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Nursing Home Care Quality: A

Multidimensional Theoretical Model


Integrating The Views of Consumers
and Providers
This exploratory study was undertaken to discover the defining dimensions of nursing home
care quality from the viewpoint of consumers of nursing home care. Eleven focus groups were
conducted in five Missouri communities. The seven dimensions of the consumer multi-
dimensional model of nursing home care quality are: staff, care, family involvement, com-
munication, environment, home, and cost. The views of consumers and families are compared
with the results of a previous study of providers of nursing home services. An integrated,
multidimensional theoretical model is presented for testing and evaluation. An instrument
based on the model is being tested to observe and score the dimensions of nursing home care
quality. Key words: nursing home, quality of care, research, theoretical model

Marilyn J. Rantz, RN, PhD, FAAN Rose Porter, PhD, RN


Associate Professor* Associate Professor and Associate Dean*
University Hospital Professor of Nursing
Columbia, Missouri Jane Bostick, MSN, RN
Clinical Instructor and Doctoral Student*
Mary Zwygart-Stauffacher, PhD, RN
Associate Professor Meridean Maas, PhD, RN, FAAN
School of Nursing Professor College of Nursing
University of Minnesota University of Iowa
Minneapolis, Minneapolis Iowa City, Iowa

Lori Popejoy, MSN, RN


Long Term Care Research Nurse*
The members of the MU MDS and Nursing Home
Victoria T. Grando, PhD, RN Quality Research Team gratefully acknowledge the
Assistant Professor* support of the Missouri Division of Aging staff. Re-
search activities were supported partially by a con-
tract from the Missouri Division of Aging to the Sin-
David R. Mehr, MD, MS
clair School of Nursing and Biostatistics Group of
Associate Professor of Family and the School of Medicine, University of Missouri-
Community Medicine† Columbia, Contract No. C-5-35662. Opinions are
those of the authors and do not represent the Mis-
Lanis L. Hicks, PhD souri Division of Aging. Dr. Mehr also is supported
as a Robert Wood Johnson Generalist Physician
Associate Professor of Health Services
Faculty Scholar.
Management†
*Sinclair School of Nursing, University of Missouri-
Vicki S. Conn, PhD, RN Columbia, Columbia, Missouri
†School of Medicine, University of Missouri-
Associate Professor*
Columbia, Columbia, Missouri

Deidre Wipke-Tevis, PhD, RN J Nurs Care Qual 1999;14(1):16 –37


Assistant Professor* © 1999 Aspen Publishers, Inc.
16
Nursing Home Care Quality 17

HILE MUCH is written about the topic hensive definition and conceptual model of
W of nursing home care quality, little at-
tention is paid to carefully defining it or de-
care quality because most people live in
nursing homes to receive care and services
veloping a theoretical model of the dimen- for serious functional disabilities of long du-
sions of nursing home care quality. Rantz ration.11,12 Care quality is critically impor-
and colleagues1 proposed a multidimensional tant to residents and their families and often
theoretical model of nursing home care qual- may be a source of dissatisfaction because
ity based on research with experienced provi- they depend on the care and services to meet
ders. This second exploratory study was un- their needs.
dertaken to discover the defining dimensions Following Donabedian’s13,14 advice that
of nursing home care quality from the per- evaluation of quality of care be approached
spectives of consumers, to propose a concep- by examining structure, process, and out-
tual model that integrates the views of both comes of care, most authors organize their
providers and consumers of nursing home discussions of quality of care using these
care to guide nursing home quality research, three categories to cluster quality measures
and to develop instruments to measure nurs- or indicators. Early work primarily used
ing home care quality based on the integrated structure and process measures. More
model. recent work emphasized outcome meas-
ures to evaluate nursing home care qual-
ity.6,9,15–22 Although applying the framework
BACKGROUND of structure, process, and outcomes is help-
ful and guides consideration of multiple
Although authors agree that quality is a measures for determining care quality,
multidimensional concept laden with per- there continues to be a lack of a compre-
sonal perceptions and judgment,2–5 most hensive definition of nursing home care
authors do not define quality and instead quality.
proceed immediately to defining criteria or Following a review of nursing home qual-
indicators of quality.6–9 Glass10 concludes ity assessment models and procedures,
that efforts to evaluate nursing home quality Sainfort, Ramsay, and Monato23 conclude
have been hampered by a lack of a concep- that specific quality measures tend to as-
tual model that specifies the dimensions of sess limited attributes of nursing home
quality in nursing homes. Following a com- quality. They believe that quality is under-
prehensive literature review, Glass recom- operationalized in each model. In their re-
mends a conceptual model with four major view, models typically contained more
dimensions of nursing home quality: (1) staff elements of structural quality, such as at-
intervention, (2) physical environment, tributes of the physical plant, staffing, own-
(3) nutrition/food service, and (4) commu- ership, size, reimbursement rate, and
nity relations. While Glass’s model is an im- percentage of private pay, rather than resi-
portant preliminary step to understanding dent-level process or outcome elements.
the dimensions of nursing home quality, no One quality assessment model that incorpo-
empirical evidence to support the model is rates outcome as well as process criteria is
reported. Additionally, Glass’s model does the Quality Assessment Index (QAI) for
not include details of the critical dimension measuring nursing home quality.3 The QAI
of providing care to residents in nursing is a judgment-based index with seven di-
homes. It is important to develop a compre- mensions: (1) direct resident care—outcome,
18 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

