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Nursing Inquiry 2012 [Epub ahead of print]

Feature

Problematizing health coaching for


chronic illness self-management
Lisa M Howarda and Christine Cecib
aFaculty of Health Sciences, University of Lethbridge, Lethbridge, AB, bUniversity of Alberta, Edmonton, AB, Canada

Accepted for publication 13 July 2012


DOI: 10.1111/nin.12004

HOWARD LM, CECI C. Nursing Inquiry 2012 [Epub ahead of print]


Problematizing health coaching for chronic illness self-management
To address the growing costs associated with chronic illness care, many countries, both developed and developing, identify
increased patient self-management or self-care as a focus of healthcare reform. Health coaching, an implementation strategy to
support the shift to self-management, encourages patients to make lifestyle changes to improve the management of chronic ill-
ness. This practice differs from traditional models of health education because of the interactional dynamics between nurse and
patient, and an orientation to care that ostensibly centres and empowers patients. The theoretical underpinnings of coaching
reflect these differences, however in its application, the practices arranged around health coaching for chronic illness self-man-
agement reveal the social regulation and professional management of everyday life. This becomes especially problematic in con-
texts defined by economic constraint and government withdrawal from activities related to the ‘care’ of citizens. In this paper,
we trace the development of health coaching as part of nursing practice and consider the implications of this practice as an
emerging element of chronic illness self-management. Our purpose is to highlight health coaching as an approach intended to
support patients with chronic illness and at the same time, problematize the tensions contained in (and by) this practice.
Key words: chronic illness, health coaching, problematization, self-management.

NURSING AND HEALTH COACHING FOR 2009). However, it is important to note that this focus does
not represent an entirely new strategy for achieving health
CHRONIC ILLNESS SELF-MANAGEMENT
so much as familiar practices being redeployed (and trans-
As policy-makers and healthcare providers around the world formed) in a changed epidemiological landscape that is
become increasingly preoccupied with managing what is complicated by concerns about ageing populations, the sus-
described as the growing care burden associated with tainability of health systems and significantly, a political con-
chronic diseases, patient self-management and other forms text characterized by a changing relationship between
of self-care are becoming more prominent on national citizens and the state. Of specific relevance is the dismantling
health agendas (cf. Parliament of Canada Standing Commit- or decline of a state oriented to the welfare of its citizens
tee on Social Affairs and Technology 2002; World Health (cf. Rose 1999; Ong 2006). As Ong observes, ‘there is a fun-
Organization 2009). This preoccupation with orienting damental shift… in the ethics of citizenship as governing
healthcare reform securely around self-care is expressed, cf. becomes concerned less with the social and collective man-
in a recent World Health Organization discussion of Health agement of the population (biopolitics) and more with
for All, which emphasizes self-care as a necessary response to instilling behaviour of self-management (ethico-
the high burden of care associated with an increasing preva- politics)…. The neoliberal ethical regime requires citizens to
lence of chronic conditions (World Health Organization be self-responsible, self-governing subjects’ (237).
Chronic illness management takes shape in this chang-
Correspondence: Lisa M Howard, Faculty of Health Sciences, University of
ing political ethos as healthcare organizations, for reasons of
Lethbridge, 4401 University Drive, Lethbridge, AB T1K 0N1, Canada. both economic utility and care management, take up and
E-mail: <lisa.howard@uleth.ca> enact the discourse of ‘active’ citizenship, that is, the citizen

