid 284

70
ibid 12

71
ibid 20

72
ibid 262

73
ibid 90
 In her Introduction, Irene Borger writes about how she encouraged psyche (spirit) and

techne (craft).74 In From a Burning House there is also the metaphor of AIDS as war. In

‘What I Have’, Marc Wagenheim notes that his ‘temperature soars and the chills invade’ his

body.75 In ‘Chemical Man’, Robbie Hilyard uses the metaphor of another individual being ‘no

longer...human’ but the first of ‘a new race...Homo pharmaceuticus’ 76 and of pills as both

smothering, and shielding, him.77 In ‘Nothing’ Michael Martin personifies AIDS stating ‘In

the world I live in AIDS is always the villain’ 78 and AIDS is also personified, albeit in a poem

‘Group Photo’, as The Grim Reaper, killing this community. 79 This recalls the personification

of AIDS as Death in Shilts’ And the Band Played On. Gramaglia’s ‘Notes While Waiting’,

meanwhile, sees Gramaglia sitting with a friend who is awaiting the result of his HIV test.

Gramaglia has already tested HIV-Positive and describes the room as a ‘holding cell’ in

which he is ‘trapped’ with a ‘wall...at least fifteen feet high’ and ‘a row of narrow windows at

the top...covered with blinds’.80 He says that he cannot use the door to escape. 81 Doug

Bender’s ‘Dishes’ concerns time. Bender states that one does not know how much time one

has left and also that others peek into the unknown like at a horror movie. 82 This is while one

is engaged in ordinary activities.

74
Borger (n 1) xxvii

75
ibid 116

76
ibid 168

77
ibid 167

78
ibid 109

79
ibid 212-213

80
ibid 110

81
ibid

82
ibid 206-211
 An example of the two levels of psyche and techne at work can also be seen in

another way in Hilyard’s ‘Chemical Man’. At the level of what is being said, we see how the

person being described – with AIDS – relies on medication, and at the level of techne,83 this is

revealed through non-ending run-on sentences where the word ‘pills’ is used repeatedly, e.g.

‘There are pills to help him breathe, pills to make him cough things up, pills to smother his

coughing so he can sleep at night, pills to make him sleep when it isn’t the coughing keeping

him up, pills to mask the itchiness when the combination of other pills causes his skin to

erupt in nasty-looking red bumps that no one can identify...’ etc. etc. 84 Therefore, the

sentence construction mirrors the comment that ‘The line of pills is like a rope by which he

pulls himself throughout the day, a week...’.85

From a Burning House also contains different forms including, what Carolyn Forche

finds in her investigation of poetry written in times of crisis: the fragment. This is noted by

Borger.86 The reason for the fragment is that either the writers were busy caring for sick ones

or did not have chance to finish their pieces as the disease took its toll.

Conclusion

83
Kreiswirth (n 5 302) notes the distinction between what is told and how it is told (whether labelled logos and
mythos, fabula and sjuzhet, historie and discours or story and discourse) from Aristotle, to the Russian
Formalists to the French Structuralists, to the present.
84
Borger (n 1) 167

85
ibid 170

86
ibid xxv
 HIV/AIDS prose, then, fits into the disciplines of Literature and Cultural Studies.

There is more work to do; for instance, it is worth speaking with gay men who are HIV-

Positive and, in a reader-response manner raised by Rita Charon, 87 finding out their views

about the collection as well as determining whether they would find such a Writer’s

Workshop useful. It is also important to broaden our study of AIDS prose narratives, looking

for one at more work by ethnic minorities like black gay men. It is moreover worth

examining not only film and television widely and more recently where, for example, the

soap opera, as a continuous narrative, is equipped to tell an ongoing story of a gay character

with HIV, but also film projects devoted to those living with HIV such as The HIV Story

Project from the US, as well as web blogs written by people who have HIV.

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87
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