Professional Documents
Culture Documents
Editorial Board
Nik Brown (University of York, UK) Martina Merz (University of Lucerne, Switzerland)
Miquel Domenech (Universitat Autonoma de Reijo Miettinen (University of Helsinki, Finland)
Barcelona, Spain) Mika Nieminen (University of Tampere, Finland)
Aant Elzinga (University of Gothenburg, Sweden) Arie Rip (University of Twente, The Netherlands)
Steve Fuller (University of Warwick, UK) Nils Roll-Hansen (University of Oslo, Norway)
Marja Häyrinen-Alastalo (University of Helsinki, Czarina Saloma (Ateneo de Manila University,
Finland) Philippines)
Merle Jacob (Lund University, Sweden) Londa Schiebinger (Stanford University, USA)
Jaime Jiménez (National Autonomous University of Matti Sintonen (University of Helsinki, Finland)
Mexico, Mexico) Fred Stewart (Westminster University, United
Julie Klein (Wayne State University, USA) Kingdom)
Tarja Knuuttila (University of Helsinki, Finland) Juha Tuunainen (University of Helsinki, Finland)
Richard Langlais (University of Uppsala, Sweden) Dominique Vinck (University of Lausanne,
Shantha Liyange (University of Auckland, New Switzerland)
Zealand) Robin Williams (University of Edinburgh, United
Roy MacLeod (University of Sydney, Australia) Kingdom)
Frank Mali (University of Ljubljana, Slovenia) Teun Zuiderent-Jerak (Erasmus Universiteit
Erika Mansnerus (London School of Economics Amsterdam, The Netherlands)
and Political Science, UK)
ISSN
2243-4690
Subscriptions Copyright
Subscriptions and enquiries about back issues Copyright holders of material published in this
should be addressed to: journal are the respective contributors and the
Finnish Society for Science and Technology Studies.
For permission to reproduce material from Science
Jukka Syväterä Studies, apply to the assistant editor.
Pinni B 3002
33014 University of Tampere
Finland
email: jukka.syvatera@uta.fi
Articles
Michael Morrison
STS and Enhancement Technologies:
A Programme for Future Research ...................................................................................... 3
Book Review
Philippe Sormani
Respecifying Lab Ethnography:
An Ethnomethodological Study of Experimental Physics
by Matthew J. Cousineau....................................................................................................... 88
4
Michael Morrison
topic in its own right. Some attention has Why Do We Need an STS Approach
been given to enhancement through the lens to Human Enhancement?
of medicalisation theory (Conrad & Potter,
2004; Conrad, 2005). While this has yielded In order to answer this question, we first
some useful insights, it suffers the drawback need to consider what an ‘STS approach’
of ultimately regarding enhancement as yet or an ‘STS perspective’ entails. Woolgar et
another avenue for defining social problems al. (2009: 21) advise that ‘it is unhelpful to
in medical terms and proposing medical construe STS as a unitary set of approaches,
solutions – in other words the drivers may methods and topics’. Despite this, those
change but essentially it is regarded as a same authors also recognise the necessity
case of ‘medicalisation as usual’. As such, of having a tolerable ‘shorthand’ answer to
this approach fails to address in depth the this question and propose the following five
dynamics and the substantive content of ‘key STS sensibilities’:
‘enhancement’ as a specific concept and
as a means of technological classification. 1) a propensity to cause trou-
I believe that a comprehensive, integrated ble, provoke, be awkward
programme of research is needed to 2) a tendency to work through diffi-
address the range of different technologies cult conceptual issues in relation to
and different contexts of the enhancement specific empirical cases, deflating
debate and that such an approach is capable grandiose theoretical concepts and
of generating a deeper and ultimately more claims (and even some ordinary ones)
productive account of enhancement than 3) an emphasis on the local, specific and
one-off studies. contingent in relation to the genesis
The aim of this paper is twofold: Firstly, and use of science and technology
I will outline an agenda for a programme 4) caution about the unreflexive adop-
of STS research on human enhancement tion and deployment of stand-
and human enhancement technologies. ard social science lexicons (e.g.
I use the phrase ‘human enhancement power, culture, meaning, value)
and human enhancement technologies’ 5) reflexive attention to the (fre-
deliberately to indicate the requirement quently unexplicated) notions
for simultaneous investigation of both of our audiences, value and util-
technologies labelled as ‘enhancements’ ity (Woolgar et al., 2009: 21–22)
and the concept of enhancement itself as
part of this programme. The context and While I am broadly in agreement with this
content, of the term ‘human enhancement list, it should be remembered that it was
technology’ has changed even over the developed in the context of presenting or
relatively short course of its history, as explaining the ‘essence’ of STS for utilisation
has the range of technologies involved. in management and business studies. The
The second contribution of this paper will topic of biomedical enhancement is rather
therefore be to sketch a brief account of the closer to STS’ ‘home turf’ of the study of
changing dynamics of enhancement from science and technology. For the purposes of
its origins in North-American gene therapy this paper then, a useful ‘shorthand’ version
debates to the converging technologies of an STS perspective reads more like a
agenda discussed below. truncated summary of the foundational
themes of STS, than the characteristics and
sensibilities of STS listed by Woolgar et al.
5
Science & Technology Studies 2/2015
(2009). It is a crude summary to be sure bodies and are bound up with ideas such
and fails to address the heterogeneity of as the nature of those bodies, the end users
perspectives and concepts within the field, of the technologies, entitlement, normality
but it should suffice for what is needed here. and desirability. An STS perspective
Broadly, I construe an STS perspective as can serve in the first part to make this
encompassing a rejection of technological entanglement explicit.
determinism, an insistence on the local In addition, much of the bioethical
and contingent nature of the production of debate on enhancement to date has been
facts and artefacts, and a constructionist dominated by arguments informed by
approach that takes materiality seriously. traditions of (Anglo-American) analytic
Such an approach means rejecting both philosophy such as utilitarian and
technological and social determinism consequentialist ethics. These approaches
as explanations for the development, to applied ethics tend to incorporate a
acceptance or rejection and modes of number of characteristics that are highly
use of technologies (Timmermans & problematic from the aforementioned STS
Berg, 2003). Material entities – in the perspective. Enhancement readily presents
case of enhancement the most relevant a set of ‘grandiose theoretical concepts and
materialities are those of bodies and claims’ (Woolgar et al., 2009: 21–22) that are
technologies – are neither reducible to what ripe for critical investigation through case
is said about them, nor wholly separable studies of the technologies and practices
from the discourses through which they involved. My first argument in support of
are mobilised. Rather the ‘natural’ and an STS engagement with enhancement
‘cultural’ are mutually constitutive. To technologies will therefore highlight in
relate this perspective more directly more detail these problematic aspects of
to issues of human biotechnology and the concept of enhancement – specifically
biomedicine I will borrow a concept from various forms of determinism and dualism.
the anthropology of pharmaceuticals. As with all areas of contemporary social
Nichter & Vuckovitch (1994) proposed that science, STS scholars are increasingly
medicines can be regarded as ‘vehicles of directed to pay attention to the issues of
ideology’: that is, they are not just material value, utility and indeed, audience for
entities but embody ideas about the kind of their work, as raised in the final point in
bodies that they are interacting with, about the list produced by Woolgar et al. (2009).
the type of individual taking the medicine, With this in mind, my second argument for
about the condition being targeted, about the value of a programme of STS work on
individual and social responsibility and enhancement technologies focuses on the
entitlement, and about what is normal and emergence of technological enhancement
desirable. While not all cases labelled as as a domain for prospective investment
‘enhancement’ involve pharmaceuticals, all of capital and strategic technology
cases of enhancement do involve some form development. This domain suggests a
of technological manipulation of human particular audience for STS research in the
bodies, thus giving reasonable grounds to form of science policy makers, futurologists,
expand this anthropological perspective and technology developers and has the
to cover ‘enhancements’. Enhancement potential utility of informing decisions
technologies, whether ‘bio’, ‘nano’, ‘neuro’ or about investment in human biological
information/communication technologies, enhancement as a domain of strategic
are intended to act on (and in) human techno-science. I will return to this point
6
Michael Morrison
7
Science & Technology Studies 2/2015
8
Michael Morrison
9
Science & Technology Studies 2/2015
10
Michael Morrison
11
Science & Technology Studies 2/2015
label of ‘enhancement’ has any legitimacy logical system (the human mind/body),
or consequences for everyday practice. which are amenable to intervention
A final issue, as identified above, is and controlled manipulation through
the tendency towards reductionism and technology.
biological determinism in many accounts
of enhancement. This is especially true of Is Critique Enough?
pro-enhancement accounts where the full So far I have presented the case for
range of human capabilities to be enhanced a programme of STS research on
extends to human traits such as sexual enhancement technologies largely in
identity, morality and aspects of personality terms of the problematic nature of the
like aggression or shyness. Deterministic existing enhancement debate and the
accounts propose that behaviours are possibilities for STS research to make these
essentially governed by biological, often limitations explicit. This is certainly within
genetic, factors, while reductionism holds the ‘traditional’ remit of STS scholarship.
that only these biological factors are Indeed, it may be too close to existing work
worthy of consideration when investigating within STS. Guggenheim and Nowotny
(human) characteristics. These issues (2003) have argued that the STS critique
are hardly novel and have already been is in danger of becoming repetitive and
addressed in relation to claims making thereby redundant. For STS scholars
in evolutionary psychology (Ehrlich & there may always be ‘further artefacts
Feldman, 2003) and behavioural genetics to deconstruct, and always a new target
(Rosoff, 2010). The primary limitation of group which can be enlightened about the
this type of explanation, when applied flawed nature of prevailing understandings
to complex human behaviours such as of science’ (Woolgar et al., 2009: 10), but
altruism or moral judgement is that, as to what useful end? This returns to the
they become understood as quantifiable question of audience. If STS scholarship
outputs of biological functioning, such is mainly directed at other STS scholars
as changing patterns of brain activity or those in related fields then there is
or modulations in gene or biomarker relatively little to be gained by colonising
expression, complex behaviours become the enhancement technologies debate as a
reified as being only the expression of those further site for ‘more of the same’ critique
variations. Altruism becomes a particular (this may even be a reason why there has
pattern of brain activity; morality becomes a been relatively little dedicated STS research
particular pattern of gene expression as the on enhancement to date).
contaminating ‘social’ is purified to leave I would suggest that the extension of STS
only the ‘natural’. As a result, concepts such perspectives and the ‘enlightenment’ of new
as altruism or morality become ‘flattened’, target audiences is valuable in itself, but
losing any sense of characteristics as it is potentially limited when presented as
internally-experienced episodes of critique alone. Critique does not necessarily
affective reasoning. Accordingly, the contain any useful recipe for reforming and
fourth component of an STS programme of constructively improving its targets. We can
research on enhancement technologies is: hardly expect to transform all our audiences
into STS scholars and have them abandon
4) To investigate how complex human all prior convictions. In any case, this
characteristics and traits are becom- would not be especially helpful as it would
ing understood as components of a bio- ignore the limitations of what STS can do
12
Michael Morrison
– for example STS scholarship has largely willing to collaborate with social scientists
resisted making normative decisions or and STS practitioners in an endeavour
adopting a particular politics of technology that requires greater reflexivity about the
(Keulartz et al., 2004). A further form of practice and knowledge claims of both
STS work is possible through engagement bioethics and the natural sciences than is
with new audiences in ways that move customary in much ‘mainstream’ bioethics.
beyond deconstruction towards ‘positive’ However, previous attempts to combine
and constructive engagement (Latour, STS with potentially compatible ethical
2004). Timmermans & Berg (2003) advise traditions such as pragmatism (Keulartz et
social scientists to use their expertise to al., 2004) and the diversity of bioethicists
influence the creation and implementation capable of offering a range of perspectives
of medical technologies. Similarly, Harry (De Vries et al., 2006) suggest that there is at
Collins and colleagues (e.g. Collins & least potential for such an exercise.
Evans, 2002) have advocated using STS’ If, as the title of the chapter by
‘knowledge about knowledge’ to advise on Guggenheim and Nowotny (2003) suggests,
the best use of expertise in the public sphere ‘repetition makes the future disappear’,
(Woolgar et al., 2009). However, cautionary then another option for moving beyond
voices within the field have also warned critique is for STS to actively re-engage
that a commitment to engagement risks with and contribute to the future. Much
jeopardising STS’ cherished potential for of the pro-enhancement literature and
(radical) reflexivity. almost all the converging technologies
The case of technological enhancement agenda deals in future-orientated claims
offers potential avenues and challenges about the transformative (and economically
for productive engagement. The aim of generative) potential of technology. As
this proposed programme of STS research such, the claims and the rhetorical framing
on human enhancement technologies is devices of these works are amenable to
not in any way a call to try and ‘do ethics critical analysis through the sociology of
better than the ethicists’. One productive technological expectations (van Lente, 1993;
form of engagement with the bioethics of Brown et al., 2000; Borup et al., 2006). Claims
enhancement might be to use STS case about the future potential of enhancement
studies of technologies or technological technologies, as with any other form of
applications labelled as enhancement to technological expectation, are intended to
contribute to a ‘critical bioethics’: convince and enrol relevant actors such as
governments, funders and private capital
Critical bioethics is rooted in empirical investors in supporting the work needed
research. […] Th is does not mean that to try and realise these imagined futures
philosophers have to become social sci- (Brown & Michael, 2003; Borup et al., 2006).
entists; simply that if they are interested Departing from this approach, a further step
in the ethics of a particular technol- for STS scholars would be to engage with
ogy, their fi rst port of call should be the Selin’s (2008: 1892) ambitious ‘sociology of
social science literature about that tech- the future’. While the term ‘sociology of the
nology, rather than the standard bioeth- future’ is not wholly novel, Selin’s particular
ics debates (Hedgecoe, 2004: 135–136). conception describes ‘an emerging field
of inquiry that works to understand future
The viability of this approach depends, of consciousness drawing from a mix of STS
course, on the availability of bioethicists and the practice of foresight’ (2008: 1892).
13
Science & Technology Studies 2/2015
The suggestion is not that we should must be set aside in order to make
all become futurologists, but rather that engagement successful, but rather that
STS scholars ‘should tend to the cultural, adequately reflexive engagement is the only
political, and economic conditions from acceptable way to proceed. The fifth and
which future studies arise’ (Selin, 2008: final component of an STS agenda for the
1889). This approach can ask questions study of enhancement and enhancement
about how legitimacy is created or disputed technologies should therefore be:
for future-orientated technological claims,
whose expertise counts (and whose is 5) To engage productively, but reflex-
excluded) in making these claims and ively, with other disciplines and audi-
which groups are envisaged as ‘winners’ ences in reflecting on STS accounts
or ‘losers’ in projected futures. Implicit of enhancement and enhancement
normative commitments and underlying technologies.
assumptions – such as the pervasive notion
of ‘technological progress’ – can be laid bare I do not argue that critique is redundant,
and subject to critical investigation. Such only that it is not sufficient. It is not an
an approach is not without consequences; end in itself, but it is a starting point.