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LM Howard and C Ceci

who is ‘‘no longer dependent on the welfare state,’’ through generalized approaches to chronic illness care with the indi-
policies and practices highlighting notions of choice, respon- vidual particularities of illness, in reality nurses engaged in
sibility and participation (Newman and Tonkens 2011, 9). In health coaching spend a great deal of time reconciling the
practice and policy discourses, terms such as self-care or self- needs of patients with the demands of the social institutions
management have become shorthand, as Kendall and col- that circumscribe good chronic illness management (Gast-
leagues argue (2011), for ‘a complex set of beliefs and ideas aldo 1997). In this context, clinical interactions such as
about health, the role of people in maintaining their health, health coaching may not then be best understood as ‘auton-
and the responses that should be made by health systems’ omous or privatized encounters’ between individual patients
(89). Practices of self-management, and those that support it and individual practitioners but rather as infiltrated by (cor-
such as health coaching, arrive underpinned by assumptions porate) mechanisms that surveil, regulate and structure the
about the nature of ‘responsible’ patients, the availability of range of possible actions (May 2010, 317; see also Armstrong
the right knowledge and the capacities of people to apply 2005). Our purpose with this paper is to highlight some of
this knowledge to achieve right outcomes (Kendall et al. the trends in the health coaching literature that alert us to
2011). In this heightened atmosphere, patients’ everyday these tensions in the discourse.
activities of taking care of their health are not only an indi-
vidual imperative but also a national industry and a global APPROACH TO THE LITERATURE
cause, and the practices arranged around health coaching
for chronic illness self-management reveal the social regula- Chronic illness care practices reach deep into medical and
tion and professional management of everyday. In this social history, and the kinds of things nurses do and their
paper, we explore these tensions through consideration of influences on patient care are shaped by this history and also
the evolution of the meanings and practices of health coach- by current practice circumstances. In this paper, we explore
ing, the implications of the current sociopolitical contexts the present circumstances and the history of health coaching
for this practice and finally, how nurses might disentangle, at through a critical review of the health coaching literature,
least a little, from a preoccupation with ‘best practices’ and with particular emphasis on those elements that highlight
refocus instead on the nature of best care. the tensions described above. To support a more critical
Health coaching, a strategy to support patient self-man- uptake of the discourses of health coaching, we undertake
agement, emerged in the mid-20th century when Anselm this close reading in light of the ideas of social philosophers
Strauss described coaching as an alternative to an expert-dri- Michel Foucault and Annemarie Mol. Foucault’s (1973) per-
ven, didactic model of health education (Strauss 1959). spective on medicine and health reminds us of the historic
Later, health coaching was seen as an appropriate response associations between science, society and healthcare provid-
to the patient rights movement of the late 20th century. The ers. The manner in which chronic illness is inscribed, nor-
subsequent re-orientation of the patient’s role not only con- malized, and disciplined in situated contexts has particular
ferred greater autonomy upon patients but also shifted sig- consequences for nurses and patients. Confer, when the
nificant responsibility for a wide array of illness management medical gaze privileges the conditions of illness risk over the
decisions and activities to patients. Yet there is a certain irony circumstances of human flourishing, the body becomes not
in this professional (and political) conferral of responsibility only objectified but also the focus of control. Foucault’s work
to patients in the promotion of ‘self-care’ as sociologist examined how we organize and control bodies through the
Carl May (2011) observes: ‘‘of course patients are ‘involved’ in ‘expert’ medical governance that produces truths and norms
their care. They and their significant others are enrolled as about the body. Teaching patients to ‘control’ their disease
unpaid workers in these extended and extending systems of through identifying deviance from prescribed norms is a
practice’’ (xii). Patients have always influenced formal health powerful means of controlling disease by controlling the
practices by following or not following professional advice, body, and it is this understanding of the relationship between
and by contributing expert knowledge about their illness health and disease that often underlies practices of health
that sometimes supported and other times, contradicted, coaching. Mol (2008) examines the consequences of these
expert clinical knowledge (May 2011). That patients are ‘‘of practices through contrasting the logics of care and choice as
course ‘involved’ in their care’’ does not mean, however, they play out in the lives of both clinicians and patients. The
that a coaching relationship between patient and nurse may growing capacity for professional and social intervention,
not be a ‘good thing’, only that, in our current social–political even to the level of the individual’s cells, set us on a trouble-
context, it is a relationship and system strategy that should some road – health takes on new meanings and increasingly
be closely examined. While health coaching aims to re-unite becomes a locus of medical and social manipulation.

