PedsQL Publications

www.pedsql.
org
PedsQL Publications
Peer Reviewed Journal Publications
Varni, J. W., Delamater, A.M., Hood, K.K., Raymond, J.K., Chang, N.T., Driscoll, K.A., Wong,
J.C., Yi-Frazier, J.P., Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L.,
Doskey, E.M., Heffer, R.W., & D. P. Wilson (in press). PedsQL 3.2 Diabetes Module for children,
adolescents, and young adults: Reliability and validity in type 1 diabetes. Diabetes Care.
Varni, J.W., Delamater, A.M., Hood, K.K., Raymond, J.K., Driscoll, K.A., Wong, J.C., Adi, S.,
Yi-Frazier, J.P., Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L., Doskey,
E.M., Aguirre, V.P., Heffer, R.W., & Wilson, D.P. (in press). Diabetes symptoms predictors of
health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes.
Quality of Life Research.
Varni, J.W., Delamater, A.M., Hood, K.K., Driscoll, K.A., Wong, J.C., Adi, S., Yi-Frazier, J.P.,
Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L., Raymond, J.K., Doskey,
E.M., Aguirre, V.P., Heffer, R.W., & Wilson, D.P. (in press). Diabetes management mediating
effects between diabetes symptoms and health-related quality of life in adolescents and young
adults with type 1 diabetes. Pediatric Diabetes.
Nutakki, K., Varni, J.W., & Swigonski, N.L. (2018). PedsQL Neurofibromatosis Type 1 Module
for children, adolescents and young adults: Feasibility, reliability, and validity. Journal of Neuro-
Oncology, 137, 337–347.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Zacur, G.M., Patel, A.S., Nurko, S., Neigut,
D.A., Franciosi, J.P., Saps, M., Denham, J.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2018).
Perceived medication adherence barriers mediating effects between gastrointestinal symptoms
and health-related quality of life in pediatric inflammatory bowel disease. Quality of Life
Research, 27, 195–204.
Modi, A.C., Junger, K.F., Mara, C., Kellermann, T., Barrett, L., Wagner, J., Mucci, G. A., Bailey,
L., Almane, D., Guilfoyle, S.M., Urso, L., Hater, B., Hustzi, H., Smith, G., Herrmann, B., Perry,
M.S., Zupanc, M., & Varni, J.W. (2017) Validation of the PedsQL™ Epilepsy Module: A pediatric
epilepsy-specific health-related quality of life measure. Epilepsia, 58, 1920–1930.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Patel, A.S., Nurko, S., Neigut, D.A., Saps,
M., Zacur, G.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2017). Patient health communication
mediating effects between gastrointestinal symptoms and gastrointestinal worry in pediatric
inflammatory bowel disease. Inflammatory Bowel Diseases, 23, 704–711.
Varni, J.W., Shulman, R.J., Self, M.M., Nurko, S., Saps, M., Saeed, S.A., Patel, A.S., Dark, C.V.,
Bendo, C.B., & Pohl, J.F. (2017). Gastrointestinal symptoms predictors of health-related quality
of life in pediatric patients with functional gastrointestinal disorders. Quality of Life Research,
26, 1015-1025.
Nutakki, K., Varni, J.W., Steinbrenner, S., Draucker, C.B., & Swigonski, N.L. (2017).
Development of the Pediatric Quality Of Life Inventory Neurofibromatosis Type 1 Module items
for children, adolescents and young adults: Qualitative methods. Journal of Neuro-Oncology,
132, 135–143.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Patel, A.S., Nurko, S., Neigut, D.A., Saps,
M., Franciosi, J.P., Denham, J.M., Zacur, G.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2016).
Gastrointestinal symptoms predictors of health-related quality of life in patients with
inflammatory bowel disease. Journal of Pediatric Gastroenterology & Nutrition, 63, e186-e192.
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Junger, K.F., Mann, K.A., Guilfoyle, S.M., Morita, D.A., Varni, J.W., & Modi, A.C. (2016).
Development of the PedsQL™ Epilepsy Module: Focus group and cognitive interviews.
Epilepsy & Behavior, 62, 115-120.
Varni, J.W., Franciosi, J.P., Shulman, R.J., Saeed, S., Nurko, S., Neigut, D.A., Bendo, C.B., Patel,
A.S., Self, M.M., Saps, M., Zacur, G.M., Denham, J., Dark, C.V., & Pohl, J.F. (2015). PedsQL™
Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with
inflammatory bowel disease in comparison to healthy controls. Inflammatory Bowel Diseases,
21, 1115-1124.
Varni, J.W., Shulman, R.J., Self, M.M., Nurko, S., Saps, M., Saeed, S., Bendo, C.B., Patel, A.S.,
Dark, C.V., Zacur, G.M., & Pohl, J.F. (2015). Symptom profiles in patients with irritable bowel
syndrome or functional abdominal pain compared to healthy controls. Journal of Pediatric
Gastroenterology & Nutrition, 61, 323-329.
Varni, J.W., Nurko, S., Shulman, R.J., Self, M.M., Saps, M., Bendo, C.B., Dark, C.V., & Pohl, J.F.
(2015). Pediatric functional constipation gastrointestinal symptom profile compared to healthy
controls. Journal of Pediatric Gastroenterology & Nutrition, 61, 424-430.
Varni, J.W., Bendo, C.B., Shulman, R.J., Self, M.M., Nurko, S., Franciosi, J.P., Saps, M., Saeed,
S., Zacur, G.M., Dark, C.V., & Pohl, J.F. (2015). Interpretability of the PedsQL™ Gastrointestinal
Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with functional and
organic gastrointestinal diseases. Journal of Pediatric Psychology, 40, 591-601.
Varni, J.W., Bendo, C.B., Denham, J., Shulman, R.J., Self, M.M., Neigut, D.A., Nurko, S., Patel,
A.S, Franciosi, J.P., Saps, M., Yeckes, A., Langseder, A., Saeed, S., & Pohl, J.F. (2015).
PedsQL™ Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric
patients with functional and organic gastrointestinal diseases in comparison to healthy controls.
Quality of Life Research, 24, 363–378.
Varni, J.W., Bendo, C.B., Nurko, S., Shulman, R.J., Self, M.M., Franciosi, J.P., Saps, M., & Pohl,
J.F. (2015). Health-related quality of life in pediatric patients with functional and organic
gastrointestinal diseases. Journal of Pediatrics, 166, 85-90.
Desai, A. D., Zhou, C., Stanford, S., Haaland, W., Varni, J.W., & Mangione-Smith, R.M. (2014).
Validity and responsiveness of the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core
Scales in the pediatric inpatient setting. JAMA Pediatrics, 68, 1114-1121.
Varni, J.W., Bendo, C.B., Denham, J., Shulman, R.J., Self, M.M., Neigut, D.A., Nurko, S., Patel,
A.S., Franciosi, J.P., Saps, M., Verga, B., Smith, A., Yeckes, A., Heinz, N., Langseder, A., Saeed,
S., Zacur, G.M., & Pohl, J.F. (2014). PedsQL™ Gastrointestinal Symptoms Module: Feasibility,
reliability, and validity. Journal of Pediatric Gastroenterology & Nutrition, 59, 347–355.
Lawitschka, A., Güclü, E.D., Varni, J.W., Putz, M., Wolff, D., Pavletic, S., Greinix, H., Peters, C.,
& Felder-Puig, R. (2014). Health-related quality of life in pediatric patients after allogeneic SCT:
Development of the PedsQL™ Stem Cell Transplant Module and results of a pilot study. Bone
Marrow Transplantation, 49, 1093–1097.
Panepinto, J.A., Torres, S., Bendo, C.B., McCavit, T.L., Dinu, B., Sherman-Bien, S., Bemrich-
Stolz, C., & Varni, J.W. (2014). PedsQL™ Multidimensional Fatigue Scale in sickle cell disease:
Feasibility, reliability and validity. Pediatric Blood & Cancer, 61, 171–177.
Varni, J.W., Curtis, B.H., Abetz, L.N., Lasch, K.E., Piault, E.C., & Zeytoonjian, A.A. (2013).
Content validity of the PedsQL™ 3.2 Diabetes Module in newly diagnosed patients with Type 1
Diabetes Mellitus ages 8-45. Quality of Life Research, 22, 2169–2181.
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Panepinto, J.A., Torres, S., Bendo, C.B., McCavit, T.L., Dinu, B., Sherman-Bien, S., Bemrich-
Stolz, C., & Varni, J.W. (2013). PedsQL™ Sickle Cell Disease Module: Feasibility, reliability and
validity. Pediatric Blood & Cancer, 60, 1338–1344.
Varni, J. W., Beaujean, A., & Limbers, C. A. (2013). Factorial invariance of pediatric patient self-
reported fatigue across age and gender: A multigroup confirmatory factor analysis approach
utilizing the PedsQL™ Multidimensional Fatigue Scale. Quality of Life Research, 22, 2581-
2594.
Franciosi, J.P., Hommel, K.A., Bendo, C.B., King, E.C., Collins, M.H., Eby, M.D., Marsolo, K.,
Abonia, J.P., von Tiehl, K.F., Putnam, P.E., Greenler, A.J., Greenberg, A.B., Bryson, R.A., Davis,
C.M., Olive, A.P., Gupta, S.K., Erwin, E.A., Klinnert, M.D., Spergel, J.M., Denham, J.M.,
Furuta, G.T., Rothenberg, M.E., & Varni, J.W. (2013). PedsQL™ Eosinophilic Esophagitis
Module: Feasibility, reliability and validity. Journal of Pediatric Gastroenterology & Nutrition,
57, 57-66.
Nutakki, K., Hingtgen, C.M., Monahan, P., Varni, J.W., & Swigonski, N.L. (2013). Development
of the adult PedsQL™ Neurofibromatosis Type 1 Module: Initial feasibility, reliability and
validity. Health and Quality of Life Outcomes, 11:21, 1-9.
Eiser, C., & Varni, J.W. (2013). Health related quality of life and symptom reporting: Similarities
and differences between children and their parents. European Journal of Pediatrics, 172, 1299-
1304.
Uzark, K., King, E., Cripe, L., Spicer, R., Sage, J., Kinnett, K., Wong, B., Pratt, J., & Varni, J.W.
(2012). Health-related quality of life in children and adolescents with Duchenne Muscular
Dystrophy. Pediatrics, 130, e1559-1566.
Varni, J.W., Kay, M.T., Limbers, C.A., Franciosi, J.P., & Pohl, J.F. (2012). PedsQL™
Gastrointestinal Symptoms Module item development: Qualitative methods. Journal of Pediatric
Varni, J.W., Handen, B.L., Corey-Lisle, P.K., Guo, Z., Manos, G., Ammerman, D.K., Marcus,
R.N., Owen, R., McQuade, R.D., Carson, W.H., Mathew, S., & Mankoski, R. (2012). Effect of
Aripiprazole 2 to 15 mg/d on health-related quality of life in the treatment of irritability
associated with Autistic Disorder in children: A post hoc analysis of two controlled trials. Clinical
Therapeutics, 34, 980-992.
Panepinto, J.A., Torres, S., & Varni. J.W. (2012). Development of the PedsQL™ Sickle Cell
Disease Module items: Qualitative methods. Quality of Life Research, 21, 341-357.
Franciosi, J. P., Hommel, K. A., Greenberg, A. B., Debrosse, C. W., Greenler, A. J., Abonia, J. P.,
Rothenberg, M. E., & Varni, J. W. (2012). Development of the Pediatric Quality of Life
Inventory™ Eosinophilic Esophagitis Module items: Qualitative methods. BMC
Gastroenterology, 12:135, 1-8.
Varni, J.W., Globe, D.R., Gandra, S.R., Harrison, D.J., Hooper, M., & Baumgartner, S. (2012).
Health-related quality of life of pediatric patients with moderate to severe plaque psoriasis:
Comparisons to four common chronic diseases. European Journal of Pediatrics, 171, 485-492.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2012). Assessment of fatigue in
pediatric patients with short stature utilizing the PedsQL™ Multidimensional Fatigue Scale.
Children's Health Care, 41, 162-181.
Varni, J.W., Limbers, C.A., Sorensen, L.G., Neighbors, K., Martz, K., Bucuvalas, J.C., & Alonso,
E.M. (2011). PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients:
Feasibility, reliability and validity. Quality of Life Research, 20, 913–921.
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Varni, J.W., Limbers, C.A., Neighbors, K., Schulz, K., Lieu, J.E.C., Heffer, R.W., Tuzinkiewicz,
K., Mangione-Smith, R., Zimmerman, J.J., & Alonso, E.M. (2011). The PedsQL™ Infant Scales:
Feasibility, internal consistency reliability and validity in healthy and ill infants. Quality of Life
Research, 20, 45-55.
Limbers, C.A., Ripperger-Suhler, J., Heffer, R.W., & Varni, J.W. (2011). Patient-reported
Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with
Attention-Deficit/Hyperactivity Disorder and comorbid psychiatric disorders: Feasibility,
reliability and validity. Value in Health, 14, 521-530.
Limbers, C.A., Ripperger-Suhler, J., Boutton, K., Ransom, D., & Varni, J.W. (2011). A
comparative analysis of health-related quality of life and family impact between children with
ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL™.
Journal of Attention Disorders, 15, 392-402.
Weissberg-Benchell, J., Zielinski, T.E., Rodgers, S., Greenley, R.N., Askenazi, D., Goldstein,
S.L., Fredericks, E.M., McDiarmid, S., Williams, L., Limbers, C.A., Tuzinkiewicz, K., Lerret, S.,
Alonso, E.M., & Varni, J.W. (2010). Pediatric health-related quality of life: Feasibility, reliability
and validity of the PedsQL™ Transplant Module. American Journal of Transplantation, 10, 1677-
1685.
Davis, S.E., Hynan, L.S., Limbers, C.A., Andersen, C.M., Greene, M.C., Varni, J.W., &
Iannaccone, S.T. (2010). The PedsQL™ in pediatric patients with Duchenne Muscular
Dystrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™
Neuromuscular Module and Generic Core Scales. Journal of Clinical Neuromuscular Disease,
11, 97-109.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2010). The PedsQL™
Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity.
International Journal of Pediatric Obesity, 5, 34-42.
Seid, M., Limbers, C.A., Driscoll, K.A., Opipari-Arrigan, L.A., Gelhard, L.R, & Varni, J.W.
(2010). Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™
(PedsQL™) Generic Core Scales and Asthma Symptoms Scale in vulnerable children with
asthma. Journal of Asthma, 47, 170-177.
Newman, D.A., Limbers, C.A., & Varni, J.W. (2010). Factorial invariance of child self-report
across English and Spanish language groups in a Hispanic population utilizing the PedsQL™ 4.0
Generic Core Scales. European Journal of Psychological Assessment, 26, 194-202.
Iannaccone, S.T., Hynan, L.S., Morton, A., Buchanan, R., Limbers, C.A., & Varni, J.W. (2009).
The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and
validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular
Module. Neuromuscular Disorders, 19, 805-812.
Limbers, C.A., Heffer, R.W., & Varni, J.W. (2009). Health-related quality of life and cognitive
functioning from the perspective of parents of school-aged children with Asperger's Syndrome
utilizing the PedsQL™. Journal of Autism and Developmental Disorders, 39, 1529-1541.
Limbers, C.A., Newman, D.A., & Varni, J.W. (2009). Factorial invariance of child self-report
across race/ethnicity groups: A multigroup confirmatory factor analysis approach utilizing the
PedsQL™ 4.0 Generic Core Scales. Annals of Epidemiology, 19, 575-581.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2009). The PedsQL™
Multidimensional Fatigue Scale in Type 1 diabetes: Feasibility, reliability, and validity. Pediatric
Diabetes, 10, 321-328.
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Varni, J.W., & Limbers, C.A. (2009). The PedsQL 4.0 Generic Core Scales young adult
version: Feasibility, reliability and validity in a university student population. Journal of Health
Psychology, 14, 611-622.
Marcus, S.B., Strople, J.A., Neighbors, K., Weissberg-Benchell, J., Nelson, S.P., Limbers, C.A.,
Varni, J.W., & Alonso, E.M. (2009). Fatigue and health-related quality of life in pediatric
inflammatory bowel disease. Clinical Gastroenterology and Hepatology, 7, 554-561.
Steele, M.M., Steele, R.G., & Varni, J.W. (2009). Reliability and validity of the PedsQL™ Oral
Health Scale: Measuring the relationship between child oral health and health-related quality of
life. Children’s Health Care, 38, 228-224.
Varni, J.W., & Limbers, C.A. (2009). The Pediatric Quality of Life Inventory: Measuring
pediatric health-related quality of life from the perspective of children and their parents. Pediatric
Clinics of North America, 56, 843-863.
Varni, J.W., Limbers, C.A., & Newman, D.A. (2009). Using factor analysis to confirm the
validity of children's self-reported health-related quality of life across different modes of
administration. Clinical Trials: Journal of the Society for Clinical Trials, 6, 185-195.
Varni, J.W., Limbers, C.A., Newman, D.A., & Seid, M. (2008). Longitudinal factorial invariance
of the PedsQL™ 4.0 Generic Core Scales child self-report version: One year prospective
evidence from the California State Children's Health Insurance Program (SCHIP). Quality of Life
Research, 17, 1153-1162.
Varni, J.W., Limbers, C.A., Burwinkle, T.M., Bryant, W.P., & Wilson, D.P. (2008). The
ePedsQL™ in Type 1 and Type 2 diabetes: Feasibility, reliability, and validity of the Pediatric
Quality of Life Inventory™ Internet administration. Diabetes Care, 31, 672-677.
across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL™
4.0 Generic Core Scales. Value in Health, 11, 659–668.
Varni, J.W., & Limbers, C.A. (2008). The PedsQL Multidimensional Fatigue Scale in young
adults: Feasibility, reliability and validity in a university student population. Quality of Life
Research, 17, 105-114.
across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the
PedsQL™ 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33, 630-639.
Goldstein, S.L., Graham, N., Warady, B.A., Seikaly, M., McDonald, R., Burwinkle, T.M.,
Limbers, C.A., & Varni, J.W. (2008). Measuring health-related quality of life in children with
ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of
Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51, 285-297.
Uzark, K., Jones, K., Slusher, J., Limbers, C.A., Burwinkle, T.M., & Varni, J.W. (2008). Quality
of life in children with heart disease as perceived by children and parents. Pediatrics, 121, e1060-
e1067.
across socioeconomic status groups: A multigroup confirmatory factor analysis utilizing the
PedsQL™ 4.0 Generic Core Scales. Journal of Behavioral Medicine, 31, 401-411.
Varni, J.W., Limbers, C.A., & Newman, D.A. (2008). Factorial invariance of the PedsQL™ 4.0
Generic Core Scales child self-report across gender: A multigroup confirmatory factor analysis
with 11,356 children ages 5 to 18. Applied Research in Quality of Life, 3, 137-148.
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Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). How young can children reliably and
validly self-report their health-related quality of life?: An analysis of 8,591 children across age
subgroups with the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes,
5:1, 1-13.
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Parent proxy-report of their children’s
health-related quality of life: An analysis of 13,878 parents’ reliability and validity across age
subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes,
5:2, 1-10.
Palmer, S.N., Meeske, K.A., Katz, E.R., Burwinke, T.M., & Varni, J.W. (2007). The PedsQL™
Brain Tumor Module: Initial reliability and validity. Pediatric Blood and Cancer, 49, 287-293.
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Impaired health-related quality of life in
children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters
and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and
Quality of Life Outcomes, 5:43, 1-15.
Varni, J.W., Burwinkle, T.M., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health
measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203-215.
Varni, J.W., Burwinkle, T.M., Berrin, S.J., Sherman, S.A., Artavia, K., Malcarne, V.L., &
Chambers, H.G. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and
sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and
Child Neurology, 48, 442-449.
Chan, K.S., Mangione-Smith, R., Burwinkle, T.M., Rosen, M., & Varni, J.W. (2005). The
PedsQL: Reliability and validity of the Short-Form Generic Core Scales and Asthma Module.
Medical Care, 43, 256-265.
Varni, J.W., Burwinkle, T. M., & Seid, M. (2005). The PedsQL™ as a pediatric patient-reported
outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children.
Expert Review of Pharmacoeconomics and Outcomes Research, 5, 705-719.
Varni, J.W., Burwinkle, T.M., & Szer, I.S. (2004). The PedsQL Multidimensional Fatigue Scale
in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31, 2494-2500.
Varni, J.W., Burwinkle, T.M., Rapoff, M.A., Kamps, J.L., & Olson, N. (2004). The PedsQL in
pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory Generic
Core Scales and Asthma Module. Journal of Behavioral Medicine, 27, 297-318.
Varni, J.W., Burwinkle, T.M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric
population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329-
341.
Varni, J.W., Burwinkle, T.M., Jacobs, J.R., Gottschalk, M., Kaufman, F., & Jones, K.L. (2003).
The PedsQL in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of
Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes Care, 26, 631-637.
Uzark, K., Jones, K., Burwinkle, T.M., & Varni, J.W. (2003). The Pediatric Quality of Life
Inventory in children with heart disease. Progress in Pediatric Cardiology, 18, 141-148.
Varni, J.W., Burwinkle, T.M., Katz, E.R., Meeske, K., & Dickinson, P. (2002). The PedsQL  in
pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic
Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106.
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Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The
PedsQL in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric
Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis and
Rheumatism, 46, 714-725.
Varni, J.W., Seid, M., Knight, T.S., Uzark, K., & Szer, I.S. (2002). The PedsQL 4.0 Generic
Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of
Behavioral Medicine, 25, 175-193.
Varni, J.W., Seid, M., & Kurtin, P.S. (2001). PedsQL 4.0: Reliability and validity of the
Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient
populations. Medical Care, 39, 800-812.
Varni, J.W., Seid, M., & Rode, C.A. (1999). The PedsQL: Measurement model for the Pediatric
Quality of Life Inventory. Medical Care, 37, 126-139.
Additional Publications
Listing, M., Mönkemöller, K., Liedmann, I., Niewerth, M., Sengler, C., Listing, J., Foell, D.,
Heiligenhaus, A., Klein, A., Horneff, G., Ganser, G., Haas, J.P., Klotsche, J., & Minden, K. (in
press). The majority of patients with newly diagnosed juvenile idiopathic arthritis achieve a
health-related quality of life that is similar to that of healthy peers: Results of the German
multicenter inception cohort (ICON). Arthritis Research & Therapy.
Anderson, B.J., Laffel, L.M., Domenger, C., Danne, T., Phillip, M., Mazza, C., Hanas, R.,
Waldron, S., Beck, R.W., Calvi-Gries, F., & Mathieu, C. (in press). Factors associated with
diabetes-specific health-related quality of life in youth with Type 1 diabetes: The Global TEENs
Study. Diabetes Care.
Rainone, N., Chiodi, A., Lanzillo, R., Magri, V., Napolitano, A., Morra, V.B., Valerio, P., & Freda,
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young adults with Multiple Sclerosis (MS): The moderating role of resilience. Quality of Life
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Mozzillo, E., Zito, E., Maffeis, C., De Nitto, E., Maltoni, G., Marigliano, M., Zucchini, S.,
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Bilgiç, A., Işık, Ü, Sivri Çolak, R., Derin, H., & Çaksen, H. (2018). Psychiatric symptoms and
health-related quality of life in children with epilepsy and their mothers. Epilepsy & Behavior,
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Mpundu-Kaambwa, C., Chen, G., Russo, R., Stevens, K., Petersen, K.D., & Ratcliffe, J. (in
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Kuhlthau, K.A., McDonnell, E., Coury, D.L., Payakachat, N., & Macklin, E. (in press).
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Dwivedi, R., Ramanujam, B., Chandra, P.S., Sapra, S., Gulati, S., Kalaivani, M., Garg, A., Bal,
C.S., Tripathi, M., Dwivedi, S.N., Sagar, R., Sarkar, C., & Tripathi, M. (2017). Surgery for drug-
resistant epilepsy in children. The New England Journal of Medicine, 377, 1639-1647.
Kourtidou, S., Slee, A.E., Bruce, M.E., Wren, H., Mangione-Smith, R.M., & Portman, M.A. (in
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Tsiros, M.D., Samaras, M.G., Coates, A.M., & Olds, T. (in press). Use-of-time and health-related
quality of life in 10- to 13-year-old children: Not all screen time or physical activity minutes are
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Yu, Y.R., Carpenter, J.L., DeMello, A.S., Keswani, S.G., Cass, D.L., Olutoye, O.O., Vogel, A.M.,
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extracorporeal membrane oxygenation survivors using the pediatric quality of life inventory
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Rowe, P.C., Marden, C.L., Flaherty, M.A.K., Jasion, S.E., Cranston, E.M., Fontaine, K.R., &
Violand, R.L. (in press). Two-year follow-up of impaired range of motion in chronic fatigue
syndrome. Journal of Pediatrics.
Bhatt, N.S., Brazauskas, R., Tecca, H.R., Vogel, J., Mattila, D., Lee, S.J., Horowitz, M.M., Rizzo,
J.D., & Shaw, B.E. (in press). Female sex is associated with poor health-related quality of life in
children at 12 months post-hematopoietic cell transplantation. Journal of Pediatric
Hematology/Oncology.
Yi-Frazier, J.P., Cochrane, K., Whitlock, K., Rosenberg, A.R., Pascual, M., Beauregard, N.,
Mitrovich, C., Panlasigui, N., & Pihoker, C. (2018). Trajectories of acute diabetes-specific stress
in adolescents with type 1 diabetes and their caregivers within the first year of diagnosis. Journal
of Pediatric Psychology, 43, 645-653.
Lee, C.T., Lin, C.Y., Strong, C., Lin, Y.F., Chou, Y.Y., & Tsai, M.C. (2018). Metabolic correlates
of health-related quality of life among overweight and obese adolescents. BMC Pediatrics,
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Thorsteinsdottir, H., Diseth, T.H., Lie, A., Tangeraas, T., Matthews, I., Åsberg, A., & Bjerre, A.
(in press). Small effort, high impact: Focus on physical activity improves oxygen uptake
(VO2peak), quality of life, and mental health after pediatric renal transplantation. Pediatric
Transplantation.
Saoji, N., Palta, M., Young, H.N., Moreno, M.A., Rajamanickam, V., & Cox, E.D. (in press). The
relationship of Type 1 diabetes self-management barriers to child and parent quality of life: A US
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Lion, K.C., Wright, D.R., Spencer, S., Zhou, C., Del Beccaro, M., & Mangione-Smith, R. (in
press). Standardized clinical pathways for hospitalized children and outcomes. Pediatrics.
Novak, Z., Aglipay, M., Barrowman, N., Yeates, K.O., Beauchamp, M.H., Gravel, J., Freedman,
S.B., Gagnon, I., Gioia, G., Boutis, K., Burns, E., Ledoux, A.A., Osmond, M.H., & Zemek, R.L.
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Lifland, B.E., Mangione-Smith, R., Palermo, T.M., & Rabbitts, J.A. (in press). Agreement
between parent proxy- and child self-report of pain intensity and health-related quality of life
after surgery. Academic Pediatrics.
Hardy, S.J., Bills, S.E., Wise, S.M., & Hardy, K.K. (in press). Cognitive abilities moderate the
effect of disease severity on health-related quality of life in pediatric sickle cell disease. Journal
of Pediatric Psychology.
Valovich McLeod, T., Bay, R.C., Lam, K.C., & Snyder Valier, A.R. (in press). The association
between length of recovery following sport-related concussion and generic and specific health-
related quality of life in adolescent athletes: A prospective, longitudinal study. Journal of Head
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Kamran, S.C., Goldberg, S.I., Kuhlthau, K.A., Lawell, M.P., Weyman, E.A., Gallotto, S.L., Hess,
C.B., Huang, M.S., Friedmann, A.M., Abrams, A.N., MacDonald, S.M., Pulsifer, M.B., Tarbell,
N.J., Ebb, D.H., & Yock, T.I. (in press). Quality of life in patients with proton-treated pediatric
medulloblastoma: Results of a prospective assessment with 5-year follow-up. Cancer.
Bazzano, A.N., Anderson, C.E., Hylton, C., & Gustat, J. (in press). Effect of mindfulness and
yoga on quality of life for elementary school students and teachers: Results of a randomized
controlled school-based study. Psychology Research and Behavior Management.
Morsberger, J.L., Short, H.L., Baxter, K.J., Travers, C., Clifton, M.S., Durham, M.M., & Raval,
M.V. (in press). Parent reported long-term quality of life outcomes in children after congenital
diaphragmatic hernia repair. Journal of Pediatric Surgery.
Wang-Hall, J., Li, B.U.K., & Tarbell, S.E. (in press). Family health-related quality of life in
pediatric cyclic vomiting syndrome. Journal of Pediatric Gastroenterology and Nutrition.
Otto, C., Steffensen, B.F., Højberg, A.L., Barkmann, C., Rahbek, J., Ravens-Sieberer, U.,
Mahoney, A., Vry, J., Gramsch, K., Thompson, R., Rodger, S., Bushby, K., Lochmüller, H., &
Kirschner, J. (in press). Predictors of health-related quality of life in boys with Duchenne
muscular dystrophy from six European countries. Journal of Neurology.
Lynch, M.K., Barnes, M.J., Dimmitt, R.A., Martin, L., Rothenberg, M.E., & Goodin, B.R. (2018).
Disease-related predictors of health-related quality of life in youth with eosinophilic esophagitis.
Journal of Pediatric Psychology, 43, 464-471.
Erbilgin Gün, S., & Kilincaslan, A. (in press). Quality of life among children and adolescents
with Tourette Disorder and comorbid ADHD: A clinical controlled study. Journal of Attention
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Petek, T., Hertiš, T., & Marčun Varda, N. (2018). Health-related quality of life in paediatric
arterial hypertension: A cross-sectional study. BMC Pediatrics, 18(1):146.
Smith, L.B., Liu, X., Johnson, S.B., Tamura, R., Elding Larsson, H., Ahmed, S., Veijola, R.,
Haller, M.J., Akolkar, B., Hagopian, W.A., Rewers, M.J., Krischer, J., & Steck, A.K. (in press).
Family adjustment to diabetes diagnosis in children: Can participation in a study on type 1
diabetes genetic risk be helpful? Pediatric Diabetes.
Lycett, K., McNamara, C., Mensah, F.K., Burgner, D., Kerr, J.A., Muller, J., & Wake, M. (in
press). Associations of mental health with cardiovascular risk phenotypes and adiposity in
adolescence: A cross-sectional community-based study. Journal of Paediatrics and Child Health.
Shinnar, R.C., Shinnar, S., Hesdorffer, D.C., O'Hara, K., Conklin, T., Cornett, K.M., Miazga, D.,
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year follow-up: Results from the FEBSTAT study. Epilepsy & Behavior.
Psihogios, A.M., Daniel, L.C., Tarazi, R., Smith-Whitley, K., Patterson, C.A., & Barakat, L.P.
(2018). Family functioning, medical self-management, and health outcomes among school-aged
children with sickle cell disease: A mediation model. Journal of Pediatric Psychology, 43, 423-
433.
Ghezzi, A., Bianchi, A., Baroncini, D., Bertolotto, A., Malucchi, S., Bresciamorra, V., Lanzillo,
R., Milani, N., Martinelli, V., Patti, F., Chisari, C., Rottoli, M., Simone, M., Paolicelli, D., &
Visconti, A. (in press). A multicenter, observational, prospective study of self- and parent-
reported quality of life in adolescent multiple sclerosis patients self-administering interferon-β1a
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Cardoso, A.M.R., de Medeiros, M.M.D., Gomes, L.N., Martins, M.L., Padilha, W.W.N., &
Cavalcanti, A.L. (in press). Factors associated with health and oral health-related quality of life of
children and adolescents with cerebral palsy. Special Care in Dentistry.
Barrera, M., Atenafu, E., Nathan, P.C., Schulte, F., & Hancock, K. (in press). Depression and
quality of life in siblings of children with cancer after group intervention participation: A
randomized control trial. Journal of Pediatric Psychology.
Gopinath, B., Liew, G., Burlutsky, G., Baur, L.A., & Mitchell, P. (2018). Health-related quality of
life in adolescents and the retinal microvascular structure. Scientific Reports, 8(1):3068.
Sorensen, L.G., Neighbors, K., Hardison, R.M., Loomes, K.M., Varni, J.W., Ng, V.L., Squires,
R.H., & Alonso, E.M. (in press). Health related quality of life and neurocognitive outcomes in the
first year after pediatric acute liver failure. Journal of Pediatrics.
Trevizoli, I.C., Pinedo, C.S., Teles, V.O., Seixas, R.B.P.M., & de Carvalho, E. (in press).
Autoimmune hepatitis in children and adolescents: Effect on quality of life. Journal of Pediatric
Gastroenterology and Nutrition.
Radcliff, Z., Weaver, P., Chen, R., Streisand, R., & Holmes, C. (2018). The role of authoritative
parenting in adolescent type 1 diabetes management. Journal of Pediatric Psychology, 43, 185-
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Splinter, A., Tjaden, L.A., Haverman, L., Adams, B., Collard, L., Cransberg, K., van Dyck, M.,
Van Hoeck, K.J., Hoppe, B., Koster-Kamphuis, L., Lilien, M.R., Raes, A., Taylan, C.,
Grootenhuis, M.A., & Groothoff, J.W. (in press). Children on dialysis as well as renal
transplanted children report severely impaired health-related quality of life. Quality of Life
Research.
Mirchi, A., Pelletier, F., Tran, L.T., Keller, S., Braverman, N., Tonduti, D., Vanderver, A., Pizzino,
A., Dilenge, M.E., Poulin, C., Shevell, M., Majnemer, A., Sébire, G., Srour, M., Osterman, B.,
Boucher, R.M., Vanasse, M., Rossignol, E., Mitchell, J., Venkateswaran, S., Pohl, D., Kauffman,
M., Schiffmann, R., Goizet, C., Moutton, S., Roncarolo, F., & Bernard, G. (in press). Health-
related quality of life for patients with genetically determined leukoencephalopathy. Pediatric
Neurology.
Polack, S., Adams, M., O'banion, D., Baltussen, M., Asante, S., Kerac, M., Gladstone, M., &
Zuurmond, M. (in press). Children with cerebral palsy in Ghana: Malnutrition, feeding
challenges, and caregiver quality of life. Developmental Medicine and Child Neurology.
Dahlmann-Noor, A., Tailor, V., Abou-Rayyah, Y., Adams, G., Brookes, J., Khaw, S.P.T., Bunce,
C., & Papadopoulos, M. (in press). Functional vision and quality of life in children with
microphthalmia/anophthalmia/coloboma: A cross-sectional study. Journal of American
Association for Pediatric Ophthalmology and Strabismus.