Selin (2008: 1891) warns: ‘[w]hether as a Critical STS accounts of enhancement and
legitimating or destabilizing discourse, enhancement technologies still need to
the future is a discourse with effects’. be carried out to inform our perspectives
By participating in future-orientated and generate a body of critical empirical
discussions, scholars cannot remain evidence to form a basis for engagement
‘neutral’ and above the debate, but are to depart from. The agenda for a critical
inevitably drawn in to the politics of the STS investigation of enhancement and
future as their own studies, assessments enhancement technologies can be
and evaluations are sucked back into the summarised as follows:
‘pool’ of available ideas about technological
futures. What Selin presents as a warning, 1) To map out the changing landscape
however, is positively a prescription for of the enhancement debate(s) from its
those voices in STS advocating a move bioethical origins to the present con-
beyond ‘mere’ critique. Effects, of the verging technologies agenda.
contributory, constructive variety, are 2) To study how particular technologies
exactly what is wanted. have become labelled or classified as
being for ‘human enhancement’ or hav-
Of course, there remains the danger ing ‘enhancement applications’.
of social scientists becoming co-opted as 3) To look at the human characteris-
allies of particular visions of the future tics that technologies are supposed
and the actors whose interests these to enhance and to ask how and why
visions serve. The remedy for this must these characteristics are valued. What
be for social scientists to be continually, is the role of wider cultural, economic
reflexively aware of the nature of their own and political contexts in making some
contributions and to reflect on, and perhaps human traits desirable and others
modulate, their work on an ongoing basis. I undesirable?
prefer to look at this positively: engagement 4) To investigate how complex human
with the rhetorical and material enactment characteristics and traits are becom-
of futures does not mean that reflexivity ing understood as components of a bio-
14
Michael Morrison
logical system (the human mind/body), aware of the contingent and constructed
which are amenable to intervention nature of our own texts. Furthermore, this
and controlled manipulation through brief account can be used as a starting
technology? point for further investigation, including
5) To engage productively, but reflex- investigation of all the rich bioethical
ively, with other disciplines and audi- discussion excluded or summarised here.
ences in reflecting on STS accounts
of enhancement and enhancement Genetics and the Origins of Enhancement
technologies. The bioethical concept of human
technological enhancement came to
In keeping with this agenda, the next step prominence through the debates on genetic
for this contribution is to begin to map out engineering and gene therapy during the
the changing landscape of the enhancement 1970s and 1980s. Much of the discussion
debate(s) from its bioethical origins to the at this time was of North American
present converging technologies agenda. provenance. As the technology to insert
Accordingly, the next section will contain ‘foreign’ or synthetic genetic material into
the second major element of this paper: a the cells of a host organism began to look
(brief ) review of the nature of the debate on scientifically achievable, the bioethical
enhancement to date. community became increasingly concerned
with the ethical considerations of genetic
A Brief History of Human manipulation being applied to human
Enhancement Technologies subjects (Crigger, 1998; Martin, 1999). Two
core distinctions were developed within the
What follows is a short history of the bioethics literature in order to gain moral
bioethical and converging technologies purchase on the emerging technology
debate on technologies for human (Martin, 1999; Scully & Rehmann-Sutter,
enhancement. As Brown & Michael (2003: 2001). Firstly, genetic modification at
5) remind us, both the future and the past the level of somatic (body) cells was
are available to us ‘only […] imaginatively distinguished from alteration of germline
through histories and projections’. Histories (gamete producing) cells on the basis
are one such form of projection: they are that the former intervention only affects
accounts of the past, created and structured individuals whereas the latter is intended
in the present, in ways that organise to confer genetic changes that can be
and account for past events that accord passed on to future generations. Secondly,
with contemporary understandings and and of greatest import here, the transfer of
purposes (Morrison, 2012). The account genes intended to treat existing (genetic)
I present here is inevitably selective and diseases was distinguished as gene therapy,
partial. It is intended to draw attention from the genetic modification of humans
to those aspects of the enhancement with the intent of boosting human traits
debate that I believe are most relevant above normal levels or adding wholly
to the claims I make in this paper and new capabilities thereby enhancing the
the issues I have identified as most recipient’s abilities (Gardner, 1995; Juengst,
pertinent for a programme of STS research 1997). Thus, in its inception, the concept
on enhancement and enhancement of enhancement was defined as one half
technologies. This does not, I believe, of a dichotomy with therapy. Importantly,
diminish its value as long as we remain while enhancement is understood as
15
Science & Technology Studies 2/2015
distinct from therapy, ultimately it can only to protect society from possible harms of the
be defined by reference to the concept of unknown and uncertain. Viewed another
‘the therapeutic’. As the debate has moved way, the creation of categories of therapy
from ‘enhancement vs. therapy’ to ‘anti- and enhancement creates a sphere of ‘pure’
enhancement vs. pro-enhancement’, the use of medicine and medical technologies
category of therapy tends to fade from protected from the ‘dangerous’ and
view, but, as I intend to demonstrate in forbidden realm of unbounded application
subsequent sections, it still has an important that is enhancement (after Douglas, 1969).
role in framing the terms of discussion. In this, the concept of enhancement is
Returning to the genetic modification rather different from other theories of
debate, the resulting moral verdict at medical expansion such as medicalisation,
the time was that gene therapy affecting which, in its critical formulation, argues that
regular (somatic) body cells was ethically medicine might not always be the best way
acceptable but genetic modification to to address social problems, but does so on
enhance human abilities or pass on traits a case-by-case basis, not because it posited
to subsequent generations was morally that there was or should be an a priori fixed
prohibited. What can be inferred from the realm of medicine.
choice of ‘enhancement’ and ‘therapy’ as Critical accounts of bioethics such as
conceptual tools of classification? One, Evans (2002) and Kelly (2006) have argued
perhaps Whiggish, reading of the decision is that, as bioethics has become increasingly
that the enhancement/therapy distinction institutionalised as a part of the formal
allowed an ethical steering of the nascent regulation of medicine and biotechnology,
technology along a morally acceptable it has lost its critical distance from those
developmental pathway. Alternatively, it disciplines it is intended to oversee.
could be noted that the choice to valorise Instead, it is argued, bioethical review has
therapy and repudiate enhancement is come to act as a mechanism for diffusing
inherently a conservative one, opting to public anxiety about new technological
reinforce the value of what is already known practices, while ultimately legitimising their
and accepted and problematising the deployment, by issuing ethical caveats on
unknown and uncertain. Defining ‘therapy’ (and thereby creating) appropriate ways
as the proper scope of medicine creates a to use them. In this view the role of ethical
bounded space for medical practice with rhetorical tools such as the enhancement/
implicit, if poorly delineated, boundaries, therapy dichotomy serve the social function
which renders medicine manageable and of providing an ethical ‘fix’ to ‘a medical
unthreatening. Beyond the limits of this demand to push the limits of medical
(safe) domain is the realm of ‘enhancement’, treatment into new frontiers’ (Imber, 2001:
characterised by potentially unlimited, 31). Scully & Rehmann-Sutter (2001) make
but uncertain and nebulous possibilities this argument in relation to gene therapy,
and risks. The casting of enhancement reporting that when the enhancement/
as morally troubling can be seen as an therapy dichotomy was proposed, gene
acknowledgement of the need for adequate therapy was in its infancy and no capacity
reflection on the social consequences of for enhancement actually existed.
the technological choices made by a given Therefore, identifying enhancement
society, but also appears to contain an as a morally problematic domain to be
underlying risk averse, even paternalistic prohibited did not actually involve any
element, relying on tradition as a touchstone practical loss of a technological option for
16
Michael Morrison
17
Science & Technology Studies 2/2015
past, present and future issues of medicine [D]iseases are internal states that
and technological application. depress a functional ability below spe-
Taking a less instrumental view of cies-typical levels. Health as freedom
academic bioethics, the enhancement/ from disease is then the statistical nor-
therapy dichotomy also allows an mality of function, i.e., the ability to
engagement with traditional philosophical perform all typical physiological func-
themes of what constitutes a good or tions with at least typical efficiency.
worthwhile life. The concerns discussed
under the topic of enhancement are This type of thinking, known as the ‘normal
multiple, ranging from issues of authenticity functioning model’, was most prominently
and social justice to the question of championed by ethicist Norman Daniels
whether biotechnological interventions (1992, 2000; see also Sabin & Daniels, 1995)
have a specific moral character that who argued that the purpose of medicine
makes them qualitatively different from is to restore, maintain and compensate
‘social’ enhancements such as training for losses in equality of opportunity to
and education. What is most pertinent to individuals that result from disability
this account, though, is the spread of the and disease. The normal functioning
label and concept of enhancement to an model provides a way of calculating
increasing range of technologies, promoting the appropriate (moral) boundaries of
what might have remained a bioethical healthcare expenditure where ‘proper
modality peculiar to the realm of genetic healthcare services […] should be aimed
engineering into a prominent mode of at getting people back to “normal”, e.g.
technological classification. restoring an individual’s functional
capability to the species-typical range for
Tools of Classification: From Normal their reference class’ (Juengst, 1997: 129).
Functioning to ‘Beyond Therapy’ This type of biostatistical approach
In the case of genetic engineering it had exemplifies the strong tendency towards
been sufficient to prohibit enhancement at nature/culture dualism in certain
the level of intention to intervene in human formulations of the enhancement/therapy
biology. Once bioethical attention turned dichotomy. Ignoring the historically and
to existing practices where technologies socially contingent nature of medical
were already in use, the work of classifying knowledge, it presumes a single apolitical,
particular applications as enhancement ahistorical ‘species typical’ human body
or therapy meant that enhancement had produced through ‘value free’ biomedical
to move from being an abstract idea of techniques as a universal norm. Moreover
‘not therapy’ to a practically achievable the use of normal function models conflates
categorisation. In order to make the the ideas of statistically ‘normality’ and the
determination of the boundaries of health ‘natural’ human state with all the loaded
(and the corresponding limits of medical connotations the latter term implies,
practice) a more quantifiable, objective leading to the moral validation of normalcy
procedure, some early formulations of and problematisation of the statistically
the dichotomy explicitly drew on prior abnormal as socially undesirable. Normal
philosophical attempts to define health and functioning models of healthcare enjoyed
disease in biological and statistical terms, a period of popularity and influence in the
as for example in the work of Christopher enhancement debate. However, it should
Boorse (1977: 542): not be imagined that they ever reflected
18
Michael Morrison
a dominant bioethical consensus: for Some of these are established voices within
example Parens (1998) and Juengst (1998) bioethics such as professors John Harris and
both review a long list of potential objections Julian Savalescu. Others, often representing
and problems with normal functioning the social and intellectual movement known
models ranging from their potential as transhumanism, come from outside the
to make seemingly arbitrary decisions bioethical community to engage with the
about entitlement to medical resources, moral debates on enhancement (Agar, 2004;
through to constructionist accounts of Bostrom, 2003). For pro-enhancement
medicine that argue that medicine has no moral philosophers, futurists and
a priori boundaries. Even my cursory and transhumanists the moral polarity of the
selective review of the bioethical origins of original therapy/enhancement dichotomy
enhancement reveals the veracity of Devires is reversed: The possibilities of using
et al.’s (2006) claims about the multiplicity biotechnology to go beyond the current
of bioethical perspectives. limits of medicine represents not an ethical
Recourse to normal functioning transgression, but a desirable opportunity to
approaches has notably declined in overcome human limitations, while existing
recent years. This has largely been due to therapeutic applications of technology are
difficulties in implementation and having to at best acceptable and at worst inadequate.
amend the models to ensure that existing, The range of enhancement technologies
legitimated preventative health measures under consideration also expanded,
such as vaccination do not end up being covering more recent pharmaceuticals
classified as unacceptable ‘enhancements’, such as Modafinil which ‘enhances
rather than being a result of constructionist wakefulness’ (Coveney, 2011), technologies
or other minority ethical perspectives on at various stages of development including
‘mainstream’ bioethics. It is a measure regenerative medicine, bio-prosthetic
of the practical complexities of this type devices, cognitive enhancement drugs and
of approach that, by 2003 when the U.S. neuro-technologies (Hogle, 2005; Miller &
President’s Council on Bioethics were Wilsdon, 2006; Hughes, 2007), and highly
ready to launch their major ethical report speculative future possibilities such as
on enhancement, they opted for the title human-machine interfaces, life extension
‘Beyond Therapy?’ to reflect the need for and personality modification (Kurzweil,
debate to go ‘not only beyond therapy but 2005; Savulescu, 2007).
also beyond the distinction between therapy As the discussion has shifted to pit pro-
and enhancement’ (President’s Council and anti-enhancement camps against one
on Bioethics 2003: 13 emphasis added). another, problematic attempts to devise
Indeed, the debate has changed in ways that a quantitative definition of health and
bypass much of the difficulty in marking illness have been succeeded by a move
the exact boundary between normal and that places human nature as one of the
abnormal, therapy and enhancement, pivotal concepts at issue between pro- and
although probably not in ways that would anti-enhancement advocates. In anti-
meet with the approval of the distinctly enhancement arguments, enhancement
conservative President’s Council of 2003. transforms human nature through
biotechnology and therefore violates it,
Pro-enhancement vs. Anti-enhancement challenging human identity, and unleashing
With the rise of the concept of enhancement, a range of negative social consequences
have come pro-enhancement advocates. such as consumer markets in enhancement
19
Science & Technology Studies 2/2015
that will exacerbate inequality, and the One outcome of the rise of human
instrumentalisation of life as people nature is that the debate appears to
become valued only for the technological become more abstract as it focuses more
capacities they possess. Even though the on the acceptability or repudiation of
term ‘therapy’ is often absent from these enhancement en masse via theoretical
discussions, the ghost of the enhancement/ constructs such as human nature and less
therapy dichotomy can be seen in appeals on engagement with specific technologies.
to human nature. Human nature is, for anti- Additionally, as Ferrari (2008: 2) has argued:
enhancement arguments as developed by
Sandel (2004) or Fukayama (2002), part the reduction of the ethical challenges
of the ‘natural’: a given state of biological posed by these technologies to the
human being which must be respected and question of human nature has led to a
protected from hubristic notions of mastery polarization of positions, and has thus
and inappropriate cultural desires to generated an impasse from which it is
improve upon this natural state. Understood difficult to break free.
like this, the arguments for human nature
are not that far away from the valuation of Why should this apparent semantic
the (statistical) biological norm as natural stalemate among ethicists concern STS
and the repudiation of enhancement as scholars? I suggest a number of reasons.
an inappropriate cultural desire found in The polarised pro and anti-enhancement
Daniels (1992, 2000). framing hides the origins of enhancement
Pro enhancement advocates also engage as something that took work to distinguish
with concepts of human nature, refuting from therapy (however tenuous or
the claims of their ‘bio-conservative’ problematic that work may have been) and
opponents by questioning the idea that presents enhancement as an unproblematic,
there is a single, pervasive understanding established category. The debate
of human nature to discuss in the first comes to position human technological
place, or that human nature is such that enhancement not only as possible, but as
intervention represents a priori an immoral inevitable, where the only thing left to talk
act (Buchanan, 2009; Kaebnick, 2009). about is how to ethically manage the extant
Lewens (2009), at least partially echoing the or immanent technologies (see for example
difficulties of maintaining a clear boundary Baylis & Robert, 2004). This framing also
between therapy and enhancement, argues directly informs much of the converging
that many accepted interventions such as technologies agenda and is therefore
dental care or vaccination already enhance relevant to understand when interrogating
human capacities beyond the norm with no that phenomenon.
socially undesirable affects, rendering the
idea of human nature as a moral boundary The Converging Technologies Agenda
untenable. In many of these cases therapy/ The concept of technological enhancement
enhancement distinctions become less has spread to become the focus of
visible as the technological options they innovation policy, primarily through
represent become subsumed into a broader the various iterations of the converging
set of resources that promote a ‘good life’ technologies (CT) agenda beginning
to which individuals and populations are with Roco and Bainbridge’s 2003 report
entitled (Savalescu, 2009). ‘Converging Technologies for Improving
Human Performance: Nanotechnology,
20
Michael Morrison
21
Science & Technology Studies 2/2015
brings human enhancement in to line as In setting out this account of the human
another component in the knowledge- technological enhancement debate, I
based bio-economy, itself a fundamentally have tried to highlight key framings and
neo-liberal enterprise (Birch, 2006). dynamics in how enhancement has been
theorised over the past three decades,
There are a number of reasons why with the purpose of supporting future
this might be considered problematic. STS studies on this topic. Attention to the
As described above, neo-liberal ideology changing dynamics of enhancement can
favours a particular model of innovation help future investigators to locate particular
where the desired outputs are marketable case studies in terms of what framing of
products protected by strong intellectual enhancement they might expect to be
property rights (Birch, 2006; Lave et al., dominant for that particular technology at a
2010). Such an approach actively militates given time. For example, a historical study
against innovations that do not require of Ritalin use in the 1990s might expect
the transformation of social problems into moral debates of the time to be framed in
technical ones, that are non-commercial, terms of whether prescription for attention-
public rather than private, or where the deficit / hyperactivity disorder (ADHD) is a
role of the state is to provide welfare rather legitimate therapy or an illicit enhancement,
than facilitate the expansion of markets, all while an investigation of cognitive
of which may arguably be more desirable enhancement drugs currently under
or more appropriate options in a given development is more likely to encounter
situation. Abraham (2010) and Moynihan ethical discussion of whether modifying
et al. (2002) have identified potentially cognitive capacity is detrimental or not to
socially deleterious effects of market- human nature. Of course, it is also entirely,
driven innovation in the pharmaceutical and interestingly, possible that studies will
sector, where the creation of new markets find far more nuanced discussions at work,
sometimes requires the co-promotion of all of which can be usefully fed back to
new social problems to which innovative improve and build upon what I have merely
technologies are then presented as the sketched out here.
obvious solution.
Birch (2006: 9) also contends that, Conclusions
through the insistence on the inevitably of
competition, neoliberalism: This program for future STS work in
the domain of human enhancement
promotes the collapse of a distinction technologies offers an opportunity for
between market value and ethical value contributions from a range of existing
so that commercial value becomes theories and perspectives from across
the overriding principle for political the heterogeneous domain of practices
economy. loosely aggregated under the title of ‘STS
scholarship’. Some lines of investigation
Reminding us, if a reminder were needed, have already been touched on in the course
not only that economic, political and of the paper: case studies of existing,
technological trajectories are inevitably developing and prospective forms of
entangled, but that they are also inseparable enhancement technologies potentially
from ethical considerations and moral and animated by a variety of concerns from
social consequences. co-production of technology and society
22
Michael Morrison
23
Science & Technology Studies 2/2015
Report from a joint workshop hosted by Brown N Rappert B & Webster A (eds)
the Academy of Medical Sciences, the (2000) Contested Futures: A Sociology of
British Academy, the Royal Academy Prospective Techno-Science. Aldershot:
of Engineering and the Royal Society. Ashgate.
