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Science & Technology Studies


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Science & Technology Studies
Volume 28, Issue 2, 2015

Articles
Michael Morrison
STS and Enhancement Technologies:
A Programme for Future Research ...................................................................................... 3

Karen Dam Nielsen


Involving Patients with E-health:
The Dialogic Dynamics of Information Filtration Work .............................................29

Shai Mulinari, Tora Holmberg and Malin Ideland


Money, Money, Money?
Politico-Moral Discourses of Stem Cell Research in a Grant
Allocation Process .................................................................................................................. 53

Sven Braun, Michael Friedewald and Govert Valkenburg


Civilizing Drones:
Military Discourses Going Civil? ........................................................................................ 73

Book Review

Philippe Sormani
Respecifying Lab Ethnography:
An Ethnomethodological Study of Experimental Physics
by Matthew J. Cousineau....................................................................................................... 88

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www.sciencetechnologystudies.org
Science & Technology Studies 2/2015

STS and Enhancement Technologies:


A Programme for Future Research
Michael Morrison

The concept of human technological enhancement originated as a tool for the


moral classification of technologies, but has since spilled over from ethical debates
to become a site for prospective technology development as part of a ‘converging
technologies’ agenda. To date, enhancement and the technologies labelled as
‘enhancing’ have been underserved by STS research. While case studies do exist,
there has been a dearth of co-ordinated investigation. This paper proposes a
systemic programme for STS research on enhancement technologies based on
five key challenges posed by dominant conceptions of enhancement as a way of
understanding technological development. After setting out this agenda, a short
history of the enhancement debate is provided to illustrate the changing meanings of
‘enhancement’ across different contexts. Recognising the limitations of critique alone,
particular emphasis is given to the possibilities for productive engagement by STS
scholars with the domain of enhancement across its multiple manifestations.

Keywords: bioethics, biotechnology, expectations

Enhance, v. Pronunciation: /n’h:ns/ To raise or increase in price, value,


/-’hæns/ importance, attractiveness, etc. (Oxford
English Dictionary Online, 2013).
To exalt in dignity, rank, estimation, or
wealth. The term enhancement is usually used
To elevate spiritually or morally. in bioethics to characterise interven-
To lift up with pride; refl. to exalt one- tions designed to improve human form
self, assume superiority. or functioning beyond what is neces-
To praise, extol. sary to sustain or restore good health
(Juengst, 1998: 29).
To raise in degree, heighten, intensify
(qualities, states, powers, etc.). Introduction: What Is Enhancement?
To magnify subjectively, make to appear
greater; to heighten, exaggerate. In a broad sense, as reflected in the Oxford
English Dictionary definitions listed above,
To raise (prices, value); to increase the idea of enhancement can relate to
(charges, etc.). any improvement (or indeed projected

Science & Technology Studies 2015, Vol. 28(2) 3-28


Science & Technology Studies 2/2015

improvement) in the circumstances and It is likely that most readers will be


quality of human lives individually and familiar with at least one, and probably
collectively. The second quote, from several examples of ‘human enhancement
the philosopher and bioethicist Eric T. technologies’, as they are often attract
Juengst (1998: 29), captures a second, considerable public and media discussion.
narrower and more recent conception of Some, such as cosmetic surgery (appearance
‘human enhancement’. Enhancement in enhancement), have been in existence for
this sense refers specifically to the idea many years and have become common,
that biomedical technologies can be, if not entirely uncontested, phenomena.
and are being, used to advance human Similarly, pharmaceutical doping in
performance and boost the physical and sport, from the use of amphetamines in
mental capacities of individuals in ways that track and field events during the 1950s
go ‘beyond what is ‘normal’ or necessary to contemporary cyclists taking the
for life and well-being’ (Hogle, 2005: 695). anaemia treatment erythropoietin (EPO)
Emerging in the latter decades of the to increase their red blood cell count
twentieth century, this concept of human (athletic enhancement), is a recurring
enhancement can be read as a response to issue in professional sports (Wailoo,
concerns about the transformative power 2007). More recently, certain blockbuster
of biomedical technologies extending pharmaceuticals such as Prozac and Viagra,
into ever greater areas of human life in are said to have stretched the definition of
ways that trouble commonplace human illness to become ‘enhancements’, where,
values and norms. In this, there are at least for example, Prozac is claimed not only to
superficial similarities with the sociological treat clinical depression but also to alleviate
concept of medicalisation (Conrad, 2005). unhappiness (mood enhancement), making
Enhancement, however, has its origins recipients ‘better than well’ (Rothman,
in the discipline of bioethics and was 1994; Wright, 1994). In addition to these
initially developed as a tool for moral well-known examples, the full range of
evaluations of gene therapy. In the original technological options for enhancement
framing, enhancement uses of technology includes human genetic engineering,
are understood in direct opposition to nanotechnology, cognitive and neurological
therapeutic usage, where ‘therapy’ is taken enhancement, regenerative medicine and
to describe the commonplace use of medical human-machine interfaces (Hogle, 2005;
technologies to treat and manage disease. In Miller & Wilsdon, 2006; Hughes, 2007).
this formulation, therapy is always morally To date the topic of enhancement has
legitimate while enhancement applications been somewhat neglected by scholars in the
of technology, by transgressing the remit of fields of STS and the sociology of technology.
therapy, are prima facie ethically suspect There are of course exceptions (see for
(President’s Council on Bioethics, 2003). example Nordmann, 2004, 2009; Banse
Since that initial formulation, the concept of et al., 2007; Ferrari, 2008; Morrison, 2008;
enhancement has expanded to cover a wider Roco, 2008; Fuller, 2009, 2011; Coveney,
range of technologies and perspectives, 2010, 2011; Roco & Bainbridge, 2013; see
becoming a ‘standard rhetorical tool’ in also Hogle, 2005 for an anthropological
academic bioethics (Juengst, 1997: 125). perspective), but these have largely been
The nature of debate has also transformed isolated contributions and there has been
to include arguments strongly in favour little concerted attempt to systematically
of utilising enhancement technologies for address and investigate enhancement as a
human benefit.

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Michael Morrison

topic in its own right. Some attention has Why Do We Need an STS Approach
been given to enhancement through the lens to Human Enhancement?
of medicalisation theory (Conrad & Potter,
2004; Conrad, 2005). While this has yielded In order to answer this question, we first
some useful insights, it suffers the drawback need to consider what an ‘STS approach’
of ultimately regarding enhancement as yet or an ‘STS perspective’ entails. Woolgar et
another avenue for defining social problems al. (2009: 21) advise that ‘it is unhelpful to
in medical terms and proposing medical construe STS as a unitary set of approaches,
solutions – in other words the drivers may methods and topics’. Despite this, those
change but essentially it is regarded as a same authors also recognise the necessity
case of ‘medicalisation as usual’. As such, of having a tolerable ‘shorthand’ answer to
this approach fails to address in depth the this question and propose the following five
dynamics and the substantive content of ‘key STS sensibilities’:
‘enhancement’ as a specific concept and
as a means of technological classification. 1) a propensity to cause trou-
I believe that a comprehensive, integrated ble, provoke, be awkward
programme of research is needed to 2) a tendency to work through diffi-
address the range of different technologies cult conceptual issues in relation to
and different contexts of the enhancement specific empirical cases, deflating
debate and that such an approach is capable grandiose theoretical concepts and
of generating a deeper and ultimately more claims (and even some ordinary ones)
productive account of enhancement than 3) an emphasis on the local, specific and
one-off studies. contingent in relation to the genesis
The aim of this paper is twofold: Firstly, and use of science and technology
I will outline an agenda for a programme 4) caution about the unreflexive adop-
of STS research on human enhancement tion and deployment of stand-
and human enhancement technologies. ard social science lexicons (e.g.
I use the phrase ‘human enhancement power, culture, meaning, value)
and human enhancement technologies’ 5) reflexive attention to the (fre-
deliberately to indicate the requirement quently unexplicated) notions
for simultaneous investigation of both of our audiences, value and util-
technologies labelled as ‘enhancements’ ity (Woolgar et al., 2009: 21–22)
and the concept of enhancement itself as
part of this programme. The context and While I am broadly in agreement with this
content, of the term ‘human enhancement list, it should be remembered that it was
technology’ has changed even over the developed in the context of presenting or
relatively short course of its history, as explaining the ‘essence’ of STS for utilisation
has the range of technologies involved. in management and business studies. The
The second contribution of this paper will topic of biomedical enhancement is rather
therefore be to sketch a brief account of the closer to STS’ ‘home turf’ of the study of
changing dynamics of enhancement from science and technology. For the purposes of
its origins in North-American gene therapy this paper then, a useful ‘shorthand’ version
debates to the converging technologies of an STS perspective reads more like a
agenda discussed below. truncated summary of the foundational
themes of STS, than the characteristics and
sensibilities of STS listed by Woolgar et al.

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Science & Technology Studies 2/2015

(2009). It is a crude summary to be sure bodies and are bound up with ideas such
and fails to address the heterogeneity of as the nature of those bodies, the end users
perspectives and concepts within the field, of the technologies, entitlement, normality
but it should suffice for what is needed here. and desirability. An STS perspective
Broadly, I construe an STS perspective as can serve in the first part to make this
encompassing a rejection of technological entanglement explicit.
determinism, an insistence on the local In addition, much of the bioethical
and contingent nature of the production of debate on enhancement to date has been
facts and artefacts, and a constructionist dominated by arguments informed by
approach that takes materiality seriously. traditions of (Anglo-American) analytic
Such an approach means rejecting both philosophy such as utilitarian and
technological and social determinism consequentialist ethics. These approaches
as explanations for the development, to applied ethics tend to incorporate a
acceptance or rejection and modes of number of characteristics that are highly
use of technologies (Timmermans & problematic from the aforementioned STS
Berg, 2003). Material entities – in the perspective. Enhancement readily presents
case of enhancement the most relevant a set of ‘grandiose theoretical concepts and
materialities are those of bodies and claims’ (Woolgar et al., 2009: 21–22) that are
technologies – are neither reducible to what ripe for critical investigation through case
is said about them, nor wholly separable studies of the technologies and practices
from the discourses through which they involved. My first argument in support of
are mobilised. Rather the ‘natural’ and an STS engagement with enhancement
‘cultural’ are mutually constitutive. To technologies will therefore highlight in
relate this perspective more directly more detail these problematic aspects of
to issues of human biotechnology and the concept of enhancement – specifically
biomedicine I will borrow a concept from various forms of determinism and dualism.
the anthropology of pharmaceuticals. As with all areas of contemporary social
Nichter & Vuckovitch (1994) proposed that science, STS scholars are increasingly
medicines can be regarded as ‘vehicles of directed to pay attention to the issues of
ideology’: that is, they are not just material value, utility and indeed, audience for
entities but embody ideas about the kind of their work, as raised in the final point in
bodies that they are interacting with, about the list produced by Woolgar et al. (2009).
the type of individual taking the medicine, With this in mind, my second argument for
about the condition being targeted, about the value of a programme of STS work on
individual and social responsibility and enhancement technologies focuses on the
entitlement, and about what is normal and emergence of technological enhancement
desirable. While not all cases labelled as as a domain for prospective investment
‘enhancement’ involve pharmaceuticals, all of capital and strategic technology
cases of enhancement do involve some form development. This domain suggests a
of technological manipulation of human particular audience for STS research in the
bodies, thus giving reasonable grounds to form of science policy makers, futurologists,
expand this anthropological perspective and technology developers and has the
to cover ‘enhancements’. Enhancement potential utility of informing decisions
technologies, whether ‘bio’, ‘nano’, ‘neuro’ or about investment in human biological
information/communication technologies, enhancement as a domain of strategic
are intended to act on (and in) human techno-science. I will return to this point

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Michael Morrison

in subsequent sections to flesh out the certain applications (diagnostic categories)


argument that this aspect of enhancement came to be legitimated (or find a viable
offers a site for constructive work in STS that technological niche) while others remained
goes beyond critique and ‘causing trouble’. contested (failed to attain closure) as a
result of shifting social, material, economic
Problems of Determinism and Dualism and regulatory relations during the course
Much of the ethical literature takes of the drug’s career.
the appropriate starting point for Additionally, certain forms of applied
(moral) discussion and categorisation ethical argument common in the
of technologies as the moment when a enhancement debate unproblematically
new technology becomes available for incorporate the strong nature/culture
application. New technologies though, do dualism that pervades their analytic
not simply arise fully-formed to present heritage (Twine, 2005; Mills 2010; see
ethical dilemmas about their use. Instead, also Latour, 1993). Dualistic accounts
they are shaped by both material factors regard material elements, including both
and the interests and perspectives of technologies and bodies as belonging
social actors involved in the processes of solely to the ‘natural’ and being entirely
technological creation, regulation and use distinct from ‘culture’. This dichotomy
(Bijker et al., 1987; MacKenzie & Wajcman, places knowledge production in the
1999). By excluding from consideration the natural sciences as unproblematic, arising
history, context and politics of technology positivistically as an unmediated account
development, many bioethical approaches of physical reality, while the cultural and
implicitly effect a kind of technological historical situatedness of meanings and
determinism that produces a limited debate values given to bodies and technologies
about the ‘good’ and ‘bad’ uses of ‘neutral’ is occluded or framed as external to
technologies that come into being more technology itself. Such explanations posit
or less directly as products of scientific enhancement technologies as a problem
rationality alone. A case in point is the use of (or an opportunity) for society but one
human growth hormone (hGH) to increase driven by a medicine and technology that
the height of short children. Bioethical are seen as separate and distinct from the
analyses of the appropriateness of using social realm. An extreme example of this
hGH such as Tauer (1995) and Daniels can be found in the work of Daniels (2000),
(1992) frame the issue as a dichotomy which is discussed further in a subsequent
between using hGH to treat growth hormone section of this paper. For the most part, a
deficient children (acceptable therapy) and dualistic approach is ‘neither a conspiracy
giving hGH to ‘short normal’ children as a theory nor simplistically a pernicious or
means of increasing their final adult height conscious trend’ (Twine, 2005: 289). Rather
(illegitimate enhancement). Alternatively, it is more akin to MacKenzie’s (1990)
an STS-influenced historical approach to concept of the ‘uncertainty trough’ where
the case of hGH, (Morrison, 2008) began by the more removed actors are from the site of
enquiring how childhood stature came to technology production the more certainty
be understood as a treatable condition in they tend to attribute to the capabilities of
the first instance. Without starting from the new technological products and projects.
premise that some uses were intrinsically Consider the following accounts by Kass
appropriate or inappropriate, it was possible (2003) and Sandel (2004). Both argue against
to derive a socio-technical account of how the moral permissibility of enhancement

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Science & Technology Studies 2/2015

per se and both mobilise a distinction raised by the availability of enhancement


between therapeutic applications of technologies and their proposed solutions
biotechnology and ‘non-medical ends’. belong instead to the separate domain of
For Sandel (2004: 6), medical/therapeutic the social.
use of technology is such that it ‘does not This widespread unwillingness or
desecrate nature but honours it’, while non- inability to recognise the cultural, value-
therapeutic or enhancing applications are laden aspects of knowledge-production in
clearly identified as being driven by cultural the natural sciences also means that the
trends and demands for material and social promissory, speculative visions of control
success. ‘Socially motivated’ applications promulgated by new domains of techno-
of biotechnology are regarded as ‘serving scientific practice (e.g. neuroscience,
ends that range from the frivolous and nanotechnology) tend to be uncritically
disquieting to the offensive and pernicious’ received by many bioethicists (Hedgecoe,
(Kass, 2003: 9). 2004; Melo-Martin, 2005). This in turn
In a pro-enhancement account from often leads to a tacit acceptance of the
the same time period, Bostrom (2003: reductionism involved when socially
498) argues that genetic enhancement meaningful concepts such as personality,
can deliver socially desirable ends ranging intelligence or altruism are reconfigured
from freedom from genetic disease to faster as mere outputs of variations in the
learning, improved immune capabilities, functioning of biological components,
and ‘[h]ealthier, wittier, happier people’. as, for example, in discussions of genetic
Responding to (consequentialist) anti- engineering to produce individuals with
enhancement arguments, Bostrom (2003) more desirable personality traits or who are
goes on to discuss potential negative better moral actors (Melo-Martin, 2005; see
outcomes of genetic enhancement, such also Dickenson, 2013 chapter 5 for a review
as the possibility that parents of genetically of debates on moral enhancement).
modified babies would come to regard their
offspring more as consumer products and The Converging Technologies Agenda
less as individuals valued in their own right, A second reason why human enhancement
or that availability of enhancements would technologies warrant greater critical
exacerbate social inequalities. Tellingly, investigation from STS and related fields
his proposed solutions also involve social is that over the past decade the concept
(political and economic) interventions such of human technological enhancement
as subsidising enhancements for those has spread – spilled over or escaped –
with lower socio-economic status or more from the bounds of academic bioethics to
education to avoid public belief in genetic become the subject of social movements
determinism. such as transhumanism (Agar, 2004;
These examples illustrate how, in both Bostrom, 2003), and future-orientated
pro and anti-enhancement arguments, discourses of innovation policy and
questions of scientific uncertainty, of speculative investment. The latter aspect
how enhancement technologies might be is most relevant to my proposed agenda
configured in practice, and of the limitations for STS, as it brings enhancement into
of representing traits like intelligence the realm of national and international
as biological processes are occluded. regimes of economic operation, strategic
Thus content of the technologies is left management and the generation of
unexamined, while the potential problems technoscientific expectations. The first,

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Michael Morrison

and arguably most significant, articulation The relatively high-level policy


of a strategic vision for enhancement consideration of enhancement technologies
technologies was conveyed in the report as a strategic domain of technoscientific
‘Converging technologies for improving investment and research has at least the
human performance: Nanotechnology, potential to transform enhancement from
Biotechnology, Information technology being the topic of a primarily academic
and Cognitive science’ edited by Roco debate into a potential stimulus for
and Bainbridge (2003) for the US National economic and practical action. What is said
Science Foundation (NSF) (Fuller, 2009). about the future matters because:
The report argues for the combination, or
convergence, of the four domains of science The rhetoric that surrounds [new tech-
listed in the report’s title in order to yield: nologies] produces imagined futures,
while concrete technological practices
[T]he potential to enhance both human have the power to produce very real
performance and the nation’s produc- futures materially. Moreover, the rhe-
tivity. Examples of payoffs will include torical construction of future worlds
improving work efficiency and learning, directly (and indirectly) influences
enhancing individual sensory and cog- which technologies are brought into
nitive capabilities, fundamentally new existence by, for example, providing jus-
manufacturing processes and improved tifications for funding, rallying public
products [and], revolutionary changes support, instigating policy directives,
in healthcare (Roco & Bainbridge, 2003: etc. (Selin, 2008: 1879)
1).
And yet, as I will attempt to argue in the
In the wake of the NSF report, there have course of this paper, the concept of human
been a number of European responses in the enhancement technology still contains
form of reports and assessments from the many of the problematic assumptions about
European Union High Level Expert Group technology congruent with its bioethical
on the New Technology Wave (Nordmann, origins. It is for these reasons of the
2004), the Science and Technology Options problematic nature and increased visibility
Assessment (STOA) group of the European of the concept of human enhancement
Parliament (STOA, 2006, 2012) and direction technologies that I believe greater STS
to issues of biomedical enhancement in attention is warranted.
several research projects funded through
the European Commission’s sixth and What Does an STS Approach
seventh Framework Programmes (DEEPEN; to Enhancement Look Like?
ENAHNCE; EPOCH; ETHENTECH and
FABRICED among others). The potential Given that human biomedical enhancement
of enhancement technologies also is both a (changing) concept and a label
continues to elicit national responses, as applied to certain technologies or uses of
with the recent joint workshop on ‘Human technologies, an adequate STS approach
enhancement and the future of work’ jointly must engage with both these aspects of the
hosted by the Academy of Medical Sciences, phenomenon. In part, this can be done by
the British Academy, the Royal Academy of drawing on one of the traditional strengths
Engineering and the Royal Society in the UK of the field and carrying out empirical case
(2012). studies of technologies, or technological