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Health coaching for chronic illness self-management

WHAT IS HEALTH COACHING? of coaching reflects the privileged role of healthcare provid-
ers in interpreting science and prescribing interventions:
Throughout history, coaching embodied the concept of an The coach is the expert authority and the patient is the yield-
individual learning by doing alongside a skilled mentor to ing subject, (com)pliant in the face of the coach’s skilled
the realization of one’s full potential (Frost 1989). Regard- manoeuverings.
less of domain – sport, theatre, health – coaching embodied In the late 20th century, an era characterized by cost con-
physical and moral excellence, focused on the psychological tainment and role restructuring, the nurse’s role in health
aspects of performance and embedded these features in education presented itself as an arena in which the profes-
a reciprocal relationship (Semotiuk 1982; Adler 1985; sion could demonstrate its unique contribution to both
Lombardo 1987). Coaching first appeared in Homer’s Iliad patient care and cost-effectiveness (Smith 1989). Patricia
when Nestor tutored his son Antilochus in chariot racing Benner (1985) identified coaching as a domain of nursing
and since that time coaching is predominantly associated practice and extended Strauss’ framework to include specific
with sport. However, coaching is more than training physical coaching functions such as teaching clinical monitoring and
bodies; it is interplay among knowledge, skills, competences treatment protocols, as well as providing relational support.
and social relations. In the late 15th and early 16th centuries, Differently than Strauss however, Benner emphasized the
the relational aspect of coaching became visible in the Eng- need for the nurse coach to understand the patient’s experi-
lish language and the term referred to a person who con- ence and context of chronic illness. Benner’s framework
veyed another through the performance of a sport or skill encouraged coaches to use uncertainty as a bridge to a new
(Adler 1985; Merriam-Webster 2003). From the origins in understanding of the chronic illness experience, an impulse
Greece to the emergence in English language, the practice that was concurrent with a growing interest in nursing to
of coaching brought together expert knowledge, experience move beyond the content of education and toward the pro-
and practical wisdom to help people navigate challenging cesses of patient education (Clarke and Spross 1996). Unlike
personal, physical and psychological journeys. Strauss’ coach’s pruning of options (content) for patient
In a contemporary healthcare context, coaching is apply- change, Benner’s coach works to coax the branches of
ing skills of listening, questioning and reflecting to support change (process) from buds of possibility.
persons with a chronic illness to manage the physical, psy- Clarke and Spross (1996) continued Benner’s inward
chological and social influences of the disease (Benner exploration of the nature of coaching, asserting that coach-
1985; Clarke and Spross 1996; Lewis and Zahlis 1997; ing depends on the intersection of self-reflection with clini-
Hughes 2003; Rollnick, Miller and Butler 2008). In this cal, technical and interpersonal competencies. The repeated
regard, health coaching is often compared with motivational reflection upon the competencies, and the skilled articula-
interviewing, and health coaches frequently use motivational tion of how these might facilitate or inhibit the coaching
interviewing techniques to achieve their goals (Rubak relationship, was seen as central to helping patients adjust to
et al. 2005; Houston Miller 2010; Linden, Butterworth and the transitions of chronic illness. This intense focus on
Prochaska 2010). Health coaching differs from a traditional reflection was extended in the work of Lewis and Zahlis
education approach because the focus is on ‘empowering’ (1997) and made visible through the identification of six
patients to identify how they can use health information to observable behaviours of health coaching: attending to the
achieve their goals to best manage their illness. Patients are patient’s story, contextualizing the experience, engaging the
coached in routines of measuring, monitoring and adjusting patient in work of change, exploring solutions to change,
as an expression of good chronic illness care and to achieve anchoring skills and positioning the patient for success. This
good outcomes. An overview of coaching theories in nursing framework articulated the nurturing work of shaping health
and health-care reflects the evolving practice of health behaviour change in the context of chronic illness and situ-
coaching, shifting views of the patient and the role of the cli- ated the unique knowledge and practice of this work within
nician and increasing corporate influence on the organiza- the domain of nursing.
tion of health. Perhaps in response to a political and societal question-
Strauss (1959) provided the first conceptual framework ing of the nurse’s role, Lewis and Zahlis (1997) work made a
for health coaching comparing the coaching process to case for the unique value nurses bring to health behaviour
pruning ‘a tree with many branches and twigs, the (patient) change and described the importance of the nurse’s expert
moves along certain branches until reaching alternatives and knowledge in chronic illness care. Schenk and Hartley
the coach channels the (patient’s) movements until the next (2002) also argued for the need for expert knowledge in ill-
set of alternatives arise’ (117). This early conceptualization ness pathology, and highlighted the importance of expert

