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QRJ0010.1177/1468794117730686Qualitative ResearchConnor et al.
Article Q
The infantilized researcher R
and research subject: ethics, Qualitative Research
Abstract
Current research ethics processes, based on the mantra of privacy and institutional protection,
take a paternalistic approach to research participants that leaves them open to harm. Reflecting
on our own research/consultancy as a case study to illustrate the current flaws, we explore our
and our subjects’ experiences within the wider political context of institutional ethical rules and
the Australian NHMRC guidelines. In doing so we argue for fundamental changes to the modern
research ethics processes – a system that treats participants more as research collaborators
rather than victims in waiting. A complete review of ethics processes is needed to empower
participants and researchers to recognize the reality of the process as co-created and negotiated.
This includes changes at the top level of research administration – a shift in ethics policies and
procedures as well as greater education in ethics with commensurate trust for active researchers.
Keywords
confidentiality, consent, ethics, harm, qualitative research
Introduction
Researching people constructs problematic power dynamics that can result in significant
harm to participants,1 researchers and the wider endeavour of accumulating knowledge.
This has resulted in the implementation of ethical frameworks through which research
must be conducted. Originally created to protect participants from harm, ethics processes
are now ‘a risk management exercise at the behest of the host institution or funding body’
(Tolich and Fitzgerald, 2006: 72). These processes have fundamentally corrupted the
research process and infantilized the subject and researcher - to such a degree that we must
critically question all research done under the auspices of ‘informed’ consent.
Corresponding author:
James Connor, School of Business, UNSW@ADFA, Northcot Dr, Canberra, 2610, Australia.
Email: James.Connor@adfa.edu.au
2 Qualitative Research 00(0)
It is fair that some form of regulation of research is required given the history of
unethical studies (Babbie, 2004; Orb et al., 2001), which led to the development of ethi-
cal principles for research (Dingwall, 2006; Halse and Honey, 2007; Metro, 2014).
However, like all regulatory regimes, activities outside these frameworks still occur, with
a recent controversial example being the secret manipulation of Facebook feeds to assess
emotional contagion (Fiske and Hauser, 2014; Harriman and Patel, 2014; Kramer,
Guillory and Hancock, 2014).
Bio-ethics was the first area to be regulated (Ramcharan and Cutcliffe, 2001), being
formalized in the Declaration of Helsinki (Gelling, 1999; World Medical Organisation,
1964) with social science research drawn into this medicalized framework later
(Christians, 2000). These codes have generally covered four domains; informed consent,
opposition to deception, safeguards to protect privacy and confidentiality and, ensuring
accuracy in research results (Christians, 2000). Built within this framework, committees
reviewing qualitative research still assume projects should emulate quantitative, medi-
cal-model research (Richardson and McMullan, 2007; Tolich and Fitzgerald, 2006).
Ethics processes were initially focused on the concrete harms of physical abuse and
medical malpractice. Over time this expanded into social harms, with participant pri-
vacy and confidentiality becoming key (Baez, 2002; Giordano et al., 2007; Kaiser,
2009; Kelman, 1977). In general, ethics committees dictate that researchers are obliged
to protect the identity of their research participants (Giordano et al., 2007; Ryen, 2004)
and ensure that this protection is fully explained (Giordano et al., 2007; Rae and
Sullivan, 2003). Research standards assume that participants will stay anonymous dur-
ing the research process. These concerns are based on a value-judgement about the role
of privacy and secrecy in our society. Social research is seen as inherently intrusive
(Kelman, 1977) with participants sought by researchers for their own purpose
(Guillemin and Gillam, 2004: 271).
However, qualitative researchers have moved beyond these narrow concerns, with
a focus on the problem of power in the researcher-participant relationship (Lincoln,
2009). This new ethical debate ranges from discussion on the sharing of interview
transcripts with participants (Forbat and Henderson, 2005) to the development of col-
laborative interview and research processes (Bosworth et al., 2005; Bresler, 1995;
McTaggart, 1997; Munhall, 1988; Salmon, 2007). These methods shift research away
from a position where researchers exercise power and instead frame research as the
joint development of knowledge between participants and researchers (Acker et al.,
1991; Lather, 1988; McTaggart, 1997; Salmon, 2007). This makes the research agenda
about social empowerment first, knowledge-gaining second. Research should directly
empower its participants, with ethical frameworks ideally designed to facilitate this
process. Yet, despite decades of argument on these topics, we still operate under a
framework that fails to empower.