(2) resident care—process, (3) recreation develop new instruments for measuring
activities, (4) staff, (5) facility, (6) diet, and nursing home care quality.
(7) resident/community ties. Categories of
items, such as grooming, mood, awareness/ METHOD
orientation, physical condition, plan of care,
volunteer program, and others, are listed for Nursing home care quality is a complex,
each dimension. However, specific criteria multidimensional concept that is perceived
for each of the items are not presented nor in many ways. The focus group method is
are the theoretical relationships among the a particularly helpful strategy for explor-
dimensions described. ing complex concepts because it taps into
Rantz and colleagues1 conducted an human tendencies, attitudes, and percep-
exploratory study using focus groups of tions related to products, services, or pro-
providers of nursing home services to dis- grams.24 Focus groups are intended to pro-
cover the defining dimensions of nursing mote disclosure among the participants. The
home care quality, propose a conceptual process of discussion facilitates disclosure.
model to guide nursing home quality re- To include multiple perspectives in this
search, and develop instruments to meas- study, a broad base of participants was se-
ure nursing home care quality. Using qual- lected who have a variety of experiences in
itative analytic methods, three models of relation to the discussion topic. Focus
nursing home care quality from the per- groups are suggested as an appropriate re-
spective of providers emerged from the search technique for nursing25 and health
analysis: (1) a nursing home with good services research26,27 as well as a technique
quality care; (2) a nursing home with poor to improve research and evaluation in health
quality care; and (3) a multidimensional education.28 However, focus groups are not
model of nursing home care quality. The without disadvantages: they are time con-
seven dimensions of the multidimensional suming and require researchers who are
model are: (1) central focus, (2) interaction, skilled in group process and qualitative re-
(3) milieu, (4) environment, (5) individual- search.25 Nonetheless, this method was a
ized care, (6) staff, and (7) safety. An in- sound way to explore the following research
strument based on the model was devel- questions for this study, from the perspective
oped and field-tested to observe and score of consumers of nursing home care. (1) What
the dimensions of nursing home care qual- are the dimensions of quality in nursing
ity. Validity and reliability studies using the home care? (2) What measures of nursing
instrument are encouraging. home care quality are derived logically from
The multidimensional theoretical model the consumer model of nursing home care
of nursing home care quality proposed by quality? (3) How do the perspectives of con-
Rantz and colleagues does not include the sumers of nursing home care quality differ
perspectives of consumers. Therefore, as a from the perspectives of providers of those
research team, the authors decided to ex- services? (4) Integrating the perspectives of
plore the concept and dimensions of nursing consumers and providers of nursing home
home care quality from the perspectives of care, what are the dimensions of quality in
residents and families, propose a conceptual nursing home care? (5) What measures of
model of nursing home care quality for fur- nursing home care quality are logically de-
ther testing and evaluation, better opera- rived from the consumer and provider model
tionalize all dimensions of the model, and of nursing home care quality?
Nursing Home Care Quality 19

Sample Procedure

Following approval of the research by the Krueger24 recommends that focus groups
university’s institutional review board, pur- be limited to no more than 12 participants
posive samples of residents and family so that each person has the opportunity to
members of nursing homes were solicited. share insights and observations. In this
The samples included residents who had study, most groups had about 8 –14 partici-
been in the nursing home for several pants. Although one group was larger, all
months and those who had lived there for participants were able to share their points
many years. Families with diverse back- of view; many of them rather extensively.
grounds and experiences participated. In The primary researcher greeted partici-
all, 11 focus groups were conducted in five pants, made them feel comfortable, and
Missouri communities—two urban and three arranged chairs in a circle so that everyone
rural. A total of 16 residents and 80 family could see each other. A video camera was
members or guardians participated in the placed behind the researcher so that it was
discussions. unobtrusive and provided a view of all par-
Administrators of nursing homes were ticipants’ verbal and non-verbal discus-
contacted by a member of the research sions. The group began with members briefly
team, who agreed to mail an invitation to introducing themselves and explaining why
families and guardians to participate in the the topic of quality care in nursing homes
groups. Residents who cognitively were able was important to them. Participants were
to participate were identified and invited by told, “We want to understand, from your
nursing home social service, recreational, point of view, what is good quality care in a
and nursing staff. Potential participants nursing home. We want to understand what
were told that the purpose of the focus is important to you; how you know when you
group was to discuss quality in nursing are in a facility that delivers what you think
homes. The response was enthusiastic. is good quality care.” Then the researcher
Residents and families were eager to dis- began the discussion, “I would like you to
cuss their views. Groups were scheduled at think about your experience as a nursing
convenient times in the afternoon and early home resident or as a family member of
evening to facilitate participation by fami- someone who is a resident. What is a good
lies and residents. An investigator ex- quality nursing home to you? What does
plained that participation was voluntary, it look like, feel like, sound like, smell
the groups would be videotaped and audio- like. . . .?” After pausing and waiting for non-
taped for analysis, and reports from the verbal cues that people were recalling their
analysis would not reveal individual partic- experiences, the researcher solicited ex-
ipant identity. amples and descriptions of good facilities.
Participants’ descriptions were probed for
sights, sounds, smells, and feelings. Exten-
sive discussion ensued. The topic of poor
quality experiences emerged from the dis-
The response was enthusiastic. cussions; the researcher probed to under-
Residents and families were stand what poor quality meant to residents
eager to discuss their views. and families and how they dealt with the
problems of poor quality care. Finally, par-
20 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