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LM Howard and C Ceci

comportment in coaching. They described health coaching rate budgets the effectiveness of a professional nurse in this
as a partnering process where nurses motivate patients to role (Smith 1989; Luck 2010). At the same time that nurses
harness personal knowledge and skills and determine the may chafe at the constraints imposed on their relationships
possibilities for change based on patient-centred goals. with patients (Allen 2004), taking on the role of health
A provocative observation emerges from the introduction coaching reinforces professional interests by securing nurs-
and evolution of coaching in health-care. While the athlete ing’s position in the organizational structure of health, and
or artist chooses coaching for success, the chronically ill indi- delineates not only what knowledge nurses manage but also
vidual is enlisted or motivated – through health coaching – how they transfer this knowledge to patients who in turn self-
to take responsibility for illness management activities. This manage. This is a repeated pattern in nursing’s occupational
marks a significant shift from historical understandings of history, cf. in healthcare institutions, where, as McPherson
coaching to a practice of coaching in health-care wherein (1996) observes, the ability to take up ‘precise and standard-
the patient’s body becomes both an object of knowledge and ized methods of executing tasks consolidated nursing’s posi-
the subject of personal reconstruction through participation tion as critical to efficiently run hospitals while
in health-promoting and illness-monitoring behaviours; the strengthening nurses’ claim to a unique professional body of
body becomes subject to professional, self and societal disci- knowledge’ (91; see also Allen 2004).
pline (Gastaldo 1997; Rose 2001). The emphasis in the As society faces an ageing demographic, nurses present
health coaching literature on interpersonal relationships in themselves as competent and cost-effective providers of care
patient encounters, with practical wisdom and patient choice and education to a growing population experiencing
as guiding values, does not account for the parallel project of chronic and complex health challenges. At the same time,
the efficient, cost-effective administration of health resources and it is here we see some tensions in the discourse, the
to achieve good chronic illness management and outcomes. health coaching skills of nurses are leveraged by health sys-
As Kendall and colleagues (2011) argue, the self-manage- tems administrators to prepare patients to independently
ment discourses which health coaching serves have been manage chronic illness as a means to distribute professional
‘recontextualized to serve the aims of economic utility that care across a larger number of patients, and to delegate
drive contemporary health systems’ (88). So rather than an responsibility for health outcomes to the patients themselves.
independent, autonomous or even private nurse–patient Confer, to extend current clinician resources and reach a
relation (May 2011), we see instead a shifting landscape pop- greater range of patients, healthcare organizations support
ulated by professional interests, professional knowledge prac- patient coaching not necessarily because of the presumed
tices and administrative imperatives. relational benefits but because it can be accomplished in
person, over the telephone, or via the computer. However,
the effectiveness of coaching using alternative modalities to
MANAGING MULTIPLE AGENDAS: in-person visits appears to be inconclusive in terms of affect-
COACHING, CHRONIC ILLNESS CARE AND ing clinical biomarkers of chronic illness (Parry, Kramer and
NURSING Coleman 2006; Navicharern, Aungsuroch and Thanasilp
2009), and a recent systematic review of the economic advan-
In an early overview of the opportunities and challenges for tages of tele-health interventions contested the claim that
nurses entering the 21st century milieu, Smith (1989) telemedicine is a cost-effective alternative to conventional
emphasized the need to make both public and policy-makers means of healthcare delivery (Whitten et al. 2002). What is a
aware of the unique contributions nurses make through consistent change in the nature of healthcare encounters,
health education. She identified challenges including secur- whether in person or remote, is a shift to ‘self-care’ including
ing a place at the policy-making table, having a voice in rele- a requirement that patients take up the complex monitoring
vant programme planning, and ‘linking patient education to and decision-making rituals that are part of chronic illness
compliance with health and medical care regimens and management. This initiative is often conceptualized as secur-
quality of life’ (586). In these terms, health coaching figures ing patient autonomy in chronic illness care, and while
as a reasonable approach to link compliance, health, medi- health coaching makes visible the contribution of nurses in
cal regimens, and quality of life, and nurses appear to be will- chronic illness care, it renders invisible the work that is
ing to invest themselves in a broader social agenda by shifted to patients and families to meet the demands of
volunteering client self-management approaches such as guidelines and protocols (May 2007, 2010).
health coaching as a resource to reduce costs, and improve Recent literature on health coaching tends to highlight
outcomes, while demonstrating to those managing corpo- the gains in clinician efficiency health coaching offers, and

