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Jurnal Persalinan
Jurnal Persalinan
This article reports on a study of 551 women’s birth stories that were posted on a birth
stories Web site. These online stories were analyzed for the communication and deci-
sion making that takes place between patients and clinicians during the birthing pro-
cess. In more than half of the stories, the women wrote about at least 1 decision that
was made. Further analyses were performed on the 285 stories in which decisions
were made. According to this analysis, overall, women were involved in decision
making about 57% of the time. The most frequent decision was about painkillers.
Making decisions about painkillers and having a midwife as a primary clinician pre-
dicted a woman’s increased involvement in decision making. Women’s involvement
in decision making correlated positively with the use of positive emotion words and
negatively with the use of negative emotion words in the online birth stories.
Birth stories are everywhere and nowhere. Seen in every movie theater but heard only
in brief gasps of attention in grocery store lines or parking lots, inculcated in prenatal
classrooms but shamed to the edges of conversation, birth stories permeate and haunt
our every day lives. (Pollock, 1999, p. 1)
These words hold some truth today. Birth stories are everywhere—everyone
has a birth story associated with him or her somewhere, whether that person knows
Requests for reprints should be sent to Carma Bylund, Department of Psychiatry & Behavioral Sci-
ences, Memorial Sloan Kettering Cancer Center, 1242 Second Ave., New York, NY 10021. E-mail:
carmabylund@yahoo.com
24 BYLUND
the story or not. Many parents, grandparents, siblings, and friends also hold dear
the narratives of a loved one’s birth. The proposition that birth stories are nowhere,
however, is no longer accurate. The Internet has provided a way for mothers and
fathers to offer their birth stories to anyone willing to read them. The first 100 re-
sults from a google.com search of the phrase “birth story,” provide links to at least
14 Web sites where a person can go to post a birth story for others to read. Add the
myriad other personal and business Web sites where birth stories have been posted,
and it is clear that there are currently many means, for Internet users at least, to read
and share birth stories.
Whether it is on the Internet or face to face, why do so many people, in most
cases women, willingly share birth stories? For some it may be for entertainment
value, to compare stories with other women or to connect with other women
(Soparkar, 1998). Others may see it as ritual—part of the “rite of passage of child-
birth” (Soparkar, 1998, p. viii). Still others may use the birth story as a means for
processing the experience (Simkin, 1992). For health communication scholars, the
birth story provides a means to better understand the woman’s experience with cli-
nician–patient communication during the birthing process. As such, this study ex-
amined clinician–patient communication and decision making through the quanti-
tative analysis of women’s online birth stories.
The use of unsolicited narratives from the Internet is a new, but growing,
method of inquiry, These narratives are a rich source of data for researchers (Rob-
inson, 2001). Although online health support groups and other Internet functions
such as e-mail groups can also serve as a means for sharing narratives about health,
unsolicited narratives are unique and have received little attention from health
communication scholars. These first-person accounts are posted for the evident
function of sharing a narrative with the readers. Such unsolicited narratives, al-
though often written informally with misspellings and grammatical errors, include
powerful expressions of experiences and emotions, as the authors of these narra-
tives may feel more comfortable sharing these than they would in a face-to-face in-
terview. In addition, unsolicited online narratives may allow for voices that have
previously been unheard (Robinson, 2001). The use of these narratives also allows
access to much larger sets of individual stories than can usually be attained through
conventional data-gathering techniques.
BIRTH STORIES
Fisher’s (1987) narrative theory argues that “humans are essentially storytellers”
(p. 64). Although Fisher’s definition of narrative includes more than just birth
stories, the characteristics of narrative he proposes are useful in thinking about
birth stories. Fisher argues that two criteria are important to apply in determining
a narrative’s rationality and, consequently, its ability to teach or persuade. The
DECISION MAKING DURING THE BIRTHING PROCESS 25
stories to older preschoolers (58 months) and to sons. Similarities and differences
also exist in the ways that males and females tell birth stories (Reese, 1996). R. E.
Page (2002) argues that the context in which the story is told must also be recog-
nized when considering such sex differences.
CLINICIAN–PATIENT COMMUNICATION
ior or the patient’s behavior (Braddock, Fihn, Levinson, Jonsen, & Pearlman,
1997; Makoul, Arntson, & Schoefield, 1995). Accordingly, this study, although
from the woman’s perspective, uses an interaction approach by analyzing both cli-
nicians’ and patients’ communication behavior.