ticipants were given the opportunity to Two core variables and several related
discuss “any ideas you have for an ideal way concepts emerged from the data. Using the
or place to get help if you needed it for your- core variables, related concepts, and de-
self or a family member. . .” Probes were tailed descriptions from participants, a new
used to solicit ideas about how the nursing model of nursing home care quality emerged
home might be improved and services re- and was constructed during the seventh
engineered. Probes and discussion contin- round of analysis. The model was refined in
ued until the topic was exhausted and all in- the eighth and subsequent comparison
sights of apparent importance were shared. rounds and integrated with the model de-
The same procedures were used for each rived from research with providers.1 A de-
group. Krueger24 recommends planning for tailed audit of the inductive analysis in the
four groups, with evaluation after the second development of the models was maintained
and third groups. If new insights are provided by the researcher and reviewed for depend-
in the third group, a fourth and additional ability and confirmability32 by a second
groups should be conducted as needed. In researcher experienced with nursing home
this study, seven groups in three locations care and qualitative analytic methods. Addi-
were planned to assure a broad range of par- tionally, the models were presented to other
ticipation by residents and families. Because experts in nursing home care for reaction
new information was still emerging through- and critique. Based on that critique, further
out the seven groups, four other study groups reflection, and review of the data, the mod-
in two other locations were scheduled. No els were refined and are presented in this
new information was gleaned so no further article for testing and evaluation by others
groups were conducted. interested in evaluating nursing home care
quality.
Analysis
FINDINGS AND DISCUSSION
Focus groups were videotaped and audio-
taped and tapes were transcribed for analy- Two core variables emerged from the
sis. The videotape enabled the researcher to analysis of consumers’ views of quality and
watch participants’ non-verbal communica- nursing home care: staff and care. Both core
tion while listening to the verbal communi- variables were described by consumers in
cation. The use of videotape during focus every group as they spoke about the positive
groups has been shown to be effective.29–31 features of staff and positive features of care.
A naturalistic, inductive analysis of the They also spoke passionately about some
transcribed content was completed by the re- negative features of staff and care. The Con-
searcher using the method of constant com- sumer Multidimensional Model of Quality in
parison and analytic induction of the natu- Nursing Home Care is illustrated in Figure 1.
ralistic paradigm described by Lincoln and Each dimension is discussed in detail in the
Guba32 and Munhall and Boyd.33 The ana- following section.
lytic method began with a review of the video
and transcripts to identify information and Staff
categories that assisted in answering the re-
search questions. Words from the partici- Without staff, nothing can be accom-
pants were analyzed and clustered in eight plished. Related to this basic view, con-
rounds of progressive inductive analysis. sumers were well aware of the need for a fa-
Family involvement
• Be there
• Make staff follow through
• Family advisory/support group
• Provide some personal
care/services
• Political action
Communication
• Systems of communication to
assure follow through
with resident needs, likes,
and dislikes
Care
• Good communication with
• Take care of the basics
families
• Individualize care Staff • Positive verbal and nonverbal
• Follow through with care • Enough staff (nurses, nursing communication with
each resident needs assistants, volunteers)
Minimize resident injuries, residents
• • Low staff turnover
incidents, • Consistent staff
and lost property • Enough supervision and training
• Treat residents as people • Adequate pay and scheduling to
• Good food and assist recruit and retain competent,
with eating qualified staff Environment
• Lots of activities • Staff who are responsive, compassionate,
• Clean
caring, clean, and well groomed
• Odor-free
• Not noisy
• Spacious
• Furnishings/equipment
functional, in good
repair, and aesthetically
Home coordinated
• This is home now • Grounds inviting and accessible
• Priority of home: • Good light and lots of windows
residents and families vs. profit to view outside
• Nonglare, nonslip flooring
• Safe
• Pleasant mileaus
Nursing Home Care Quality
21

Figure 1. Consumer multidimensional model of nursing home care quality.


22 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

cility to have low turnover. The prevailing things get done, residents get fed, and
view was that to provide care, the nursing care gets given.”
home must have enough staff and consis- Participants saw a need for more training
tent staff. Participants said the following: for nursing assistants to learn what needs to
• “They need enough staff to care for the be done and how best to give care. They
residents and what they need.” thought an orientation program to help staff
• “[There should be] low staff turnover, be more sensitive to resident needs and dis-
so staff can get to know residents so abilities would be helpful.
they don’t have new staff constantly • “Staff are undertrained. Give them
learning what needs to be done; the more training so they know what to
same people need to be here.” do.”
Participants spoke passionately about the • “They need an orientation program to
problems they had encountered related to help them learn how to walk a mile in
staff and staffing. They wanted to see enough a resident’s shoes. They should have to
staff to get the work done and have the same be fed, taken to the bathroom, show-
staff who know what each resident needs. ered, and ask for help, then they would
Consistent staff need to be caring for each understand.”
resident so they know their needs, likes, and Participants were concerned that schedul-
dislikes. ing and pay needed to be addressed so that
• “I think staff turnover probably upsets competent, better-qualified staff can be re-
me more than anything. About the cruited and stay working in nursing homes.
time I think they understand how to They were opposed adamantly to the use of
care for her, that person leaves and agency, or temporary, help. They also be-
she has to get used to another person lieved that homes could do a better job re-
who does not know her.” cruiting volunteers to help do small things
• “The staff need to stay on the same for residents that make a difference to their
wing. The same staff are here, but they lives, such as reading to them, writing let-
move them. If they would leave the ters, helping them get a drink of water,
ones that are here that know mother cleaning their glasses, helping with activi-
and know what her reactions are, it ties, and other things.
would be so much better.” • “Staff need good pay and benefits, too.
Participants were very concerned that An aide who has been here 10 years is
nursing assistants need more supervision to not even making $8 an hour; the tem-
make sure the care that is needed is done porary staff are making $10 and $12
and done correctly. Comments from partici- an hour.”
pants included the following: In general, the issue of staffing was the
• “There’s just too much talking and not major concern expressed by families and
enough supervision. The nurse cannot residents in the focus groups. Many parti-
supervise everything. I have been here cipants were very knowledgeable about
and the aides are in the dining room staffing, pay, and supervision. These con-
watching television. They should not sumers recognized that none of the care is
be in front of the television when resi- possible without the staff. They recognized
dents need help.” the need for a consistent, adequate amount
• “Staff need supervision, when the nurse of staff to meet the requests and needs of
organizes breaks and makes sure residents and families. They also believed in
Nursing Home Care Quality 23

paying staff adequately to keep them in their Just as with the staffing core variable,
jobs and training and supervising them well the care core variable had a negative side.
to provide compassionate and responsive Families passionately described problems
care. They recognized the importance of with the basics of care delivery that they en-
staff following through to see that residents countered in many homes. Sometimes, the
receive the care they need. Participants problems were tearfully described. Families
also were concerned about basics such as recognized that staff are human too, that
staff cleanliness and dress. Some employ- mistakes will be made, and that living at
ees, they believed, need to dress better, be home is not perfect. However, some of the
cleaner, and look as though they are work- mistakes and problems with basic care were
ing in a health care environment. very difficult for consumers to accept. Par-
ticipants described numerous problems
Care with the basic care. Much time was devoted
to these descriptions.
The other core variable, care, was de- • “Her Depends were soaked with pounds
scribed poignantly by the participants. Fam- of urine and she could not ask for help.”
ilies simply wanted the staff to take care of • “I told the staff, ‘He’s never been in-
their family members, to do the basic care, continent before, why should he be
and to do it well. They described the care as now?’ He couldn’t get anyone to empty
taking care of the basics, providing individ- his urinal.”
ualized care so that each resident’s needs • “They say they want her to walk but no
and habits are attended to, and making sure one has devoted time to help her walk.
the care they need is given. Residents and The only time she walks is when I am
families believed the food should be good, here.”
that residents should be given food that they • “The entire staff is down in the dining
want and like, and that staff should help room when there are people in their
ensure residents eat. They believed there rooms with trays who cannot help
should be more activities, there should be themselves and are not being fed. They
more attention to spiritual care, and that a missed feeding her supper four times
variety of activities should be provided so in one week. That’s wrong, just wrong.”
that everyone could participate in something Participants described an alarming num-
if they wanted. ber of injuries and incidents, some very
• “I just want them to take care of my serious.
mother; you know, the proper care, • “Because they transferred her wrong,
both medical and personal. She should they popped her new hip out of the
be clean, eat well, be taken to the bath- socket. It filled with tissue and now
room. She should have her hair washed surgery is no longer an option. She will
and combed, her teeth brushed. She always have to be in a wheelchair.”
should be positioned right and have • “My mother has massive bruises under
clean clothes. She should have her her arms; her shoulders have been dis-
glasses, her false teeth, and hearing located several times because they
aide.” transferred her wrong.”
• “They should get the doctor when • “My mom tells me she’s afraid of the
needed and staff should be checking on night staff, that they are rough and
residents to make sure they are OK.” mean to her. Other residents say the
24 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

