EDS and musicians talk

L. Rayner (physio); BAPAM.

Rachmaninov and Paganini poss EDS. (hEDS / Hypermobility Spectrum Disorder)

Larsson et al 1993 (pp. 1079-82): ‘Benefits and Disadvantages’, N. Engl. J. Med.

(Role of support muscles)

Slide – Role of collagen; neuromuscular factors e.g. muscle tone

Slide – multisystemic condition; issues with accessing healthcare because complex

conditions are misunderstood

Hypermobile person – takes more energy and work to maintain ‘normal’ function, just to
stabilize joints.

Slide – collagen, instability, strength, proprioception, muscle imbalance and rapid

deconditioning

Slide – shoulder structure (teres minor? erector spinae?)

EXERCISE – push knees in from the outside, then out from the inside

Muscle tension dysphonia – loss of range, looseness, clicking in larynx, pain in throat.

Jean di Bon – research and Zebra Club

Respect pain – don’t ‘push through’

Energy conservation – image of spoons or marbles in a jar or balancing on a ball

Take a break every 20 mins; warm up and cool down

Link between anxiety disorders and hEDS

Slide – rehab

refs. HMSA – www.hypermobility.org; EDS – www.ehlers-danlos.org