Connell, T., Paterson, J., Roberts, R.M., Raghavendra, P., Sawyer, M., & Russo, R.N. (in press).
Clinician modifiable factors associated with better quality of life in children with acquired brain
injury undergoing rehabilitation. Brain Injury.
Caçola, P., & Killian, M. (2018). Health-related quality of life in children with Developmental
Coordination Disorder: Association between the PedsQL and KIDSCREEN instruments and
comparison with their normative samples. Research in Developmental Disabilities, 75, 32-39.
Mangione-Smith, R., Zhou, C., Corwin, M.J., Taylor, J.A., Rice, F., & Stout, J.W. (2017).
Effectiveness of the spirometry 360 quality improvement program for improving asthma care: A
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Yang, P., Chen, G., Wang, P., Zhang, K., Deng, F., Yang, H., & Zhuang, G. (in press).
Psychometric evaluation of the Chinese version of the Child Health Utility 9D (CHU9D-CHN): A
school-based study in China. Quality of Life Research.
Manning, A.M., Duggins, A.L., Tiemeyer, K.A., Mullen, L.A., Crisalli, J.A., Cohen, A.P., &
Ishman, S.L. (in press). Characterizing decisional conflict for caregivers of children with
obstructive sleep apnea without tonsillar hypertrophy. Journal of Clinical Sleep Medicine.
Aceves, S.S., King, E., Collins, M.H., Yang, G.Y., Capocelli, K.E., Abonia, J.P., Atkins, D.,
Bonis, P.A., Carpenter, C.L., Dellon, E.S., Eby, M.D., Falk, G.W., Gonsalves, N., Gupta, S.K.,
Hirano, I., Kocher, K., Krischer, J.P., Leung, J., Lipscomb, J., Menard-Katcher, P., Mukkada,
V.A., Pan, Z., Spergel, J.M., Sun, Q., Wershil, B.K., Rothenberg, M.E., & Furuta, G.T. (in press).
Alignment of parent- and child-reported outcomes and histology in eosinophilic esophagitis
across multiple CEGIR sites. Journal of Allergy and Clinical Immunology.
Hedlund, E.R., Lundell, B., Söderström, L., & Sjöberg, G. (in press). Can endurance training
improve physical capacity and quality of life in young Fontan patients? Cardiology in the Young.
Zheng, D.J., Lu, X., Schore, R.J., Balsamo, L., Devidas, M., Winick, N.J., Raetz, E.A., Loh,
M.L., Carroll, W.L., Sung, L., Hunger, S.P., Angiolillo, A.L., & Kadan-Lottick, N.S. (in press).
Longitudinal analysis of quality of life outcomes in children during treatment for acute
lymphoblastic leukemia: A report from the Children's Oncology Group AALL0932 trial. Cancer.
Li, J., Jones, J.T., Donnelly, C., Cunningham, N., Kashikar-Zuck, S., & Brunner, H.I. (in press).
Pain predicts poorer health-related quality of life in childhood-onset systemic lupus
erythematosus: A cohort study. Journal of International Medical Research.
Whitaker, B.N., Fisher, P.L., Jambhekar, S., Com, G., Razzaq, S., Thompson, J.E., Nick, T.G., &
Ward, W.L. (2018). Impact of degree of obesity on sleep, quality of life, and depression in youth.
Journal of Pediatric Health Care, 32:e37-e44.
Gopakumar, K.G., Bhat, K.G., Baliga, S., Joseph, N., Mohan, N., & Shetty, A.K. (2018). Impact
of care at foster homes on the health-related quality of life of HIV-infected children and
adolescents: A cross-sectional study from India. Quality of Life Research, 27, 871-877.
Allen, T.M., Anderson, L.M., Rothman, J.A., & Bonner, M.J. (2017) Executive functioning and
health-related quality of life in pediatric sickle cell disease. Child Neuropsychology, 23, 889-906.
Al Hayek, A.A., Robert, A.A., & Al Dawish, M.A. (in press). Evaluation of FreeStyle Libre flash
glucose monitoring system on glycemic control, health-related quality of life, and fear of
hypoglycemia in patients with type 1 diabetes. Clinical Medicine Insights. Endocrinology and
Diabetes.
Chordiya, K., Katewa, V., Sharma, P., Deopa, B., & Katewa, S. (in press). Quality of life (QoL)
and the factors affecting it in transfusion-dependent thalassemic children. Indian Journal of
Pediatrics.
Huang, I.C., Brinkman, T.M., Mullins, L., Pui, C.H., Robison, L.L., Hudson, M.M., & Krull, K.R.
(in press). Child symptoms, parent behaviors, and family strain in long-term survivors of
childhood acute lymphoblastic leukemia. Psycho-oncology.
Duramaz, A., Yılmaz, S., Ziroğlu, N., Bursal Duramaz, B., & Kara, T. (in press). The effect of
deformity correction on psychiatric condition of the adolescent with adolescent idiopathic
scoliosis. European Spine Journal.
Yetwin, A.K., Mahrer, N.E., John, C., & Gold, J.I. (in press). Does pain intensity matter? The
relation between coping and quality of life in pediatric patients with chronic pain. Journal of
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Moola, F.J., Garcia, E., Huynh, E., Henry, L., Penfound, S., Consunji-Araneta, R., & Faulkner,
G.E.J. (in press). Physical activity counseling for children with cystic fibrosis. Respiratory Care.
Limperg, P.F., Haverman, L., Maurice-Stam, H., Coppens, M., Valk, C., Kruip, M.J.H.A.,
Eikenboom, J., Peters, M., & Grootenhuis, M.A. (in press). Health-related quality of life,
developmental milestones, and self-esteem in young adults with bleeding disorders. Quality of
Life Research.
Halvorsen, J.F., Sund, A.M., Zeltzer, L., Ådnanes, M., Jensberg, H., Eikemo, T.A., Lund, B.,
Hjemdal, O., & Reinfjell, T. (in press). Health-related quality of life and psychological distress in
young adult survivors of childhood cancer and their association with treatment, education, and
demographic factors. Quality of Life Research.
Chavez, L.J., Grannis, C., Dolce, M., & Chisolm, D.J. (in press). Benefits of medical home care
reaching beyond chronically ill teens: Exploring parent health-related quality of life. Academic
Pediatrics.
Zou, Y., Szczesniak, R., Teeters, A., Conard, L.A.E., & Grossoehme, D.H. (in press).
Documenting an epidemic of suffering: Low health-related quality of life among transgender
youth. Quality of Life Research.
Perez, K.M., Patel, N.J., Lord, J.H., Savin, K.L., Monzon, A.D., Whittemore, R., & Jaser, S.S.
(2017). Executive function in adolescents with type 1 diabetes: Relationship to adherence,
glycemic control, and psychosocial outcomes. Journal of Pediatric Psychology, 42, 636-646.
Switzer, G., Bruce, J., Pastork, G., Kiefer, D., Koyusingye, H., Drexler, R., Besser, R., Confer, D.,
Horowitz, M., King, R., Shaw, B., van Walraven, S., Wiener, L., Packman, W., Varni, J.W., &
Pulsipher, M. (in press). Parent versus child donor perceptions of the bone marrow donation
experience. Bone Marrow Transplantation.
Self, M.M., Fobian, A., Cutitta, K., Wallace, A., & Lotze, T.E. (2018). Health-related quality of
life in pediatric patients with demyelinating diseases: Relevance of disability, relapsing
presentation, and fatigue. Journal of Pediatric Psychology, 43, 133-142.
Snyder Valier, A.R., Welch Bacon, C.E., Bay, R.C., Molzen, E., Lam, K.C., Valovich McLeod,
T.C. (in press). Reference values for the Pediatric Quality of Life Inventory and the
Multidimensional Fatigue Scale in adolescent athletes by sport and sex. American Journal of
Sports Medicine.
Lu, P.L., Koppen, I.J.N., Orsagh-Yentis, D.K., Leonhart, K., Ambeba, E.J., Deans, K.J., Minneci,
P.C., Teich, S., Diefenbach, K.A., Alpert, S.A., Benninga, M.A., Yacob, D., & Di Lorenzo, C. (in
press). Sacral nerve stimulation for constipation and fecal incontinence in children: Long-term
outcomes, patient benefit, and parent satisfaction. Neurogastroenterology and Motility.
Orr, S.L., Christie, S.N., Akiki, S., & McMillan, H.J. (in press). Disability, quality of life, and
pain coping in pediatric migraine: An observational study. Journal of Child Neurology.
Bazi, A., Sargazi-Aval, O., Safa, A., & Miri-Moghaddam, E. (in press). Health-related quality of
life and associated factors among Thalassemia Major patients, Southeast of Iran. Journal of
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Omura, J., Fuentes, M., & Bjornson, K. (in press). Participation in daily life: Influence on quality
of life in ambulatory children with cerebral palsy. PM&R: The Journal of Injury, Function, and
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Hiscock, H., Quach, J., Paton, K., Peat, R., Gold, L., Arnup, S., Sia, K.L., Nicolaou, E., & Wake,
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Children with hypoplastic left heart syndrome have lower quality of life than healthy controls and
children with other illnesses. Cardiology in the Young.
Höfel, L., Eppler, B., Storf, M., Schnöbel-Müller, E., Haas, J.P., & Hügle, B. (2018). Successful
treatment of methotrexate intolerance in juvenile idiopathic arthritis using eye movement
desensitization and reprocessing - treatment protocol and preliminary results. Pediatric
Rheumatology Online Journal, 16(1):11.
Racine, N.M., Khu, M., Reynolds, K., Guilcher, G.M.T., & Schulte, F.S.M. (2018). Quality of life
in pediatric cancer survivors: Contributions of parental distress and psychosocial family risk.
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Pederiva, F., Khalil, B., Morabito, A., & Wood, S.J. (in press). Impact of short bowel syndrome
on quality of life and family: The patient's perspective. European Journal of Pediatric Surgery.
Fiume, A., Deveber, G., Jang, S.H., Fuller, C., Viner, S., & Friefeld, S. (in press). Development
and validation of the pediatric stroke quality of life measure. Developmental Medicine and Child
Neurology.
Vanz, A.P., van de Sande Lee, J., Pinheiro, B., Zambrano, M., Brizola, E., da Rocha, N.S.,
Schwartz, I.V.D., de Souza Pires, M.M., & Félix, T.M. (2018). Health-related quality of life of
children and adolescents with osteogenesis imperfecta: A cross-sectional study using PedsQL™.
BMC Pediatrics, 18(1):95.
Dickerson, J.F., Feeny, D.H., Clarke, G.N., MacMillan, A.L., & Lynch, F.L. (in press). Evidence
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Manzoni, G.M., Rossi, A., Marazzi, N., Agosti, F., De Col, A., Pietrabissa, G., Castelnuovo, G.,
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Zhang, L., Gao, T., & Shen, Y. (in press). Quality of life in children with retinoblastoma after
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Stokes, M.A., Kornienko, L., Scheeren, A.M., Koot, H.M., & Begeer, S. (in press). A comparison
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McNally, K.A., Patrick, K.E., LaFleur, J.E., Dykstra, J.B., Monahan, K., & Hoskinson, K.R. (in
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Bojanić, K., Grizelj, R., Vuković, J., Omerza, L., Grubić, M., Ćaleta, T., Weingarten, T.N.,
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Eyüboglu, M., Kalay, I., & Eyüboglu, D. (in press). Evaluation of adolescents diagnosed with
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Ranasinghe, N., Devanarayana, N.M., Rajindrajith, S., Perera, M.S., Nishanthinie, S,
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Amedro, P., Tahhan, N., Bertet, H., Jeandel, C., Guillaumont, S., Mura, T., & Picot, M.C. (in
press). Health-related quality of life among children with Turner syndrome: Controlled cross-
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Domany, K.A., Hantragool, S., Smith, D.F., Xu, Y., Hossain, M., & Simakajornboon, N. (in
press). Sleep disorders and their management in children with Ehlers-Danlos Syndrome referred
to sleep clinics. Journal of Clinical Sleep Medicine.
Cipolletta, S., Spina, G., & Spoto, A. (in press). Psychosocial functioning, self-image, and quality
of life in children and adolescents with neurofibromatosis type 1. Child: Care, Health and
Development.
Baron Nelson, M., Riley, K., & Arellano, K. (in press). Adding a parent to the brain tumor team:
Evaluating a peer support intervention for parents of children with brain tumors. Journal of
Pediatric Oncology Nursing.
Eadie, P., Conway, L., Hallenstein, B., Mensah, F., McKean, C., & Reilly, S. (in press). Quality of
life in children with developmental language disorder. International Journal of Language &
Communication Disorders.
Pan, C.W., Wu, R.K., Wang, P., Li, J., & Zhong, H. (in press). Reduced vision, refractive errors
and health-related quality of life among adolescents in rural China. Clinical & Experimental
Optometry.
Aspesberro, F., Fesinmeyer, M.D., Zhou, C., Zimmerman, J.J., & Mangione-Smith, R. (2016).
Construct validity and responsiveness of the Pediatric Quality of Life Inventory 4.0 Generic Core
Scales and Infant Scales in the PICU. Pediatric Critical Care Medicine, 17(6), e272-e279.
Brandow, A.M., Nimmer, M., Simmons, T., Casper, T.C., Cook, L.J., Chumpitazi, C.E., Scott,
J.P., Panepinto, J.A., & Brousseau, D.C. (in press). Impact of emergency department care on
outcomes of acute pain events in children with sickle cell disease. American Journal of
Hematology.
Younossi, Z.M., Stepanova, M., Schwarz, K.B., Wirth, S., Rosenthal, P., Gonzalez-Peralta, R.,
Murray, K., Henry, L., & Hunt, S. (in press). Quality of life in adolescents with Hepatitis C
treated with Sofosbuvir and Ribavirin. Journal of Viral Hepatitis.
Kosola, S., McCarthy, M.C., McNeil, R., Orme, L.M., Drew, S., & Sawyer, S.M. (in press). Early
education and employment outcomes after cancer in adolescents and young adults. Journal of
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Taminskiene, V., Vaitkaitiene, E., Valiulis, A., Turner, S., Hadjipanayis, A., Stukas, R., & Valiulis,
A. (in press). The self-reported quality of life of Lithuanian children with asthma was comparable
to Western populations. Acta Paediatrica.
Collins, L., Collis, B., Trajanovska, M., Khanal, R., Hutson, J.M., Teague, W.J., & King, S.K. (in
press). Quality of life outcomes in children with Hirschsprung disease. Journal of Pediatric
Surgery.
Ghotra, S.K., Johnson, J.A., Qiu, W., Newton, A.S., Rasmussen, C., & Yager, J.Y. (in press).
Health-related quality of life and its determinants in paediatric arterial ischaemic stroke survivors.
Archives of Disease in Childhood.
Magee, C.A., Robinson, L., & Keane, C. (2017). Sleep quality subtypes predict health-related
quality of life in children. Sleep Medicine, 35, 67-73.
Lee, Y.C., Yang, H.J., Lee, W.T., & Teng, M.J. (in press). Do parents and children agree on rating
a child's HRQOL? A systematic review and meta-analysis of comparisons between children with
attention deficit hyperactivity disorder and children with typical development using the
PedsQL™. Disability and Rehabilitation.
Richardson, K.L., Watson, R.S., & Hingorani, S. (in press). Quality of life following
hospitalization-associated acute kidney injury in children. Journal of Nephrology.
Kim, K.W., Wallander, J.L., Peskin, M., Cuccaro, P., Elliott, M.N., & Schuster, M.A. (in press).
Associations between parental SES and children's health-related quality of life: The role of
objective and subjective social status. Journal of Pediatric Psychology.
González, R., Bustinza, A., Fernandez, S.N., García, M., Rodriguez, S., García-Teresa, M.Á.,
Gaboli, M., García, S., Sardón, O., García, D., Salcedo, A., Rodríguez, A., Luna, M.C.,
Hernández, A., González, C., Medina, A., Pérez, E,, Callejón, A., Toledo, J.D., Herranz, M.,
&López-Herce, J. (in press). Quality of life in home-ventilated children and their families.
European Journal of Pediatrics.
Gu, X., Keller, M.J., Weiller-Abels, K.H., & Zhang, T. (in press). The roles of physical activity
and sedentary behavior on Hispanic children’s mental health: A motor skill perspective. Quality
of Life Research.
Rasmussen, H.M., Svensson, J., Thorning, M., Pedersen, N.W., Overgaard, S., & Holsgaard-
Larsen, A. (in press). Threshold values of ankle dorsiflexion and gross motor function in 60
children with cerebral palsy. Acta Orthopaedica.
Ozkan, Y. (in press). Child's quality of life and mother's burden in spastic cerebral palsy: A
topographical classification perspective. Journal of International Medical Research.
Tobin, J., Miller, K.A., Baezconde-Garbanati, L., Unger, J.B., Hamilton, A.S., & Milam, J.E.
(2018). Acculturation, mental health, and quality of life among Hispanic childhood cancer
survivors: A latent class analysis. Ethnicity & Disease, 28, 55-60.
Britton, P.N., Khandaker, G., Khatami, A., Teutsch, S., Francis, S., McMullan, B.J., & Jones, C.A.
(in press). High prevalence of developmental concern amongst infants at 12 months following
hospitalised parechovirus infection. Journal of Paediatrics and Child Health.
Diederen, K., Haverman, L., Grootenhuis, M.A., Benninga, M.A., & Kindermann, A. (in press).
Parental distress and quality of life in pediatric inflammatory bowel disease: Implications for the
outpatient clinic. Journal of Pediatric Gastroenterology and Nutrition.
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Baek, H.S., Park, K.S., Ha, I.S., Kang, H.G., Cheong, H.I., Park, Y.S., Lee, J.H., Cho, H.Y., &
Cho, M.H. (in press). The impact of end-stage renal disease in children on their parents.
Nephrology.
Limperg, P.F., Joosten, M.M.H., Fijnvandraat, K., Peters, M., Grootenhuis, M.A., & Haverman,
L. (in press). Male gender, school attendance and sports participation are positively associated
with health-related quality of life in children and adolescents with congenital bleeding disorders.
Haemophilia.
Weaver, M., Wichman, C., Darnall, C., Bace, S., Vail, C., & MacFadyen, A. (in press). Proxy-
reported quality of life and family impact for children followed longitudinally by a pediatric
palliative care team. Journal of Palliative Medicine.
Wei, Y., Speechley, K.N., Zou, G., & Campbell, C. (in press). The relationship between quality of
life and health-related quality of life in young males with Duchenne muscular dystrophy.
Developmental Medicine and Child Neurology.
Hedgecock, J.B., Dannemiller, L.A., Shui, A., Rapport, M.J., & Katz, T. (in press). Associations
of gross motor delay, behavior, and quality of life in young children with autism. Physical
Therapy.
Shen, Y., King, C.H., Binder, S., Zhang, F., Whalen, C.C., Evan Secor, W., Montgomery, S.P.,
Mwinzi, P.N.M., Olsen, A., Magnussen, P., Kinung'hi, S., Phillips, A.E., Nalá, R., Ferro, J.,
Aurelio, H.O., Fleming, F., Garba, A., Hamidou, A., Fenwick, A., Campbell, C.H. Jr, & Colley,
D.G. (2017). Protocol and baseline data for a multi-year cohort study of the effects of different
mass drug treatment approaches on functional morbidities from schistosomiasis in four African
countries. BMC Infectious Diseases, 17(1):652.
Guardabassi, V., Mirisola, A., & Tomasetto, C. (in press). How is weight stigma related to
children's health-related quality of life? A model comparison approach. Quality of Life Research.
Anderson, Y.C., Wynter, L.E., Treves, K.F., Grant, C.C., Stewart, J.M., Cave, T.L., Wouldes, T.A.,
Derraik, J.G.B., Cutfield, W.S., & Hofman, P.L. (2017). Assessment of health-related quality of
life and psychological well-being of children and adolescents with obesity enrolled in a New
Zealand community-based intervention programme: An observational study. BMJ Open,
7(8):e015776.
Menon, S.C., Al-Dulaimi, R., McCrindle, B.W., Goldberg, D.J., Sachdeva, R., Goldstein, B.H.,
Seery, T., Uzark, K.C., Chelliah, A., Butts, R., Henderson, H., Johnson, T., & Williams, R.V. (in
press). Delayed puberty and abnormal anthropometry and its associations with quality of life in
young Fontan survivors: A multicenter cross-sectional study. Congenital Heart Disease.
Lazor, T., Grasemann, H., Solomon, M., & Anthony, S.J. (in press). Quality of life outcomes
following pediatric lung transplantation. Pediatric Pulmonology.
Schwartz, C.E., Powell, V.E., Su, J., Zhang, J., & Eldar-Lissai, A. (in press). The impact of
extended half-life versus conventional factor product on hemophilia caregiver burden. Quality of
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Atz, A.M., Zak, V., Mahony, L., Uzark, K., D'agincourt, N., Goldberg, D.J., Williams, R.V.,
Breitbart, R.E., Colan, S.D., Burns, K.M., Margossian, R., Henderson, H.T., Korsin, R., Marino,
B.S., Daniels, K., & McCrindle, B.W. (2017). Longitudinal outcomes of patients with single
ventricle after the Fontan procedure. Journal of the American College of Cardiology, 69, 2735-
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Sander, H.H., Eckeli, A.L., Costa Passos, A.D., Azevedo, L., Fernandes do Prado, L.B, & França
Fernandes, R.M. (in press). Prevalence and quality of life and sleep in children and adolescents
with restless legs syndrome/Willis-Ekbom disease. Sleep Medicine.
Farajpour Kh, M., PishgahRoodsari, M., Salehiniya, H., & Soheilipour, F. (in press). The
relationship between body mass index (BMI) and quality of life in Iranian primary school
students in Tehran, Iran. BioMedicine.
Ejaz, R., Chen, S., Isaacs, C.J., Carnevale, A., Wilson, J., George, K., Delatycki, M.B., Perlman,
S.L., Mathews, K.D., Wilmot, G.R., Hoyle, J.C., Subramony, S.H., Zesiewicz, T., Farmer, J.M.,
Lynch, D.R., & Yoon, G. (in press). Impact of mobility device use on quality of life in children
with Friedreich Ataxia. Journal of Child Neurology.
Warady, B.A., Barcia, J., Benador, N., Jankauskiene, A., Olson, K., Podracka, L., Shavkin, A.,
Srivaths, P., Wong, C.J., & Petersen, J. (in press). De novo weekly and biweekly darbepoetin alfa
dosing in pediatric patients with chronic kidney disease. Pediatric Nephrology.
Al-Gamal, E., & Long, T. (in press). The psychometric properties of an Arabic version of the
PedsQL Multidimensional Fatigue Scale tested for children with cancer. Comprehensive Child
and Adolescent Nursing.
Rozensztrauch, A., Śmigiel, R., & Patkowski, D. (in press). Congenital esophageal atresia-
surgical treatment results in the context of quality of life. European Journal of Pediatric Surgery.
Oh, Y., Joung, Y.S., Jang, B., Yoo, J.H., Song, J., Kim, J., Kim, K., Kim, S., Lee, J., Shin, H.Y.,
Kwon, J.Y., Kim, Y.H., & Jeong, B. (in press). Efficacy of hippotherapy versus pharmacotherapy
in attention-deficit/hyperactivity disorder: A randomized clinical trial. Journal of Alternative and
Complementary Medicine.
Abd Hamid, I.J., Slatter, M.A., McKendrick, F., Pearce, M.S., & Gennery, A.R. (in press). Long-
term outcome of hematopoietic stem cell transplantation for IL2RG/JAK3 SCID: A cohort report.
Blood.
Hancock, H.S., Pituch, K., Uzark, K., Bhat, P., Fifer, C., Silveira, M., Yu, S., Welch, S., Donohue,
J., Lowery, R., & Aiyagari, R. (in press). A randomised trial of early palliative care for maternal
stress in infants prenatally diagnosed with single-ventricle heart disease. Cardiology in the
Young.
Kikuchi, R., Mizuta, K., Urahashi, T., Sanada, Y., Yamada, N., Onuma, E., Sato, I., &
Kamibeppu, K. (in press). Quality of life of biliary atresia after living donor liver transplant in
Japan. Pediatrics International.
Helin, N., Kolho, K.L., Qvist, E., Mäkelä, M., & Merras-Salmio, L. (in press). Gastrointestinal
symptoms of food challenge-proven non-Ige cow's milk allergy are dissipated by early school
age. Journal of Pediatric Gastroenterology and Nutrition.
Nkwata, A.K., Zalwango, S.K., Kizza, F.N., Sekandi, J.N., Mutanga, J., Zhang, M., Musoke,
P.M., & Ezeamama, A.E. (in press). Quality of life among perinatally HIV-affected and HIV-
unaffected school-aged and adolescent Ugandan children: A multi-dimensional assessment of
wellbeing in the post-HAART era. Quality of Life Research.
Kamody, R.C., Berlin, K.S., Rybak, T.M., Klages, K.L., Banks, G.G., Ali, J.S., Alemzadeh, R.,
Ferry R.J. Jr, Diaz Thomas, A.M. (in press). Psychological flexibility among youth with type 1
diabetes: Relating patterns of acceptance, adherence, and stress to adaptation. Behavioral
Medicine.
Dingemans, A.J.M., Krois, W., Rios, J.C., Wood, R.J., Levitt, M.A., & Reck-Burneo, C.A. (in
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A comparison between a charity hospital in Honduras and a tertiary care center in the United
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Vikhareva, E.G., Viniarskaia, I.V., Khan, M.A., Tretiakova, T.V., & Chernikov, V.V. (in press). On
quality of life of children of senior school age in the Republic of Udmurtia. Probl Sotsialnoi Gig
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Amin, S., Lux, A., Khan, A., & O'Callaghan, F. (in press). Sirolimus ointment for facial
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Fantaguzzi, C., Allen, E., Miners, A., Christie, D., Opondo, C., Sadique, Z., Fletcher, A., Grieve,
R., Bonell, C., Viner, R.M., & Legood, R. (in press). Health-related quality of life associated with
bullying and aggression: A cross-sectional study in English secondary schools. European Journal
of Health Economics.
Petersen, K.D., Chen, G., Mpundu-Kaambwa, C., Stevens, K., Brazier, J., & Ratcliffe, J. (in
press). Measuring health-related quality of life in adolescent populations: An empirical
comparison of the CHU9D and the PedsQL™ 4.0 Short Form 15. The Patient.
Lucendo, A.J., Arias-González, L., Molina-Infante, J., & Arias, Á. (in press). Systematic review:
Health-related quality of life in children and adults with eosinophilic oesophagitis-instruments for
measurement and determinant factors. Alimentary Pharmacology & Therapeutics
Gizli Çoban, Ö, Sürer Adanır, A., & Özatalay E. (in press). Post-traumatic stress disorder and
health-related quality of life in the siblings of the pediatric bone marrow transplantation survivors
and post-traumatic stress disorder in their mothers. Pediatric Transplantation.
Mitchell, T.B., & Steele, R.G. (2017). Bidirectional associations between disordered eating and
health-related quality of life in elementary school-age youth. Journal of Pediatric Psychology, 42,
315–324.
Hovsepian, S., Qorbani, M., Motlagh, M.E., Madady, A., Mansourian, M., Gorabi, A.M., &
Kelishadi, R. (in press). Association of obesity and health related quality of life in Iranian
children and adolescents: The Weight Disorders Survey of the CASPIAN-IV study. Journal of
Pediatric Endocrinology & Metabolism.
Schwartz, C.E., Grover, S.A., Powell, V.E., Noguera, A., Mah, J.K., Mar, S., Mednick, L.,
Banwell, B.L., Alper, G., Rensel, M., Gorman, M., Waldman, A., Schreiner, T., Waubant, E., &
Yeh, E.A. (in press). Risk factors for non-adherence to disease-modifying therapy in pediatric
multiple sclerosis. Multiple Sclerosis.
Li, L., Lin, P., & Gao, X. (in press). Health-related quality of life in children and adolescents
living in the north-east of China before and after cardiac catheter interventional treatment.
Cardiology in the Young.
Chan, K.L., Chen, M., Chen, Q., Ip, P. (2017). Can family structure and social support reduce the
impact of child victimization on health-related quality of life? Child Abuse & Neglect, 72, 66-74.
Wong, M., Olds, T., Gold, L., Lycett, K., Dumuid, D., Muller, J., Mensah, F.K., Burgner, D.,
Carlin, J.B., Edwards, B., Dwyer, T., Azzopardi, P., & Wake, M. (in press). Time-use patterns and
health-related quality of life in adolescents. Pediatrics.
Atay, C., Kaya Mutlu, E., Taskiran, H., & Ozgen, I.T. (in press). Comparison of hand function
between children with type 1 diabetes mellitus and children without type 1 diabetes mellitus.
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Nunes, M.D.R., Jacob, E., Bomfim, E.O., Lopes-Junior, L.C., de Lima, R.A.G., Floria-Santos,
M., & Nascimento, L.C. (2017). Fatigue and health related quality of life in children and
adolescents with cancer. European Journal of Oncology Nursing, 29, 39-46.
Draucker, C.B., Nutakki, K., Varni, J.W., & Swigonski, N.L. (in press).The health-related quality
of life of children, adolescents, and young adults with Neurofibromatosis Type 1 and their
families: Analysis of narratives. Journal for Specialists in Pediatric Nursing.
Monteiro, F.P., Solé, D., & Wandalsen, G.F. (2017). Quality of life of asthmatic children and
adolescents: Portuguese translation, adaptation and validation of the questionnaire Pediatric
Quality of Life (PedsQL) Asthma Module. Journal of Asthma, 54, 983-989.
Warners, M.J., Hindryckx, P., Levesque, B.G., Parker, C.E., Shackelton, L.M., Khanna, R.,
Sandborn, W.J., D'Haens, G.R., Feagan, B.G., Bredenoord, A.J., & Jairath, V. (in press).
Systematic review: Disease activity indices in eosinophilic esophagitis. American Journal of
Gastroenterology.
Hambly, J.L., Francis, K., Khan, S., Gibbons, K.S., Walsh, W.J., Lambert, B., Testa, C., &
Haywood, A. (in press). Micronutrient therapy for violent and aggressive male youth: An open-
label trial. Journal of Child and Adolescent Psychopharmacology.
Shaw, B.E., Brazauskas, R., Millard, H.R., Fonstad, R., Flynn, K.E., Abernethy, A., Vogel, J.,
Petroske, C., Mattila, D., Drexler, R., Lee, S.J., Horowitz, M.M., & Rizzo, J.D. (in press).
Centralized patient-reported outcome data collection in transplantation is feasible and clinically
meaningful. Cancer.
Sahin, N., Kasap, B., Kirli, U., Yeniceri, N., & Topal, Y. (in press). Assessment of anxiety-
depression levels and perceptions of quality of life in adolescents with dysmenorrhea.
Reproductive Health.
Girabent-Farres, M., Monne-Guasch, L., Bagur-Calafat, C., & Fagoaga, J. (in press). Spanish
translation and validation of the neuromuscular module of the Pediatric Quality of Life Inventory
(PedsQL): Evaluation of the quality of life perceived by the parents of 2-4-year-old children with
neuromuscular diseases. Revista de Neurologia.
Veldhuijzen van Zanten, S.E.M., El-Khouly, F.E., Jansen, M.H.A., Bakker, D.P., Sanchez Aliaga,
E., Haasbeek, C.J.A., Wolf, N.I., Zwaan, C.M., Vandertop, W.P., van Vuurden, D.G., & Kaspers,
G.J.L. (in press). A phase I/II study of gemcitabine during radiotherapy in children with newly
diagnosed diffuse intrinsic pontine glioma. Journal of Neuro-Oncology.
Kessel, A., Farkas, H., Kivity, S., Veszeli, N., Kőhalmi, K.V., & Engel-Yeger, B. (in press). The
relationship between anxiety and quality of life in children with hereditary angioedema. Pediatric
Allergy and Immunology.
Sandheinrich, T., Wondmeneh, S.B., Mohrmann, C., Gettinger, K., Henry, J., & Hayashi, R.J. (in
press). Knowledge and perceptions of infertility in female cancer survivors and their parents.
Supportive Care in Cancer.
Tuysuz, G., & Tayfun, F. (in press). Health-related quality of life and its predictors among
transfusion-dependent Thalassemia patients. Journal of Pediatric Hematology/Oncology.
Sparks, T.N., Thao, K., & Norton, M.E. (in press). Mosaic trisomy 16: What are the obstetric and
long-term childhood outcomes? Genetics in Medicine.
Russell, K., Selci, E., Chu, S., Fineblit, S., Ritchie, L., & Ellis, M. (in press). Longitudinal
assessment of health-related quality of life following adolescent sports-related concussion.
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Lam, K.C., & Markbreiter, J.G. (in press). The impact of knee injury history on health-related
quality of life in adolescent athletes. Journal of Sport Rehabilitation.
Ataeinia, B., Montazeri, A., Tavakol, M., Azizi, G., Kiaee, F., Tavakolinia, N., Negahdari, B.,
Mohammadi, J., Abolhassani, H., Rezaei, N., & Aghamohammadi, A. (in press). Measurement of
health-related quality of life in primary antibody-deficient patients.Immunological Investigations.
Ingram, D.G., & Churchill, S.S. (in press). Sleep problems in children with agenesis of the corpus
callosum. Pediatric Neurology.
Looman, W.S., Hullsiek, R.L., Pryor, L., Mathiason, M.A., & Finkelstein, S.M. (in press). Health-
related quality of life outcomes of a telehealth care coordination intervention for children with
medical complexity: A randomized controlled trial. Journal of Pediatric Health Care.
Baek, H.S., Kang, H.G., Choi, H.J., Cheong, H.I., Ha, I.S., Han, K.H., Kim, S.H., Cho, H.Y.,
Shin, J.I., Park, Y.S., Lee, J.H., Lee, J., Ahn, C., & Cho, M.H. (in press). Health-related quality of
life of children with pre-dialysis chronic kidney disease. Pediatric Nephrology.
Joo, B., Lee, Y.M., Kim, H.D., & Eom, S. (in press). An analysis of a novel, short-term
therapeutic psychoeducational program for children and adolescents with chronic neurological
illness and their parents; Feasibility and efficacy. Frontiers in Neuroscience.
Heath, J., Norman, P., Christian, M., & Watson, A. (in press). Measurement of quality of life and
attitudes towards illness in children and young people with chronic kidney disease. Quality of
Life Research.