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Science & Technology Studies 2/2015

applications, labelled as enhancements. who is excluded)? What assumptions are


However, before they can be used to critique built in to starting points of the discussion?
it, case studies will first need to engage What other questions can be asked and how
with extant understandings of the concept should we ask them?
of enhancement. In doing so, researchers Such an agenda, applied to the study of
need to avoid the twin perils of uncritically human enhancement means not taking the
accepting problematic understandings of category of ‘enhancement’ (or ‘therapy’) at
technology such as nature/culture dualism face value, but treating it as a claim made by
and of unwittingly finding themselves bioethicists and others through the exercise
drawn into the increasingly polarised moral of professional expertise. To inform their
arguments for and against permitting case studies, STS scholars must therefore
human enhancement technologies. An STS also trace and account for the shifting
approach must adopt a critical distance meanings of enhancement across contexts
from the enhancement debate, taking from bioethics literature to strategic
the concept of enhancement as a topic technology evaluations, and unpack the
of investigation rather than a given ‘fact’ underlying normative commitments
about the technologies and accounts being in accounts of human technological
studied. enhancement. Thus the first component of
an STS agenda for studying enhancement
Researching Enhancement as a Concept technologies should be:
One model that could be usefully copied
here is Rappert’s (2007) work on the issue 1) To map out the changing landscape
of ‘dual use’ research in the context of of the enhancement debate(s) from its
biological security. The dual use debate bioethical origins to the present con-
concerns whether, and how, it might be verging technologies agenda.
possible to identify scientific research
intended for beneficial, often biomedical, At this juncture, it is helpful to recall some
applications that might also enable the lessons from sociological engagements
construction of biological weapons or other with bioethics. Certain sociological
undesirable hazards. Although dual use accounts of bioethics, in tending to
research and enhancement derive from portray all bioethical decisions, texts and
different historical and political contexts, forms as part of a single, principle-based
both debates concern attempts to classify bioethical orthodoxy have historically
bio-scientific outputs as acceptable or caused friction between the two disciplines
unacceptable based on criteria other than (De Vries et al., 2006). It is pertinent to
the scientific quality of the output itself recognise that bioethics, as a fundamentally
and both are amenable to similar sorts of interdisciplinary enterprise – the field
critical analysis. Rappert (2007) sets out an was primarily founded by collaboration
investigative agenda for dual use research between philosophers, theologians and
that does not try to resolve the problem concerned physicians – is not a monolithic
as presented, but begins by addressing entity but rather incorporates a plurality of
the terms on which the debate is being views and approaches as befits the diversity
conducted. In this work, Rappert (2007) asks of bioethicists (De Vries et al., 2006; Jonsen,
what claims are being made about dual use 1998).
research and how. How are assessments
being made and who makes them (and

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Michael Morrison

The critique I propose in this paper is Operationalising the critical agenda


not a critique of ‘bioethics’, or indeed of described above, case studies should
bioethicists, but of certain conceptions and also draw out the normative assumptions
framings of enhancement (especially as part contained in the claims and assessments
of a dichotomy with therapy) as a way of made about enhancement, whether by
classifying and understanding technologies. ethicists, transhumanists or technology
Nonetheless, much in the sociological developers. These goals can be configured
critique of bioethics was and is warranted, if as the following components of an STS
overly broad and totalising in its application. programme of investigation:
One of the limits of the argument of De Vries
et al. (2006) is that within the multiplicity 2) To study how particular technologies
of bioethical accounts, there remains a have become labelled or classified as
detectable ‘mainstream’ (Kelly, 2006) being for ‘human enhancement’ or hav-
or dominant mode of bioethics drawing ing ‘enhancement applications’.
primarily on philosophically-informed
applied ethics, while other perspectives 3) To look at the human characteris-
more amenable to sociological and STS tics that technologies are supposed
sensibilities often remain marginalised to enhance and to ask how and why
(Hedgecoe, 2004). When, as with the these characteristics are valued. What
discussion of the problems of dualism in is the role of wider cultural, economic
the previous section, I refer to issues with and political contexts in making some
the ‘bioethical origins’ or the ‘bioethical human traits desirable and others
framing’ of enhancement I intend it as a undesirable?
critique of the dominant narratives about
enhancement and am not trying to suggest For both questions it is also important to
that all bioethical perspectives share this remember that ‘enhancement’ is often a
limitation. label applied by experts from outside the
domain, such as medicine or sport, where a
Case Studies of Enhancement particular technology is actually deployed in
Technologies practice. One of the purported successes of
Case studies (rightly) remain a core tool institutional and professional bioethics has
for STS studies. They provide a body been its ‘ability to import into medicine a set
of empirical data, something that is of ethical standards that are not native to the
often absent from other discussions of occupational and organizational cultures of
enhancement technologies. They also medicine itself’ (Zussman, 2000: 10 cited in
present a means to challenge universalising Hedgecoe, 2004: 134). However, in the case
tendencies (Hedgecoe, 2004) that present of enhancement, it is by no means clear
all technologies and technological whether the classification of technologies as
applications labelled as enhancements ‘enhancing’ or ‘therapeutic’ has exercised
as merely recurrent examples of the same any great influence on contemporary
(moral) problem. A body of STS case medical thought or practice. Case studies
studies offers the opportunity to investigate, should therefore also seek to uncover how
compare and contrast specific examples technologies and technological practices
of technologies labelled as ‘enhancing’, labelled as enhancing are understood in
drawing out the differences in context, their domains of application and whether a
meaning and consequences across cases.

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Science & Technology Studies 2/2015

label of ‘enhancement’ has any legitimacy logical system (the human mind/body),
or consequences for everyday practice. which are amenable to intervention
A final issue, as identified above, is and controlled manipulation through
the tendency towards reductionism and technology.
biological determinism in many accounts
of enhancement. This is especially true of Is Critique Enough?
pro-enhancement accounts where the full So far I have presented the case for
range of human capabilities to be enhanced a programme of STS research on
extends to human traits such as sexual enhancement technologies largely in
identity, morality and aspects of personality terms of the problematic nature of the
like aggression or shyness. Deterministic existing enhancement debate and the
accounts propose that behaviours are possibilities for STS research to make these
essentially governed by biological, often limitations explicit. This is certainly within
genetic, factors, while reductionism holds the ‘traditional’ remit of STS scholarship.
that only these biological factors are Indeed, it may be too close to existing work
worthy of consideration when investigating within STS. Guggenheim and Nowotny
(human) characteristics. These issues (2003) have argued that the STS critique
are hardly novel and have already been is in danger of becoming repetitive and
addressed in relation to claims making thereby redundant. For STS scholars
in evolutionary psychology (Ehrlich & there may always be ‘further artefacts
Feldman, 2003) and behavioural genetics to deconstruct, and always a new target
(Rosoff, 2010). The primary limitation of group which can be enlightened about the
this type of explanation, when applied flawed nature of prevailing understandings
to complex human behaviours such as of science’ (Woolgar et al., 2009: 10), but
altruism or moral judgement is that, as to what useful end? This returns to the
they become understood as quantifiable question of audience. If STS scholarship
outputs of biological functioning, such is mainly directed at other STS scholars
as changing patterns of brain activity or those in related fields then there is
or modulations in gene or biomarker relatively little to be gained by colonising
expression, complex behaviours become the enhancement technologies debate as a
reified as being only the expression of those further site for ‘more of the same’ critique
variations. Altruism becomes a particular (this may even be a reason why there has
pattern of brain activity; morality becomes a been relatively little dedicated STS research
particular pattern of gene expression as the on enhancement to date).
contaminating ‘social’ is purified to leave I would suggest that the extension of STS
only the ‘natural’. As a result, concepts such perspectives and the ‘enlightenment’ of new
as altruism or morality become ‘flattened’, target audiences is valuable in itself, but
losing any sense of characteristics as it is potentially limited when presented as
internally-experienced episodes of critique alone. Critique does not necessarily
affective reasoning. Accordingly, the contain any useful recipe for reforming and
fourth component of an STS programme of constructively improving its targets. We can
research on enhancement technologies is: hardly expect to transform all our audiences
into STS scholars and have them abandon
4) To investigate how complex human all prior convictions. In any case, this
characteristics and traits are becom- would not be especially helpful as it would
ing understood as components of a bio- ignore the limitations of what STS can do

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Michael Morrison

– for example STS scholarship has largely willing to collaborate with social scientists
resisted making normative decisions or and STS practitioners in an endeavour
adopting a particular politics of technology that requires greater reflexivity about the
(Keulartz et al., 2004). A further form of practice and knowledge claims of both
STS work is possible through engagement bioethics and the natural sciences than is
with new audiences in ways that move customary in much ‘mainstream’ bioethics.
beyond deconstruction towards ‘positive’ However, previous attempts to combine
and constructive engagement (Latour, STS with potentially compatible ethical
2004). Timmermans & Berg (2003) advise traditions such as pragmatism (Keulartz et
social scientists to use their expertise to al., 2004) and the diversity of bioethicists
influence the creation and implementation capable of offering a range of perspectives
of medical technologies. Similarly, Harry (De Vries et al., 2006) suggest that there is at
Collins and colleagues (e.g. Collins & least potential for such an exercise.
Evans, 2002) have advocated using STS’ If, as the title of the chapter by
‘knowledge about knowledge’ to advise on Guggenheim and Nowotny (2003) suggests,
the best use of expertise in the public sphere ‘repetition makes the future disappear’,
(Woolgar et al., 2009). However, cautionary then another option for moving beyond
voices within the field have also warned critique is for STS to actively re-engage
that a commitment to engagement risks with and contribute to the future. Much
jeopardising STS’ cherished potential for of the pro-enhancement literature and
(radical) reflexivity. almost all the converging technologies
The case of technological enhancement agenda deals in future-orientated claims
offers potential avenues and challenges about the transformative (and economically
for productive engagement. The aim of generative) potential of technology. As
this proposed programme of STS research such, the claims and the rhetorical framing
on human enhancement technologies is devices of these works are amenable to
not in any way a call to try and ‘do ethics critical analysis through the sociology of
better than the ethicists’. One productive technological expectations (van Lente, 1993;
form of engagement with the bioethics of Brown et al., 2000; Borup et al., 2006). Claims
enhancement might be to use STS case about the future potential of enhancement
studies of technologies or technological technologies, as with any other form of
applications labelled as enhancement to technological expectation, are intended to
contribute to a ‘critical bioethics’: convince and enrol relevant actors such as
governments, funders and private capital
Critical bioethics is rooted in empirical investors in supporting the work needed
research. […] Th is does not mean that to try and realise these imagined futures
philosophers have to become social sci- (Brown & Michael, 2003; Borup et al., 2006).
entists; simply that if they are interested Departing from this approach, a further step
in the ethics of a particular technol- for STS scholars would be to engage with
ogy, their fi rst port of call should be the Selin’s (2008: 1892) ambitious ‘sociology of
social science literature about that tech- the future’. While the term ‘sociology of the
nology, rather than the standard bioeth- future’ is not wholly novel, Selin’s particular
ics debates (Hedgecoe, 2004: 135–136). conception describes ‘an emerging field
of inquiry that works to understand future
The viability of this approach depends, of consciousness drawing from a mix of STS
course, on the availability of bioethicists and the practice of foresight’ (2008: 1892).

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The suggestion is not that we should must be set aside in order to make
all become futurologists, but rather that engagement successful, but rather that
STS scholars ‘should tend to the cultural, adequately reflexive engagement is the only
political, and economic conditions from acceptable way to proceed. The fifth and
which future studies arise’ (Selin, 2008: final component of an STS agenda for the
1889). This approach can ask questions study of enhancement and enhancement
about how legitimacy is created or disputed technologies should therefore be:
for future-orientated technological claims,
whose expertise counts (and whose is 5) To engage productively, but reflex-
excluded) in making these claims and ively, with other disciplines and audi-
which groups are envisaged as ‘winners’ ences in reflecting on STS accounts
or ‘losers’ in projected futures. Implicit of enhancement and enhancement
normative commitments and underlying technologies.
assumptions – such as the pervasive notion
of ‘technological progress’ – can be laid bare I do not argue that critique is redundant,
and subject to critical investigation. Such only that it is not sufficient. It is not an
an approach is not without consequences; end in itself, but it is a starting point.
Selin (2008: 1891) warns: ‘[w]hether as a Critical STS accounts of enhancement and
legitimating or destabilizing discourse, enhancement technologies still need to
the future is a discourse with effects’. be carried out to inform our perspectives
By participating in future-orientated and generate a body of critical empirical
discussions, scholars cannot remain evidence to form a basis for engagement
‘neutral’ and above the debate, but are to depart from. The agenda for a critical
inevitably drawn in to the politics of the STS investigation of enhancement and
future as their own studies, assessments enhancement technologies can be
and evaluations are sucked back into the summarised as follows:
‘pool’ of available ideas about technological
futures. What Selin presents as a warning, 1) To map out the changing landscape
however, is positively a prescription for of the enhancement debate(s) from its
those voices in STS advocating a move bioethical origins to the present con-
beyond ‘mere’ critique. Effects, of the verging technologies agenda.
contributory, constructive variety, are 2) To study how particular technologies
exactly what is wanted. have become labelled or classified as
being for ‘human enhancement’ or hav-
Of course, there remains the danger ing ‘enhancement applications’.
of social scientists becoming co-opted as 3) To look at the human characteris-
allies of particular visions of the future tics that technologies are supposed
and the actors whose interests these to enhance and to ask how and why
visions serve. The remedy for this must these characteristics are valued. What
be for social scientists to be continually, is the role of wider cultural, economic
reflexively aware of the nature of their own and political contexts in making some
contributions and to reflect on, and perhaps human traits desirable and others
modulate, their work on an ongoing basis. I undesirable?
prefer to look at this positively: engagement 4) To investigate how complex human
with the rhetorical and material enactment characteristics and traits are becom-
of futures does not mean that reflexivity ing understood as components of a bio-

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Michael Morrison

logical system (the human mind/body), aware of the contingent and constructed
which are amenable to intervention nature of our own texts. Furthermore, this
and controlled manipulation through brief account can be used as a starting
technology? point for further investigation, including
5) To engage productively, but reflex- investigation of all the rich bioethical
ively, with other disciplines and audi- discussion excluded or summarised here.
ences in reflecting on STS accounts
of enhancement and enhancement Genetics and the Origins of Enhancement
technologies. The bioethical concept of human
technological enhancement came to
In keeping with this agenda, the next step prominence through the debates on genetic
for this contribution is to begin to map out engineering and gene therapy during the
the changing landscape of the enhancement 1970s and 1980s. Much of the discussion
debate(s) from its bioethical origins to the at this time was of North American
present converging technologies agenda. provenance. As the technology to insert
Accordingly, the next section will contain ‘foreign’ or synthetic genetic material into
the second major element of this paper: a the cells of a host organism began to look
(brief ) review of the nature of the debate on scientifically achievable, the bioethical
enhancement to date. community became increasingly concerned
with the ethical considerations of genetic
A Brief History of Human manipulation being applied to human
Enhancement Technologies subjects (Crigger, 1998; Martin, 1999). Two
core distinctions were developed within the
What follows is a short history of the bioethics literature in order to gain moral
bioethical and converging technologies purchase on the emerging technology
debate on technologies for human (Martin, 1999; Scully & Rehmann-Sutter,
enhancement. As Brown & Michael (2003: 2001). Firstly, genetic modification at
5) remind us, both the future and the past the level of somatic (body) cells was
are available to us ‘only […] imaginatively distinguished from alteration of germline
through histories and projections’. Histories (gamete producing) cells on the basis
are one such form of projection: they are that the former intervention only affects
accounts of the past, created and structured individuals whereas the latter is intended
in the present, in ways that organise to confer genetic changes that can be
and account for past events that accord passed on to future generations. Secondly,
with contemporary understandings and and of greatest import here, the transfer of
purposes (Morrison, 2012). The account genes intended to treat existing (genetic)
I present here is inevitably selective and diseases was distinguished as gene therapy,
partial. It is intended to draw attention from the genetic modification of humans
to those aspects of the enhancement with the intent of boosting human traits
debate that I believe are most relevant above normal levels or adding wholly
to the claims I make in this paper and new capabilities thereby enhancing the
the issues I have identified as most recipient’s abilities (Gardner, 1995; Juengst,
pertinent for a programme of STS research 1997). Thus, in its inception, the concept
on enhancement and enhancement of enhancement was defined as one half
technologies. This does not, I believe, of a dichotomy with therapy. Importantly,
diminish its value as long as we remain while enhancement is understood as

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distinct from therapy, ultimately it can only to protect society from possible harms of the
be defined by reference to the concept of unknown and uncertain. Viewed another
‘the therapeutic’. As the debate has moved way, the creation of categories of therapy
from ‘enhancement vs. therapy’ to ‘anti- and enhancement creates a sphere of ‘pure’
enhancement vs. pro-enhancement’, the use of medicine and medical technologies
category of therapy tends to fade from protected from the ‘dangerous’ and
view, but, as I intend to demonstrate in forbidden realm of unbounded application
subsequent sections, it still has an important that is enhancement (after Douglas, 1969).
role in framing the terms of discussion. In this, the concept of enhancement is
Returning to the genetic modification rather different from other theories of
debate, the resulting moral verdict at medical expansion such as medicalisation,
the time was that gene therapy affecting which, in its critical formulation, argues that
regular (somatic) body cells was ethically medicine might not always be the best way
acceptable but genetic modification to to address social problems, but does so on
enhance human abilities or pass on traits a case-by-case basis, not because it posited
to subsequent generations was morally that there was or should be an a priori fixed
prohibited. What can be inferred from the realm of medicine.
choice of ‘enhancement’ and ‘therapy’ as Critical accounts of bioethics such as
conceptual tools of classification? One, Evans (2002) and Kelly (2006) have argued
perhaps Whiggish, reading of the decision is that, as bioethics has become increasingly
that the enhancement/therapy distinction institutionalised as a part of the formal
allowed an ethical steering of the nascent regulation of medicine and biotechnology,
technology along a morally acceptable it has lost its critical distance from those
developmental pathway. Alternatively, it disciplines it is intended to oversee.
could be noted that the choice to valorise Instead, it is argued, bioethical review has
therapy and repudiate enhancement is come to act as a mechanism for diffusing
inherently a conservative one, opting to public anxiety about new technological
reinforce the value of what is already known practices, while ultimately legitimising their
and accepted and problematising the deployment, by issuing ethical caveats on
unknown and uncertain. Defining ‘therapy’ (and thereby creating) appropriate ways
as the proper scope of medicine creates a to use them. In this view the role of ethical
bounded space for medical practice with rhetorical tools such as the enhancement/
implicit, if poorly delineated, boundaries, therapy dichotomy serve the social function
which renders medicine manageable and of providing an ethical ‘fix’ to ‘a medical
unthreatening. Beyond the limits of this demand to push the limits of medical
(safe) domain is the realm of ‘enhancement’, treatment into new frontiers’ (Imber, 2001:
characterised by potentially unlimited, 31). Scully & Rehmann-Sutter (2001) make
but uncertain and nebulous possibilities this argument in relation to gene therapy,
and risks. The casting of enhancement reporting that when the enhancement/
as morally troubling can be seen as an therapy dichotomy was proposed, gene
acknowledgement of the need for adequate therapy was in its infancy and no capacity
reflection on the social consequences of for enhancement actually existed.
the technological choices made by a given Therefore, identifying enhancement
society, but also appears to contain an as a morally problematic domain to be
underlying risk averse, even paternalistic prohibited did not actually involve any
element, relying on tradition as a touchstone practical loss of a technological option for

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Michael Morrison

scientists and biotechnology companies, Analysis using the categories of


but instead served to initiate the progress enhancement and therapy soon spread to
of the technology by creating the morally a range of other practices that threatened
acceptable category of gene therapy, under (or promised) to blur the boundaries
which the first clinical trials of human gene between treating disease and biologically
therapy could be organised. or chemically augmenting ‘normal’ human
behaviours. Many of these, such as cosmetic
Enhancement vs. Therapy surgery and the use of pharmaceutical
While human genetic modification agents to improve the performance of
has remained a more or less constant military personnel during combat or
theme in the enhancement literature, athletes during sporting events had been
during the 1980s the rhetorical tool of the practiced long before the enhancement/
enhancement/therapy dichotomy began therapy distinction was devised as a tool
to be applied to other areas of bioethical of academic bioethics. Others, such as
concern. One of these new cases was the the reported use of Ritalin as a study aid
use of human growth hormone (hGH) to by college students or public speakers
increase the growth rates and anticipated taking beta blockers to hide flushing whilst
adult stature of short children. In 1985 a performing appeared to fall even more
new form of growth hormone was produced readily into dual ‘medical’ and ‘social’
through the techniques of recombinant categories of use. Novel cases also emerged,
genetic engineering, which promised in the form of blockbuster ‘lifestyle’
potentially ‘unlimited’ supply of the drug. pharmaceuticals such as Viagra and Prozac
As growth hormone became more available, that claimed, in Peter Kramer’s (in)famous
the numbers of patients receiving hGH phrase, to make people ‘better than well’
for both traditional diagnostic categories (Rothman, 1994; Wright, 1994).
and in experimental applications began The exercise of moral evaluation was
to increase significantly, raising concerns not merely abstract but was, at this point
about the appropriate use of the drug (Neely in the debate, intended to serve practical
& Rosenfeld, 1994). For bioethicists such as decision making; for example in deciding
Daniels (1992) and Tauer (1995) the use of which aspects of a new intervention should
hGH in potentially ‘normal’ short statured be covered by health insurance. A bioethical
children posed questions about the limits evaluation that could separate technological
and proper scope of medicine and medical potential into therapeutic and enhancing
technologies that appeared well suited to forms would support an economic decision
moral evaluation in terms of enhancement to cover those applications considered
and therapy. therapeutic and leave the ‘enhancing’
options as a matter of individuals’ ability to
[T]he modification of height, which is pay. Thus, the spread of the enhancement/
possible through administration of bio- therapy dichotomy as an analytic tool can
chemical GH, raises the same questions be understood both in terms of its utility
about therapeutic versus enhancement to economic and policy imperatives to
uses of genetics (Tauer, 1995: 18). control healthcare costs and because of
its value to professional bioethicists as a
This question of limits and boundaries specifically ethical form of technological
to medical practice is central to the assessment that could be used to colonise
enhancement/therapy dichotomy.