Available at: www.britac.ac.uk/policy/ Buchanan A (2009) Human Nature and
Human-enhancement.cfm (Accessed 10 Enhancement. Bioethics 23(3): 141–150.
November 2012). Collins HM & Evans R (2002) The Third
Agar N (2004) Liberal eugenics: in defence of Wave of Science Studies: Studies of
human enhancement. Oxford: Blackwell. Expertise and Experience. Social Studies
Ashcroft RE (2003) American biofutures: of Science 32(2): 235–96.
Ideology and utopia in the Fukuyama/ Conrad P & Potter D (2004) Human Growth
Stock debate. Journal of Medical Ethics Hormone and the Temptations of
29: 59-62. Biomedical Enhancement. Sociology of
Banse G Grunwald A Hronszky I & Nelson Health & Illness 26(2): 184–215.
G (eds) (2007) Assessing Societal Conrad P (2005) The Shifting Engines of
Implications of Converging Technological Medicalization. Journal of Health and
Development. Berlin: Edition Sigma. Social Behavior 46(1): 3–14.
Baylis F & Robert JS (2004) The Inevitability Coveney CM (2010) Awakening
of Genetic Enhancement Technologies. Expectations: Exploring the Social and
Bioethics 18(1): 1–26. Ethical Issues Surrounding the Medical
Bijker WE Pinch TJ & Hughes TP (eds) (1987) and Non-Medical Use of Sleep Drugs
The social construction of technological in the UK. Unpublished Doctorate.
systems: new directions in the sociology Nottingham: University of Nottingham.
and history of technology. Cambridge, Coveney CM (2011) Exploring Modafinil
MA: MIT Press. Use in Social Context. In: Pickersgill
Birch K (2006) The Neoliberal MD & Van Keulen I (eds) Sociological
Underpinnings of the Bioeconomy: The Reflections on Neuroscience. Bingley:
Ideological Discourses and Practices of Emerald, 203–228.
Economic Competitiveness. Genomics, Crigger B-J (1998) As Time Goes by: An
Society and Policy 2: 1–15. Intellectual Ethnography of Bioethics.
Boorse C (1977) Health as a Theoretical In: De Vries R & Subedi J (eds) Bioethics
Concept. Philosophy of Science 44(4): and Society: Constructing the Ethical
542–573. Enterprise. Upper Saddle River, N. J:
Borup M Brown N Konrad K & Van Lente Prentice Hall, 192–215.
H (2006) The Sociology of Expectations Daniels N (1992) Growth Hormone Therapy
in Science and Technology. Technology for Short Stature: Can We Support the
Analysis & Strategic Management 18: Treatment/Enhancement Distinction.
285–98. Growth, Genetics and Hormones 8(1 -
Bostrom N (2003) Human Genetic supplement): S46–S48.
Enhancements: a Transhumanist Daniels N (2000) Normal Functioning and
Perspective. The Journal of Value Enquiry the Treatment-Enhancement Distinction.
37: 493–506. Cambridge Quarterly of Healthcare Ethics
Brown N & Michael M (2003) A Sociology 9(3): 309–322.
of Expectations: Retrospecting Prospects De Melo-Martin I (2005) Firing Up the
and Prospecting Retrospects. Technology Nature/Nurture Controversy: Bioethics
Analysis & Strategic Management 15(1): and Genetic Determinism. Journal of
3–18. Medical Ethics 31: 526–530.
24
Michael Morrison
De Vries R Turner L Orfali K & Bosk C (2006) Hedgecoe AM (2004) Critical Bioethics:
Social Science and Bioethics: the Way Beyond the Social Science Critique of
Forward. Sociology of Health & Illness Applied Ethics. Bioethics 18(2): 120–143.
28(6): 665–677. Hogle LF (2005) Enhancement Technologies
Dickenson D (2013) Me Medicine vs. We and the Body. Annual Review of
Medicine: Reclaiming Biotechnology for Anthropology 34: 695–716.
the Common Good. New York: Columbia Hughes JJ (2007) The struggle for a smarter
University Press. world. Futures 39(8): 942–954.
Douglas M (1969) Purity and Danger: Imber J (1998) Medical Publicity Before
an Analysis of Concepts of Pollution Bioethics : Ni n e t e e n t h - C e n t u r y
and Taboo. Revised edition. London: Illustrations of Twentieth-Century
Routledge & Kegan Paul. Dilemmas. In: De Vries R & Subedi J (eds)
Ehrlich P & Feldman M (2003) Genes and Bioethics and society: constructing the
Cultures: What Creates our Behavioural ethical enterprise. Upper Saddle River,
Phenome? Current Anthropology 44(1): N.J: Prentice Hall, 16–37.
87–107. Juengst ET (1997) Can Enhancement
Evans JH (2002) Playing God? Human Be Distinguished from Prevention in
G e n e t i c Eng i n e e r i n g a n d t h e Genetic Medicine? Journal of Medicine
Rationalization of Public Bioethical and Philosophy 22(2): 125–142.
Debate. Chicago, IL : University of Juengst ET (1998) What Does Enhancement
Chicago Press. Mean? In: Parens E (ed) Enhancing
Ferrari A (2008) Is It All about Human Human Traits: Ethical and Social
Nature? Ethical Challenges of Converging Implications. Washington, D. C.:
Technologies Beyond a Polarized Debate. Georgetown University Press, 29–47.
Innovation: The European Journal of Jonsen AR (1998) The Birth of Bioethics. New
Social Science Research 21(1): 1–24. York: Oxford University Press.
Fuller S (2009) Knowledge Politics and Kass LR (2003) Ageless Bodies, Happy
New Converging Technologies: a Social Souls: Biotechnology and the Pursuit of
Epistemological Perspective. Innovation: Perfection. The New Atlantis 1 (Spring):
The European Journal of Social Science 9–28.
Research 22(1): 7–34. Kaebnick GE (2009) “It’s against nature”.
Fuller S (2011) Humanity 2.0: What It Means Hastings Center Report 39(1): 24–6.
to Be Human: Past, Present and Future. Kelly SE (2006) Towards and Epistemological
Basingstoke: Palgrave Macmillan. Luddism of Bioethics. Science Studies
Fukayama F (2002) Our Post-Human Future: 19(1): 69–82.
Consequences of the Biotechnology Keulartz J Schermer M Korthals M &
Revolution. New York: Ferrar, Straus & Swierstra T (2004) Ethics in Technological
Giroux. Culture: a Programmatic Proposal
Gardner W (1995) Can enhancement be for a Pragmatist Approach. Science,
prohibited? Journal of Medicine and Technology & Human Values 29(1): 3–29.
Philosophy 20: 65–84. Kurzweil R (2005) Human 2.0. New Scientist
Guggenheim M & Nowotny H (2003) Joy in 187(2518): 32–37.
Repetition Makes the Future Latour B (2004) Why Has Critique Run Out
Disappear: A Critical Assessment of the of Steam? From matters of Fact to Matters
Present State of STS. In: Joerges B & of Concern. Critical Inquiry 30(2): 225–
Nowotny H (eds) Social Studies of Science 48.
and Technology: Looking Back, Ahead.
Dordrecht: Kluwer, 229–58.
25
Science & Technology Studies 2/2015
26
Michael Morrison
27
Science & Technology Studies 2/2015
28
Science & Technology Studies 2/2015
29
Science & Technology Studies 2015, Vol. 28(2) 29-52
Science & Technology Studies 2/2015
that this may have been a valuable learning ways. What kind of work does this require?
experience, but not exactly a technological What expectations are entailed? And how
home-run in the quest for doing chronic come expectations are so often not met
care smarter by involving patients. “I’m despite the careful efforts of designers to
afraid that this project will end up exactly create tools capable of aligning different
as all the others. The doctor doesn’t bother user needs? These questions are explored
to read it, hasn’t got the time. And then through the case of an e-health system for
you spend millions on a system which ICD-patients and the clinicians involved
won’t work in the long run”, as one patient in their care, ‘P-Record’ 2, introduced
evaluates. anecdotally above. An ICD is an advanced
Involving patients by means of e-health1 pacemaker that monitors the heart rhythm
is a persistent ambition in healthcare (Berg, and, in case of arrhythmias, treats these
2002; Felt et al., 2009; Danholt et al., 2013). by electrical impulses. The care for ICD-
Often framed as providing win-win tools, patients is divided between 1) a specialized
e-health is associated with the hope that clinic (device clinic) responsible for the
involving patients in their own treatment ICD-device and remote monitoring and
will improve both the quality and efficiency 2) the local hospitals’ outpatient clinics
of care (Archer et al., 2011; Wagner et al., (heart clinics) responsible for treating
2010). But realizing the ambitions seems the patients’ underlying heart condition.
difficult. Pilots come and go and efficiency P-Record was designed as an add-on
claims remain largely unsubstantiated solution to this already technologically
(e.g. Miller, 2007; Tenforde et al., 2011). dense and distributed care scheme
The lack of evidence for e-health efficacy and aimed at improving coordination,
may partly be due to the methodological communication and patient participation.
difficulties of evaluating technology outside This overall ambition was translated into a
controllable environments (Pols, 2012). But focus on facilitating the flow of appropriate
besides being difficult to measure, the win- and timely information between home
win situation may also simply be hard to and clinic by enabling patients to provide
achieve. As the example of user evaluations information. As such, the system shares
above indicate, a central problem is that with many other e-health technologies
people—patients and clinicians—have to the basic script of serving as both a
do a lot of work to make the technologies standardization and customization device.
work. STS and CSCW scholars have That is, the system was intended as a sort of
substantiated this insight repeatedly (Mort filter that allows information to travel from
et al., 2003; Nicolini, 2006; Oudshoorn, home to clinic in a structured manner that
2008, among others). Moreover, for people fits clinical standards while at the same time
to put in the work, it must be worthwhile. opening up for an increased involvement of
So when patients are invited as participants the individual patient. The tension between
what follows are certain expectations— standardization and customization has
expectations that are often not met and the been pointed out as a characteristic of the
invitation results in disappointment. contemporary evidence-based healthcare
This article addresses this well-known paradigm at once patient-centred and
schism by taking a closer look at the rational (May et al., 2006; Storni & Bannon,
nature and sources of the expectations 2012; Moreira, 2011). E-health technologies
that follow when patients are invited to may, as illustrated by P-Record, emphasize
provide clinicians with information in new this tension by inviting patients to a kind
30
Karen Dam Nielsen
31
Science & Technology Studies 2/2015
32
Karen Dam Nielsen
of the overall socio-technical information write key words and arrange them after
filtration in ICD-treatment. priority and, subsequently, to indicate
Secondly, the system was designed to symptoms by ticking off boxes linked to
focus the face-to-face clinical encounters at prefixed categories. The preparation form
both the device clinic and the heart clinic would thereby enable the clinicians to
by providing a tool for preparation: the gain a quicker overview and focus the
preparation form (figure 1). It consisted conversation with the patient—to “get to the
of four parts: general well-being, status point” (Andersen et al., 2011b)—and allow
since last consultation, symptoms, and the patients to present their own narratives.
questions for the upcoming encounter. This way, P-Record can be understood as
The parts and their order were designed in in itself designed to both open and narrow
a way that allowed for free text in the first the scope of information and to assist both
part, then gradually narrowing down the clinicians and patients in their informal
patients’ entries by asking the patients to filtration of information before and during
Figure 1. P-Record’s preparation form. Consisting of four parts (besides the front page
indicating the type of appointment): general well-being (‘alment’), status (‘siden sidst’),
symptoms (‘symptomer’), and questions (‘spørgsmål’) - in the example, partly filled out by
patient-participants in the user-test (personal information concealed).
33
Science & Technology Studies 2/2015
34
Karen Dam Nielsen
making P-Record work as a filtration device. supporting the flexible, situational and
As Maurer (2013: 65) puts it, filtration—or receiver-oriented record keeping practices,
sieving—“depends on a set of presumptions, which build on a shared, tacit organizational
a priori judgements or assessments of rationale rather than formal standards.
probabilities”. That is, filtration rests on When studying the use of ICTs that also
certain ontological assumptions. These include patients as information producers,
are both transformative and continuously I propose that a dialogic framework very
transformed by inference (Kockelman, precisely brings forth the challenges and
2013): we order our worlds based on our implications of coordinating information
assumptions—including assumptions filtration practices in the absence of a
about others’ assumptions—but our shared organizational rationale.
encounters with the world (and others)
provide for recurrent reinterpretations and Methods
new assumptions. We adjust ourselves
as filters, so to speak. I show how the The article is based on ethnographic
specific filtration work that the users of research conducted during a 3-month user
P-Record performed was based on dialogic test of P-Record. The user test involved 6
assumptions: it consisted of processes of patients and 6 clinicians at the outpatient
imagining the receiver, the interactional heart clinics of two Danish hospitals.
situation, and the response—and shaping During the user test, patients were to
ones entries accordingly. Filtration work, I prepare for and participate in three kinds of
suggest, is thus a dialogic endeavour. And as clinical encounters using the IT-system: a
a dialogic endeavour, filtration work entails remote follow-up of their ICD; an in-clinic
certain dynamics and ‘side-effects’ making ICD follow-up at the device clinic; and a
the use of P-Record a complex and, in some consultation at the local hospital’s heart
instances, quite problematic social practice. clinic. These activities together constitute
The dialogic approach largely resonates the existing distributed care scheme of ICD-
with studies in ethnomethodology and, patients. However, due to the timeframe
later, in CSCW that unpack the social of the user test, these activities were
dynamics of producing and sharing rescheduled to take place closer to each
medical information. In his seminal study other in time than normally. Throughout
of practices of keeping medical records, the user test, I acted as facilitator and
Garfinkel (1967) precisely demonstrates instructor. Patients were given instructions
how, in this case, doctors shape their entries in their homes. All parts of the system were
based on anticipations of the future readers’ demonstrated at the initial visits, although
interpretation and use and, recursively, read with an emphasis on the more extensive
entries in recognition of their occasional functionalities (the preparation form
rather than intrinsic meaning. In CSCW, this and medication list) linking to upcoming
insight has been a key to understanding the appointments in the clinics. The visits
challenges of digitalizing medical work. As also involved interviews with the patients.
demonstrated by for instance Heath & Luff Likewise, the system was demonstrated to
(1996) and later Berg & Goorman (1999), clinicians individually, however, in a briefer
digitalizing and, thereby, formalizing manner due to the limited time available in
medical records clashes with the social and the clinics and the knowledge of the system
contextual nature of medical information. that they had already gained through their
That is, ICT risks impeding rather than participation in the design process. During
35
Science & Technology Studies 2/2015
the user test, I accompanied the patients at generalized receiver. Proceeding from this
their visits to the clinics and had telephone observation, I propose that the patients’
and/or email contact with all patients on use of the system was characterized by
more occasions. By the end of the user test, addressivity (Bakthin, 1986; Linell, 2001):
all participants were interviewed about their entries were directed towards a
their experiences during the test. receiver with the anticipation of a response
By serving as both facilitator and and shaped accordingly. That is, in deciding
ethnographer, I took on a highly what to write, patients performed a dialogic
interventionist approach. To turn the assessment: they based their assessments
challenges of this approach into analytical of relevance on careful considerations
resources, I treat the user test of P-Record about whom they were writing to; what
as both the object of study and a heuristic the receivers might want; and what kind
device—a transformative filter, so to speak— of responses to expect. This dialogically
allowing me to gain understanding by oriented process of shaping entries proved
disruptively bringing about more nuanced a complex interpretative task of de-
data (Hasu & Miettinen, 2006) and engage scripting not only the system but also, and
with frictions (Zuiderent-Jerak & Jensen, especially, the context of use—that is, the
2007). As part of the following analysis, overall practices and infrastructures of care
I thus draw on the insights gained as I that make up the ‘real environment’ that
became a central knot in the infrastructure P-Record only vaguely describes (Akrich,
and interactions and, thereby, experienced 1992).