Yeh, E.A., Grover, S.A., Powell, V.E., Alper, G., Banwell, B.L., Edwards, K., Gorman, M.,
Graves, J., Lotze, T.E., Mah, J.K., Mednick, L., Ness, J., Obadia, M., Slater, R., Waldman, A.,
Waubant, E., & Schwartz, C.E. (2017). Impact of an electronic monitoring device and behavioral
feedback on adherence to multiple sclerosis therapies in youth: Results of a randomized trial.
Landfeldt, E., Mayhew, A., Straub, V., Lochmüller, H., Bushby, K., & Lindgren, P. (in press).
Psychometric analysis of the Pediatric Quality of Life Inventory 3.0 Neuromuscular Module
administered to patients with Duchenne muscular dystrophy: A Rasch analysis. Muscle & Nerve.
Akkerman, M., Mouton, L.J., Dijkstra, F., Niemeijer, A.S., van Brussel, M., van der Woude,
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burns. Burns.
Chan, S.F., Connelly, M., & Wallace, D.P. (2017). The relationship between pain characteristics,
peer difficulties, and emotional functioning among adolescents seeking treatment for chronic
pain: A test of mediational models. Journal of Pediatric Psychology, 42, 941-951.
Elias, M.D., Achuff, B.J., Ittenbach, R.F., Ravishankar, C., Spray, T.L., Fuller, S., Montenegro,
L.M., Gaynor, J.W., & O'Connor, M.J. (in press). Long-term outcomes of pediatric cardiac
patients supported by extracorporeal membrane oxygenation. Pediatric Critical Care Medicine.
Lina, P., & Rūta, P. (in press). Chronobiological types, duration of sleeping and psycho-emotional
condition of teenagers. Acta Medica Lituanica.
Quach, J., Nguyen, C., O'Connor, M., & Wake, M. (2017). The cumulative effect of health
adversities on children's later academic achievement. Academic Pediatrics, 17, 706-714.
Laraja, K., Sadhwani, A., Tworetzky, W., Marshall, A.C., Gauvreau, K., Freud, L., Hass, C.,
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Mollerup, P.M., Nielsen, T.R., Bøjsøe, C., Kloppenborg, J.T., Baker, J.L., & Holm, J.C. (in press).
Quality of life improves in children and adolescents during a community-based overweight and
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Xu, F., Xing, H., Yu, W., Chen, S., & Li, H. (2017). Health-related quality of life and influencing
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Schepers, S.A., van Oers, H.A., Maurice-Stam, H., Huisman, J., Verhaak, C.M., Grootenhuis,
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children. Health and Quality of Life Outcomes, 15(1):81.
Dahlmann-Noor, A., Tailor, V., Bunce, C., Abou-Rayyah, Y., Adams, G., Brookes, J., Khaw, P.T.,
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Braun, T.L., Kaufman, M.G., Hernandez, C., & Monson, L.A. (in press). Shared medical
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Kaugars, A., Shields, C., & Brosig, C. (in press). Stress and quality of life among parents of
children with congenital heart disease referred for psychological services. Congenital Heart
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Amedro, P., Bajolle, F., Bertet, H., Cheurfi, R., Lasne, D., Nogue, E., Auquier, P., Picot, M.C., &
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Pham-Short, A., Donaghue, K.C., Ambler, G., Garnett, S., & Craig, M.E. (in press). Quality of
life in type 1 diabetes and celiac disease: Role of the gluten-free diet. Journal of Pediatrics.
Mauritz, F.A., Stellato, R.K., van Heurn, L.W., Siersema, P.D., Sloots, C.E., Houwen, R.H., van
der Zee, D.C., & van Herwaarden-Lindeboom, M.Y. (in press). Laparoscopic antireflux surgery
increases health-related quality of life in children with GERD. Surgical Endoscopy.
Hubbard, C.S., Becerra, L., Heinz, N., Ludwick, A., Rasooly, T., Wu, R., Johnson, A., Schechter,
N.L., Borsook, D., & Nurko, S. (in press). Abdominal pain, the adolescent and altered brain
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Pakpour, A.H., Lin, C.Y., Kumar, S., Fridlund, B., & Jansson, H. (in press). Predictors of oral
health-related quality of life in Iranian adolescents: A prospective study. Journal of Investigative
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Switzer, G.E., Bruce, J., Kiefer, D.M., Kobusingye, H., Drexler, R., Besser, R.M., Confer, D.L.,
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& Pulsipher, M.A. (in press). Health-related quality of life among pediatric hematopoietic stem
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Hsueh, Y.M., Lee, C.Y., Chien, S.N., Chen, W.J., Shiue, H.S., Huang, S.R., Lin, M.I., Mu, S.C., &
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Doty, T., Foster, E.R., Marshall, B., Ranck, S., & Hershey, T. (2017). The effects of disease-
related symptoms on daily function in Wolfram Syndrome. Translational Science of Rare
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Friedland-Little, J.M., Uzark, K., Yu, S., Lowery, R., Aiyagari, R., & Hirsch-Romano, J.C. (in
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Hornsby, B.W.Y., Gustafson, S.J., Lancaster, H., Cho, S.J., Camarata, S., & Bess, F.H. (2017).
Subjective fatigue in children with hearing loss assessed using self- and parent-proxy report.
American Journal of Audiology, 26, 393-407.
Raj, M., Sudhakar, A., Roy, R., Soman, S., Antony, L., Champaneri, B., & Kumar, R.K. (in press).
Health-related quality of life in infants and toddlers with congenital heart disease: A cross-
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Raj, M., Sudhakar, A., Roy, R., Champaneri, B., Joy, T.M., & Kumar, R.K. (2017). Health-related
quality of life in Indian children: A community-based cross-sectional survey. Indian Journal of
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Sands, S., Ladas, E.J., Kelly, K.M., Weiner, M., Lin, M., Ndao, D.H., Dave, A., Vahdat, L.T., &
Bender, J.G. (in press). Glutamine for the treatment of vincristine-induced neuropathy in children
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Talarska, D., Michalak, M., Talarska, P., & Steinborn, B. (in press). Children with epilepsy
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Health-related quality of life among children with hereditary angioedema. Pediatric Allergy and
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Bansal, D., Azad, C., Gudala, K., & Dasari, A. (2017). Predictors of health related quality of life
in childhood epilepsy and comparison with healthy children: Findings from an Indian study.
Turkish Journal of Medical Sciences, 47, 490-498.
Yi-Frazier, J.P., Hilliard, M.E., Fino, N.F., Naughton, M.J., Liese, A.D., Hockett, C.W., Hood,
K.K., Pihoker, C., Seid, M., Lang, W., & Lawrence, J.M. (in press). Whose quality of life is it
anyway? Discrepancies between youth and parent health-related quality of life ratings in type 1
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Dhooria, G.S., Singh, H.P., Bhat, D., Bains, H.S., Soni, R.K., & Kumar, M. (in press).
Multidimensional impact on families of children with steroid-sensitive nephrotic syndrome.
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quality of life after transanal endorectal pull-through for Hirschsprung disease: Controlled
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Schmaeschke, K., Lezius, S., Grabhorn, E., Kemper, M.J., & Brinkert, F. (in press). Health-
related quality of life after combined liver and kidney transplantation in children. Pediatric
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V. K. A., Onta, M., & Joshi, S. (in press). Health-related quality of life of Nepalese children with
leukemia using Pediatric Quality of Life Inventory 4.0 Generic Core Scale. Journal of Pediatric
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The family impact of caring for a child with juvenile dermatomyositis. Chronic Illness.
Crichton, A.J., Babl, F., Oakley, E., Greenham, M., Hearps, S., Delzoppo, C., Hutchison, J.,
Beauchamp, M., & Anderson, V.A. (in press). Prediction of multidimensional fatigue after
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Rosenberg, A.R., Orellana, L., Ullrich, C., Kang, T., Geyer, J.R., Feudtner, C., Dussel, V., &
Wolfe, J. (in press). Quality of life in children with advanced cancer: A report from the
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Wang, C., Li, Y., Xiang, B., Xiong, F., Li, K., Yang, K., Chen, S., & Ji, Y. (2017). Quality of life
in children with infantile hemangioma: A case control study. Health and Quality of Life
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Kisecik Sengul, Z., & Altay, N. (2017). Effect of parental depression level on children's quality of
life after haematopoietic stem cell transplantation. European Journal of Oncology Nursing, 31,
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Ruggiero, K.M., Hickey, P.A., Leger, R.R., Vessey, J.A., & Hayman, L.L. (in press). Parental
perceptions of disease-severity and health-related quality of life in school-age children with
congenital heart disease. Journal for Specialists in Pediatric Nursing.
Vieira, E Neto, Maia HS Filho, Monteiro CB, Carvalho LM, Tonon T, Vanz AP, Schwartz IVD,
Ribeiro MG. (2017). Quality of life and adherence to treatment in early-treated Brazilian
phenylketonuria pediatric patients. Brazilian Journal of Medical and Biological Research,
51(2):e6709.
Osorio-Guzmán M, Gutiérrez-González G, Bazán-Riverón GE, Núñez-Villegas NN, Fernández-
Castillo GJ. (2017). Perception of quality of life related with health and depression in patients
with hemophilia. Revista Médica del Instituto Mexicano del Seguro Social, 55, 416-422.
Amaya-Arias, A.C., Alzate, J.P., & Eslava-Schmalbach, J.H. (in press). Construct and criterion
validity of the PedsQL™ 4.0 Instrument (Pediatric Quality of Life Inventory) in Colombia.
International Journal of Preventive Medicine.
Calder, P., Shaw, S., Roberts, A., Tennant, S., Sedki, I., Hanspal, R., & Eastwood D. (2017). A
comparison of functional outcome between amputation and extension prosthesis in the treatment
of congenital absence of the fibula with severe limb deformity. Journal of Children's
Orthopaedics, 11, 318-325.
Wallace, E.R., Collett, B.R., Heike, C.L., Werler, M.M., & Speltz, M.L. (in press). Behavioral-
social adjustment of adolescents with craniofacial microsomia. Cleft Palate-Craniofacial Journal.
Loiselle, K.A., Ramsey, R.R., Rausch, J.R., & Modi, A.C. (2016). Trajectories of health-related
quality of life among children with newly diagnosed epilepsy. Journal of Pediatric Psychology,
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Lah Tomulic, K., Mestrovic, J., Zuvic, M., Rubelj, K., Peter, B., Bilic Cace, I., & Verbic, A. (in
press). Neonatal risk mortality scores as predictors for health-related quality of life of infants
treated in NICU: A prospective cross-sectional study. Quality of Life Research.
Rabbitts, J.A., Palermo, T.M., Zhou, C., & Mangione-Smith, R. (in press). Pain and health-related
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Wojtowicz, A.A., Plevinsky, J.M., Poulopoulos, N., Schurman, J.V., & Greenley, R.N. (in press).
Examining predictors of healthcare utilization in youth with inflammatory bowel disease.
European Journal of Gastroenterology and Hepatology.
Tailor, V.K., Abou-Rayyah, Y., Brookes, J., Khaw, P.T., Papadopoulos, M., Adams, G.G., Bunce,
C., & Dahlmann-Noor, A. (in press). Quality of life and functional vision in children treated for
cataract-a cross-sectional study. Eye.
Engebretsen, S., Sorrells, R., Yi-Frazier, J.P., & Early, K.B. (2016). Longitudinal quality of life
improvement in underserved rural youth with obesity. Obesity Science & Practice, 2, 444-455.
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Kikuchi, R., Mizuta, K., Urahashi, T., Sanada, Y., Yamada, N., Onuma, E., Ono, M., Endo, M.,
Sato, I., & Kamibeppu, K. (in press). Development of the Japanese version of the Pediatric
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Selveindran M.N., Syed Zakaria, S.Z., Jalaludin, M.Y., & Rasat, R. (in press). Quality of life in
children with disorders of sex development. Hormone Research in Pædiatrics.
Ong, L.C., Teh, C.S, Darshinee, J., Omar, A., & Ang, H.L. (in press). Quality of life of Malaysian
children with CHD. Cardiology in the Young.
Raja, K., Parikh, A., Webb, H., & Hothi, D. (in press). Use of a low-dose prednisolone regimen to
treat a relapse of steroid-sensitive nephrotic syndrome in children. Pediatric Nephrology.
Uzark, K., Zak, V., Shrader, P., McCrindle, B.W., Radojewski, E., Varni, J.W., Daniels, K.,
Handisides, J., Hill, K.D., Lambert, L.M., Margossian, R., Pemberton, V.L., Lai, W.W., & Atz,
A.M. (in press). Assessment of quality of life in young patients with single ventricle after the
Fontan operation. Journal of Pediatrics.
Fagundes, S.N., Lebl, A.S., Azevedo Soster, L., Sousa, E., Silva, G.J., Silvares, E.F., & Koch,
V.H. (in press). Monosymptomatic nocturnal enuresis in pediatric patients: Multidisciplinary
assessment and effects of therapeutic intervention. Pediatric Nephrology.
Foong, R.X., Meyer, R., Godwin, H., Dziubak, R., Lozinsky, A.C., Reeve, K., Knibb, R., & Shah,
N. (in press). Parental perception of their child's quality of life in children with non-
immunoglobulin-e mediated gastrointestinal allergies. Pediatric Allergy and Immunology.
Chevignard, M., Francillette, L., Toure, H., Brugel, D., Meyer, P., Vannier, A.L., Opatowski, M.,
& Watier, L. (in press). Academic outcome, participation and health-related quality of life
following childhood severe traumatic brain injury: Results of a prospective longitudinal study:
The seven-year follow-up of the TGE cohort. Annals of Physical and Rehabilitation Medicine.
Barat, P., Meiffred, M.C., Brossaud, J., Fuchs, D., Corcuff, J.B., Thibault, H., & Capuron, L.
(2016). Inflammatory, endocrine and metabolic correlates of fatigue in obese children.
Psychoneuroendocrinology, 74, 158-163.
Abecassis, I.J., Nerva, J.D., Barber, J., Rockhill, J., Ellenbogen, R.G., Kim, L.J., & Sekhar, L.N.
(in press). Toward a comprehensive assessment of functional outcomes in pediatric patients with
brain arteriovenous malformations: the Pediatric Quality of Life Inventory. Journal of
Neurosurgery. Pediatrics.
Aslan, C., Olgun, Z.D., Ertas, E.S., Ozusta, S., Demirkiran, G., Unal, F., & Yazici, M. (2017).
Psychological profile of children who require repetitive surgical procedures for early onset
scoliosis: Is a poorer quality of life the cost of a straighter spine? Spine Deformity, 5, 334-341.
Montaño-Velázquez, B.B., Nolasco-Renero, J., Parada-Bañuelos, J.E., Garcia-Vázquez, F.,
Flores-Medina, S., García-Romero, C.S., & Jáuregui-Renaud, K. (in press). Quality of life of
young patients with recurrent respiratory papillomatosis. Journal of Laryngology and Otology.
Parmar, A., Vandriel, S.M., & Ng, V.L. (in press). Health related quality of life after pediatric liver
transplantation: A systematic review. Liver Transplantation.
Agrawal, S., Krishnamurthy, S., & Naik, B.N. (2017). Assessment of quality of life in children
with nephrotic syndrome at a teaching hospital in South India. Saudi Journal of Kidney Diseases
and Transplantation, 28, 593-598.
Aabom, A., Nguyen, D., Fisker, N., & Bygum, A. (2017). Health-related quality of life in Danish
children with hereditary angioedema. Allergy and Asthma Proceedings, 38, 440-446.
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Jagnoor, J., Prinja, S., Christou, A., Baker, J., Gabbe, B., & Ivers, R. (2017). Health-related
quality of life and function after paediatric injuries in India: A longitudinal study. International
Journal of Environmental Research and Public Health, 14(10).
Fazelniya, Z., Najafi, M., Moafi, A., & Talakoub, S. (2017). The impact of an interactive
computer game on the quality of life of children undergoing chemotherapy. Iranian Journal of
Nursing and Midwifery Research, 22, 431-435.
Rajindrajith S., Devanarayana, N.M., & Benninga, M.A. (in press). Constipation and constipation
predominant irritable bowel syndrome: A comparative study using Rome III criteria. Journal of
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Medyńska, A., Zwolińska, D., Grenda, R., Miklaszewska, M., Szczepańska, M., Urzykowska, A.,
Zachwieja, K., & Kiliś-Pstrusińska, K. (in press). Psychosocial aspects of children and families
treated with hemodialysis. Hemodialysis International.
Bozzini, A.B., Neder, L., Silva, C.A., & Porta, G. (in press). Decreased health-related quality of
life in children and adolescents with autoimmune hepatitis. Jornal de Pediatria.
Kinung'hi, S., Magnussen, P., Kaatano, G., & Olsen, A. (in press). Infection with schistosoma
mansoni has an effect on quality of life, but not on physical fitness in schoolchildren in Mwanza
Region, North-Western Tanzania: A cross-sectional Study. PLoS Neglected Tropical Diseases.
Van Markus-Doornbosch, F., de Kloet, A.J., Berger, M.A., Lambregts, S.A., Wolterbeek, R., &
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(ABI). Brain Injury.
Sarria, E.E., Mundstock, E., Machado, D.G., Mocelin, H.T., Fischer, G.B., Furlan, S.P.,
Antonello, I.C.F., Stein, R., & Mattiello, R. (in press). Health-related quality of life in patients
with bronchiolitis obliterans. Jornal de Pediatria.
Rajindrajith, S., Devanarayana, N.M., & Benninga, M.A. (2016). Fecal incontinence in
adolescents is associated with child abuse, somatization, and poor health-related quality of life.
Journal of Pediatric Gastroenterology & Nutrition, 62, 698-703.
Bradley-Hewitt, T., Dantin, A., Ploutz, M., Aliku, T., Lwabi, P., Sable, C., & Beaton, A. (in press).
The impact of echocardiographic screening for rheumatic heart disease on patient quality of life.
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Vedantam, A., Hansen, D., Briceño, V., Brayton, A., & Jea, A. (in press). Patient-reported
outcomes of occipitocervical and atlantoaxial fusions in children. Journal of Neurosurgery.
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Lampela, H., Pakarinen, M.P., Jahnukainen, T., Jalanko, H., & Kosola, S. (in press). Quality of
life and parental worrying in a national cohort of biliary atresia children living with their native
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Orhan, C., Kaya Kara, O., Kaya, S., Akbayrak, T., Kerem Gunel, M., & Baltaci, G. (in press). The
effects of connective tissue manipulation and kinesio taping on chronic constipation in children
with cerebral palsy: A randomized controlled trial. Disability and Rehabilitation.
Bell, B., Butler, L., Mills, J., Stutz, C., Ezaki, M., & Oishi, S. (in press). "On-top plasty" for
radial polydactyly reconstruction. Journal of Hand Surgery.
Mann, K., Tsao, E., & Bjornson, K.F. (2016). Physical activity and walking performance:
Influence on quality of life in ambulatory children with cerebral palsy (CP). Journal of Pediatric
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Ryerson, A.B., Wasilewski-Masker, K., Border, W.L., Goodman, M., Meacham, L., Austin, H.,
Marchak, J.G., & Mertens, A.C. (2016). Pediatric quality of life in long-term survivors of
childhood cancer treated with anthracyclines. Pediatric Blood & Cancer, 63, 2205-2211.
Kobayashi, K., Nakagami-Yamaguchi, E., Hayakawa, A., Adachi, S., Hara, J., Tokimasa, S.,
Ohta, H., Hashii, Y., Rikiishi, T., Sawada, M., Kuriyama, K., Kohdera, U., Kamibeppu, K.,
Kawasaki, H., Oda, M., & Hori, H. (in press). Health-related quality of life in Japanese children
with acute lymphoblastic leukemia during and after chemotherapy. Pediatrics International.
Cushing, C.C., Martinez-Leo, B., Peña, A., Bischoff, A., Hall, J., Helmrath, M., Dickie, B.H.,
Levitt, M.A., Zeller, M.H., & Frischer, J.S. (in press). Health related quality of life and parental
stress in children with fecal incontinence: A normative comparison. Journal of Pediatric
Gastroenterology and Nutrition.
Klug, C., Schreiber-Katz, O., Thiele, S., Schorling, E., Zowe, J., Reilich, P., Walter, M.C., &
Nagels, K.H. (2016). Disease burden of spinal muscular atrophy in Germany. Orphanet Journal of
Rare Diseases, 11(1):58.
Kaczmarek, M., & Trambacz-Oleszak, S. (in press). HRQoL impact of stressful life events in
children beginning primary school: Results of a prospective study in Poland. Quality of Life
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Goldstein, B.H., Urbina, E.M., Khoury, P.R., Gao, Z., Amos, M.A., Mays, W.A., Redington, A.N.,
& Marino, B.S. (in press). Endothelial function and arterial stiffness relate to functional outcomes
in adolescent and young adult Fontan survivors. Journal of the American Heart Association.
Serkel-Schrama, I.J., de Vries, J., Nieuwesteeg, A.M., Pouwer, F., Nyklíček, I., Speight, J., de
Bruin, E.I., Bögels, S.M., & Hartman, E.E. (2016). The association of mindful parenting with
glycemic control and quality of life in adolescents with type 1 diabetes: Results from Diabetes
MILES-The Netherlands. Mindfulness, 7, 1227-1237.
Silva, L.L., Castelar. M., & Matos, M.A. (2016). Quality of life in pediatric patients with
avascular necrosis of the femoral head. Ortopedia, Traumatologia, Rehabilitacja, 18, 445-449.
Phadnis, S., & Kar, A. (in press). The impact of a haemophilia education intervention on the
knowledge and health related quality of life of parents of Indian children with haemophilia.
Haemophilia.
Armbrust, W., Lelieveld, O.H., Tuinstra, J., Wulffraat, N.M., Bos, G.J., Cappon, J., van Rossum,
M.A., Sauer, P.J., & Hagedoorn, M. (2016). Fatigue in patients with juvenile idiopathic arthritis:
Relationship to perceived health, physical health, self-efficacy, and participation. Pediatric
Rheumatology Online Journal, 14(1):65.
Hsieh, R.L., Hsieh, W.H., & Lee, W.C. (2016). Short-term family-centered workshop for children
with developmental delays enhances family functioning and satisfaction: A prospective clinical
trial. Medicine, 95(31):e4200.
Prasad, M., Hicks, R., MacKay, M., Nguyen, C.T., & Campbell, C. (2016). Developmental
milestones and quality of life assessment in a congenital myotonic dystrophy cohort. Journal of
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Brinkman, T.M., Cheung, Y.T., Pui, C.H., Hudson, M.M., & Krull, K.R. (in press). Functional
consequence of cognitive impairment in survivors of childhood acute lymphoblastic leukemia
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Hsueh, Y.M., Chen, W.J., Lee, C.Y., Chien, S.N., Shiue, H.S., Huang, S.R., Lin, M.I., Mu, S.C., &
Hsieh, R.L. (in press). Association of arsenic methylation capacity with developmental delays
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Mikkelsen, R., Rødevand, L.N., Wiig, U.S., Zahl, S.M., Berntsen, T., Skarbø, A.B., Egge, A.,
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Wilson, K.S., Wiersma, L.D., & Rubin, D.A. (2016). Quality of life in children with Prader Willi
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Uran, P., Yürümez, E., Aysev, A., & Kılıç, B.G. (in press). Premenstrual syndrome health-related
quality of life and psychiatric comorbidity in a clinical adolescent sample: A cross-sectional
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Annunziato, R.A., Lee, S.G., Galici, E., & Arnon, R. (in press). Children with hepatitis C: The
impact of disease and treatment on patients, caregivers and families. Journal of Pediatric Nursing.
Graef, D.M., Phipps, S., Parris, K.R., Martin-Elbahesh, K., Huang, L., Zhang, H., & Crabtree,
V.M. (2016). Sleepiness, fatigue, behavioral functioning, and quality of life in survivors of
childhood hematopoietic stem cell transplant. Journal of Pediatric Psychology, 41, 600–609.
Ranasinghe, N., Devanarayana, N.M., Benninga, M.A., van Dijk, M., & Rajindrajith, S. (in
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Simon, S.L., & Stark, L.J. (2016). Health-related quality of life in a community sample of
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Gonzalez, J., Cunningham, K., Perlmutter, J., & Gottlieb, A. (in press). Systematic review of
health-related quality of life in adolescents with psoriasis. Dermatology.
Mitchell, H.R., Lu, X., Myers, R.M., Sung, L., Balsamo, L.M., Carroll, W.L., Raetz, E., Loh,
M.L., Mattano, L.A., Jr,. Winick, N.J., Devidas, M., Hunger, S.P., Maloney, K., & Kadan-Lottick,
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months off treatment for standard risk acute lymphoblastic leukemia: Results of Children's
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Eliacik, K., Bolat, N., Koçyiğit, C., Kanik, A., Selkie, E., Yilmaz, H., Catli, G., Dundar, N.O., &
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individuals: A comparison study of the growing problems in adolescent health. Eating and Weight
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Ryerson, A.B., Wasilewski-Masker, K., Border, W.L., Goodman, M., Meacham, L., Austin, H.,
Marchak, J.G., & Mertens, A.C. (in press). Pediatric quality of life in long-term survivors of
childhood cancer treated with anthracyclines. Pediatric Blood & Cancer.
Dhirar, N., Khandekar, J., Bachani, D., & Mahto, D. (in press). Thalassemia major: How do we
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Kobayashi, K., Nakagami-Yamaguchi, E., Hayakawa, A., Adachi, S., Hara, J., Tokimasa, S.,
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Crichton, A.J., Babl, F., Oakley, E., Greenham, M., Hearps, S., Delzoppo, C., Hutchison, J.,
Beachamp, M., & Anderson, V.A. (in press). Prediction of multidimensional fatigue after
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Veloso, L.A., Mello, M.J., Ribeiro Neto, J.P., Barbosa, L.N., & Silva, E.J. (2016). Quality of life,
cognitive level and school performance in children with functional lower urinary tract
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Dupuis, L.L., Lu, X., Mitchell, H.R., Sung, L., Devidas, M., Mattano, L.A. Jr., Carroll, W.L.,
Winick, N., Hunger, S.P., Maloney, K.W., & Kadan-Lottick, N.S. (2016). Anxiety, pain, and
nausea during the treatment of standard-risk childhood acute lymphoblastic leukemia: A
prospective, longitudinal study from the Children's Oncology Group. Cancer, 122, 1116-1125.
Patel, B.J., Lai, L., Goldfield, G., Sananes, R., & Longmuir, P.E. (in press). Psychosocial health
and quality of life among children with cardiac diagnoses: Agreement and discrepancies between
parent and child reports. Cardiology in the Young.
Butwicka, A., Fendler, W., Zalepa, A., Szadkowska, A., Zawodniak-Szalapska, M., Gmitrowicz,
A., & Mlynarski, W. (in press). Psychiatric disorders and health-related quality of life in children
with type 1 diabetes mellitus. Psychosomatics.
van der Holst, M., Steenbeek, D., Pondaag, W., Nelissen, R.G., Vliet Vlieland, T.P. (in press).
Neonatal brachial plexus palsy in children aged 0 to 2.5 years; Parent-perceived family impact,
quality of life, and upper extremity functioning. Pediatric Neurology.
Ryan, J.L., McGrady, M.E., Guilfoyle, S.M., Follansbee-Junger, K., Peugh, J.L., Loiselle, K.A.,
Arnett, A.D., & Modi, A.C. (in press). Quality of life changes and health care charges among
youth with epilepsy. Journal of Pediatric Psychology.
Carney, N.A., Petroni, G.J., Luján, S.B., Ballarini, N.M., Faguaga, G.A., du Coudray, H.E.,
Huddleston, A.E., Baggio, G.M., Becerra, J.M., Busso, L.O., Dikmen, S.S., Falcone, R., García,
M.E., González Carrillo, O.R., Medici, P.L., Quaglino, M.B., Randisi, C.A., Sáenz, S.S., Temkin,
N.R., & Vanella, E.E. (in press). Postdischarge care of pediatric traumatic brain injury in
Argentina: A multicenter randomized controlled trial. Pediatric Critical Care Medicine.
Mohammad, S., Kaurs, E., Aguirre, V.P., Varni, J.W., & Alonso, E.M. (2016). Health related
quality of life in infants with chronic liver disease. Journal of Pediatric Gastroenterology &
Nutrition, 62, 751-756.
Beverung, L.M., Bemrich-Stolz, C., Torres, S., & Panepinto, J.A. (in press). Health-related
quality of life in infants with sickle cell disease. Journal of Pediatric Hematology/Oncology.
Wiggs, L., Sparrowhawk, M., & Barnett< A.L. (2016). Parent report and actigraphically defined
sleep in children with and without developmental coordination disorder: Links with fatigue and
sleepiness. Frontiers in Pediatrics, 4:81.
Houston, M.N., Bay, R.C., Valovich, & McLeod, T.C. (in press). The relationship between post-
injury measures of cognition, balance, symptom reports and health-related quality-of-life in
adolescent athletes with concussion. Brain Injury.
Caris, E.C., Dempster, N., Wernovsky, G., Butz. C., Neely, T., Allen, R., Stewart, J., Miller-Tate,
H., Fonseca, R., Texter, K., Nicholson, L., & Cua, C.L. (in press). Anxiety scores in caregivers of
children with hypoplastic left heart syndrome. Congenital Heart Disease.
Pierce, L., Hocking, M.C., Schwartz, L.A., Alderfer, M.A., Kazak, A.E., & Barakat, L.P. (in
press). Caregiver distress and patient health-related quality of life: Psychosocial screening during
pediatric cancer treatment. Psycho-Oncology.
Teksoz, E., Bilgin, I., Madzwamuse, S.E., & Oscakci, A.F. (in press). The impact of a creative
play intervention on satisfaction with nursing care: A mixed-methods study. Journal for
Specialists in Pediatric Nursing.
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Mevada, S.T., Al Saadoon, M., Zachariah, M., Al Rawas, A.H., & Wali, Y. (in press). Impact of
burden of thalassemia major on health-related quality of life in Omani children. Journal of
Pediatric Hematology/Oncology.
Hoytema van Konijnenburg, E.M., van der Lee, J.H., Teeuw, A.H., Lindeboom, R., Brilleslijper-
Kater, S.N., Sieswerda-Hoogendoorn, T., van Goudoever, J.B., & Lindauer, R.J. (in press).
Psychosocial problems of children whose parents visit the emergency department due to intimate
partner violence, substance abuse or a suicide attempt. Child: Care, Health and Development.
Cook, A.K., Kerins, C.A., & Heppner, C.E. (2016). Dental impacts on health-related quality of
life of children with orofacial clefts. Pediatric Dentistry, 38, 218-223.
Green, J.L., Sciberras, E., Anderson, V., Efron, D., & Rinehart, N. (in press). Association between
autism symptoms and functioning in children with ADHD. Archives of Disease in Childhood.
Matziou, V., Vlachioti, E., Megapanou, E., Ntoumou, A., Dionisakopoulou, C., Dimitriou, V.,
Tsoumakas, K., Matziou, T., & Perdikaris, P. Perceptions of children and their parents about the
pain experienced during their hospitalization and its impact on parents' quality of life. Japanese
Journal of Clinical Oncology.
Liu, W., Lin, R., Liu, W., Guo, Z., Xiong, L., Li, B., Cheng, K.K., Adab, P., & Pallan, M. (2016).
Relationship between weight status and health-related quality of life in Chinese primary school
children in Guangzhou: A cross-sectional study. Health and Quality of Life Outcomes, 14(1):166.
Yates, M.T., Ishikawa, T., Schneeberg, A., & Brussoni, M. (2016). Pediatric Canadian triage and
acuity scale (PaedsCTAS) as a measure of injury severity. International Journal of Environmental
Research and Public Health, 13(7).
Roland, L., Fischer, C., Tran, K., Rachakonda, T., Kallogjeri, D., & Lieu, J. (in press). Quality of
life in children with hearing impairment: Systematic review and meta-analysis. Otolaryngology--
Head and Neck Surgery.
Abdul-Zahra, H.A., Hassan, M.K., & Ahmed, B.A. (in press). Health-related quality of life in
children and adolescents with β-Thalassemia Major on different iron chelators in Basra, Iraq.
Journal of Pediatric Hematology/Oncology.
Mitchell, T.B., & Steele, R.G. (2016). The effect of body mass index, negative affect, and
disordered eating on health-related quality of life in preadolescent youth. Journal of Pediatric
Psychology, 41, 768–776.
Kikuchi, R., Mizuta, K., Urahashi, T., Sanada, Y., Yamada, N., Onuma, E., Ono, M., Endo, M.,
Sato, I., & Kamibeppu, K. (in press). Development of the Japanese version of the PedsQL™
Transplant Module. Pediatrics International.
Lukács, A., Sasvári, P., Török, A., & Barkai, L. (in press). Generic and disease-specific quality of
life in adolescents with type 1 diabetes: Comparison to age-matched healthy peers. Journal of
Pediatric Endocrinology & Metabolism.
Nouraei, S.A., Mucmur, E., Dias, A., Butler, C.R., Nandi, R., Eliott, M.J., & Hewitt, R. (in press).
Validation of the airway-dyspnoea-voice-swallow (adv) scale and patient-reported outcome
measure (PROM) as disease-specific instruments in paediatric laryngotracheal stenosis. Clinical
Otolaryngology.
Mandrell, B.N., Baker, J., Levine, D., Gattuso, J., West, N., Sykes, A., Gajjar, A., & Broniscer, A.
(in press). Children with minimal chance for cure: Parent proxy of the child's health-related
quality of life and the effect on parental physical and mental health during treatment. Journal of
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Southerland, J.L., Wang, L., & Slawson, D.L. (in press). Weight misperception and health-related
quality of life in Appalachian adolescents in the United States. Maternal and Child Health
Journal.
Hyndman, B., Benson, A.C., Lester, L., & Telford, A. (in press). Is there a relationship between
primary school children. Health Promotion Journal of Australia.
Morano, M., Rutigliano, I., Rago, A., Pettoello-Mantovani, M., & Campanozzi, A. (in press). A
multicomponent, school-initiated obesity intervention to promote healthy lifestyles in children.
Nutrition.
Clowtis, L.M., Kang, D.H., Padhye, N.S., Rozmus, C., & Barratt, M.S. (2016). Biobehavioral
factors in child health outcomes: The roles of maternal stress, maternal-child engagement,
salivary cortisol, and salivary testosterone. Nursing Research, 65, 340-351.
Lin, C.Y., Kumar, S., & Pakpour, A.H. (2016). Rasch analysis of the Persian version of PedsQL™
Oral Health Scale: Further psychometric evaluation on item validity including differential item
functioning. Health Promotion Perspectives, 10, 145-151.