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past, present and future issues of medicine [D]iseases are internal states that
and technological application. depress a functional ability below spe-
Taking a less instrumental view of cies-typical levels. Health as freedom
academic bioethics, the enhancement/ from disease is then the statistical nor-
therapy dichotomy also allows an mality of function, i.e., the ability to
engagement with traditional philosophical perform all typical physiological func-
themes of what constitutes a good or tions with at least typical efficiency.
worthwhile life. The concerns discussed
under the topic of enhancement are This type of thinking, known as the ‘normal
multiple, ranging from issues of authenticity functioning model’, was most prominently
and social justice to the question of championed by ethicist Norman Daniels
whether biotechnological interventions (1992, 2000; see also Sabin & Daniels, 1995)
have a specific moral character that who argued that the purpose of medicine
makes them qualitatively different from is to restore, maintain and compensate
‘social’ enhancements such as training for losses in equality of opportunity to
and education. What is most pertinent to individuals that result from disability
this account, though, is the spread of the and disease. The normal functioning
label and concept of enhancement to an model provides a way of calculating
increasing range of technologies, promoting the appropriate (moral) boundaries of
what might have remained a bioethical healthcare expenditure where ‘proper
modality peculiar to the realm of genetic healthcare services […] should be aimed
engineering into a prominent mode of at getting people back to “normal”, e.g.
technological classification. restoring an individual’s functional
capability to the species-typical range for
Tools of Classification: From Normal their reference class’ (Juengst, 1997: 129).
Functioning to ‘Beyond Therapy’ This type of biostatistical approach
In the case of genetic engineering it had exemplifies the strong tendency towards
been sufficient to prohibit enhancement at nature/culture dualism in certain
the level of intention to intervene in human formulations of the enhancement/therapy
biology. Once bioethical attention turned dichotomy. Ignoring the historically and
to existing practices where technologies socially contingent nature of medical
were already in use, the work of classifying knowledge, it presumes a single apolitical,
particular applications as enhancement ahistorical ‘species typical’ human body
or therapy meant that enhancement had produced through ‘value free’ biomedical
to move from being an abstract idea of techniques as a universal norm. Moreover
‘not therapy’ to a practically achievable the use of normal function models conflates
categorisation. In order to make the the ideas of statistically ‘normality’ and the
determination of the boundaries of health ‘natural’ human state with all the loaded
(and the corresponding limits of medical connotations the latter term implies,
practice) a more quantifiable, objective leading to the moral validation of normalcy
procedure, some early formulations of and problematisation of the statistically
the dichotomy explicitly drew on prior abnormal as socially undesirable. Normal
philosophical attempts to define health and functioning models of healthcare enjoyed
disease in biological and statistical terms, a period of popularity and influence in the
as for example in the work of Christopher enhancement debate. However, it should
Boorse (1977: 542): not be imagined that they ever reflected

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Michael Morrison

a dominant bioethical consensus: for Some of these are established voices within
example Parens (1998) and Juengst (1998) bioethics such as professors John Harris and
both review a long list of potential objections Julian Savalescu. Others, often representing
and problems with normal functioning the social and intellectual movement known
models ranging from their potential as transhumanism, come from outside the
to make seemingly arbitrary decisions bioethical community to engage with the
about entitlement to medical resources, moral debates on enhancement (Agar, 2004;
through to constructionist accounts of Bostrom, 2003). For pro-enhancement
medicine that argue that medicine has no moral philosophers, futurists and
a priori boundaries. Even my cursory and transhumanists the moral polarity of the
selective review of the bioethical origins of original therapy/enhancement dichotomy
enhancement reveals the veracity of Devires is reversed: The possibilities of using
et al.’s (2006) claims about the multiplicity biotechnology to go beyond the current
of bioethical perspectives. limits of medicine represents not an ethical
Recourse to normal functioning transgression, but a desirable opportunity to
approaches has notably declined in overcome human limitations, while existing
recent years. This has largely been due to therapeutic applications of technology are
difficulties in implementation and having to at best acceptable and at worst inadequate.
amend the models to ensure that existing, The range of enhancement technologies
legitimated preventative health measures under consideration also expanded,
such as vaccination do not end up being covering more recent pharmaceuticals
classified as unacceptable ‘enhancements’, such as Modafinil which ‘enhances
rather than being a result of constructionist wakefulness’ (Coveney, 2011), technologies
or other minority ethical perspectives on at various stages of development including
‘mainstream’ bioethics. It is a measure regenerative medicine, bio-prosthetic
of the practical complexities of this type devices, cognitive enhancement drugs and
of approach that, by 2003 when the U.S. neuro-technologies (Hogle, 2005; Miller &
President’s Council on Bioethics were Wilsdon, 2006; Hughes, 2007), and highly
ready to launch their major ethical report speculative future possibilities such as
on enhancement, they opted for the title human-machine interfaces, life extension
‘Beyond Therapy?’ to reflect the need for and personality modification (Kurzweil,
debate to go ‘not only beyond therapy but 2005; Savulescu, 2007).
also beyond the distinction between therapy As the discussion has shifted to pit pro-
and enhancement’ (President’s Council and anti-enhancement camps against one
on Bioethics 2003: 13 emphasis added). another, problematic attempts to devise
Indeed, the debate has changed in ways that a quantitative definition of health and
bypass much of the difficulty in marking illness have been succeeded by a move
the exact boundary between normal and that places human nature as one of the
abnormal, therapy and enhancement, pivotal concepts at issue between pro- and
although probably not in ways that would anti-enhancement advocates. In anti-
meet with the approval of the distinctly enhancement arguments, enhancement
conservative President’s Council of 2003. transforms human nature through
biotechnology and therefore violates it,
Pro-enhancement vs. Anti-enhancement challenging human identity, and unleashing
With the rise of the concept of enhancement, a range of negative social consequences
have come pro-enhancement advocates. such as consumer markets in enhancement

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that will exacerbate inequality, and the One outcome of the rise of human
instrumentalisation of life as people nature is that the debate appears to
become valued only for the technological become more abstract as it focuses more
capacities they possess. Even though the on the acceptability or repudiation of
term ‘therapy’ is often absent from these enhancement en masse via theoretical
discussions, the ghost of the enhancement/ constructs such as human nature and less
therapy dichotomy can be seen in appeals on engagement with specific technologies.
to human nature. Human nature is, for anti- Additionally, as Ferrari (2008: 2) has argued:
enhancement arguments as developed by
Sandel (2004) or Fukayama (2002), part the reduction of the ethical challenges
of the ‘natural’: a given state of biological posed by these technologies to the
human being which must be respected and question of human nature has led to a
protected from hubristic notions of mastery polarization of positions, and has thus
and inappropriate cultural desires to generated an impasse from which it is
improve upon this natural state. Understood difficult to break free.
like this, the arguments for human nature
are not that far away from the valuation of Why should this apparent semantic
the (statistical) biological norm as natural stalemate among ethicists concern STS
and the repudiation of enhancement as scholars? I suggest a number of reasons.
an inappropriate cultural desire found in The polarised pro and anti-enhancement
Daniels (1992, 2000). framing hides the origins of enhancement
Pro enhancement advocates also engage as something that took work to distinguish
with concepts of human nature, refuting from therapy (however tenuous or
the claims of their ‘bio-conservative’ problematic that work may have been) and
opponents by questioning the idea that presents enhancement as an unproblematic,
there is a single, pervasive understanding established category. The debate
of human nature to discuss in the first comes to position human technological
place, or that human nature is such that enhancement not only as possible, but as
intervention represents a priori an immoral inevitable, where the only thing left to talk
act (Buchanan, 2009; Kaebnick, 2009). about is how to ethically manage the extant
Lewens (2009), at least partially echoing the or immanent technologies (see for example
difficulties of maintaining a clear boundary Baylis & Robert, 2004). This framing also
between therapy and enhancement, argues directly informs much of the converging
that many accepted interventions such as technologies agenda and is therefore
dental care or vaccination already enhance relevant to understand when interrogating
human capacities beyond the norm with no that phenomenon.
socially undesirable affects, rendering the
idea of human nature as a moral boundary The Converging Technologies Agenda
untenable. In many of these cases therapy/ The concept of technological enhancement
enhancement distinctions become less has spread to become the focus of
visible as the technological options they innovation policy, primarily through
represent become subsumed into a broader the various iterations of the converging
set of resources that promote a ‘good life’ technologies (CT) agenda beginning
to which individuals and populations are with Roco and Bainbridge’s 2003 report
entitled (Savalescu, 2009). ‘Converging Technologies for Improving
Human Performance: Nanotechnology,

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Michael Morrison

Biotechnology, Information technology accounts is clearly visible in the concept


and Cognitive science’ and the European of technological convergence. At the same
response, from the EU High Level Expert time, the domain of ‘therapy’ and the
Group on the New Technology Wave accompanying themes of boundaries and
designated ‘Converging Technologies for the limits effectively disappear from the debate.
European Knowledge Society’ (Nordmann, They remain only implicitly, as an existing
2004; Ferrari, 2008). Despite a number ‘limited’ state that enhancement improves
of differences in content and approach upon. ‘Nature’ remains an acultural,
between the US and European articulations scientifically-given domain (‘the unity of
of CT (Ferrari, 2008; Fuller, 2009), both nature’), but it is no longer valued as a ‘pure’
retain a core focus on engineering the domain to be bounded and protected.
human – ‘enhancing evolution’ – to modify Instead the malleability of nature is
individuals and populations to meet the valorised as a potentially ‘boundless’ source
demands of anticipated future social and of biological and economic potential. It
physical environments. is no surprise that the possibilities for
The concept of convergence invokes human enhancement through converging
currently discrete realms of scientific technologies are closely linked to strategic
research and innovation being brought economic planning, speculative investment,
together ‘based on the unity of nature’ and in particular to discourses of neo-liberal
(Roco & Bainbridge, 2003: ix), to permit a capitalism.
comprehensive engineering of humans as While the nature of ‘the good life’ to be
biological systems: achieved (or lost) through enhancement
has been a topic of debate within previous
Examples of payoffs will include philosophical accounts, the desirability of
improving work efficiency and learning, enhanced traits within the CT agenda is
enhancing individual sensory and cog- largely calculated from the perspective of
nitive capabilities, fundamentally new securing economic growth and national
manufacturing processes and improved (or supranational in the case of the EU)
products, revolutionary changes in competitive advantage in the global
healthcare, improving both individual marketplace. The enhanced capacities
and group efficiency, highly effective proposed by the CT agenda itself;
communication techniques including faster processing of greater volumes of
brain-to-brain interaction, perfecting information, working harder, faster or
human-machine interfaces including longer, retaining more data (increased
neuromorphic engineering for indus- memory capacity) etc., are all essentially
trial and personal use, enhancing improvements in worker efficiency and
human capabilities for defense pur- productivity – key attributes of the ideal
poses, reaching sustainable develop- neo-liberal citizen-consumer. In this, the
ment using NBIC tools, and ameliorat- CT agenda is doubly neo-liberal in that, as
ing the physical and cognitive decline well as promoting human characteristics
that is common to the aging mind (Roco desirable to neo-liberal representations of
& Bainbridge, 2003: 1). the world, it does so by fulfilling the core
neo-liberal aim of creating new markets for
The complete inversion of the original ‘high technology’ consumer products and
e n h a n c e m e n t / t h e ra py d i c h o t o my new rounds of innovation. The CT approach
that accompanies ‘pro-enhancement’ to enhancement technologies effectively

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brings human enhancement in to line as In setting out this account of the human
another component in the knowledge- technological enhancement debate, I
based bio-economy, itself a fundamentally have tried to highlight key framings and
neo-liberal enterprise (Birch, 2006). dynamics in how enhancement has been
theorised over the past three decades,
There are a number of reasons why with the purpose of supporting future
this might be considered problematic. STS studies on this topic. Attention to the
As described above, neo-liberal ideology changing dynamics of enhancement can
favours a particular model of innovation help future investigators to locate particular
where the desired outputs are marketable case studies in terms of what framing of
products protected by strong intellectual enhancement they might expect to be
property rights (Birch, 2006; Lave et al., dominant for that particular technology at a
2010). Such an approach actively militates given time. For example, a historical study
against innovations that do not require of Ritalin use in the 1990s might expect
the transformation of social problems into moral debates of the time to be framed in
technical ones, that are non-commercial, terms of whether prescription for attention-
public rather than private, or where the deficit / hyperactivity disorder (ADHD) is a
role of the state is to provide welfare rather legitimate therapy or an illicit enhancement,
than facilitate the expansion of markets, all while an investigation of cognitive
of which may arguably be more desirable enhancement drugs currently under
or more appropriate options in a given development is more likely to encounter
situation. Abraham (2010) and Moynihan ethical discussion of whether modifying
et al. (2002) have identified potentially cognitive capacity is detrimental or not to
socially deleterious effects of market- human nature. Of course, it is also entirely,
driven innovation in the pharmaceutical and interestingly, possible that studies will
sector, where the creation of new markets find far more nuanced discussions at work,
sometimes requires the co-promotion of all of which can be usefully fed back to
new social problems to which innovative improve and build upon what I have merely
technologies are then presented as the sketched out here.
obvious solution.
Birch (2006: 9) also contends that, Conclusions
through the insistence on the inevitably of
competition, neoliberalism: This program for future STS work in
the domain of human enhancement
promotes the collapse of a distinction technologies offers an opportunity for
between market value and ethical value contributions from a range of existing
so that commercial value becomes theories and perspectives from across
the overriding principle for political the heterogeneous domain of practices
economy. loosely aggregated under the title of ‘STS
scholarship’. Some lines of investigation
Reminding us, if a reminder were needed, have already been touched on in the course
not only that economic, political and of the paper: case studies of existing,
technological trajectories are inevitably developing and prospective forms of
entangled, but that they are also inseparable enhancement technologies potentially
from ethical considerations and moral and animated by a variety of concerns from
social consequences. co-production of technology and society

22
Michael Morrison

around enhancement, to network analysis, a range of STS studies can accumulate


the role of professional boundaries and to yield iterative and multiple accounts,
expertise, technological scripting and user encompassing the discontinuities and
perspectives, technological expectations, contradictions inherent in the topic as well
markets, and economic representations of as the continuities and connections.
the world. The importance of productive future-
Enhancement is also amenable to orientated activities in STS has also been
investigation in terms of innovation emphasised. There are more possibilities
policy, regulation, governance and legal than can be sketched here: One desirable
frameworks – for example, how are existing goal would be to produce nuanced
interventions labelled as enhancements discussions of potential technological
regulated in different jurisdictions, what futures that avoid the utopias and dystopias
strategies are in place for proposed of certain existing considerations of
enhancements to deal with current enhancement. It could be highly productive
regulatory and governance frameworks to develop STS-informed scenario planning
– are they drugs, devices, ‘advanced or foresight activities around enhancement
medicinal products’ or something else? t e c h n o l o g i e s. Su c h a nt i c i p at o r y
If enhancements are tested on healthy discourses could be used to explore future
volunteers in post-phase I clinical trials, development of enhancement technologies
what definitions of risk or efficacy might under different regulatory and economic
be employed, or will clinical trials even conditions, for example as public goods
remain the ‘gold standard’ for assessing rather than marketable products. The
enhancement products? What might a point here is not to ‘get the future right’ or,
future governance landscape look like? necessarily, to reduce uncertainty, but to
Where do enhancement technologies sit in provoke useful discussion and debate.
terms of upstream public engagement, or Finally, a programmatic study of
responsible innovation? enhancement technologies offers STS
Work is also needed on whether scholars the opportunity to explore
technological enhancement is an different articulations of ‘progress’ encoded
inherently Western concept or whether in debates around enhancement and
it translates across other cultures, and if ultimately to relate the narrow discussion
so how and with what reconfigurations of contemporary ‘biotechnological’
and effects? Anthropological approaches enhancement to the older, broader
can be especially suited to studying concepts of social enhancement set out at
how value schema other than Western the beginning of this article.
bioethics might shape the governance of
technologies labelled as enhancements (cf. References
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of enhancement. Rather, findings from enhancement and the future of work:

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Zussman R (2000) The Contribution of Michael Morrison


Sociology to Medical Ethics. Hastings Centre for Health, Law and Emerging
Center Report 30: 7–11. Technologies (HeLEX)
Nuffield Department of Population Health
EU Framework Program 6 projects: University of Oxford
Old Road Campus
DEEPEN – Deepening Ethical Engagement Headington
and Participation in Emerging Oxford OX3 7LF
Nanotechnologies. Project information UK
available at: cordis.europa.eu/projects/
rcn/84695_en.html Email: michael.morrison@dph.ox.ac.uk
ENHANCE – Enhancing Human Capacities:
Ethics, Regulation and European
Policy. Project information available
at : cordis.europa.eu/projects/index.
cfm?fuseaction=app.details&TXT=ENH
ANCE&FRM=1&STP=10&SIC=&PGA=
FP6&CCY=&PCY=&SRC=&LNG=en&R
EF=75601

EU Framework Programme 7 projects:

EPOCH – Ethics in Public Policy making: The


Case of Human Enhancement. Project
information available at: cordis.europa.
eu/projects/rcn/96892_en.html
ETHENTECH – Ethics of Enhancement
Technology. Project information available
at: cordis.europa.eu/projects/rcn/92742_
en.html
FABRICED – French and British
Contemporary Ethical Debates on Human
Enhancement: Building Dialogue and
Shared Vocabulary. Project information
available at: cordis.europa.eu/projects/
rcn/99853_en.html

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Involving Patients with E-health:


The Dialogic Dynamics of Information Filtration
Work
Karen Dam Nielsen

With e-health technologies, patients are invited as co-producers of data


and information. The invitation sparks new expectations, yet often results in
disappointments. With persistent ambitions to involve patients by means of e-health,
it seems crucial to gain a better understanding of the nature, sources and workings of
the expectations that come with being invited. I analyse the use of an e-health system
for ICD-patients, focusing on how patients sought to serve as information providers.
Continuing STS-research on invisible work in technology use, I show how using the
system involved complex work of filtering information. I argue that this ‘filtration
work’ was inherently dialogic, that is, characterized by receiver-orientation and the
anticipation of response and guided by different communicative projects. For the
patients, filtration work thus, first of all, required certain skills and knowledge about
the infrastructure of care. Secondly, it entailed the expectation that the system—
for better or for worse—would facilitate not just information sharing but open up a
dialogue, which glaringly contrasted with the clinicians’ expectations of being able
to better manage dialogue. I suggest that understanding the dialogic dynamics and
‘overflows’ of information filtration work can help unpack the challenges of facilitating
(patient) participation with e-health and other filtration devices.

