Professional Documents
Culture Documents
Introduction
Autism has been the focus of long-drawn study and controversial debate
(Volkmar et al, 2005). Issues related to its etiology, identification, treatment and
education continue to intrigue those who come into contact with this form of
syndrome (Zager, 1999).Children with autism spectrum disorders (ASD) should be
educated with their peers in a mainstream school environment (White Paper, 6; 2001).
Early identification provision is stated clearly in Special Educational Needs Codes of
Practice (DfES/581/2001) which describes the duties of Local Authorities and schools
about children with special educational needs. Moreover, in order to start a child's
with ASD the appropriate provision, it is important that support services and services
for early identification and intervention to be provided.
This assignment has been written to argue the issue of early identification and its
challenges as early identification in autism is an area of research which has received a
considerable amount of attention (Matson et al, 2008). The detection and diagnosis of
autism is very important as many research papers have shown the positive outcomes
of early intervention which comes after the identification. The earlier identification is
made, the better the outcomes of development of a child as the primary purpose of
identification is the child to gain access to services (Charman & Stone, 2006).
However, early identification underpins issues related to the appropriate age of
screening and identification of autism, the purpose of diagnosis and many more which
causes debates to the professional community and which will be further discussed in
this assignment.
Definition of Autism
Autism spectrum disorder is an umbrella term including Autistic Disorder,
Asperger's Syndrome, and Pervasive Developmental Disorder-Not Otherwise
Specified. It is a neuro-developmental disorder (Tager-Flusberg & Josheph, 2003) and
the main criteria for defining autism are based on behavioral characteristics which
onset prior to the third birthday (Chawarska & Volkmar, in Volkmar et al., 2005).
However, there were theories that blamed parents (Bruno Bettelheim 1960) that
cause autism to their child (Severson et al, 2008) An example of these are the theory
of refrigerator mothers which described by Bettelheim (1956-1967). According to this
theory children develop autism because of maladaptive response to a threatening and
unloving environment.
Although, Autism Spectrum Disorders are characterized by extreme heterogeneity
in symptom expression (DSM-IV), impairments of social interaction, impairments in
social communication and impairments in imagination, known as the Triad of
Impairments (Wing, 1992). Nevertheless, a diagnosis of autism according to the
Diagnostic and Statistical Manual of Mental Disorders (DSM-IV; American
Psychiatric Association, 1994) and the International Classification of Diseases (World
Health Organisation, 1992) requires that the Triad of Impairments have been observed
prior to age 3.
Early Identification
In the last ten years, there are many developments in the study of autism
spectrum disorders (ASD). One of the major developments is the recognition that
children can benefit from early intervention programs (Cannella, O'Reilly,& Lancioni,
2006; Ellis et al, 2006; Green et al., 2006; Matson & Minshawi, 2006a; Symes et al
2006) and the ascertainment that early detection of autism may lead to better
interventions (Ingersoll,2011). In the same vein, National Research Council (2001)
highlighted the efficacy of early intervention, many researchers engaged with the
issue of the early identification. .
The advantages of early identification of autism with ASD are twofold (Dereu et al,
2010). From a research view early identification of children at risk for a diagnosis of
ASD makes it possible to perform prospective studies into the developmental
pathways of children with ASD (Reznick et al 2007). On the other hand, an early
diagnosis can lead to early intervention which may improve the developmental
outcomes in children with ASD (Eldevik et al, 2009). If early intervention cannot
begin in preschool years this may result in missed opportunities for optimal brain
development (Branson et al, 2008).
Although, early identification prior the age of two is difficult, in recent years
research has emphasized the identification of early warning signs of ASD. But firstly,
it is increasingly difficult to recognize the symptoms of autism in very early
childhood. As it is described foregoing, autism is a neurodevelopmental disorder and
characterized by symptoms which have to present prior to the age of three
(Chawarska and Volkmar, 2005).
The preschool years are characterized by rapid development where children begin
walking and manipulate objects with greater ability. The language and functional
understanding has enormous increase and the behavioral interactions are more clearly
expressed (Charman & Stone, 2006). In the age of 2 to 4 years, most children with
autism can be now identified as having deficits in their social interaction and
communication though many parents have noticed some differences even in the first
year of a baby's life (Luyster et al.,2005). So, parents who are concerned about their
child's development so early, they usually look for professional advice and
identification (Siegel, Pliner, Eschler& Elliot, 1988).
However, in early stage the identification is difficult as most of diagnostic
instruments have been designed for children of 24 months and up. To date researchers
have identified a number of early behavioral warning signs for ASD , the “red flags”
which can be used as early symptoms for screening and early intervention of ASD
(Wetherby & Woods, 2002 in Myles et al, 2007:300). Red flags are alert signs to
parents and professionals in order to draw attention for a problem and to seek for help
(Myles, Cooper et al, 2007). As red –flags of autism could be some delays in social
behaviors such as social smiling, lack of warm expression to others with gaze, not
responding to name (Baranek, 1999; Werner & Dawson, 2005), communication
behaviors such as producing vocalizations (Maestro et al 2002; Wetherby et al, 2004)
facial expression, gestures and sounds (Colgan et al, 2006; Landa et al, 2007) and
combination of verbal and no verbal behaviors such as combination of eye contact
with vocalizations, repetitive movements of the body and absence of showing interest,
sharing interest or enjoyment (Wetherby et al 2004; Yoder et al, 2009). However, it is
not clear that we have a full and accurate picture of the behavioral manifestations of
autism in the first year of life (Zwaigenbaum et al, 2005).