Johansson, H., Norlander, K., Janson, C., Malinovschi, A., Nordang, L., & Emtner, M. (in press).
The relationship between exercise induced bronchial obstruction and health related quality of life
in female and male adolescents from a general population. BMC Pulmonary Medicine.
Feldman, A.G., Neighbors, K., Mukherjee, S., Rak, M., Varni, J.W., & Alonso, E.M. (in press).
Impaired physical function following pediatric liver transplantation. Liver Transplantation.
Eken, M.M., Houdijk, H., Doorenbosch, C.A., Kiezebrink, F.E., van Bennekom, C.A., Harlaar, J.,
& Dallmeijer, A.J. (in press). Relations between muscle endurance and subjectively reported
fatigue, walking capacity, and participation in mildly affected adolescents with cerebral palsy.
Grimaldi Capitello, T., Fiorilli, C., Placidi, S., Vallone, R., Drago, F., & Gentile, S. (2016). What
factors influence parents' perception of the quality of life of children and adolescents with
neurocardiogenic syncope? Health and Quality of Life Outcomes, 14(1):79.
Frederick, N.N., Kenney, L., Vrooman, L., & Recklitis, C.J. (in press). Fatigue in adolescent and
adult survivors of non-CNS childhood cancer: A report from project REACH. Supportive Care in
Cancer.
Hansen, D., Vedantam, A., Briceño, V., Lam, S.K., Luerssen, T.G., & Jea, A. (in press). Health-
related quality of life outcomes and level of evidence in pediatric neurosurgery. Journal of
Neurosurgery. Pediatrics.
Buratti, S., Ryberg, C., Broberg, M., & Sunnegårdh, J. (2016). Do self- and proxy reports of
cognitive problems reflect intellectual functioning in children and adolescents with congenital
heart defects? Frontiers in Pediatrics, 4:127.
Vandekerckhove, K., Coomans, I., De Bruyne, E., De Groote, K., Panzer, J., De Wolf, D., Boone,
J,, & De Bruyne, R. (in press). Evaluation of exercise performance, cardiac function, and quality
of life in children after liver transplantation. Transplantation.
Minooei, M.S., Ghazavi, Z., Abdeyazdan, Z., Gheissari, A., & Hemati, Z. (2016). The effect of
the family empowerment model on quality of life in children with chronic renal failure:
Children's and parents' views. Nephro-Urology Monthly, 8(4):e36854.
Samardzic, M., Tahirovic, H., Popovic, N., & Popovic-Samardzic, M. (in press). Health-related
quality of life in children and adolescents with type 1 diabetes mellitus from Montenegro:
Relationship to metabolic control. Journal of Pediatric Endocrinology & Metabolism.
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Anixt, J.S., Vaughn, A.J., Powe, N.R., & Lipkin, P.H. (in press). Adolescent perceptions of
outgrowing childhood attention-deficit hyperactivity disorder: Relationship to symptoms and
quality of life. Journal of Developmental and Behavioral Pediatrics.
Gopinath, B., Flood, V.M., Burlutsky, G., Louie, J.C., Baur, L.A., & Mitchell, P. (in press). Dairy
food consumption and health-related quality of life in boys: Preliminary findings from a 5-year
cohort study. Journal of the American College of Nutrition.
Toussaint, L.C., van der Cammen-van Zijp, M.H., Janssen, A.J., Tibboel, D., van Heijst, A.F., &
IJsselstijn, H. (in press). Perceived motor competence differs from actual performance in 8-year-
old neonatal ECMO survivors. Pediatrics.
Morou, Z., Lyrakos, G.N., Papadopoulos, N.G., Douladiris, N., Tatsioni, A., & Dimoliatis, I.D.
(2016). Translation, adaptation and initial validation of food allergy quality of life questionnaire:
Child form in Greek. Health Psychology Research, 4(1):4624.
Carpenter, J.L., Wiebe, T.L., Cass, D.L., Olutoye, O.O., & Lee, T.C. (in press). Assessing quality
of life in pediatric gastroschisis patients using the Pediatric Quality of Life Inventory survey: An
institutional study. Journal of Pediatric Surgery.
Neuvonen, M.I., Kyrklund, K., Rintala, R.J., & Pakarinen, M.P. (in press). Bowel function and
quality of life after transanal endorectal pull-through for Hirschsprung Disease: Controlled
outcomes up to adulthood. Annals of Surgery.
Limbers, C., Young, D., Jernigan, S., Bryant, W., & Stephen, M. (in press). Comparison between
objective measures and parental behavioral rating scales of memory and attention in pediatric
endocrinology patients. Applied Neuropsychology. Child.
Casey, M., Harvey, J., Telford, A., Eime, R., Mooney, A., & Payne, W. (in press). Patterns of time
use among regional and rural adolescent girls: Associations with correlates of physical activity
and health-related quality of life. Journal of Science and Medicine in Sport.
Kogon, A.J., Matheson, M.B., Flynn, J.T., Gerson, A.C., Warady, B.A., Furth, S.L., & Hooper,
S.R. (in press). Depressive symptoms in children with chronic kidney disease. Journal of
Pediatrics.
Rocca, F.L., Finotti, E., Pizza, F., Ingravallo, F., Gatta, M., Bruni, O., & Plazzi, G. (in press).
Psychosocial profile and quality of life in children with type 1 narcolepsy: A case-control study.
Sleep.
Karaman, S., Ozkan, B., Gok, M., Karakaya, I., Kara, O., Altintas, O., & Altintas, L. (in press).
Effect of eye trauma on mental health and quality of life in children and adolescents. International
Ophthalmology.
Prodeus, A., Niborski, V., Schrezenmeir, J., Gorelov, A., Shcherbina, A., & Rumyantsev, A. (in
press). Fermented milk consumption and common infections in children attending day-care
centers. A randomized trial. Journal of Pediatric Gastroenterology and Nutrition.
Kilicoglu, A.G., Bahali, K., Canpolat, N., Bilgic, A., Mutlu, C., Yalçın, Ö, Pehlivan, G., & Sever,
L. (in press). Impact of end stage renal disease on psychological status and quality of life.
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Limbers, C.A., & Larson, M. (in press). A systematic review of psychometric properties of the
Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric cancer patients and
survivors. Expert Review of Quality of Life in Cancer Care.
Nascimento Fagundes, S., Azevedo Soster, L., Lebl, A.S., Rodrigues Pereira, R.P., Tanaka, C.,
Pereira, R.F., Ferreira de Mattos Silvares, E., & Koch, V.H. (in press). Impact of a
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multidisciplinary evaluation in pediatric patients with nocturnal monosymptomatic enuresis.

Pediatric Nephrology.
Wong, C., Gerson, A., Hooper, S.R., Matheson, M., Lande, M., Kupferman, J., Furth, S., Warady,
B., & Flynn, J. (in press). Effect of elevated blood pressure on quality of life in children with
chronic kidney disease. Pediatric Nephrology.
Uzark, K., Smith, C., Donohue, J., Yu, S., Afton, K., Norris, M., & Cotts, T. (in press).
Assessment of transition readiness in adolescents and young adults with heart disease. Journal of
Pediatrics.
Kamath, B.M., Chen, Z., Romero, R., Fredericks, E.M., Alonso, E.M., Arnon, R., Heubi, J.,
Hertel, P.M., Karpen, S.J., Loomes, K.M., Murray, K.F., Rosenthal, P., Schwarz, K.B., Subbarao,
G., Teckman, J.H., Turmelle, Y.P., Wang, K.S., Sherker, A.H., Sokol, R.J., & Magee, J.C. (in
press). Quality of life and its determinants in a multicenter cohort of children with Alagille
Syndrome. Journal of Pediatrics.
Sherry, D.D., Brake, L., Tress, J.L., Sherker, J., Fash, K., Ferry, K., & Weiss, P.F. (in press). The
treatment of juvenile fibromyalgia with an intensive physical and psychosocial program. Journal
of Pediatrics.
Coghill, D., & Hodgkins, P. (in press). Health-related quality of life of children with attention-
deficit/hyperactivity disorder versus children with diabetes and healthy controls. European Child
& Adolescent Psychiatry.
Maher, C., Crettenden, A., Evans, K., Thiessen, M., Toohey, M., Watson, A., & Dollman, J. (in
press). Fatigue is a major issue for children and adolescents with physical disabilities.
Jones, J.T., Cunningham, N., Kashikar-Zuck, S., & Brunner, H.I. (in press). Pain, fatigue and
psychological impact on health-related quality of life in childhood-onset Lupus. Arthritis Care &
Research.
Routes, J., Costa-Carvalho, B.T., Grimbacher, B., Paris, K., Ochs, H.D., Filipovich, A.,
Hintermeyer, M., de Melo, K.M., Workman, S., Ito, D., Ye, X., Bonnet, P., & Li-McLeod, J. (in
press). Health-related quality of life and health resource utilization in patients with primary
immunodeficiency disease prior to and following 12 months of immunoglobulin G treatment.
Journal of Clinical Immunology.
Jalali-Farahani, S., Amiri, P., & Chin, Y.S. (in press). Are physical activity, sedentary behaviors
and sleep duration associated with body mass index-for-age and health-related quality of life
among high school boys and girls? Health and Quality of Life Outcomes.
Yun YJ, Shin YB, Kim SY, Shin MJ, Kim RJ, Oh TY. (2016). A study of the development of the
Korean version of PedsQL(TM) 3.0 cerebral palsy module and reliability and validity. Journal of
Physical Therapy Science, 28, 2132-2139.
Redouane, B., Cohen, E., Stephens, D., Keilty, K., Mouzaki, M., Narayanan, U., Moraes, T., &
Amin, R. (in press). Parental perceptions of quality of life in children on long-term ventilation at
home as compared to enterostomy tubes. PLoS One.
Zhang, H., Wang, L., Quan, M., Huang, J., Wu, P., Lu, Q., & Fang, Y. (in press). Health-related
quality of life in children with chronic immune thrombocytopenia in China. Health and Quality of
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Hsieh, R.L., Lee, W.C., & Lin, J.H. (in press). The impact of short-term video games on
performance among children with developmental delays: A randomized controlled trial. PLoS
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Taylan, C., Schlune, A., Meissner, T., Ažukaitis, K., Udink Ten Cate, F.E., & Weber, LT. (2016).
Disease control via intensified lipoprotein apheresis in three siblings with familial
hypercholesterolemia. Journal of Clinical Lipidology, 10(6):1303-1310.
Messina, S., Vita, G.L., Sframeli, M., Mondello, S., Mazzone, E., D'Amico, A., Berardinelli, A.,
La Rosa, M., Bruno, C., Distefano, M.G., Baranello, G., Barcellona, C., Scutifero, M., Marcato,
S., Palmieri, A., Politano, L., Morandi, L., Mongini, T., Pegoraro, E., D'Angelo, M.G., Pane, M.,
Rodolico, C., Minetti, C., Bertini, E., Vita, G., & Mercuri, E. (in press). Health-related quality of
life and functional changes in DMD: A 12-month longitudinal cohort study. Neuromuscular
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Kalyva, E., Abdul-Rasoul, M., Kehl, D., Barkai, L., & Lukács, A. (in press). A cross-cultural
study on perceived health-related quality of life in children and adolescents with type 1 diabetes
mellitus. Journal of Diabetes and Its Complications.
Michels, N., Susi, K., Marques-Vidal, P.M., Nydegger, A., & Puder, J.J. (in press). Psychosocial
quality-of-life, lifestyle and adiposity: A longitudinal study in pre-schoolers (Ballabeina Study).
International Journal of Behavioral Medicine.
Jelenova, D., Prasko, J., Ociskova, M., Karaskova, E., Hunkova, M., Kolarova, J., Vydra, D.,
Holubova, M., Hruby, R., Latalova, K., & Mihal, V. (in press). Quality of life in adolescents with
inflammatory bowel disease and their parents - comparison with healthy controls. Neuro
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Lee, Y.C., Yang, H.J., Chen, V.C., Lee, W.T., Teng, M.J., Lin, C.H., & Gossop, M. (2016). Meta-
analysis of quality of life in children and adolescents with ADHD: By both parent proxy-report
and child self-report using PedsQL™. Research in Developmental Disabilities, 51-52, 160-172.
Lai, J.S., Haertling, T., Weinstein, J., Rademaker, A.W., & Goldman, S. (in press). A cross-
sectional study of carnitine deficiency and fatigue in pediatric cancer patients. Child's Nervous
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Jelenova, D., Prasko, J., Ociskova, M., Latalova, K., Karaskova, E., Hruby, R., Kamaradova, D.,
& Mihal, V. (2016). Quality of life and parental styles assessed by adolescents suffering from
inflammatory bowel diseases and their parents. Neuropsychiatric Disease and Treatment, 12:665-
672.
Ranganathan, K., Shapiro, D., Carlozzi, N.E., Baker, M., Vercler, C.J., Kasten, S.J., Warschausky,
S.A., Buchman, S.R., & Waljee, J.F. (2016). The feasibility and validity of PROMIS: A novel
measure of quality of life among children with cleft lip and palate. Plastic and Reconstructive
Surgery, 138, 675e-681e.
Santos, S., Crespo, C., Canavarro, M.C., Fernandes, A., Batalha, L., de Campos, D., & Pinto, A.
(2016). Psychometric study of the European Portuguese version of the PedsQL 3.0 Cancer
Module. Health and Quality of Life Outcomes, 14(1):20.
Feeney, R., Desha, L., Khan, A., & Ziviani, J. (in press). Contribution of speech and language
difficulties to health-related quality-of-life in Australian children: A longitudinal analysis.
International Journal of Speech-Language Pathology.
Cousins, L.A., Cohen, L.L., & Venable, C. (2015). Risk and resilience in pediatric chronic pain:
Exploring the protective role of optimism. Journal of Pediatric Psychology, 40, 934-942.
Thomas, S., Sciberras, E., Lycett, K., Papadopoulos, N., & Rinehart, N. (in press). Physical
functioning, emotional, and behavioral problems in children with ADHD and comorbid ASD: A
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de Vries, M., & Geurts, H. (in press). Influence of autism traits and executive functioning on
quality of life in children with an Autism Spectrum Disorder. Journal of Autism and
Developmental Disorders.
Mitchell, H.R., Lu, X., Myers, R.M., Sung, L., Balsamo, L.M., Carroll, W.L., Raetz, E., Loh,
M.L., Mattano, L.A., Winick, N.J., Devidas, M., Hunger, S.P., Maloney, K., & Kadan-Lottick,
N.S. (in press). Prospective, longitudinal assessment of quality of life in children from diagnosis
to three months off treatment for standard risk (SR) acute lymphoblastic leukemia (ALL): Results
of Children's Oncology Group study AALL0331. International Journal of Cancer.
Garetz, S.L., Mitchell, R.B., Parker, P.D., Moore, R.H., Rosen, C.L., Giordani, B., Muzumdar, H.,
Paruthi, S., Elden, L., Willging, P., Beebe, D.W., Marcus, C.L., Chervin, R.D., & Redline, S. (in
press). Quality of life and obstructive sleep apnea symptoms after pediatric adenotonsillectomy.
Pediatrics.
Öztop, D.B., Taşdelen, B.İ., PoyrazoğLu, H.G., Ozsoy, S., Yilmaz, R., Şahın, N., Per, H., &
Bozkurt, S. (in press). Assessment of psychopathology and quality of life in children and
adolescents with migraine. Journal of Child Neurology.
Momani, T.G., Hathaway, D.K., & Mandrell, B.N. (in press). Factors affecting health-related
quality of life in children undergoing curative treatment for cancer: A review of the literature.
Journal of Pediatric Oncology Nursing.
O'Hare, D., Helmes, E., Reece, J., Eapen, V., & McBain, K. (in press). The differential impact of
Tourette's syndrome and comorbid diagnosis on the quality of life and functioning of diagnosed
children and adolescents. Journal of Child and Adolescent Psychiatric Nursing.
Yıldız Kabak, V., Yakut, Y., Çetin, M., & Düger, T. (in press). Reliability and validity of the
Turkish version of PedsQL 3.0 Cancer Module for 2 to 7 year old and PedsQL 4.0 Generic Core
Scale for 5 to 7 year old: The Hacettepe University Experience. Turkish Journal of Haematology.
Baytan, B., Aşut, Ç, Çırpan, Kantarcıoğlu, A., Sezgin Evim, M., & Güneş A.M. (in press). Health
related quality of life, depression, anxiety and self-image in acute lymphocytic leukaemia
survivors. Turkish Journal of Haematology.
Li, S., Sun, Q.L., Zhou, Y., Zhang, Y., Hu, X.J., Hong, W.S., & Ji, G.P. (2016). Factors
influencing the quality of life of 104 children with phenylketonuria in Anhui Province, China.
Chinese Journal of Contemporary Pediatrics, 18, 702-706.
Schmitt, F., Riquin, E., Beaumesnil, M., Dinomais, M., Topart, P., Weil, D., Malka, J., Coutant,
R., Podevin, G, & Bouhours-Nouet, N. (in press). Laparoscopic adjustable gastric banding in
adolescents: Results at two years including psychosocial aspects. Journal of Pediatric Surgery.
Landfeldt, E., Lindgren, P., Bell, C.F., Guglieri, M., Straub, V., Lochmüller, H., & Bushby, K. (in
press). Health-related quality of life in patients with Duchenne muscular dystrophy: A
multinational, cross-sectional study. Developmental Medicine and Child Neurology.
Pinto, S., McCrone, S., & Shapiro, A.L. (in press). Perceptions of asthma quality of life in
children and parent dyads in two rural counties in West Virginia. Journal of School Nursing.
Bratt, E.L., Luyckx, K., Goossens, E., Budts, W., & Moons, P. (in press). Patient-reported health
in young people with congenital heart disease transitioning to adulthood. Journal of Adolescent
Health.
John, B., Bellipady, S.S., & Bhat, S.U. (in press). Sleep promotion program for improving sleep
behaviors in adolescents: A randomized controlled pilot study. Scientifica.
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Chiriboga, C.A., Swoboda, K.J., Darras, B.T., Iannaccone, S.T., Montes, J., De Vivo, D.C.,
Norris, D.A., Bennett, C.F., & Bishop, K.M. (in press). Results from a phase 1 study of
nusinersen (ISIS-SMNRx) in children with spinal muscular atrophy. Neurology.
Rahman, M., Afroz, S., Ali, R., & Hanif, M. (2016). Health related quality of life in children with
nephrotic syndrome in Bangladesh. Mymensingh Medical Journal, 25, 703-709.
Ryan, J.L., McGrady, M.E., Guilfoyle, S.M., Junger, K., Arnett, A.D., & Modi, A.C. (2015).
Health care charges for youth with newly diagnosed epilepsy. Neurology, 85, 490-497.
Kim, J.H., Lee, C., & Sohn, W. (in press). Urban natural environments, obesity, and health-related
quality of life among Hispanic children living in inner-city neighborhoods. International Journal
of Environmental Research and Public Health.
Newcombe, P.A., Sheffield, J.K., Petsky, H.L., Marchant, J.M., Willis, C., & Chang, A.B. (in
press). A child chronic cough-specific quality of life measure: Development and validation.
Thorax.
Dupuis, L.L., Lu, X., Mitchell, H.R., Sung, L., Devidas, M., Mattano, L.A. Jr., Carroll, W.L.,
Winick, N., Hunger, S.P., Maloney, K.W., & Kadan-Lottick, N.S. (in press). Anxiety, pain, and
nausea during the treatment of standard-risk childhood acute lymphoblastic leukemia: A
prospective, longitudinal study from the Children's Oncology Group. Cancer.
Dean, P.N., Gillespie, C.W., Greene, E.A., Pearson, G.D., Robb, A.S., Berul, C.I., & Kaltman,
J.R. (in press). Sports participation and quality of life in adolescents and young adults with
congenital heart disease. Congenital Heart Disease.
Grover, S.A., Aubert-Broche, B., Fetco, D., Collins, D.L., Arnold, D.L., Finlayson, M., Banwell,
B.L., Motl, R.W., & Yeh, E.A. (in press). Lower physical activity is associated with higher
disease burden in pediatric multiple sclerosis. Neurology.
Kalapurakkel, S., Carpino, E.A., Lebel, A., & Simons, L.E. (2015). “Pain Can’t Stop Me”:
Examining pain self-efficacy and acceptance as resilience processes among youth with chronic
headache. Journal of Pediatric Psychology, 40, 926-933.
Chandler, H.K., Teppa, B., Johnson, K.A., McCracken, C., Fortenberry, J.D., & Paden, M.L. (in
press). Determining comorbidities and quality of life among pediatric survivors of extracorporeal
life support. Journal of Critical Care.
Ghotra, S.K., Johnson, J.A., Qiu, W., Newton, A., Rasmussen, C., & Yager, J.Y. (in press). Age at
stroke onset influences the clinical outcome and health-related quality of life in pediatric ischemic
stroke survivors. Developmental Medicine and Child Neurology.
Mills, S.A., Hofman, P.L., Jiang, Y., & Anderson, Y.C. (2015). Health-related quality of life of
Taranaki children with Type 1 diabetes. New Zealand Medical Journal, 128, 25-32.
Stinson, J.N., Jibb, L.A., Nguyen, C., Nathan, P.C., Maloney, A.M., Dupuis, L.L., Gerstle, J.T.,
Hopyan, S., Alman, B.A., Strahlendorf, C., Portwine, C., & Johnston, D.L. (in press). Construct
validity and reliability of a real-time multidimensional smartphone app to assess pain in children
and adolescents with cancer. Pain.
Jafari, P., Allahyari, E., Salarzadeh, M., & Bagheri, Z. (in press). Item-level informant
discrepancies across obese-overweight children and their parents on the PedsQL™ 4.0
instrument: An iterative hybrid ordinal logistic regression. Quality of Life Research.
Doostfatemeh, M., Ayatollahi, S.M., & Jafari, P. (in press).Testing parent dyad interchangeability
in the parent proxy-report of PedsQL™ 4.0: A differential item functioning analysis. Quality of
Life Research.
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Lee, H., Choi, J., Hwang, J.H., & Park, J.H. (in press). Psychometric evaluation of the scoliosis
research society-22 revised questionnaire among adolescents with idiopathic scoliosis. Journal of
Pediatric Orthopedics. Part B.
Bal, H.S., Sen, S., Karl, S., Mathai, J., & Thomas, R.J. (in press). An assessment of quality of life
of operated cases of esophageal atresia in the community. Journal of Indian Association of
Pediatric Surgeons.
Splinter, K., Niemi, A.K., Cox, R., Platt, J., Shah, M., Enns, G.M., Kasahara, M., & Bernstein,
J.A. (in press). Impaired health-related quality of life in children and families affected by
methylmalonic acidemia. Journal of Genetic Counseling.
Yock, T.I., Bhat, S., Szymonifka, J., Yeap, B.Y., Delahaye, J., Donaldson, S.S., MacDonald, S.M.,
Pulsifer, M.B., Hill, K.S., DeLaney, T.F., Ebb, D., Huang, M., Tarbell, N.J., Fisher, P.G., &
Kuhlthau, K.A. (in press). Quality of life outcomes in proton and photon treated pediatric brain
tumor survivors. Radiotherapy and Oncology.
Mutlu, E.K., Mutlu, C., Taskiran, H., & Ozgen, I.T. (in press). Association of physical activity
level with depression, anxiety, and quality of life in children with type 1 diabetes mellitus.
Journal of Pediatric Endocrinology & Metabolism.
Brulé, D., Gillmeister, B., Lee, M., Alexander, S., Gassas, A., Hendershot, E., Zupanec, S.,
Dupuis, L., & Sung, L. (in press). A feasibility pilot trial of individualized homeopathic treatment
of fatigue in children receiving chemotherapy. Integrative Cancer Therapies.
Stish, B.J., Ahmed, S.K., Rose, P.S., Arndt, C.A., & Laack, N.N. (in press). Patient-reported
functional and quality of life outcomes in a large cohort of long-term survivors of Ewing
sarcoma. Pediatric Blood & Cancer.
Looi, V., Lee, Z.Z., & Loo, J.H. (in press). Quality of life outcomes for children with hearing
impairment in Singapore. International Journal of Pediatric Otorhinolaryngology.
Shapiro, D.R., & Malone, L.A. (in press). Quality of life and psychological affect related to sport
participation in children and youth athletes with physical disabilities: A parent and athlete
perspective. Disability and Health Journal.
Alpaslan, A.H., Ucok, K., Coşkun, K.Ş., Genc, A., Karabacak, H., & Guzel, H.I. (in press).
Resting metabolic rate, pulmonary functions, and body composition parameters in children with
attention deficit hyperactivity disorder. Eating and Weight Disorders.
Ward, T.M., Yuwen, W., Voss, J., Foell, D., Gohar, F., & Ringold, S. (in press). Sleep
fragmentation and biomarkers in juvenile idiopathic arthritis. Biological Research for Nursing.
Wilmot, I., Cephus, C.E., Cassedy, A., Kudel, I., Marino, B.S., & Jefferies, J.L. (in press). Health-
related quality of life in children with heart failure as perceived by children and parents.
Ananworanich, J., Melvin, D., Amador, J.T., Childs, T., Medin, G., Boscolo, V., Compagnucci,
A., Kanjanavanit, S., Montero, S., & Gibb, D.M. (in press). Neurocognition and quality of life
after reinitiating antiretroviral therapy in children randomized to planned treatment interruption.
AIDS.
Khoshkhui, M., Jafari, P., Afrasiabi, M. Orooj, M., & Kashef, S. (in press). Level of agreement
between children with asthma and their parents on quality of life. Iranian Journal of Medical
Sciences.
Hwang, J.H., Varte, L., Kim, H.W., Lee, D.H., & Park, H. (2016). Salvage procedures for the
painful chronically dislocated hip in cerebral palsy. Bone & Joint Journal, 98-B(1):137-43.
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Tran, S.T., Jastrowski Mano, K.E., Hainsworth, K.R., Medrano, G.R., Khan, K.A., Weisman, S.J.,
& Davies, W.H. (2015). Distinct influences of anxiety and pain catastrophizing on functional
outcomes in children and adolescents with chronic pain. Journal of Pediatric Psychology, 40,
744-755.
Bull, K.S., Liossi, C., Peacock, J.L., Yuen, H.M., & Kennedy, C.R. (in press). Screening for
cognitive deficits in 8 to 14-year old children with cerebellar tumors using self-report measures of
executive and behavioral functioning and health-related quality of life. Neuro-Oncology.
Telo, G.H., Volkening, L.K., Butler D.A., & Laffel, L.M. (2015). Salient characteristics of youth
with type 1 diabetes initiating continuous glucose monitoring. Diabetes Technology &
Therapeutics, 17, 373-378.
Czosek, R.J., Kaltman, J.R., Cassedy, A.E., Shah, M.J., Vetter, V.L., Tanel, R.E., Wernovksy, G.,
Wray, J., & Marino, B.S. (in press). Quality of life of pediatric patients with long QT syndrome.
American Journal of Cardiology.
Cohen, S., Ter Stege, J.A., Weijsenfeld, A.M., van der Plas, A., Kuijpers, T.W., Reiss, P.,
Scherpbier, H.J., Haverman, L., & Pajkrt, D. (in press). Health-related quality of life in
perinatally HIV-infected children in the Netherlands. AIDS Care.
Ringel-Kulka, T., Kotch, J.B., Jensen, E.T., Savage, E., & Weber, D.J. (in press). Randomized,
double-blind, placebo-controlled study of synbiotic yogurt effect on the health of children.
Spanaki, A., O'Curry, S., Winter-Beatty, J., Mead-Regan, S., Hawkins, K., English, J., Head, C.,
Ridout, D., Tome-Esteban, M.T., Elliott, P., & Kaski, J.P. (in press). Psychosocial adjustment and
quality of life in children undergoing screening in a specialist paediatric hypertrophic
cardiomyopathy clinic. Cardiology in the Young.
Hiscock, H., Sciberras, E., Mensah, F., Gerner, B., Efron, D., Khano, S., & Oberklaid, F. (in
press). Impact of a behavioural sleep intervention on symptoms and sleep in children with
attention deficit hyperactivity disorder, and parental mental health: Randomised controlled trial.
British Medical Journal.
Biagetti, C., Gesuita, R., Gatti, S., & Catassi, C. (in press). Quality of life in children with celiac
disease: A paediatric cross-sectional study. Digestive and Liver Disease.
Winger, A., Kvarstein, G., Wyller, V.B., Ekstedt, M., Sulheim, D., Fagermoen, E., Småstuen,
M.C., & Helseth, S. (2015). Health related quality of life in adolescents with chronic fatigue
syndrome: A cross-sectional study. Health and Quality of Life Outcomes, 13(1):96.
Ilmer, E.C., Lambregts, S.A., Berger, M.A., de Kloet, A.J., Hilberink, S.R., & Roebroeck, M.E.
(in press). Health-related quality of life in children and youth with acquired brain injury: Two
years after injury. European Journal of Paediatric Neurology.
Sritipsukho, P., Satdhabudha, A., & Nanthapisal, S. (2015). Effect of allergic rhinitis and asthma
on the quality of life in young Thai adolescents. Asian Pacific Journal of Allergy and
Immunology, 33, 222-226.
Crowell, M.D., Murphy, T.B., Levy, R.L., Langer, S.L., Kunin-Batson, A., Seburg, E.M., Senso,
M., & Sherwood, N.E. (2015). Eating behaviors and quality of life in preadolescents at risk for
obesity with and without abdominal pain. Journal of Pediatric Gastroenterology & Nutrition, 60,
217-223.
Yau, M., Vogiatzi, M., Lewkowitz-Shpuntoff, A., Nimkarn, S., & Lin-Su, K. (in press). Health-
related quality of life in children with congenital adrenal hyperplasia. Hormone Research in
Pædiatrics.
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Kruszewski, P.G., Russo, J.M., Franciosi, J.P., Varni, J.W., Platts-Mills, T.A.E., & Erwin, E.A. (in
press). Prospective, comparative effectiveness trial of cow’s milk elimination and swallowed
fluticasone for pediatric eosinophilic esophagitis. Diseases of the Esophagus.
Sheikh, F., Akinkuotu, A., Clark, S.J., Zamora, I.J., Cass, D.L., Olutoye, O., & Lee, T.C. (in
press). Assessment of quality of life outcomes using the Pediatric Quality of Life Inventory
survey in prenatally diagnosed congenital diaphragmatic hernia patients. Journal of Pediatric
Surgery.
Ng, J., Ford, K., Dalton, S., McDowell, S., Charlesworth, P., & Cleeve, S. (in press). Transanal
irrigation for intractable faecal incontinence and constipation: Outcomes, quality of life and
predicting non-adopters. Pediatric Surgery International.
Maher, C.A., Toohey, M., & Ferguson, M. (in press). Physical activity predicts quality of life and
happiness in children and adolescents with cerebral palsy. Disability and Rehabilitation.
Miller, J.R., Boston, U.S., Epstein, D.J., Henn, M.C., Lawrance, C.P., Kallenbach, J., Simpson,
K.E., Canter, C.E., & Eghtesady, P. (in press). Pediatric quality of life while supported with a
ventricular assist device. Congenital Heart Disease.
Mianowska, B., Fendler, W., Tomasik, B., Młynarski, W., & Szadkowska, A. (in press). Effect of
insulin dilution on lowering glycemic variability in pump-treated young children with
inadequately controlled type 1 diabetes. Diabetes Technology & Therapeutics.
Rabbitts, J.A., Groenewald, C.B., Tai, G.G., & Palermo, T.M. (2015). Presurgical psychosocial
predictors of acute postsurgical pain and quality of life in children undergoing major surgery. The
Journal of Pain, 16, 226-234.
Kovacic, K., Sood, M.R., Mugie, S., Di Lorenzo, C., Nurko, S., Heinz, N., Ponnambalam, A.,
Beesley, C., Sanghavi, R., & Silverman, A.H. (2015). A multicenter study on childhood
constipation and fecal incontinence: Effects on quality of life. Journal of Pediatrics, 166, 1482-
1487.
Viecili, M.A., & Weiss, J.A. (2015). Reliability and validity of the Pediatric Quality of Life
Inventory with individuals with intellectual and developmental disabilities. American Journal on
Intellectual and Developmental Disabilities, 120, 289-301.
Bugescu, N., Alioto, A., Segal, S., Cordova, M., & Packman, W. (2015). The neurocognitive
impact of Fabry disease on pediatric patients. American Journal of Medical Genetics Part B:
Neuropsychiatric Genetics, 168, 204–210.
Darezzo Rodrigues Nunes, M., Jacob, E., Adlard, K., Secola, R., & Nascimento, L. (2015).
Fatigue and sleep experiences at home in children and adolescents with cancer. Oncology
Nursing Forum, 42, 498-506.
Nicola, K., & Watter, P. (2015). Health-related quality of life from the perspective of children
with severe specific language impairment. Health and Quality of Life Outcomes, 13(1):127.
Boogerd, E.A., Damhuis, A.M, van Alfen-van der Velden, J.A., Steeghs, M.C., Noordam, C.,
Verhaak, C.M., & Vermaes, I.P. (in press). Assessment of psychosocial problems in children with
type 1 diabetes and their families: The added value of using standardised questionnaires in
addition to clinical estimations of nurses and paediatricians. Journal of Clinical Nursing.
Sulkowski, J.P., Nacion, K.M., Deans, K.J., Minneci, P.C., Levitt, M.A., Mousa, H.M., Alpert,
S.A., & Teich, S. (in press). Sacral nerve stimulation: A promising therapy for fecal and urinary
incontinence and constipation in children. Journal of Pediatric Surgery.
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Mulcahey, M.J., Haley, S.M., Slavin, M.D., Kisala, P.A., Ni, P., Tulsky, D.S., & Jette, A.M. (in
press). Ability of PROMIS pediatric measures to detect change in children with cerebral palsy
undergoing musculoskeletal surgery. Journal of Pediatric Orthopedics.
Caferoğlu, Z., İnanç, N., Hatipoğlu, N., & Kurtoğlu, S. (in press). Health-related quality of life is
associated with metabolic control in children and adolescents with type 1 diabetes mellitus.
Journal of Clinical Research in Pediatric Endocrinology.
de Kloet, A.J., Lambregts, S.A., Berger, M.A., van Markus, F., Wolterbeek, R., & Vliet Vlieland,
T.P. (in press). Family impact of acquired brain injury in children and youth. Journal of
Developmental and Behavioral Pediatrics.
Turan, E., Kandemir, H., Yeşilova, Y., Ekinci, S., Tanrıkulu, O., Kandemir, S.B., & Gurel, M.S.