same thing. I believe her, but I can’t Family members talked about the need for
take her home.” family advisory and support groups as offi-
• “The other night, the aide told me that cial groups to advise the administration of
I used the call light too many times so the nursing home about the quality of care.
they were not coming in to my room They thought the groups could be helpful for
anymore that night.” (spoken by a family and staff communication and as a
resident) means for them to “make the staff follow
There were many accounts of missing through.” Family members supported each
property. other informally and described a network of
• “She keeps losing clothes. They should watching each other’s resident family mem-
keep track of her things.” ber, much like a community neighborhood
• “My grandmother lost her teeth, lost watch.
her hearing aids, lost her glasses. Participants explained about “being there”
There ought to be an insurance policy with the following statements.
that the homes could buy to cover the • “You have an obligation to come in and
cost of replacing lost hearing aids and check on your loved one and be sure
false teeth. I can’t afford to replace they are being taken care of properly.”
them for my grandmother and she • “If it’s going to work in a place like this,
does not have the money. She spends it’s partly the responsibility of folks on
her money on getting her hair done. the outside, the family, to stay in-
Her allowance barely covers that.” formed. I have no doubt that there are
some residents who go for months and
Family involvement not see a family member. I don’t stay
long but I come often and it works for
Family members believed that their in- my mom.”
volvement in the care of their loved one is ab- • “We have a little network like the
solutely critical to the quality of care their neighborhood watch within the nurs-
family member receives. They talked about ing home itself. You keep watch on my
how they are involved in care. They ex- mom and I will keep watch on yours.”
plained how they make sure to “be there” Participants explained about the need to
often and how they have an obligation to be “make the staff follow through.”
in the nursing home frequently. • “You have to let staff know what you
They perceived the need to “make the staff don’t like and what you will not put up
follow through” to correct problems with the with. You have to be very clear with
care. They saw that their involvement is crit- administration when something is un-
ical to make staff follow through and provide acceptable.”
the right care. This view is extremely impor- • “I leave staff detailed instructions
tant. Every group discussed how it is neces- about how to care for my mom when I
sary to be present frequently in the nursing leave for vacation.”
home to be sure the care is being done right. • “Families need to have an advisory
They described that they believe their pres- board to tell administration what they
ence as involved family helps their resident want, what they think of the care, and
get better care. They thought those residents how it could be better.”
without involved family are more likely to be Many women in the groups described
overlooked when staffing is short. services they provide directly, such as wash-
Nursing Home Care Quality 25

ing the resident’s personal clothing. Many likes. Families and residents related diffi-
family members said they come in for every culty in getting the staff to follow through,
meal to feed their parent, spouse, grand- especially with individual needs, likes, and
mother, or aunt. They bring special foods dislikes.
from home and restaurants because some • “At the care plan meeting, they said
residents do not like food in the nursing they would get special spoons and cups
home. for her but I never saw them. Shouldn’t
• “I do my mom’s laundry and my aunt’s there be a sheet for the aides so they
laundry to make sure things don’t get could see what care should be given
lost and things get clean.” and what should be done for each resi-
• “She’s not hungry simply because we dent, like make sure they have a special
have a little refrigerator in her room spoon or take them to church?”
and anytime she doesn’t feel like she • “I spent two hours filling out papers
has enough at a meal, she has things about likes and dislikes. My mother
in her room that she can eat.” does not eat chocolate. After she had
Family members saw the need for political been here a few days, I came while she
action. Many had gone to local and state was eating a meal and she had choco-
politicians to see that regulations are late pie. I was upset, I felt like they
changed. They particularly see the need to didn’t listen or pay attention. Why ask
change staffing regulations to get more staff me all those questions if you are not
to care for residents. going to use the information?”
• “I put a little note above her television.
Communication She loves Jeopardy, she loves Wheel of
Fortune. I come in and rap singers are
Communication is an important dimen- on television.”
sion of quality of care, according to con- Communication with residents was very
sumers. Their comments reflected three important to residents. Many family mem-
basic components: (1) communication within bers thought the communication with resi-
the facility to assure that staff follow through dents was quite positive and many related
with specific resident needs, likes, and dis- positive experiences. Family members were
likes; (2) communication with families; and aware of the need to meet the special needs
(3) verbal and nonverbal communication and basic needs of residents who need ver-
with residents. Several families commented bal and nonverbal reassurance.
about participating in care planning.
Communication was discussed in detail in
every group. Consumers were very aware of
the need to have systematic approaches to
communication among staff members, resi- Consumers were very aware of
dents, and families to ensure that individual the need to have systematic
needs are met. They discussed how com- approaches to communication
puters might help and the role of medical among staff members,
charts. Also discussed were their own at- residents, and families to
tempts at leaving written communication in ensure that individual needs
their individual family member’s rooms to are met.
draw attention to individual likes and dis-
26 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