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appears less concerned with this shift in the burden of care. sional interests and these corporate interests unfold when
For example, a number of researchers have investigated the they intersect in the patient because when professionals
effectiveness of health coaching by assessing measures associ- transfer the work of self-management, they also transfer the
ated with chronic illness such as blood pressure, blood cho- moral practices of what it is to live well with a chronic dis-
lesterol, blood glucose, body weight, diet, exercise and ease. Confer, healthcare professionals and administrators
medication adherence (cf. Vale et al. 2002; Whittemore may use clinical practice guidelines based on scientific ‘evi-
et al. 2004; Melko et al. 2010). The significance of Smith’s dence’ about chronic illness care to make decisions about
(1989) recommendations described above can be read in patient care in the ‘best interests’ of patients but do so from
the shift in focus this research demonstrates, away from the a different vantage point than people themselves – a point
relational aspect of health coaching and toward measuring that links back to Foucault’s claim that power ⁄ knowledge
the effectiveness of the intervention. This direction ensures practices, and in particular the medical or expert gaze, bring
that patient education remains the responsibility of skilled into being a particular body as well as situated practices of
professionals who lay claim to accountability for patient edu- managing that body. And as noted previously, if the clinical
cation. Recent research in health coaching is testing this encounter can no longer be seen as autonomous or private,
claim, investigating the effectiveness of non-licensed health- then we need to understand better what May (2010)
care providers using a coaching approach (Bennett et al. describes as the ‘organizing interfaces of corporate forces’
2010). This reflects another turn in health-care as resources (317). Patient-centred coaching practices that highlight
to compensate skilled providers for this work shrink and patient’s experiences run up against aggregate-level data
demands for educational resources to support self-manage- (the ‘evidence’) intended to guide chronic illness manage-
ment grow. As the practice of coaching evolves, the emphasis ment, often through forms that bureaucratize care through
in the scholarly literature is on identifying specific tech- technologies such as care pathways and clinical guidelines
niques to improve the effectiveness and assessing the prod- (May 2010). Given this difference in perspective and inter-
ucts of coaching with a focus on those strategies that can ests, it is important to consider whether the ‘best’ practices
deliver the necessary outcomes at the lowest cost (Anderson organized around bodies with chronic illness also contribute
and Halley 2008; Sacco et al. 2009). The literature is silent to best care, and relatedly, how the values embedded in the
on the implications this direction holds for nurses and discourse – responsibility, choice, autonomy – may be
patients, and perhaps most significantly, on what it means to enacted in a life lived with chronic illness.
have good care, and a good life, in the context of chronic Annemarie Mol (2008) is an ethnographer and philoso-
illness. pher who examines the problems that arise when the
patient’s body intersects with the institutional body of
TENSIONS IN THE DISCOURSE: BEST chronic illness. At this intersection, Mol situates possibilities
PRACTICE OR BEST CARE? of the reciprocal and relational nature of good care, but jux-
taposes these to healthcare practices primarily informed by a
The theoretical foundations of coaching mark a rhetorical logic of choice. That is, those practices that both highlight
shift in discourse about nursing practice from the belief in and demand patient autonomy most often read as individual
the clinician as expert to that of the clinician as coach. decision-making, as a defining goal of practice. Choice, and
Through actively partnering with patients in their chronic ill- especially free choice, is a problematic figure for people with
ness care, nurses are seen to come alongside patients and chronic illness not least because this emphasis individualizes
coach them to take up the best evidence and incorporate the broad conditions of living that contribute both directly
this knowledge into their daily practices to improve illness and indirectly to illness and its management, and in so doing
control and decrease complications. This form of health locates responsibility for outcomes with patients. As Kendall
coaching supports nursing’s professional interests to demon- and colleagues (2011) observe, in a context organized by a
strate ethical comportment in practice as well as to secure a logic of choice, when people experience poor health, the
place as a valuable, valued member of the healthcare team. ‘assumption is that they have not practiced ‘good’ self-
At the same time, health coaching serves corporate inter- management’ (93).
ests to deliver cost- and time-efficient care by transferring to Similarly, in Mol’s (2008) analysis, choice is centred in
patients much of the work required for the monitoring and the figure of the consumer who freely chooses among the
management of their illness and in so doing, to decrease the products on offer, or in the figure of the citizen who is able
burden of illness on the larger society (May 2010; Kendall to ignore the demands of his or her particular physical body
et al. 2011). It is worth considering how nursing’s profes- to participate freely in the body politic. Neither figure has