(in press). Assessment of psychiatric morbidity and quality of life in children and adolescents
with cutaneous leishmaniasis and their parents. Postȩpy Dermatologii i Alergologii.
Boonchooduang, N., Louthrenoo, O., Choeyprasert, W., & Charoenkwan, P. (in press). Health-
related quality of life in adolescents with Thalassemia. Pediatric Hematology and Oncology.
Sluys, K.P., Lannge, M., Iselius, L., & Eriksson, L.E. (in press). Six years beyond pediatric
trauma: child and parental ratings of children's health-related quality of life in relation to parental
mental health. Quality of Life Research.
Moreira, J.M., Bouissou Morais Soares, C.M., Teixeira, A.L., Simões, E. Silva, A.C., & Kummer,
A.M. (in press). Anxiety, depression, resilience and quality of life in children and adolescents
with pre-dialysis chronic kidney disease. Pediatric Nephrology.
Place, A.E., Stevenson, K.E., Vrooman, L.M., Harris, M.H., Hunt, S.K., O'Brien, J.E., Supko,
J.G., Asselin, B.L., Athale, U.H., Clavell, L.A., Cole, P.D., Kelly, K.M., Laverdiere, C., Leclerc,
J.M., Michon, B., Schorin, M.A., Welch, J.J., Lipshultz, S.E., Kutok, J.L., Blonquist, T.M.,
Neuberg, D.S., Sallan, S.E., & Silverman, L.B. (in press). Intravenous pegylated asparaginase
versus intramuscular native Escherichia colil-asparaginase in newly diagnosed childhood acute
lymphoblastic leukaemia (DFCI 05-001): A randomised, open-label phase 3 trial. Lancet.
Oncology.
Mulligan, K., Wedderburn, L.R., & Newman, S. (2015). The experience of taking methotrexate
for juvenile idiopathic arthritis: Results of a cross-sectional survey with children and young
people. Pediatric Rheumatology, 13(1):58.
Fawley, J.A., Peterson, E.L., Christensen, M.A., Rein, L., & Wagner, A.J. (in press). Can
omphalocele ratio predict postnatal outcomes? Journal of Pediatric Surgery.
Luyckx, K., Rassart, J., Goossens, E., Apers, S., Oris, L., & Moons, P. (in press). Development
and persistence of depressive symptoms in adolescents with CHD. Cardiology in the Young.
Spirkova, A., Dusatkova, P., Peckova, M., Kolouskova, S., Snajderova, M., Obermannova, B.,
Stechova, K., Hrachovinova, T., Mares, J., Cinek, O., Lebl, J., Sumnik, Z., & Pruhova, S. (in
press). Treated autoimmune thyroid disease is associated with a decreased quality of life among
young persons with Type 1 Diabetes. International Journal of Endocrinology.
Khalil, M. (in press). Long-term health-related quality of life for patients with Hirschsprung's
disease at 5 years after transanal endorectal pull-through operation Quality of Life Research.
Malheiros, C.D., Lisle, L., Castelar, M., Sá, K.N., & Matos, M.A. (in press). Hip dysfunction and
quality of life in patients with sickle cell disease. Clinical Pediatrics.
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Bosch, A.M., Burlina, A., Cunningham, A., Bettiol, E., Moreau-Stucker, F., Benmedjahed, K., &
Regnault, A. (in press). Assessment of the impact of phenylketonuria and its treatment on quality
of life of patients and parents from seven European countries. Orphanet Journal of Rare Diseases.
Murray, C., Holmbeck, G., Ros, A., Flores, D., Mir, S., & Varni, J.W. (2015). A longitudinal
examination of health-related quality of life in children and adolescents with spina bifida. Journal
Vassilyadi, M., Macartney, G., Barrowman, N., Anderson, P., & Dube, K. (in press). Symptom
experience and quality of life in children after sport-related head injuries: A cross-sectional study.
Pediatric Neurosurgery.
Dalton, A.G., Smith, C., Dalton, W.T., & Slawson, D.L. (in press). Examining general versus
condition-specific health-related quality of life across weight categories in an adolescent sample.
Journal of Pediatric Health Care.
Valier, A.R., Welch Bacon, C.E., Bay, R.C., Houston, M.N., Valovich McLeod, T.C. (in press).
The validity of single-item patient-rated outcomes in concussed adolescent football athletes.
Archives of Physical Medicine and Rehabilitation.
Johansen, H., Dammann, B., Øinæs Andersen, L, & Andresen, I.L. (in press). Children with
congenital limb deficiency in Norway: Issues related to school life and health-related quality of
life. A cross-sectional study. Disability and Rehabilitation.
Shah, P., Rahman, S.A., McElroy, S., Gilbert, C., Morgan, K., Hinchey, L., Senniappan, S., Levy,
H., Amin, R., & Hussain, K. (in press). Use of long-acting somatostatin analogue (Lanreotide) in
an adolescent with diazoxide-responsive congenital hyperinsulinism and its psychological impact.
Hormone Research in Pædiatrics.
Anderson, K., Ritchie, K., Chorney, J.M., Bezuhly, M., & Hong, P. (in press). The impact of
septoplasty on health-related quality of life in paediatric patients. Clinical Otolaryngology.
Loh, D.A., Moy, F.M., Zaharan, N.L., & Mohamed, Z. (in press). Disparities in health-related
quality of life among healthy adolescents in a developing country - the impact of gender,
ethnicity, socio-economic status and weight status. Child: Care, Health and Development.
Arnold, L.M., Bateman, L., Palmer, R.H., & Lin, Y. (2015). Preliminary experience using
milnacipran in patients with juvenile fibromyalgia: lessons from a clinical trial program. Pediatric
Rheumatology Online Journal, 26; 13(1):27.
Rao, S., Elkon, B., Flett, K.B., Moss, A.F., Bernard, T.J., Stroud, B., & Wilson, K.M. (in press).
Long-term outcomes and risk factors associated with acute encephalitis in children. Journal of the
Pediatric Infectious Diseases Society.
Steenbruggen, T.G., Hoekstra, S.J., & van der Gaag, E.J. (2015). Could a change in diet revitalize
children who suffer from unresolved fatigue? Nutrients, 7, 1965-1977.
Caicedo, C. (in press). Health and functioning of families of children with special health care
needs cared for in home care, long-term care, and medical day care settings. Journal of
Blair, J., Gregory, J.W., Hughes, D., Ridyard, C.H., Gamble, C., McKay, A., Didi, M.,
Thornborough, K., Bedson, E., Awoyale, L., Cwiklinski, E., & Peak, M. (2015). Study protocol
for a randomised controlled trial of insulin delivery by continuous subcutaneous infusion
compared to multiple daily injections. Trials, 16(1):163.
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Gandhi, P.K., Revicki, D.A., & Huang, I.C. (2015). Adolescent body weight and health-related
quality of life rated by adolescents and parents: The issue of measurement bias. BMC Public
Health, 15(1):1192.
Sehlo, M.G., & Kamfar, H.Z. (2015). Depression and quality of life in children with sickle cell
disease: The effect of social support. BMC Psychiatry, 15(1):78.
Sheikh, F., Akinkuotu, A., Olutoye, O.O., Pimpalwar, S., Cassady, C.I., Fernandes, C.J., Ruano,
R., Lee, T.C., & Cass, D.L. (in press). Prenatally diagnosed neck masses: Long-term outcomes
and quality of life. Journal of Pediatric Surgery.
Lim, C.S., Gowey, M.A., Silverstein, J., Dumont-Driscoll, M., & Janicke, D.M. (in press).
Depressive symptoms, ethnic identity, and health-related quality of life in obese youth. Journal of
Pediatric Psychology.
Van Heest, A.E., Bagley, A., Molitor, F., & James, M.A. (2015). Tendon transfer surgery in
upper-extremity cerebral palsy is more effective than botulinum toxin injections or regular,
ongoing therapy. Journal of Bone and Joint Surgery, 97, 529-536.
Jiang, X., Ren, X., Liu, H., Tian, J., Du, C., Luo, H., Cheng, Y., & Shang, L. (in press). Health-
related quality of life among children with adenoid hypertrophy in Xi'an, China. International
Journal of Pediatric Otorhinolaryngology.
Hurrell, R.A., Fullwood, C., Keys, J., Dickson, A.P., Fishwick, J., Whitnall, B., & Cervellione,
R.M. (in press). Psychosocial screening at paediatric BEEC clinics: A pilot evaluation study.
Journal of Pediatric Urology.
Sorensen, L.G., Katie Neighbors, K., Zhang, S., Limbers, C.A., Varni, J.W., Ng, V.L., Squires,
R.H., & Alonso, E.M. (2015). Neuropsychological functioning and health-related quality of life:
Pediatric Acute Liver Failure Study Group results. Journal of Pediatric Gastroenterology &
Nutrition, 60, 75–83.
Guilfoyle, S.M., Monahan, S., Wesolowski, C., & Modi, A.C. (2015). Depression screening in
pediatric epilepsy: Evidence for the benefit of a behavioral medicine service in early detection.
Epilepsy & Behavior, 44C, 5-10.
Lord, J.H., Rumburg, T.M., & Jaser, S.S. (2015). Staying positive: Positive affect as a predictor of
resilience in adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 40, 968-977.
He, K., Shen, C., Chen, X., Han, L., Xi, Z., Zhou, T., Zhang, J., & Xia, Q. (2015). Health-related
quality of life and sleep among Chinese children after living donor liver transplantation. Pediatric
Transplantation, 19, 547-554.
Monaghan, M., Clary, L., Stern, A., Hilliard, M.E., & Streisand, R. (2015). Protective factors in
young children with Type 1 diabetes. Journal of Pediatric Psychology, 40, 878-887.
Abo-Haded, H.M. (2015). Radiofrequency ablation changes the quality of life of children with
supraventricular tachycardias. Archives of Disease in Childhood, 100, 754–757.
Versteegh, H.P., van den Hondel, D., IJsselstijn, H., Wijnen, R.M., Sloots, C.E., & de Blaauw, I.
(in press). Cloacal malformation patients report similar quality of life as female patients with less
complex anorectal malformations. Journal of Pediatric Surgery.
Silverman, A.H., Berlin, K.S., Di Lorenzo, C., Nurko, S., Kamody, R.C., Ponnambalam, A.,
Mugie, S., Gorges, C., Sanghavi, R., & Sood, M.R. (in press). Measuring health-related quality of
life with the parental opinions of pediatric constipation questionnaire. Journal of Pediatric
Psychology.
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Mavis, A.M., Ertl, A., Chapman, S., Cassidy, L.D., Lerret, S.M. (2015). Vulnerability and chronic
illness management in pediatric kidney and liver transplant recipients. Progress in
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Cai, Y., Kapur, G., Hebert, D., Somers, M.J., Trachtman, H., Pais, P., Seifert, M.E., Goebel, J.,
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Kulkarni, A.A., Swinburn, B.A., & Utter, J. (in press). Associations between diet quality and
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association with overweight and health-related quality of life among adolescents in selected high
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Macartney, G., Vandenkerkhof, E, Harrison, M.B., & Stacey, D. (in press). Symptom experience
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Casey, M.M., Harvey, J.T., Telford, A., Eime, R.M., Mooney, A., & Payne WR. (2014).
Effectiveness of a school-community linked program on physical activity levels and health-
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Vella, S.A., Cliff, D.P., Magee, C.A., & Okely, A.D. (2014). Sports participation and parent-
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Heitink-Pollé, K.M., Haverman, L., Annink, K.V., Schep, S.J., de Haas, M., & Bruin, M.C. (in
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Brands, M.M., Güngör, D., van den Hout, J.M., Karstens, F.P., Oussoren, E., Plug, I., Boelens,
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Klotsche, J., Minden, K., Thon, A., Ganser, G., Urban, A., & Horneff, G. (2014). Improvement in
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Lim, Y., Velozo, C., & Bendixen, R.M. (2014). The level of agreement between child self-reports
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Andersen, M.N., Dore-Stites, D., Gleit, R., Lopez, J., & Fredericks, E.M. (2014). A pilot study of
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Seid, M., Huang, B., Niehaus, S., Brunner, H.I., & Lovell, D.J. (2014). Determinants of health-
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Katz, M.L., Volkening, L.K., Butler, D.A., Anderson, B.J., & Laffel, L.M. (2014). Family-based
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visual analogue scale and the pediatric quality of life inventory for measuring health-related
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Nelson T.D., Kidwell, K.M., Hoffman, S., Trout, A.L., Epstein, M.H., & Thompson, R.W. (2014).
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Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a
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Kim J, Chung H, Amtmann D, Salem R, Park R, Askew RL. (2014). Symptoms and quality of life
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Hilliard, M.E., Mann, K.A., Peugh, J.L., & Hood, K.K. (2013). How poorer quality of life in
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Johnson, S.R., Cooper, M.N., Davis, E.A., & Jones, T.W. (2013). Hypoglycaemia, fear of
hypoglycaemia and quality of life in children with Type 1 diabetes and their parents. Diabetic
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Riordan, A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Psychosocial outcomes among
youth with spinal cord injury by neurological impairment. Journal of Spinal Cord Medicine.
Piyasil, V., Thammawasi, T., Tasri, L., Chaiyakun, P., Ketumarn, P., Pityaratsatian, N.,
Sitdhiraksa, N., & Ularntinon, S. (2014). Quality of life and happiness of the students in the
disaster area: 6 years after the Tsunami at Takua Pa District, Phang Nga, Thailand. Journal of the
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Parent, J.J., Sterrett, L., Caldwell, R., Darragh, R., Schamberger, M., Murphy, D., & Ebenroth, E.
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Ryan, J.L., Mellon, M.W., Junger, K.W., Hente, E.A., Denson, L.A., Saeed, S.A., & Hommel,
K.A. (2013). The clinical utility of health-related quality of life screening in a pediatric
inflammatory bowel disease clinic. Inflammatory Bowel Diseases, 19, 2666-2672.
Teixeira, C.G., Duarte, M.D., Prado, C.M., Albuquerque, E.C., & Andrade, L.B. (in press).
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Paulo, L.T., Len, C.A., Hilario, M.O., Pedroso, S.A., Vitalle, M.S., Terreri, M.T. (in press).
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Kuburovic, N.B., Pasic, S., Susic, G., Stevanovic, D., Kuburovic, V., Zdravkovic, S., Janicijevic,
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symptoms in children with primary immunodeficiencies. Patient Preference and Adherence.
McGowan, J.E., Alderdice, F.A., Boylan, J., Holmes, V.A., Jenkins, J., Craig, S., Perra, O., &
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Ferreira, P.L., Baltazar, C.F., Cavalheiro, L., Cabri, J., & Gonçalves, R.S. (2014). Reliability and
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Petersen, S., Swinburn, B., Mavoa, H., Fotu, K., Tupoulahi-Fusimalohi, C., Faeamani, G., &
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MaCartney, G., Harrison, M.B., Vandenkerkhof, E., Stacey, D., & McCarthy, P. (2014). Quality of
life and symptoms in pediatric brain tumor survivors: A systematic review. Journal of Pediatric
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Carlson, M.J., Moore, C.E., Tsai, C.M., Shulman, R.J., & Chumpitazi, B.P. (2014). Child and
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Al-Hayek, A.A., Robert, A.A., Abbas, H.M., Itani, M.B., Al-Saeed, A.H., Juhani, A.E., Al-
Goudah, H.S., & Al-Sabaan, F.S. (2014). Assessment of health-related quality of life among
adolescents with type 1 diabetes mellitus in Saudi Arabia. Saudi Medical Journal, 35, 712-717.
Rastogi, R., Rastogi, D., & Silver, E.J. (2014). Quality of life among urban children with obesity
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Nwenyi, E., Leafman, J., Mathieson, K., & Ezeobah, N. (2014). Differences in quality of life
between pediatric sickle cell patients who used hydroxyurea and those who did not. International
Journal of Health Care Quality Assurance, 27, 468-481.
Gopinath, B., Louie, J.C., Flood, V.M., Burlutsky, G., Hardy, L.L., Baur, L.A., & Mitchell, P.
(2014). Influence of obesogenic behaviors on health-related quality of life in adolescents. Asia
Pacific Journal of Clinical Nutrition, 23, 121-127.
Pennison, M.C., Mednick, L., Rosoklija, I., Grant, R., Price, D., Huang, L., Ziniel, S., & Borer,
J.G. (2014). Health related quality of life in patients with bladder exstrophy: A call for targeted
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Uçer, O., & Gümüş, B. (in press). Quantifying subjective assessment of sleep quality, quality of
life and depressed mood in children with enuresis. World Journal of Urology.
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Alayli, G., Durmus, D., Ozkaya, O., Sen, H.E., Nalcacioglu, H., Bilgici, A., & Kuru, O. (2014).
Functional capacity, strength, and quality of life in children and youth with familial
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Mendonça, T.M., Terreri, M.T., Silva, C.H., Neto, M.B., Pinto, R.M., Natour, J., & Len, C.A. (in
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idiopathic arthritis. Archives of Physical Medicine and Rehabilitation.
Kunin-Batson, A., Kadan-Lottick, N., & Neglia, J.P. (in press). The contribution of
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Jaser, S.S, Whittemore, R., Chao, A., Jeon, S., Faulkner, M.S., & Grey, M. (2014). Mediators of
12-month outcomes of two Internet interventions for youth with Type 1 diabetes. Journal of
Gilban, D., Alves Junior, P., & Beserra, I. (2014). Health related quality of life of children and
adolescents with congenital adrenal hyperplasia in Brazil. Health and Quality of Life Outcomes,
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Hesapçıoğlu, S.T., Tural, M.K., & Kandil, S. (2014). Quality of life and self-esteem in children
with chronic tic disorder. Turkish Archives of Pediatrics, 49, 323-332.
Smith, A.W., Bellizzi, K.M., Keegan, T.H., Zebrack, B., Chen, V.W., Neale, A.V., Hamilton, A.S.,
Shnorhavorian, M., & Lynch, C.F. (2013). Health-related quality of life of adolescent and young
adult patients with cancer in the United States: The Adolescent and Young Adult Health
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Medrano, G.R., Berlin, K.S., & Davies, W.H. (2013). Utility of the PedsQL™ Family Impact
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Chiang, H.M., & Wineman, I. (2014). Factors associated with quality of life in individuals with
autism spectrum disorders: A review of literature. Research in Autism Spectrum Disorders, 8,
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Gulati, R., Radhakrishnan, K.R., Hupertz, V., Wyllie, R., Alkhouri, N., Worley, S., & Feldstein,
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Kumar, R., Rodriguez, V., Matsumoto, J.M., Khan, S.P., Weaver, A.L., McBane, R.D., Beebe,
T.J., & Heit, J.A. (in press). Health-related quality of life in children and young adults with post-
thrombotic syndrome: Results from a cross-sectional study. Pediatric Blood & Cancer.
Jensen, C.D., Cushing, C.C., & Elledge, A.R. (2014). Associations between teasing, quality of
life, and physical activity among preadolescent children. Journal of Pediatric Psychology, 39, 65-
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Suppiej, A., Cainelli, E., Casara, G., Cappellari, A., Nosadini, M., & Sartori, S. (2014). Long-
term neurocognitive outcome and quality of life in pediatric acute disseminated
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Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N.,
Kumabe, T, Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (in press). Cancer-specific
health-related quality of life in children with brain tumors. Quality of Life Research.
Niu, X., Poon, J.L., Riske, B., Zhou, Z.Y., Ullman, M., Lou, M., Baker, J., Koerper, M., Curtis,
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Daniel, L.C., Brumley, L.D., & Schwartz, L.A. (2013). Fatigue in adolescents with cancer
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Bansal, M., Sharma, K.K., Bakhshi, S., & Vatsa, M. (in press). Perception of Indian parents on
health-related quality of life of children during maintenance therapy of acute lymphoblastic
leukemia: A comparison with siblings and healthy children. Journal of Pediatric
Kelly, M.M. (in press). Assessment of life after prematurity in 9- to 10-year-old children. MCN.
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Levy-Zaks, A., Pollak, Y., & Ben-Pazi, H. (2014). Cerebral palsy risk factors and their impact on
psychopathology. Neurological Research, 36, 92-94.
Vogtle, L.K., Malone, L.A., & Azuero, A. (2014). Outcomes of an exercise program for pain and
fatigue management in adults with cerebral palsy. Disability and Rehabilitation, 36, 818-825.
Johnson, S.R., Cooper, M.N., Davis, E.A., & Jones, T.W. (in press). Hypoglycaemia, fear of
hypoglycaemia and quality of life in children with Type 1 diabetes and their parents. Diabetic
Medicine.
Joffe, N.E., Lynch-Jordan, A., Ting, T.V., Arnold, L.M., Hashkes, P.J., Lovell, D.J., Passo, M.H.,
Powers, S.W., Schikler, K.N., & Kashikar-Zuck, S. (in press). The utility of the PedsQL™
Rheumatology Module as an outcome measure in juvenile fibromyalgia. Arthritis Care &
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Abdul-Sattar, A.B., Elewa, E.A., El-Shahawy, E.E., & Waly, E.H. (in press). Determinants of
health-related quality of life impairment in Egyptian children and adolescents with juvenile
idiopathic arthritis: Sharkia Governorate. Rheumatology International.
Sand, P., Kljajić, M., & Sunnegårdh, J. (2013). The reliability of the Pediatric Quality of Life
Inventory 3.0 Cardiac Module for Swedish children with congenital heart defects. Nordic
Sundaram, S.S., Alonso, E.M., Haber, B., Magee, J.C., Fredericks, E., Kamath, B., Kerkar, N.,
Rosenthal, P., Shepherd, R., Limbers, C.A., Varni, J.W., Robuck, P., & Sokol, R.J. (2013). Health
related quality of life in biliary atresia patients surviving with their native liver. Journal of
Pediatrics, 163, 1052-1057.
Mak, G.Z., Speaker, C., Anderson, K., Stiles-Shields, C., Lorenz, J., Drossos, T., Liu, D.C., &
Skelly, C.L. (2013). Median arcuate ligament syndrome in the pediatric population. Journal of
Pediatric Surgery, 48, 2261-2270.
Mazaheri, M.M., Rae-Seebach, R.D., Preston, H.E., Schmidt, M., Kountz-Edwards, S., Field, N.,
Cassidy, S., & Packman, W. (2013). The impact of Prader–Willi syndrome on the family’s quality
of life and caregiving, and the unaffected siblings’ psychosocial adjustment. Journal of
Intellectual Disability Research, 57, 861–873.
Grey, M., Whittemore, R., Jeon, S., Murphy, K., Faulkner, M.S., Delamater, A. (2013). Internet
psycho-education programs improve outcomes in youth with Type 1 diabetes. Diabetes Care, 36,
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Garcia Guerra, G., Joffe, A.R., Robertson, C.M., Atallah, J., Alton, G., Sauve, R.S., Dinu, I.A.,
Ross, D.B., & Rebeyka, I.M. (in press). Health-related quality of life experienced by children
with chromosomal abnormalities and congenital heart defects. Pediatric Cardiology.
Su, C.T., Wang, J.D., & Lin, C.Y. (2013). Child-rated versus parent-rated quality of life of
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Gumidyala, A.P, & Greenley, R.N. (2014). Correlates of health-related quality of life in pediatric
inflammatory bowel disease: A cumulative risk model approach. Journal of Pediatric Psychology,
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Brinksma, A., Tissing, W.J., Sulkers, E., Kamps, W.A., Roodbol, P.F., & Sanderman, R. (2014).
Exploring the response shift phenomenon in childhood patients with cancer and its effect on
health-related quality of life. Oncology Nursing Forum, 41, 48-56.
Hong, S.S., Park, H.R., Kim, K.S., & Choi, S.H. (2014). Late effects, social adjustment, and
quality of life in adolescent survivors of childhood leukemia. Journal of Korean Academy of
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Gowey, M.A., Lim, C.S., Clifford, L.M., & Janicke, D.M. (2014). Disordered eating and health-
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Schneider, C., Hidalgo, E.T., Schmitt-Mechelke, T., & Kothbauer, K.F. (in press). Quality of life
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Haverman, L., van Rossum, M.A.J., van Veenendaal., M., van denBerg, J.M., Dolman, K.M.,
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Barrera, M., Hancock, K., Rokeach, A., Atenafu, E., Cataudella, D., Punnett, A., Johnston, D.,
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Sigurdardottir, A.O., Svavarsdottir, E.K., Rayens, M.K., & Gokun, Y. (in press). The impact of a
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Freeman, K.A., Smith, K., Adams, E., Mizokawa, S., & Neville-Jan, A. (2013). Is continence
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Ezon, D.S., Khan, M.S., Adachi, I., Jeewa, A., Morris, S.A., Nagy, C.Z., Morales, D.L., & Heinle,
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Ng, V., Nicholas, D., Dhawan, A., Yazigi, N., Ee, L., Stormon, M., Gilmour, S., Schreiber, R.,
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Eagleson, K.J., Justo, R.N., Ware, R.S., Johnson, S.G., & Boyle, F.M. (in press). Health-related
quality of life and congenital heart disease in Australia. Journal of Paediatrics and Child Health.
Lynch, F., Owen-Smith, A., Bent, S., Coleman, K., Yau, V., Pearson, K., Crawford, P., Massolo,
M., Freiman, H., Pomichowski, M., & Croen, L. (2013) PS1-14: Health-related quality of life in
children with Autism Spectrum Disorders: Findings from the Mental Health Research Network
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Akdemir, D., Uzun, O., Pehlivantürk Özsungur, B, & Topçu, M. (in press). Health-related quality
of life in adolescents with psychogenic nonepileptic seizures. Epilepsy & Behavior.
Soee, A.B., Skov, L., Skovgaard, L.T., & Thomsen, L.L. (in press). Headache in children:
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Hornsby, B.W., Werfel, K., Camarata, S., & Bess, F.H. (in press). Subjective fatigue in children
with hearing loss: Some preliminary findings. American Journal of Audiology.
Hilliard, M.E., Lawrence, J.M., Modi, A.C., Anderson, A., Crume, T., Dolan, L.M., Merchant,
A.T., Yi-Frazier, J.P., & Hood, K.K. (2013). Identification of minimal clinically important
difference scores of the Pediatric Quality of Life Inventory in children, adolescents, and young
adults with Type 1 and Type 2 diabetes. Diabetes Care, 36, 1891–1897.
Kulkarni, A.V., Piscione, J., Shams, I, & Bouffet, E. (in press). Long-term quality of life in
children treated for posterior fossa brain tumors. Journal of Neurosurgery: Pediatrics.
Idorn, L., Jensen, A.S., Juul, K., Overgaard, D., Nielsen, N.P., Sørensen, K., Reimers, J.I., &
Søndergaard, L. (in press). Quality of life and cognitive function in Fontan patients, a population-
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Lu, P.L., Teich, S., Di Lorenzo, C., Skaggs, B., Alhajj, M., & Mousa, H.M. (2013). Improvement
of quality of life and symptoms after gastric electrical stimulation in children with functional
dyspepsia. Neurogastroenterology and Motility, 25, 567-574.
Huang, I.C., Anderson, M., Gandhi, P., Tuli, S., Krull, K., Lai, J.S., Nackashi, J., & Shenkman, E.
(in press). The relationships between fatigue, quality of life, and family impact among children
with special health care needs. Journal of Pediatric Psychology.
Demirdas, S., Maurice-Stam, H., Boelen, C.C., Hofstede, F.C., Janssen, M.C., Langendonk, J.G.,
Mulder, M.F., Rubio-Gozalbo, M.E., van Spronsen, F.J., de Vries, M., Grootenhuis, M.A., &
Bosch, A.M. (in press). Evaluation of quality of life in PKU before and after introducing
tetrahydrobiopterin (BH4): A prospective multi-center cohort study. Molecular Genetics and
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van Litsenburg, R.R., Huisman, J., Pieters, R., Verhaak, C., Kaspers, G.J., & Gemke, R.J. (in
press). Determinants of quality of life during induction therapy in pediatric acute lymphoblastic
leukemia. Supportive Care in Cancer.
Jacob, E., Chan, V.W., Hodge, C., Zeltzer, L., Zurakowski, D., & Sethna, N.F. (in press). Sensory
and thermal quantitative testing in children with sickle cell disease. Journal of Pediatric
Hao, W., Chorney, J.M., Bezuhly, M., Wilson, K., & Hong, P. (in press). Analysis of health-
related quality-of-life outcomes and their predictive factors in pediatric patients who undergo
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Barrera, M., Hancock, K., Rokeach, A., Cataudella, D., Atenafu, E., Johnston, D., Punnett, A.,
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External validity and reliability of the psychosocial assessment tool (PAT) among Canadian
parents of children newly diagnosed with cancer. Pediatric Blood & Cancer.
Tarbell, S.E., & Li, B.U. (in press). Health-related quality of life in children and adolescents with
cyclic vomiting syndrome: A comparison with published data on youth with irritable bowel
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Jansen, P.W., Mensah, F.K., Clifford, S., Nicholson, J.M., & Wake, M. (in press). Bidirectional
associations between overweight and health-related quality of life from 4-11 years: Longitudinal
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Angeles-Han, S.T., McCracken, C., Jenkins, K., Myoung, E., Stryker, D., Ponder, L., Stevens,
K.R., Vogler, L.B., Kennedy, C., Yeh, S., Drews-Botsch, C., & Prahalad, S. (2014). The effects of
youngsters' eyesight on quality of life as a measure of uveitis activity, visual function and vision
related quality of life in childhood uveitis. Arthritis & Rheumatology, 66, Suppl 11, S61-62.
Johnston, D.L., Nagarajan, R., Caparas, M., Schulte, F., Cullen, P., Aplenc, R., & Sung, L. (2013).
Reasons for Non-Completion of Health Related Quality of Life Evaluations in Pediatric Acute
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Lukács, A., Varga, B., Kiss-Tóth, E., Soós, A., & Barkai, L. (in press). Factors influencing the
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Pieper, P., & Garvan, C. (2014). Health-related quality of life in the first year following a
childhood concussion. Brain Injury, 28, 105-113.
Ferracini, G.N., Dach, F., & Speciali, J.G. (2014). Quality of life and health-related disability in
children with migraine. Headache, 54, 325-334.
Sritipsukho, P., & Mahasup, N. (2014). Correlations between gross motor functions and health-
related quality of life in Thai children with spastic diplegia. Journal of the Medical Association of
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Wang, C., Shang, L., Zhang, Y., Tian, J., Wang, B., Yang, X., Sun, L., Du, C., Jiang, X., & Xu, Y.
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Har, A.F., Rescorla, F.J., & Croffie, J.M. (2013). Quality of life in pediatric patients with
unremitting constipation pre and post Malone Antegrade Continence Enema (MACE) procedure.
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Khetani, M.A., Collett, B.R., Speltz, M.L., & Werler, M.M. (in press). Health-related quality of
life in children with hemifacial microsomia: Parent and child Perspectives. Journal of
Kashikar-Zuck, S., Zafar, M., Barnett, K.A., Aylward, B.S., Strotman, D., Slater, S.K., Allen, J.R.,
Lecates, S.L., Kabbouche, M.A., Ting, T.V., Hershey, A.D., & Powers, S.W. (in press). Quality of
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Burke, A. (2014). Zen Shiatsu: A longitudinal case study measuring stress reduction in a child
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De Grandis, E.S., Armelini, P.A., & Cuestas, E. (in press). Evaluation of quality of life in school
children with a history of early severe malnutrition. Anales de Pediatría.
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Pratt, K.J., Lazorick, S., Lamson, A.L., Ivanescu, A., & Collier, D.N. (2013). Quality of life and
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Olesen JD, Kiddoo DA, Metcalfe PD. (2013). The association between urinary continence and
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Saffari, M., Gholamrezaei, A., Saneian, H., Attari, A., & Bruni, O. (in press). Linguistic
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Ringold, S., Ward, T.M., & Wallace, C. (2013). Disease activity and fatigue in juvenile idiopathic
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Sanchez, S.E., McAteer, J.P., Goldin, A.B., Horslen, S., Huebner, C.E., & Javid, P.J. (2013).
Health-related quality of life in children with intestinal failure. Journal of Pediatric
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Harder, L.L., Holland, A.A., Frohman, E., Graves, D., & Greenberg, B.M. (2013). Cognitive
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Nascimento Moraes, A., Ramos Ascenção Terreri, M.T., Esteves Hilário, MO, & Len, C.A.
(2013). Health related quality of life of children with rheumatic heart diseases: Reliability of the
Brazilian version of the Pediatric Quality of Life Inventory™ Cardiac Module scale. Health and
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Smith, T.F., Russell, H.F., Kelly, E.H., Mulcahey, M.J., Betz, R.R., & Vogel, L.C. (in press).
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Petersen, S., Moodie, M., Mavoa, H., Waqa, G., Goundar, R., & Swinburn, B. (in press).
Relationship between overweight and health-related quality of life in secondary school children
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Al-Uzri, A., Matheson, M., Gipson, D.S., Mendley, S.R., Hooper, S.R., Yadin, O., Rozansky, D.J.,
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Kiliś-Pstrusińska, K., Wasilewska, A., Medyńska, A., Bałasz-Chmielewska, I., Grenda, R.,
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Ainuddin, H.A., Loh, S.Y., Chinna, K., Low, W.Y., & Roslani, A.C. (in press). Psychometric
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Dalton, W.T., Schetzina, K.E., McBee, M.T., Maphis, L., Fulton-Robinson, H., Ho, A.L., Tudiver,
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Lepeytre, C., De Lagausie, P., Merrot, T., Baumstarck, K., Oudyi, M., & Dubus, J.C. (in press).
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Snyder Valier, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (2013).
Comparison of patient and proxy reporting of health-related quality of life in adolescent athletes
who suffer a sports-related injury and require orthopedic consultation. Journal of Sport
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Broder, H.L., Norman, R.G., Sischo, L., & Wilson-Genderson, M. (in press). Evaluation of the
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Child Oral Health Impact Scores among youth with cleft. Quality of Life Research.
Isa, S.N., Aziz, A.A., Rahman, A.A., Ibrahim, M.I., Ibrahim, W.P., Mohamad, N., Othman, A,
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parent health-related quality of life and family functioning in Kelantan and its associated factors.
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Johansen, H., Dammann, B., Andresen, I.L., & Fagerland, M.W. (in press). Health-related quality
of life for children with rare diagnoses, their parents' satisfaction with life and the association
between the two. Health and Quality of Life Outcomes.
Ruccione, K., Lu, Y., & Meeske, K. (in press). Adolescents' psychosocial health-related quality of
life within 6 months after cancer treatment completion. Cancer Nursing.
