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Great Ormond Street Hospital for Children NHS Foundation Trust: Information for Families

Attention deficit hyperactivity disorder


(ADHD)
It is common for children to be highly active,
especially at younger ages. In most cases, this
is normal behaviour and they will gradually
grow out of it. However, for some children,
there could be an underlying difficulty, such as
attention deficit hyperactivity disorder (ADHD).
This information sheet from Great Ormond
Street Hospital (GOSH) explains about ADHD
and where to get help.

Core symptoms of ADHD are difficulty There are also likely to be environmental
concentrating, hyperactivity, and acting factors that increase the risk of a child
impulsively (such as doing things without developing ADHD if they have a genetic
thinking through the consequences). Some predisposition.
children may present with difficulties with one There may also be structural brain differences
or more of these core symptoms. or differences in the actions of certain
ADHD is a neurodevelopmental disorder and chemicals in the brain (neurotransmitters).
refers to a pattern of behaviour that affects Previous theories about diet causing
a child in most situations, is evident from an hyperactivity are not supported by recent
early age and can persist into adolescence research. However maintaining a balanced
and adulthood. The condition often becomes diet, good nutrition and exercise is important.
apparent when a child starts school and
Boys are more likely than girls to be
teachers may notice that a child finds it hard
diagnosed with ADHD. However, it is thought
to sit still, struggles to pay attention, or blurts
that girls may be underrepresented in
out answers in class.
referrals to ADHD services and ADHD can
ADHD can have a big impact on school, peer go unrecognised in girls. There are several
relationships, self-esteem and family life possible reasons for why this might be. One
without appropriate treatment. theory is that girls tend to present with more
inattentive symptoms than hyperactivity
(although not always the case) and therefore
What causes ADHD?
are not noticed or seen as a problem. The
There are many theories about what impact of ADHD on girls however, particularly
causes ADHD. if ADHD is missed, can be significant. Without
It tends to run in families suggesting a appropriate treatment, young people with
genetic risk. However, the inheritance is likely ADHD are at increased risk of developing
to be complex and there is no one gene that anti-social behaviour, learning and social
causes ADHD. difficulties and emotional difficulties.

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Approximately 60 to 80 per cent of children environment is crucial and it is good practice
with ADHD will have at least one other for teachers’ observations to be incorporated
condition; such as a social communication into an assessment.
disorder, considerable language, reading Professionals may also carry out a school
(dyslexia) or motor (dyspraxia) difficulties. observation as part of the assessment to see
Children with ADHD often have learning how the child behaves both in the classroom
challenges and perform poorly on tasks that and playground settings.
measure executive function, which are a group There are some standards for diagnosing
of behaviours that guide behaviour (such as ADHD, agreed internationally. One or both
thinking before doing, planning, organisation of the following core symptoms should be
and so on). Children with ADHD can vary in present in multiple settings (at home and at
their performance on learning tasks from one school). They are:
situation to another and there are several
theories as to why this might be; with one
Inattention
such theory suggesting a general impairment A child or young person with inattention
in regulation. Young people and parents also symptoms would find it difficult to pay
report variability in symptoms depending on attention to detail or makes silly mistakes
the child/young person’s interest in an activity when working and playing; they may not
or whether there are rewards. finish work or find it difficult to sustain
attention for long periods; and they may often
lose their belongings and be forgetful.
How is ADHD diagnosed?
Hyperactivity and Impulsivity
There are no specific tests used to diagnose
A child or young person who is hyperactive and
ADHD. The diagnosis is made by a qualified
impulsive tends to be on the go and rarely sits
healthcare professional with training and
down quietly or when they do sit they tend
expertise in ADHD (such as a Paediatrician,
to fidget a lot. They may have trouble waiting
Psychiatrist or Clinical Psychologist). Assessment
their turn and will interrupt others conversation
often involves: taking a detailed developmental
or play. They can also talk excessively.
and psychosocial history, observation of the
child and use of standardised questionnaires, Symptoms should be present before age 12
sometimes psychological tests, and wherever years, present in two or more settings, (such
possible consideration of the child/young as at home, school or work; with friends
person’s view of their symptoms and the impact or relatives; in other activities) and there is
of these on their daily life. clear evidence that the symptoms interfere
with, or reduce the quality of, social, school,
It is important to rule out other conditions
or work functioning.
that can look like ADHD and it is therefore
important to have a professional assessment to A child suspected of having ADHD should
check for these, which may involve a broader be observed with other children of a similar
group of professionals such as Speech and developmental age.
Language Therapists, Clinical Psychologists and If the child seems to be showing more
Occupational Therapists. behavioural difficulties than the others, ask
A diagnosis of ADHD can be considered but the following questions:
will not usually be confirmed until a child nn Does the child have a shorter attention
is around six years old and starts school but span than other children of the same
can also be noted later as challenges are developmental age? For instance, while a
sometimes more evident for children with story is being read does the child leave before
inattention in secondary school. The input of the end while the others stay and listen?
teachers as observers in a structured school nn Is the child always restless, fidgety, on the

