Professional Documents
Culture Documents
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care supports the round-the-clock presence
short and long terms. The study used a and participation of parents in the care for Ethical approval: This research has received eth-
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qualitative research method with a descrip- hospitalized children.6 Family-centered ical approval by the Medical Research Ethics
tive phenomenology study approach. It care during hospitalization can provide Committee of the Faculty of Medicine
was conducted in the Child Care Room many benefits, such as increasing the satis- Universitas Indonesia - Dr. Cipto
e
with 11 participants. Data analysis was faction of family and patients, improving Mangunkusumo Hospital Jakarta (No. ND-
performed using Creswell thematic analy-
sis. The study produced three themes: i)
us
effective communication between health
workers and families, a better understand-
257.UN2.F1/ETIK/PPM.00.02/2019).
children during hospitalization; iii) Parents work satisfaction among health workers.10 Commons Attribution NonCommercial 4.0
have a role in fulfilling the children’s psy- Parents’ perceptions of the application
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In 2015, 30.6% of the 82.85 million chil- picture of the current phenomenon. Score), children who can speak fluently, chil-
dren aged 0-17 years in Indonesia experi-
dren who can speak Indonesian, and children
enced health problems, and 8.38% of them
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like drawing tools, coloring tools, story- ipants. Here are the expressions of some “When installing infusion, mom and
books, and children’s playthings like cards participants. father can accompany me so I am not
and toys help reduce anxiety and engage the alone.” (P1)
children.11 The process of analyzing data in “The nurse allowed my mom accompa- “Mama, hold my eyes so I will not be
this study followed the thematic qualitative nied me, the nurse is kind.” (P1) afraid.” (P5)
analysis method. Each interview result was “Hmm ... It should not be both (of the “During my illness, I hold my father. So
carried out by the following processes: data parents) that can accompany me; it should I am calm if my father is there... “ (P6)
transcribing, verbatim checking, data cod- be only one of them. But the nurse said just “No, my mother must be there. If there
ing, reassembling, data interpreting, and do it smartly.” (P3) is no mother, I am afraid something will
concluding.12 “You can. It should not be allowed. (In happen.” (P9)
fact, it) can. The nurse is kind.... “ (P6)
Ethical aspects The third category is the presence of
This research has received ethical The second category is that there is no parents as entertainers to relieve the chil-
approval by the Medical Research Ethics limitation in waiting time for parents. dren’s boredom. Participants shared that the
Committee of FKUI-RSCM. The research Participants shared that parents can accom- presence of parents is entertaining while
began when the researcher got the consent pany their children at any time to minimize they are undergoing treatment. The limita-
of the participants’ parents. Every partici- the children’s sense of loss towards their tion in the activities the children can engage
pant and parent had the right to withdraw at families. The following are the expressions in when they are ill causes boredom.
any time without any sanctions. During the of some participants. Parents’ presence makes children feel they
interview process, parents are allowed to have friends to share stories and play with
accompany participants but are not allowed “Here beside me, taking care (of me) so that the feeling of boredom is reduced.
to provide answers to any question directed every day....” (P8) The following are the expressions of some
“Yes, it was allowed by the nurse if participants.
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to the child by the researcher.
mom and dad are here, it’s okay all day
on
too....” (P10) “Father and mother usually play and
entertain me....” (P6)
Results
Parental presence is the main source “Well … if father is not here, who will I
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There were 11 participants in this study. of coping for children during talk to? My father is the only person who
Participants consisted of 8 females and 3 hospitalization us likes to talk to me.” (P7)
males with ages ranging from 9 years to 11 The second theme demonstrates 3 cate- “I’ll feel so alone if there’s no mom and
years and 8 months. The education of all gories. The first category is that the children father....” (P10)
al
participants was elementary school. The need parental presence during invasive pro-
duration of hospitalization for each partici- cedures. Participants in this study recounted Parents have a role in fulfilling
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pant ranged from 4 days to 22 days. There that the presence of parents during invasive children’s psychological needs
are 4 of 11 participants who had undergone during hospitalization
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sive procedures, parents created some dis- are formed in the description of the two cat-
treatment room. Most of the participants’ tractions through calming speech, touch, or egories. The first category is that parents
medical diagnoses were cancer and chronic
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hugs. The children also recounted that every help the process of childcare. In this catego-
kidney disease. distraction created by a nurse could not give ry, the participants shared that during their
Based on the thematic analysis, there them as much comfort as that created by hospitalization, their parents’ presence was
were three themes found in the research
-c
their parents. The following are the expres- very important because the parents not only
results. The following are the three themes sions of some participants: accompanied them but also participated in
of the research results: i) nurses support the
on
main source of coping for children during sion again, then mom was behind me, hug- the expressions of several participants.