Lukács, A., Kiss-Tóth, E., Varga, B., Soós, A., Takác, P., & Barkai, L. (in press). Benefits of
continuous subcutaneous insulin infusion on quality of life. International Journal of Technology
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Jalali-Farahani, S., Chin, Y.S., Amiri, P., & Mohd Taib, M.N. (in press). Body mass index (BMI)-
for-age and health-related quality of life (HRQOL) among high school students in Tehran. Child:
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Puder, J., Pinto, A.M., Bonvin, A., Bodenman, P., Munsch, S., Kriemler, S., & Marques-Vidal, P.
(in press). Health-related quality of life in migrant preschool children. BMC Public Health.
Smith, A.W., Bellizzi, K.M., Keegan, T.H.M., Zebrack, B., Chen, V., Neale, A.V., Hamilton, A.S.,
Shnorhavorian, M., & Lynch. C.F. (in press). Health-related quality of life of adolescent and
young adult cancer patients in the United States: The AYA HOPE study. Journal of Clinical
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Hu, J., Jiang, L., Hong, S., Cheng, L., Kong, M., & Ye, Y. (2013). Reliability and validity of the
Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) 3.0 Neuromuscular
Module in children with Duchenne muscular dystrophy. Health and Quality of Life Outcomes,
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Snyder, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (in press).
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who suffer a sports-related injury and require orthopaedic consultation. Journal of Sport
Rehabilitation.
Song, B., Schulze, M., Goldschmidt, I., Haux, R., Baumann, U., & Marschollek, M. (2013).
Home monitoring and decision support for international liver transplant children. Studies in
Health Technology and Informatics, 192, 268-272.
Lam KC, Valier AR, Bay RC, McLeod TC. (2013). A unique patient population? Health-related
quality of life in adolescent athletes versus general, healthy adolescent individuals. Journal of
Athletic Training, 48, 233-241.
Flanagan, A., Kelly, E.H., & Vogel, L.C. (2013). Psychosocial outcomes of children and
adolescents with early-onset spinal cord injury and those with Spina Bifida. Pediatric Physical
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Ezzahri, M., Amine, B., Rostom, S., Rifay, Y., Badri, D., Mawani, N., Gueddari, S., Shyen, S.,
Wabi, M., Moussa, F., Abouqal, R., Chkirate, B., & Hajjaj-Hassouni, N. (in press). The uveitis
and its relationship with disease activity and quality of life in Moroccan children with juvenile
idiopathic arthritis. Clinical Rheumatology.
Aldaqal, S.M., & Sehlo, M.G. (in press). Self-esteem and quality of life in adolescents with
extreme obesity in Saudi Arabia: The effect of weight loss after laparoscopic sleeve gastrectomy.
General Hospital Psychiatry.
Atilola, O., & Stevanovic, D. (in press). PedsQL™ 4.0 Generic Core Scales for adolescents in the
Yoruba language: Translation and general psychometric properties. Clinical Child Psychology
and Psychiatry.
Knibb, R.C., & Hourihane, J.O. (in press). The psychosocial impact of an activity holiday for
young children with severe food allergy: A longitudinal study. Pediatric Allergy and Immunology.
Wallander, J.L., Kerbawy, S., Toomey, S., Lowry, R., Elliott, M.N., Escobar-Chaves, S.L.,
Franzini, L., & Schuster, M.A. (in press). Is obesity associated with reduced health-related quality
of life in Latino, black and white children in the community? International Journal of Obesity.
Tupper, S.M., Rosenberg, A.M., Pahwa, P., & Stinson, J.N. (2013). Pain intensity variability and
relationship with quality of life in youth with juvenile idiopathic arthritis. Arthritis Care &
Research, 65, 563-570.
Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (2013). A preliminary investigation
into psychosocial outcome and quality-of-life in adolescents following childhood traumatic brain
injury. Brain Injury, 27, 872-877.
Arslan, F.T., Basbakkal, Z., & Kantar, M. (2013). Quality of life and chemotherapy-related
symptoms of Turkish cancer children undergoing chemotherapy. Asian Pacific Journal of Cancer
Prevention, 14, 1761-1768.
Abu-Saad Huijer, H., & Sagherian, K., & Tamim, H. (2013). Quality of life and symptom
prevalence as reported by children with cancer in Lebanon. European Journal of Oncology
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Ezzahri, M., Amine, B., Rostom, S., Badri, D., Mawani, N., Gueddari, S., Shyen, S., Wabi, M.,
Moussa, F., Abouqal, R., Chkirate, B., & Hajjaj-Hassouni, N. (in press). Factors influencing the
quality of life of Moroccan patients with juvenile idiopathic arthritis. Clinical Rheumatology.
Yürümez, E., & Kiliç, B.G. (in press). Relationship between sleep problems and quality of life in
children with ADHD. Journal of Attention Disorders.
Kurbet, S.B., Prashanth G.P., Patil, M.V., & Mane, S. (2013). A retrospective analysis of early
experience with modified complete primary repair of exstrophy bladder (CPRE) in neonates and
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Mensah, F.K., Bayer, J.K., Wake, M., Carlin, J.B., Allen, N.B., & Patton, G.C. (in press). Early
puberty and childhood social and behavioral adjustment. Journal of Adolescent Health.
Ul-Haq, Z., Mackay, D.F., Fenwick, E., & Pell, J.P. (in press). Meta-analysis of the association
between body mass index and health-related quality of life among children and adolescents
assessed using the Pediatric Quality of Life Inventory Index. Journal of Pediatrics.
Rivara, F.P., Vavilala, M.S., Dennis, D.R., Temkin, N.R., Wang, J., O'Connor, S., Koepsell, T.,
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Uzark, K., King, E., Spicer, R., Beekman, R., Kimball, T., & Varni, J.W. (2013). The clinical
utility of health-related quality of life assessment in pediatric cardiology outpatient practice.
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Colville, G.A., & Pierce, C.M. (2013). Children's self-reported quality of life after intensive care
treatment. Pediatric Critical Care Medicine, 14, e85–e92.
Lin, C.Y., Luh, W.M., Cheng, C.P., Yang, A.L., Su, C.T., & Ma, H.I. (2013). Measurement
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Tsai, M.H., Hsu, J.F., Chou, W.J., Yang, C.P., Jaing, T.H., Hung, I.J., Liang, H.F., Huang, H.R., &
Huang, Y.S. (in press). Psychosocial and emotional adjustment for children with pediatric cancer
and their primary caregivers and the impact on their health-related quality of life during the first 6
months. Quality of Life Research.
Greenley, R.N., Kunz J.H., Schurman, J.V., & Swanson, E. (2013). Abdominal pain and health
related quality of life in pediatric inflammatory bowel disease. Journal of Pediatric Psychology,
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Hoffman, S., Lambert, M.C., Nelson, T.D., Trout, A.L., Epstein, M.H., & Pick, R. (in press).
Confirmatory factor analysis of the PedsQL among youth in a residential treatment setting.
Menezes, A.S., Len, C.A., Hilário, M.O., Terreri, M.T., & Braga, J.A. (2013). Quality of life in
patients with sickle cell disease. Revista Paulista de Pediatria, 31, 24-29.
Ringlever, L., Otten, R., van Schayck, O.C., & Engels, R.C. (in press). The role of maternal
illness perceptions in perceived asthma symptoms in school-aged children. Journal of Asthma.
Neul, S.K., Minard, C.G., Currier, H., & Goldstein, S.L. (2013). Health-related quality of life
functioning over a 2-year period in children with end-stage renal disease. Pediatric Nephrology,
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Gopinath, B., Baur, L.A., Burlutsky, G., & Mitchell, P. (in press). Adiposity adversely influences
quality of life among adolescents. Journal of Adolescent Health.
O'Donnell, C.M., & Harvey, A.R. (in press). An outpatient low-intensity locomotor training
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Mittal R, Sciberras E, Sewell J, Efron D. (in press). Assessment of children with learning and
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Rachakonda, T., Jeffe, D.B., Shin, J.J., Mankarious, L., Fanning, R.J., Lesperance, M.M., & Lieu,
J.E. (in press). Validity, discriminative ability and reliability of the hearing-related quality of life
(HEAR-QL) questionnaire for adolescents. The Laryngoscope.
Golubović, S., & Skrbić, R. (2013). Agreement in quality of life assessment between adolescents
with intellectual disability and their parents. Research in Developmental Disabilities, 34, 1863-
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Incledon, E., Gerner, B., Hay, M., Brennan, L., & Wake, M. (in press). Psychosocial predictors of
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Pakpour, A., Zeidi, I., Hashemi, F., Saffri, M., & Burri, A. (2013). Health-related quality of life in
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Chan, C.M., & Wang, W.C. (2013). Quality of life in overweight and obese young Chinese
children: A mixed-method study. Health and Quality of Life Outcomes, 6; 11(1):33.
Oberg, J.A., Bender, J.G., Morris, E., Harrison, L., Basch, C.E., Garvin, J.H., Sands, S.A., &
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health-related quality of life outcomes. Bone Marrow Transplantation.
Li, H.C., Williams, P.D., Williams, A.R., Chung, J.O., Chiu, S.Y., & Lopez, V. (in press).
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Uchida, K., Kawamata, A., Hashimoto, K., Inoue, M., Otake, K., Koike, Y., Matsushita, K.,
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Choi, L.J., & Huang, J.S. (2013). A pilot study of s-adenosylmethionine in treatment of functional
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Kul, M., Cengel Kültür, E., Senses Dinç, G., Bilginer, Y., Uluç, S., & Baykan, H. (2013). Quality
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Haverman, L., Grootenhuis, M.A., van den Berg, J.M., van Veenendaal, M., Dolman, K.M.,
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Limbers, C.A., Emery, K., & Uzark, K. (in press). Factors associated with perceived cognitive
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quality of life in pediatric patients with long-standing pancreatitis. Journal of Pediatric
Franciosi, J.P., Hommel, K.A., DeBrosse, C.W., Greenberg, A.B., Greenler, A.J., Abonia, J.P.,
Rothenberg, M.E., & Varni, J.W. (2012). Quality of life in paediatric eosinophilic esophagitis:
What is important to patients? Child: Care, Health & Development, 38, 477-483.
Schlenz, A.M., Schatz, J., McClellan, C.B., & Roberts, C.W. (2012). Responsiveness of the
PedsQL to pain-related changes in health-related quality of life in pediatric Sickle Cell Disease.
Mahrer, N.E., Montaño, Z., & Gold, J.I. (2012). Relations between anxiety sensitivity,
somatization, and health-related quality of life in children with chronic pain. Journal of Pediatric
Pratt, K.J., Lamson, A.L., Swanson, M.S., Lazorick, S., & Collier, D.N. (2012). The importance
of assessing for depression with HRQOL in treatment seeking obese youth and their caregivers.
Quach, J., Hiscock, H., & Wake, M. (in press). Sleep problems and mental health in primary
school new entrants: Cross-sectional community-based study. Journal of Paediatrics and Child
Health.
Beri, A., & Rajendran, V. (2012). Reliability of PedsQL Neuromuscular module in assessing
health related quality of life in children with Down syndrome. International Journal of Therapies
and Rehabilitation Research, 1, 6-11.
Chaudhry, Z., & Siddiqui, S. (2012). Health related quality of life assessment in Pakistani
paediatric cancer patients using PedsQL™ 4.0 Generic Core Scale and PedsQL™ Cancer
Module. Health and Quality of Life Outcomes, 18; 10(1):52.
Demuth, S.K., Knutson, L.M., & Fowler, E.G. (in press). The PEDALS stationary cycling
intervention and health-related quality of life in children with cerebral palsy: A randomized
controlled trial. Developmental Medicine and Child Neurology.
Ardon, M.S., Selles, R.W., Roebroeck, M.E., Hovius, S.E., Stam, H.J., & Janssen, W.G. (in
press). Poor agreement on health-related quality of life between children with congenital hand
differences and their parents. Archives of Physical Medicine and Rehabilitation.
Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (in press). Factors
influencing self- and parent-reporting health-related quality of life in children with brain tumors.
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Czosek, R.J., Bonney, W.J., Cassedy, A., Mah, D.Y., Tanel, R.E., Imundo, J.R., Singh, A.K.,
Cohen, M.I., Miyake, C.Y., Fawley, K., & Marino, B.S. (in press). Impact of cardiac devices on
the quality of life in pediatric patients. Circulation. Arrhythmia and Electrophysiology.
Peterson, C.C., Cousino, M.K., Donohue, J.E., Schmidt, M.L., & Gurney, J.G. (2012). Discordant
parent reports of family functioning following childhood neuroblastoma: A report from the
Children's Oncology Group. Journal of Psychosocial Oncology, 30, 503-518.
Oriel, K.N., Marchese, V.G., Shirk, A., Wagner, L., Young, E., & Miller, L. (2012). The
psychosocial benefits of an inclusive community-based aquatics program. Pediatric Physical
Therapy, 24, 361-367.
Klaassen, R.J., Blanchette, V., Burke, T.A., Wakefield, C., Grainger, J.D., Gaedicke, G.,
Riedlinger, A., Dufort, G., Citrin, E., Reguerre, Y., Pellier, I., Curtis, C., & Young, N.L. (in press).
Quality of life in childhood immune thrombocytopenia: International validation of the kids' ITP
tools. Pediatric Blood & Cancer.
Robert, R.S., Paxton, R.J., Palla, S.L., Yang, G., Askins, M.A., Joy, S.E., & Ater, J.L. (in press).
Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core
Scales, Cancer Module, and Multidimensional Fatigue Scale in long-term adult survivors of
pediatric cancer. Pediatric Blood & Cancer.
Castro, T.M., Marinho, D.R., & Cavalcante, C.C. (2013). The impact of environmental factors on
quality of life and symptoms of children with allergic rhinitis. Brazilian Journal of
Otorhinolaryngology, 79, 569-574.
Dolgun, E., Yavuz, M., Celik, A., & Ergün, M.O. (2013). The effects of constipation on the
quality of life of children and mothers. Turkish Journal of Pediatrics, 55, 180-185.
Buck, D. (2012). The PedsQL™ as a measure of parent-rated quality of life in healthy UK
toddlers: Psychometric properties and cross-cultural comparisons. Journal of Child Health Care,
16, 331-338.
Kashikar-Zuck, S., Ting, T.V., Arnold, L.M., Bean, J., Powers, S.W., Graham, T.B., Passo, M.H.,
Schikler, K.N., Hashkes, P.J., Spalding, S., Lynch-Jordan, A.M., Banez, G., Richards, M.M., &
Lovell, D.J. (2012). Cognitive behavioral therapy for the treatment of juvenile fibromyalgia: A
multisite, single-blind, randomized, controlled clinical trial. Arthritis and Rheumatism, 64, 297-
305.
Ihara, E.S., Wolf-Branigin, M., & White, P. (2012). Quality of life and life skill baseline measures
of urban adolescents with disabilities. Social Work in Public Health, 27, 658-670.
Bendixen, R.M., Senesac, C., Lott, D.J., & Vandenborne, K. (2012) Participation and quality of
life in children with Duchenne muscular dystrophy using the international classification of
functioning, disability, and health. Health and Quality of Life Outcomes, 30:10,43.
Shikako-Thomas, K., Dahan-Oliel, N., Shevell, M., Law, M., Birnbaum, R., Rosenbaum, P.,
Poulin, C., & Majnemer, A. (in press). Play and be happy? Leisure participation and quality of
life in school-aged children with cerebral palsy. International Journal of Pediatrics.
Sritipsukho, P., Wisai, M., & Thavorncharoensap, M. (in press). Reliability and validity of the
Thai version of the Pediatric Quality of Life Inventory 4.0. Quality of Life Research.
Tarakci, E., Baydogan, S.N., Kasapcopur, O., & Dirican, A. (in press). Cross-cultural adaptation,
reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: A quality-of-life
measure for patients with juvenile idiopathic arthritis in Turkey. Quality of Life Research.
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Stevens, M.W., Hainsworth, K.R., Weisman, S.J., & Layde, P.M. (2012). Health-related quality of
life in pediatric minor injury: Reliability, validity, and responsiveness of the Pediatric Quality of
Life Inventory in the emergency department. Archives of Pediatrics & Adolescent Medicine, 166,
74-81.
Sumpter, R., Dorris, L., Brannan, G., & Carachi, R. (2012). Quality of life and behavioural
adjustment in childhood hydrocephalus. Scottish Medical Journal, 57, 18-25.
Biaukula, V.L., Tikoduadua, L., Azzopardi, K., Seduadua, A., Temple, B., Richmond, P., Robins-
Browne, R., Mulholland, E.K., & Russell, F.M. (in press). Meningitis in children in Fiji: Etiology,
epidemiology, and neurological sequelae. International Journal of Infectious Diseases.
Duan, X., Zhang, S., & Xiao, N. (in press). Reliability and validity of the PedsQL™ Generic
Core Scales 4.0 for Chinese children with epilepsy. Epilepsy and Behavior.
Bendo, C. B., Paiva, S.M., Viegas, C.M., Vale, M.P., & Varni, J.W. (2012). The PedsQL™ Oral
Health Scale: Feasibility, reliability and validity of the Brazilian Portuguese version. Health and
Quality of Life Outcomes, 10:42, 1-11.
Tavernor, L., Barron, E., Rodgers, J., & McConachie, H. (in press). Finding out what matters:
Validity of quality of life measurement in young people with ASD. Child: Care, Health and
Development.
de Kloet, AJ., Berger, M.A., Verhoeven, I.M., van Stein Callenfels, K., & Vliet Vlieland, T.P. (in
press). Gaming supports youth with acquired brain injury? A pilot study. Brain Injury.
Karakaya, I., Sismanlar, S.G., Atmaca, H., Gök, U., & Sarlak, A.Y. (in press). Outcome in early
adolescent idiopathic scoliosis after deformity correction: Assessed by SRS-22, psychometric and
generic health measures. Journal of Pediatric Orthopaedics.
Stevanovic, D. (in press). Impact of emotional and behavioral symptoms on quality of life in
children and adolescents. Quality of Life Research.
Tantilipikorn, P., Watter, P., & Prasertsukdee S. (in press). Feasibility, reliability and validity of
the Thai version of the Pediatric Quality of Life Inventory 3.0 Cerebral Palsy Module. Quality of
Life Research.
Stasiak, K., Hatcher, S., Frampton, C., & Merry, S.N. (in press). A pilot double blind randomized
placebo controlled trial of a prototype computer-based cognitive behavioural therapy program for
adolescents with symptoms of depression. Behavioural and Cognitive Psychotherapy.
Tahirović, E., Begić, H., Tahirović, H., & Varni, J.W. (2012). Health-related quality of life and
metabolic control in children with type 1 diabetes mellitus in Bosnia and Herzegovina. Collegium
Antropologicum, 36, 117–121.
Mackenzie, H., Roberts, G., Van Laar, D., & Dean, T. (in press). A new quality of life scale for
teenagers with food hypersensitivity. Pediatric Allergy and Immunology.
Sheldrick, R.C., Neger, E.N., Shipman, D., & Perrin, E.C. (2012). Quality of life of adolescents
with autism spectrum disorders: Concordance among adolescents' self-reports, parents' reports,
and parents' proxy reports. Quality of Life Research, 21, 53–57.
Madderom, M.J., Gischler, S.J., Duivenvoorden, H., Tibboel, D., & Ijsselstijn, H. (in press).
Neonatal extracorporeal membrane oxygenation: Impaired health at 5 years of age. Pediatric
Critical Care Medicine.
Sumpter, R., Brunklaus, A., McWilliam, R., & Dorris, L. (in press). Health-related quality-of-life
and behavioural outcome in survivors of childhood meningitis. Brain Injury.
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Davis, I.D., Greenbaum, L.A., Gipson, D., Wu, L.L., Sinha, R., Matsuda-Abedini, M.,
Emancipator, J.L., Lane, J.C., Hodgkins, K., Nailescu, C., Barletta, G.M., Arora, S., Mahan, J.D.,
& Rosen, C.L. (in press). Prevalence of sleep disturbances in children and adolescents with
chronic kidney disease. Pediatric Nephrology.
Huang, J.B., Cao, Y.T., Liang, J., & Lv, X.D. (2012). Quality of life after children undergo a
radical arterial switch operation at an older age. Heart Surgery Forum, 15, E103-7.
Chang, A.B., Robertson, C.F., Van Asperen, P.P., Glasgow, N., Mellis, C.M., Masters, I.B., Teoh,
L., Tjhung, I., Morris, P.S., Petsky, H.L., Willis, C., & Landau, L.I. (in press). A multi-centre
study on chronic cough in children: burden and etiologies based on a standardized management
pathway. Chest.
Akber, A., Portale, A.A., & Johansen, K.L. (in press). Pedometer-assessed physical activity in
children and young adults with CKD. Clinical Journal of the American Society of Nephrology.
Stevanovic, D., Jancic, J., & Lakic, A. (in press). The impact of depression and anxiety disorder
symptoms on the health-related quality of life of children and adolescents with epilepsy.
Epilepsia.
Zafar, A.B., Ness, J., Dowdy, S., Avis, K., & Bashir, K. (in press). Examining sleep, fatigue, and
daytime sleepiness in pediatric multiple sclerosis patients. Multiple Sclerosis Journal.
Tacke, C.E., Haverman, L., Berk, B.M., van Rossum, M.A., Kuipers, I.M., Grootenhuis, M.A., &
Kuijpers, T.W. (in press). Quality of life and behavioral functioning in Dutch children with a
history of Kawasaki Disease. Journal of Pediatrics.
Khodaverdi, F., Bahram, A., & Jafarabadi, M.A. (2012). Quality of life, motor ability, and weight
status among school-aged children of Tehran. Iranian Journal of Public Health, 41, 97-102.
Cloonan, Y.K., Collett, B.R., Speltz, M.L., Anderka, M., & Werler, M.M. (in press). Psychosocial
outcomes in children with and without non-syndromic craniosynostosis: Findings from two
studies. Cleft Palate-Craniofacial Journal.
Steele, R.C., Aylward, B.S., Jensen, C.D., Cushing, C.C, Davis, A.M., & Bovaird, J.A. (2012).
Comparison of a family-based group intervention for youths with obesity to a brief individual
family intervention: A practical clinical trial of Positively Fit. Journal of Pediatric Psychology,
37, 53–63.
Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood
Markous, R.S., Collins, G.S., Ciceri, F., Mandelli, F., Marktel, S., & La Nasa, G. (in press).
Health related quality of life in Middle Eastern children with beta-thalassemia. BMC Blood
Disorders.
Seburg, E.M., Horvath, K.J., Garwick, A.W., McMorris, B.J., Vehe, R.K., & Scal, P. (2012).
Complementary and alternative medicine use among youth with Juvenile Arthritis: Are youth
using CAM, but not talking about it? Journal of Adolescent Health, 51, 200-202.
Uygun, V., Tayfun, F., Akcan, M., Karasu, G.T., Kupesiz, A., Hazar, V., & Yeşilipek, A. (in press).
Quality of life assessment in hematopoietic stem cell transplantation performed on Thalassemia
Major Patients. Pediatric Hematology and Oncology.
Parsons, S.K., Fairclough, D.L., Wang, J., & Hinds, P.S. (in press). Comparing longitudinal
assessments of quality of life by patient and parent in newly diagnosed children with cancer: The
value of both raters’ perspectives. Quality of Life Research.
Lacy, K.E., Allender, S.E., Kremer, P.J., de Silva-Sanigorski, A.M., Millar, L.M., Moodie, M.L.,
Mathews, L.B., Malakellis, M., & Swinburn, B.A. (in press). Screen time and physical activity
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behaviours are associated with health-related quality of life in Australian adolescents. Quality of
Life Research.
Pound, C.M., Clark, C., Ni, A., Athale, U., Lewis, V., & Halton, J.M. (in press). Corticosteroids,
behavior, and quality of life in children treated for acute lymphoblastic leukemia: A multicentered
trial. Journal of Pediatric Hematology/Oncology.
Yağc-Küpeli, B., Akyüz, C., Küpeli, S., & Büyükpamukçu, M. (2012). Health-related quality of
life in pediatric cancer survivors: A multifactorial assessment including parental factors. Journal
of Pediatric Hematology/Oncology, 34, 194-199.
Jafari, P., Bagheri, Z., Ayatollahi, S. M. T., & Soltani, Z. (2012). Using Rasch rating scale model
to reassess the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core
Scales in school children. Health and Quality of Life Outcomes, 10:27, 1-11.
Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (in press). Agreement between
parent-adolescent ratings on psychosocial outcome and quality-of-life following childhood
traumatic brain injury. Developmental Neurorehabilitation.
Chang, S.C., Lin, C.K., Tung, L.C., & Chang, N.Y. (2012). The association of drooling and
health-related quality of life in children with cerebral palsy. Neuropsychiatric Disease and
Treatment, 8, 599-604.
Sciberras, E., Fulton, M., Efron, D., Oberklaid, F., & Hiscock, H. (in press). Managing sleep
problems in school aged children with ADHD: A pilot randomised controlled trial. Sleep
Medicine.
Moorthy, L., Saad-Magalhães, C., Sato, J.O., Len, C., Vasco, M.B., Appenzeller, S., Marini, R.,
Oliveira, S.F., Rodrigues, M., Sztajnbok, F., Almeida, R.G., Jesus, A.A., Campos, L., Silva, C.,
Peterson, M., Hassett, A., Weiss, E., Verma, S., Dahodwala, M., & Lehman, T. (in press).
Validation of the Portuguese simple measure of impact of lupus erythematosus in youngsters
(SMILEY) in Brazil. Lupus.
Brunklaus A., Dorris, L., & Zuberi, SM. (in press). Comorbidities and predictors of health-related
quality of life in Dravet syndrome. Epilepsia.
Vinney, L.A., Grade, J.D., & Connor, N.P. (2012). Feasibility of using a handheld electronic
device for the collection of patient reported outcomes data from children. Journal of
Communication Disorders, 45, 12-19.
Goretti, B., Portaccio, E., Ghezzi, A., Lori, S., Moiola, L., Falautano, M., Viterbo, R., Patti, F.,
Vecchio, R., Pozzilli, C., Bianchi, V., Cappiello, S., Comi, G., Trojano, M., & Amato, M. (in
press). Fatigue and its relationships with cognitive functioning and depression in paediatric
multiple sclerosis. Multiple Sclerosis.
Ramstad, K., Jahnsen, R., Skjeldal, O.H., & Diseth, T.H. (in press). Mental health, health related
quality of life and recurrent musculoskeletal pain in children with cerebral palsy 8-18 years old.
Disability and Rehabilitation.
Damnjanović, M., Lakić, A., Stevanović, D., Jovanović, A., Jancić, J., Jovanović, M., &
Leposavić, L. (2012). Self-assessment of the quality of life of children and adolescents in the
child welfare system of Serbia. Vojnosanitetski Pregled, 69, 469-474.
Gheissari, A., Farajzadegan, Z., Heidary, M., Salehi, F., Masaeli, A., Mazori, A., Varni, J.W.,
Fallah, Z., & Mazori, A. (2012). Validation of Persian version of PedsQL™ 4.0 Generic Core
Scales in toddlers and children. International Journal of Preventive Medicine, 3, 37-46.
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Yam, P.S., Morrison, R., Penpraze, V., Westgarth, C., Ward, D.S., Mutrie, N., Hutchison, P.,
Young, D., & Reilly, J.J. (in press). Children, parents, and pets exercising together (CPET)
randomised controlled trial: Study rationale, design, and methods. BMC Public Health.
Fredericks, E.M., Dore-Stites, D., Calderon, S.Y., Well, A., Eder, S.J., Magee, J.C., & Lopez, M.
(2012). The relationship between sleep problems and health related quality of life among
pediatric liver transplant recipients. Liver Transplantation, 18, 707-715.
Bernstein, K., D'Angelo, L.J., & Lyon, M.E. (in press). An exploratory study of HIV+
adolescents' spirituality: Will you pray with me? Journal of Religion and Health.
Yik, Y.I., Ismail, K.A., Hutson, J.M., & Southwell, B.R. (2012). Home transcutaneous electrical
stimulation to treat children with slow-transit constipation. Journal of Pediatric Surgery, 47,
1285-1290.
Lin, C.Y., Luh, W.M., Yang, A.L., Su, C.T., Wang, J.D., & Ma, H.I. (2012). Psychometric
properties and gender invariance of the Chinese version of the self-report Pediatric Quality of
Life Inventory Version 4.0: Short Form is acceptable. Quality of Life Research, 21, 177-182.
Amiri, P., Eslamian, G., Mirmiran, P., Shiva, N., Jafarabadi, M.A., & Azizi, F. (2012). Validity
and reliability of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™)
Generic Core Scales in children. Health and Quality of Life Outcomes, 10:3, 1-9.
Dibiasio, P.A., & Lewis, C.L. (in press). Exercise training utilizing body weight-supported
treadmill walking with a young adult with cerebral palsy who was non-ambulatory. Physiotherapy
Theory and Practice.
Gazini, C.C., Reimão, R.N., Rossini, S.R., Centeville, M., Mazzola, T.N., Vilela, M.M., & Silva,
M.T. (2012). Quality of sleep and quality of life in adolescents infected with human
immunodeficiency virus. Arquivos de Neuro-Psiquiatria, 70, 422-427.
Oren, A., Benoit, M.A., Murphy, A., Schulte, F., & Hamilton, J. (in press). Quality of life and
anxiety in adolescents with differentiated thyroid cancer. Journal of Clinical Endocrinology &
Metabolism.
Lyon, M.E., Garvie, P., He, J., Malow, R., McCarter, R., & D'Angelo, L.J. (in press). Spiritual
well-being among HIV-infected adolescents and their families. Journal of Religion and Health.
Appleton, R., Jones, A., Gamble, C., Williamson, P., Wiggs, L., Montgomery, P., Sutcliffe, A.,
Barker, C., & Gringras, P. (2012). The use of melatonin in children with neurodevelopmental
disorders and impaired sleep: A randomised, double-blind, placebo-controlled, parallel study
(MENDS). Health Technology Assessment, 16, 1-239.
González-Gil, T., Mendoza-Soto, A., Alonso-Lloret, F., Castro-Murga, R., Pose-Becerra, C., &
Martín-Arribas, M.C. (in press). The Spanish version of the health-related quality of life
questionnaire for children and adolescents with heart disease (PedsQL™). Revista Española de
Cardiología.
Ardon, M.S., Janssen, W.G., Hovius, S.E., Stam, H.J., & Selles R.W. (2012). Low impact of
congenital hand differences on health-related quality of life. Archives of Physical Medicine and
Rehabilitation, 93, 351-357.
Shipman, D.L., Sheldrick, R.C., & Perrin EC. (2011). Quality of life in adolescents with Autism
Spectrum Disorders: Reliability and validity of self-reports. Journal of Developmental and
Behavioral Pediatrics, 32, 85-89.
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Kelly, E.H., Klaas, S.J., Garma, S., Russell, H.F., & Vogel, L.C. (2012). Participation and quality
of life among youth with spinal cord injury. Journal of Pediatric Rehabilitation Medicine, 5, 315-
325.
de Souza, F.M., Molina, J., Terreri, M.T., Hilário, M.O., & Len, CA. (2012). Reliability of the
Pediatric Quality of Life Inventory - Healthcare Satisfaction Generic Module 3.0 version for the
assessment of the quality of care of children with chronic diseases. Journal of Pediatrics (Rio J),
88, 54-60.
Tomlinson, D., Hinds, P.S., Bartels, U., Hendershot, E., & Sung, L. (2011). Parent reports of
quality of life for pediatric patients with cancer with no realistic chance of cure. Journal of
Clinical Oncology, 29, 639-645.
Sung, L., Yanofsky, R., Klaassen, R.J., Dix, D., Pritchard, S., Winick, N., Alexander, S., &
Klassen, A. (2011). Quality of life during active treatment for pediatric acute lymphoblastic
leukemia. International Journal of Cancer, 128, 1213-1220.
Tomlinson, D., Hendershot, E., Bartels, U., Maloney, A.M., Armstrong, C., Wrathall, G., & Sung,
L. (2011). Concordance between couples reporting their child's quality of life and their decision
making in pediatric oncology palliative care. Journal of Pediatric Oncology Nursing, 28, 319-325.
Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R.,
Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the
relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile
dermatomyositis. Rheumatology, 50, 2051-2060.
Pieper, P., & Bear, M. (2011). Child and proxy perspectives of the child's health-related quality of
life 1 month after a mild traumatic brain injury. Journal of Trauma Nursing, 18, 11-17.
Rivara, F.P., Koepsell, T.D., Wang, J., Temkin, N., Dorsch, A., Vavilala, M.S., Durbin, D., &
Jaffe, K.M. (2011). Disability 3, 12, and 24 months after traumatic brain injury among children
and adolescents. Pediatrics, 128, e1129–e1138.
Anderson, B.J., Edelstein, S., Abramson, N.W., Katz, L.L., Yasuda, P.M., Lavietes, S.J., Trief,
P.M., Tollefsen, S.E., McKay, S.V., Kringas, P., Casey, T.L., & Marcus, M.D. (2011). Depressive
symptoms and quality of life in adolescents with Type 2 diabetes: Baseline data from the TODAY
study. Diabetes Care, 34, 2205-2207.
Wilfley, D.E. & The TODAY Study Group (2011). Binge eating, mood, and quality of life in
youth with Type 2 diabetes. Diabetes Care, 34, 858–860.
Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (in press). Four-year prospective study of
BMI and mental health problems in young children. Pediatrics.
Kunz, J.H., Greenley, R.N., & Howard, M. (2011). Maternal, paternal, and family health-related
quality of life in the context of pediatric inflammatory bowel disease. Quality of Life Research,
20, 1197–1204.
Wakimizu, R., Hiraga, N., Furuya, K., Fukushima, T., Tsuchida, M., Koike, K., & Yamamoto, T.
(2011). Depression and health-related quality of life after discharge and associated factors in
childhood cancer patients in Japan. Bioscience Trends, 5, 264-272.
Awasthi, S., Agnihotri, K., Chandra, H., Singh, U., & Thakur, S. (2012). Assessment of health-
related quality of life in school-going adolescents: Validation of PedsQL instrument and
comparison with WHOQOL-BREF. National Medical Journal of India, 25, 74-79.
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Rayens, M.K., Svavarsdottir, E.K., & Burkart, P.V. (2011). Cultural differences in parent-
adolescent agreement on the adolescent's asthma-related quality of life. Pediatric Nursing, 37,
311-321.
Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (2011). Four-year prospective study of BMI
and mental health problems in young children. Pediatrics, 128, 677-684.
Huang, I.C., Leite, W.L., Shearer, P., Seid, M., Revicki, D.A., & Shenkman, E.A. (2011).