Other research has examined issues of involvement in decision making specifi-
cally in the birthing process. Control over decision making manifests itself in dif-
ferent ways during the birthing process. As examples, a woman may refuse the de-
cision that the clinician makes, she may initially oppose the decision but then go
along with it, or she may comply with the decision. There also might be shared
control through explanations or requests (VandeVusse, 1999).
Evidence of the effects on outcomes of a patient’s level of involvement in deci-
sion making during birthing is sparse. Although links have yet to be made between
a mother’s involvement in decision making during birth and health outcomes, stud-
ies have indicated a higher level of involvement to be related to patient satisfaction.
Israeli women who reported more involvement in decisions for obstetric interven-
tions self-reported more general satisfaction with their health care during labor and
delivery than those who reported less involvement (Berg et al., 2001). Patient satis-
faction during birthing is related to the sharing of information and feelings of con-
trol (Green, Coupland, & Kitzinger, 1990; Simkin, 1991). Mothers who report that
they were not given an active say in decision making during birth were less likely
to be satisfied with their care (Brown & Lumley, 1994). Furthermore, explanation
of procedures and mothers’ involvement in choosing among procedures were
ranked highly by women as being important to satisfaction with birth (Drew,
Salmon, & Webb, 1989). However, women do not expect to be involved in all deci-
sions. They understand that they will not be able to control all of the circumstances
surrounding the birth experience, yet they want quality medical care (Lazarus,
1997).
One may also argue that the quality of the overall experience may be measured
specifically through a woman’s emotional experience. Emotional well-being fol-
lowing the birth is related to a woman’s sense that she is being given information
and is in control (Green et al., 1990). VandeVusse (1999), using qualitative inquiry
with a sample of 33 birth stories, observed that mothers’ reported involvement in
decision making during birthing was related to more positive emotions expressed
in talking about the experience, whereas less involvement was related to the nega-
tive emotions expressed. This study builds on these findings, using quantitative
methods on a much larger set of data to test two relevant hypotheses:
H1: There will be a positive correlation between the amount of positive emo-
tions named in birth stories and the mother’s level of involvement in deci-
sions during the birthing process.
H2: There will be a negative correlation between the amount of negative emo-
tions named in birth stories and the mother’s level of involvement in deci-
sions during the birthing process.
28 BYLUND
H3: Birth stories by primiparous women will show less mother involvement in
decision making than will multiparous women’s birth stories.
It is also important to remember that not all decisions are about the same topics;
the nature of the decision may affect the level of the woman’s involvement. Thus,
the following research question is posed:
RQ1: How does the type of decision affect a woman’s level of involvement in the
decision?
RQ2: How does the sex of a woman’s primary clinician affect her involvement in
decision making?
DECISION MAKING DURING THE BIRTHING PROCESS 29
Another point of interest in this study is how the type of clinician, either a physi-
cian or a midwife, is related to communication and decision making during the
birth process. The notions of a mother’s empowerment and control in the birth pro-
cess are associated with midwifery (L. Page, 1995). A statement on the American
College of Nurse-Midwives (n.d.)Web site reads, in part: “Making sound decisions
is key to good health care, and nurse-midwives want you to take an active role in
making the right decisions for you and your family.”
Empirical research supports this statement. In a study of Canadian midwives,
physicians, and nurses, midwives were more client centered in their attitudes than
were physicians and nurses (Blais et al., 1994). As part of being client centered,
midwives believed that women are not given the ability to participate fully in deci-
sions about labor and birth. Consequently, the final hypothesis is
H4: Women with midwives as their primary clinician will perceive their in-
volvement in decision making to be higher than will women with physi-
cians as their primary clinician.
METHODS
Sample
The original sample for this study consisted of 551 birth stories that were posted to
the Web site www.birthstories.com. This is a public Web site, requiring no regis-
tration for a person to post a birth story or to view the stories that have been
posted.1 The Web site is sponsored by iparentingmedia.com, a media group focus-
ing on parents that produces both on- and offline materials. The Web site gives
these instructions:
Thanks for visiting, and we’d love for you to share your story with us—and when
your story appears, share the link with your friends and family. Things to think about
when sharing your story: the duration of the various stages of your labor, how you felt
during the experience, how you reacted to and coped with labor and the birth, as well
as the baby’s gender, weight, and condition.