• “They smile and they give me a hug.” grandmother does not understand that
(stated by a resident) this woman cannot get out of her wheel-
• “I know the nurses are busy. But often chair and do anything to her. So, she
they’ll tell me, I’ll bring that back to lives in constant fear.”
you and then they never come back.” • “His roommate has the TV blaring
(stated by a resident) at top volume and hollers night and
day. He doesn’t bother to push the but-
Home ton for the nurse. He yells ‘hey, hey, hey’
at the top of his voice. It is disturbing.”
An important dimension of care quality
that families and residents perceived is that Environment
the nursing home is “home now.” While care
delivery is needed within the nursing home, Residents and families clearly described
it is important that the setting “feel” like the important features of the environment
home, not institutional, because residents that are related to quality of care. There
“live” in the setting sometimes for many should be no odor and the home should be
months or years. clean. It should not be noisy. Areas should
• “I wanted a place that felt like home for be spacious. Furniture and equipment should
mom. I walked in here and it did not be functional, pleasant, coordinated, and in
look like an institution. This is the most working order. Grounds should be inviting
warm and home-like place I visited. This and accessible to residents and families;
is home to her now, she enjoys it here. there should be space for walking and push-
Mom says she would not move now.” ing wheelchairs outdoors. The environment
• “I have my own room and the only one should be well lit and have many windows
in the whole place with a lock. I am a for natural light and viewing outdoors. Floors
very private person. I saw the room should be clean and well maintained. The
and I actually fell in love with it. You building should be secure. Confused resi-
know, it’s mine. It’s really meant for dents who are likely to wander out of the
two people and in a million years I building should have a safe place to be in-
could never, ever, live with anyone doors and outdoors. The general milieu
else.” (stated by a resident) should be pleasant. Plants and animals
Because this is to be a resident’s home, should be encouraged to live at the nursing
there are some issues that can be very dis- home as well. As one participant summa-
turbing to some residents and families. rized, “The overall environment should be
Most of the disturbing issues are related to clean, well lighted, pleasant, smell clean (not
having to share a room, now their home, of urine or body odors), and have a staff that
with another resident. Traditional nursing cares about the residents.”
home settings have many (if not most) dou- Descriptions about odor and cleanliness
ble rooms that residents must share. Con- included the following:
sumers thought that nursing homes should • “It should smell good; it should not
consider planning for more personal space smell bad.”
as buildings are remodeled or new construc- • “It’s got to be clean and this place is re-
tion is undertaken. ally clean.” (stated by resident)
• “Her roommate cusses her and threat- Noise also is important. Noise can be very
ens to kick her butt everyday. My confusing to residents. Family members were
Nursing Home Care Quality 27

sensitive to the extra noises created in some but if that is the only way that someone
nursing homes. can keep my mother safe, then yes.”
• “Some wings are very noisy, TVs too • “Pleasant milieu makes the environ-
loud. Buzzers should not be going off.” ment better in which to live.”
• “Some residents constantly yell. That • “[It should be] a pleasant atmosphere.”
is upsetting.” • “They have a cat in this area too. An
Residents and families wanted areas to be aquarium would be nice.”
spacious. Overall, the environment is critical to nurs-
• “Rooms should be spacious; rooms ing home care quality. Participants quite suc-
should be larger; corridors wider.” cinctly summarized this importance.
• “[There should be] pleasant places to • “Well, I think that probably the main
visit and socialize with company and things for a nursing home would be
family.” good help, good food, and a clean place.
• “[There should be a] choice of double or I think, that is what most people really
single rooms.” expect out of life, you know; being able
Furnishings and equipment are impor- to live in a good clean place and have
tant. Consumers wanted furnishing and decent food.”
equipment in good repair, functional, and
aesthetically coordinated and pleasing. Ad- Cost
ditionally, grounds should be inviting and
accessible to residents and families. While not a specific dimension of nursing
• “They should be able to see outside home care quality, discussions of cost oc-
and they can see the sunshine, flow- curred in every group. Cost appears to be an
ers, bird feeders, and gardens. My overlying issue that has the potential to im-
mom loves to raise flowers. She loves a pact every dimension. Consumers were very
vegetable garden.” concerned about the cost of nursing home
• “It would be nice if they had a place care. Both families and residents have basic
where they could exercise; where they expectations about the quality of care resi-
could take a walk around outside.” dents should receive for the money they pay
Lighting is an important environmental (or the Medicaid program pays) for nursing
issue. Aging eyesight needs good lighting home care.
and minimal shadows. Statements included • “I don’t care who it is, when you are
the following: paying $95 a day, you want personal
• “[There should be] nice large windows, attention, you want good care.”
blinds not drawn so residents can look There were different points of view about
outside.” how quality of care is affected by whether
• “[It should be] bright. It should not be care is paid by a resident’s savings or Med-
dark inside.” icaid. Some believed quality is unaffected by
Non-glare, non-slip floors and flooring is payment source. Some believed quality of
important for encouraging people to be as care and service simply are not what they
mobile as possible. Additionally, safety was should be when paying $3,000 or more per
important, especially to family members. month.
• “Here they have residents who wander • “There’s no difference in paying $2,000
locked in the special unit. No, I don’t like or $3,000 a month, you’re still going to
to see my mother under lock and key, get a Medicaid-type service.”
28 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