first-hand the dialogic dynamics involved in
the use of P-Record. Knowing the Receiver
The analysis is structured as a gradual During the user test, patients were
unfolding of these ‘dialogic dynamics’ by to prepare for three different clinical
following the flow of interactions between encounters. The preparation form was,
patients and clinicians as they took place however, generic; there was no technical
during the user test. In the first section, I shaping of the patients’ entries according to
show how patients made use and sense the different kinds of consultations. Instead,
of the tool as a way to address clinicians. the patients took on the work of filtering
Then, I show how clinicians perceived information for the different consultations
and responded to the patients’ entries. by trying to envision who would be at the
Finally, I turn to how patients perceived other end and what information this person
the clinicians’ reactions. At the end of each would want, also envisioning what actions
section, I discuss how the (dialogic) use could be taken. Therefore, the work of filling
practices can be understood as filtration out the preparation form first of all became
work. dependent on how clear the division of work
between different clinics and professionals
Writing to Someone was to the patients. Some patients were
well aware of the infrastructure, as the
The design of P-Record only vaguely participant Anne (a health professional
indicated the identity of the receiver of herself and long time ICD-patient) who
patients’ entries. However, a defining even knew, in details, about the distribution
feature of how the patients used the system of competencies among named clinicians in
was that they addressed their writings to the same unit. When filling out the first part
someone: either a specific receiver or a (‘general well-being’) of the preparation
36
Karen Dam Nielsen
form for remote ICD follow-up, she stated: division of work in the clinic. And in the
“is doing fairly well”, despite being troubled end, her interpretation of the infrastructure
by various symptoms on a daily basis. When of care seems to lead her to make a shift
I asked her about her choice of words, she in perception from regarding the clinical
said: encounter as the context of use to seeing
the user test as the context or purpose in
The problem is that is only our techni- relation to which she assesses the relevance
cians [who read it], right. They can’t… of her entry. As she explains when asked
it is only about the technical side of why she chose to raise the issue about the
the ICD, right. That is why I said to you neck vein after all:
on the phone: but who sees it? None of
the doctors do. They [the technicians] I think it was just as much because I
can’t go into all that, neither regard- had to write something [laughs] so that
ing my medicine or symptoms or how I we would have something when we got
have been feeling. (First interview with there [to the fi rst test consultation at the
Anne) clinic]. (Final interview with Anne)
Later, when preparing for the in-clinic For other patients, the distributed care
ICD follow-up, she writes that she is scheme and lack of a regular contact
experiencing nuisance in her right shoulder person among the clinicians caused
and neck caused by the device pressing on a greater uncertainty about who to address
vein. But she is in doubt about the relevance and, consequently, what would constitute
of raising this issue: relevant information. This was strikingly
evident for the participant, Ben, who to
It doesn’t help to talk to Mark about some extent had given up on understanding
it. Then I would have had to get an the infrastructure. Therefore, when filling
appointment with… then we should out the preparation forms for the three
have called in John [cardiologist]. But it different appointments, he did not address a
wasn’t that important, I think. […] If it specific receiver but wrote with a collective,
was a real system that was up and run- cross-institutional, and “typified” (Linell,
ning then we would have to talk about 2001: 103) receiver in mind—‘the doctors’—
it. But then I would probably have called although he had experienced this collective
them […] because usually when you’re as highly fragmented:
at the clinic for a reading then it is not
supposed to be a conversation with a Interviewer: And does it mean anything
doctor or a talk at all. (Final interview to you who will read it at the other end?
with Anne) Ben: I almost don’t care when it comes
to the doctors. [The local hospital] and
Anne here assesses the meaningfulness of [the device clinic] each have their own
raising the issue based on well-founded opinions, that is for sure.
assumptions about the receiver, considering (Final interview with Ben)
both if the receiver will be able to act on it
and if the severity should spark her to try Ben’s way of using the system shows, in an
to address another potential receiver by intricate way, how the directedness towards
other means. She thus pragmatically draws a receiver is both inevitable and highly
on her extensive knowledge about the challenging. He may not be addressing a
37
Science & Technology Studies 2/2015
specific receiver but he nonetheless writes distinctly, he used the system to navigate
from an experience that it does matter which in the complex infrastructure by directly
clinicians he is in contact with in terms of addressing me through the e-mail feature
which interpretations and decisions will (e.g. with questions regarding appointments
be made, that is, how his utterances will be outside the context of the project and by
filtered differently by different receivers. On forwarding referral letters asking me to
the one hand, his lack of knowledge about help make sense of them), thus making
the division of work between the different me, at times, the primary and only specific
clinicians meant that relevance became receiver. Ben this way, like Anne, partly
hard to assess and he repeatedly consulted shifted his orientation from the clinicians
me for advice on what to write. Even at the as receivers and the clinical encounters as
end of the test period, when filling out the the context of use to the researcher and the
preparation for a visit at the heart clinic, he research project—in his case, because the
was still very insecure about what to write, infrastructure remained incomprehensible
although he could now draw on experiences to him.
of what had proved relevant—or irrelevant—
to other clinicians at previous encounters: Anticipating the Answer
Besides considering who the receivers
Ben: ‘How have you been since the last might be and what they might want, the
time?’ Well, what should I say? What patients shaped their entries according to
should I write now? [...] I would like to reflections on what response they might
have a day monitor put on, now that I’m get and, more subtly, how they would be
working, to see the next 24 hours. perceived as senders and how they wished
Interviewer: You could write that as a to perceive themselves. For the participant,
question, for instance ‘Can I have a day Carl, these considerations all come together
blood pressure monitor put on?’ when he is filling out the preparation form
Ben: Yes, that’s what it said here [in the for the consultation at the heart clinic and
preparation form] the last time I was at together with me tries to establish what
[the device clinic], but as she [the doc- would be relevant to write. Carl takes into
tor] said, it was [the local hospital] who consideration the severity of certain health
handled that case. issues and relates it to his knowledge of the
(Extra visit and instruction with Ben) division of work between the cardiologist
and his GP. He has had a cough recently
Provided with a new means of contact but does not think that it is severe and
(P-Record), Ben also on his own initiative is therefore content with already having
attempted to bridge what he experienced discussed it with his GP—“it’s nothing to
as a gap in the infrastructure causing start ranking up”, he says. His assessment
him great anxiety. Requesting to have his of what is relevant to write is further
blood pressure measured over the course influenced by his overall experience of
of a working day—something he had illness: how certain symptoms become part
discussed with his GP—in his preparation of ‘the normal’ and how he is coping with
forms for his appointments at both the illness by insisting on a good general well-
heart clinic and at the device clinic can being:
be seen as a persistent attempt to make
the issue a shared responsibility across
institutional boundaries. And perhaps more
38
Karen Dam Nielsen
Interviewer: If what has characterized the system meaningful outside the realm
the situation the most is that you have of a research project; he is happy with the
felt short of breath, then you could write existing care scheme to which he complies.
that. For Carl, the very act of writing about
Carl: Well, yes, but they know that symptoms conflicted with his choice not to
because it has been like that for many focus on illness and, furthermore, sparked
years now. [...] the articulation of lifestyle issues at the
Interviewer: And then there is the consultation that he regarded as pointless
option to write five things, but you don’t and merely tiresome to address repeatedly.
have to write five things. Carl’s case thus points to a consideration
Carl: No, no, no, because I feel fi ne. that may be part of patients’ filtration of
But, well, there is just... when I bike information, namely the wish to minimize
or [walk] up the stairs then I pant the focus on disease. Carl’s way of assessing
a lot, right. That’s the only thing. relevant information when shaping his
Because otherwise I feel all right. entries mirrors his way of communicating
There’s nothing the matter with me. with clinicians in general and can be
(First visit and instruction with Carl) described as a balancing act between
providing the necessary information and
Later, when filling out the preparation keeping symptoms unarticulated—the
form himself before the consultation at goal of the balancing act being to cope
the heart clinic, Carl first states that he “is with illness in a way that minimizes its
doing fine” but when asked directly about overall impact in everyday life. He thus
symptoms, he ticks off almost all boxes: filters information with the prospective
shortness of breath; dizziness; swollen legs; continuation of the dialogue in mind—
palpitation; and fatigue. On the last page imaging not only who the receiver might be
of the online preparation form (questions and want, but also considering what kind
for the consultation), he repeats “shortness of conversation his entries will lead to and,
of breath”, “dizziness” and “swollen legs”. subsequently, how this will (negatively)
He later explains that he would not affect his overall coping with illness.
normally take these things up as he has For other patients, imagining what their
just conformed to them as conditions and entries would entail played out as attempts
only thought of them because P-Record to foresee more specifically what kind of
provided the keywords. This way he acts answers they might get from the clinicians.
according to the script of the system in Anne, who chose to raise the issue of a
the sense of being sparked to articulate nuisance around her neck vein caused by her
symptoms that he would normally remain device, anticipated that she would not get a
silent about—to adjust his usual filtration by response since the issue would be outside
letting more through. At the following visit, the scope of the receiving technician’s
the cardiologist asks about the symptoms competences. She also expected that there
and touches upon lifestyle issues. However, simply would not be time to respond for
Carl just comments and nods evasively the receiving clinicians in the device clinic
and disinterested and afterwards states since “they already have plenty of work
that he knows all this, they have talked with all that remote monitoring” and using
about it before, but he prefers to continue P-Record would “take a lot more resources”.
his lifestyle and just enjoy whatever time Besides drawing on these assumptions
he has left. He adds that he would not find about the conditions of work in the clinic,
39
Science & Technology Studies 2/2015
she furthermore based her anticipation of I can’t talk to them in connection with
response on an assessment of severity; that the preparation for [remote device con-
is, if a certain issue would be considered trol] so I wrote generally. [...] When I
topical and serious enough by the clinicians thought about, okay the third of Decem-
to be acted upon. In a circular way, she links ber I am going there [to the clinic], then
her assessment of what the clinicians may it was important to include other things,
regard as serious to the choice of media: symptoms and so on. (Final interview
using P-record to raise a certain issue may with Anne)
in itself indicate to clinicians that it is not
something they need to respond to. As she For her, the potential lies in the hope that
says: providing more information will lead to
a richer (face-to-face) conversation. This
If I can be content with sending a mes- goes for the patient, Louis, as well. At first
sage then it’s not that serious, you know, glance, he seemed to do ‘less’ filtration
then it’s not something they have to act work compared to the other patients who all
on here and now. Because if it was seri- wrote in a very concise manner. Louis wrote
ous then I would get on the phone and extensively in both the preparation form
call them or I would rush off [by ambu- and in the logbook5 and, in the eyes of the
lance]. (Final interview with Anne) clinicians, really ”opened the floodgates”
with entries like this:
Finally, Anne takes into account that the
issue may not be ‘actionable’ (Andersen et I continue with dizziness and general
al., 2014) at all. That is, the answer she has fatigue, which sometime gets really bad,
been given so far is that nothing can be done other days is okay. I have arrhythmias
about it. This adds to her anticipation that many times a day, especially when I
raising the issue of her neck vein will not rest. Haven’t experienced it while I walk
spark an answer in the hoped-for-sense— or anything else. The legs are always
that is, some kind of clinical action that will weak and of course with great differ-
solve the problem—and thus not be worth ence in temperature. The right leg feels
the effort. numb sometimes. That may also be due
to the lack of vitamin D since I stopped
Experimenting with Dialogue taking them in December. (Louis’ log-
In her writings and deliberations, Anne book, symptom note)
is constantly torn between pragmatic
expectations and a wish to experiment He did, however, still perform a selection of
as a participant in a user test. Contrary information, only, he regarded the system
to the script of the system as a means to as a chance to open rather than narrow
‘open the scope of information’ in relation the scope and provide the information that
to remote monitoring especially, Anne he was afraid was missed in the existing
chooses to write more extensively to the in- care scheme. Like for other patients, the
clinic follow-up. Imagining the interactive distributed and technologically dense
situation, she concludes that if she is to character of ICD-care made Louis feel that
write something in P-Record it will make no one saw the full picture of his condition
more sense for her to provide information and treatment and that crucial information
when it can actually become the basis of a was lost. In his case, the infrastructure was
conversation: complicated by his participation in a clinical
40
Karen Dam Nielsen
41
Science & Technology Studies 2/2015
often have to work hard to obtain from Peter: But it’s fi ne that you are doing
some patients. One of the cardiologists well, but still, now we can adjust the
summarized the value of the system as a details a bit, right.
means to both opening up and narrowing Carl: Well, I just thought that I’m so
the scope this way: used to being short of breath so you just
cope, right.
You could use it both ways, really. To (Transcript, Carl’s visit to the local
get the swarm of thoughts that occu- hospital)
pies some patients under control, where
it just pours out of them. And then The other case, initially referred to, is
with this guy [the patient Carl] it was Louis, who wrote extensive entries in an
more the case that if you ask [then he attempt to ensure the articulation of crucial
answers] ‘it’s going well’ and [you say] information and to push the clinicians to
‘okay, then we don’t have anything else provide the answers and actions needed to
to talk about’. He would be the kind of reduce his anxieties. At the consultation, the
guy who then comes home and the wife cardiologist only took up a few of the issues
asks ‘why didn’t you ask about all these that Louis had raised in the preparation
things’ or where it pops into his own form and later described Louis’ entries as
mind ‘oh, maybe I should have asked “very unstructured with these novel-like
about something’. (Final interview with or diary-like entries that I can’t live up to”,
Peter, cardiologist) also referring to them as “solemn phrases”.
Despite his critical attitude towards Louis’
Two cases lie behind this statement. One of writing style, or exactly because of this,
them is Carl, who, provided with keywords he thought the system proved useful in
in the preparation form, articulated more the situation by allowing him to “control
symptoms than he normally would do at a the contact” by quickly screening the
face-to-face encounter. When evaluating information given and avoid its articulation
the system later on, the cardiologist in the brief consultation, thereby perceiving
highlights Carl’s case as an example of the P-Record as facilitating a win-win-situation:
potential value of the system as it allowed
him to get information about symptoms He had kind of got it out. […] Then it
that he would normally have a hard time was like he knew that I knew a whole
getting Carl to talk about—a ‘success’ that lot, which we then didn’t have to sit and
the cardiologist also tries to share with Carl start all over on. So this way I actually
at the consultation: think that the patient is allowed to get
rid of it and I’m allowed to hear it with-
Peter: Do you have anything else on out it taking up too much space. Then
your mind? they get what they need and I get what
Carl: No, cause I feel fi ne. I need. I need something more struc-
Peter: Yes, but that’s kind of funny tured and concise. […] If he should sit
because I can see that you write that and present a bigger dramatic contribu-
you are feeling fi ne but then there was tion in the consultation then it would
something about being short of breath come between us. (Final interview with
and there was something about water in Peter, cardiologist)
your legs.
Carl: Well, yeah… The cases illustrate how the cardiologists
seemed to consider the system, at best, as
42
Karen Dam Nielsen
a filter that allowed them the information Or if the patient writes ‘I’ve had extra
they needed to respond to the patients’ heart beats’ or something like that, then
heart conditions and not their general it can be related to the arrhythmia. So
concerns. They further seemed to perceive in that sense it does matter to me, right.
the system as an adequate receiver in itself: Interviewer: But is it then something
that patients would feel good just getting you have to act on now when she writes
something off their chest by writing about about feeling a pain around her neck
it and that the clinicians then would not vein? [...] Is that something you would
have to spend time on responding to (for normally decide on?
them) irrelevant matters. The cardiologists Mark: No, because she has made a
thus regarded P-Record as a filtration transmission (remote transfer of ICD
device able to remedy existing problematic data). Now, it’s just that she writes…
filtration practices and assist them in their Well, I would write a message to her ‘if
own filtration work. As such, P-Record the swelling and pain around the neck
succeeded in the concrete cases, yet, it did vein continues you should contact us’.
so by also rendering the patients’ filtration That’s what I would write. [...] Yeah…
work ‘functionally invisible’ (Star & Strauss, but… should we write something to her?
1999) and thereby masking the dialogic (Transcript, remote follow-up of Anne’s
imaginations—or expectations—entailed. ICD in the device clinic with Mark)
However, the cardiologists did worry that,
at worst, they “would actually be tested in However, by being able to write a message
if (they) had read and understood it all” by saying “call if the problem continues”, Mark
the patients, whereby the system would fail was also relieved from responsibility for
as a filter. further reaction, as he could pass this on
to the patient. For Mark, passing on the
Shifting Responsibility responsibility for reaction became a way to
At the device clinic, the participating ‘filter’ the patients’ concerns one more time.
technician, Mark, differed from the This filtration both served to help him in
cardiologists in his responsive attitude, his medical decision-making, based on the
being eager to provide an answer although rationale ‘if it is really important they will
this was no straightforward task. The system call’ (as illustrated by Anne’s case), and to
meant that some patients would raise save time:
concerns that seemed to exceed the kind
of medical analysis and decision-making Mark: You can communicate quickly
normally included in his job. This caused [with P-Record]. Right now we have a
insecurity in relation to answering, as in the problem with a patient who does not
case of his remote follow-up of Anne where answer his phone. Then you spend a lot
I accompany him: of time calling the patient again and
again. If he had this system then we
Interviewer: What she has written in the could have said “please just call us”,
preparation (form) – isn’t that relevant right. [...] So you can say, it’s up to the
for you? patients [who] also have certain obliga-
Mark: Well, yes, but she’s feeling all tions themselves. It’s their disease; it’s
right… If she writes ‘my legs are swollen’ not ours. If they had this [P-Record] and
then I have to get a doctor and say ‘look something came up then they would
here, you have to write to this patient’. have to go in and tell us if there has
43
Science & Technology Studies 2/2015
44
Karen Dam Nielsen
the qualifications and attitudes of specific cardiologist did address Ben’s request for a
clinicians, and medical circumstances, 24-hour blood pressure monitor but simply
to some extent seemed to minimize did not agree with it. He also browsed
disappointment. As I have shown, the through Ben’s medication list6, suggesting
patients who took these realities into a few adjustments, but not addressing the
account seemed better able to address the issue of the over-the-counter drug that Ben
clinicians in a manner that the clinicians had listed with a question mark. The fact
appreciated: they wrote in a concise that the action he requested was not taken
manner and held what turned out to be a and the issue of medication not explicitly
realistic vision of what outcome to expect. In addressed left Ben with a feeling that his
contrast, Louis and Ben, both relatively new preparations had been useless. For Ben,
ICD-patients with little experience of the P-Record did not facilitate a more coherent
‘realities’ and an urgent need for contact, dialogue across institutional borders, as
wrote extensively and without a specific he had hoped for, and it did not lead to
(named) receiver in mind hoping to spark a the hoped-for action, thereby in sum not
reaction from the collective of clinicians or reducing his concern that no one was taking
‘push realities’, but with little effect. responsibility for his overall situation.