Two coders selected every fifth story posted to two of the main sections of the Web
site—first births and second or more births. For consistency, stories not written by
the mother were skipped, and the coder selected the next fifth story.
1On advisement from the Human Subjects Office at my institution, informed consent was deemed
unnecessary because these were public data posted to a site that anyone could access without a pass-
word.
30 BYLUND
Coding Procedures
The author and three upper-level undergraduate communication studies students
worked as coders on this project.
TABLE 1
Frequencies of Levels of Involvement in Decision Making
ers’ statements (based on data) that fit into those categories. A codebook was
developed for this coding system, and coders attended training sessions. After
achieving reliability on approximately 20% (n = 100) of the decisions (kappa =
.80), each of the two coders rated the identified decisions using the shared deci-
sion-making coding scheme.
Sex and type. One coder read all the stories, noting whether the woman’s
primary clinician was a male doctor, a female doctor, or a midwife. To check accu-
racy, another coder did the same for about 9% (n = 50) of the stories (Cohen’s
kappa = .78).
Decision type. One coder evaluated each identified decision for its type us-
ing a simple categorical coding system. This coding scale had eight original cate-
gories. A decision categorized in a certain topic meant the decision could have any-
thing to do with that topic. For example, a decision about “pain medication”
included decisions about choosing among pain medications and choosing not to
have pain medication. To check accuracy, a second coder did the same for approxi-
mately 9% (n = 50) of the decisions (Cohen’s kappa = .93). After analysis, one cat-
egory was added into the miscellaneous category, leaving seven total categories.
Emotions. One coder read all stories, noting when 13 specific emotion words
were used. These emotion words were later subsumed into two categories: positive
emotions (happy, excited, proud, and glad) and negative emotions (anxious, sad,
disappointed, upset, frustrated, nervous, scared, terrified, and worried). Five emo-
tion word variables were computed for each birth story: number of positive emo-
tion words, number of negative emotion words, total of positive and negative emo-
tion words, ratio of positive emotion words to total emotion words, and ratio of
negative emotion words to total emotion words.
RESULTS
General Findings
Original sample. Of the 551 birth stories in the original sample, 52% con-
tained at least one decision. In this sample, there was enough information about
the clinician to code for type of clinician in 87% of the stories and to code for
clinician sex in 64% of the stories. For the study, stories with no decisions were
removed, leaving a study sample of 285 stories for analyses about involvement
in decision making. There were no significant differences between the stories
that were included in the study sample and stories that were not included based
on type of clinician, sex of clinician, or on primiparous versus multiparous birth.
32 BYLUND
The samples did differ significantly, however, on four of the five measures of
emotion words used, with the stories in the study sample having significantly
higher emotion word use (see Table 2). This is not unexpected, as stories that
would be longer and more detailed would be more likely to have decisions re-
ported as well as emotion words used.
Study sample. Of this study sample, the mean number of decisions per birth
story was 1.71 (SD = 1.08), and all but one story contained between one and five
decisions. Seventy-two percent of the stories were first birth stories. A higher per-
centage of stories in the study sample had enough information to be coded for cli-
nician type (93%) and sex (72%) than in the original sample. Of those that could be
coded, 88% of women used physicians and 12% used midwives. In addition, 56%
had male clinicians, and 44% had female clinicians. Of those who used a physician
rather than a midwife, twice as many had a male than had a female physician.
There was no significant difference between primiparous and multiparous
women’s use of a midwife, although there was a trend for multiparous women to
use midwives more often than primiparous women. Similarly, there was no signifi-
cant difference between the two types of women on sex of clinician. There was also
no difference in the number of decisions in primiparous and multiparous women’s
birth stories or in the numbers and types (positive or negative) of emotion words
that these two groups of women used.
TABLE 2
Differences in Emotion Word Usage
Mean
ing equal participation or as being the patient’s full decision. Table 3 shows the
types of decisions that were made. Most decisions were about pain medication
(31.6%) and induction (28.7%).
