A MEETING OF FAMILIES FACED

WITH THE CHALLENGES OF

BEING UNDIAGNOSED OR
DIAGNOSED WITH A VERY RARE
DISORDER

WHEN
Saturday 6 March 2021
10:30AM – 11:45AM PT

WHERE
Via Zoom
Email CureUndx@gmail.com to
receive webinar link
BRINGING TOGETHER
SPEAKER FAMILIES OF
Shikha O’Brien, UNDIAGNOSED CHILDREN
Director of Business TO LEARN, SHARE AND
Development SUPPORT EACH OTHER
Rare Genomics Institute AMIDST THEIR LONG
JOURNEY IN SEARCH OF A
RareWear Program and DIAGNOSIS.
Patient Research Services
[pro-bono re-analysis]
Please email if you have questions or comments:
CUREUNDX@GMAIL.COM