However, all patients did on some level For others, disappointment seemed
expect an answer and expressed being more about not feeling heard at all. Having
discouraged by the (lack of ) response written extensively in the preparation for
given. As Anne states, despite her pragmatic his consultation at the local hospital, Louis
attitude and awareness of the “realities”: was hugely disappointed with the verbal
response he got from the cardiologist as
I would like to use it [P-Record] but then expressed in his later imitation of how the
I want some response to what I have cardiologist, only looking at the screen,
written. If I ask some questions or have quickly browsed through and, subsequently,
some problems in relation to my heart disregarded the issues Louis had raised:
condition or my ICD then I want either
time in the clinic or a response from Maybe it is easier for the doctor himself
them. That requires that the staff will to have this little system […] then it is
do this seriously. (Final interview with much easier for them to say, ‘okay, bla-
Anne) bla-bla-bla-bla’. […] I looked forward
to this consultation [but] it was more
For some, the disappointment first of all like an IT-consultation, as I call it. […] I
seemed to be caused by the response not call it an IT-consultation when a doctor
entailing the hoped-for action, as in the doesn’t bother to listen and he just sits
case of Ben, who in his preparation for in front of you and says ‘okay, so and so
his consultations at both the device clinic and so’. (Final interview with Louis)
and the local hospital had asked for a 24-
hour blood pressure monitor and asked Clearly, Louis did not support the
for advice regarding an over-the-counter cardiologist’s appraisal of P-Record as
drug. At the device clinic, the technician allowing both patient and clinicians “to
and accompanying cardiologist did not get what they want”. To Louis, just “getting
explicitly take up any of the issues and only something off his chest” without subsequent
gave a brief answer when Ben asked directly, articulation during the consultation was far
saying that these were matters for the local from satisfying.
hospital to handle. At the local hospital, the
45
Science & Technology Studies 2/2015
In short, without an explicitly responsive In the analysis, I have showed how patients
and responsible receiver at the other end sought to fulfil their roles as information
46
Karen Dam Nielsen
47
Science & Technology Studies 2/2015
of the filtration work involved in the use also generative: they create overflows, for
of e-health is at least a place to start. I instance (unmet) expectations. This seems
propose that an ‘analytical filtration device’ inevitable, and when invoking ‘filtration
combining dialogism and studies of work’ as an analytical tool in relation to
invisible work can generate insights into the e-health, it is important to not just treat
participatory role as information providers the differing communicative projects and
that patients are given with e-health and expectations resulting from and guiding
into the implications it has for both patients the use of filtration devices as barriers
and professionals and, ultimately, for the to overcome in and by design. Rather,
organization of healthcare. Often framed they point to and should be addressed
as levellers of participation, e-health through broader discussions about how
technologies—and other participatory modern healthcare can accommodate
devices (Marres, 2012)—both entail and (itself to) patient participation, with all the
partly conceal substantial work by its users, work and overflows it implies. I suggest
as has also been pointed out by other studies. that STS-scholars may contribute to
I suggest that filtration work is an important, such discussions by experimenting with
but until now unrecognized, part of this and, thereby, learning about what ‘good
invisible work of patient participation, and filtration’ between patients and clinicians
that inquiring deeper into what it means to might entail. Moreover, and as a conceptual
be a participant can be done by unfolding its and methodological addition to CSCW-
dialogic workings and implications. While studies of information work (e.g. Health
dialogic filtration work is also part of face- & Luff, 1996; Berg & Goorman, 1999),
to-face clinical encounters, the introduction ‘experimenting with filtration’ may also
of e-health seems to have the potential to bring forth new insights in other contexts—
complicate rather than to support this work, in healthcare and beyond—where the
at least from a patient perspective, partly as production and sharing of information
processes of adjusting the filter—and the undergoes (digital) formalization.
dialogue—are inhibited and/or concealed.
This stresses the importance of also looking Acknowledgements
into how filtration work closely relates to the
materiality of specific filtration devices— The author would like to thank the
without ever being fully determined by it. patients and clinicians who took part
In the case of P-Record, a rather ambiguous in this study. She owes great thanks to
script meant that especially patients were Henriette Langstrup for discussions and
poorly supported in their filtration work, comments throughout the writing process
with Ben as vivid example. Yet, a clearer and Jeannette Pols for inspiration and
script might have posed other challenges. feedback on early drafts. Furthermore, she
Relations and practices of filtration (note is grateful for the very helpful comments
the verb form) are the key here: if we and suggestions provided by the two
think of filtration devices as ‘filters in anonymous reviewers.
themselves’ we overlook or even mask
the skills, knowledge, and motivations
that go into and result from making them
work. Furthermore, looking at filtration
illuminates how filters (as socio-technical
practices) are not just transformative, but
48
Karen Dam Nielsen
49
Science & Technology Studies 2/2015
Felt U, Gugglberger L & Mager A (2009) Langstrup H, Iversen LB & Vind S (2013)
Shaping the Future E-Patient : the The Virtual Clinical Encounter :
Citizen-Patient in Public Discourse on Emplacing Patient 2.0 in Emerging Care
E-Health. Science Studies 22(1): 24–43. Infrastructures. Science & Technology
Gar finkel H (1967) Studies in Studies 26(2): 44–60.
Ethnomethodology. Englewood Cliffs: Leaver T, Willson M & Balnaves M (2012)
Prentice-Hall, Inc. Transparency and the Ubiquity of
Hanani URI, Shapira B & Shoval P (2001) Information Filtration. Ctrl-Z: New Media
Information Filtering: Overview of Issues, Philosophy 1(2).
Research and Systems. User Modeling Lehoux P, Sicotte C, Denis JL, Berg M &
and User-Adapted Interaction 11(3): 203– Lacroix A (2002) The Theory of Use
259. Behind Telemedicine: How Compatible
Hasu M & Miettinen R (2006) Dialogue and with Physicians’ Clinical Routines?.
Intervention in Science and Technology Sociology of Science & Medicine 54(6):
Studies: Whose Point of View? Working 889–904.
Papers 35, Center for Activity Theory Linell P (2001) Approaching Dialogue:
and Developmental Work Research, Talk, Interaction and Contexts in
University of Helsinki. Dialogical Perspectives. Amsterdam: John
Heath C, Knoblauch H & Luff P (2000) Benjamins Publishing.
Technology and Social Interaction: the Marres N (2012) Material Participation.
Emergence of “Workplace Studies”. The Technology, the Environment and
British Journal of Sociology 51(2): 299– Everyday Publics. London: Palgrave
320. Macmillan.
Heath C & Luff P (1996) Documents Maurer B (2013) Transacting Ontologies:
and Professional Practice:“Bad” Kockelman’s Sieves and a Bayesian
Organisational Reasons for “Good” Anthropology. HAU: Journal of
Clinical Records. In: Proceedings of the Ethnographic Theory 3(3): 63–75.
1996 ACM Conference on Computer May C, Rapley T, Moreira T, Finch T &
Supported Cooperative Work (eds Olson Heaven B (2006) Technogovernance:
GM, Olson JS & Ackerman MS), Boston, Evidence, Subjectivity, and the Clinical
MA, USA, 16–20 November 1996: 354– Encounter in Primary Care Medicine.
363. Sociology of Science & Medicine 62(4):
Jerak-Zuiderent S (2012) Certain 1022–1030.
Uncertainties: Modes of Patient Safety Miller EA (2007) Solving the Disjuncture
in Healthcare. Social Studies of Science Between Research and Practice:
42(5): 732–752. Telehealth Trends in the 21st Century.
Kockelman P (2013) The Anthropology Health Policy 82(2): 133–141.
of an Equation. Sieves, Spam Filters, Miller JG (1962) Information Input
Agentive Algorithms, and Ontologies Overload. In: Yovits MC, Jacobi GT
of Transformation. HAU: Journal of & Goldstein GD (eds) Self-Organizing
Ethnographic Theory 3(3): 33–61. Systems. Washington, DC: Spartan Books,
Langstrup H (2008) Making Connections 61–78.
Through Online Asthma Monitoring. Moreira T (2011) Health Care Standards and
Chronic Illness 4(2): 118–126. the Politics of Singularities: Shifting In
and Out of Context. Science, Technology &
Human Values 37(4): 307–331.
50
Karen Dam Nielsen
51
Science & Technology Studies 2/2015
Zuiderent-Jerak T & Jensen CB (2007) 4 The term ‘filter’ relates closely to such
Editorial Introduction: Unpacking terms as ‘sorting’, ‘sieving’, ‘retrieving’
“Inter vention” in Science and and ‘selecting’. I use the term ‘filter’
Technology Studies. Science as Culture because it is already commonly
16(3): 227–235. used in relation to information and
communication technology and thus
Notes constitutes a ‘native’ metaphor. I use
both the noun and verb form in order to
1 I use the term e-health to denote capture the tension between perceived
various patient-involving information automatized ‘filters’ and the practices
and communication technologies. involved in making them function as
2 P-Record was designed through a such.
collaborative research project, CITH 5 In the logbook patients could write free
– Co-constructing IT and Healtcare text categorized as either diary, note of
(www.cith.dk). The project resulted in symptoms, or illness history. This part of
a prototype that was then technically the system was not explicitly associated
implemented by a software company. with upcoming appointments but the
The name ‘P-Record’ is constructed for entries would, nonetheless, be visible
the purpose of this article as a common to clinicians.
denominator for the prototypes and 6 In the medication list feature, patients
the implemented system. Although could create an overview of their
this conceals important differences medication and enter information
between the various iterations, these about doses, side effects, and date of
are not the subject of analysis here and prescription.
a common denominator is chosen to
avoid unnecessary confusion. Karen Dam Nielsen, PhD, Postdoc
3 Contrary to the often noted Section for Human-Centred Computing
performative role of expectations in Department of Computer Science,
innovation processes (Borup et al., University of Copenhagen
2006), the case of P-Record is a story of Njalsgade 128-132, DK-2300 Copenhagen S,
the simultanous fuelling and ‘failure of Denmark
expectations’ (Brown & Michael, 2003). kani@di.ku.dk
52
Science & Technology Studies 2/2015
Concerns have been raised about the marketization of science through the prevailing
funding regime. However, the present article will discuss how it comes that the
potentially marketable stem cell science is not more commercialized than what is
currently the case. We approach this question by analysing discursive pluralism in
defining the value of stem cells within a grant allocation process. More specifically,
we focus on how the commercial imperative is challenged by other cherished values
surrounding stem cell research. The case study used to discuss this is the Swedish
Government’s funding of stem cell research within so-called strategic research
programmes. The analysis focuses on the co-existence of what we refer to as
entrepreneurial, translational and basic research politico-moral discourses. How the
co-existence of politico-moral discourses is possible, despite potential tensions,
is investigated by drawing on the theoretical framework of bio-objectification.
Specifically, we highlight how the relationship between various bio-identities and
values was reorganized along the research grant allocation trajectory. We argue
that there are obvious signs of temporally specific discursive shifts away from the
commercial imperative in the grant allocation process. This suggests the need to
study located processes, in order to understand the work of politico-moral discourses
in the grant allocation process. This work contributes to an understanding of the
uneven and varied impact of neoliberal policies on biomedicine.
53
Science & Technology Studies 2015, Vol. 28(2) 53-72
Science & Technology Studies 2/2015
to the dignity of human life; as intriguing To approach the question of why there
objects of science; as promises for new are not more successful commercial stem
therapies for severely ill patients; and lately, cell-based therapies than is currently the
as connected to and drivers of economic case, the present article analyzes discursive
growth. While much work on stem cells pluralism in defining the value of stem
within the field of Science and Technology cells – as a broad category that includes
Studies (STS) has engaged with moral and human or non-human stem cells in an
religious contestations (Salter & Salter, embryonic or non-embryonic state – within
2007), circulation and space (Wainwright & a grant allocation process and discusses
Williams, 2008), standardization (Eriksson its potential effects. More specifically, we
& Webster, 2008), expectations (Martin et focus on how the commercial imperative
al., 2008), governance (Gottweis et al., 2009), is challenged by other cherished values
and commercialization (Plagnol et al., 2009; surrounding stem cell research and how
Martin et al., 2006; Webster, 2013), there this can be understood as a process of “bio-
is a paucity of studies of national attempts objectification” within certain political and
to foster the growth of business through moral economies.
commercialization of academic stem cell To this end, we draw on STS research
research (however, see Salter & Salter, concerned with the changing relations
2010). Yet policy arguments in support between universities, the state and industry
of academic stem cell research often use in general (Gibbons, 1994; Etzkowitz &
commercial benefit and job creation as a Leydesdorff, 1997; Slaughter & Rhoades,
key justification for permissive policies and 2004) and with the commercialization of
increased government funding despite the the life sciences in particular (Sismondo,
great uncertainties associated with such 2010: 189–195; Rose, 2007). This research
projections (Bubela et al., 2010; Caulfield, has explored how states have developed
2010). Indeed, Gottweis et al. (2009: 23) an assemblage of new techniques of
contend that: government and governance to foster
commercial techno-scientific innovations,
State interests in stem cell research including novel funding mechanisms and
is […] economically driven in a broad priorities, increased venture capital influx
sense, with population health and ben- into high-tech sectors and establishment
efits and clinical applications assigned of technology-transfer offices (TTOs) at
a secondary consideration. universities. In fact, as noted by Cerny (1997:
251) 15 years ago, rather than a predicted
They argue that states are not only decline in state interventions in name of
active in securing funding for stem cell de-regulation, we are facing “the actual
research, but are vigorously promoting expansion of […] state intervention and
its commercialization by orchestrating regulation in the name of competitiveness
policies aimed at bringing universities and and marketization”.
businesses in closer proximity, including For academic researchers working in
favourable intellectual property (IP) fields with prospects for innovation, the
regimes, and by guaranteeing the influx tendential emergence of a new pattern of
of venture capital into the field. Still, at state intervention has meant that these
present, there are very few effective stem- researchers have increasingly been cast
cell-based therapies commercially available as “state-subsidized entrepreneurs”. Their
(Daley, 2012). chief task is to develop commercially
54
Shai Mulinari, Tora Holmberg & Malin Ideland
viable products or services that can boost also to appreciate that this does not involve
economic growth and employment in the a one-sided power relation. Rather, other
private sector as well as offer solutions to actors will be varyingly able to limit or resist
pressing societal problems, including those commercialization and to steer economic
related to health (Slaughter & Rhoades, activities by imposing their own priorities
2004). and modes of calculation.