Differential item functioning in quality of life measure between children with and without special
health-care needs. Value in Health, 14, 872-883.
Wysocki, T., Buckloh, L.M., Antal, H., Lochrie, A., & Taylor, A. (in press). Validation of a self-
report version of the diabetes self-management profile. Pediatric Diabetes.
Hamblion, E.L., Moore, A.T., & Rahi, J.S. (in press). The health-related quality of life of children
with hereditary retinal disorders and the psycho-social impact on their families. Investigative
Ophthalmology & Visual Science.
Mano, K.E., Khan, K.A., Ladwig, R.J., & Weisman, S.J. (2011). The impact of pediatric chronic
pain on parents' health-related quality of life and family functioning: Reliability and validity of
the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology, 36, 517-527.
Chen, R., Hao, Y., Feng, L., Zhang, Y., & Huang, Z. (2011). The Chinese version of the Pediatric
Quality of Life Inventory™ (PedsQL™) Family Impact Module: Cross-cultural adaptation and
psychometric evaluation. Health and Quality of Life Outcomes, 9:16, 1-10.
Ji, Y., Chen, S., Li, K., Xiao, N., Yang, X., Zheng, S., & Xiao, X. (2011). Measuring health-
related quality of life in children with cancer living in mainland China: feasibility, reliability and
validity of the Chinese mandarin version of PedsQL™ 4.0 Generic Core Scales and 3.0 Cancer
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Jafari, P., Forouzandeh, E., Bagheri, Z., Karamizadeh, Z., & Shalileh K. (2011). Health related
quality of life of Iranian children with type 1 diabetes: Reliability and validity of the Persian
version of the PedsQL™ Generic Core Scales and Diabetes Module. Health and Quality of Life
Outcomes, 9(1):104, 1-6.
An, K.J., Song, M.S., Sung, K.W., & Joung, Y.S. (2011). Health-related quality of life, activities
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Stevens, G.D., Vane, C., & Cousineau, M.R. (in press). Association of experiences of medical
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Massad, S.G., Nieto, F.J., Palta, M., Smith, M., Clark, R., & Thabet, A.A. (2011). Health-related
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Modi, A.C, Ingerski, L.M., Rausch, J.R, & Glauser, T.A. (2011). Treatment factors affecting
longitudinal quality of life in new onset pediatric epilepsy. Journal of Pediatric Psychology, 36,
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Thornburg, C.D., Calatroni, A., & Panepinto, J.A. (2011). Differences in health-related quality of
life in children with sickle cell disease receiving hydroxyurea. Journal of Pediatric
Arabiat, D., Elliott, B., Draper, P., & Al Jabery, M. (2011). Cross-cultural validation of the
Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scale into Arabic language.
Scandinavian Journal of the Caring Sciences, 25, 828–833.
Torcharus, K., & Pankaew, T. (2011). Health-related quality of life in Thai thalassemic children
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Dale, J.C., Cochran, C.J., Roy, L., Jernigan, E., & Buchanan, G.R. (2011). Health-related quality
of life in children and adolescents with sickle cell disease. Journal of Pediatric Health Care, 25,
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Kobayashi, K, & Kamibeppu, K. (2011). Quality of life reporting by parent-child dyads in Japan,
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Zeller, M.H., Reiter-Purtill, J., Ratcliff, M.B., Inge, T.H., & Noll JG. (in press). Two-year trends
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Pakpour, A.H., Yekaninejad, M.S., Zarei, F., Hashemi, F., Steele, M.M., & Varni, J.W. (2011). The
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Chini, L., Iannini, R., Chianca, M., Corrente, S., Graziani, S., La Rocca, M., Borruto, M., Di
Napoli, R., Angelini, F., Visconti, G., & Moschese, V. (2011). Happy Air(®), a successful school-
based asthma educational and interventional program for primary school children. Journal of
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Feng, L., Zhang, Y., Chen, R., & Hao, Y. (2011). The Chinese version of the Pediatric Quality of
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Gordijn M.S., Cremers, E.M., Kaspers, G.J., & Gemke R.J. (in press). Fatigue in children:
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Kobayashi, K., Okano, Y., & Hohashi, N. (in press). Reliability and validity of the PedsQL™
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Brice, L., Weiss, R., Wei, Y., Satwani, P., Bhatia, M., George, D., Garvin, J., Morris, E., Harrison,
L, Cairo, M.S., & Sands, S.A. (in press). Health-related quality of life (HRQoL): The impact of
medical and demographic variables upon pediatric recipients of hematopoietic stem cell
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Al-Akour, N.A., Khader, Y.S., Khassawneh, M.Y., & Bawadi, H. (in press). Health-related quality
of life of adolescents with overweight or obesity in the north of Jordan. Child: Care, Health &
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Damnjanovic, M., Lakic, A., Stevanovic, D., & Jovanovic, A. (2011). Effects of mental health on
quality of life in children and adolescents living in residential and foster care: A cross-sectional
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Danansuriya, M.N., Rajapaksa, L.C., & Varni, J.W. (2011). Reliability and validity of the Sinhala
version of the PedsQL™ 3.0 Asthma Module in early adolescents with asthma in a district of Sri
Lanka. Journal of the College of Community Physicians of Sri Lanka, 16, 8-16.
Roy K.M., & Roberts, M.C. (2011). Peanut allergy in children: Relationships to health-related
quality of life, anxiety, and parental stress. Clinical Pediatrics, 50, 1045-1051.
Knez, R., Francisković, T., Samarin, R.M., & Niksić, M. (2011). Parental quality of life in the
framework of paediatric chronic gastrointestinal disease. Collegium Antropologicum, 35, Suppl
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Diseth, T.H., Tangeraas, T., Reinfjell, T., & Bjerre, A. (in press). Kidney transplantation in
childhood: Mental health and quality of life of children and caregivers. Pediatric Nephrology.
Kunz, J.H., Greenley, R.N., & Howard, M. (in press). Maternal, paternal, and family health-
related quality of life in the context of pediatric inflammatory bowel disease. Quality of Life
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Buck, D., Clarke, M.P., Powell, C., Tiffin, P., & Drewett, R.F. (in press). Use of the PedsQL in
childhood intermittent exotropia: Estimates of feasibility, internal consistency reliability and
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Erickson, J.M., Beck, S.L., Christian, B.R., Dudley, W., Hollen, P.J., Albritton, K.A., Sennett, M.,
Dillon, R.L., & Godder, K. (2011). Fatigue, sleep-wake disturbances, and quality of life in
adolescents receiving chemotherapy. Journal of Pediatric Hematology/Oncology, 33, e17-e25.
Sears, S.F., Hazelton, A.G., Amant, J.S., Matchett, M., Kovacs, A., Vazquez, L.D., Fairbrother,
D., Redfearn, S., Hanisch, D., Dubin, A., Cannon, B.C., Fishbach, P., Kanter, R., & Bryant, RM.
(in press). Quality of life in pediatric patients with implantable cardioverter defibrillators.
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Tsuji, N., Kakee, N., Ishida, Y., Asami, K., Tabuchi, K., Nakadate, H., Iwai, T., Maeda, M.,
Okamura, J., Kazama, T., Terao, Y., Ohyama, W., Yuza, Y., Kaneko, T., Manabe, A., Kobayashi,
K., Kamibeppu, K., & Matsushima, E. (2011). Validation of the Japanese version of the Pediatric
Quality of Life Inventory™ (PedsQL™) Cancer Module. Health and Quality of Life Outcomes,
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Jacka, F.N., Kremer, P.J., Berk, M., de Silva-Sanigorski, A.M., Moodie, M., Leslie, E.R., Pasco,
J.A., & Swinburn, B.A. (2011). A prospective study of diet quality and mental health in
adolescents. PLoS One, 6, e24805.
Cronk, C.E., Hoffmann, R.G., Mueller, M.J., Zerpa-Uriona, V., Dasgupta, M., & Enriquez F.
(2011). Effects of a culturally tailored intervention on changes in body mass index and health-
related quality of life of Latino children and their parents. American Journal of Health Promotion,
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Yang, X., Xiao, N., & Yan, J. (2011). The PedsQL™ in pediatric cerebral palsy: Reliability and
validity of the Chinese version Pediatric Quality of Life Inventory 4.0 Generic Core Scales and
3.0 Cerebral Palsy Module. Quality of Life Research, 20, 243-252.
Tzischinsky, O., & Shochat, T. (2011). Eveningness, sleep patterns, daytime functioning, and
quality of life in Israeli adolescents. Chronobiology International, 28, 338-343.
Gaies, M.G., Watnick, C.S., Gurney, J.G., Bove, E.L., & Goldberg, C.S. (in press). Health-related
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Cialone, J., Adams, H., Augustine, E.F., Marshall, F.J., Kwon, J.M., Newhouse, N., Vierhile, A.,
Levy, E., Dure, L.S., Rose, K.R., Ramirez-Montealegre, D., de Blieck, E.A., & Mink, J.W. (in
press). Females experience a more severe disease course in batten disease. Journal of Inherited
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Lindenfelser, K.J., Hense, C., & McFerran, K. (in press). Music therapy in pediatric palliative
care: Family-centered care to enhance quality of life. American Journal of Hospice & Palliative
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Weedon, M., & Potterton, J. (in press). Socio-economic and clinical factors predictive of pediatric
quality of life post burn. Burns.
McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press). Racial
disparities in health-related quality of life in a cohort of very low birthweight 2- and 3-year-olds
with and without cerebral palsy. Developmental Medicine and Child Neurology.
Fatoye, F., Palmer, S., Macmillan, F., Rowe, P., & van der Linden, M. (in press). Pain intensity
and quality of life perception in children with hypermobility syndrome. Rheumatology
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Sandella, D.E., O'Brien, L.M., Shank, L.K., & Warschausky SA. (2011). Sleep and quality of life
in children with cerebral palsy. Sleep Medicine, 12, 252-256.
Dalton, W.T., Schetzina, K.E., Pfortmiller, D.T., Slawson, D.L., & Frye, W.S. (2011). Health
behaviors and health-related quality of life among middle school children in Southern
Appalachia: Data from the Winning with Wellness Project. Journal of Pediatric Psychology, 36,
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Murphy, N., Caplin, D.A., Christian, B.J., Luther, B.L., Holobkov, R., & Young, P.C. (in press).
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Woodard, G.A., Encarnacion, B., Peraza, J., Hernandez-Boussard, T., & Morton, J. (2011). Halo
effect for bariatric surgery: Collateral weight loss in patients' family members. Archives of
Surgery, 146, 1185-1190.
Geyer, R., Lyons, A., Amazeen, L., Alishio, L., & Cooks, L. (2011). Feasibility study: The effect
of therapeutic yoga on quality of life in children hospitalized with cancer. Pediatric Physical
Therapy, 23, 375-379.
Yao, D.F., Weinberg, A.C., Penna, F.J., Huang, L., Freilich, D.A., Minnillo, B.J., Shoag, J., Retik,
A.B., & Nguyen, H.T. (in press). Quality of life in children with vesicoureteral reflux as
perceived by children and parents. Journal of Pediatric Urology.
van Litsenburg, R.R., Huisman, J., Hoogerbrugge, P.M., Egeler, R.M., Kaspers, G.J., & Gemke,
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acute lymphoblastic leukemia: An exploratory study. Health and Quality of Life Outcomes,
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Viira, R., & Koka, A. (in press). Health-related quality of life of Estonian adolescents: Reliability
and validity of the PedsQL™ 4.0 Generic Core Scales in Estonia. Acta Paediatrica.
Weintraub, N., Rot, I., Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily
activities and quality of life in survivors of retinoblastoma. Pediatric Blood & Cancer, 56, 590-
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Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood
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Prospective assessment of health related quality of life in pediatric beta-thalassemia patients

following hematopoietic stem cell transplantation. Biology of Blood and Marrow Transplantation.
Marlais, M., Fishman, J.R., Köglmeier, J., Fell, J.M., & Rawat, D.J. (2010). Reduced quality of
life in children with Gastro-oesophageal reflux disease. Acta Paediatrica, 99, 418–421.
Gharaibeh, H.F., & Gharaibeh, M.K. (in press). Factors influencing health-related quality of life
of thalassaemic Jordanian children. Child: Care, Health and Development.
Bilgic, A., Bilgic, O., Akış, H.K., Eskioğlu, F., & Kılıç, E.Z. (in press). Psychiatric symptoms and
health-related quality of life in children and adolescents with psoriasis. Pediatric Dermatology.
Bolduc, M.E., DU Plessis, A.J., Sullivan, N., Khwaja, O.S., Zhang, X., Barnes, K., Robertson,
R.L., & Limperopoulos, C. (in press). Spectrum of neurodevelopmental disabilities in children
with cerebellar malformations. Developmental Medicine and Child Neurology.
Thissen, D., Varni, J.W., Stucky, B.D., Liu, Y., Irwin, D.E., & DeWalt, D.A. (2011). Using the
PedsQL™ 3.0 Asthma Module to obtain scores comparable with those of the PROMIS Pediatric
Asthma Impact Scale (PAIS). Quality of Life Research, 20, 1497-1505.
Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., Varni, J.W., & Alonso, E.M.
(2011). Health-related quality of life in pediatric liver transplant recipients compared to other
chronic disease groups. Pediatric Transplantation, 15, 245-253.
Reyes, M.L., Hernández, M., Holmgren, L.J., Sanhueza, E., & Escobar, R.G. (in press). High-
frequency, low-intensity vibrations increase bone mass and muscle strength in upper limbs,
improving autonomy in disabled children. Journal of Bone and Mineral Research.
Kwon, E.N., Mussatto, K., Simpson, P.M., Brosig, C., Nugent, M., & Samyn, M.M. (2011).
Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy
peers. Congenital Heart Disease, 6, 18-27.
Brandow, A.M., Brousseau, D.C., Pajewski, N.M., & Panepinto, J.A. (2010). Vaso-occlusive
painful events in sickle cell disease: Impact on child well-being. Pediatric Blood & Cancer, 54,
92–97.
Haneef, Z., Grant, M.L., Valencia, I., Hobdell, E.F., Kothare, S.V., Legido, A., & Khurana, D.
(2010). Correlation between child and parental perceptions of health-related quality of life
in epilepsy using the PedsQL.v4.0 measurement model. Epileptic Disorders, 12, 275-282.
Williams, J.W., Canterford, L., Hesketh, K.D., Hardy, P., Waters, E.B., Patton, G.C., & Wake, M.
(in press). Changes in body mass index and health related quality of life from childhood to
adolescence. International Journal of Pediatric Obesity.
Bilgiç, O., Bilgiç, A., Akiş, H.K., Eskioğlu, F., & Kiliç, E.Z. (in press). Depression, anxiety and
health-related quality of life in children and adolescents with vitiligo. Clinical and experimental
dermatology.
Hamidah, A., Wong, C.Y., Tamil, A.M., Zarina, L.A., Zulkifli, Z.S., & Jamal, R. (in press).
Health-related quality of life (HRQOL) among pediatric leukemia patients in Malaysia. Pediatric
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Stephen, M.D., Varni, J.W., Limbers, C.A., Yafi, M., Heptulla, R.A., Renukuntla, V.S., Bell, C.S.,
& Brosnan, P.G. (2011). Health-related quality of life and cognitive functioning in pediatric short
stature: Comparison of growth hormone naive, growth hormone treated, and healthy samples.
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Jafari, P., Ghanizadeh, A., Akhondzadeh, S., & Mohammadi, M.R. (2011). Health-related quality
of life of Iranian children with attention deficit/hyperactivity disorder. Quality of Life Research,
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Gohar, S.F., Comito, M., Price, J., & Marchese, V. (2011). Feasibility and parent satisfaction of a
physical therapy intervention program for children with acute lymphoblastic leukemia in the first
6 months of medical treatment. Pediatric Blood & Cancer, 56, 799-804.
Coker, T.R., Elliott, M.N., Wallander, J.L., Cuccaro, P., Grunbaum, J.A., Corona, R., Saunders,
A.E., & Schuster, M.A. (2011). Association of family stressful life-change events and health-
related quality of life in fifth-grade children. Archives of Pediatrics and Adolescent Medicine,
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Ratheesh, A., Srinath, S., Reddy, Y.C., Girimaji, S.C., Seshadri, S.P., Thennarasu, K., & Hutin, Y.
(2011). Are anxiety disorders associated with a more severe form of bipolar disorder in
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Sharifah, W.W., Nur, H.H., Ruzita, A.T., Roslee, R., & Reilly, J.J. (2011). The Malaysian
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Tanir, M.K., & Kuguoglu, S. (2011). Turkish validity and reliability of a pediatric quality of life
cancer module for children aged 8-12 and parents. Asian Pacific Journal of Cancer Prevention,
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Sherman-Bien, S., Malcarne, V.L., Roesch, S., Varni, J.W., & Katz, E.R. (2011). Quantifying the
relationship between hospital design, satisfaction, and psychosocial functioning in a pediatric
hematology-oncology inpatient unit. Health Environments Research & Design Journal (HERD),
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Amiri, P., Ardakani, E.M., Jalali-Farahani, S., Hosseinpanah, F., Varni, J.W., Ghofranipour, F.,
Montazeri, A., & Azizi, F. (2010). Reliability and validity of the Iranian version of the Pediatric
Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Quality of Life Research, 19,
1501–1508.
Stevanović, D., Lakić, A., & Damnjanović, M. (in press). Some psychometric properties of the
Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales (PedsQL™) in the general
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Wade, T.J., & Guo, J.J. (2010). Linking improvements in health-related quality of life to
reductions in Medicaid costs among students who use school-based health centers. American
Journal of Public Health, 100, 1611-1616.
Naiboğlu, B., Külekçi, S., Kalaycık, C., Sheidaei, S., Toros, S.Z., & Egeli, E. (2010).
Improvement in quality of life by adenotonsillectomy in children with adenotonsillar disease.
Clinical Otolaryngology, 35, 383-389.
Du, R.Y., McGrath, C., Yiu, C.K., & King N.M. (in press). Health and oral health-related quality
of life among preschool children with cerebral palsy. Quality of Life Research.
Tahirović, E., Begić, H., Tahirović, H., & Varni, J.W. (2011). Quality of life in children after
cardiac surgery for congenital heart disease. Collegium Antropologicum, 35, 1285-1290.
Marciano, R.C., Bouissou Soares, C.M., Diniz, J.S., Lima, E.M., Silva, J.M., Canhestro, M.R.,
Gazzinelli, A., Melo, C.C., Dias, C.S., Simões, E., Silva, A.C., Correa, H., & Oliveira, E.A.
(2011). Behavioral disorders and low quality of life in children and adolescents with chronic
kidney disease. Pediatric Nephrology, 26, 281-290.
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Kalyva, E., Malakonaki, E., Eiser, C., & Mamoulakis, D. (2011). Health-related quality of life
(HRQoL) of children with type 1 diabetes mellitus (T1DM): Self and parental perceptions.
Pediatric Diabetes, 12, 34-40
Schurman, J.V., Cushing, C.C., Carpenter, E., & Christenson, K. (2011). Volitional and accidental
nonadherence to pediatric inflammatory bowel disease treatment plans: Initial investigation of
associations with quality of life and disease activity. Journal of Pediatric Psychology, 36, 116-
125.
Bulder, M.M., Hellmann, P.M., van Nieuwenhuizen, O., Kappelle, L.J., Klijn, C.J., & Braun K.P.
(2011). Measuring outcome after arterial ischemic stroke in childhood with two different
instruments. Cerebrovascular Diseases, 32, 463-470.
Umansky, A.M., Jeffe, D.B., & Lieu, J.E. (2011). The HEAR-QL: Quality of life questionnaire
for children with hearing loss. Journal of the American Academy of Audiology, 22, 644-653.
Ingerski, L.M., Laffel, L., Drotar, D., Repaske, D., & Hood, K.K. (2010). Correlates of glycemic
control and quality of life outcomes in adolescents with type 1 diabetes. Pediatric Diabetes, 11,
563–571.
Lau, J.T., Yu, X.N., Chu., Y., Shing, M.M., Wong, E.M., Leung, T.F., Li, C.K., Fok, T.F., & Mak,
W.W. (2010). Validation of the Chinese version of the Pediatric Quality of Life Inventory™
(PedsQL™) Cancer Module. Journal of Pediatric Psychology, 35, 99-109.
Collett, B.R., Cloonan, Y.K., Speltz, M.L., & Anderka, M. (in press). Psychosocial functioning in
children with and without orofacial clefts and their parents. Cleft Palate-Craniofacial Journal.
Riazi, A., Shakoor, S., Dundas, I., Eiser, C., McKenzie, S.A. (2010). Health-related quality of life
in a clinical sample of obese children and adolescents. Health and Quality of Life Outcomes,
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Surapolchai, P., Satayasai, W., Sinlapamongkolkul, P., & Udomsubpayakul, U. (2010).
Biopsychosocial predictors of health-related quality of life in children with thalassemia in
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Rajendran, V., & Glory Roy, F. (in press). Comparison of health related quality of life of primary
school deaf children with and without motor impairment. Italian Journal of Pediatrics.
Penn, A., Shortman, R.I., Lowis, S.P., Stevens, M.C., Hunt, L.P., McCarter, R.J., Curran, A.L., &
Sharples, P.M. (2010). Child-related determinants of health-related quality of life in children with
brain tumors 1 year after diagnosis. Pediatric Blood and Cancer, 55, 1377-1385.
Jia, Z., Shi, L., Cao, Y., Delancey, J., & Tian, W. (in press). Health-related quality of life of "left-
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Kunz, J.H., Hommel, K.A., & Greenley, R.N. (in press). Health-related quality of life of youth
with inflammatory bowel disease: A comparison with published data using the PedsQL 4.0
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Banerjee, T., Pensi, T., & Banerjee, D. (in press). HRQoL in HIV-infected children using PedsQL
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Kuhlthau, K., Orlich, F., Hall, T.A., Sikora, D., Kovacs, E.A., Delahaye, J., & Clemons, T.E.
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Collett, B., Cloonan, Y., Speltz, M., Anderka, M., & Werler, M. (in press). Psychosocial
functioning in children with and without orofacial clefts and their parents. Cleft Palate
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Gabbe, B.J., Simpson, P.M., Sutherland, A.M., Palmer, C.S., Butt, W., Bevan, C., & Cameron,
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of time postinjury. Journal of Trauma, 69, 1578-1582.
Edmond, K., Dieye, Y., Griffiths, U.K., Fleming, J., Ba, O., Diallo, N., & Mulholland, K. (2010).
Prospective cohort study of disabling sequelae and quality of life in children with bacterial
meningitis in Urban Senegal. Pediatric Infectious Disease Journal, 29,
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Dunaway, S., Montes, J., Montgomery, M., Battista, V., Koo, B., Marra, J., De Vivo, D.C., Hynan,
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PedsQL™ Generic Quality of Life Inventory™ and Neuromuscular Module™ in spinal muscular
atrophy (SMA). Neuromuscular Disorders, 20, 162-165.
Klaassen, R.J., Krahn, M., Gaboury, I., Hughes, J., Anderson, R., Grundy, P., Ali, S.K., Jardine,
L., Abla, O., Silva, M., Barnard, D., & Cappelli M. (2010). Evaluating the ability to detect
change of health-related quality of life in children with Hodgkin disease. Cancer, 116, 1608-1614.
Klaassen, R.J., Barr, R.D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S.K., Yanofsky,
R., Abla, O., Silva, M., Carret, A.S., & Cappelli, M. (2010). Nurses provide valuable proxy
assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116,
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Alonso, E.M., Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., & Varni, J.W.
(2010). Cross-sectional analysis of health-related quality of life in pediatric liver transplant
recipients. Journal of Pediatrics, 156, 270-276.
Ingerski, L.M., Modi, A.C., Hood, K.K., Pai, A.L., Zeller, M., Piazza-Waggoner, C., Driscoll,
K.A., Rothenberg, M.E., Franciosi, J.F., & Hommel, K.A. (2010). Health-related quality of life
across pediatric chronic conditions. Journal of Pediatrics, 156, 639-644.
Mowry, E.M, Julian, L.J, Im-Wang, S., Chabas, D., Galvin, A.J., Strober, J.B., & Waubant, E.
(2010). Health-related quality of life is reduced in pediatric multiple sclerosis. Pediatric
Neurology, 43, 97-102.
Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., Smith-Whitley, K., &
Wang, W. (2010). Health-related quality of life in children with sickle cell disease: A report from
the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatric Blood & Cancer, 55,
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Langley, R.G., Paller, A.S., Hebert, A.A., Creamer, K., Weng, H.H., Jahreis, A., Globe, D., Patel,
V., & Orlow, S.J. (in press). Patient-reported outcomes in pediatric patients with psoriasis
undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial.
Journal of the American Academy of Dermatology.
Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C.
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Pogorzala, M., Styczynski, J., Kurylak, A., Debski, R., Wojtkiewicz, M., & Wysocki, M. (2010).
Health-related quality of life among pediatric survivors of primary brain tumors and acute
leukemia. Quality of Life Research, 19, 191–198.
Roumelioti, M.E., Wentz, A., Schneider, M.F., Gerson, A.C., Hooper, S., Benfield, M., Warady,
B.A., Furth, S.L., & Unruh, M.L. (2010). Sleep and fatigue symptoms in children and adolescents
with CKD: A cross-sectional analysis from the Chronic Kidney Disease in Children (CKiD)
Study. American Journal of Kidney Diseases, 55, 269-280.
Gerson, A.C., Wentz, A., Abraham, A.G., Mendley, S.R., Hooper, S.R., Butler, R.W., Gipson,
D.S., Lande, M.B., Shinnar, S., Moxey-Mims, M.M., Warady, B.A., & Furth S.L. (2010). Health-
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life measures after anesthesia for tonsillectomy or ear tube insertion in children. Paediatric
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Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (2010). Development of
the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module. Health
and Quality of Life Outcomes, 8:38, 1-14.
de Wit, M., Delemarre-van de Waal, H.A., Bokma, J.A., Haasnoot, K., Houdijk, M.C., Gemke,
R.J., & Snoek, F.J. (2010). Follow-up results on monitoring and discussing health-related quality
of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes,
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Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams,
A., Pollock-Barziv, S.M. (2010). Child and parental perspectives of multidimensional quality of
life outcomes after kidney transplantation. Pediatric Transplantation, 14, 249–256.
Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2010). The effect of parental mental health
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Blood & Cancer, 55, 714–721.
Lloyd, A., Swinburn, P., Boye, K.S., Curtis, B., Sarpong, E., Goldsmith, K., Bode, B., & Aronoff,
S. (2010). A valuation of infusion therapy to preserve islet function in type 1 diabetes. Value in
Health, 13, 636-642.
Wen, G., McKean-Cowdin, R., Varma, R., Tarczy-Hornoch, K., Cotter, S.A., Borchert, M., &
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McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press).
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Bray P., Bundy, A.C., Ryan, M.M., North, K.M., & Everett, A. (in press). Health-related quality
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Punpanich, W., Boon-Yasidhi, V., Chokephaibulkit, K., Prasitsuebsai, W., Chantbuddhiwet, U.,
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parent proxy reports of health-related quality of life in ambulatory children with Duchenne
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Seid, M., Varni, J.W., Gidwani, P., Gelhard, L.R, & Slymen, D.J. (2010). Problem-solving skills
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Nyame, Y.A., Ambrosy, A.P., Saps, M., Adams, P.N., Dhroove, G.N., & Suresh, S. (2010).
Recurrent headaches in children: An epidemiological survey of two middle schools in inner city
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Xu, C., Jackson, M., Scuffham, P.A., Wootton, R., Simpson, P., Whitty, J., Wolfe, R., &
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Ab Rahman, A., Ariffin, N.H., Musa, K.I., Wan Ibrahim, W.P., Ibrahim, M.I., Othman,
A., Abd Aziz, A., Harith, S., Abd Rahman, N., & Van Rostenberghe H. (2011). A preliminary
study on the reliability of the Malay version of the Quality of Life Inventory ™ Version 4.0
(PEDSQL) Generic Core Scales among children with disabilities in Kelantan, Malaysia: Parent-
proxy report. International Journal of Collaborative Research on Internal Medicine & Public
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Ab Rahman, A. Mohamad, N., Musa, K.I., Ibrahim, W.P.W., Othman, A., Harith, S., Ibrahim,
M.I., Ariffin, N.H., & Van Rostenberghe, H. (2011). A preliminary study on the reliability of the
Malay version of PedsQL™ Family Impact Module among caregivers of children with
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Garma, S.I., Kelly, E.H., Daharsh, E.Z., & Vogel, L.C. (2011). Health-related quality of life after
pediatric spinal cord injury. Journal of Pediatric Psychology, 36, 226-236.
Moon, R.J., Sutton, T., Wilson, P.M., Kirkham, F.J., & Davies, J.H. (in press). Pituitary function
at long-term follow up of childhood traumatic brain injury. Journal of Neurotrauma.
Gorzkowski, J.A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Girls with spinal cord injury:
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Boyle, S.E., Jones, G.L., & Walters, S.J. (in press). Physical activity, quality of life, weight status
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Clarke, S.A., Skinner, R., Guest, J., Darbyshire, P., Cooper, J., Shah, F., Roberts, I., & Eiser, C.
(in press). Health-related quality of life and financial impact of caring for a child with
Thalassaemia Major in the UK. Child: Care, Health and Development.
Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children:
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Natesan, P., Limbers, C.A., & Varni, J.W. (2010). Bayesian estimation of graded response
multilevel models using Gibbs sampling: Formulation and illustration. Educational and
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Lima, L., Guerra, M.P., & de Lemos, M.S. (2010). The psychological adjustment of children with
asthma: Study of associated variables. Spanish Journal of Psychology, 13, 353-363.
Irwin, D.E., Stucky, B.D., Thissen, D., DeWitt, E.M., Lai, J.S., Yeatts, K., Varni, J.W., & DeWalt,
D.A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale
survey. Quality of Life Research, 19, 585-594.
Kistler, K.D., Molleston, J., Unalp, A., Abrams, S.H., Behling, C., & Schwimmer, J.B. (2010).
Symptoms and quality of life in obese children and adolescents with nonalcoholic fatty liver
disease. Alimentary Pharmacology & Therapeutics, 31, 396–406.
Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a
multidiagnosis group of special needs children: Associations and costs. International Journal of
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Berkes, A., Pataki, I., Kiss, M., Kemény, C., Kardos, L., Varni, J.W., & Mogyorósy, G. (2010).
Measuring health-related quality of life in Hungarian children with heart disease: Psychometric
properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core
Scales and the Cardiac Module. Health and Quality of Life Outcomes, 8:14, 1-12.
Malone, L.A., & Vogtle, L.K. (in press). Pain and fatigue consistency in adults with cerebral
palsy. Disability and Rehabilitation.
Kernick, D., Reinhold, D., Campbell, J.L. (in press). Impact of headache on young people in a
school population. British Journal of General Practice.
O'Neil, M.E., Shewokis, P.A., Falkenstein, K.K., Delago, C.W., Smith, S.A., Vaughn, N., &
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are overweight or obese. Obesity.
Peng, Y.F., & Cheng, Q. (2010). Validity and reliability of the Chinese version of Pediatric
Quality of Life Inventory Version 3.0 Asthma Module. Zhongguo Dang Dai Er Ke Za Zhi, 12,
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Moorthy, L.N., Peterson, M.G., Hassett, A., Baratelli, M., & Lehman, T.J. (in press). Impact of
lupus on school attendance and performance. Lupus.
Svavarsdottir, E.K., Burkhart, P.V., Rayens, M.K., Orlygsdottir, B., & Oakley, M.G. (in press).
Icelandic and United States families of adolescents with asthma: predictors of health-related
quality of life from the parents' perspective. Journal of Clinical Nursing.
Ostbye, T., Malhotra, R., Wong, H.B., Tan. S.B., & Saw, S.M. (in press). The effect of body mass
on health-related quality of life among Singaporean adolescents: Results from the SCORM study.
Das, S., Mukherjee, A., Lodha, R., & Vatsa, M. (in press). Quality of life and psychosocial
functioning of HIV infected children. Indian Journal of Pediatrics.
Cummings, A.J., Knibb, R.C., Erlewyn-Lajeunesse, M., King, R.M., Roberts, G., & Lucas, J.S.
(2010). Management of nut allergy influences quality of life and anxiety in children and their
mothers. Pediatric Allergy and Immunology, 21, 586-594.
Noyes, J.P., Williams, A., Allen, D., Brocklehurst, P., Carter, C., Gregory, J.W., Jackson, C.,
Lewis, M., Lowes, L., Russell, I.T., Rycroft-Malone, J., Sharp, J., Samuels, M., Tudor Edwards,
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R., & Whitaker, R. (in press). Evidence into practice: evaluating a child-centred intervention for
diabetes medicine management The EPIC Project. BMC Pediatrics.
Xu, T., Wu, Z., Yan, Z., Rou, K., & Duan, S. (2010). Measuring health-related quality of life in
children living in HIV/AIDS-affected families in rural areas in Yunnan, China: Preliminary
reliability and validity of the Chinese version of PedsQL 4.0 Generic Core Scales. Journal of
Acquired Immune Deficiency Syndromes, 53, Suppl 1:S111-115.
Holterman, A.X., Browne, A., Tussing, L., Gomez, S., Phipps, A., Browne, N., Stahl, C., &
Holterman, M.J. (2010). A prospective trial for laparoscopic adjustable gastric banding in
morbidly obese adolescents: An interim report of weight loss, metabolic and quality of life
outcomes. Journal of Pediatric Surgery, 45, 74-79.
Soyupek, F., Aktepe, E., Savas, S., & Askin, A. (in press). Do the self-concept and quality of life
decrease in CP patients? Focusing on the predictors of self-concept and quality of life. Disability
and Rehabilitation.
Pek, J.H., Chan, Y.H., Yeoh, A.E., Quah, T.C., Tan, P.L., & Aung. L. (2010). Health-related
quality of life in children with cancer undergoing treatment: A first look at the Singapore
experience. Annals of the Academy of Medicine, Singapore, 39, 43-6.
Laaksonen, C.B., Aromaa, M.E., Asanti, R.E., Heinonen, O.J., Koivusilta, L.K., Koski, P.J.,
Suominen, S.B., Vahlberg, T.J., & Salanterä, S. (in press). The change of child self-assessed and
parent proxy-assessed Health Related Quality of Life (HRQL) in early adolescence (age 10-12).
Scandinavian Journal of Public Health.
Paulsen, E.K., Friedman, L.S., Myers, L.M., & Lynch, D.R. (2010). Health-related quality of life
in children with Friedreich ataxia. Pediatric Neurology, 42, 335-337.