Another issue they discussed was the anger at the financial consequences of deci-
cost of additional services for which resi- sions made earlier in life.
dents or families pay to enhance the quality • “My mother saved lots of money over
of care. Many pay for services from agencies the years by living with me and my
outside the nursing home to come into the sister. At around $3,000 a month for
nursing home and provide basic care. For care here now, all that money will be
example, many families pay (from resident gone.”
personal savings or from family resources) • “One time I was visiting and just got
private-duty nurses or private-duty nursing overwhelmed. I thought, as hard as
assistants to make sure family member they have worked their whole life and
is toileted, fed, and bathed. These services saved for this time in their life, now
are supposed to be included in the services all that is gone and they are reduced
that are provided by nursing home staff. to two single beds, TV, and two
However, some families found it necessary dressers.”
to pay private-duty staff to provide these Families were concerned that the cost of
services and pay the nursing home for care nursing homes are unreasonably inflated
as well. by nursing home operators. They ques-
• “I pay $18 an hour for a private duty tioned that the primary reason nursing
nurse to give my father showers be- homes exist is that they are businesses.
cause I want to make sure he gets a Families were concerned particularly that
shower.” quality of care is compromised while profits
Families were very concerned about the are enhanced.
cost of extra supplies, medications, beauty • “This place prides itself on being home
shop expenses, hearing aides, and false grown, loving, and caring, owned by
teeth. They noted that the “extras” like people who live here, but it’s a busi-
beauty shop expenses are important to resi- ness, you know, it’s a business.”
dents and impact their perception of quality • “Now they are making money on occu-
of care and quality of life. The fact that hear- pational therapy. They ordered OT for
ing aides and false teeth are basic to care my mom, who could not possibly re-
quality and essential for many residents to spond to OT; the bill was over $1,000 a
participate in activities and enjoy meals also month.”
was discussed. Consumers were very concerned that the
• “If mother runs out of Depends, they top priority or central focus of the nursing
charge $30 and we can get them for home is making money for the owner or
$12 to $16.” shareholders. They want residents and fam-
• “In her apartment, her prescriptions ilies to be the central focus of the agency.
were $150 to $200 a month; here they • “Making money is their number one
are about $1,000 a month. I just can’t priority.”
fathom how it costs five times as much • “The only priority should be the resi-
as Walgreens to do this.” dents and their families.”
Families lamented about watching a life- Cost is a complex issue related to quality
time of savings be consumed in a few of nursing home care. Consumers recog-
months or years to pay for the care they or nized that the service is costly and they re-
their family members need. Sometimes the sented life savings being depleted before
comments were filled with a sense of guilt or Medicaid assumes coverage. They wanted
Nursing Home Care Quality 29

the quality of the service to somehow be bet-


ter and reflect the expensive cost of the ser- Results of a standardized,
vice. They wanted to be sure that not too benchmarked resident and
much of the cost is being distributed as prof- family satisfaction survey
its. They wanted residents and families to be potentially could tap all
the agency’s top priority rather than making dimensions of the consumer
money and profits. Nursing home care is no model of nursing home care
exception to basic economic and social ten- quality.
sions between cost and quality.

QUALITY MEASURES

The consumer multidimensional model of COMPARISIONS OF PERSPECTIVES:


nursing home care quality provides direction CONSUMERS VS PROVIDERS
for quality measures. Box titled “Potential
Quality Measures of the Consumer Multi- Prior to this study of consumer perspec-
dimensional Model of Quality in Nursing tives of nursing home care quality, focus
Home Care” lists examples of potential meas- groups were conducted with a sample of par-
ures derived directly from the model and ticipants with extensive experience in provid-
from participant suggestions. The list is cat- ing nursing home care.1 The provider sample
egorized by each dimension; following each included nursing home administrators, nurs-
item is an indication of whether the item is ing directors, social workers, activity direc-
measuring structure, process, or outcome. tors, ombudsmen, physicians, nurses, state
Process measures are emphasized particu- regulators, long-term care consultants, and
larly. This is not surprising when one con- other professionals with extensive experience
siders that care delivery is heavily dependent in nursing homes. These providers were
on processes carried out by nursing home asked to describe nursing home care quality,
staff. Some items in the list in the box are particularly those features in homes where
very similar to the potential quality measures they believed excellent care was being deliv-
suggested by the providers in the earlier ered. The converse was explored in depth as
focus groups by Rantz and colleagues.1 Many discussion of homes where they believed poor
items on the list could be measured by mak- care was being provided. As illustrated in Fig-
ing observations in nursing homes. Some ure 2, the analysis of the provider perspective
would require additional data collection from revealed seven dimensions of nursing home
facilities. Comparative facility outcomes for care quality: (1) central focus on residents
care problems, such as incontinence, skin and family, (2) interaction, (3) milieu, (4) en-
breakdown, declining activities of daily living, vironment, (5) individualized care, (6) staff,
restraint use, and medication use, could be and (7) safety.1
analyzed from assessment data collected by While some of the features of the dimen-
facilities and submitted for statewide or na- sions identified by providers also were iden-
tionwide analysis. Results of a standardized, tified by consumers in this study, there are
benchmarked resident and family satisfac- some interesting differences. The core vari-
tion survey potentially could tap all dimen- ables that emerged in the study of providers
sions of the consumer model of nursing home were interaction and odor. Providers were
care quality. sensitive to the importance of staff really
30 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

Potential Quality Measures of the Consumer Multidimensional Model of Quality


in Nursing Home Care

Staff
• adequate numbers of staff to care for residents (structure, process)
• low staff turnover (structure, process)
• consistent staff care for the same residents (structure, process)
• nurses supervise the care provided by nursing assistants (structure, process)
• staff trained to provide care correctly for each resident (structure, process)
Care
• residents are clean, dressed, well groomed (process)
• residents are taken to the toilet, incontinence is managed or reversed (process, outcome)
• residents have good food and are assisted with eating as needed (process)
• residents do not experience weight loss (outcome)
• residents are helped with ambulation and mobility needs (process)
• residents maintain or improve walking or other mobility skills (outcome)
• residents are transferred using appropriate safe transfer methods (process)
• residents who need false teeth, hearing aides, glasses, and so forth have them (process,
outcome)
• residents are treated as individuals with dignity and respect (process)
• residents participate in activities and have many options for activities (process, outcome)
Family involvement
• families and other visitors visit frequently (process)
• families are involved in care and care decisions (process, outcome)
• families have an advisory board to influence care delivery and services in the facility (process)
• families participate in care planning (process)
Communication
• resident likes, dislikes, and needs are communicated systematically so that staff follow
through and assure they are met (process, outcome)
• families and staff communicate regularly about resident needs and care (process)
• residents receive verbal and nonverbal caring, reassurance, and encouragement from staff
(process)
• staff smile at residents, touch them, and hug them at times (process)
Home
• residents and families perceive the nursing home is “home” now (process, outcome)
• residents have adequate personal space (structure)
• residents have a compatible roommate or a private room (structure, process)
Environment
• lack of odors of urine, feces, disinfectants (process, outcome)
• clean environment (process, outcome)
• low noise level (process, outcome)
• spacious rooms and common areas (structure)
• choice of single or double rooms (structure)
• wide corridors (structure)
• equipment and furnishings in good repair and aesthetically coordinated (structure, process,
outcome)
• grounds well maintained and accessible (structure, process, outcome)
• good lighting and windows for natural light (structure)
• non-glare, non-slip, clean floors (structure, outcome)
• safe areas for people who wander (structure)
• pleasant atmosphere where people feel comfortable (structure, process)
• animals such as dogs, cats, birds, and other pets visit or live in the facility (process)

Courtesy of MU MDS and Quality Research Team.