hospitalization; iii) parents have a role in ging me. Hm... So I was happy.” (P2)
fulfilling children’s psychological needs “The nurse said that I have to take a “If I am vomiting, then mother always
during hospitalization. deep breath if I don’t want to feel pain, but helps….” (P3)
it didn’t work at all. I just needed my mom.” “Every 4 hours, the nurse gives me
Nurses support the presence (P2) pain medication, later I will drink it with
of parents during children’s “If father was not around when I was to mom’s help.” (P4)
hospitalization be injected, I would have cried...” (P5) “It’s better there is mom; she is taking
The results of the first theme analysis care of me. If I have a fever, she compress-
are formed based on the description of two The second category is that the presence es.” (P7)
categories. The first category is that the of parents provides a safe and comfortable “Dad is always beside me, so I don’t
nurse allowed children to be accompanied feeling for children. The presence of parents need to worry at all; sometimes, dad also
by their parents. Participants in this study as the closest family members of children checks my temperature and my blood pres-
recounted that during their hospitalization, can make children feel safe and comfortable sure.” (P5)
nurses always allowed them to be accompa- during the hospitalization. Parents are the
nied by their parents. The nurses’ actions first people to whom participants complain The last category on this theme is that
were assumed by participants to be one about every condition they feel. This fact parents help with children’s psychological
form of the nurses’ kindness towards partic- was revealed by the participants as follows. needs. Participants shared that with the
presence of parents, the basic needs of chil- The condition of hospitalization, which children with a cancer diagnosis suggests
dren, such as eating, personal hygiene, and has a lot of stressors, causes children to that high anxiety and fear cause such chil-
resting, can be fulfilled. Participants con- experience stress easily. The stressors that dren to tend to be loners.23 However, based
cluded that in the fulfillment of their psy- make children feel scared and anxious when on the study the researchers carried out, the
chological needs, it was the parents who undergoing hospitalization are the installa- presence of parents enables the child to tell
played the most important role such that tion of the IV line and blood collection.16,17 stories and share feelings. This finding is
participants felt very dependent on parents Participants in this study said that the instal- similar to the position expressed by partici-
regarding the fulfillment of those needs. lation of an IV line is the most disliked pant 3 that with the accompanying parents,
The following are the expressions of some thing during the treatment process. Some every uncomfortable child can always com-
participants. participants said that they cried and even municate well.
felt angry at the nurse due to the pain they The presence of parents can not only
“It’s not good if there is no mom. I like felt. This condition caused the children to make children feel safe and comfortable but
mom to accompany me to eat, take medi- search for comfortable coping strategies also provide the opportunity for children to
cine, sleep....” (P2) through their parents’ presence. interact. As expressed by participant 7, par-
“When peeing … with mom, everything Nurses are responsible for the pharma- ents become friends for the children to chat
is with mom....” (P5) cological and non-pharmacological man- with every day to reduce boredom due to
“No. If father is not there, that ... who agement of invasive pain.18 However, the hospitalization. Besides, participant 10 also
wants to help me pee? Is it the nurse?” (P6) results of this study indicate that non-phar- disclosed that he felt lonely and worried
“Early in the morning, she (mom) macological pain management is believed about his condition if his parents did not
wakes me up to eat breakfast and feeds me.” to be more effective for children if it is con- accompany him during the hospitalization.