In Australia, research is governed by the Australian Code for the Responsible Conduct
of Ethics (National Health and Medical Research Council, 2007a), jointly developed by
the National Health and Medical Research Council (NHMRC), The Australian Research
Council and Universities Australia. The code provides the key standards for research
institutions and researchers alike (National Health and Medical Research Council,
2007a), outlining responsibilities and mandating that research institutions ‘provide an
Connor et al. 3
appropriate research governance framework through which research is assessed for qual-
ity, safety, privacy, risk management, financial management and ethical acceptability’
(National Health and Medical Research Council, 2007a: 1.3). The National Statement on
Ethical Conduct in Human Research (The National Statement) outlines the establish-
ment of Human Research Ethics Committees (HRECS) within major research institu-
tions, mandating that ‘each member of an ethical review body is responsible for deciding
whether, in his or her judgement, a proposal submitted to the review body meets the
requirements of this National Statement and is ethically acceptable.’ (National Health
and Medical Research Council, 2007b: 74).
HRECs operate at a rather narrow level, being required to assess research propos-
als based on two criteria set out within the National Statement: the risks of the research
in comparison to the benefits, and ensuring that measures are taken to ensure partici-
pants are able to make informed decisions about participating in the research (National
Health and Medical Research Council, 2007b). These two areas of assessment are
based around the premise of harm. Harm operates at a macro and micro level, first the
broader question of intervention in circumstances of exploitation (i.e. observation of
harm) and second, ensuring that no harm is done via the research (Bresler, 1995; Orb
et al., 2001).
Ethics processes were developed because of the need to regulate researcher conduct,
however, the risk averse, legalistic and harm focused models we now have do not cater
for the needs of qualitative research. We critically reflect on our own experiences with a
problematic research/consultancy engagement that was ethically approved, yet did not
empower the research subjects. Situating our argument in the more radical and critical
ethics literature we show how current ethics processes need to be overhauled. We add to
the literature on ethics processes by reflecting on an Australian experience which allows
us to critique the NHMRC guidelines specifically. We also reflect on the grey area of
research/consultancy work and the pressure to take research funding from any source in
the current higher education funding climate and how this type of research is poorly
catered for under the guidelines.
Case study
A number of ethical issues became apparent in a research project we conducted. These
issues were specifically raised with us by Martin Tolich at a TASA conference (Connor
et al., 2012). Tolich is noted for opening debate on the issue of internal confidentiality,
which he describes (2004: 101) as ‘the ability for research subjects involved in the study
to identify each other in the final publication of the research’. An often unspoken part of
the confidentiality puzzle, Tolich believes that internal confidentiality needs to be
brought into a broader debate, with ethics processes making it a part of the confidential-
ity process as it widens the notion of vulnerability (Tolich, 2004). Internal confidentiality
(or deductive disclosure, Sieber, 1992) is of particular concern for the workplace, where
criticism of superiors, leadership techniques, workmates or the work of the organisation
from participants, can lead to reprisal (Kelman, 1977). Venkatesh (2008) offers a sober-
ing insight into the risks of communicating information to senior leadership that junior
4 Qualitative Research 00(0)
however, we provided more detail on subjects’ roles in the organisation. This was done
to provide greater context, which we believe was required for the proper reporting of
the data to a wider audience. Both of these approaches were in line with agreements
signed by subjects.
Discussion
Our case study highlights a significant number of problems both with the standard
nature of ethics practices, and in particular the implementation of these practices
within a researcher - consultant/audit framework. On reflection, we have come to the
conclusion our research had a number of ethical problems which we failed to address.
In our defence the current guidelines make it nearly impossible to research ethically,
thus we, like so many other researchers, accepted institutional approval as a bureau-
cratic requirement to be met as a tick-a-box exercise.
First, we did not gain true informed consent of our subjects. As all subjects were
recruited through The Agency, with formal requests for participation being made by
Agency management, it is reasonable to believe subjects understood participation to be
a requirement of their employment. There is a distinct power differential between
Agency management and staff, which was exploited during the recruitment phase.
Even though we offered subjects the opportunity to withdraw at any time, we believe
concerns about retribution within the workplace could have stopped subjects from
doing so. Miller and Bell (2002) offer another case study of possible work-place coer-
cion and they chose to change their consent procedures to account for this, we should
have considered this ourselves.
Second, our research put subjects at the risk of being internally exposed. While indi-
vidual names and position titles were removed from research documents, it is plausible
that internal audiences may have been able to triangulate documents in order to identify
subjects. This presents two risks. One, senior management may have been able to iden-
tify informants. This is particularly relevant as our original consultant reports were only
provided to senior management, meaning Agency staff did not necessarily have access to
the details, nor the recommendations provided. Two, the externally published papers/
presentations may allow for triangulation of who said what and allow other staff to iden-
tify subjects. This had the potential to extend any form of backlash to informants to their
colleagues as well as their employer.