Keywords: e-health, patient participation, information filtration work, dialogue

Introduction prototypes in home and clinic, the contours


are drawn for a system that will support
The basic storyline of the following the work of both patients and clinicians by
anecdote may sound very familiar to readers enabling patients to provide health related
acquainted with the field of e-health and information. But already in the pampering
telemedicine: environment of pilot implementation, use
A group of researchers and clinicians set practices prove difficult to establish and the
out to develop an ICT tool to involve chronic expectations of users and designers alike
heart patients in their own treatment. Their seem impossible to fulfil. Clinicians lose
approach is exploratory and highly user- interest, patients are disappointed, and in
centred. Through careful tinkering with the end everyone involved seemingly agrees

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Science & Technology Studies 2015, Vol. 28(2) 29-52
Science & Technology Studies 2/2015

that this may have been a valuable learning ways. What kind of work does this require?
experience, but not exactly a technological What expectations are entailed? And how
home-run in the quest for doing chronic come expectations are so often not met
care smarter by involving patients. “I’m despite the careful efforts of designers to
afraid that this project will end up exactly create tools capable of aligning different
as all the others. The doctor doesn’t bother user needs? These questions are explored
to read it, hasn’t got the time. And then through the case of an e-health system for
you spend millions on a system which ICD-patients and the clinicians involved
won’t work in the long run”, as one patient in their care, ‘P-Record’ 2, introduced
evaluates. anecdotally above. An ICD is an advanced
Involving patients by means of e-health1 pacemaker that monitors the heart rhythm
is a persistent ambition in healthcare (Berg, and, in case of arrhythmias, treats these
2002; Felt et al., 2009; Danholt et al., 2013). by electrical impulses. The care for ICD-
Often framed as providing win-win tools, patients is divided between 1) a specialized
e-health is associated with the hope that clinic (device clinic) responsible for the
involving patients in their own treatment ICD-device and remote monitoring and
will improve both the quality and efficiency 2) the local hospitals’ outpatient clinics
of care (Archer et al., 2011; Wagner et al., (heart clinics) responsible for treating
2010). But realizing the ambitions seems the patients’ underlying heart condition.
difficult. Pilots come and go and efficiency P-Record was designed as an add-on
claims remain largely unsubstantiated solution to this already technologically
(e.g. Miller, 2007; Tenforde et al., 2011). dense and distributed care scheme
The lack of evidence for e-health efficacy and aimed at improving coordination,
may partly be due to the methodological communication and patient participation.
difficulties of evaluating technology outside This overall ambition was translated into a
controllable environments (Pols, 2012). But focus on facilitating the flow of appropriate
besides being difficult to measure, the win- and timely information between home
win situation may also simply be hard to and clinic by enabling patients to provide
achieve. As the example of user evaluations information. As such, the system shares
above indicate, a central problem is that with many other e-health technologies
people—patients and clinicians—have to the basic script of serving as both a
do a lot of work to make the technologies standardization and customization device.
work. STS and CSCW scholars have That is, the system was intended as a sort of
substantiated this insight repeatedly (Mort filter that allows information to travel from
et al., 2003; Nicolini, 2006; Oudshoorn, home to clinic in a structured manner that
2008, among others). Moreover, for people fits clinical standards while at the same time
to put in the work, it must be worthwhile. opening up for an increased involvement of
So when patients are invited as participants the individual patient. The tension between
what follows are certain expectations— standardization and customization has
expectations that are often not met and the been pointed out as a characteristic of the
invitation results in disappointment. contemporary evidence-based healthcare
This article addresses this well-known paradigm at once patient-centred and
schism by taking a closer look at the rational (May et al., 2006; Storni & Bannon,
nature and sources of the expectations 2012; Moreira, 2011). E-health technologies
that follow when patients are invited to may, as illustrated by P-Record, emphasize
provide clinicians with information in new this tension by inviting patients to a kind

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Karen Dam Nielsen

of filtered participation. To understand involved in making P-Record work as a filter.


the schism in e-health—the promise and In conclusion, I discuss the implications of
expectations of patient involvement and the the findings for e-health as well as the wider
recurrent, subsequent disappointments— utility of the applied concepts.
we might therefore zoom in on what this
filtered participation means in practice. Filtering Information
How is it performed, who can join, and what Between Home and Clinic
does it imply for patients and professionals?
The article focuses on the work that While P-Record was designed to support
users, and patients in particular, undertook the flow of information both between
to make P-Record work as a filter. It thereby different clinics and between home and
continues in the line of a classic body clinic, I focus on the latter script (Akrich,
of literature that stresses and unpacks 1992) and the associated practices. I
the hidden work of technology use (e.g. propose to describe this script in terms of
Suchman, 1995; Star & Strauss, 1999; Heath an information filter; that is, a device that
et al., 2000). However, the article also allows certain information to sift through
deploys a more communicatively oriented and other information to be left out4. In
approach to the patients’ filtration work by information science, the notion of filtration
understanding it as a deeply interactional is central, typically referring to a method
endeavour that involves specific dynamics for the delivery of relevant information
and expectations3. Inspired by dialogism as one strategy among others for dealing
(Bakhtin, 1981; Linell, 2001), the article with information overload—filtration
argues that providing information being the process of “leaving some types
constitutes an intricate communicative of information unprocessed, according to
work of assessing relevance and imagining some scheme of priorities” (Savolainen,
(interactive) outcomes that in turn entails 2007: 612—paraphrasing Miller, 1962).
expectations of response. In other words, Depending on the specific approach,
filtration work is a dialogically oriented work filtration is understood as a cognitive and/
that involves the opening of a conversation or social process that can be more or less
and thus communicative and interpersonal supported or substituted by technical
dynamics that counter with and challenge systems with the aim of “automatically
the vision of scripting a structured, directing the most valuable information to
standardized information sharing practice, users […] helping them to use their limited
as well as individualizing ideas of e-health reading time most optimally” (Hanani et al.,
as facilitating self-care. 2001: 203). Information filtration devices
The article is structured as follows. are manifold: spam filters and customized
First, I draw up the framework for search engines are just some of the more
the analysis by discussing P-Record’s mundane examples. These examples,
script as an information filter and, however, also incarnate features and
subsequently, outlining the article’s core dynamics that may apply to other domains,
conceptualization: ‘filtration as dialogic as we might understand filters—or sieves—
work’. After describing the applied broadly as technologies of ‘ontological
methods, I turn to the analysis in which transformation’ (Kockelman, 2013).
I unfold patients’ and professionals’ use Indeed, while filters may be understood
and valuations of P-Record, showing the as “the simplest of interpreting agents”,
dialogic dynamics and derived implications meaning is also “the quintessential form

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Science & Technology Studies 2/2015

of sorting” (Kockelman, 2013: 37–39). As data involved in remote monitoring. Every


anthropological concepts, ‘filters’ and third month the data continuously collected
‘filtration’ may thus describe how we order by the ICD-device are transmitted through
information and produce meaning in a communicator box in the patients’ homes
general. to the device clinic where they are analyzed
The filtration terminology—in its by specially trained technicians (assisted
more modest version—is also present in by cardiologists). Data can also be acutely
the field of e-health and telemedicine. transmitted if either the patient or the ICD
A predominant narrative here is that detects a cardiac or device event. Patients
filtering information is both necessitated still visit the device clinic for semi-annual
and enabled by new technologies (Berner follow-ups, but before the introduction of
& Moss, 2005; Eysenbach, 2008). That is, remote monitoring, every ICD follow-up
visions of e-health/telemedicine often required a visit to the clinic. The core idea
involve a dual promise of increasing the with P-Record was to provide clinicians
production and accessibility of data and with contextual information from the
solving the subsequent need for filtering patients to be used in the interpretation
the vast amount of data made available in of remotely transmitted data, that is,
order to “provide meaningful quantities the patients’ own accounts of general
of health information to both patients wellbeing, symptoms, and events. With the
and physicians” (Warren et al., 1999, my introduction of remote monitoring, this
emphasis). Importantly, information information—normally articulated during
filtration is recognized as an already crucial face-to-face encounters—has been ‘filtered
part of medical work where decision- out’. Furthermore, automated data filters
making in a terrain of informational built into the monitoring system filter the
pluralism and uncertainty is a precondition. raw data that are transmitted to the clinic,
However, in the light of what has been highlighting severity and character of
called a ‘patient information explosion’ recorded events. While this filtration makes
(Berner & Moss, 2005), the call for formal the vast amount of data that is transmitted
filtration tools intensifies. Yet, the filters that more manageable and potentially reduces
are subsequently put in place with e-health/ the workload (Sinha et al., 2006), it also
telemedicine can also be perceived as being leaves the technicians with an interpretative
too efficient: they may cause vital clinical uncertainty. In the face-to-face encounters,
information to be left out (Lehoux et al., the technicians match the system’s
2002), thus not solving but in some cases indications with contextual information,
rather reinforcing the “struggle between often leading the technician to reassess the
information loss and information gain” automated filtration. In the absence of the
(Mort et al., 2003: 292). patient, this reassessment is not possible.
P-Record was an attempt to reintroduce
P-Record as an Information Filter the patient as information provider (or
Although the term ‘filter’ is not explicitly “diagnostic agent”), enabling yet again
used in the design of P-Record, the system “interlinked processes of interpretation”
materializes the co-creation of the problem (Andersen et al., 2011a: 6). Thus, with
and solution of obtaining and restricting the aim of providing technicians with the
information—of what to let in and leave out. contextual information otherwise ‘filtered
First of all, the system was meant to support out’ by the telemedical setup, P-Record can
the automated production and filtration of be said to be designed as an adjustment

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Karen Dam Nielsen

of the overall socio-technical information write key words and arrange them after
filtration in ICD-treatment. priority and, subsequently, to indicate
Secondly, the system was designed to symptoms by ticking off boxes linked to
focus the face-to-face clinical encounters at prefixed categories. The preparation form
both the device clinic and the heart clinic would thereby enable the clinicians to
by providing a tool for preparation: the gain a quicker overview and focus the
preparation form (figure 1). It consisted conversation with the patient—to “get to the
of four parts: general well-being, status point” (Andersen et al., 2011b)—and allow
since last consultation, symptoms, and the patients to present their own narratives.
questions for the upcoming encounter. This way, P-Record can be understood as
The parts and their order were designed in in itself designed to both open and narrow
a way that allowed for free text in the first the scope of information and to assist both
part, then gradually narrowing down the clinicians and patients in their informal
patients’ entries by asking the patients to filtration of information before and during

Figure 1. P-Record’s preparation form. Consisting of four parts (besides the front page
indicating the type of appointment): general well-being (‘alment’), status (‘siden sidst’),
symptoms (‘symptomer’), and questions (‘spørgsmål’) - in the example, partly filled out by
patient-participants in the user-test (personal information concealed).

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Science & Technology Studies 2/2015

the clinical encounter—a ‘dual filtration can be understood as a specific kind of


script’ that P-Record shares with other work, namely communicative work. In
e-health systems (e.g. Basch et al., 2005). framing filtration as work, I draw on a
‘A filter’ is a rather material figure, valuable strand of STS-inspired research
indicating a fixed structure that firmly into telemedicine and e-health that has
defines what is let through. As such, a filter shown how informal or invisible work (Star
can be seen as a mechanical standardization & Strauss, 1999) is required of both patients
device. In parts of the literature, it seems and professionals to make use and sense
that e-health technologies are expected to of new technologies (e.g. Mort et al., 2003;
work as filters ‘by themselves’—as ensuring, Oudshoorn, 2008; Piras & Zanuttoi, 2010;
through the materiality of their design, Pols, 2012; Roberts et al., 2012). These
that just the right amount of information is studies have also given insights into the
enabled to travel from home to clinic. In the (re-)distribution of work that is entailed
case of P-Record this expectation was also in using telemedicine (e.g. Oudshoorn,
present among clinicians, as will be shown 2011). Work, in this line of studies, is used
in the analysis. P-Record’s script, however, to describe users’ practices of domesticating
also involves a promise of empowerment and tinkering with technologies (Langstrup,
and customization by inviting patients to 2008; Pols & Willems, 2011), producing
provide their own illness narrative and put knowledge (Mort et al., 2003), building
individual concerns on the agenda. This relations and infrastructures (Oudshoorn,
invitation brings an ambiguity to the script, 2008), and coordinating and performing
which in practice leads to the material care (Langstrup et al., 2013).
filtration script being fundamentally I seek to further concretize the notion
challenged. As a filter, P-Record does not of work by proposing to look at the use of
work on its own. Users have to act in certain P-Record as communicative filtration work
ways to make it work: they have, I propose, and subsequently unpack the inherently
to perform filtration work. Although interactional practices involved in using
phrased differently, this also resonates with ICT. I do this from a dialogic perspective. A
how the designers originally envisioned common and basic feature of the multitude
P-Record as assisting, but not fully of approaches that label themselves
determining, “a process of formalization” ‘dialogic’ or ‘dialogism’ (e.g. Bakhtin, 1981,
of patient information (Andersen et al., 1986; Linell, 2001; Phillips, 2011) is the onto-
2010, adopting the concept from Berg, 1997) epistemological claim that human cognition
requiring that clinicians still perform a and interaction are dialogic in nature. For
translation and that patients are trained in the purpose of the following analysis, I focus
shaping information. on and adopt the most basic analytical figure
of dialogism, namely the claim that every
Filtration as Communicative Work utterance is defined by other-orientation
By directing analytical attention to the or addressivity (Bakhtin, 1986: 99), that
filtration work involved in the use of is, inherently targeted towards a receiver.
P-Record, I place the analysis within Producing an utterance thus involves the
a practice-oriented framework. I anticipation of its prospective interpretation
approach filtration as a socio-technical and continuation—in short, “what is going
and transformative process: a “subset of to follow” (Linell, 2001: 100). This claim, I
information and retrieval practices” (Leaver propose, resonates with and usefully sheds
et al., 2012, my emphasis), which further light on the use practices that went into

34
Karen Dam Nielsen

making P-Record work as a filtration device. supporting the flexible, situational and
As Maurer (2013: 65) puts it, filtration—or receiver-oriented record keeping practices,
sieving—“depends on a set of presumptions, which build on a shared, tacit organizational
a priori judgements or assessments of rationale rather than formal standards.
probabilities”. That is, filtration rests on When studying the use of ICTs that also
certain ontological assumptions. These include patients as information producers,
are both transformative and continuously I propose that a dialogic framework very
transformed by inference (Kockelman, precisely brings forth the challenges and
2013): we order our worlds based on our implications of coordinating information
assumptions—including assumptions filtration practices in the absence of a
about others’ assumptions—but our shared organizational rationale.
encounters with the world (and others)
provide for recurrent reinterpretations and Methods
new assumptions. We adjust ourselves
as filters, so to speak. I show how the The article is based on ethnographic
specific filtration work that the users of research conducted during a 3-month user
P-Record performed was based on dialogic test of P-Record. The user test involved 6
assumptions: it consisted of processes of patients and 6 clinicians at the outpatient
imagining the receiver, the interactional heart clinics of two Danish hospitals.
situation, and the response—and shaping During the user test, patients were to
ones entries accordingly. Filtration work, I prepare for and participate in three kinds of
suggest, is thus a dialogic endeavour. And as clinical encounters using the IT-system: a
a dialogic endeavour, filtration work entails remote follow-up of their ICD; an in-clinic
certain dynamics and ‘side-effects’ making ICD follow-up at the device clinic; and a
the use of P-Record a complex and, in some consultation at the local hospital’s heart
instances, quite problematic social practice. clinic. These activities together constitute
The dialogic approach largely resonates the existing distributed care scheme of ICD-
with studies in ethnomethodology and, patients. However, due to the timeframe
later, in CSCW that unpack the social of the user test, these activities were
dynamics of producing and sharing rescheduled to take place closer to each
medical information. In his seminal study other in time than normally. Throughout
of practices of keeping medical records, the user test, I acted as facilitator and
Garfinkel (1967) precisely demonstrates instructor. Patients were given instructions
how, in this case, doctors shape their entries in their homes. All parts of the system were
based on anticipations of the future readers’ demonstrated at the initial visits, although
interpretation and use and, recursively, read with an emphasis on the more extensive
entries in recognition of their occasional functionalities (the preparation form
rather than intrinsic meaning. In CSCW, this and medication list) linking to upcoming
insight has been a key to understanding the appointments in the clinics. The visits
challenges of digitalizing medical work. As also involved interviews with the patients.
demonstrated by for instance Heath & Luff Likewise, the system was demonstrated to
(1996) and later Berg & Goorman (1999), clinicians individually, however, in a briefer
digitalizing and, thereby, formalizing manner due to the limited time available in
medical records clashes with the social and the clinics and the knowledge of the system
contextual nature of medical information. that they had already gained through their
That is, ICT risks impeding rather than participation in the design process. During

35
Science & Technology Studies 2/2015

the user test, I accompanied the patients at generalized receiver. Proceeding from this
their visits to the clinics and had telephone observation, I propose that the patients’
and/or email contact with all patients on use of the system was characterized by
more occasions. By the end of the user test, addressivity (Bakthin, 1986; Linell, 2001):
all participants were interviewed about their entries were directed towards a
their experiences during the test. receiver with the anticipation of a response
By serving as both facilitator and and shaped accordingly. That is, in deciding
ethnographer, I took on a highly what to write, patients performed a dialogic
interventionist approach. To turn the assessment: they based their assessments
challenges of this approach into analytical of relevance on careful considerations
resources, I treat the user test of P-Record about whom they were writing to; what
as both the object of study and a heuristic the receivers might want; and what kind
device—a transformative filter, so to speak— of responses to expect. This dialogically
allowing me to gain understanding by oriented process of shaping entries proved
disruptively bringing about more nuanced a complex interpretative task of de-
data (Hasu & Miettinen, 2006) and engage scripting not only the system but also, and
with frictions (Zuiderent-Jerak & Jensen, especially, the context of use—that is, the
2007). As part of the following analysis, overall practices and infrastructures of care
I thus draw on the insights gained as I that make up the ‘real environment’ that
became a central knot in the infrastructure P-Record only vaguely describes (Akrich,
and interactions and, thereby, experienced 1992).
first-hand the dialogic dynamics involved in
the use of P-Record. Knowing the Receiver
The analysis is structured as a gradual During the user test, patients were
unfolding of these ‘dialogic dynamics’ by to prepare for three different clinical
following the flow of interactions between encounters. The preparation form was,
patients and clinicians as they took place however, generic; there was no technical
during the user test. In the first section, I shaping of the patients’ entries according to
show how patients made use and sense the different kinds of consultations. Instead,
of the tool as a way to address clinicians. the patients took on the work of filtering
Then, I show how clinicians perceived information for the different consultations
and responded to the patients’ entries. by trying to envision who would be at the
Finally, I turn to how patients perceived other end and what information this person
the clinicians’ reactions. At the end of each would want, also envisioning what actions
section, I discuss how the (dialogic) use could be taken. Therefore, the work of filling
practices can be understood as filtration out the preparation form first of all became
work. dependent on how clear the division of work
between different clinics and professionals
Writing to Someone was to the patients. Some patients were
well aware of the infrastructure, as the
The design of P-Record only vaguely participant Anne (a health professional
indicated the identity of the receiver of herself and long time ICD-patient) who
patients’ entries. However, a defining even knew, in details, about the distribution
feature of how the patients used the system of competencies among named clinicians in
was that they addressed their writings to the same unit. When filling out the first part
someone: either a specific receiver or a (‘general well-being’) of the preparation