(P9) ducted by parents. Parents’ can create dis- One of the roles of parents is to actively
tractions by playing videos, calming participate in the childcare process, which
aims to stimulate the growth and develop-
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through speech, and touching or hugging
Discussion the children. Participants expressed that ment of children.24 Some participants in this
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such actions reduced the anxiety and fear study recounted that during their hospital-
Atraumatic care is a therapeutic care that children feel when undergoing invasive ization, the parental presence was very
service provided by nurses using interven- procedures. important for the process of care. Parents
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tions that can eliminate and minimize the When undergoing hospitalization, the not only accompany their children but also
experience of psychological and physical us
presence of parents can be a source of moti- participate in caring for them. Parents also
distress in children and families during the vation and strengthen children to undergo help hospitalized children to fulfill their
healthcare process.13 One of the principles each treatment procedure.19 Motivation and basic daily needs, such as eating, taking
medicine, bathing, and sleeping.
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of applying atraumatic care is family-cen- explanation given by the parents will make
tered care. Family-centered care aims to the children calmer and more psychologi- In line with Maslow’s hierarchy of
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prevent, reduce, or decrease the impact of cally prepared.20 The participants in this needs theory, psychological needs, such as
the separation of children from parents by study recount that they need their parents’ nutrition, elimination, rest, sleep, and
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involving parents in every childcare action presence round the clock during the hospi- avoidance of pain, are the most important
and allowing parents to accompany the talization. The participants said that during basic needs to be fulfilled for pediatric
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child for 24 hours during hospitalization.14 the invasive procedure, the presence of par- patients.25,26 The Healthcare Commission
Childcare room Building A, first floor, emphasizes that every adult and child
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that nurses’ actions that allowed parents to Normally, the psychological develop-
accompany children during the treatment ment phase of school-age children is
process were considered by participants as already able to control and understand per-
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one form of nurses’ kindness towards par- sonal emotions. However, the feeling that Conclusions
ticipants. they are in a difficult or unfamiliar social The presence of parents in implement-
From the result of this study, the role of condition can cause children to be aggres- ing atraumatic care has a positive impact on
parents in family-centered care partly sub- sive or self-alienated.21 The family is the children during hospitalization. Every hos-
stitutes that of nurses in delivering care to best solution for overcoming these and pital needs to review related policies in
the patient during the treatment process. other difficulties faced by children. A close facilitating the presence of parents for chil-
Parents not only accompany their children relationship between a child and their fami- dren during hospitalization. This review is
but also help in the children’s care, such as ly can be a coping mechanism for children to support effective coping by children and
administering medication, checking vital facing difficult situations.22 fulfill their holistic psychological needs.
signs, and fulfilling the children’s basic Participants in this study recount that
needs. This finding shows that atraumatic the presence of parents can be an entertainer
care is provided by not only the nurse but for children undergoing treatment. Limited References
also the parents. Parental presence can min- activities during hospitalization can cause
imize the experience of psychological and children to feel bored.23 Through the pres- 1. Statistics Indonesia (BPS). Profil kese-
physical distress in children. Parental pres- ence of parents, children feel they have hatan ibu dan anak 2015. Statistics
ence becomes one of the important needs of friends to share stories and play with so that Indonesia. Report Number: 4203002,
the parent during the period of their child’s the feeling of boredom is reduced. 2016. Available from: https://www.
hospitalization.15 A study conducted by Boucher among bps.go.id/publication/2016/12/20/1464
6448c68db5af30735247/profil-kese- professional evaluators interview chil- healthcare systems. Int J Nurs Stud
hatan-ibu-dan-anak-2015.html dren; 2000. Available from: http://www. 2016; 57:1-11.
2. Coyne I. Children’s experience of hos- hunter.cuny.edu/socwork/nrcfcpp/down 20. Hockenberry JM, Wilson D. Wong’s
pitalization. J Child Health Care loads/Interviewing_Children_0508.pdf essentials of pediatric nursing. 8th ed.