Many subjects were deeply critical of the Program and, in particular, the role of
senior management. The identification of individuals could lead vengeful members of
senior management to punish these subjects – including the potential removal of
responsibilities, the denial of promotions, or isolation from colleagues and work expe-
riences, amongst others (Kelman, 1977). This can also be extended into other parts of
the workplace, with many subjects criticising the work and practices of fellow col-
leagues or work teams. Indeed, a key theme of the data was the denial of responsibility
and blame shifting engaged with by many subjects - there was always someone else in
the organisation to blame for the Program failures/delays. These risks are particularly
relevant given the assumption subjects would have had that assurances of confidential-
ity would have protected them. The lay understanding of what confidentiality means
6 Qualitative Research 00(0)
can be very different to the reality, with subjects not interpreting it the way ethics
guidelines assume (Sankar et al., 2003; Swain, 2006; Wiles et al., 2008).
Finally, we believe we failed to properly empower and inform our subjects during and
after the research process. Research findings were given solely to Agency management
(in the form of an audit report) or published in hard-to-access academic journals, leaving
subjects completely absent in the decision-making process that followed. In her research
with Aboriginal women in Canada, Amy Salmon noted a perception of researchers as
being people ‘who collect information and “data” from Aboriginal people but “don’t
give anything back”’ (Salmon, 2007: 983). It is a common obligation for researchers to
return something to subjects. In our work it was up to senior management as to how and
when the findings were to be distributed internally (if at all) – separating subjects from
the data collected. Subjects were passive actors, with decisions about outcomes com-
pletely out of their hands. Whilst management would have been able to make changes
following the recommendations, the workforce did not have that opportunity. This, we
believe, goes against many of the values embodied in social qualitative research.
These ethical guidelines are not simply a set of rules. Their application should not be mechanical.
It always requires, from each individual, deliberation on the values and principles, exercise of
judgement, and an appreciation of context. (National Health and Medical Research Council,
2007b: 11)
Despite this, it is the general experience of social researchers to be forced into a one-size-
fits-all legalistic approach. We identified three problems with our research: consent, con-
fidentiality, and the researcher-participant relationship. In each of these areas standard
ethical procedures allowed for little deviance in practice. The National Statement man-
dates that all research that is declared to be above low risk must receive ethics approval
from a HREC, which produces a standardized measure of ethics, based largely on expec-
tations of quantitative medical research (Bamber and Sappey, 2007). There is an expecta-
tion of confidentiality for participants, a practice of informed consent which occurs at the
start of research via formalised consent forms. Ethics procedures force researchers into a
series of templates, creating what Van Den Hoonaard (2011: 45) describes as a ‘blizzard
of paperwork’. This bureaucratic process codifies a researcher-subject relationship, dis-
courages difference, and restricts the involvement of participants in the negotiation of
ethical procedures.
These realities are the result of ethics being managed with a risk-based (Bamber and
Sappey, 2007), managerialist approach. Bell and Bryman (2007: 66, citing Furedi, 2002)
argue ‘universities have developed an obsession with research ethics driven by risk
assessment and a fear of litigation that leads them to act more conservatively than the law
8 Qualitative Research 00(0)
requires, being more concerned with the reputation of the university than the ideals of
research’. Furedi (2002) notes that
review bodies are not in the business of discussing the finer points of ethics. They are concerned
with issues such as risk, litigation, the reputation of a university and the management of
research. In practice, they are not so much an ethics committee as bureaucratic gatekeepers who
use ethics as a managerial ideology.
As Iphofen (2011) notes, institutional integrity is the aim of the university, this means its
focus is reputation first, ethics second.
This approach limits our ability to do good research, in particular, research that
involves, empowers and challenges – as that is seen as risky. Yet qualitative social
research is often significantly less risky than its quantitative medical sibling, as Dingwall
(2006: 51) notes: ‘risks to human subjects are not comparable [with medical research]
and the power relationship between researcher and researched is so different as to render
prior scrutiny irrelevant and inappropriate’. Largely concerned with the legal, financial
and reputational risks of ethical breaches, universities maintained the same ethical pro-
cedures, even though they were not suitable for social research.