36
Karen Dam Nielsen

form for remote ICD follow-up, she stated: division of work in the clinic. And in the
“is doing fairly well”, despite being troubled end, her interpretation of the infrastructure
by various symptoms on a daily basis. When of care seems to lead her to make a shift
I asked her about her choice of words, she in perception from regarding the clinical
said: encounter as the context of use to seeing
the user test as the context or purpose in
The problem is that is only our techni- relation to which she assesses the relevance
cians [who read it], right. They can’t… of her entry. As she explains when asked
it is only about the technical side of why she chose to raise the issue about the
the ICD, right. That is why I said to you neck vein after all:
on the phone: but who sees it? None of
the doctors do. They [the technicians] I think it was just as much because I
can’t go into all that, neither regard- had to write something [laughs] so that
ing my medicine or symptoms or how I we would have something when we got
have been feeling. (First interview with there [to the fi rst test consultation at the
Anne) clinic]. (Final interview with Anne)

Later, when preparing for the in-clinic For other patients, the distributed care
ICD follow-up, she writes that she is scheme and lack of a regular contact
experiencing nuisance in her right shoulder person among the clinicians caused
and neck caused by the device pressing on a greater uncertainty about who to address
vein. But she is in doubt about the relevance and, consequently, what would constitute
of raising this issue: relevant information. This was strikingly
evident for the participant, Ben, who to
It doesn’t help to talk to Mark about some extent had given up on understanding
it. Then I would have had to get an the infrastructure. Therefore, when filling
appointment with… then we should out the preparation forms for the three
have called in John [cardiologist]. But it different appointments, he did not address a
wasn’t that important, I think. […] If it specific receiver but wrote with a collective,
was a real system that was up and run- cross-institutional, and “typified” (Linell,
ning then we would have to talk about 2001: 103) receiver in mind—‘the doctors’—
it. But then I would probably have called although he had experienced this collective
them […] because usually when you’re as highly fragmented:
at the clinic for a reading then it is not
supposed to be a conversation with a Interviewer: And does it mean anything
doctor or a talk at all. (Final interview to you who will read it at the other end?
with Anne) Ben: I almost don’t care when it comes
to the doctors. [The local hospital] and
Anne here assesses the meaningfulness of [the device clinic] each have their own
raising the issue based on well-founded opinions, that is for sure.
assumptions about the receiver, considering (Final interview with Ben)
both if the receiver will be able to act on it
and if the severity should spark her to try Ben’s way of using the system shows, in an
to address another potential receiver by intricate way, how the directedness towards
other means. She thus pragmatically draws a receiver is both inevitable and highly
on her extensive knowledge about the challenging. He may not be addressing a

37
Science & Technology Studies 2/2015

specific receiver but he nonetheless writes distinctly, he used the system to navigate
from an experience that it does matter which in the complex infrastructure by directly
clinicians he is in contact with in terms of addressing me through the e-mail feature
which interpretations and decisions will (e.g. with questions regarding appointments
be made, that is, how his utterances will be outside the context of the project and by
filtered differently by different receivers. On forwarding referral letters asking me to
the one hand, his lack of knowledge about help make sense of them), thus making
the division of work between the different me, at times, the primary and only specific
clinicians meant that relevance became receiver. Ben this way, like Anne, partly
hard to assess and he repeatedly consulted shifted his orientation from the clinicians
me for advice on what to write. Even at the as receivers and the clinical encounters as
end of the test period, when filling out the the context of use to the researcher and the
preparation for a visit at the heart clinic, he research project—in his case, because the
was still very insecure about what to write, infrastructure remained incomprehensible
although he could now draw on experiences to him.
of what had proved relevant—or irrelevant—
to other clinicians at previous encounters: Anticipating the Answer
Besides considering who the receivers
Ben: ‘How have you been since the last might be and what they might want, the
time?’ Well, what should I say? What patients shaped their entries according to
should I write now? [...] I would like to reflections on what response they might
have a day monitor put on, now that I’m get and, more subtly, how they would be
working, to see the next 24 hours. perceived as senders and how they wished
Interviewer: You could write that as a to perceive themselves. For the participant,
question, for instance ‘Can I have a day Carl, these considerations all come together
blood pressure monitor put on?’ when he is filling out the preparation form
Ben: Yes, that’s what it said here [in the for the consultation at the heart clinic and
preparation form] the last time I was at together with me tries to establish what
[the device clinic], but as she [the doc- would be relevant to write. Carl takes into
tor] said, it was [the local hospital] who consideration the severity of certain health
handled that case. issues and relates it to his knowledge of the
(Extra visit and instruction with Ben) division of work between the cardiologist
and his GP. He has had a cough recently
Provided with a new means of contact but does not think that it is severe and
(P-Record), Ben also on his own initiative is therefore content with already having
attempted to bridge what he experienced discussed it with his GP—“it’s nothing to
as a gap in the infrastructure causing start ranking up”, he says. His assessment
him great anxiety. Requesting to have his of what is relevant to write is further
blood pressure measured over the course influenced by his overall experience of
of a working day—something he had illness: how certain symptoms become part
discussed with his GP—in his preparation of ‘the normal’ and how he is coping with
forms for his appointments at both the illness by insisting on a good general well-
heart clinic and at the device clinic can being:
be seen as a persistent attempt to make
the issue a shared responsibility across
institutional boundaries. And perhaps more

38
Karen Dam Nielsen

Interviewer: If what has characterized the system meaningful outside the realm
the situation the most is that you have of a research project; he is happy with the
felt short of breath, then you could write existing care scheme to which he complies.
that. For Carl, the very act of writing about
Carl: Well, yes, but they know that symptoms conflicted with his choice not to
because it has been like that for many focus on illness and, furthermore, sparked
years now. [...] the articulation of lifestyle issues at the
Interviewer: And then there is the consultation that he regarded as pointless
option to write five things, but you don’t and merely tiresome to address repeatedly.
have to write five things. Carl’s case thus points to a consideration
Carl: No, no, no, because I feel fi ne. that may be part of patients’ filtration of
But, well, there is just... when I bike information, namely the wish to minimize
or [walk] up the stairs then I pant the focus on disease. Carl’s way of assessing
a lot, right. That’s the only thing. relevant information when shaping his
Because otherwise I feel all right. entries mirrors his way of communicating
There’s nothing the matter with me. with clinicians in general and can be
(First visit and instruction with Carl) described as a balancing act between
providing the necessary information and
Later, when filling out the preparation keeping symptoms unarticulated—the
form himself before the consultation at goal of the balancing act being to cope
the heart clinic, Carl first states that he “is with illness in a way that minimizes its
doing fine” but when asked directly about overall impact in everyday life. He thus
symptoms, he ticks off almost all boxes: filters information with the prospective
shortness of breath; dizziness; swollen legs; continuation of the dialogue in mind—
palpitation; and fatigue. On the last page imaging not only who the receiver might be
of the online preparation form (questions and want, but also considering what kind
for the consultation), he repeats “shortness of conversation his entries will lead to and,
of breath”, “dizziness” and “swollen legs”. subsequently, how this will (negatively)
He later explains that he would not affect his overall coping with illness.
normally take these things up as he has For other patients, imagining what their
just conformed to them as conditions and entries would entail played out as attempts
only thought of them because P-Record to foresee more specifically what kind of
provided the keywords. This way he acts answers they might get from the clinicians.
according to the script of the system in Anne, who chose to raise the issue of a
the sense of being sparked to articulate nuisance around her neck vein caused by her
symptoms that he would normally remain device, anticipated that she would not get a
silent about—to adjust his usual filtration by response since the issue would be outside
letting more through. At the following visit, the scope of the receiving technician’s
the cardiologist asks about the symptoms competences. She also expected that there
and touches upon lifestyle issues. However, simply would not be time to respond for
Carl just comments and nods evasively the receiving clinicians in the device clinic
and disinterested and afterwards states since “they already have plenty of work
that he knows all this, they have talked with all that remote monitoring” and using
about it before, but he prefers to continue P-Record would “take a lot more resources”.
his lifestyle and just enjoy whatever time Besides drawing on these assumptions
he has left. He adds that he would not find about the conditions of work in the clinic,

39
Science & Technology Studies 2/2015

she furthermore based her anticipation of I can’t talk to them in connection with
response on an assessment of severity; that the preparation for [remote device con-
is, if a certain issue would be considered trol] so I wrote generally. [...] When I
topical and serious enough by the clinicians thought about, okay the third of Decem-
to be acted upon. In a circular way, she links ber I am going there [to the clinic], then
her assessment of what the clinicians may it was important to include other things,
regard as serious to the choice of media: symptoms and so on. (Final interview
using P-record to raise a certain issue may with Anne)
in itself indicate to clinicians that it is not
something they need to respond to. As she For her, the potential lies in the hope that
says: providing more information will lead to
a richer (face-to-face) conversation. This
If I can be content with sending a mes- goes for the patient, Louis, as well. At first
sage then it’s not that serious, you know, glance, he seemed to do ‘less’ filtration
then it’s not something they have to act work compared to the other patients who all
on here and now. Because if it was seri- wrote in a very concise manner. Louis wrote
ous then I would get on the phone and extensively in both the preparation form
call them or I would rush off [by ambu- and in the logbook5 and, in the eyes of the
lance]. (Final interview with Anne) clinicians, really ”opened the floodgates”
with entries like this:
Finally, Anne takes into account that the
issue may not be ‘actionable’ (Andersen et I continue with dizziness and general
al., 2014) at all. That is, the answer she has fatigue, which sometime gets really bad,
been given so far is that nothing can be done other days is okay. I have arrhythmias
about it. This adds to her anticipation that many times a day, especially when I
raising the issue of her neck vein will not rest. Haven’t experienced it while I walk
spark an answer in the hoped-for-sense— or anything else. The legs are always
that is, some kind of clinical action that will weak and of course with great differ-
solve the problem—and thus not be worth ence in temperature. The right leg feels
the effort. numb sometimes. That may also be due
to the lack of vitamin D since I stopped
Experimenting with Dialogue taking them in December. (Louis’ log-
In her writings and deliberations, Anne book, symptom note)
is constantly torn between pragmatic
expectations and a wish to experiment He did, however, still perform a selection of
as a participant in a user test. Contrary information, only, he regarded the system
to the script of the system as a means to as a chance to open rather than narrow
‘open the scope of information’ in relation the scope and provide the information that
to remote monitoring especially, Anne he was afraid was missed in the existing
chooses to write more extensively to the in- care scheme. Like for other patients, the
clinic follow-up. Imagining the interactive distributed and technologically dense
situation, she concludes that if she is to character of ICD-care made Louis feel that
write something in P-Record it will make no one saw the full picture of his condition
more sense for her to provide information and treatment and that crucial information
when it can actually become the basis of a was lost. In his case, the infrastructure was
conversation: complicated by his participation in a clinical

40
Karen Dam Nielsen

research project where he underwent narrowing down and formalizing patients’


additional in-clinic device follow-ups as narratives. However, most of the patients
well as various blood tests, measurements, pre-empted the focusing questions by
and scans. Although he could be said to deeming most of what could be written
be under closer surveillance through the as irrelevant and writing in a concise and
project, all the extra data produced only brief style in all parts of the preparation
caused frustration and uncertainty since he form. Rather than being restricted in
experienced that they were neither shared their writings by pre-set limitations of the
with him nor with the clinicians responsible system, they seemed to restrict themselves
for his treatment. On this ground, Louis’ according to their assumptions about the
extensive writings—together with his receiver, interactive situation and possible
persistent suggestions to add a file-sharing outcome. The patients’ writings (even
feature for test results to the system—can the more extensive ones) were shaped
be seen as his attempt to mend a severely through communicative work based on
flawed information infrastructure. Thus, an understanding of P-Record as a tool
he does undertake filtration work by trying for opening a dialogue rather than ‘pure’
to assess the value of the information he information sharing. The information they
gives and, reversely, the risk of leaving out provided was a product of receiver-oriented
information. He writes from the hope of filtration work, instigated, partly supported,
receiving better answers by providing more but far from ‘automatically’ performed, by
information but is at the same time rather the device.
pessimistic, worrying that the clinicians will
tell him that they “don’t want to hear that Receiving and Responding
story anymore”.
To Louis, the system provides, if not So how did the clinicians use and value
a promise of resolving his uncertainties, the information given, and how did they
then a chance to make the clinicians take respond? The clinicians’ performance as
on responsibility and sort out his concerns. receivers and responders can be understood
Like Anne, Louis chose to experiment, as an enactment of their descriptions of
testing new possible questions and P-Record as a filtration device, as well as
responses in the clinical encounter. They their ‘responsive attitudes’ (Linell, 2001:
both raised more issues than they actually 104).
anticipated a response or reaction to and
thus did not just interpret the context of use P-record as a Filter (and Receiver) in
in light of existing practices, but also tried Itself?
to push the receivers towards new practices At the local hospital the cardiologists
by addressing them in new ways and with attempted to use the system to focus
otherwise neglected issues. the face-to-face consultations and thus
valuated the patients’ entries accordingly.
Addressivity as Filtration Work In some cases, they perceived the entries
A main intention with P-Record can be as containing surplus information but
described as to ‘lure out information’ in were satisfied with the way the system then
a strictly focused manner. The work of allowed them to screen this out and “get to
filtering information was to some extend the point”. In other cases, they perceived
built into the system with the structure of the patients’ entries as a satisfying way of
the preparation form aimed at gradually getting the information that they need but

41
Science & Technology Studies 2/2015

often have to work hard to obtain from Peter: But it’s fi ne that you are doing
some patients. One of the cardiologists well, but still, now we can adjust the
summarized the value of the system as a details a bit, right.
means to both opening up and narrowing Carl: Well, I just thought that I’m so
the scope this way: used to being short of breath so you just
cope, right.
You could use it both ways, really. To (Transcript, Carl’s visit to the local
get the swarm of thoughts that occu- hospital)
pies some patients under control, where
it just pours out of them. And then The other case, initially referred to, is
with this guy [the patient Carl] it was Louis, who wrote extensive entries in an
more the case that if you ask [then he attempt to ensure the articulation of crucial
answers] ‘it’s going well’ and [you say] information and to push the clinicians to
‘okay, then we don’t have anything else provide the answers and actions needed to
to talk about’. He would be the kind of reduce his anxieties. At the consultation, the
guy who then comes home and the wife cardiologist only took up a few of the issues
asks ‘why didn’t you ask about all these that Louis had raised in the preparation
things’ or where it pops into his own form and later described Louis’ entries as
mind ‘oh, maybe I should have asked “very unstructured with these novel-like
about something’. (Final interview with or diary-like entries that I can’t live up to”,
Peter, cardiologist) also referring to them as “solemn phrases”.
Despite his critical attitude towards Louis’
Two cases lie behind this statement. One of writing style, or exactly because of this,
them is Carl, who, provided with keywords he thought the system proved useful in
in the preparation form, articulated more the situation by allowing him to “control
symptoms than he normally would do at a the contact” by quickly screening the
face-to-face encounter. When evaluating information given and avoid its articulation
the system later on, the cardiologist in the brief consultation, thereby perceiving
highlights Carl’s case as an example of the P-Record as facilitating a win-win-situation:
potential value of the system as it allowed
him to get information about symptoms He had kind of got it out. […] Then it
that he would normally have a hard time was like he knew that I knew a whole
getting Carl to talk about—a ‘success’ that lot, which we then didn’t have to sit and
the cardiologist also tries to share with Carl start all over on. So this way I actually
at the consultation: think that the patient is allowed to get
rid of it and I’m allowed to hear it with-
Peter: Do you have anything else on out it taking up too much space. Then
your mind? they get what they need and I get what
Carl: No, cause I feel fi ne. I need. I need something more struc-
Peter: Yes, but that’s kind of funny tured and concise. […] If he should sit
because I can see that you write that and present a bigger dramatic contribu-
you are feeling fi ne but then there was tion in the consultation then it would
something about being short of breath come between us. (Final interview with
and there was something about water in Peter, cardiologist)
your legs.
Carl: Well, yeah… The cases illustrate how the cardiologists
seemed to consider the system, at best, as

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Karen Dam Nielsen

a filter that allowed them the information Or if the patient writes ‘I’ve had extra
they needed to respond to the patients’ heart beats’ or something like that, then
heart conditions and not their general it can be related to the arrhythmia. So
concerns. They further seemed to perceive in that sense it does matter to me, right.
the system as an adequate receiver in itself: Interviewer: But is it then something
that patients would feel good just getting you have to act on now when she writes
something off their chest by writing about about feeling a pain around her neck
it and that the clinicians then would not vein? [...] Is that something you would
have to spend time on responding to (for normally decide on?
them) irrelevant matters. The cardiologists Mark: No, because she has made a
thus regarded P-Record as a filtration transmission (remote transfer of ICD
device able to remedy existing problematic data). Now, it’s just that she writes…
filtration practices and assist them in their Well, I would write a message to her ‘if
own filtration work. As such, P-Record the swelling and pain around the neck
succeeded in the concrete cases, yet, it did vein continues you should contact us’.
so by also rendering the patients’ filtration That’s what I would write. [...] Yeah…
work ‘functionally invisible’ (Star & Strauss, but… should we write something to her?
1999) and thereby masking the dialogic (Transcript, remote follow-up of Anne’s
imaginations—or expectations—entailed. ICD in the device clinic with Mark)
However, the cardiologists did worry that,
at worst, they “would actually be tested in However, by being able to write a message
if (they) had read and understood it all” by saying “call if the problem continues”, Mark
the patients, whereby the system would fail was also relieved from responsibility for
as a filter. further reaction, as he could pass this on
to the patient. For Mark, passing on the
Shifting Responsibility responsibility for reaction became a way to
At the device clinic, the participating ‘filter’ the patients’ concerns one more time.
technician, Mark, differed from the This filtration both served to help him in
cardiologists in his responsive attitude, his medical decision-making, based on the
being eager to provide an answer although rationale ‘if it is really important they will
this was no straightforward task. The system call’ (as illustrated by Anne’s case), and to
meant that some patients would raise save time:
concerns that seemed to exceed the kind
of medical analysis and decision-making Mark: You can communicate quickly
normally included in his job. This caused [with P-Record]. Right now we have a
insecurity in relation to answering, as in the problem with a patient who does not
case of his remote follow-up of Anne where answer his phone. Then you spend a lot
I accompany him: of time calling the patient again and
again. If he had this system then we
Interviewer: What she has written in the could have said “please just call us”,
preparation (form) – isn’t that relevant right. [...] So you can say, it’s up to the
for you? patients [who] also have certain obliga-
Mark: Well, yes, but she’s feeling all tions themselves. It’s their disease; it’s
right… If she writes ‘my legs are swollen’ not ours. If they had this [P-Record] and
then I have to get a doctor and say ‘look something came up then they would
here, you have to write to this patient’. have to go in and tell us if there has