2006;10:326-36. 12. Creswell JW. Qualitative inquiry & London: Elsevier; 2009.
3. Rokach A. Psychological, emotional, research design choosing among five 21. Anthony M. The emotional lives of 8–
and physical experiences of hospital- approaches. 3rd ed. California: SAGE 10-year-olds. Available from: https://
ized children. Clin Case Rep Rev Production; 2013. www.scholastic.com/parents/family-
2016:2:399-401. 13. Wong DL, Hockenberry MJ, Marylin J. life/social-emotional-learning/develop-
4. Wen KY, Gustafson DH. Needs assess- Wong’s nursing care of infants and chil- ment-milestones/emotional-lives-8-10-
ment for cancer patients and their fami- dren. St. Louis, Missouri: Mosby Inc.; year-olds.html [Accessed 25th June
lies. Health Qual Life Outcomes 2009. 2019].
2004;2:1-12. 14. Salmela M, Salantera S, Aronen ET. 22. Coleman W ed., Elias E ed., Feldman H
5. Favara-Scaco C, Smirne G, Schiliro G, Coping with hospital-related fears: ed., et al. Developmental-behavioral
Di Cataldo A. Art therapy as support for Experiences of pre-school-aged chil- pediatrics. 4th ed. Philadelphia:
children with leukemia during painful dren. J Adv Nurs 2010;66:1222-31. Elsevier; 2009.
procedures. Med Pediatr Oncol 15. Apriyanti E, Adawiyah R. Kebutuhan 23. Boucher S, Downing J, Shemilt, R. The
2001;36:474-80. keluarga saat anak dirawat di Paediatric role of play in children’s palliative care.
6. Supartini Y. Buku ajar: Konsep dasar Intensive Care Unit (PICU): Sudut pan- Children 2014;1:302-17.
keperawatan anak. Jakarta: EGC; 2014. dang keluarga dan perawat. Jurnal 24. Lifecho. What is the role of parent? The
7. LeVieux-Anglin L, Sawyer EH. Keperawatan Indonesia 2018;21:159-68. roles of being a parent. Available from:
Incorporating play interventions into 16. Bowden VR, Dickey, SB, Greenberg, http://www.lifecho.com/what-is-the-
nursing care. Pediatr Nurs 1993;19: SC. Children and their families: The role-of-a-parent-roles-of-being-a-par-
ly
459-63. continuum of care. Philadelphia: W.B. ent/ [Accessed 15th June 2019].
on
8. Ahmann E. Promoting positive parent- Saunders Company; 2010. 25. Kozier B, Berman A, Shirlee J. Buku
ing: An annotated bibliography. Pediatr 17. Kennedy RM, Luhmann J, Zempsky ajar fundamental keperawatan konsep
Nurs 2002;28:382-5. WT. Clinical implications of unman- proses dan praktik edisi VII. 1st ed.
e
9. Sukhodolsky DG, Cardona L, Martin A. aged needle-insertion pain and distress Jakarta: EGC; 2011.
Characterizing aggressive and noncom- in children. Pediatrics 2008;122:
us 26. McLeod S. Maslow’s hierarchy of
pliant behaviors in a children’s psychi- 130-3. needs; 2018. Available from:
atric inpatient setting. Child Psychiatry 18. Ellis JA, Sharp D, Newhook K, Cohen, https://www.simplypsychology.org/mas
Hum Dev 2005;36:177-93. J. Selling comfort: A survey of interven- low.html [Accessed 25th June 2019].
al
10. Mittal V. Family-centered rounds. tions for needle procedures in a pedi- 27. Royal College of Psychiatrists’ Centre
ci
Pediatr Clin North Am 2014;61:663-70. atric hospital. Pain Manag Nurs for Quality Improvement. The national
11. Vasquezs R. Interviewing children: 2004;5:144-52. audit of violence 2006-7: Final report –
er
Excerpts from an article for Court 19. Feo R, Kitson A. Promoting patient- working age adult services. Healthcare
Appointed Special Advocates to help centred fundamental care in acute Commission 2007:1-157.
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