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LM Howard and C Ceci

full relevance for a life framed by the concrete concerns of achieve satisfactory indicators. The activity that is fore-
chronic illness, where the demands of the body, at the very grounded is not decision-making (what choice can be
least, must be continually taken into account. These limita- made?) but working out what might work best, what might
tions of the centring of choice in healthcare practices high- be helpful. For patients living with the caprice of a chronic
light a paradox of what is often called ‘patient-centred care’ illness, the requirement to ‘make’ choices may simply
– more choice may not lead to good care (Mol 2008). become burdensome through the bewildering array
This is a valuable perspective to bring to the problem of ‘options’ that arrive fully formed. To return to the analysis of
coaching because, ideally or theoretically, the coaching rela- Kendall and colleagues (2011), the dominant discourse
tionship is thought to rely on a ‘transfer’ of power from arrayed around ideals of choice ‘underestimates the condi-
nurse to patient, including the power to make good choices. tions which make self-management (im)possible’ (94).
The coaching relationship is characterized by the nurse The shift toward consumerism in health-care created an
searching for connections between the patient’s experiences opening for and bolstered the ideal of choice; however,
and current situation as an entry point to managing illness choices in health-care are neither autonomous nor straight-
care. Figured as a reciprocal relationship, the nurse and forward. There are social conditions, physical limitations,
patient are seen to be in dialogue where the nurse identifies clinical guidelines, clinicians and civic responsibilities
openings for possible interventions through active listening around choice that render it not so free as one would like to
and specific questioning and then tailors information to the think. Situated in a complex web of social relations, choice
patient’s unique context. However, choice on its own is an rarely comes down to something as straightforward as an
ideal, one which care providers may perceive as generally individually autonomous act. Struhkamp (2005), like Mol,
available to patients and in so doing neglect the complexities invites us to consider choice as a practice or rather as an
of a life lived with illness (Mol 2008). While chronic disease effect of the material conditions and social relations that
protocols may provide rules to guide illness care, living with together come to constitute the activities of care. Autonomy
a chronic condition requires complex adjustments and read- becomes an effect of these arrangements rather than a qual-
justments contingent on the outcome of the previous ity that inheres in people. So rather than enclosed and
‘choices’. autonomous, we are encouraged to think people and their
And the material conditions of choice in chronic illness choices, abilities and possibilities, as constituted through a
are complex; to choose one medication or another testing constant interaction with a material and social world. And so
regime might have enormous consequences. Mol (2008) it is in matters of chronic illness care, choice is larger than
offers as an example the situation of a patient with diabetes. selecting one option or another; it is an interactive perfor-
The nurse asks the patient to test his blood glucose levels five mance among individuals, care professionals, physical envi-
times a day on 1 day each week over a 3-week period to pro- ronments and social contexts (Kendall et al. 2011).
vide information for regulating medication. The test results
guide the medication adjustment and this adjustment will, in FAULT LINES IN HEALTH COACHING FOR