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go and out of their seat at mealtimes? Do Other approaches
the school give similar reports?
Organisational skills
nn Is the child very impatient and unable to
Another way to help manage symptoms is
wait their turn in a queue or game?
organisation. This might include having a set
nn Is the child very excitable and impulsive?
routine which can make a difference to how a
Does the child suddenly do things such as
child or young person with ADHD copes with
darting into the road without thinking
everyday life.
about whether it is safe?
As part of this, clear boundaries should be set
If the answer to these questions is yes, and these
so everyone knows what behaviour is expected.
are having an impact on the child’s life consult
Any instructions to the child must be very clear.
the child’s family doctor (GP), who can refer
Give concrete instructions rather than abstract
them to a local specialist for further assessment.
ones. For example, say ‘put the toys in the
box and put the books on the shelf, please’
How is ADHD treated? rather than ‘tidy your room, please’. For older
children, they may need advice and support on
With appropriate intervention, children
organising their belongings and schoolwork.
with ADHD can lead normal lives.
The main treatments are: Reward schemes for appropriate behaviour
can also be very successful (such as using
Group based parent training/ sticker charts).
education programmes
Learning support and adaptions
This is to help parents learn specific skills to
to classroom environment
manage behaviour and many parents benefit
from the support they get from meeting other Children and young people with ADHD may
parents living with a child or young person struggle at school due to their symptoms and
with ADHD. may feel ‘left behind’ by their classmates. In
these cases learning support can be arranged.
Group or individual
Arranging learning support with the school
psychological therapy
through an Individual Education Plan can make
Cognitive behavioural therapy (CBT) and/ a huge difference. It is best to discuss this with
or social skills training (SST) for children and the class teacher or Special Education Needs and
young people which target social skills with Disabilities Coordinator (SENDCO) at the school.
peers, problem solving, self-control, listening
Some adaptations to the physical environment,
skills and expressing and managing feelings
particularly in the classroom can be helpful. A
can be helpful.
few examples include:
Medicines nn Seating a child with ADHD in a place
One type of medicine which can be prescribed that has limited distractions, and in a
for ADHD is called methylphenidate (brand quiet environment
name Ritalin®). This has been proven to be nn Frequent movement breaks
effective in managing symptoms of ADHD.
nn Providing stimulating activities to
There are other related medicines that capture interest
also work well, such as dexamphetamine
nn Keeping instructions concise and clear
or atomoxetine. These medications should
only be prescribed by a specialist following nn Breaking down tasks into a series of
thorough assessment, and require regular small steps
monitoring to check for improvements in nn Providing frequent positive feedback
symptoms and avoid any side-effects. There is some evidence that exercise can help
reduce symptoms and impairments commonly

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seen in ADHD. Other research is looking While some children’s symptoms may decrease
into the effects of mindfulness training for overtime, and they may no longer meet
attention difficulties seen in ADHD. diagnostic criteria for the disorder, for other
There is no cure for ADHD but the above children their symptoms and the impact of
interventions can help a young person to these on their lives can persist into adulthood.
manage their symptoms. It is estimated that ADHD can persist in
approximately 2-5 per cent of cases and many
people will continue to require strategies to
What happens next? manage their symptoms.
Living with someone who has ADHD can be
exhausting. Parents often say that they feel
worn out just from making sure a child with
Further information
ADHD does not get into trouble. and support
Going out and about might be difficult if the nn The National Institute for Health and Care
child is constantly ‘on the go’ and does not Excellence provides national guidance and
understand the ‘rules’ that come with social advice to improve health and social care.
occasions. Siblings may also find it hard if There are NICE guidelines on ADHD online
much attention is focussed on their brother at www.nice.org.uk/guidance/cg72
or sister, and as they grow older, might feel There are a number of books on helping a
embarrassed by their behaviour. child with ADHD available to buy or borrow
All these feelings are normal. It is important from your local library:
to remember that the child or young person is nn Cathy Laver-Bradbury (2010) Step by
not necessarily behaving badly on purpose. step help for children with ADHD: a self-
For children with ADHD, getting through help manual for parents. Jessica Kingsley
school can be problematic. They may get Publishers ISBN 1 849 050 708
into trouble if their condition is not fully nn Joanne Steer and Kate Horstmann (2009)
understood, and their symptoms prevent them Helping kids and teens with ADHD in
being able to learn effectively. This can have school: a workbook for classroom support
long-term consequences, so the earlier the and managing transitions. Jessica Kingsley
condition is recognised the better. Publishers ISBN 1 843 106 639
ADHD is best viewed as a chronic nn Susan Yarney (2013) Can I tell you about
neurodevelopmental disorder – a child will ADHD? A guide for friends, family and
need the right treatment and support to professionals. Jessica Kingsley Publishers
ensure they are able to make the most of ISBN 1 849 053 596
their education and life in the long-term. The Attention Deficit Disorder Information
Symptoms of ADHD change with and Support Service (ADDISS) offers
developmental maturity, a preschool child information and support on ADHD and
may present as excessively active across most related learning and behaviour disorders. Call
situations, and an adolescent may be more them on 020 8952 2800 or visit their website
fidgety than frequently getting up and down at www.addiss.co.uk
from their seat for example. Attention span
can increase with maturity although the
impact of attention deficits on school or
family life may continue.

Compiled by the Child and Adolescent Mental Health Service in collaboration with the Child and Family Information Group
Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London WC1N 3JH
www.gosh.nhs.uk

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