Lave et al. (2010) frame this changing In the following, we study the uneven
university-state-industry relation and the and varied impact of neoliberal policies
commercialization imperative against the on biomedicine. In order to do this, we
background of the broad global movement depart from a case study: the Swedish
towards neoliberalism that began in the Government’s funding of stem cell
1980s. A central tenet in this particular research within so-called strategic research
strand of STS work is that the rise of programmes. The national context is
neoliberalism has led to major changes thus unmistakably Swedish. However,
in scientific practice, management and although the regulatory heritage of national
contents, i.e. that “neoliberal political- institutions and policies is important to
economic relations beyond academia shape acknowledge, the overall political and
what happens within it” (Lave et al., 2010: scientific context is shared with a number of
664). European countries (Gottweis et al., 2009),
Concerns about the impact of neoliberal and likely with countries outside Europe as
policies on science in general and well (Salter, 2008). In sum, by investigating
biomedicine in particular have spawned a discourses of stem cell research in a grant
series of case studies, including work on the allocation process, we aim to contribute to
commodification of biomedical knowledge the burgeoning STS literature on neoliberal
(Sunder Rajan, 2006; Rose, 2007) and governance of science.
corporate influence over the generation The article begins by outlining the
(Mirowski & Van Horn, 2005), publishing theoretical frame, in which the concepts
(Sismondo, 2009) and dissemination of of politico-moral discourses and bio-
biomedical knowledge (Mulinari, 2013). objectification are delineated. The
Notwithstanding the importance of subsequent section describes the empirical
these and other studies highlighting the material and the method used. Looking
impact of neoliberal policies on science, it through the lenses of politico-moral
is apparent that the effects of such policies discourses and bio-objectification, we then
are not uniform but rather uneven, partial define the predominant discourses that are
and sometimes even contradictory at both competing for defining the value of stem
the global and local level (Tuunainen & cell research, before analysing how these
Knuuttila, 2009; Sanders & Miller, 2010; discourses operated during the allocation
Moore et al., 2011). We therefore need more of public grants to Swedish stem cell
explorations of how these policies fail to research. Finally, consequences for evolving
align technoscience with the perceived understandings of the uneven and varied
needs of business, including charting the impact of neoliberal policies on stem cell
forms of resistance that the commercial research are discussed.
imperative encounters. This resonates with
Jessop (2002), who urges scholars to be
attentive to the increasing dominance of
capital in social spheres like science, but
55
Science & Technology Studies 2/2015
56
Shai Mulinari, Tora Holmberg & Malin Ideland
57
Science & Technology Studies 2/2015
text), and written assessments of these performed in Swedish during 2012 by two
applications by a panel of reviewers, we of the authors, and quotes when appearing
followed the process of research grant in the article have been translated and
allocation. This set of data is rather unique; anonymized. By combining these document
thanks to the relatively transparent nature of and interview sources, we intend to shed
the Swedish Research Council we were able light on the politico-moral discourses
to scrutinize the full body of data – including presently employed to make sense of stem
research applications and assessments. cell research. In turn, as proposed above,
To complement and contextualize this this may provide a window into how the
document analysis, we analysed relevant values of stem cell research and of the cells
texts from Swedish authorities regarding themselves are negotiated between different
the commercialization of SCRM as well as political and moral economies. Moreover,
a 2011 public evaluation of the strategic by investigating politico-moral discourses,
research reform performed by Sweden’s we aim to shed light on the process of bio-
Innovation Agency, VINNOVA, in total close objectification insofar as stem cells are
to 1000 pages of text. attributed specific bio-identities in various
These texts are empirically and discourses. In other words, through the
analytically interesting since the “grant- discursive struggle of bio-identification,
genre” (including call, applications, reviews various identities get stuck to the stem cell
and evaluations) is supposed to exclude bio-object.
contradictions, leaving the messages clear In a first step of the discourse analysis, we
and coherent. Therefore, the discursive identified three competing discourses on
conflicts — when they appear — remain the value of stem cell research and stem cells
implicit. Such conflicts may be a reflection as objects: 1) The entrepreneurial discourse;
of different sub-genres within this “grant 2) The translational research discourse and;
genre”. Thus different sub-genres invite 3) The basic research discourse. These three
different discourses to “play” (Fairclough, discourses are unlikely to be the only ones
1995); for example, the Call is clearly attuned operating in the grant allocation process,
to a more explicitly political sub-genre while but they emerge as dominating in the data
the applications are more scientific. Still, as a whole. The next section describes how
we find it important to analyse how one the discourses were defined and analysed.
outcome of such discursive conflicts is that In a second analytical step, we considered
the commercial imperative is challenged by which bio-identities were made available,
other cherished values surrounding stem attached and valued with respect to stem
cell research. cells in these discourses. In a third and final
Moreover, to investigate challenges step, we investigated how the relationship
associated with stem cell research and between various bio-identities and values
commercialization, and to clarify and was reorganized along the research grant
supplement documentary findings, we allocation process, i.e. how temporality
included semi-structured interviews imposed on the bio-objectification
with three stem cell scientists associated trajectory.
with the projects that received strategic
funds, two supervisors of life science Three Politico-Moral Discourses
commercialization at the respective
university’s TTOs, and a former CEO of a In this section we present three politico-
major Swedish stem cell corporation, thus a moral discourses that emerged as
total of six interviews. The interviews were dominating in the grant allocation
58
Shai Mulinari, Tora Holmberg & Malin Ideland
process: the entrepreneurial discourse, the (public) health care system. Here,
the translational research discourse, and stem cells’ clinical values and therapeutic
the basic research discourse. The aim is to bio-identities are foregrounded: The cells
exemplify how these discourses are naming are attributed value insofar as they can
and framing the stem cells towards certain be employed in the clinic, for example as
bio-identities. stated in the following assessment of SCRM
In the entrepreneurial discourse, Application III:
stem cells emerge mainly as putative
commodities. While the entrepreneurial The CREATOR program is a rich basic-
discourse is strongest in the Research and translational environment with scien-
Innovation Bill, it was propagated well tists who are primarily interested in the
beyond this political document. Consider “bench to bedside: bedside to bench”
the following excerpt from the reviewers’ paradigm that is very effective in accel-
assessment of SCRM Application III, that erating research in clinical applica-
revolved around activation of endogenous tions. […] The investigators have tar-
stem cells to regenerate damaged geted clinical applications where there
tissue and nerves in vivo, and culturing is clear unmet needs. For instance, the
and differentiation of stem cells into prevention of infection in corneal graft-
transplantable complex tissues in vitro. ing or the improvement of fracture
repair or wound healing will be quite
The creation of improved therapies important. (Swedish Research Council,
will likely be accompanied by intel- 2009b: 208)
lectual property that may be of com-
mercial value. Th is may translate to the This translational research discourse mirrors
generation of start-up companies that in many respects the entrepreneurial
will increase the international impact discourse, but with another arguably more
of Swedish Regenerative Medicine altruistic goal in sight: improving patients’
industry. […] Therefore these research health. As such, this goal relies on successful
projects can be viewed as the pipeline, and thus highly cherished translational
providing new technologies that will research.
benefit patients and provide opportu- If stem cells were something that could
nities for the development of start-up be tamed and packaged into a commodity
companies or industrial collaborations. by entrepreneurial research, and turned
(Swedish Research Council, 2009b: 208) into a therapeutic breakthrough by
translational medicine, the stem cells in
Here, stem cells’ commercial values are the basic research discourse take the shape
essential to their bio-identity: Stem cells are of something that is yet to be perfectly
appreciated insofar as they can be traded understood – something that must be
on a market for profits, job opportunities, or further explored and explained. Consider
national competitiveness. This commercial the excerpt below from the assessment of
value is at the same time positioned in SCRM Application I. Here, the emphasis is
relation to the future benefit for patients, the on stem cells’ epistemic bio-identities, i.e.
lead motif of the next dominant discourse. the cells have intrinsic value as objects of
The second politico-moral discourse knowledge – which should be discovered,
revolves around how strategic research will investigated, followed and understood.
bring about therapeutic advances within
59
Science & Technology Studies 2/2015
Decoding cell lineage at the organism challenged in the 2011 follow-up evaluation
level. Th is is certainly the most original and the subsequent 2012 Research and
component part of the proposal and Innovation Bill from the centre-right
from the fundamental point of view the Government.
most interesting […] A group of PIs at
the Institute proposes to follow the line- Research and Innovation Bill: Ushering
age relationship in intact organisms by Commercialization
following the evolution of polyguanine In 2008, the Swedish centre-right
repeats. Th is procedure can be done at Government presented its Research and
the single cell level and will be useful Innovation Bill for 2009–2013 (Swedish
not only in tracing the progeny of cell, Government, 2008). The subtitle – A boost to
deducing tissue regeneration, and trac- research and innovation – indicated a main
ing progenitor cell compartments, but concern with converting state investments
also in anticipating tumour relapse. in public research into commercially viable
(Swedish Research Council, 2009b: 209) innovations for industry. As such, the Bill
should be viewed against the background
Arguably, this discourse could be of the current political consensus on
characterized as more traditionally state policies aimed at boosting national
academic: Scientific progress derives industrial competitiveness in high-tech
from curiosity, the search for mechanistic sectors. Accordingly, the Government
explanation, and a will to know the world opened the Bill by emphasizing that,
through experimentation, rather than
striving primarily towards commercial In today’s era of globalization, Swed-
or clinical ends – although commercial ish competitiveness must be largely
and clinical output may often be seen as based on our exports having a high level
welcomed by-product of science (Styhre & of knowledge content, which is why
Sundgren, 2011). research, development and innovation
are central components of our growth
Discursive Shifts in the Grant policies (Swedish Government, 2008:
Allocation Process 14).
While these discourses are made explicit The Bill also expressed concerns about
throughout the grant allocation process, an alleged history of repeated failures
they operate, as we show below, with in commercializing academic research.
different emphasis along the trajectory, i.e., To amend this, several reforms were
in the (1) 2008 Research and Innovation suggested. On a general level, the
Bill, (2) Call for applications, (3) SCRM Government proposed increased research
project applications, (4) Panel assessments, funding, especially for research with
and (5) 2011 Follow-up evaluation of the commercial prospects. In parallel, faculty
strategic research reform. In the section should be legally required to report any
below, we analyse the interplay between commercializable results to their home
the three politico-moral discourses and universities. Moreover, entrepreneurial
demonstrate a shift from a strong focus on activities should be fostered “through
commercialization towards therapeutic and increased access to public risk capital”
epistemic concerns and values in the grant (Swedish Government, 2008: 126) and
allocation process – an orientation later through financial support for TTOs.
60
Shai Mulinari, Tora Holmberg & Malin Ideland
61
Science & Technology Studies 2/2015
reorganized along the SCRM research grant – epistemic, clinical and commercial ends
allocation process. were given at least equal prominence. This
was stated in the SCRM Call as follows:
Call for Proposals: Making Room for the
Therapeutic Bio-Identity It is essential to prioritize and sup-
In addition to the more general port research, based on new knowl-
political programme revolving around edge, concerning whether stem cells
entrepreneurship, commercial innovation can prevent, ameliorate, and possibly
and economic growth, the Bill contained cure serious, widespread diseases. Th is
specific sections on each of the 24 strategic also applies to producing specific cells
research areas detailing the reasons for the to counteract deficiencies in organs
Government’s decision to allocate funds2. for transplantation as well as for other
These texts formed the basis for the Call for applications in health care. Mapping of
grant Applications. The Call clarified that all the different stages, from stem cells to
submitted project applications were to be different precursors of specialized cells,
judged based on two categories of criteria: opens new opportunities to develop
drugs that can regulate the formation of
1) that the research should achieve the specific cells. (Swedish Research Coun-
highest quality in an international com- cil, 2009a: 21)
parison, and 2) concurrently it should
be of strategic importance for society We also suggest that this shift from
and the business sector. The fundamen- predominantly commercial considerations
tal criterion, however, is scientific excel- is associated with the forging of a different
lence (existing capacity or the poten- set of associations between epistemic,
tial to achieve scientific excellence in commercial and therapeutic values. Instead
international comparison). (Swedish of the idea of sequential translations present
Research Council, 2009a: 3) in the Bill, we discern a conceptualization
of scientific progression characterized
It is at this junction that we discern the first by parallel translations from epistemic
sign of a downplaying of the primacy of to commercial and therapeutic values,
commercialization, which we propose is respectively (Fig. 2). In other words,
associated with increased articulation of the stem cells can be translated either into
translational and basic research politico- a commodity or therapeutics, or both.
moral discourses. Thus, in the Call for SCRM Importantly, in this pattern, entrepreneurial
projects – in which Regenerative Medicine research and commercial values are possible
was cast as “an area of application” for stem but not obligatory passage points between
cells (Swedish Research Council, 2009a: 21) basic science and patients/consumers.
62
Shai Mulinari, Tora Holmberg & Malin Ideland
63
Science & Technology Studies 2/2015
There are few institutions with such a mainly as means to secure additional
combination of experts in regenerative funding for basic and clinical research.
research that combine a very strong Turning to Application II, the
basic research interest with an imme- constellation of researchers summarized
diate application to the patient. A very their intentions as follows:
strong aspect of the proposal is the lin-
eage tracing programs which are inno- The overall objectives within the next
vative and will be extremely useful to 10 years are to demonstrate at least in
understand the physiological role of dif- one disease, i.e. diabetes, that stem
ferent cell types in tissue repair and also cell-based cell replacement therapy is
in the follow up of tumours. (Swedish effective and safe, to provide therapeu-
Research Council, 2009b: 210) tic candidates for stroke and haemato-
logical diseases, and to build a strong
Here, excellence in the investigators’ track base of knowledge about stem cells and
record was valued, along with epistemic disease mechanisms to pave the way for
and therapeutic values combined with an future efforts to devise new clinically
innovative methodology. One of the central effective treatments.
figures in this research milieu confirms
these priorities in an interview, stating that: Thus, compared with Application I,
therapeutic values were stressed more than
Th is is basic research in well, we don’t epistemic ones (the “strong knowledge
make any patient, we don’t test new base” aiming at paving the way for “new
drugs on patients or anything like clinically effective treatments”). Moreover,
that. Instead we try to understand how unlike Application I, commercialization was
things work. Even though we’re very mentioned in the abstract alongside clinical
interested in contributing to some kind translation:
of therapeutic development as well […]
Well, I think that… a combination of The objectives will be of strategic
basic understanding of how the body importance for both the Swedish soci-
normally functions and how to modu- ety and industry. Swedish scientists will
late it in order to develop regenerative take a leading role in the development
therapies, is what is fun, or, well, the of novel stem cell-based therapies for
possibility to perhaps contribute to serious diseases, and, hence, provide
the development of regenerative treat- solutions to important health problems
ments. (Stem Cell Scientist 1) in society. Generated new knowledge
will be translated into commercial
What becomes positively valued (“what products.
is fun”) is to understand normal and
abnormal physiology (“how things work”), In the Call, as noted above, the commercial
with the prospect of helping patients (“the output – or “bio-value” (Waldby, 2002) – of
development of regenerative treatments”). the epistemic labour was stressed. However,
In the interview, the pros and cons of as one of the scientists in the milieu told us,
entrepreneurship were also discussed. commercialization was not uncontroversial;
The scientist was very positive about the it was increasingly demanded from “above”
possibilities of commercialization, but and involved certain risks:
64
Shai Mulinari, Tora Holmberg & Malin Ideland
Figure 3. Representation of
view expressed in SCRM project
proposals and assessments. Values
and translations between values
are indicated.
65
Science & Technology Studies 2/2015
66
Shai Mulinari, Tora Holmberg & Malin Ideland
67
Science & Technology Studies 2/2015
68
Shai Mulinari, Tora Holmberg & Malin Ideland
political and moral economies of science Sörlin, 2007). Thus, these foundations
(Daston, 1995). Thus, by adding the – like the strategic research – would
concept of “politico-moral discourses” to “create new environments that would
the framework of bio-objectification, we be conductive to both basic science
were able to point out how the relationship and economic growth” (Benner &
between various bio-identities and values Sörlin, 2007: 35). For example, one of
were reorganized along the research grant these foundations, the SSF, funded
allocation process. In this way, our work a set of large “centres of excellence”,
may contribute to the understanding of the the objective of which was to foster
varied and uneven impact of neoliberalism “strategic relevance for the present and
on science: the total marketization of future industry” and “an integration of
academic research might not be possible, basic and applied research” (cited in
partly because, as argued here, there are Benner & Sörlin, 2007: 40).
diverse political and moral economies of
science at work, conflicting discourses in 2 The Government’s selection of SCRM
operation and bio-objects that, at least as a strategic area was preceded by
thus far, eschew commoditization. Clearly, commissioned analyses of business
more knowledge is needed regarding how opportunities in the area. Thus the
the various political and moral economies text “Swedish possibilities within
of science interact, and if and how political tissue engineering and regenerative
and moral economies are changing due to medicine” produced for the Swedish
the pressure to commercialize scientific Innovation Agency VINNOA argued
results. Conversely, more knowledge is that, for Sweden to excel in the area, a
needed regarding if and how the various coordinated and strategic effort from
barriers – scientific, economic, social, the state was needed “to complement
and legal – facing stem cell research the present funding of projects, centres
commercialization are strengthening a and cluster development the field is
political and moral economy that cherishes receiving through the Swedish R&D
epistemic and therapeutic values over and funding system and lead to a more
above commercial ones. pronounced effect on research and
innovation in this field” (Rickne &
Notes Sandström, 2009: 16).
69
Science & Technology Studies 2/2015
70
Shai Mulinari, Tora Holmberg & Malin Ideland
Mirowski P & Sent EM (2002) Science Salter B & Salter C (2010) Governing
Bought and Sold: Essays in the Economics Innovation in the Biomedicine
of Science. Chicago, IL: University of Knowledge Economy: Stem Cell Science
Chicago Press. in the USA. Science and Public Policy
Mirowski P & van Horn R (2005) The 37(2): 87–100.
Contract Research Organization and Sanders CB & Miller FA (2010) Reframing
the Commercialization of Scientific Norms: Boundary Maintenance and
Research. Social Studies of Science 35(4): Partial Accommodations in the Work of
503–548. Academic Technology Transfer. Science
Moore K, Kleinman DL, Hess D & Frickel and Public Policy 37(9): 689–701.