turn, correct the patient’s fluctuating blood glucose levels for ‘SELF’-MANAGEMENT
improved disease control. The patient is interested and able
to perform the testing; however, when he leaves the clinic, he The theoretical foundations of health coaching suggest that
finds he cannot make the time at work or access a clean space the relationship between coach and patient is interdepen-
for performing the intense testing routine. He is also embar- dent and the relational practices of the coach are intended
rassed to perform tests in front of colleagues. He returns to to support patients to navigate the complex terrain of a life
the clinic with too few test results to safely change the medi- lived with chronic illness. Much of the research literature on
cation. In the terms of the current preoccupations of self- coaching, however, reveals that this idea (l) of interdepen-
care, the patient has failed to exercise his responsibility to dence fails to extend beyond the theoretical underpinnings
adequately self-manage; he may be labelled non-compliant of coaching. The institutional resources that support coach-
or insufficiently concerned about his health. Health coach- ing do so in anticipation of products: good health outcomes,
ing attuned primarily to outcomes risks overlooking both the good measures of illness, and compliance with the medical
practicalities and complexities of ‘self’-management. regime and with best evidence (Butterworth, Linden and
In Mol’s terms, the above example confirms that a prac- McClay 2007; Huffman 2007; Luck 2010; Cooke 2011). Yet
tice of ‘tinkering’ is often necessary to produce improve- good care, as Mol (2008) argues, is not (or not only) about
ments in daily life, a practice that exists at some distance predicting or measuring outcomes, it is about ongoing,
from our current preoccupation with making choices to responsive relationships where clinicians and patients each

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tinker with the complexities of the individual situation and autonomous person as responsible for managing the difficul-
the generalities of the evidence. While coaches prepare ties of a life lived with chronic illness. A closer look at health
patients to physically participate in the monitoring and coaching reveals a fissure in health-care that is occupied by
adjusting required for active chronic illness self-manage- professional and institution centeredness. To problematize
ment, and work to mediate these practices through caring the activities involved in self-management as supporting the
relationships, the structures around the coaching relation- patient’s right to choose probes a crack in the foundation of
ship (measuring, following guidelines) exert an influence how individual choice is understood and enacted in health-
which may yield something quite different than good care care. The complexities of making deeply difficult choices
and the ability to lead a good life. Much of the coaching about health, and the misalignment of the structures around
research reveals a relentless interest in treating the illness choice-making in health, can place choice and action at odds
entity and mobilizing persons who live with the illness as par- and subsequently place our patients at odds with the pro-
ticipants in the war on disease in their own body (DeBusk, grammes, people and networks intended to provide support.
Miller and Superko 1994; Vale et al. 2002; Hughes 2003). To What it is to have choices, good care, and a life well lived
be a good patient is to have good numbers and to be a good with chronic illness may not easily align.
clinician is to have patients interested in producing good
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