Transcriber:

Bob
Prottas
Reviewer:
Ariana
Bleau
Lugo
Hello
everyone.
I'm
Sam,
and
I
just
turned
17.
A
few
years
ago,
before
my
freshman
year
in
High
School,
wanted
to
play
snare
drum
the
Foxboro
School
Marching
Band,
it
was
a
dream
that
had
accomplish.
But
each
harness
weighed
about
40
pounds
each,
have
disease
called
Progeria.
So
give
you
an
idea,
weigh
only
50
pounds.
So,
logistically,
really
couldn't
carry
regular
sized
drum,
because
of
this
band
director
assigned
me
pit
percussion
during
halftime
show.
Now
fun.
It
involved
some
cool
auxiliary
instruments,
like
bongos,
timpani,
timbales,
cowbell.
fun,
but
no
marching,
so
devastated.
However,
nothing
going
stop
from
playing
with
marching
family
worked
engineer
design
would
be
lighter,
easier
for
carry.
after
continuous
work,
we
made
apparatus
weighs
6
(Applause)
want
more
information
affects
350
kids
today,
worldwide.
it's
pretty
rare,
effects
Progeria
include:
tight
skin,
lack
weight
gain,
stunted
growth,
heart
disease.
Last
Mom
her
team
scientists
published
first
successful
Treatment
Study,
interviewed
on
NPR,
John
Hamilton
asked
question:
"What
is
most
important
thing
people
should
know
you?"
And
answer
simply
very
happy
life.
even
though
there
are
many
obstacles
life,
lot
them
being
created
by
Progeria,
don't
feel
bad
me.
think
these
all
time,
able
overcome
anyway.
I’m
here
share
philosophy
me,
3
aspects
philosophy.
quote
famous
Ferris
Bueller.
The
aspect
okay
what
ultimately
can’t
do
much
can
do.
sometimes
ask
questions
like,
"Isn’t
hard
living
Progeria?"
or
daily
challenges
face?"
I’d
say
that,
time
spent
thinking
things
at
all.
doesn’t
mean
ignore
negative
obstacles.
When
something
run
long
distance,
go
intense
roller
coaster,
missing
out
on.
instead,
choose
focus
activities
through
passionate
about,
scouting,
music,
comic
books,
any
favorite
Boston
sports
teams.
Yeah,
--
(Laughter)
need
find
different
way
making
adjustments,
put
those
"can
do"
category.
Kind
saw
earlier.
here’s
clip
Spider-Man
Band
couple
ago.
(Video)
♫
theme
song
Thank
you.
All
right,
That
cool,
accomplish
band,
as
believe
dreams.
hopefully,
your
dreams
well,
outlook.
next
surround
myself
with,
high
quality.
extremely
lucky
amazing
family,
who
always
supported
throughout
entire
also
fortunate
close
group
friends
school.
we’re
kind
goofy,
us
geeks,
enjoy
other’s
company,
help
other
when
to.
We
see
inside.
goofing
off
little
bit.
juniors
now,
now
mentor
younger
members,
single
collective
unit.
What
love
music
make
together,
true,
genuine,
supersedes
don’t
worry
feeling
good
music.
having
documentary,
TV
times,
highest
point
every
day.
They
provide
real
positive
influences
hope
influence
theirs
well.
bottom
line
here,
appreciate
friends,
guys,
Bro’s
acknowledge
mentors,
community,
they
everyday
truly
significant,
impact.
third
is,
Keep
moving
forward.
Here’s
man
may
know,
named
Walt
Disney,
it’s
one
quotes.
try
look
forward
Something
strive
life
richer.
big.
could
anything
looking
book
come
out,
large
vacation,
hanging
football
game.
keep
focused,
there’s
bright
future
ahead,
get
difficult
times
having.
mentality
includes
staying
state
mind.
not
waste
energy
badly
myself,
do,
stuck
paradox,
where
room
happiness
emotion.
Now,
badly,
accept
it,
let
in,
move
past
it.
younger,
engineer.
inventor,
catapult
world
into
better
future.
Maybe
came
Legos,
freedom
expression
felt
building
them.
derived
whole,
myself.
today
ambitions
changed
bit,
field
Biology,
maybe
cell
biology,
genetics,
biochemistry,
anything.
This
friend
mine,
up
to,
Francis
Collins,
NIH,
TEDMED
last
year,
chatting
away.
matter
become,
change
world.
striving
world,
will
happy.
About
four
HBO
began
film
documentary
“Life
According
Sam”.
great
experience,
anyone,
views
changed,
hopefully
matured,
potential
career
choice.
stayed
same
time.
Like
mentality,
towards
show
self
film,
embodies
genetically.
less
embodiment
now.
used
prevents
doing
stuff,
causes
die,
everybody
stressed,
protein
abnormal,
weakens
structure
cells.
takes
burden
entity.
Okay,
good,
huh?
I’ve
been
years.
never
apply
test
until
January.
sick,
chest
cold,
hospital
days,
secluded
gave
identity.
knowing
better,
again,
helped
brave,
wasn’t
easy.
Sometimes
faltered,
realized
brave
isn’t
supposed
key
all,
philosophy,
you,
regardless
obstacles,
Oh,
wait,
hang
second,
piece
advice
–-
Never
miss
party
if
My
school’s
homecoming
dance
tomorrow
night,
there.
much.