Emotions. Women used positive and negative emotion words in their birth
stories. Some examples of the women’s own words may help to illustrate how
emotion words are used in these stories. One mother expressed her joy during the
birthing process when she wrote, “I got to the hospital at 5 p.m. and after getting
into a room and checked in I was dilated to 8 centimeters! WOW! I was very ex-
cited!!” (No. 216). Another mother spoke of her fears during the birthing process,
when she felt the baby coming and told her husband to get the nurse. She wrote:
“He got the nurse and she wasn’t coming fast enough. I wanted to cry. I was scared
the baby was going to come out of me with no one there to help it” (No. 197). Posi-
tive and negative emotion words can also be located very closely in a story. One
mother wrote of her joy and fear during birthing. The nurse had told her she could
start pushing the baby out and she wrote: “I was so happy. I was about to see my
baby … The doctor pulled and pulled and he finally came out, his cord was
wrapped around his neck and he was not breathing. I was terrified. I finally heard
his cry and began crying myself. I was so happy!” (No. 205).
Concerning the mothers’ emotions, the first two hypotheses predicted a relation
between the type of affect expressed in the birth stories and the woman’s level of
involvement in decision making. This was first measured by analyzing the number
of positive emotion words and the number of negative emotion words in women’s
stories for a correlation with the woman’s involvement with decisions. Neither cor-
relation was significant. However, when the stories with no emotion words were
removed from the sample (n = 110, 38.6%), a small but significant negative corre-
lation between the number of negative emotion words and the women’s involve-
ment emerged (r = –.17; p < .05), providing support for H2 that, although signifi-
cant, has a small effect size (3%).
TABLE 3
Decision-Making Types and Scores
The second method of testing H1 and H2 was to examine both positive and neg-
ative emotion words as a ratio of total emotion words. For this analysis, stories
with no emotion words were removed. Pearson correlations indicated a positive
correlation between the positive emotion word ratio and involvement in decision
making (r = .127; p < .05) and between the negative emotion word ratio and in-
volvement in decision making (r = –.127; p < .05). H1 and H2 appear to have some
support, again with a small effect size (about 2%).
Decision type. RQ1 asked how the type of decision would influence the
women’s involvement in the decision. Descriptive statistics (Table 3) showed that
women’s involvement levels in decisions about pain medication were much higher
(M = 3.26; SD = 1.11) than in any other type of decision, grouped together (M =
1.73; SD = 1.03) or separately. A t test comparing women’s involvement levels in
decisions about pain medication and their involvement levels in other decisions re-
vealed a highly significant difference (t = 14.85, p < .0001; df = 486).
Clinician sex and type. The next two areas of interest addressed the effect
of clinician sex and type on women’s involvement in decision making. RQ2 asked
how the sex of the women’s primary clinician would affect her level of involve-
ment in decision making. A first comparison of female clinicians (physicians and
midwives) and male clinicians (physicians) resulted in a general direction of more
involvement with female clinicians (average scores of 2.44 and 2.23, respectively,
on the involvement in decision making scale), but a t test was not significant. When
examining only birth stories in which the primary clinician was a physician, there
was virtually no difference in the amount of involvement in decision making
whether the physician was a man or a woman (average score of 2.23 for both men
and women).
H4 predicted a greater amount of involvement in decisions for women with
midwives as their clinicians than for women with physicians. A t test showed
strong support for this hypothesis (t = –2.8, p < .01, df = 39.3). Mothers with mid-
wives as their clinicians had an average involvement score of 2.81 (SD = 1.09),
whereas mothers with physicians as their clinicians had an average involvement
score of 2.23 (SD = 1.14).
It was important to ensure that the findings of RQ1 did not confound the support
for H4. That is, if midwives give their patients more opportunity to make decisions
about pain medication, and patients were more involved with pain medication de-
DECISION MAKING DURING THE BIRTHING PROCESS 35
cisions anyway, then the finding that patients of midwives were more involved in
decision making could be misleading. Further analysis of the type of decisions in
stories revealed that there were fewer decisions about pain medication reported in
stories with a midwife clinician (25.4%) than in stories with a physician (32.3%),
although this was not a significant difference. Therefore, the finding that women
with midwives are more involved in decisions appears to be independent of the
type of decisions that are made.
DISCUSSION
Women’s birth stories are rife with examples of communication and medical deci-
sion making. According to the analyses of these birth stories, experiences with de-
cision making during birthing were not remarkably different for primiparous and
multiparous women. For both groups, more than two thirds of the decisions were
either the clinician’s sole decision or were initiated by the clinician. The fact that
less than 4% of decisions were made only by the patient is not surprising. In fact,
making the coding system a continuum anchored at one end by the patient as sole
decision maker may be an unusual way to measure involvement in decision mak-
ing or shared decision making. Others have looked at the joint or shared decision as
the anchor (e.g., VandeVusse, 1999). What is surprising in this study is that only
6% of decisions were seen as having equal participation between clinician and pa-
tient. This may be due to the fact that most decisions, although some may see them
as equal, actually are initiated by the clinician or the patient (as in coding catego-
ries 2 and 4). Perhaps a better measure of actual shared decision making for this
study, then, is the 57% of decisions that fit in coding categories 2 to 4, as these deci-
sions all included some sort of patient involvement. Using such a definition, it is
fair to say that, overall, women were involved in a majority of the decisions re-
ported here.