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Science & Technology Studies 2/2015

been anything. [...] But he hasn’t con- Continuation of the Dialogue


tacted us, the guy from yesterday, so he
can’t be doing that bad. In their evaluations of the clinicians’
(Final interview with Mark) responses, the patients were torn between
pragmatics and disappointment. I suggest
Filtering to Manage the Dialogue that this links back to how their filtration
As a filtration device, P-Record successfully work rested on addressivity and thus
assisted both the cardiologist and the entailed drawing on previous experiences
technician in managing responsibility “in of what one can expect (or not) from
a field riddled with uncertainty” (Jerak- certain clinicians and a basic expectation
Zuiderent, 2012: 738). For the cardiologists, of response inherent to the opening of a
P-Record lived up to their expectations as it dialogue.
supported them in their efforts to respond
only to issues within their specialization. Realism, Hope and Disappointment
The cardiologists seemed to perceive Although presented with a system that
P-Record as a more or less ‘automatized’ seemed to promise an improvement of
filtration device, not recognising the communication both ways, several patients
filtration work done by patients (and its indicated that they, for various reasons, did
implications) as a crucial part of making not really anticipate an answer after all, as
the system work (or not). On the contrary, illustrated earlier and especially clear in the
the cardiologists evaluated the system in case of Anne. Besides her awareness of the
terms of how well it succeeded in filtering constant lack of time in the clinics and the
the patients’ narratives, thereby supporting limitations of the receiver’s ability to act, she
them in obtaining just the right amount of also recognised the issue of her neck vein as
information to inform clinical decision- simply unsolvable. This realism led to rather
making and “control the interaction”. As a low expectations in the concrete situation
filtration device, P-Record also proved a and she evaluated the answer she was given
valuable tool in the work of the technician accordingly:
in his ‘frontline’, experimental attempts to
sort urgency from non-urgency and restrict Interviewer: Then Mark wrote to you
access to specialists—to “act while trying after the remote reading?
to know” (Jerak-Zuiderent, 2012: 742). Anne: Yeah, he sent this [reads out loud
In assisting him in filtering information, from the screen]: ‘Your transmission
P-Record also became a means for filtering has been read, everything found okay.
access to the clinic, as he could use the If swelling and soreness are persistent,
system to push the interactive initiative back please contact us’. But he can’t do any-
to the patients and to another medium: the thing about it.
telephone. This way P-Record became an Interviewer: No. So what do think of an
additional layer in the existing filtration of answer like this?
the contact between home and clinic, and Anne: Then I say, well, they know and
although not an explicit design intention, what are they going to do about it.
the system then came to hold another (Final interview with Anne)
common e-health script as an ‘access filter’
(e.g. Moreno-Ramirez et al., 2005). Being realistic, in the sense of
understanding and taking into account
pre-existing realities, like the infrastructure,

44
Karen Dam Nielsen

the qualifications and attitudes of specific cardiologist did address Ben’s request for a
clinicians, and medical circumstances, 24-hour blood pressure monitor but simply
to some extent seemed to minimize did not agree with it. He also browsed
disappointment. As I have shown, the through Ben’s medication list6, suggesting
patients who took these realities into a few adjustments, but not addressing the
account seemed better able to address the issue of the over-the-counter drug that Ben
clinicians in a manner that the clinicians had listed with a question mark. The fact
appreciated: they wrote in a concise that the action he requested was not taken
manner and held what turned out to be a and the issue of medication not explicitly
realistic vision of what outcome to expect. In addressed left Ben with a feeling that his
contrast, Louis and Ben, both relatively new preparations had been useless. For Ben,
ICD-patients with little experience of the P-Record did not facilitate a more coherent
‘realities’ and an urgent need for contact, dialogue across institutional borders, as
wrote extensively and without a specific he had hoped for, and it did not lead to
(named) receiver in mind hoping to spark a the hoped-for action, thereby in sum not
reaction from the collective of clinicians or reducing his concern that no one was taking
‘push realities’, but with little effect. responsibility for his overall situation.
However, all patients did on some level For others, disappointment seemed
expect an answer and expressed being more about not feeling heard at all. Having
discouraged by the (lack of ) response written extensively in the preparation for
given. As Anne states, despite her pragmatic his consultation at the local hospital, Louis
attitude and awareness of the “realities”: was hugely disappointed with the verbal
response he got from the cardiologist as
I would like to use it [P-Record] but then expressed in his later imitation of how the
I want some response to what I have cardiologist, only looking at the screen,
written. If I ask some questions or have quickly browsed through and, subsequently,
some problems in relation to my heart disregarded the issues Louis had raised:
condition or my ICD then I want either
time in the clinic or a response from Maybe it is easier for the doctor himself
them. That requires that the staff will to have this little system […] then it is
do this seriously. (Final interview with much easier for them to say, ‘okay, bla-
Anne) bla-bla-bla-bla’. […] I looked forward
to this consultation [but] it was more
For some, the disappointment first of all like an IT-consultation, as I call it. […] I
seemed to be caused by the response not call it an IT-consultation when a doctor
entailing the hoped-for action, as in the doesn’t bother to listen and he just sits
case of Ben, who in his preparation for in front of you and says ‘okay, so and so
his consultations at both the device clinic and so’. (Final interview with Louis)
and the local hospital had asked for a 24-
hour blood pressure monitor and asked Clearly, Louis did not support the
for advice regarding an over-the-counter cardiologist’s appraisal of P-Record as
drug. At the device clinic, the technician allowing both patient and clinicians “to
and accompanying cardiologist did not get what they want”. To Louis, just “getting
explicitly take up any of the issues and only something off his chest” without subsequent
gave a brief answer when Ben asked directly, articulation during the consultation was far
saying that these were matters for the local from satisfying.
hospital to handle. At the local hospital, the

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Science & Technology Studies 2/2015

Filtering to Open Up (a Better) Dialogue it would simply not be meaningful to make


Louis’ and Ben’s cases point to a central the extra effort of using P-Record. On this
ambiguity related to the quest for answer measure, the system failed in most cases.
entailed by their dialogic filtration First of all, it only seemed to reproduce
work; namely, what actually constitutes the lack of coherency often associated
an answer? The users’ perceptions of with distributed care as it still left it up to
this ranged from the idea held by the the patients to try to bridge institutional
cardiologists that the shear reading of a gaps and address the appropriate receiver.
patient’s entries somehow makes up a And secondly, P-Record delegated greater
response, or at least a satisfactory reception, responsibility to patients for keeping track
to the request by some patients that concrete of their condition and treatment without a
clinical actions should be taken in order for clear (interactive) goal. The importance of
them to feel that their entries had sparked writing to someone and receiving a response
a true reaction. In between these two simply meant that patients did not support
extremes was a blurred terrain of different the assumption that users would write for
kinds of verbal or written answers that their own sake—an assumption expressed
seemed to constitute relatively satisfactory by some clinicians and part of the design
answers for patients with low expectations script, especially the logbook function.
and for others were so insufficient that they Even here, the patients wrote with a receiver
felt no response had really been given. in mind and with the expectation that
However, across this range of acceptable the clinicians would at least attend to the
and unacceptable answers ran a common contents. As Ben put it:
expectation among the patients, namely
that of a particular kind of responsible [When writing in the logbook] I had
receiver. The patients’ primary concern in mind that the hospital would see it,
was whether or not there would be one keep an eye on it. Or when I am called
permanent contact person ‘at the other end’ in [for consultation], then they would
of P-Record who would take their entire just have a look. Now afterwards I don’t
medical situation into consideration and know how much they actually looked at
be obliged to follow up and make things it. The doctor I saw he was not interested
happen, which also links to the inherently in anything. So if you were to [imple-
easier task of addressing a specific or even ment it] then I would hope that they
well-known receiver. As Louis says: have a look and read it, just like your
medical record. (Final interview with
There has to be more consistency: that Ben)
the doctor who is to use this system
also is the one following you over the By insisting on an interactive use practice,
course of several years. Because being a Ben and the other patients can be said to
heart patient is not like having a disease resist central presumptions and ideals in
that stops right now. I won’t be cured the self-care discourse that guides many
tomorrow and that part of the heart that e-health designs, including P-Record.
doesn’t function will never function
again. (Final interview with Louis) Concluding Discussion

In short, without an explicitly responsive In the analysis, I have showed how patients
and responsible receiver at the other end sought to fulfil their roles as information

46
Karen Dam Nielsen

providers by conducting dialogic as a tool for managing a dialogue, with


assessments of relevance. They shaped filtration of information serving this
their entries as contributions to a dialogue purpose. In contrast, patients seemed to
in the anticipation of response. Although perceive P-Record as opening a dialogue—
this dialogic filtration work performed whether this presented as either a hopeful
by patients, to some extent, made the expectation or a negative anticipation.
system work as a filter, it also posed crucial This difference might be conceptualized
challenges and paradoxically carried the as an overall difference in communicative
seeds of the system’s failure. projects (Linell, 2001: 224) between patients
First, dialogic filtration work was not an and clinicians—or, in the terminology
easy task: shaping one’s entries required of Garfinkel (1967: 205), as different
certain skills and knowledge. The patients’ “interpretation schemes”. Designing and
entries must themselves be understood as implementing e-health requires careful
responses—as continuations of a dialogue considerations about which communicative
opened by the system. However, it was projects a certain system is to support and
unclear who the ‘sender’ of the system an awareness of potential conflict between
was and thus the interlocutor one was in these projects. In the case of P-Record,
dialogue with. Patients solely had to draw while the system performed fairly well as
on their experience with and knowledge a filtration device allowing clinicians to
about the infrastructure of care. Despite manage the dialogue, for most patients it
this being an explicit design ambition, the did not perform well as a means to reach
system in itself did not “support patients’ a responsive and responsible receiver.
invisible work of bridging inter-institutional From a design-oriented perspective, the
care” (Andersen et al., 2011b). case thereby points to a crucial need for
Second, undertaking dialogic filtration unfolding, negotiating and adjusting
work entailed expectations of response. communicative projects of various users.
However, a vast difference between Importantly, communicative projects are
patients’ and clinicians’ perceptions of not stabile, but shaped by their mediators
what constituted a satisfactory response (the filtration devices) just as they also
became evident. The cardiologists, in shape the use of these. As dynamic socio-
particular, acted more as passive receivers technical assemblages, users’ experiences,
than “implied responders”—the role that communicative projects, and devices
the patients “casted them in” (Linell, together make up the dynamic filters
2001: 104). The patients could, by and of e-health—dynamic, since the ‘filter’
large, be said to experience the clinicians’ is constantly adjusted “in the repeated
responsive attitudes as either resulting in iteration between (the filter) and the world,
a discontinuation of the dialogue or, in the expectation being revised each time”
a single case, leading the dialogue in an (Maurer, 2013: 66). When designing filtration
unwanted direction. In either case, this devices, a central challenge therefore lies in
ultimately made using the system pointless how to support this continuous adjustment
to the patients. of expectations.
The differences in expectations and While unfolding, negotiating and
attitudes between patients and clinicians adjusting communicative projects of
link back to their differing descriptions users of e-health is by no means an easy
of P-Record as a filtration device. For feat, I suggest that a recognition of and
clinicians, P-Record showed potential engagement with the dialogical properties

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Science & Technology Studies 2/2015

of the filtration work involved in the use also generative: they create overflows, for
of e-health is at least a place to start. I instance (unmet) expectations. This seems
propose that an ‘analytical filtration device’ inevitable, and when invoking ‘filtration
combining dialogism and studies of work’ as an analytical tool in relation to
invisible work can generate insights into the e-health, it is important to not just treat
participatory role as information providers the differing communicative projects and
that patients are given with e-health and expectations resulting from and guiding
into the implications it has for both patients the use of filtration devices as barriers
and professionals and, ultimately, for the to overcome in and by design. Rather,
organization of healthcare. Often framed they point to and should be addressed
as levellers of participation, e-health through broader discussions about how
technologies—and other participatory modern healthcare can accommodate
devices (Marres, 2012)—both entail and (itself to) patient participation, with all the
partly conceal substantial work by its users, work and overflows it implies. I suggest
as has also been pointed out by other studies. that STS-scholars may contribute to
I suggest that filtration work is an important, such discussions by experimenting with
but until now unrecognized, part of this and, thereby, learning about what ‘good
invisible work of patient participation, and filtration’ between patients and clinicians
that inquiring deeper into what it means to might entail. Moreover, and as a conceptual
be a participant can be done by unfolding its and methodological addition to CSCW-
dialogic workings and implications. While studies of information work (e.g. Health
dialogic filtration work is also part of face- & Luff, 1996; Berg & Goorman, 1999),
to-face clinical encounters, the introduction ‘experimenting with filtration’ may also
of e-health seems to have the potential to bring forth new insights in other contexts—
complicate rather than to support this work, in healthcare and beyond—where the
at least from a patient perspective, partly as production and sharing of information
processes of adjusting the filter—and the undergoes (digital) formalization.
dialogue—are inhibited and/or concealed.
This stresses the importance of also looking Acknowledgements
into how filtration work closely relates to the
materiality of specific filtration devices— The author would like to thank the
without ever being fully determined by it. patients and clinicians who took part
In the case of P-Record, a rather ambiguous in this study. She owes great thanks to
script meant that especially patients were Henriette Langstrup for discussions and
poorly supported in their filtration work, comments throughout the writing process
with Ben as vivid example. Yet, a clearer and Jeannette Pols for inspiration and
script might have posed other challenges. feedback on early drafts. Furthermore, she
Relations and practices of filtration (note is grateful for the very helpful comments
the verb form) are the key here: if we and suggestions provided by the two
think of filtration devices as ‘filters in anonymous reviewers.
themselves’ we overlook or even mask
the skills, knowledge, and motivations
that go into and result from making them
work. Furthermore, looking at filtration
illuminates how filters (as socio-technical
practices) are not just transformative, but

48
Karen Dam Nielsen

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Zuiderent-Jerak T & Jensen CB (2007) 4 The term ‘filter’ relates closely to such
Editorial Introduction: Unpacking terms as ‘sorting’, ‘sieving’, ‘retrieving’
“Inter vention” in Science and and ‘selecting’. I use the term ‘filter’
Technology Studies. Science as Culture because it is already commonly
16(3): 227–235. used in relation to information and
communication technology and thus
Notes constitutes a ‘native’ metaphor. I use
both the noun and verb form in order to
1 I use the term e-health to denote capture the tension between perceived
various patient-involving information automatized ‘filters’ and the practices
and communication technologies. involved in making them function as
2 P-Record was designed through a such.
collaborative research project, CITH 5 In the logbook patients could write free
– Co-constructing IT and Healtcare text categorized as either diary, note of
(www.cith.dk). The project resulted in symptoms, or illness history. This part of
a prototype that was then technically the system was not explicitly associated
implemented by a software company. with upcoming appointments but the
The name ‘P-Record’ is constructed for entries would, nonetheless, be visible
the purpose of this article as a common to clinicians.
denominator for the prototypes and 6 In the medication list feature, patients
the implemented system. Although could create an overview of their
this conceals important differences medication and enter information
between the various iterations, these about doses, side effects, and date of
are not the subject of analysis here and prescription.
a common denominator is chosen to
avoid unnecessary confusion. Karen Dam Nielsen, PhD, Postdoc
3 Contrary to the often noted Section for Human-Centred Computing
performative role of expectations in Department of Computer Science,
innovation processes (Borup et al., University of Copenhagen
2006), the case of P-Record is a story of Njalsgade 128-132, DK-2300 Copenhagen S,
the simultanous fuelling and ‘failure of Denmark
expectations’ (Brown & Michael, 2003). kani@di.ku.dk

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Science & Technology Studies 2/2015

Money, Money, Money?


Politico-Moral Discourses of Stem Cell Research
in a Grant Allocation Process
Shai Mulinari, Tora Holmberg & Malin Ideland

Concerns have been raised about the marketization of science through the prevailing
funding regime. However, the present article will discuss how it comes that the
potentially marketable stem cell science is not more commercialized than what is
currently the case. We approach this question by analysing discursive pluralism in
defining the value of stem cells within a grant allocation process. More specifically,
we focus on how the commercial imperative is challenged by other cherished values
surrounding stem cell research. The case study used to discuss this is the Swedish
Government’s funding of stem cell research within so-called strategic research
programmes. The analysis focuses on the co-existence of what we refer to as
entrepreneurial, translational and basic research politico-moral discourses. How the
co-existence of politico-moral discourses is possible, despite potential tensions,
is investigated by drawing on the theoretical framework of bio-objectification.
Specifically, we highlight how the relationship between various bio-identities and
values was reorganized along the research grant allocation trajectory. We argue
that there are obvious signs of temporally specific discursive shifts away from the
commercial imperative in the grant allocation process. This suggests the need to
study located processes, in order to understand the work of politico-moral discourses
in the grant allocation process. This work contributes to an understanding of the
uneven and varied impact of neoliberal policies on biomedicine.

Keywords: Stem cell, neo-liberalization of science, politico-moral discourse, bio-object,


bio-identity

Introduction: and adult organism. A great collective


The Non-Commercialization biomedical research effort is underway
of Stem Cell Research to elucidate if and how these cells can be
mobilized to regenerate damaged tissue,
Stem cells are undifferentiated cells with the which is a common denominator in a wide
potential to develop into more mature cell- array of human diseases. However, looking
types (i.e. differentiation) and the capacity more broadly in society, stem cells carry
to produce new stem cells (i.e. self-renewal). various meanings and identities, depending
Stem cells exist both in the embryo on when and where they figure: as threats

53
Science & Technology Studies 2015, Vol. 28(2) 53-72
Science & Technology Studies 2/2015

to the dignity of human life; as intriguing To approach the question of why there
objects of science; as promises for new are not more successful commercial stem
therapies for severely ill patients; and lately, cell-based therapies than is currently the
as connected to and drivers of economic case, the present article analyzes discursive
growth. While much work on stem cells pluralism in defining the value of stem
within the field of Science and Technology cells – as a broad category that includes
Studies (STS) has engaged with moral and human or non-human stem cells in an
religious contestations (Salter & Salter, embryonic or non-embryonic state – within
2007), circulation and space (Wainwright & a grant allocation process and discusses
Williams, 2008), standardization (Eriksson its potential effects. More specifically, we
& Webster, 2008), expectations (Martin et focus on how the commercial imperative
al., 2008), governance (Gottweis et al., 2009), is challenged by other cherished values
and commercialization (Plagnol et al., 2009; surrounding stem cell research and how
Martin et al., 2006; Webster, 2013), there this can be understood as a process of “bio-
is a paucity of studies of national attempts objectification” within certain political and
to foster the growth of business through moral economies.
commercialization of academic stem cell To this end, we draw on STS research
research (however, see Salter & Salter, concerned with the changing relations
2010). Yet policy arguments in support between universities, the state and industry
of academic stem cell research often use in general (Gibbons, 1994; Etzkowitz &
commercial benefit and job creation as a Leydesdorff, 1997; Slaughter & Rhoades,
key justification for permissive policies and 2004) and with the commercialization of
increased government funding despite the the life sciences in particular (Sismondo,
great uncertainties associated with such 2010: 189–195; Rose, 2007). This research
projections (Bubela et al., 2010; Caulfield, has explored how states have developed
2010). Indeed, Gottweis et al. (2009: 23) an assemblage of new techniques of
contend that: government and governance to foster
commercial techno-scientific innovations,
State interests in stem cell research including novel funding mechanisms and
is […] economically driven in a broad priorities, increased venture capital influx
sense, with population health and ben- into high-tech sectors and establishment
efits and clinical applications assigned of technology-transfer offices (TTOs) at
a secondary consideration. universities. In fact, as noted by Cerny (1997:
251) 15 years ago, rather than a predicted
They argue that states are not only decline in state interventions in name of
active in securing funding for stem cell de-regulation, we are facing “the actual
research, but are vigorously promoting expansion of […] state intervention and
its commercialization by orchestrating regulation in the name of competitiveness
policies aimed at bringing universities and and marketization”.
businesses in closer proximity, including For academic researchers working in
favourable intellectual property (IP) fields with prospects for innovation, the
regimes, and by guaranteeing the influx tendential emergence of a new pattern of
of venture capital into the field. Still, at state intervention has meant that these
present, there are very few effective stem- researchers have increasingly been cast
cell-based therapies commercially available as “state-subsidized entrepreneurs”. Their
(Daley, 2012). chief task is to develop commercially