Although, having considered the red flags of autism, it is also reasonable to look at
some other circumstances, the medical factors, that can play a major role to early
identification prior the age of two. In a research of Zwaigenbauma, Brysonb et al,
(2005) high-risk infants who had siblings with autism, were detected with
neurodevelopmental abnormalities which can be identified from the first year of age.
These children were diagnosed later with autism. These abnormalities include atypical
patterns of visual attention, and early delays in imitation and language skills
(Zwaigenbaum et al, 2005). Previous studies have also reported that siblings of
children with autism are at risk of having autism in the percentage of 1 in 20 of
siblings. Hence, twin studies also indicate that the rate of autism is higher in identical
than in non-identical twins with autism (Mazefsky, et al, 2008).
In addition, statistically, about 1 in 5 to 1 in 6 of preschool children with autism
experience epilepsy or seizures during the first year of their life (Tuchman et al 1997;
Tuchman, 2006). Also, 1 in 4 of individuals with autism has an associated medical
disorder with a known or presumptive cause. Among the best known of these
disorders are the fragile X syndrome and other genetic disorders, Ito's hypomelanosis,
fetal damaged caused by rubella infection, and metabolic disorders (Peeters &
Gillberg, 2004; Jamain. et al., 2003). Thus, other studies have shown that children
with autism have suffered from brain damage in pregnancy or in postnatal period
while other children who have suffered from some infections in pregnancy or in the
first year of their life are at risk to develop autism (Peeters & Gillberg, 2004).
Although, we should be aware that, despite the evidence of the studies it is still
not known how these medical conditions are related to autism (Muhle et al 2004).
However, what is generally believed is that they impair brain dysfunctions which are
indispensable for normal social and communicative development (Peeters & Gillberg,
2004).
It is clear that autism caused by genetic and specific brain problems is associated with
specific medical conditions. These medical conditions are visible or can be detected
from the very early stage of an infant's development.
The needs of autistic children are targeted to some extent by general health, social and
educational policy. There is little autism-specific policy and this has an impact on the
ability of autistic children and their families to access services. In particular, difficulty
accessing mental health (Department of Health, 2004) and short break (Department
for Education and Skills, 2007) services have been highlighted. Indeed parents have
been confronted with the issue of how best access the service delivery system for
young children with ASD (Boyd et al, 2010). In the same vein, critical issues about
how best to access local and state service delivery system remain for many families
especially those with children with ASD. According to Educational Act part B (2004)
families with children with ASD older than 3 years with ASD, can access a free and
appropriate public education while the provision for toddlers and infants under 3,
service delivery system vary greatly in their type and intensity across the country
(Educational Act, part C, 2004).
The length of early intervention of autism has had major role. But despite the
outcomes of the early intervention especially when its duration is the recommended,
however many early intervention services do not provide the appropriate program. In
a study about the length of early intervention of service provided to infants and
toddlers with developmental delay, reported that children receive less hours than the
recommendation made by the National Academy of Sciences Committee on
Educating Children with Autism (Hebbler et al, 2007) in which stated that children be
engaged in intensive intervention services for 25 hours per week (National Research
Council, 2001).
Another challenge relating to policy of provision of autism is the funding policy
(Boyd et al, 2010; Roberts & Prior, 2006). Indeed, even if there are some benefits for
families with children with ASD, however the amount is not enough to cover the cost
of early intervention services. For instance, in Greece there is a benefit of 500 Euros
every two months for children with ASD official diagnosis and diagnosis of low
intelligence but the cost of early intervention exceeds the 500 Euros per month. It is
clearly that there has been social policy momentum and political will to fund early
intervention services for infants and toddlers with ASD. However several challenges
to the recent initiatives exist. The cost of some early intervention treatments is very
expensive than other services received by infants and toddlers with other
developmental delays. An additional challenge has been the lack of communication
and coordination between funding streams and service providers (Ruble et al, 2005).
For example, early intervention providers which founded by an organization may not
allowed to receive reimbursement for their time to meet or collaborate with educators
in public schools or other professionals. This situation may result disjointed and
potentially ineffective services for children and families.
As previously stated, it is important to ensure that families have access to the
interventions in a responsive service delivery system. Policy relating to ASD should
make early identification and intervention services equally accessible for all families
from different socioeconomic groups and racial and ethnic backgrounds. It is also
fundamental the minimizing of the cost of intervention and generally of ASD services
in order to be cost-effective for families but also for service providers.
Conclusion
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