Managerial ideology places participants in the role of subject, to be protected from the
potential harms of research. This has a major impact on practice, with qualitative research-
ers seeing the roles of researcher and participant as mutually exclusive: researchers define
the project and contribute all of the thinking towards the end result, while participants are
subjects whose actions and words are to be studied (Karnieli-Miller, 2009). This is exem-
plified by how ethics approvals are still sought before any engagement with participants.
Researchers define what is ethical, with participants having limited say.
In treating participants in this manner ethics processes act paternalistically (Giordano
et al., 2007) and assume participants are unable to manage the impacts of expressing
their voice. This goes against much of the ethos of qualitative research, which should be
the co-creation of knowledge (Ebbs, 1996). The interview in particular allows partici-
pants and researchers to engage in intimate, therapeutic and collaborative processes
(Birch and Miller, 2000; Karnieli-Miller, 2009; Salmon, 2007; Tang, 2002), ones that are
enhanced by techniques such as sharing interview transcripts with participants (Forbat
and Henderson, 2005). This not only helps researchers gain and build on the knowledge
required for their work, but allows participants to take ownership of their knowledge, so
they can ‘come to terms with historical, social and cultural contexts of their communities
and their position within those contexts’ (Ebbs, 1996: 219). The process of assumed
confidentiality, which is still the basis of HRECs, disengages participants from the pro-
cess by silencing their voices (Aldred, 2008). Our research was only shared with Agency
management and not with employees – i.e. the majority of research subjects. Journal
articles, often placed behind a paywall and written in confusing, jargonistic language, are
also largely inaccessible. Participants are removed from the process of knowledge co-
creation and have little to no access to the knowledge when it is created. These problems
are well documented within the research community, with some researchers now delib-
erately disobeying ethical guidelines (Katz, 2006; Metro, 2014). These ethical outlaws
are removing themselves from ethics processes, engaging in what they believe to be far
Connor et al. 9
more ethical behaviour than is prescribed in formal processes. In the Australian context,
you would be very brave to risk the opprobrium of a University Ethics Committee and
misconduct investigation – with the likelihood of losing your employment.
This reality has, potentially unintentionally, been reinforced by Government regulation
and The National Statement. With the National Statement drafted with a focus on scientific,
quantitative research, with social qualitative research being brought into the fold with little
consultation from social researchers, qualitative research is automatically side-lined as
something different or unique, and in turn something that can be ignored. The National
Statement therefore plays a role in maintaining what Van Den Hoonaard (2011: 48) describes
as the ‘hegemony of ethics committees’.This is the process in which the ethics application
process ‘(even for minimal risk, non-treatment studies) has become “normal,” even when
many parts of it are considered unreasonable (and even impossible) for some kinds of stud-
ies’ (Hamilton, 2002: 186–187). The risk-adverse, harm-elimination, scientific approach to
ethics have become codified within the qualitative experience via Government regulation
and most importantly the practice of increasingly invasive HRECs. This is occurring despite
the common concerns of researchers regarding the failures of the system.
which is developed in full consultation with social scientists and incorporates discus-
sions on the issues we have raised. Importantly, as occurs in the Canadian situation (Van
Den Hoonaard, 2011), this statement should act as policy not regulation, allowing for
universities to vary procedures as issues arise.
Second, the way HRECs operate must change. Instead of the current system based on
researchers filling out forms that specify the exact details required for research to be
approved before undertaking any research, we should shift to an on-going, iterative sys-
tem. One model is Tolich and Fitzgerald’s (2006), who argue for a process in which
interviews are conducted between ethics committees and researchers. These interviews
would consist of three basic questions, (1) what is the research project about; (2) what
ethical issues does the researcher believe are raised by this project; and (3) how does the
researcher plan to address these problems (Tolich and Fitzgerald, 2006). This gives
researchers the opportunity to explain their research in an open-ended discussion with
ethics committees, giving them the space both to think about and explain the ethical
issues (Tolich and Fitzgerald, 2006). Instead of defining right and wrong ethical out-
comes, this sort of process would allow for discussion between HRECs and researchers,
with the two coming together to find appropriate solutions. This has the potential to be a
fruitful peer supportive and collaborative process. For many institutions this would be a
significant leap. In current systems, researchers are seen largely as untrustworthy actors,
who must be monitored to ensure they do not breach ethical codes (Bamber and Sappey,
2007).