S (2011) Science and Neoliberal Sismondo S (2009) Ghosts in the Machine:
Globalization: a Political Sociological Publication Planning in the Medical
Approach. Theory and Society 40(5): 505– Sciences. Social Studies of Science 39(2):
532. 171–198.
Mulinari S (2013). Regulating Drug Sismondo S (2010) An Introduction
Information in Europe: a Pyrrhic Victory to Science and Technology Studies.
for Pharmaceutical Industry Critics? Chichester, West Sussex: Wiley-Blackwell.
Sociology of Health & Illness 35(5): 761– Slaughter S & Rhoades G (1993) Changes
777. in Intellectual Property Statutes and
Pestre D (2005) The Technosciences Policies at a Public University: Revising
Between Markets, Social Worries and the the Terms of Professional Labor. Higher
Political: How to Imagine a Better Future? Education 26(3), 287–312.
In: Nowotny H (ed) The Public Nature of Slaughter S & Rhoades G (2004) Academic
Science Under Assault: Politics, Markets, Capitalism and the New Economy:
Science and the Law. Berlin: Springer, Markets, State, and Higher Education.
29–52. Baltimore: Johns Hopkins University
Plagnol AC, Rowley E, Martin P & Livesy F Press.
(2009) Industry Perceptions of Barriers Styhre A & Sundgren M (2011) Venturing
to Commercialization of Regenerative into the Bioeconomy: Professions,
Medicine Products in the UK. Innovation, Identity. Basingstoke,
Regenerative Medicine 4(4): 549–559. Hampshire: Palgrave Macmillan.
Rickne A & Sandström A (2009) Swedish Sunder Rajan K (2006) Biocapital: The
Possibilities Within Tissue Engineering Constitution of Postgenomic Life.
and Regenerative Medicine. Stockholm, Durham: Duke University Press.
Sweden: VINNOVA. Swedish Government (2008) Research and
Rose N (2007) The Politics of Life Itself: Innovation Bill 2009–2012. A Boost to
Biomedicine, Power, and Subjectivity Research and Innovation. Government
in the Twenty-First Century. Princeton: Bill 2008/09:50. Stockholm, Sweden.
Princeton University Press. Swedish Government (2012) Research and
Salter B (2008) Governing Stem Cell Science Innovation Bill 2013–2016. Government
in China and India: emerging economies Bill 2012/13:30. Stockholm, Sweden.
and the global politics of innovation. New Swedish Research Council (2009a) Call for
Genetics and Society 27(2): 145–159. Grant Applications: Strategic Research
Salter B & Salter C (2007) Bioethics and Areas. Stockholm, Sweden: Swedish
the Global Noral Economy: the Cultural Research Council.
Politics of Human Embryonic Stem Cell
Science. Science, Technology & Human
Values 32(5): 554–581.
71
Science & Technology Studies 2/2015
72
Science & Technology Studies 2/2015
Civilizing Drones:
Military Discourses Going Civil?
Sven Braun, Michael Friedewald and Govert Valkenburg
This article presents an account of how a technology being transferred from one area
of deployment to another entails that specific discourses travel along. In particular,
we show that the development of Unmanned Aircraft Systems (UAS, often referred to
as drones) is importantly determined by its military progeny, as the civilian context
inherits specific discourses from the military context. Contemporary ideas of privacy
and security in drone use can be largely traced back to this original context. We show
that concepts and their relative importance primarily depend on the discourses
that travel together with the technologies on which the concepts aim to act. There
is no technological reason for privacy and security to be implemented the way they
are, nor can their implementation be explained merely from socio-political or moral
discourses. Instead, material and discursive mechanisms successfully enact and
reproduce the dominant military viewpoint.
73
Science & Technology Studies 2015, Vol. 28(2) 73-87
Science & Technology Studies 2/2015
purposes that do not focus on the aspect of are modified and translated in their new
flying have only appeared fairly recently. habitus, and how they lead to particular
The proliferation of UAS applications ‘enactments’ of the concepts of privacy and
naturally raises issues of privacy: aerial security (Law, 2004).
observation becomes less costly and less
risky, and thereby more affordable. We show The Case: Unmanned
that privacy is not some abstract value that is Aircraft Systems (UAS)
either respected or violated by a technology
such as UAS. Instead, we consider it The empirical base of our argument is a
as multiple, situated and contingent case study on Unmanned Aircraft Systems
(Gutwirth, 2002; Finn et al., 2013). What used for surveillance purposes. UAS are also
privacy consists of in this particular case is referred to as Unmanned Aerial Vehicles
itself defined in the process of developing (UAVs), Remotely Piloted Aircraft Systems
an operational UAS. In this development, (RPAS) or simply as drones. UAS have been
or so we will argue, military narratives have defined more systematically as ‘powered,
seemed to be able to persist, even though aerial vehicles that do not carry a human
the practice has moved beyond the military operator’ and that ‘can fly autonomously or
context. be piloted remotely, can be expendable or
We aim to shed new light on the tensions recoverable, and can carry a lethal or non
around privacy when pursuing regulation of lethal payload’ (Bone & Bolkcom, 2003: 1).
UAS by looking particularly at the concept Systems typically comprise a ground station
of security. Much like privacy, the concept and a data communication link (see figure
of security in the drone context lacks an ex 1). Depending on the payload, UAS can be
ante definition – for example, as to what is to deployed in various military and civilian
be secured, and how. Rather, such notions scenarios. In this case study, military
emerge in the many negotiations – which scenarios will be acknowledged, but the
include social, economic, political, technical focus will be on non-military governmental
and cultural aspects – that take place in and commercial applications. We intend to
the process of development. Since UAS explain how the meanings of privacy and
have a substantial history of applications security emerge in this context, as opposed
in (national) security, particular notions of to considering how UAS are, or are not,
security and particular configurations of ethically problematic.1
UAS are fundamentally co-produced. In this paper, we will engage with one
At the same time, transferring UAS – or particular class of UAS, namely the fixed-
elements thereof – from military to civilian wing type suitable for both civilian and
contexts, will generally modify or translate military purposes. Historically, most
both the technological design and the military UAS have been of the fixed-wing or
specific notions of security. Thus, we find ‘aeroplane-like’ type, quite different from
ourselves confronted with a double set of the multi-rotor type that flies much more
questions. On the one hand, it merits further like a helicopter. The history of the latter
scrutiny whether, and how, narratives with is much more tied to civilian applications.
a military origin persist into practices of Hence, if there is one site to spot military
non-military UAS application – in other discourses riding piggyback on technology
words, which ‘hinterlands’ (Law, 2009) transfer, it should be with the fixed-wing
they carry with them. On the other hand, type.
we should investigate how these narratives
74
Sven Braun, Michael Friedewald and Govert Valkenburg
Beyond line of
sight link
Unmanned
aircraft
Ground
connectivity UAS Ground
Station
Figure 1. Communication links between ground station, airport, satellite and unmanned
aerial vehicle
75
Science & Technology Studies 2/2015
76
Sven Braun, Michael Friedewald and Govert Valkenburg
In most civilian applications, payload shape that life world. This implies that
will typically consist of an attached video, translating a technology from one practice
infrared or thermal camera to get a bird’s eye to another may offer particular concepts
view. Surveillance missions often require and the discourses organized around them
additional signal intelligence hardware. the opportunity to ride piggyback on the
Armed UAS for law-enforcement purposes technology. While the intrinsic political
are envisioned (Homeland Security News qualities attributed to technologies – as in
Wire, 2011; Brumfield, 2014), but to the best Winner’s famous discussion of the allegedly
of our knowledge not in use yet. Sometimes racist bridges on Long Island (Winner, 1988)
the data captured by the payload is – have long been questioned, postulating
processed on-board, e.g. to calculate the a connection between discourses and
flight path. However, it is more common for artifacts does allow us to see how incumbent
the payload to transfer data to the ground discourses come to appear as poorly
station. There, it can be processed directly applicable to the practice they relate to.
– for example, using pattern-recognition While there are no such things as, the
algorithms, or by human operators – or it military realm and the civilian realm, we
can be stored for future analysis. do observe certain elements in debates
In terms of operational advantages, concerning the civilian use of drones that
unmanned aircraft are ideal for use due are surprising in light of existing moral
to the possibility of deploying small- and political discourses. These would,
scale systems on demand and due to the at the same time, be less surprising in a
high range and altitude capabilities and, military context. Notably the low relative
most important, the endurance of larger importance attributed to privacy by
systems. In addition, UAS are argued particular players in the development of
to be more economically efficient than drones, to be discussed shortly, seems
manned aircraft. However, this applies unacceptable once programmes such as
mainly to small-scale systems (Kornmeier, Privacy by Design (Cavoukian, 2009) have
2012: 8).4 These characteristics can be seen the light of day. Additionally, the fact
taken advantage of in different mission that privacy has become a leading principle
scenarios, including border protection, law in the development of other surveillance
enforcement and surveillance, airborne technologies such as automated license
sea patrol, search and rescue operations plate recognition and the body scanners (van
or scientific data collection (e.g. in Lieshout et al., 2015) that are nowadays
hurricanes or forest fires). In general – at omnipresent at international airports,
least in comparison to manned aircraft – clearly dismisses as overly simplistic the
UAS are typically deployed in dull, dirty or explanation that technologists in general
dangerous missions.5 would be unreceptive to moral arguments.
Also, it is highly unlikely that there is
Civilian Technologies, something exceptional to UAS in some
Military Narratives technological sense that hampers privacy-
friendly implementations. That would be
Within science and technology studies, it is a rather substantive, even deterministic,
commonly understood that concepts by understanding of technology (cf.
which people understand and take control Feenberg, 1995) and the argument would
of their life worlds cannot be separated be particularly unconvincing in regards
from the technologies through which they of the other aforementioned privacy-
77
Science & Technology Studies 2/2015
78
Sven Braun, Michael Friedewald and Govert Valkenburg
79
Science & Technology Studies 2/2015
context and in the civilian contexts of UAV the duty of the competent supervisory
deployment. This is especially noteworthy, authority: they must supervise the privacy
as privacy is among the primary concerns compliant application of UAS. The
when technologies with a potential interviewees mentioned the aeronautical
information impact are considered for authorities and the authorities that grant
application in non-military contexts. The flight clearances as a potential source
discourses enacting this prioritization of compliance monitoring. A certain
resemble the story lines identified in displacement is visible: if the problem
an abstract sense above by means of of privacy is predominantly enacted as
Langheinrich’s (2003) conceptual inventory. external to design practice, it is indeed likely
Also, we see that it is not only a discourse to re-emerge somewhere else.
with low priority for privacy, but also a Interestingly, interviewees did not
further enactment and institutionalization mention data protection authorities in this
of the externalization of privacy issues: regard, which is again an interesting parallel
those are literally delegated to sites outside with military practices, as data-protection
the design practice. authorities concern situations of peace
In the first place, many of the rather than war.
narratives held up by people involved Interviewed user U2 assumed that if there
in drones reproduce an externalization were any privacy impacts in the technology,
of considerations of privacy. Those they would have been addressed in the
considerations are not reckoned part of the procurement procedure. The freedom of
design space in which drone development information requests we sent to police forces
takes place. This is atypical, as privacy asking for privacy impact assessments made
considerations are amongst the primary in the context of UAS procurements, showed
hurdles that may be expected to appear if a that no such impact assessments had been
technology is to be deployed with potential made prior to any procurement. Therefore
public impact. Notably, within the same we assume that privacy considerations
population of experts, awareness is reflected were not part of procurement procedures.
of the existence of approaches such as All explanations provided boiled down to
Privacy By Design (Cavoukian, 2009), which the idea that ‘there is no legal requirement
explicitly pursue the implementation of for us to do so’.7 Alternatively, user U3 lists
privacy through (amongst other means) a number of privacy measures such as non-
technological design. Also, in the light retention policies and compliance with data
of their own expertise and position, processing laws as protection mechanisms,
interviewees recognize that much more is which relate to operation rather than design
technically possible to implement privacy – technical measures and early-phase
than is currently done in the development design adaptations being notably absent.
of civil-purpose UAS. It is in the ambiguity Reasons for privacy not to be part
of whether or not privacy is external to of the design problem also exist in the
technology design that, at least apparently, form of perceived attributions of moral
military styles of inference seem to retain responsibility. Five out of six interviewed
dominance. developers and the researcher (D1–D5,
In addition, the externalisation of privacy R1) did not feel morally responsible for
issues appears clearly as an institutional protecting privacy. If at all, privacy would
distribution of responsibilities. Both users become important in later development
and engineers see the issue primarily as processes such as system integration and
80
Sven Braun, Michael Friedewald and Govert Valkenburg
deployment. It is reflected in the majority configured payloads. This means that non-
of interviews that ‘each system operator is military governmental customers in some
responsible for a lawful operation’ (D2), respects have similar technical possibilities
including privacy laws, as the exact privacy as do military customers. As the market
relevance of the technology hinges upon its supply of civilian fixed-wing UAS is not
particular application. very high compared to the military market,
All interviewed developers and the purchase options outside military-oriented
researcher (D1–D5, R1) stated that privacy suppliers are limited. This means that for
is too abstract of a problem to solve potential civilian users, a tendency exists
technically. D2 even stated ‘that [it] is not towards the purchasing of technologies that
possible’ to solve technically. They argued have been developed in a context in which
that during the development process, it is privacy was not a primary consideration.
not foreseeable how privacy will be situated Also, D4 argues that military parties are
in the contexts in which the system is to be hegemonic in the development of drones.
used. One interviewee stated that privacy As a consequence, privacy is not likely to
is not a problem for prototypes, since these be a feature in the ‘drone catalogue’. Even if
preliminary models will never be used non-military governmental customers have
outside the development context. Thus, other requirements, it is difficult for them to
from their point of view, there is no need find alternatives (Rodrigues, 2015).
to protect privacy in a technical way, as it These institutional and discursive
is not part of the UAS’s problem and design forms of externalization consistently
description. Five out of six literally confirm render privacy a retro-fitting problem, to
that privacy is not part of their deliverables, be resolved once the functional design of
since customers do not ask explicitly for the UAS is more or less completed. This is
such features. Also, as manufacturers, where the paradox, that possibilities for
they are not obliged to implement privacy implementing privacy in a technological
protecting features. While we would not way are both confirmed and denied,
go as far as claiming that the developers becomes even more pressing. Indeed, with
maintain a purely instrumental view of Privacy by Design in mind, it should be
technology, it is clear that they do maintain expected that such retrofitting will at best
a view of technology that attributes much deliver sub-optimal solutions (Cavoukian,
of the meaning of the technology to the 2009).
context of operation. Remarkably, the interviews do not
In addition, there is yet another provide any evidence that the persons
institutional arrangement that helps see involved in the development of UAS think of
privacy as not being a design problem. The security as a value that is to be implemented
market for fixed-wing UAS is dominated by in merely technological terms. Much like the
manufacturers who supply to both military general trend in the story lines mobilized
and non-military customers. Interviewees when discussing privacy, security is also
D2 and D4 stated that they sell their systems not seen as something particularly linked
only to users who are certified to comply to technology, but rather as something that
with laws and do not abuse the technology. is the result of a practice in which some
One interviewee from this group (D4) stated technologies happen to be deployed. Both
that his company sells exactly the same the engineers and the users interviewed
fixed-wing systems to the military and law agreed that security is something that
enforcement agencies, be it with differently emerges as a result of how technologies are
81
Science & Technology Studies 2/2015
used, not as an unmediated consequence time. The literature has widely disproved
of those technologies. Developer D2, for the idea that privacy and security must be
example, mentions that UAS technology mutually exclusive values (Solove, 2008,
‘alone cannot contribute to public security’ 2011; van Lieshout et al., 2013; Valkenburg,
but rather adds to an already existing set 2015). Yet, in the discourse coalition of UAS
of tools of governmental users. This view producers and users it seems as if these
is consistent with the other engineering values cannot be served at the same time:
interviewees who claimed that they provide it takes the function of security as the main
a tool that is then deployed by someone driver for the development of drones, while
else. This view was epitomized in one putting privacy ‘on hold’ for a later phase of
interview, when developer D4, who is only development.
supplying to governmental customers, The idea that privacy is not a moral
explicitly rejected the view of UAS as being obligation for designers and producers to
a security technology. Rather, he described implement into their UASs, is of course
it as platform systems: ‘It depends on what closely related to what they think privacy
you do with this platform, how you equip this is. All five engineers (D1–D5) and the
platform, which payload will be mounted, researcher (R1) interviewed reproduce a
and above all, how the [information legalistic understanding of privacy in the
generated by the] payload will be used in the context of UAS development, namely that
ground station’ with security being only one ‘what is meant here by privacy is enshrined
of many use cases. in law’ (D3). It became clear that this
This is again the intricate balance between view hinges heavily on the principle of
technological instrumentalism and radical informational self-determination and
social constructivism: neither technologies on existing data protection laws. When
nor socio-cultural arrangements determine talking about privacy, most interviewees
what privacy and security are, but rather did not distinguish between the protection
how the technology operates in its proper of personal data and the protection of
context. It is vital to recognize here that this privacy and the private sphere in a wider
shape of the discourse silences contestation sense. Thus, the ontology predominantly
of hegemonic perspectives. In particular, maintained in practice constitutes a
it silences privacy issues, and it leaves relatively narrow definition of privacy.
perspectives on security uncontested. In This results in a low likelihood for privacy
this very particular arrangement, a strong to become an integral part of the design
parallel is reflected with the military process.
deployment of drones, and their appearance This is again a salient similarity between
as security devices. While the latter may the military discourse and the de facto
not be the cause of the former, it is worth discourse on civilian UAS. In war and
pointing out that the de facto structure of combat situations, military operations are a
the discourse on civilian UAS is favourable matter of life and death. The life of a soldier is
towards patterns already existing around valued highly, even when national security
military UAS. is at stake. This means that even if national
Thus far, we have mainly considered how security ultimately outweighs the soldier’s
privacy is thought to be something existing security, the two are at least commensurate
outside the technological design space. in the sense that it is considered that both
Another question is whether or not privacy should be considered and weighed against
and security can be realized at the same each other. To deliver these two forms of
82
Sven Braun, Michael Friedewald and Govert Valkenburg
security, the highest possible quality of Oddly enough, only interviewee U1 gave
data is needed, without any limitations, or a thought to technical mechanisms to
so it is argued in the military discourses ensure compliance with legal requirements
that we observed in multiple interviews. regarding data protection and privacy.