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Shai Mulinari, Tora Holmberg & Malin Ideland

viable products or services that can boost also to appreciate that this does not involve
economic growth and employment in the a one-sided power relation. Rather, other
private sector as well as offer solutions to actors will be varyingly able to limit or resist
pressing societal problems, including those commercialization and to steer economic
related to health (Slaughter & Rhoades, activities by imposing their own priorities
2004). and modes of calculation.
Lave et al. (2010) frame this changing In the following, we study the uneven
university-state-industry relation and the and varied impact of neoliberal policies
commercialization imperative against the on biomedicine. In order to do this, we
background of the broad global movement depart from a case study: the Swedish
towards neoliberalism that began in the Government’s funding of stem cell
1980s. A central tenet in this particular research within so-called strategic research
strand of STS work is that the rise of programmes. The national context is
neoliberalism has led to major changes thus unmistakably Swedish. However,
in scientific practice, management and although the regulatory heritage of national
contents, i.e. that “neoliberal political- institutions and policies is important to
economic relations beyond academia shape acknowledge, the overall political and
what happens within it” (Lave et al., 2010: scientific context is shared with a number of
664). European countries (Gottweis et al., 2009),
Concerns about the impact of neoliberal and likely with countries outside Europe as
policies on science in general and well (Salter, 2008). In sum, by investigating
biomedicine in particular have spawned a discourses of stem cell research in a grant
series of case studies, including work on the allocation process, we aim to contribute to
commodification of biomedical knowledge the burgeoning STS literature on neoliberal
(Sunder Rajan, 2006; Rose, 2007) and governance of science.
corporate influence over the generation The article begins by outlining the
(Mirowski & Van Horn, 2005), publishing theoretical frame, in which the concepts
(Sismondo, 2009) and dissemination of of politico-moral discourses and bio-
biomedical knowledge (Mulinari, 2013). objectification are delineated. The
Notwithstanding the importance of subsequent section describes the empirical
these and other studies highlighting the material and the method used. Looking
impact of neoliberal policies on science, it through the lenses of politico-moral
is apparent that the effects of such policies discourses and bio-objectification, we then
are not uniform but rather uneven, partial define the predominant discourses that are
and sometimes even contradictory at both competing for defining the value of stem
the global and local level (Tuunainen & cell research, before analysing how these
Knuuttila, 2009; Sanders & Miller, 2010; discourses operated during the allocation
Moore et al., 2011). We therefore need more of public grants to Swedish stem cell
explorations of how these policies fail to research. Finally, consequences for evolving
align technoscience with the perceived understandings of the uneven and varied
needs of business, including charting the impact of neoliberal policies on stem cell
forms of resistance that the commercial research are discussed.
imperative encounters. This resonates with
Jessop (2002), who urges scholars to be
attentive to the increasing dominance of
capital in social spheres like science, but

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Science & Technology Studies 2/2015

Theoretical Frame: Politico-Moral upheld by moral or thought collectives


Discourses and Bio-Objectification and are “integral to science: to its source of
inspiration, its choice of subject matters and
Our conceptual frame for approaching procedures, its shifting evidence, and its
neoliberal science policies in regard to stem standards of explanation” (Daston, 1995: 6).
cell research consists of the twin concepts of Such moral economies are highly
political and moral economies of science, resilient to pressure from the surrounding
on the one hand, and bio-objects and bio- societal milieu, but they can evolve over
identity, on the other. time. In our understanding, however, the
We frame the neoliberal governance of political and moral economies of science
science, as discussed above, in terms of cannot be separated other than analytically.
political economy. This concept denotes Thus the distribution of funding,
how states organize the production, construction of policies, and the values
distribution and consumption of wealth of scientific knowledge production are
(Jessop, 2002). Following from this intimately connected, as has been pointed
definition, the “political economy of out in numerous studies (see for example:
science” has been used to designate the Braun, 1998; Mirowski & Sent, 2002).
production, distribution and consumption In an attempt to synthesize the concepts
of scientific knowledge and artefacts, as well of political and moral economies, Pestre
as the policies developed to orchestrate this (2005) introduces the concept of “cités de
production, distribution and consumption justices” – or common worlds of moral and
(Sismondo, 2010). As a corollary to this political economies – and categorizes a
usage, the political economy of stem number of such common worlds that work
cell research can be construed as the side by side in contemporary life science.
production, distribution and consumption As Pestre, we are concerned with how the
of stem cell research, including the role plurality of political and moral economies is
that stem-cell-based products or services upheld in research – in our case, stem cell
play, or are considered to play, in national research – despite the growing emphasis
economies and the related policies and on the commercialization of knowledge.
agendas. Closely tied to the term political We do this by looking through the lens
economy of science is the concept of moral of “bio-objectification” (Vermeulen et
economy of science. In the literature, at al., 2012). The term “bio-object” refers to
least two definitions of moral economy of new contested forms of life – for example,
science are found. One focuses on moral transgenic animals, genetically tested
rules (e.g., Kohler, 1994), the other on foetuses, synthetic biological material, or as
epistemic values (e.g., Daston, 1995). The in our case, stem cells and stem-cell-derived
latter usage was pioneered by historian products and services – that are produced
Lorrain Daston to address the question of by contemporary bio-medicine. A common
why and how scientists choose to work on characteristic of these bio-objects is that
certain problems using certain materials, they may challenge prevailing boundaries –
tools and concepts. Specifically, her focus is for example, between humans and animals
on historicizing a web of “affect-saturated” (such as the xenograft), person and non-
epistemic values, such as objectivity, person (experimental human embryos), life
testability, precision, reproducibility, and matter (synthetic biology), commodity
accuracy, explanatory power and simplicity. and non-commodity (patentable/non-
Moral economies are, according to Daston, patentable stem cell lines), and thus

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Shai Mulinari, Tora Holmberg & Malin Ideland

produce governance challenges (Brown, the bio-object. Conversely, we argue that


2009; Hansen & Metzler, 2012). Given that the politico-moral discourses contribute to
stem cells can be considered “material- producing certain positions for the human
semiotic figurations” (Haraway, 1997), their and organisational actors involved in stem
materiality as well as the discourses in which cell research, as well as help articulate the
they are articulated, must be considered. As proper and legitimate driving forces in this
bio-objects, stem cells have both internal research. In order to scrutinize the plurality
and social orders and orderings, but they of political and moral economies – reflected
are contingent and shifting (Tamminen and reinforced by politico-moral discourses
& Vermeulen, 2012). Thus, as stated in – we chart the specific values (e.g.,
the introduction, stem cells come with epistemic, therapeutic and commercial)
various applications, negative as well as ascribed to stem cells throughout a research
positive values and possible futures, and grant allocation process and describe how
as other bio-objects, they are ascribed the commercial imperative was challenged
meaning and value through processes of by other cherished values surrounding stem
bio-objectification (Vermeulen et al., 2012). cell research.
The bio-objectification process involves
institutional and discursive work in order The Case: Strategic Research Funding
to stabilize the, sometimes contrasting, of Stem Cell Research in Sweden
meanings or “bio-identities” ascribed to
the bio-object (Holmberg et al., 2011). As The present case study concerns the
a corollary to this, our research task is to allocation of funds to stem cell research
track how the multiple and sometimes within so-called strategic research
contrasting bio-identities become programmes. This research policy reform
established, typically through cycles of was part of the Swedish centre-right
negotiations and re-negotiations within and Government’s “Research and Innovation
between arenas and through discourses. In Bill 2009–2012” (Swedish Government,
sum, the struggle over how to name, frame 2008). Essentially, the Swedish Government
and govern bio-objects can be called bio- identified 24 areas, mainly in science
objectification, while the outcome of this and technology, acknowledged as being
process is referred to as bio-identification. strategically relevant to society and business.
For analytical purposes, we assume that For these areas, approximately 140€ million
the bio-objectification of stem cells within in funding was earmarked for three years.
and between political and moral economies Stem Cell and Regenerative Medicine
are reflected and reinforced by the “politico- (SCRM) was one of the strategic areas where
moral discourses” surrounding them. vital industries were believed to benefit
These discourses can thus be viewed as an from public research, and the Bill proposed
operationalization of the theoretical frame an addition of 7€ million, corresponding to
(see below). Similar to e.g. Hall (1996), who five per cent of the total budget for strategic
describes how discourses produce sets of research, to be distributed by the Swedish
available and unavailable subject positions Research Council between at least two
for human actors, we argue that politico- SCRM projects.
moral discourses on stem cells contribute Using the 2008 Bill, the Call for
to constructing their bio-identities: the applications for SCRM projects, four
discourses may limit and enable what ensuing applications (for simplicity these
characteristics and values are connected to are referred to as Application I-IV in the

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Science & Technology Studies 2/2015

text), and written assessments of these performed in Swedish during 2012 by two
applications by a panel of reviewers, we of the authors, and quotes when appearing
followed the process of research grant in the article have been translated and
allocation. This set of data is rather unique; anonymized. By combining these document
thanks to the relatively transparent nature of and interview sources, we intend to shed
the Swedish Research Council we were able light on the politico-moral discourses
to scrutinize the full body of data – including presently employed to make sense of stem
research applications and assessments. cell research. In turn, as proposed above,
To complement and contextualize this this may provide a window into how the
document analysis, we analysed relevant values of stem cell research and of the cells
texts from Swedish authorities regarding themselves are negotiated between different
the commercialization of SCRM as well as political and moral economies. Moreover,
a 2011 public evaluation of the strategic by investigating politico-moral discourses,
research reform performed by Sweden’s we aim to shed light on the process of bio-
Innovation Agency, VINNOVA, in total close objectification insofar as stem cells are
to 1000 pages of text. attributed specific bio-identities in various
These texts are empirically and discourses. In other words, through the
analytically interesting since the “grant- discursive struggle of bio-identification,
genre” (including call, applications, reviews various identities get stuck to the stem cell
and evaluations) is supposed to exclude bio-object.
contradictions, leaving the messages clear In a first step of the discourse analysis, we
and coherent. Therefore, the discursive identified three competing discourses on
conflicts — when they appear — remain the value of stem cell research and stem cells
implicit. Such conflicts may be a reflection as objects: 1) The entrepreneurial discourse;
of different sub-genres within this “grant 2) The translational research discourse and;
genre”. Thus different sub-genres invite 3) The basic research discourse. These three
different discourses to “play” (Fairclough, discourses are unlikely to be the only ones
1995); for example, the Call is clearly attuned operating in the grant allocation process,
to a more explicitly political sub-genre while but they emerge as dominating in the data
the applications are more scientific. Still, as a whole. The next section describes how
we find it important to analyse how one the discourses were defined and analysed.
outcome of such discursive conflicts is that In a second analytical step, we considered
the commercial imperative is challenged by which bio-identities were made available,
other cherished values surrounding stem attached and valued with respect to stem
cell research. cells in these discourses. In a third and final
Moreover, to investigate challenges step, we investigated how the relationship
associated with stem cell research and between various bio-identities and values
commercialization, and to clarify and was reorganized along the research grant
supplement documentary findings, we allocation process, i.e. how temporality
included semi-structured interviews imposed on the bio-objectification
with three stem cell scientists associated trajectory.
with the projects that received strategic
funds, two supervisors of life science Three Politico-Moral Discourses
commercialization at the respective
university’s TTOs, and a former CEO of a In this section we present three politico-
major Swedish stem cell corporation, thus a moral discourses that emerged as
total of six interviews. The interviews were dominating in the grant allocation

58
Shai Mulinari, Tora Holmberg & Malin Ideland

process: the entrepreneurial discourse, the (public) health care system. Here,
the translational research discourse, and stem cells’ clinical values and therapeutic
the basic research discourse. The aim is to bio-identities are foregrounded: The cells
exemplify how these discourses are naming are attributed value insofar as they can
and framing the stem cells towards certain be employed in the clinic, for example as
bio-identities. stated in the following assessment of SCRM
In the entrepreneurial discourse, Application III:
stem cells emerge mainly as putative
commodities. While the entrepreneurial The CREATOR program is a rich basic-
discourse is strongest in the Research and translational environment with scien-
Innovation Bill, it was propagated well tists who are primarily interested in the
beyond this political document. Consider “bench to bedside: bedside to bench”
the following excerpt from the reviewers’ paradigm that is very effective in accel-
assessment of SCRM Application III, that erating research in clinical applica-
revolved around activation of endogenous tions. […] The investigators have tar-
stem cells to regenerate damaged geted clinical applications where there
tissue and nerves in vivo, and culturing is clear unmet needs. For instance, the
and differentiation of stem cells into prevention of infection in corneal graft-
transplantable complex tissues in vitro. ing or the improvement of fracture
repair or wound healing will be quite
The creation of improved therapies important. (Swedish Research Council,
will likely be accompanied by intel- 2009b: 208)
lectual property that may be of com-
mercial value. Th is may translate to the This translational research discourse mirrors
generation of start-up companies that in many respects the entrepreneurial
will increase the international impact discourse, but with another arguably more
of Swedish Regenerative Medicine altruistic goal in sight: improving patients’
industry. […] Therefore these research health. As such, this goal relies on successful
projects can be viewed as the pipeline, and thus highly cherished translational
providing new technologies that will research.
benefit patients and provide opportu- If stem cells were something that could
nities for the development of start-up be tamed and packaged into a commodity
companies or industrial collaborations. by entrepreneurial research, and turned
(Swedish Research Council, 2009b: 208) into a therapeutic breakthrough by
translational medicine, the stem cells in
Here, stem cells’ commercial values are the basic research discourse take the shape
essential to their bio-identity: Stem cells are of something that is yet to be perfectly
appreciated insofar as they can be traded understood – something that must be
on a market for profits, job opportunities, or further explored and explained. Consider
national competitiveness. This commercial the excerpt below from the assessment of
value is at the same time positioned in SCRM Application I. Here, the emphasis is
relation to the future benefit for patients, the on stem cells’ epistemic bio-identities, i.e.
lead motif of the next dominant discourse. the cells have intrinsic value as objects of
The second politico-moral discourse knowledge – which should be discovered,
revolves around how strategic research will investigated, followed and understood.
bring about therapeutic advances within

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Science & Technology Studies 2/2015

Decoding cell lineage at the organism challenged in the 2011 follow-up evaluation
level. Th is is certainly the most original and the subsequent 2012 Research and
component part of the proposal and Innovation Bill from the centre-right
from the fundamental point of view the Government.
most interesting […] A group of PIs at
the Institute proposes to follow the line- Research and Innovation Bill: Ushering
age relationship in intact organisms by Commercialization
following the evolution of polyguanine In 2008, the Swedish centre-right
repeats. Th is procedure can be done at Government presented its Research and
the single cell level and will be useful Innovation Bill for 2009–2013 (Swedish
not only in tracing the progeny of cell, Government, 2008). The subtitle – A boost to
deducing tissue regeneration, and trac- research and innovation – indicated a main
ing progenitor cell compartments, but concern with converting state investments
also in anticipating tumour relapse. in public research into commercially viable
(Swedish Research Council, 2009b: 209) innovations for industry. As such, the Bill
should be viewed against the background
Arguably, this discourse could be of the current political consensus on
characterized as more traditionally state policies aimed at boosting national
academic: Scientific progress derives industrial competitiveness in high-tech
from curiosity, the search for mechanistic sectors. Accordingly, the Government
explanation, and a will to know the world opened the Bill by emphasizing that,
through experimentation, rather than
striving primarily towards commercial In today’s era of globalization, Swed-
or clinical ends – although commercial ish competitiveness must be largely
and clinical output may often be seen as based on our exports having a high level
welcomed by-product of science (Styhre & of knowledge content, which is why
Sundgren, 2011). research, development and innovation
are central components of our growth
Discursive Shifts in the Grant policies (Swedish Government, 2008:
Allocation Process 14).

While these discourses are made explicit The Bill also expressed concerns about
throughout the grant allocation process, an alleged history of repeated failures
they operate, as we show below, with in commercializing academic research.
different emphasis along the trajectory, i.e., To amend this, several reforms were
in the (1) 2008 Research and Innovation suggested. On a general level, the
Bill, (2) Call for applications, (3) SCRM Government proposed increased research
project applications, (4) Panel assessments, funding, especially for research with
and (5) 2011 Follow-up evaluation of the commercial prospects. In parallel, faculty
strategic research reform. In the section should be legally required to report any
below, we analyse the interplay between commercializable results to their home
the three politico-moral discourses and universities. Moreover, entrepreneurial
demonstrate a shift from a strong focus on activities should be fostered “through
commercialization towards therapeutic and increased access to public risk capital”
epistemic concerns and values in the grant (Swedish Government, 2008: 126) and
allocation process – an orientation later through financial support for TTOs.

60
Shai Mulinari, Tora Holmberg & Malin Ideland

However, the primary research policy and plans to commercialize research,


innovation was the earmarking of money and existing supportive entrepreneurial
for so-called strategic research – a political capacities. Moreover, while the Bill
programme for orienting academic research repeatedly stressed the importance of the
towards commercial outcomes1. In light selected strategic areas to business and
of recent debates on the shift in national society, as regards to policy initiatives these
research policies from basic research to were basically all aimed at facilitating the
research aimed at increasing industrial flow of ideas and products from academia
competitiveness, and on the potential to business (e.g. faculty should be legally
conflict between epistemic and commercial required to report any commercializable
values or priorities in public research, it results to their home universities; increased
is interesting note how this tension was access to public risk capital and support
treated in the Bill. to TTOs). There were no complementary
policies proposed for facilitating the flow of
It is of vital importance that those seats non-commercializable ideas and products
of learning granted funds for a strategic from, for example, biomedical research to
venture give scope to free, curiosity- clinical settings.
driven research within the framework Arguably, therefore, the Government
of the strategic area. It is also impor- effectively touted entrepreneurial research
tant that representatives of society as an obligatory passage point between
and industry in the relevant areas be basic science and patients/consumers. This
allowed to participate in formulating is consistent with the contention that state
research questions and that companies policies have moved “from an ideology
be made part of the project and partici- that defined the public interest as best
pate in carrying it out. Th is will result served by shielding public entities from
both in solid research results and in the involvement in the market, to one that saw
application of proficiencies. (Swedish the public interest as best served by public
Government, 2008: 68) organizations’ involvement in commercial
activities” (Slaughter & Rhoades, 1993:
Thus, according to the Swedish 287). Within this neoliberal ideology,
Government, there was no immediate strongly associated with the entrepreneurial
conflict between cherishing curiosity- discourse, stem cells, as other bio-objects,
driven research and simultaneously gain legitimacy insofar as they can be
stating that other stakeholders, particularly transformed into commercial objects,
industry, should be involved in formulating with health benefits being cast as a result
research directions. Rather, basic research of effective marketization. To illustrate
was seen as a prerequisite for commercial this, Figure 1 schematically outlines the
application. However, while the value of policy pattern that permeates the Bill. This
“curiosity-driven research” was defended pattern is expressed, first, through the idea
in the Bill, the projects’ commercial aspects of sequential translations from epistemic
should still to be considered decisive values to commercial and then to clinical
when allocating strategic funds. Indeed, values and, second, by the primacy of the
all applications for strategic funds were commercial bio-identity.
to contain specific sections detailing the In the next two sub-sections, we explore
project’s relevance and connection to how these associations between epistemic,
Swedish business, including strategies commercial and therapeutic values were

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Science & Technology Studies 2/2015

Figure 1. Representation of view expressed in the Swedish Government’s 2008 Research


and Innovation Bill. Values and translations between values are indicated.

reorganized along the SCRM research grant – epistemic, clinical and commercial ends
allocation process. were given at least equal prominence. This
was stated in the SCRM Call as follows:
Call for Proposals: Making Room for the
Therapeutic Bio-Identity It is essential to prioritize and sup-
In addition to the more general port research, based on new knowl-
political programme revolving around edge, concerning whether stem cells
entrepreneurship, commercial innovation can prevent, ameliorate, and possibly
and economic growth, the Bill contained cure serious, widespread diseases. Th is
specific sections on each of the 24 strategic also applies to producing specific cells
research areas detailing the reasons for the to counteract deficiencies in organs
Government’s decision to allocate funds2. for transplantation as well as for other
These texts formed the basis for the Call for applications in health care. Mapping of
grant Applications. The Call clarified that all the different stages, from stem cells to
submitted project applications were to be different precursors of specialized cells,
judged based on two categories of criteria: opens new opportunities to develop
drugs that can regulate the formation of
1) that the research should achieve the specific cells. (Swedish Research Coun-
highest quality in an international com- cil, 2009a: 21)
parison, and 2) concurrently it should
be of strategic importance for society We also suggest that this shift from
and the business sector. The fundamen- predominantly commercial considerations
tal criterion, however, is scientific excel- is associated with the forging of a different
lence (existing capacity or the poten- set of associations between epistemic,
tial to achieve scientific excellence in commercial and therapeutic values. Instead
international comparison). (Swedish of the idea of sequential translations present
Research Council, 2009a: 3) in the Bill, we discern a conceptualization
of scientific progression characterized
It is at this junction that we discern the first by parallel translations from epistemic
sign of a downplaying of the primacy of to commercial and therapeutic values,
commercialization, which we propose is respectively (Fig. 2). In other words,
associated with increased articulation of the stem cells can be translated either into
translational and basic research politico- a commodity or therapeutics, or both.
moral discourses. Thus, in the Call for SCRM Importantly, in this pattern, entrepreneurial
projects – in which Regenerative Medicine research and commercial values are possible
was cast as “an area of application” for stem but not obligatory passage points between
cells (Swedish Research Council, 2009a: 21) basic science and patients/consumers.