Nursing Home Care Quality 31

Individualized
Interaction Care

Staff really talk with residents Staff know individual resident needs
and take time with them as well as personal and health
history; staff ensure those needs are
Residents engage in activities met and incorporate past into
and conversations with staff conversations, activities, room
furnishings, and health care

Residents Residents engage in activities and


conversations with staff

Milieu and Staff

Families Staff knowledgeable, well ttrained,


Calm but active and friendly
place where people live professional

Presence of community,
CENTRAL FOCUS RNs involved in care decisions and
volunteers, children, and pets care delivery to residents

Environment Safety

Lack of odor (poor care is Residents feel safe and secure


associated with odors of urine,
feces, or disinfectants) Cognitively impaired have safe place
to wander indoors and outdoors
Clean, well maintained, well
lighted

Figure 2. Dimensions of quality in nursing home care. Source: Reprinted from Marilyn J.
Rantz et al., Nursing Home Care Quality: A Multidimentional Theoretical Model, Journal of
Nursing Care Quality, Vol. 12, No. 3, pp. 30–46, © 1998 Aspen Publishers, Inc.

talking with residents and engaging them should follow through and see that the care
in activities and meaningful conversations. each resident needs actually is provided.
Providers also were very aware of how odor They want the basics of care consistently
is a tangible indicator of problems with care done so that residents eat well and are
delivery. bathed, clean, well groomed, taken to the
Although consumers are concerned about toilet regularly, have their medical needs
these same issues and recognize their im- met, and treated as people. Consumers are
portance, the core variables from their per- clear that their primary concerns are staff
spective are staff and care. The bottom line and care. They are much clearer than
from consumers is that without good staff providers about the need for supervision by
nothing else is possible. With that said, the nurses to see that care is done, that it is
most important feature of nursing home done right, and that training of nursing as-
care quality is the care itself. The bottom line sistants is conducted to know how care
from consumers about care is that staff should be done.
32 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

Consumers are more detailed in their de- dents; in fact, there is a complete category
scriptions about care and their charge that within the provider model illustrating the
staff should take care of the basics is much importance of interaction. However, the
stronger than the descriptions by providers issue of systematic efforts to communicate
about individualized care. Consumers de- and assure follow through with resident
scribe, in painful detail, their experiences likes, dislikes, and needs seems to be lack-
with resident injuries, incidents, and lost ing from the provider view.
property. These issues were not discussed in The issue of follow through by staff is ad-
the provider groups. While consumers, both dressed in the provider groups as a part of
residents and family members, acknowledge the safety dimension. In that dimension,
how accidents can happen and mistakes can providers are aware that residents and fam-
be made, they want staff to take steps to re- ilies must feel secure and have confidence
duce the severity and frequency of injuries, that the residents will be well cared for
incidents, and lost property. Every con- 24 hours each day. Implicit in this descrip-
sumer group discussed the problems with tion is that staff will provide the care and
lost hearing aides, dentures, clothing, valu- attention that each resident needs.
ables, and small amounts of money. These Family involvement is a new category and
issues need attention by providers. Con- a critical dimension of quality in nursing
sumers suggested some kind of insurance home care. Families are adamant that they
policy to help defray the cost of replacing must be there and be involved in the care to
hearing aides and dentures. Perhaps this ensure staff follow through and provide the
suggestion should be pursued. care that is needed. Additionally, families
Families are quite sophisticated in their enhance the quality of the services by doing
observations of communication systems (or some direct services themselves such as per-
lack thereof) in nursing homes. They cannot sonal laundry and special foods. The only
understand in this day of computer support acknowledgement of this category among
for communication that information about the provider groups is a description in the
resident likes, dislikes, and needs is lost fre- individualized care category that residents
quently. Staff members collect a lot of infor- and families are involved and have a voice in
mation from families about each resident, care. Clearly, in the consumer groups, fam-
but families are amazed that no one seems ily members see their role as pivotal. This is
to be aware of the information. Consumers much different from the provider view of
expect that systems of communication exist families having a voice. Kelly, Swanson,
within the nursing home so that all staff Maas, and Tripp-Reimer34 found similar per-
members are aware of the individualized spectives of families in their studies about
needs of each resident. They are angry, dis- family involvement in care.
appointed, and frustrated by the apparent Another category that emerged from the
lack of follow through by staff when individ- consumer groups is the category that the
ualized information is not used to plan and nursing home is home now. This is important
direct care. This perspective about the im- for residents and families. People need to feel
portance of systems of communication be- that their primary residential environment
tween staff and the importance of communi- is somehow home to them. In many nursing
cation with families is absent in the provider homes, this is difficult due to space con-
focus groups.1 Providers are quite sensitive straints and provider philosophy. The con-
to the importance of interaction with resi- cept of home was mentioned in the provider
Nursing Home Care Quality 33