In such situations, privacy is not much
of a concern, and certainly ranks below Conclusion
national security and soldier life. Thus, if
indeed a military perspective is assumed, It followed from the interviews that the
it is at least understandable that privacy problem of privacy was largely assigned to
becomes excluded from the discourse, and users, not to designers. However, as existing
by consequence fails to become part of discourses show, quite some potential exists
technical requirements for military UAS. for privacy to be pursued in the (arguably
Interviewee D5, who is working for the technical) design phase, rather than post-
governmental as well as for the commercial hoc in the form of regulation. There is no
market, reported that his company’s natural or self-evident reason why this
business model is not just to sell UAS, but potential could not be realized, and in
also to offer services based on unmanned fact interviewees often acknowledged
aviation, e.g. monitoring of critical this potential as realistic. We have tried
infrastructure such as gas pipelines. In this to explain the ‘unrealisation’ of this
case an interesting situation emerges: the potential by reference to the capability of
manufacturer is also the user who has to military discourses to travel with the very
comply with all regulations. Consequently, technologies in question.
this interviewee has a general interest in Part of the answer, as we argued above,
technological designs that implement and might be in the military history that
guarantee privacy and, at the same time, preceded the current state of affairs in
fulfil the desired mission. These thoughts unmanned flying. Privacy simply is not an
confirm that privacy could indeed become important concern in military operations.
part of the technical problem description Also, since, even today, the military is still
through the shifting and merging roles of an important client of UAS vendors, it is to
manufacturers and users. Hitherto, though, some degree understandable that incentives
while this opens the door for Privacy are missing to pay more attention to privacy
by Design and similar approaches, the in the development of UAS. However,
emphasis is yet on operational and post- this explanation is far from complete: as
design solutions, not on the implementation unmanned flying is currently developing
of privacy in the technological design at an rapidly, especially in the civilian sector, it
early phase. could be equally self-evident that there is
The interviewed users’ and potential economic potential in creating marketable
users’ understanding of privacy concurs products that offer innovative solutions to
with the engineers’ understanding of privacy concerns.
privacy as a post-design issue. An important It is for this reason that additional
difference was, though, that the users research might reveal further reasons
additionally reflected on the socio-political why this seemingly military discourse is
consequences of UAS deployment and so attractive outside the military sphere.
even had personal concerns and fears While it long has been suggested that it
regarding privacy. This aspect did not is not naturally given for technological
come up in interviews with engineers. design practices to realise other values than
83
Science & Technology Studies 2/2015
efficiency (Feenberg, 2002), it is also fair to redesigning how costs and benefits are
say that considerable attention has been defined and how they are distributed, and
paid to examples of technologies where it involves redefining the notion of privacy
other human values are yet inscribed, not itself so as to make it apt for informing
least the Privacy By Design framework technological design in this particular
mentioned earlier (Cavoukian, 2009). More practice. That is to say: the problem of
detailed study of the histories and contexts privacy will have to be translated such that
of involved people might reveal why privacy it fits the development process of UAS. In
has yet not become part of their practice. It this respect, it is important to realize that
might have been missing in their education, the technical potential to develop privacy-
it might be that tacit parts of the corporate friendly solutions is not something that
structures they work in are particularly sits on a shelf to be picked up, but requires
geared against such considerations, it might further adjustment and fine-tuning towards
be that spheres in which procurement takes the very design of UAS. In consequence,
place are unfavourable to such offers, or making privacy respecting UAS takes more
other. than simply discussing what privacy could
Yet, despite the fact that we at least have be in this particular context. It also requires
to be open to such alternative explanations discussing how the development process
that are neither confirmed nor disproved of UAS must itself be revised, and how
by our empirical analysis, we can conclude discourses and institutional structures must
first, that a particular distribution of be devised that resemble less the military
responsibility is apparently reproduced in context and discourses that externalize the
the practices of UAS development. This issue of privacy.
reproduction takes both material and If the argument of this paper cuts ice,
discursive shapes. The discursive part any normative program pursuing a more
has been explained above: as is clearly privacy-friendly design for UAS should
witnessed in the interviews, people keep start not at the level of normative ideas,
talking about UAS in the particular frame but at the meta-level of how discourses
that renders privacy a non-issue – or at are arranged. This should include an idea
least as a non-issue for technical design. of how this meta-level depends itself on
The material part is the fact that change the technologies it discusses and of how
is always costly in the short term: it is not technologies and discourses are closely
surprising that the cheapest option is simply knit together. Only then can the more
to recycle military designs (the so called conceptual avenue, of discussing how
‘lock-in effect’). It is also in the fact that once privacy can be internalized such that it
these UAS are there, they pre-structure how becomes commercially interesting, be
people tend to talk and think about them. explored and hence made part of the
Some options are more within reach than (technical) design specifications. This would
others, simply because a particular material include an exploration of ways the design of
configuration already exists. UAS can be better politicized, rather than
Second, part of the answer to the defining privacy outside the scope of design
question of why respect for privacy is not requirements, thus emptying the design
an internal part of the design process may practice of one particularly controversial
lie in the fact that ‘implementing privacy’ is issue. Bringing it in will likely generate the
never just that. It also involves redesigning friction that is needed to come to creative
notions of safety and security, it involves solutions and connect the radically different
84
Sven Braun, Michael Friedewald and Govert Valkenburg
discursive universes of the military and the European RPAS Steering Group (2013)
civilian realms (cf. Tsing, 2005). Roadmap for the integration of civil
Remotely-Piloted Aircraft Systems into
Acknowledgment the European Aviation System. Brussels:
European Commission.
This paper draws on research carried out Fahlstrom, PG & Gleason TJ (2012)
in the EC-funded FP7 project PRISMS: Introduction to UAV Systems. Chichester:
The Privacy and Security Mirrors: Towards Wiley.
a European framework for integrated Feenberg A (1995) Alternative Modernity.
decision making (FP7-SEC-2010-285399). Berkeley, Los Angeles and London:
The comments and suggestions of Dara University of California Press.
Hallinan, Marc van Lieshout and the Feenberg A (2002) Transforming technology:
reviewers on earlier versions of this A critical theory revisited. Oxford; New
manuscript are highly appreciated. York: Oxford University Press.
Finn, RL & Wright D (2012) Unmanned
References aircraft systems: Surveillance, ethics and
privacy in civil applications, Computer
Bone E & Bolkcom C (2003) Unmanned Law & Security Review 28(2): 184–194.
Aerial Vehicles: Background and Issues Finn RL, Wright D & Friedewald M (2013)
for Congress. Washington, D.C.: Library Seven types of privacy. In: Gutwirth S,
of Congress. Leenes R, De Hert P & Poullet Y (eds)
Brumfield E (2014) Armed Drones for Law European Data Protection: Coming of
Enforcement: Why it Might Be Time to Age. Dordrecht: Springer, 3–32.
Re-Examine the Current Use of Force Gregory D (2011) From a View to a Kill:
Standard, McGeorge Law Review 46: Drones and Late Modern War, Theory,
2014–2015. Culture & Society 28(7–8): 188–215.
Cavoukian A (2009) Privacy by Design ... Gutwirth S (2002) Privacy and the
Take the Challenge. Toronto: Information Information Age. Lanham, Boulder, New
and Privacy Commissioner of Ontario. York, Oxford: Rowman & Littlefield.
The Economist (2011) Flight of the drones: Hajer MA (2005) Coalitions, Practices, and
Why the future of air power belongs to Meaning in Environmental Politics: From
unmanned systems. 8 October. Available Acid Rain to BSE. In: Howarth D & Torfing
at : htt p : / / w w w . e c o n o m i s t. c o m / J (eds) Discourse Theory in European
node/21531433 (accessed 29.01.2015). Politics. Identity, Policy and Governance.
Eick V (2009) Das Dröhnen der Drohnen: Basingstoke: Palgrave Macmillan, 297–
Technisierung von Überwachung und 315.
Kontrolle, Bürgerrechte und Polizei/CILIP Harris CV (2010) Technology and
94: 28–40. Transparency as Realist Narrative,
European Commission (2012) Proposal for Science, Technology & Human Values
a Regulation of the European Parliament 36(1): 82–107.
and of the Council on the protection of Heise K (2013) Drohnen sollen
individuals with regard to the processing Menschenmassen überwachen. Die
of personal data and on the free Welt, 07 Januar, Available at: http://www.
movement of such data (General Data welt.de/wissenschaft/article112471009/
Protection Regulation). COM(2012) 11 Drohnen-sollen-Menschenmassen-
final. Brussels. ueberwachen.html (accessed
30.04.2014).
85
Science & Technology Studies 2/2015
Hing JT & Oh PY (2009) Development of Solove DJ (2008) ‘I’ve got nothing to hide’
an Unmanned Aerial Vehicle Piloting and Other Misunderstandings of Privacy,
System with Integrated Motion Cueing St. Diego Law Review 44: 745–772.
for Training and Pilot Evaluation. In: Solove DJ (2011) Nothing to Hide: The False
Valavanis KP, Oh P & Piegl LA (eds) Tradeoff between Privacy and Security.
Unmanned Aircraft Systems. Dordrecht: London, New Haven: Yale University
Springer, 3–19. Press.
Homeland Security News Wire (2011) Texas Syed BS (2013) 2,160 terrorists, 67 civilians
county police buys drone that can carry killed by drones. Dawn (Islamabad,
weapons. 31 October. Available at: http:// Pakistan), 31 October. Available at: http://
www.homelandsecuritynewswire.com/ www.dawn.com/news/1053069/2160-
texas-county-police-buys-drone-can- terrorists67-civilians-killed-by-drones
carry-weapons (accessed 29.01.2015). (accessed 30.04.2015).
Kornmeier C (2012) Der Einsatz Tsing AL (2005) Friction. An ethnography of
von Drohnen zur Bildaufnahme: global connection. Princeton and Oxford:
Eine luftverkehrsrechtliche und Princeton University Press.
datenschutzrechtliche Betrachtung. U.S. Government Accountability Office
Münster: Lit Verlag. (2013) Defence Acquisitions: Assessment of
Langheinrich M (2003) The DC-Privacy Selected Weapon Programs. Washington:
Troubadour – Assessing Privacy Government Printing Office.
Implications of DC-Projects. Paper Valkenburg G (2015) Privacy versus security:
presented at the Designing for Privacy problems and possibilities for the trade-
Workshop. Conference on the Tales of off model. In: Gutwirth S, Leenes R & De
Disappearing Computers. Santorini, Hert P (eds) Reforming Data Protection:
Greece. Available at: http://www.vs.inf. The Global Perspective. Dordrecht:
ethz.ch/publ/papers/dctales-privacy.pdf Springer, 253–269.
(accessed 29.01.2015). van Lieshout M, Friedewald M, Wright D
Latour B (1987) Science in Action: How to & Gutwirth S (2013) Reconciling privacy
Follow Scientists and Engineers Through and security, Innovation: The European
Society. Cambridge, Mass.: Harvard Journal of Social Science Research 26(1–
University Press. 2): 119–132.
Law J (2004) Enacting Naturecultures: a van Lieshout M, van Schoonhoven B,
Note from STS. Available at http://www. Roosendaal A, Valkenburg G, Huijboom
lancaster.ac.uk/fass/sociology/research/ N, van Veenstra AF, Braun S & Friedewald
publications/papers/law-enacting- M (2015), Security and privacy
naturecultures.pdf (accessed 29.01.2015). technologies: understanding trends and
Law J (2009) Seeing like a survey, Cultural developments, PRISMS Deliverable 2.3,
Sociology 3(2): 239–256. Available at: http://prismsproject.eu
McBride P (2009) Beyond Orwell: The (accessed 25.06.2015).
Application of Unmanned Aircarft Winner L (1988) Do artifacts have politics?,
Systems in Domestic Surveillance Daedalus 109(1): 121–136.
Operations, Journal of Air Law and Woody T (2014) Drones Are Becoming
Commerce 74(3): 627–662. Energy’s New Roustabouts. The New York
Rodrigues R (2015) The Surveillance Times, 21 April. Available at: http://www.
Industry in Europe. In: Wright D and nytimes.com/2014/04/22/business/
Kreissl R (eds) Surveillance in Europe. e n e r g y - e nv i ro n m e n t / d ro n e s - a re -
London, New York: Routledge, 101–49.
86
Sven Braun, Michael Friedewald and Govert Valkenburg
87
Science & Technology Studies 2/2015
What could another lab ethnography of This opens the door to additional and
physics research teach STS scholars? In related problems, Sormani argues, when
his new book, Philippe Sormani takes on a analysts assume from the outset that a fact
branch of experimental physics known to is “constructed” rather than beginning
practitioners as “STM” of “CSC” to showcase with the practical challenge and research
what he believes it can teach us. For the un- question “how do lab members recognize
initiated (like your reviewer), STM refers to facts?”. For decades, ethnomethodologists
Scanning Tunnel Microscopy and CSC refers and ethnomethodologically-informed
to Complex Superconducting Materials. sociologists have urged scholars to examine
One lesson Sormani offers has to do with members’ common sense knowledge of
a critique of an earlier generation of lab social structures. Building on these efforts
studies (i.e. Collins, 1985; Latour & Woolgar, to reinvigorate sociology, Sormani has
1979; Pickering, 1984; Pinch, 1986; Traweek encountered a paradox. Sormani argues that
1988). Sormani (2014: xiii) argues that his he contributes to STS discourse by analyzing
book “delivers [...] a critique of analogical members’ common sense knowledge
shortcuts in the ‘laboratory studies’ instead of importing the concepts popular
tradition”. The analogies here are comprised in STS. But in order to do this, he has
of analytical concepts central to STS, to use and analyze concepts that are
including but not limited to “construction” probably unfamiliar and/or unimportant
and “inscription”. Sormani treats the use to the anthropologists and sociologists who
of these concepts as a “shortcut” in order maintain an interest in lab studies. Thus,
to underscore his argument that earlier emphasizing member relevancies poses the
lab ethnographies have analyzed lab work risk of estranging the scholars whose work
with second order concepts rather than the it challenges and who are in a position to
first order concepts (Schutz, 1973) that lab describe and circulate its contributions to
members themselves use to organize lab STS discourse. As a sociologist informed by
life. In the case of STM of CSC, physicists some ethnomethodological ideas, I am very
use the first-order terms “measurement”, sympathetic to this trapped position stuck
“tip-sample approach”, and “local between a rock and a hard place. While
spectroscopy”. In a fascinating discussion, the focus on member relevancies can pose
Sormani also describes in great detail how this challenge, Sormani’s writing posed few
he learned these member relevancies. challenges for this reviewer. When he does
He does this by adopting Wieder’s (1974) develop second order concepts, his choices
policy of doing ethnography and treating seemed reasonable to me. For example, he
what members do with the ethnography describes his book as offering a “practice-
and ethnographer as opportunities to based video analysis”, a video analysis that
learn about the setting and its members.
88
Science & Technology Studies 2015, Vol. 28(2) 88-90
Book Review
89
Science & Technology Studies 2/2015
90
Science &
Technology Studies
Volume 28, Issue 2, 2015
Articles
Michael Morrison 3
STS and Enhancement Technologies:
A Programme for Future Research
Book Review
Philippe Sormani 88
Respecifying Lab Ethnography:
An Ethnomethodological Study of Experimental Physics
by Matthew J. Cousineau