What predicts a woman’s involvement in decision making? Although previous
research has found multiparous women to be more involved in decision making
than primiparous women, that difference was not supported in this study. In addi-
tion, the sex of the clinician was shown to have no significant effect on the
mother’s level of involvement. In fact, when looking only at physicians, stories
with male and female physicians had almost identical levels of mother involve-
ment in decision making. On the one hand, this finding contradicts previous re-
search that has shown female clinicians generally to be more partnership oriented
in their communication with their patients (Roter et al., 2002). Perhaps, as Roter et
al. (1999) noted, the pressure male obstetricians feel to compete with a growing
popularity for female obstetric and gynecological physicians has required them to
improve their interpersonal skills. On the other hand, this study’s finding on clini-
cian sex also contradicts communication research specific to the obstetrician–
36 BYLUND
come. Undoubtedly, the missing link in this area of research is the connection be-
tween the patient’s involvement in decision making and positive health outcomes
for the baby or mother. Although one can draw on evidence of good clinician–pa-
tient communication as being related to positive patient outcomes in general to
support such a claim, published research has yet to demonstrate such a relation
between birthing and decision making.
Although the use of publicly posted birth stories provided a large sample for
this study, the choice of sample also limits the findings of the study. First, there was
no demographic information available about these women. In addition, using the
Web site’s designation of “first” and “second or more” birth stories may also be
problematic, as stories seemed to be occasionally placed in the wrong category by
the Webmaster, although the coders corrected for some instances of that error.
Third, aside from counting the emotions named in the women’s birth stories, there
were no outcome data about the births, the baby’s or the mother’s health, or the
mother’s satisfaction with the birth (Bramadat & Driedger, 1993). Finally, general-
izing this sample to birthing women in general is risky. Women who post their birth
stories to the Internet are likely to be of a higher level of education and income than
those who do not use the Internet (Robinson, 2001). In addition, they may be prone
to be more active in their health care, which may affect their involvement level in
medical decision making.
Future research might reap the benefits of the large amounts of birth story data
on the Internet by contacting the women who post their e-mail addresses and ask-
ing them to complete demographic, outcome, and other self-report information, af-
ter gaining the approval of the human participants board and, in some cases, the
Web site owner or discussion board moderator. This may facilitate investigation of
the link between involvement in the decision-making process in birthing and im-
portant outcomes of the birthing process. Examining differences between unsolic-
ited Internet narratives and other methods of narrative gathering would be fruitful
in understanding more about this data source. Future studies on birthing and com-
munication, in general, might also focus specifically on one type of decision made
in the birthing process, such as cesarean section, recognizing the importance of
context on medical decision making.
This study is an important step in understanding more about the understudied
clinician–patient communication in the context of birthing. The relationship be-
tween a woman and her clinician(s) during pregnancy and the birthing process is
distinctive from other clinician–patient relationships for at least two important rea-
sons. First, the relationship between a pregnant or birthing woman and her clini-
cian(s) does not exist because of a patient’s ill health. Granted, patients do visit
physicians for routine and preventive care when they are healthy, but primarily, pa-
tients see physicians when they have problems, whereas that is not the primary rea-
son for the pregnant or birthing woman’s relationship with the clinician. Second,
the relationship involves a third individual (the baby) in a way that other clini-
38 BYLUND
cian–patient relationships do not. These factors make this context distinctive, and
health communication scholars have much to add to the understanding of this
unique medical relationship.
ACKNOWLEDGMENTS
Carma Bylund is now at the Department of Psychiatry & Behavioral Sciences, Me-
morial Sloan Kettering Cancer Center, New York.
The author thanks Anna Artrip, Joe Kiehn, and Lesley Christensen for their
work as coders on this project, and Greg Lincoln for his help with data analysis. An
earlier version of this article was presented at the 2003 Western States Communi-
cation Association Convention.
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