groups in that resident rooms should be as the providers clearly discussed, said they
personalized for each resident with items want the central focus of the home to be on
from a resident’s past. The dimension of residents and families. Both consumers and
home is of greater significance to consumers providers agreed that a central focus of the
than providers acknowledged in their groups. home on profit and making money is not ap-
Some residents in the consumer focus propriate. They acknowledged the need for
groups revealed that they feel the nursing the home to make sufficient money to deliver
home is home for them now. They explained good care and services, but they objected to a
that it is important for them to feel a sense of central focus of making profits for sharehold-
security and belonging that the word home ers or owners. The central focus should be on
implies. They explained that they have space the residents, families, and services to the
for a few belongings. Some residents com- residents.
mented that they have private rooms and
want to have their own space. Other residents MERGING THE PERSPECTIVES OF
commented that they have nice roommates, CONSUMERS AND PROVIDERS
are able to have some of their things, and still
feel a sense of home. Others commented To understand best the multidimensional
about bad roommate situations or behaviors concept of nursing home care quality, an
of some residents they find disturbing. Pro- analysis was undertaken to merge the per-
viders need to consider the quality dimension spectives of consumers and providers. This
of home as they design new living spaces and analysis resulted in the Consumer and
need to reconsider the mix of semi-private Provider Integrated Multidimensional Model
rooms or larger wards in favor of private of Quality of Nursing Home Care illustrated
living spaces. Some consumers want the pri- in Figure 3.
vate space to feel the sense of home. Those in The model illustrates that the central focus
double rooms want a compatible roommate. of the agency is on residents, families, staff,
Interestingly, consumers and providers and community. The agency is providing an
agreed on many aspects of the environment important community service by addressing
for good nursing home care. Both agreed it the needs of families who have members in
should be clean, there should be no odor, need of nursing home services. The agency
and it should not be noisy. It should be spa- recognizes the importance of staff and how
cious, bright, well lit, have many windows, staff are essential to care quality and meet-
and have non-glare safe flooring. Grounds ing each resident’s individual needs. Fami-
should be well maintained, accessible, and lies and residents are acknowledged as cen-
inviting, have safe places for residents who tral to the mission of the agency.
want to be outdoors, and have places for Immediately adjacent to the clear central
families and other residents to enjoy being focus, the next dimensions are illustrated:
outdoors and gardening, if possible. care, staff, and environment. In the quality
Cost is an overriding issue that consumers, model, residents receive the basic care they
especially family members, articulated ex- need. There are adequate numbers and
tensively, substantially more than providers. types of staff, consistent staff who know
They think quality should be unaffected by each resident. The environment is clean,
payment source and that public payment for odor free, spacious, pleasant, and well lit.
nursing home care should not require that The final layers of the dimensions are com-
life savings be exhausted. Consumers, just munication, family involvement, and home. It
34 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

Home
• This is home now
• Presence of community,
volunteers, children,
pets, and plants
• Priority of home: resident and
families vs. profit

Staff Care
• Enough staff • Consistent staff • Take care of the basics
• Low staff turnover • Minimize resident
• Enough supervision and injuries incidents,
training Central focus: and lost property
• Follow through with care • Individualize care
residents, • Treat residents as people
• Adequate pay and scheduling
to recruit and retain families, • Good food and
• Staff who are responsive, staff, and assist with eating
compassionate, caring, • Engage residents in
community activities
clean, and well-groomed
• RNs involved in care

Environment
• Clean •
Odor-free
• Not noisy •Spacious Family involvement
• Furnishings/equipment
Communication functional, in good
• Be there
• Systems of repair, and aesthetically • Make staff follow
communication coordinated through
to assure follow • Grounds inviting and • Family advisory/
through with accessible support group
resident needs, likes, • Good light, lots of windows to • Provide some personal
and dislikes view outside care/services
• Good communication with • Non glare, non-slip flooring • Political action
families • Safe •Pleasant milieu
• Positive verbal and nonverbal
communication with
residents
• Staff really talk with residents, take
time with them

Figure 3. Consumer and provider integrated view of quality of nursing home care.

is important to have systems of communica- conversations. Families are involved in the


tion in place to ensure follow through with care, hold the staff accountable for the care,
resident needs, likes, and dislikes. Good and have the opportunity to participate in
communication with families and residents advisory and support groups. There is a
is essential. In quality facilities, the staff sense that this is home for the residents,
really take the time to engage residents in with the presence of pets and plants. The
Nursing Home Care Quality 35

community is involved with frequent visits tion methods in nursing homes. An instru-
from volunteers and children from churches ment based on the consumer and provider
and schools. integrated model is being tested by this re-
search team to observe and score the di-
IMPLICATIONS AND FUTURE mensions of nursing home care quality. The
DIRECTIONS authors are exploring the relevance of the
model for short-term stay nursing home res-
Understanding the dimensions of quality idents. The authors are working on a con-
nursing home care from the perspectives of sumer guide based on the integrated multi-
both providers and consumers is an ex- dimensional model that will be helpful for
tremely important step toward achieving potential residents and their family mem-
quality. Much of what was learned from the bers to use when selecting a nursing facility.
research would seem to be achievable. Nurs- Instruments developed from the multiple di-
ing home care quality is multidimensional mensions of the model will guide families to
and can be explained in a conceptual model assess areas they might not have consid-
that integrates the views of consumers and ered. More informed consumers and their
providers. To pursue quality, these dimen- families can only help improve care quality
sions must be of primary concern to the fa- in nursing homes.
cility: central focus, care, staff, environment, The authors agree that much continued ef-
communication, family involvement, and fort and attention is needed to improve the
home. All dimensions must be considered quality of care provided in nursing homes.16
seriously and resources must be committed The conceptual model of nursing home care
to operationalizing each dimension. Paying quality will help guide quality improvement
attention to these dimensions, making it efforts. The model presented illustrates the
clear that the central focus of the agency is current thinking of the important multi-
residents, families, staff, and community, dimensional nature of nursing home care
and committing to the pursuit of nursing quality from consumer and provider points
home care quality is sure to improve the of view. As an understanding of quality ad-
quality of care residents receive. vances, new or additional features of the
Providers have a challenging task of model may emerge. As features emerge, it will
providing a positive environment and effec- be necessary to refine the model to assure it
tive care for nursing home residents. This reflects accurately the complex, multidimen-
model encompasses broad categories of sional nature of nursing home care quality.
care delivery that make nursing homes Although the pursuit of quality and an un-
pleasant or horrible places to be. While the derstanding of it is dynamic and continuous,
model primarily focuses on care processes, it the model integrating the views of providers
is complementary to other structure and and consumers provides a framework for a
outcome measures developed for nursing conceptual definition and the development
home care.3,17,22 The model, and instruments of reliable and valid measures of nursing
derived from it, can assist in interpreting the home care quality. Finally, the model high-
multidimensional concept of nursing home lights the features of quality and orients
care quality and the variety of approaches to providers, consumers, and policy makers to
measuring it. features that, in the spirit of quality im-
The authors are further developing and provement, must be operationalized, main-
testing the model using participant observa- tained, or improved.
36 JOURNAL OF NURSING CARE QUALITY/OCTOBER 1999

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