McCarty, R.L., Weber, W.J., Loots, B., Breuner, C.C., Vander Stoep, A., Manhart, L., & Pihoker,
C. (in press). Complementary and alternative medicine use and quality of life in pediatric
diabetes. Journal of Alternative and Complementary Medicine.
Cotton, S., Humenay Roberts, Y., Tsevat, J., Britto, M.T., Succop, P., McGrady, M.E., & Yi, M.S.
(2010). Mind-body complementary alternative medicine use and quality of life in adolescents
with inflammatory bowel disease. Inflammatory Bowel Diseases, 16, 501–506.
Norris, J.M., Moules, N., Pelletier, G., & Culos-Reed, S.N. (in press). Families of young pediatric
cancer survivors: A cross-sectional survey examining physical activity behavior and health-
related quality of life. Journal of Pediatric Oncology Nursing.
Areemit, R.S., Katzman, D.K., Pinhas, L., & Kaufman, M. (in press). The experience of siblings
of adolescents with eating disorders. Journal of Adolescent Health.
Berkes, A., Varni, J.W., Pataki, I., Kardos, L., Kemény, C., & Mogyorósy, G. (2010). Measuring
health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric
Quality of Life Inventory. European Journal of Pediatrics, 169, 333–347.
Tahirović, E., Begić, H., Nurkić, M., Tahirović, H., & Varni, J.W. (2010). Does the severity of
congenital heart defects affect disease-specific health-related quality of life in children in Bosnia
and Herzegovina? European Journal of Pediatrics, 169, 349–353.
Looman W.S., Thurmes, A.K., & O'Conner-Von, S.K. (2010) Quality of life among children with
velocardiofacial syndrome. Cleft Palate-Craniofacial Journal, 47, 273-283.
Strieper, M., Leong, T., Bajaj, T., Huckaby, J., Frias, P., & Campbell, R. (2010). Does ablation of
supraventricular tachycardia in children with a structurally normal heart improve quality of life?
Congenital Heart Disease, 5, 587-593.
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Yamada, T., Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Health-related quality of life in
parents of children with intermittent exotropia. Journal of the American Association for Pediatric
Ophthalmology and Strabismus.
Knapp, C.A., Madden, V.L., Curtis, C.M., Sloyer, P., & Shenkman, E.A. (2010). Family support
in pediatric palliative care: How are families impacted by their children’s illnesses? Journal of
Palliative Medicine, 13, 1-6.
Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol,
B.O. (2010). Factors affecting health-related quality of life in Thai children with thalassemia.
BMC Blood Disorders, 10:1, 1-10.
Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (2010). Quality of life of children living in
HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care, 22, 390-396.
Rivas, M.B.V., & Gómez-Maqueo, M.E.L (2010). Psychometric properties of the Paediatric Life
Quality Inventory, versión 4.0, in Mexican adolescents. Psicología y Salud, 20, 5-12.
Postans , N., Wright , P., Bromwich, W., Wilkinson , I., Farmer , S.E., & Swain, I. (2010). The
combined effect of dynamic splinting and neuromuscular electrical stimulation in reducing wrist
and elbow contractures in six children with cerebral palsy. Prosthetics and Orthotics International,
34, 10-19.
Simons, L., Logan, D., Chastain, L., & Stein, M. (2010). The relation of social functioning to
school impairment among adolescents with chronic pain. Clinical Journal of Pain, 26, 16-22.
Erickson, S.J., Montague, E.Q., & Gerstle, M.A. (2010). Health-related quality of life in children
with moderate-to-severe traumatic brain injury. Developmental Neurorehabilitation, 13,175-81.
Bomba, M., Nacinovich, R., Oggiano, S., Cassani, M., Baushi, L., Bertulli, C., Longhi, D.,
Coppini, S., Parrinello, G., Plebani, A., & Badolato R. (2010). Poor health-related quality of life
and abnormal psychosocial adjustment in Italian children with perinatal HIV infection receiving
highly active antiretroviral treatment. AIDS Care, 22, 858-865.
Boles, R.E., Scharf, C.S., & Stark, L.J. (2010). Developing a treatment program for obesity in
preschool-age children: Preliminary data. Children’s Health Care, 39, 34–58.
Lyon, M.E., Garvie, P.A., Briggs, L., He, J., Malow, R., D’Angelo, L.J., & McCarter, R. (2010).
Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of
Family Centered Advance Care (FACE) planning – Anxiety, depression, quality of life HIV/AIDS
- Research and Palliative Care, 2, 27–37.
Modi, A.C., Lim, C.S., Driscoll, K.A., Piazza-Waggoner, C., Quittner, A.L., & Wooldridge, J.
(2010). Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic
treatment for pulmonary exacerbations. Journal of Clinical Psychology in Medical Settings, 17,
49–55.
Chandra, A., Lara-Cinisomo, S., Jaycox, L.H., Tanielian, T., Burns, R.M., Ruder, T., & Han, B.
(2010). Children on the homefront: The experience of children from military families. Pediatrics,
125, 16-25.
Klatchoian, D.A., Len, C.A., Terreri, M.T., & Hilário, M.O. (2010). Quality of life among
children from São Paulo, Brazil: The impact of demographic, family and socioeconomic
variables. Cadernos de Saúde Pública, 26, 631-636.
Poeta, L.S., Duarte, Mde. F., & Giuliano, Ide. C. (2010). Health-related quality of life of obese
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D.S., Ollis, S., Thomas, N.E., & Baker. J.S. (2010). The influence of a high intensity physical
activity intervention on a selection of health related outcomes: an ecological approach. BMC
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Lee, G.H., McGrath, C., Yiu, C.K., & King, N.M. (in press). A comparison of a generic and oral
health-specific measure in assessing the impact of early childhood caries on quality of life.
Community Dentistry and Oral Epidemiology.
Dinomais, M., Gambart, G., Bruneau, A., Bontoux, L., Deries, X., Tessiot, C., & Richard, I.
(2010). Social functioning and self-esteem in young people with disabilities participating in
adapted competitive sport. Neuropediatrics, 41, 49-54.
Becker, E., & Dusing, S. (2010). Participation is possible: A case report of integration into a
community performing arts program. Physiotherapy Theory and Practice, 26, 275-280.
Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Comparison of quality-of-life instruments in
childhood intermittent exotropia. Journal of the American Association for Pediatric
Ophthalmology and Strabismus.
Tahirović, E., Begić, H., Sutović, A., & Tahirović H. (2010). Impact of the family socioeconomic
status on health related quality of life in children operated on for congenital heart defects. (Article
in Croatian). Acta Medica Croatica, 64, 9-16.
Krishna, Y.R., Yachha, S.K., Srivastava, A., Negi, D., Lal, R., & Poddar, U. (2010). Quality of
life in children managed for extrahepatic portal venous obstruction. Journal of Pediatric
Gastroenterology and Nutrition, 50, 531-536.
Huang, I.C., Shenkman, E.A., Madden, V.L., Vadaparampil, S., Quinn, G., & Knapp, C.A. (2010).
Measuring quality of life in pediatric palliative care: Challenges and potential solutions. Palliative
Medicine, 24, 175–182.
Huang, I.C., Thompson, L.A., Chi, Y.Y., Knapp, C.A., Revicki, D.A., Seid, M., & Shenkman,
E.A. (2009). The linkage between pediatric quality of life and health conditions: Establishing
clinically meaningful cutoff scores for the PedsQL™. Value in Health, 12, 773-781.
Macallister, W.S., Christodoulou, C., Troxell, R., Milazzo, M., Block, P., Preston, T.E., Bender,
H.A., Belman, A., & Krupp, L.B. (2009). Fatigue and quality of life in pediatric multiple
sclerosis. Multiple Sclerosis, 15, 1502-1508.
Izquierdo, R., Morin, P.C., Bratt, K., Moreau, Z., Meyer, S., Ploutz-Snyder, R., Wade, M., &
Weinstock, R.S. (2009). School-centered telemedicine for children with Type 1 diabetes mellitus.
Dodson, J.L., Cohn, S.E., Cox, C., Hmiel, P.S., Wood, E., Mattoo, T.K., Warady, B.A., & Furth,
S.L. (2009). Urinary Incontinence in the CKiD cohort and health related quality of life. Journal of
Urology, 182 (4 Suppl), 2007-2014.
Petersen, S., Hägglöf, B.L., & Bergström, E.I. (2009). Impaired health-related quality of life in
children with recurrent pain. Pediatrics, 124, e759-e767.
Manlhiot, C., Knezevich, S., Radojewski, E., Cullen-Dean, G., Williams, W.G., & McCrindle,
B.W. (in press). Functional health status of adolescents after the Fontan procedure: Comparison
with their siblings. Canadian Journal of Cardiology.
Montpetit, K., Hamdy, R.C., Dahan-Oliel, N., Zhang, X., & Narayanan, U.G. (2009).
Measurement of health-related quality of life in children undergoing external fixator treatment for
lower limb deformities. Journal of Pediatric Orthopedics, 29, 920-926.
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Gorton, G.E., Abel, M.F., Oeffinger, D.J., Bagley, A., Rogers, S.P., Damiano, D., Romness, M., &
Tylkowski, C. (2009). A prospective cohort study of the effects of lower extremity orthopaedic
surgery on outcome measures in ambulatory children with cerebral palsy. Journal of Pediatric
Orthopedics, 29, 903-909.
Hamdy R.C., Montpetit, K., Raney, E.M., Aiona, M.D., Fillman, R.R., MacKenzie, W.,
McCarthy, J., Chafetz, R.S., Thomas, S.S., Tamayo, C.M., Littleton, A.G., Ruck-Gibis, J.,
Takahashi, S.N., Rinaldi, M., Finley, G.A., Platt, R.W., & Dahan-Oliel, N. (2009). Botulinum
toxin type A injection in alleviating postoperative pain and improving quality of life in lower
extremity limb lengthening and deformity correction: A pilot study. Journal of Pediatric
Orthopedics, 29, 427-434.
Modi, A.C., King, A.S., Monahan, S.R., Koumoutsos, J.E., Morita, D.A., & Glauser, T.A. (2009).
Even a single seizure negatively impacts pediatric health-related quality of life. Epilepsia, 50,
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Feichtl, R.E., Rosenfeld, B., Tallamy, B., Cairo, M.S., & Sands, S.A. (in press). Concordance of
quality of life assessments following pediatric hematopoietic stem cell transplantation. Psycho-
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Damiano, D.L., Arnold, A.S., Steele, K.M., & Delp, S.L. (in press). Can strength training
predictably improve gait kinematics? A pilot study on the effects of hip and knee extensor
strengthening on lower-extremity alignment in cerebral palsy. Physical Therapy.
Brandsema J.F., Stephens, D., Hartley, J., & Yoon, G. (2010). Intermediate-dose idebenone and
quality of life in Friedreich ataxia. Pediatric Neurology, 42, 338-342.
Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (in press). Development of the Child's
Challenging Behaviour Scale (CCBS) for mothers of school-aged children with disabilities.
Child: Care, Health and Development.
Hamiwka, L.A., Cantell, M., Crawford, S., & Clark, C. G. (2009). Physical activity and health
related quality of life in children following kidney transplantation. Pediatric Transplantation, 13,
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Allan, C.L., Flett, B., & Dean, H.J. (2008). Quality of life in First Nation youth with type 2
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Matziou, V., Perdikaris, P., Feloni, D., Moshovi, M., Tsoumakas, K., & Merkouris, A. (in press).
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Soresina, A., Nacinovich, R., Bomba, M., Cassani, M., Molinaro, A. et al. (in press). The quality
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Gkoltsiou, K., Dimitrakaki, C., Tzavara, C., Papaevangelou, V., Varni, J.W., Tountas, Y. (2008).
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Kook, S.H., & Varni, J.W. (2008). Validation of the Korean version of the Pediatric Quality of
Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in school children and adolescents using
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Felder-Puig, R., Baumgartner, M., Topf, R., Gadner, H., & Formann, A.K. (2008). Health-related
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Felder-Puig, R., Topf, R., Gadner, H., & Formann, A.K. (2008). Measuring health-related quality
of life in children from different perspectives using the Pediatric Quality of Life Inventory™
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Janssens, L. Gorter, J.W., Ketelaar, M., Kramer, W.L., Holtslag, H.R. (2008). Health-related
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Wood, L.J., Sherman, E., Hamiwka, L.D., Blackman, M., & Wirrel. E. (2008). Depression,
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Penn, A., Lowis, S.P., Hunt, L.P., Shortman, R.I., Stevens, M.C., McCarter, R.L., Curran, A.L., &
Sharpies, P.M. (2008). Health related quality of life in the first year after diagnosis in children
with brain tumors compared with matched healthy controls: A prospective longitudinal study.
European Journal of Cancer, 44, 1243-1252.
Laaksonen, C., Aromaa, M., Heinonen, O.J., Koivusilta, L., Koski, P., Suominen, S., Vahlberg, T.,
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Russo, R.N., Miller, M.D., Haan, F., Cameron, I.D., & Crotty, M. (2008). Pain characteristics and
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Maher, C.A., Olds, T., Williams, M.T., & Lane, A.E. (2008). Self-reported quality of life in
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Clarke, M.C., Chow, C.S., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2008). Quality
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De Bolle, M., De Clercq, B., De Fruyt, F., & Benoit, Y. (2008). Self and parental perspectives on
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Lampard, A.M., Byrne, S.M., Zubrick, S.R., & Davis, E.A. (2008). Parents’ concern about their
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Langer, M.M., Hill, C.D., Thissen, D., Burwinkle, T.M., Varni, J.W., & DeWalt, D.A. (2008).
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Perrin, J.M., Kuhlthau, K., Chughtai, A., Romm, D. Kirschener, B.S., Ferry G.D., Cohen, S.A.,
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Carno, M.A., Ellis, E., Anson, E., Kraus, R., Black, J., Short, R., & Connolly, H.V. (2008).
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Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Ramos-Jorge, M.L., Varni, J.W., & Allison, P.J.
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Huguet, A., & Miro, J. (2008). Development and psychometric evaluation of a Catalan self- and
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de Geurts, M.A., van Litsenburg, R.R., Huisman, J., Grootenhuis, M.A., Versluys, B.A., Kaspers,
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Newcombe, P.A., Sheffield, J.K., Juniper, E.F., Marchant, J.M., Halsted, R.A., Masters, I.B., &
Chang, A.B. (2008). Development of a parent-proxy quality of life chronic cough-specific
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Lau, L., Stuurman, K., & Weitzman, S. (2008). Skeletal langerhans cell histiocytosis in children:
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and Cancer, 50, 607-612.
Oeffinger, D., Bagley, A., Rogers, S., Gorton, G., Kryscio, R., Abel, M., Damiano, D., Barnes, D.,
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Winner, P. (2008) Pediatric headache. Current Opinion in Neurology, 21, 316-322.
Chiang, Y.C., Hinds, P.S., Yeh, C.H., & Yang, C.P. (2008). Development and psychometric testing
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Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J.W. (2007). Reliability and validity of
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Fullerton, G., Tyler, C., Johnston, C.A., Vincent, J.P., Harris, G.E., & Foreyt, J.P. (2007). Quality
of life in Mexican-American children following a weight management program. Obesity, 15,
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Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Power, M., Duer, W., Auquier, P.,
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The Kidscreen-52 quality of life measure for children and adolescents. Psychometric results from
a cross-sectional survey in 13 European countries. Value in Health, 11, 645-658.
Reinfjell, T., Lofstad, G.E., Veenstra, M., Vikan, A., & Diseth, T.H. (2007). Health-related quality
of life and intellectual functioning in children in remission from acute lymphoblastic leukaemia.
Acta Paediatrica, 96, 1280-1285.
Hill, C.D., Edwards, M.C., Thissen, D., Langer, M.M., Wirth, R.J., Burwinkle, T.M., & Varni,
J.W. (2007). Practical issues in the application of item response theory: A demonstration using
items from the Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 Generic Core Scales.
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Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J.G., Russell, I.T.,
Jackson, S., & Jenney, M.E.M. (2008). Development of a parent version of the Manchester-
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Cuomo, A.V., Gamradt, S.C., Kim, C.O., Pirpiris, M., Gates, P.E., McCarthy, J.J. & Otsuka, N.Y.
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Gurney, J.G., Tersak, J.M., Ness, K.K., Landier, W., Matthay, K.K., & Schmidt, M.L. (2007).
Hearing loss, quality of life, and academic problems in long-term neuroblastoma survivors: A
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Josie, K.L., Greenley, R.N., & Drotar, D. (2007). Health-related quality of life measures for
children with asthma: Reliability and validity of the Children’s Health Survey for Asthma and the
Pediatric Quality of Life Inventory 3.0 Asthma Module. Annals of Allergy, Asthma and
Immunology, 98, 218-224.
Holterman, A.X., Browne, A., Dillard, B.E., Tussing, L., Gorodner, V., Stahl, C., Browne, N.,
Labott, S., Herdegen, J., Guzman, G., Rink, A., Nwaffo, I., Galvani, C., Horgan, S., & Holterman,
M. (2007). Short-term outcome in the first 10 morbidly obese adolescent patients in the FDA-
approved trial for Laparoscopic adjustable gastric banding. Journal of Pediatric Gastroenterology
and Nutrition, 45, 465-473.
Varni, J.W., Burwinkle, T.M., Limbers, C.A., & Szer, I.S. (2007). The PedsQL™ as a patient-
reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT
domains. Health and Quality of Life Outcomes, 5:9, 1-12.
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Literature review: Health-related quality
of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric
Psychology, 32, 1151-1163.
Vetter, T.R. (2007). A primer on health-related quality of life in chronic pain medicine. Anesthesia
and Analgesia, 104, 703-718.
Majnemer, A., Shevell, M., Rosenbaum, P., Law. M., & Poulin, C. (2007). Determinants of life
quality in school-age children with cerebral palsy. Journal of Pediatrics, 151, 470-475.
Laplant, M.M., Adams, B.S., Haftel, H.M., & Chervin, R.D. (in press). Insomnia and quality of
life in children referred for limb pain. Journal of Rheumatology.
Bitsko, M.J., Stern, M., Dillon, R., Russell, E.C., & Laver, J. (in press). Happiness and time
perspective as potential mediators of quality of life and depression in adolescent cancer. Pediatric
Blood and Cancer.
Abresch, R.T., McDonald, D.A., Widman, L.M., McGinnis, K., & Hickey, K.J. (2007). Impact of
spinal cord dysfunction and obesity on the health-related quality of life of children and
adolescents. Journal of Spinal Cord Medicine, 30, S112-S118.
Janicke, D.M., Marciel, K.K., Ingerski, L.M., Novoa, W., Lowry, K.W., Sallinen, B.J., &
Silverstein, J.H. (2007). Impact of psychosocial factors on quality of life in overweight youth.
Obesity, 15, 1799-1807.
Murphy, H.R., Wadham, C. Rayman, G., & Skinner, T.C. (in press). Approaches to integrating
paediatric diabetes care and structured education: Experiences from the Families, Adolescents,
and Children’s Teamwork Study (FACTS). Diabetes Medicine.
Storch, E.A., Merlo, L.J., Lack, C., Milsom, V.A., Geffken, G.R., Goodman, W.K., & Murphy,
T.K. (2007). Quality of life in youth with Tourette’s Syndrome and chronic tic disorder. Journal of
Clinical Child and Adolescent Psychology, 36, 217-227.
Damiano, P.C., Tyler, M.C., Romitti, P.A., Momany, E.T., Jones, M.P., Canady, J.W., Karnell,
M.P., & Murray, J.C. (2007). Health-related quality of life among preadolescent children with oral
clefts: The mother’s perspective. Pediatrics, 120, e283-e290.
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Cakin Memik, N., Agaoglu, B., Coskun, A.S., Uneri, O., & Karakaya, I. (2007) The validity and
reliability of the Turkish Pediatric Quality of Life Inventory for children 13-18 years old. Turk
Psikiyatri Derg (Turkish Journal of Psychiatry), 18, 353-363.
Packman, W., Henderson, S.L., Mehta, I., Ronen, R. Danner, D., Chesterman, B., & Packman, S.
(2007). Psychosocial issues in families affected by maple syrup urine disease. Journal of Genetic
Counseling,
Chung, P.J., Garfield, C.F., Elliott, M.N., Carey, C., Eriksson, C., & Schuster, M.A. (2007). Need
for and use of family leave among parents of children with special health care needs. Pediatrics,
119, e1047-e1055.
Hankins, J., Hinds, P., Day, S., Carroll, Y., Li, C.S., Garvie, P., & Wang, W. (2007). Therapy
preferences and decision-making among patients with severe sickle cell anemia and their
families. Pediatric Blood and Cancer, 48, 705-710.
Hiscock, H., Canterford, L., Ukoumunne, O.C., & Wake, M. (2007). Adverse associations of
sleep problems in Australian preschoolers: National population study. Pediatrics, 119, 865-93.
Berrin, S.J., Malcarne, V.L., Varni, J.W., Burwinkle, T.M., Sherman, S.A., Artavia, K., &
Chambers, H.G. (2007). Pain, fatigue, and school functioning in children with cerebral palsy: A
path-analytic model. Journal of Pediatric Psychology, 32, 330-337.
Laaksonen, C., Aromaa, M., Heinonen, O.J., Suominen, S., & Salantera, S. (2007). Pediatric
health-related quality of life instrument for primary school children: Cross-cultural validation.
Journal of Advanced Nursing, 59, 542-550.
Ingerski, L.M., Janicke, D.M., & Silverstein, J.H. (2007). Quality of life in overweight youth: The
role of multiple informants and perceived social support. Journal of Pediatric Psychology, 32,
869-874.
Hughes, A.R., Farewell, K., Harris, D., & Reilly, J.J. (2007). Quality of life in a clinical sample of
obese children. International Journal of Obesity, 31, 39-44.
Makari, J., Zaborskis, A., Labanauskas, L., & Rageliene, L. (2007). The quality of life of children
suffering from oncologic diseases in Lithuania. Medicina, 43, 726-735.
Lai, J.S., Cella, D., Kupst, M.J., Holm, S., Kelly, M.E., & Bode, R.K. (2007). Measuring fatigue
for children with cancer: Development and validation of the Pediatric Functional Assessment of
Chronic Illness Therapy-Fatigue (pedsFACIT-F). Journal of Pediatric Hematology/Oncology, 29,
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de Wit, M., Delemarre-van de Waal, H.A., Pouwer, F., Gemke, R.J., & Snoek, F.J. (2007).
Monitoring health-related quality of life in adolescents with diabetes: A review of measures.
Archives of Disease in Childhood, 92, 434-439.
Tyler, C., Johnston, C.A., Fullerton, G., & Foreyt, J.P. (2007). Reduced quality of life in very
overweight Mexican American adolescents. Journal of Adolescent Health, 40, 366-368.
Klaassen, R.J., Blanchette, V.S., Barnard, D., Wakefield, C.D., Curtis, C., Bradley, C.S., Neufeld,
E.J., Buchanan, G.R., Silva, M.P., Chan, A.K., & Young, N.L. (2007). Validity, reliability, and
responsiveness of a new measure of health-related quality of life in children with immune
thrombocytopenic purpura: The Kids’ ITP Tools. Pediatrics, 150, 510-515.
Flores, A., Alessandrini, E.A., Mattheuse-Kairys, M., Mistry, R., Fiks, A.G., & Kazak, A. (2007).
Health related quality of life after an acute illness in emergency department (ED) and primary
care (PC) settings. Pediatric Emergency Care, 23, 765-766.
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Young, H.K., Lowe, A., Fitzgerald, D.A., Seton, C., Waters, K.A., Kenny, E., Hynan, L.S.,
Iannaccone, S.T., North, K.N., & Ryan, M.M. (2007). Outcome of noninvasive ventilation in
children with neuromuscular disease. Neurology, 68, 198-201.
Talarska, D., & Zgorzalewicz-Stachowiak, M. (2007). The influence of selected factors on the
quality of life of children with headaches. Advances Medical Science, 52, Suppl. 1, 123-125.
Wong, B.L., Hynan, L.S., & Iannaccone, S.T. (2007). A randomized, placebo-controlled trial of
creatine in children with spinal muscular atrophy. Journal of Clinical Neuromuscular Disease, 8,
101-110.
Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., Power, M., Duer, W.,
Cloetta, B., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Hagquist, C., & Kilroe, J. (2007).
The Kidscreen-27 quality of life measure for children and adolescents: Psychometric results from
a cross-cultural survey in 13 European countries. Quality of Life Research,
Robitail, S., Ravens-Sieberer, U., Simeoni, M.C., Rajmil, L., Bruil, J., Power, M., Duer, W.,
Cloetta, B., Czemy, L., Mazure, J., Czimbalmos, A., Tountas, Y., Hagquist, C., Kilroe, J., &
Auquier, P. (2007). Testing the structural and cross-cultural validity of the Kidscreen-27 quality of
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Simenoni, M.C., Schmidt, S., Muehlan, H., Debensason, D., & Bullinger, M. (2007). Field testing
of a European quality of life instrument for children and adolescents with chronic conditions: The
37-item Disabkids chronic generic module. Quality of Life Research, 16, 881-893.
Oeffinger, D., Gorton, G., Bagley, A., Nicholson, D., Barnes, D., Calmes, J., Abel, M., Damiano,
D., Kryscio, R., Rogers, S. & Tylkowski, C. (2007). Outcome assessments in children with
cerebral palsy. Part I: descriptive characteristics of GMFCS levels I to III. Developmental
Medicine and Child Neurology, 49, 172-180.
Russo, R.N., Crotty, M., Miller, M.D., Murchland, S., Flett, P., & Haan, E. (2007). Upper-limb
botulinum toxin A injection and occupational therapy in children with hemiplegic cerebral palsy
identified from a population register: A single-blind, randomized, controlled trial. Pediatrics, 119,
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Chak, M.H., Rahi, J.S., & Bccig, B.C. (2007). The quality of life of children with congenital
cataract: Findings of the British Congenital Cataract Study. British Journal of Ophthalmology, .
Stern, M., Mazzero, S.E., Gerke, C.K., Porter, J.S., Bean, M.K., & Laver, J.H. (2007). Gender,
ethnicity, psychosocial factors, and quality of life among severely overweight, treatment-seeking
adolescents. Journal of Pediatric Psychology, 32, 90-94.
Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J., Russell, I.,
Jackson, S., & Jenny, M. (in press). Adaptation of the Manchester-Minneapolis quality of life
survey for use in the UK population. Archives of Disease in Childhood.
Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (in press). Development and
preliminary validation of the child activity limitations questionnaire: Flexible and efficient
assessment of pain-related functional disability. Journal of Pain.
Dowie, R., Mistry, H., Young, T.A., Weatherburn, G.C., Gardiner, H.M., Rigby, M., Rowlinson,
G.V., & Franklin R.C. (2007). Telemedicine in pediatric and perinatal cardiology: Economic
evaluation of a service in English hospitals. International Journal of Technology Assessment in
Health Care, 23, 116-125.
Bagley, A.M., Gorton, G., Oeffinger, D., Barnes, D., Calmes, J., Nicholson, D., Damiano, D.,
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with cerebral palsy. Part II: discriminatory ability of outcome tools. Developmental Medicine and
deBeer, M., Hofsteenge, G.H., Koot, H., Hirasing, R., Delemarre-van de Waal, H., & Gemke, R.
(2007). Health-related quality of life in obese adolescents is decreased and inversely related to
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Beijen, S.W., Snik, A.F., & Mylanus, E.A. (2007). Sound localization ability of young children
with bilateral cochlear implants. Otology and Neurotology, 28, 479-485.
Barr, L., Thibeault, S.L., Muntz, H., & de Serres, L. (2007). Quality of life in children with
velopharyngeal insufficiency. Archives of Otolaryngology and Head and Neck Surgery, 133, 224-
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Brosig, C.L., Mussatto, K.A., Kuhn, E.M., & Tweddell, J.S. (2007). Psychosocial outcomes for
preschool children and families after surgery for complex congenital heart disease. Pediatric
Cardiology, 28, 255-262.
Sullivan, E., Barnes, D., Linton, J.L., Calmes, J., Damiano, D., Oeffinger, D., Bagley, A.M.,
Gorton, G., Nicholson, D., Rogers, S., & Tylkowski, C. (2007). Relationships among functional
outcomes measures used for assessing children with ambulatory CP. Developmental Medicine
and Child Neurology, 49, 338-344.
Oladeji, O., Johnston, T.E., Smith, B.T., Mulcahey, M.J., Betz, R.R., & Lauer, R.T. (2007).
Quality of life in children with spinal cord injury. Pediatric Physical Therapy, 19, 296-300.
Chiu, M.C., Ng, C.F., Lee, L.P., Lai, W.M., & Lau, S.C. (2007). Automated peritoneal dialysis in
children and adolescents – benefits: A survey of patients and parents on health-related quality of
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determinants in head injured children 1 and 6 months after injury. Archives of Disease in
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children with special health care needs: Development and validation of the Barriers to Care
Questionnaire. Ambulatory Pediatrics, 4, 323-331.
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Ziaian, T., & Baghurst, P.A. (2004). Health-related quality of life of children and adolescents with
chronic illness: A two year prospective study. Quality of Life Research, 13, 1309-1319.
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severely obese children and adolescents. JAMA (Journal of the American Medical Association),
289, 1813-1819.
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migraines: Clinical impact and comparison to other chronic illnesses. Pediatrics, 112, e1-e5.
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Wade, T.J., & DeWitt, T.G. (2003). Health-related quality of life in urban elementary
schoolchildren. Pediatrics, 111, 1372-1381.
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with mild asthma. Pediatric Pulmonology, 36, 536-543.
Bucuvalas, J.C., Britto, M., Krug, S., Ryckman, F.C., Atherton, H., Alonso, M.P., Balistreri, W.F.,
& Kotagal, U. (2003). Health-related quality of life in pediatric liver transplant recipients: A
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assessing quality of life in survivors of childhood cancer. Child: Care, Health & Development,
29, 95-102.
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(2003). Impact of ambulatory, family-focused teamwork intervention on glycemic control in
youth with Type 1 diabetes. Journal of Pediatrics, 142, 409-416.
Laffel, L.M.B., Connell, A., Vangsness, L., Goebel-Fabbri, A., Mansfield, A., & Anderson B.J.
(2003). General quality of life in youth with Type 1 diabetes: Relationship to patient management
and diabetes-specific family conflict. Diabetes Care, 26, 3067-3073.
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muscular atrophy. Archives of Neurology, 60, 1130-1136.
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P. S. (2001). Parent’s perceptions of primary care: Measuring parents’ experiences of pediatric
primary care quality. Pediatrics, 108, 264-270.
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PedsQL™ Pediatric Pain Questionnaire

PedsQL™ Present Functioning Visual Analogue Scales
Pediatric Pain Coping Inventory™
Peer Reviewed Publications
Pacey, V., Tofts, L., Adams, R.D., Munns, C.F., & Nicholson, L.L. (2015). Quality of life
prediction in children with joint hypermobility syndrome. Journal of Paediatrics and Child
Health, 51, 689-695.
Vetter, T.R., McGwin, G., Bridgewater, C.L., Madan-Swain, A., & Ascherman, L.I. (2013).
Validation and clinical application of a Biopsychosocial Model of Pain intensity and functional
disability in patients with a pediatric chronic pain condition referred to a subspecialty clinic. Pain
Research and Treatment.
Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R.,
Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the
relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile
dermatomyositis. Rheumatology, 50, 2051-2060.
Vetter, T.R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based
pediatric chronic pain medicine program. Anesthesia and Analgesia, 106, 786-794.
Eisen, S.L., Ulrich, R.S., Shepley, M.M., Varni, J.W., & Sherman, S. (2008). The stress-reducing
effects of art in pediatric health care: Art preferences of healthy children and hospitalized
children. Journal of Child Health Care, 12, 173-190.
Barakat, L.P., Daniel, L.C., Patterson, C.A., & Dampier, C. (2008). Quality of life among
adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting
stress. Health and Quality of Life Outcomes, 6:60.
Simons, L.E., Claar, R.L., & Logan, D.L. (2008). Chronic pain in adolescence: Parental
responses, adolescent coping, and their impact on adolescent’s pain behaviors. Journal of
Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present
Functioning Visual Analogue Scales: Preliminary reliability and validity. Health and Quality of
Life Outcomes, 4:75, 1-10.
Degotardi, P.J., Klass, E.S., Rosenberg, B.S., Fox, D.G., Gallelli, K.A., & Gottlieb, B.S. (2006).
Development and evaluation of a cognitive-behavioral intervention for juvenile fibromyalgia.
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Oddson, B.E., Clancy, C.A., & McGrath, P.J. (2006). The role of pain in reduced quality of life
and depressive symptomology in children with spina bifida. Clinical Journal of Pain, 22, 784-789.
Sobo, E.J., Eng, B. & Kassity-Krich, N. (2006). Canine visitation (pet) therapy: Pilot data on
decreases in child pain perception. Journal of Holistic Nursing, 24, 51-57.
Engel, J.M., Jensen, M.P., & Schwartz, L (2006). Coping with chronic pain associated with
cerebral palsy. Occupational Therapy International, 13, 224-233.
Sawyer, M.G., Carbone, J.A., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., &
Baghurst, P.A. (2005). The relationship between health-related quality of life, pain, and coping
strategies in juvenile arthritis: A one year prospective study. Quality of Life Research, 14, 1585-
1598.
Powell, M., Seid, M., & Szer, I.S. (2005). Efficacy of custom foot orthotics in improving pain and
functional status in children with juvenile idiopathic arthritis: A randomized trial. Journal of
Clancy, C.A., McGrath, P.J., & Oddson, B.E. (2005). Pain in children and adolescents with spina
bifida. Developmental Medicine and Child Neurology, 47, 27-34.
Konijnenberg, A.Y. et al. (2005). Children with unexplained chronic pain: Substantial impairment
in everyday life. Archives of Disease in Childhood, 90, 680-686.
Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004).
The relationship between health-related quality of life, pain, and coping strategies in juvenile
idiopathic arthritis. Rheumatology, 43, 325-330.
Varni, J.W., Burwinkle, T.M., & Katz, E.R. (2004). The PedsQL in pediatric cancer pain. A
prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and
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adjustment in children with juvenile rheumatic disease. Journal of Pediatric Psychology, 29, 29-
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Coping Questionnaire (PCQ), and Pediatric Pain Questionnaire. Arthritis Care & Research, S5,
S90-S95.
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interdisciplinary cognitive behaviour therapy. Archives of Disease in Childhood, 88, 881-885.
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management: Initial validation of the child/parent Total Quality Pain Management (TQPM)
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