The composition of HRECs must be adapted to ensure they are run and led by fellow
qualitative researchers. The current member composition requirements of HRECs in The
National Statement are problematic as there is insufficient expertise (Bamber and Sappey,
2007) to administer a collaborative process (National Health and Medical Research
Council, 2007b: 71–72). Schrag (2011a: 124) notes the problems this can cause, citing
Atran who proposed research on international terrorism, which ‘was blocked by a board
chaired by an expert in “the effects of hydrophobic and hydrophilic glass coatings, win-
dow tinting, and defrosters/defoggers on visual performance and driving behavior”’. Part
of this is because HRECs operate in a largely centralized manner, meaning committee
members are required to devote significant time and energy to the process. De-centralising
HRECs and making them more like the peer-review process may ameliorate this, allow-
ing experts to devote a small proportion of their time to participation in committees.
This will allow HRECs to apply different principles depending on the research con-
ducted and assess harm depending on social good. For example, how does a researcher
deal with this principle when researching police violence towards minorities (Moskos,
2008) or employer abuse of their employees (Bamber and Sappey, 2007)? Exposing these
injustices will clearly lead to harm to participants (police officers, employers etc.), but
there is also a greater good. Current HREC procedures would neither allow the observa-
tion of these practices (as it would be required to occur covertly) nor the disclosure of such
practices, resulting in social scientists becoming servants of power (Bamber and Sappey,
2007). Discipline-specific HRECs may be able to deal with these questions more thor-
oughly, allowing researchers to find more appropriate solutions to these problems.
Further, we as researchers must take more responsibility for our qualitative methodolo-
gies. Researchers often enter their field with limited training in ethics, instead basing their
Connor et al. 11
Conclusion
Our case study highlighted serious problems with research ethics processes. As research-
ers we engaged in a range of potentially problematic practices that could have resulted in
harm towards our subjects, yet, we did so with full approval from our relevant ethics
panel. While some might argue this indicates a need for greater controls on the process
of confidentiality, we argue this is a reflection of systemic failures in how we treat ethics
in qualitative research. Current processes, based on the primacy of privacy, take a pater-
nalistic approach to research participants. This is combined with a risk-averse, legalistic
and fixed bureaucratic system that cannot allow for the nuance of qualitative research.
As Babbie notes (2004: 17): ‘While it is important to have codes of ethics, simply
following established canons of ethics can degenerate into ritualism, which soon begs for
clever shortcuts and other innovations that do not technically violate the canons’. A com-
plete overhaul of the ethics process is required, one that fosters relationships between
researchers and their participants, giving participants greater say over practices. At the
most basic level it would require more in depth training for qualitative researchers to
ensure they have the correct tools to engage participants. This can only occur via signifi-
cant changes to the formal policies and procedures both of the Australian Government
and then of individual universities and their ethics processes. These approaches will help
deal with the many ethical problems researchers are facing, whilst ensuring the integrity
of qualitative research.
Funding
The research reported on was funded by the Australian Governement Agency studied. However,
the research team owns all the data and can publish as they wish – there is no conflict of interest.
Note
1. In this article we vary between our use of the term ‘participants’ and ‘subjects’. We will
use the term participants to describe general non-researchers who are involved in academic
research. We use this term as an acknowledgement of an ethos of seeing participants as full
actors in the research process. We use the term subjects in very specific circumstances, in
Connor et al. 13
particular during discussion of our case study, in which we argue the subjects did not partici-
pate fully and were more passive actors.
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16 Qualitative Research 00(0)
Author biographies
James Connor focuses on the interactional processes within organisations that allow members to
make sense of their activity. His research has included emotion processes within project life cycles,
KBPs and project leadership activities. He has applied these research interests to the problem of
program failure in government to explicate how staff make sense of and communicate about (per-
ceived) failure. His PhD is in sociology, and was focused on how emotions direct social action, in
particular via our loyalties (published as: A Sociology of Loyalty, Springer 2007). He is a Senior
Lecturer with the University of New South Wales Australia, Canberra and teaches project and
program management, leadership and organizational behaviour.
Simon Copland has a Bachelor of Arts (Development Studies), Bachelor of Science (Geography)
and a Masters of Science Communication from the Australian National University. He is currently
a freelance writer/journalist and works as a research assistant at the University of New South
Wales (ADFA).
Jill Owen was the driving intellectual force behind this research, contributing much until her
untimely death in 2013. Her research focused on the project as a vehicle for organizing work and,
specifically, on the role of knowledge based practices and informal processes in influencing how
an organization operates. Her PhD, undertaken in the Faculty of Information Technology at
Monash University, is titled ‘The Role of Knowledge Based Practices in the Effective Management
and Delivery of Information Systems Development Projects’. For which she won the Faculty of
Information Technology (FIT) Doctoral Medal. Jill has published in refereed journals and confer-
ences nationally and internationally. Jill was influential in the Project management community,
filling a number of roles across her life.