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Shai Mulinari, Tora Holmberg & Malin Ideland

Figure 2. Representation of view


expressed in Call for SCRM project
proposals. Values and translations
between values are indicated.

Proposals and Assessments: Upgrading which integrate basic and clinical


the Epistemic Bio-identity science:
Unsurprisingly, given the difficulties
associated with commercialization 1) Molecular basis of cellular
and therapeutic innovation, the SCRM differentiation.
applications centred on basic research 2) Steering stem cell differentiation.
efforts to improve knowledge in stem cell 3) Transplantation biology.
and developmental biology, i.e. there 4) Development of novel technology to
was a strong articulation of the basic trace cell lineage at an unprecedented,
research politico-moral discourse and organism-wide level.
the epistemic bio-identity. What was 5) Integration of biomaterials and nano-
perhaps more surprising then, in light of biology with stem cell research.
the political pressure to commercialize,
was that the applications stressed clinical In sum, the application focused on basic
possibilities and challenges more forcefully research in stem cell and developmental
than commercial ones. We illustrate this biology (points 1, 2, 4), improving current
by focusing on the two applications that methods and protocols for stem cell
received the highest ranking by the panel of differentiation, culturing and expansion
reviewers and that hence received funding (2, 5) and advancing transplantation
(referred to as Application I and II). biology in clinical settings (3). Commercial
Application I suggested the establishment considerations and prospects were not
of a Centre for Regenerative Medicine, explicitly mentioned in the abstract. Nor was
commercialization explicitly mentioned
with the vision of conducting research in the reviewers’ summary assessment,
leading to development of new concepts which instead centred on epistemic and
in stem cell biology and new therapies therapeutic prospects within a bench-to-
in several disease areas. bedside, bedside-to-bench paradigm aimed
at integrating basic research and clinical
As explained in the application abstract, it work:
centred on five programme areas

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Science & Technology Studies 2/2015

There are few institutions with such a mainly as means to secure additional
combination of experts in regenerative funding for basic and clinical research.
research that combine a very strong Turning to Application II, the
basic research interest with an imme- constellation of researchers summarized
diate application to the patient. A very their intentions as follows:
strong aspect of the proposal is the lin-
eage tracing programs which are inno- The overall objectives within the next
vative and will be extremely useful to 10 years are to demonstrate at least in
understand the physiological role of dif- one disease, i.e. diabetes, that stem
ferent cell types in tissue repair and also cell-based cell replacement therapy is
in the follow up of tumours. (Swedish effective and safe, to provide therapeu-
Research Council, 2009b: 210) tic candidates for stroke and haemato-
logical diseases, and to build a strong
Here, excellence in the investigators’ track base of knowledge about stem cells and
record was valued, along with epistemic disease mechanisms to pave the way for
and therapeutic values combined with an future efforts to devise new clinically
innovative methodology. One of the central effective treatments.
figures in this research milieu confirms
these priorities in an interview, stating that: Thus, compared with Application I,
therapeutic values were stressed more than
Th is is basic research in well, we don’t epistemic ones (the “strong knowledge
make any patient, we don’t test new base” aiming at paving the way for “new
drugs on patients or anything like clinically effective treatments”). Moreover,
that. Instead we try to understand how unlike Application I, commercialization was
things work. Even though we’re very mentioned in the abstract alongside clinical
interested in contributing to some kind translation:
of therapeutic development as well […]
Well, I think that… a combination of The objectives will be of strategic
basic understanding of how the body importance for both the Swedish soci-
normally functions and how to modu- ety and industry. Swedish scientists will
late it in order to develop regenerative take a leading role in the development
therapies, is what is fun, or, well, the of novel stem cell-based therapies for
possibility to perhaps contribute to serious diseases, and, hence, provide
the development of regenerative treat- solutions to important health problems
ments. (Stem Cell Scientist 1) in society. Generated new knowledge
will be translated into commercial
What becomes positively valued (“what products.
is fun”) is to understand normal and
abnormal physiology (“how things work”), In the Call, as noted above, the commercial
with the prospect of helping patients (“the output – or “bio-value” (Waldby, 2002) – of
development of regenerative treatments”). the epistemic labour was stressed. However,
In the interview, the pros and cons of as one of the scientists in the milieu told us,
entrepreneurship were also discussed. commercialization was not uncontroversial;
The scientist was very positive about the it was increasingly demanded from “above”
possibilities of commercialization, but and involved certain risks:

64
Shai Mulinari, Tora Holmberg & Malin Ideland

Now they require commercialization reviewers. While enthralled by the epistemic


and patenting if you want to have a... prospects of the two applications and by the
get grant money or a position or what- possibilities for clinical translations, they
ever. And everybody needs funding and were less impressed by the entrepreneurial
positions to do their research. And so strategies and existing structures to support
you have to do it. To get the right quali- commercial exploitation. For example,
fications. And so maybe you focus on Application I was criticized for having
something you can patent rather than
on something that will generate the real limited relationships with biotechnol-
and important discoveries. (Stem Cell ogy and Big Pharma companies at the
Scientist 2) present time (Swedish Research Coun-
cil, 2009b, p. 210)
The problem of orienting research towards
commercial outcomes and valuing a less and Application II was chided for having too
legitimate object – the commodity – was little venture and business capital influx.
stressed (“focus on something you can The latter project was described as possible
patent”). Later in the interview, the scientist to commercialize, but with a hint that it
added that this did not imply that their would become expensive and that more
research results should remain only within capital was needed (Swedish Research
the remit of the university, but that like all Council, 2009b).
research it should serve society at large. Taken together, our analysis supports
However, to achieve that goal, the research the idea that a certain shift from the
cluster had chosen to focus more on the commercial imperative took place
translational dimensions of their research through the grant allocation process. This
than on commercialization, which was also orientation, we propose, is associated with
confirmed by Stem Cell Scientist 3, working an insistence by researchers and reviewers
in the same research cluster. on the epistemic and therapeutic value
This contention, that the applications of stem cell and developmental biology
stressed epistemic and clinical possibilities research and an emphasis on therapeutic
and challenges more forcefully than and epistemic outcomes over and above
commercial ones, is further supported commercial ones, i.e. with a downplaying
by the assessment made by the panel of of the entrepreneurial politico-moral

Figure 3. Representation of
view expressed in SCRM project
proposals and assessments. Values
and translations between values
are indicated.

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Science & Technology Studies 2/2015

discourse. Schematically, as delineated I’m not so up on stem cells really, but


in Figure 3, we suggest that (1) in addition the little I know is that there are many
to the idea of parallel translations from steps that have to work. And say he
epistemic to commercial and therapeutic [talking about a stem cell scientist]
values, respectively, already present in the solved one part, then he’s still depend-
Call, the applications and assessments are ent on a whole lot of other patents ear-
characterized by the idea of an epistemic lier in embryonic development, differ-
loop, i.e., more knowledge about stem entiation. So it’s pretty hard to navigate
cells is needed to boost basic research; all that, as I see it, to fi nd the freedom to
(2) there are translations in the texts not operate and who else is interested and
only going from epistemic to therapeutic such things. (TTO manager 1)
values, but also in reverse from therapeutic
to epistemic values (i.e. the bench-to- Getting a stem cell patent is, in the TTO
bedside, bedside-to-bench paradigm); and manager’s view, contingent on many steps.
(3) commercialization is at times framed as In particular, the challenge is not only to
a by-product of clinical application rather isolate a sufficiently novel aspect of the
than the other way around, as was the case stem cell bio-object that can be patented
in the Bill. without infringing on existing patents,
but also to find a commercial application
Follow-up Evaluation and the New Bill: that is not curtailed by existing patents
Coming Full Circle on prior or subsequent steps in a cell
Thus far, our analysis has shown how the differentiation trajectory, for example from
entrepreneurial discourse was challenged embryonic stem cell to insulin producing
by translational and basic research pancreatic beta cell. It should be noted,
discourses through the grant allocation however, that SCRM is not unique in
process. These discursive shifts also made having commercialization difficulties – at
room for other bio-identities and different least if we are to believe a 2011 follow-up
values of the stem cells. According to our evaluation of the conditions for innovation
informants at TTOs preoccupied with in the areas of strategic research, performed
the commercialization of biomedical by Sweden’s Innovation Agency, VINNOVA
research, there was a lack of commercial (2011). According to them, industry and
commitment among certain researchers. other organizations had, overall, “been
This was, in their view, due partly to genuine involved to a limited degree or not at all
disinterest – a lack of the “entrepreneurial in a dialogue about research priorities” in
spirit” as a TTO manager put it – and partly assessed research projects and that “there
to specific difficulties associated with stem was no direct incentive and follow-up
cell commercialization. In brief, stem criteria for this and, moreover, the venture
cell research is difficult to commercialize has not generated new, expanded or
because it does not fit easily into current deepened collaboration” (VINNOVA, 2011:
business models in the life sciences that 3). VINNOVA concluded their evaluation by
revolves around chemically synthesised saying that one should
drugs. Moreover, the stem cell patent
landscape is tricky terrain. This latter point not expect the strategic research ven-
was explained to us as following: ture to contribute to any great extent
to the generation of innovations in the
participating organizations, because

66
Shai Mulinari, Tora Holmberg & Malin Ideland

direct collaborative relationships are Conclusion


a necessary prerequisite for an effec-
tive exchange of knowledge (VINNOVA, We began this article by noting that one of
2011: 3). our main concerns is with how neoliberal
policies impact on the topography of stem
The evaluation is pertinent to the present cell research. As we have shown here,
argument not only because it supports our the science political commercialization
contention of shifts in the grant allocation, imperative, strongly associated with
but also because it outlines a possible the entrepreneurial discourse, may be
neoliberal policy response to this. Thus, challenged by translational and basic
to amend this alleged commercialization research discourses within a grant allocation
failure, VINNOVA recommended that process. Notably, these politico-moral
the Government establish a ”strategic discourses are highly unlikely to be unique
innovation programme” in which to stem cell research, or even to biomedical
research, but probably exist throughout a
[a]ctors from industry and society wide range of fields of research (cf. Pestre,
should play important roles in making 2005).
research priorities in the same was as At this juncture it is important to again
university researchers play important point out that while the entrepreneurial
roles in establishing strategic research discourse is not the only one present it the
priorities (VINNOVA, 2011: 4). Bill, it still constitutes the primary discourse
insofar as other discourses (translational,
And, indeed, in the Research and basic research) gain legitimacy directly
Innovation Bill from 2012 this was exactly or indirectly in relation to it. This is seen
what was proposed: A new research policy for example in the legitimization of non-
instrument denoted “strategic innovation commercial science by claiming that
areas” in which increased intermingling it indirectly contributes to the overall
between the academy, business and the competitiveness of the life science sector or
state would be fostered through co-funding of a region. A similar argument is put forth
mechanisms (Swedish Government, 2012). by the Innovation Agency VINNOVA that
For Government, co-funding was seen as a perceived basic stem cell science to be of
way to prioritize research already selected such importance for business development
by businesses (or other financially strong that basic research in the field should be
actors) as evidenced by their financial subsidized by the state rather than left to the
commitment to the project. If effective, vagaries of the market (Rickne & Sandström,
this neoliberal research policy instrument 2009) (see note 2). This resonates with
will put a premium on academic research Jessop’s contention that the increased
aligned with the expressed needs of big importance of structural competitiveness
business and, arguably, possibly further and/or systemic competitiveness leads to a
curtail opportunities for epistemic and fundamental redefinition of the “economic
therapeutic values to take a centre stage sphere” because many phenomena
through the basic and translational politico- previously regarded as “extra-economic”
moral discourses as addressed in this paper. are now seen as directly economic and/or
economically relevant (Jessop, 2002: 135).
Through the discourse analysis
performed, we showed how the

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entrepreneurial, translational and basic is amenable to be “objectified” – and


research discourses co-exist and mingle how, but also less vociferous debates
even though the different values they in which scientists, policy-makers, and
promote occasionally come into conflict. other groups of actors discuss how to
Here, we suggest that the intermingling of order these entities, who to entrust with
discourses results in negotiations over the their oversight, and in light of what sort
values of stem cell research and stem cells. of principles. (Hansen & Metzler, 2012:
This contention is supported by the way 80)
the various values ascribed to stem cells
became reorganized along the research We have also pointed out how the stem cell
grant allocation process, as schematically bio-object may eschew commodification,
outlined in Figures 1–3. Thus, rather despite a seemingly hegemonic
than loudly opposing the commercial entrepreneurial discourse in science
imperative, we have argued that stem cell policy and a strong political will. Thus our
researchers displaced it by emphasising: informants repeatedly underscored some
the need for more knowledge about stem specific difficulties, including difficulties
cells to boost basic research, the bench-to- related to the intricacies of stem cell biology
bedside, bedside-to-bench paradigm, and and mismatches between proposed models
by framing commercialization at times as for stem cell therapeutics and the current
a by-product of clinical application rather commercial models of Big Pharma that
than the other way around. revolves around chemically synthesised
This analysis is consistent with the drugs. Moreover, as the Reviewers of the
idea of temporally specific epistemic SCRM proposals noted, commodification
and clinical shifts in the grant allocation of academic stem cell research is likely to
process. Thus, commercial imperatives are require increased private sector investments
strong in the Bill, but shrink throughout the and support. As a result of such difficulties,
grant allocation process while epistemic apart from hematopoietic stem cell
and therapeutic identities and values are transplantation, essentially all other stem
foregrounded. This could be interpreted as cell treatments remain experimental or are
suggesting the need to look at both time and practiced in the absence of standard clinical
place, that is, to study located processes, in evidence of benefits and safety (Lau et al.,
order to understand the work of discourses 2008). Ostensibly, the issue at stake here is
in science policies. Crucially, this is what the whether the stem cells can be made to fit, or
framework of bio-objectification aims at, if the commercial models themselves will
since a focus on conflict – however implicit change.
it may be – challenges the common idea of Finally, we would like to reconnect this
implementation of policies as top-down: concluding discussion to our initial outline
of the sets of values that prevail in the
However, debates and controversies on different political and moral economies
these innovative entities, as well as on of science – or “cités de justices” (Pestre,
the technologies and practices that help 2005). One advantage of analytically
to make and to sustain them, suggest connecting political and moral economies
that the process of bio-objectification to the concept of bio-objectification is that
should not be understood as a one-way this approach allows us to grasp how the
street. Such debates include, on one commercialization imperative is, if not
hand, controversies on who or what resisted, at least offset by the tenacious

68
Shai Mulinari, Tora Holmberg & Malin Ideland

political and moral economies of science Sörlin, 2007). Thus, these foundations
(Daston, 1995). Thus, by adding the – like the strategic research – would
concept of “politico-moral discourses” to “create new environments that would
the framework of bio-objectification, we be conductive to both basic science
were able to point out how the relationship and economic growth” (Benner &
between various bio-identities and values Sörlin, 2007: 35). For example, one of
were reorganized along the research grant these foundations, the SSF, funded
allocation process. In this way, our work a set of large “centres of excellence”,
may contribute to the understanding of the the objective of which was to foster
varied and uneven impact of neoliberalism “strategic relevance for the present and
on science: the total marketization of future industry” and “an integration of
academic research might not be possible, basic and applied research” (cited in
partly because, as argued here, there are Benner & Sörlin, 2007: 40).
diverse political and moral economies of
science at work, conflicting discourses in 2 The Government’s selection of SCRM
operation and bio-objects that, at least as a strategic area was preceded by
thus far, eschew commoditization. Clearly, commissioned analyses of business
more knowledge is needed regarding how opportunities in the area. Thus the
the various political and moral economies text “Swedish possibilities within
of science interact, and if and how political tissue engineering and regenerative
and moral economies are changing due to medicine” produced for the Swedish
the pressure to commercialize scientific Innovation Agency VINNOA argued
results. Conversely, more knowledge is that, for Sweden to excel in the area, a
needed regarding if and how the various coordinated and strategic effort from
barriers – scientific, economic, social, the state was needed “to complement
and legal – facing stem cell research the present funding of projects, centres
commercialization are strengthening a and cluster development the field is
political and moral economy that cherishes receiving through the Swedish R&D
epistemic and therapeutic values over and funding system and lead to a more
above commercial ones. pronounced effect on research and
innovation in this field” (Rickne &
Notes Sandström, 2009: 16).

1 This earmarking of money to strategic Acknowledgements


research represents an extension of
the research policy reforms initiated by The authors are thankful to the financial
the previous centre-right Government support by Riksbankens Jubileumsfond
in 1994 with the establishment of a (Dnr 2010-001) and Crafoord Foundation.
set of new foundations, using money Further, we wish to acknowledge the
from the so-called wage-earner intellectual environment of the COST
funds, to foster new alliances between Action “Bio-objects and their boundaries”
academia and industry (Benner & (ISI0001).

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Swedish Research Council (2009b) Shai Mulinari


Expertpanelernas Slutgiltiga Yttranden shai.mulinari@soc.lu.se
Per Område [Expert Panels’ Final Lund University
Pronouncement Per Area]. Stockholm,
Sweden: Swedish Research Council. Shai Mulinari carried out this work as
Tamminen S & Vermeulen N (2012) Bio- part of a PostDoc at the Department of
objects and Generative Relations. Science, Environment and Society, Malmö
Croatian Medical Journal 53(2): 198–200. University, Sweden. Currently Mulinari is
Tuunainen J & Knuuttila T (2009) Researcher at the Department of Sociology,
Intermingling Academic and Business and Unit of Social Epidemiology, at Lund
Activities: A New Direction for Science University, Sweden. Mulinari holds a PhD
and Universities? Science Technology & in Developmental Biology from Lund
Human Values 34(6): 684–704. University. His more recent research focuses
Vermeulen N, Tamminen S & Webster on the history of psychiatric research,
A (eds) (2012) Bio-Objects: Life in the regulation of the pharmaceutical industry,
21st Century. Farnham, UK: Ashgate stem cell science policy, and public health.
Publishing Ltd.
VINNOVA [Sweden’s Innovation Agency] Tora Holmberg
(2011) Analys av Förutsättningar tora.holmberg@ibf.uu.se
för Innovation inom de Strategiska Uppsala University
Forskningsområdena [Analysis of the
Potential for Innovation in the Strategic Tora Holmberg is a Senior Lecturer and
Research Areas]. Stockholm, Sweden: Associate Professor at the Department of
VINNOVA. Sociology, and the Institute for Housing
Wainwright SP & Williams C (2008) Spaces and Urban Research, Uppsala University,
of Speech and Places of Performance: Sweden. Her research interests include
An Outline of a Geography of Science human/animal relations in various
Approach to Embryonic Stem Cell contexts, and her cultural sociology
Research and Diabetes. New Genetics approach combines STS, urban sociology,
and Society 27(2): 161–173. animal studies and feminist theory.
Waldby C (2002) Stem Cells, Tissue Cultures
and the Production of Biovalue. Health, Malin Ideland
6(3): 305-323. malin.ideland@mah.se
Webster A (ed) (2013) The Global Dynamics Malmö University
of Regenerative Medicine: A Social Science
Critique. Basingstoke, UK: Palgrave Malin Ideland is Professor in Educational
Macmillan. sciences with specialty in Ethnology at
Malmö University. Her research interests
concern a) cultural perspectives on modern
biotechnologies, e.g. transgenic animals
and stem cell research; b) critical studies on
science and sustainability education. 

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Civilizing Drones:
Military Discourses Going Civil?
Sven Braun, Michael Friedewald and Govert Valkenburg

This article presents an account of how a technology being transferred from one area
of deployment to another entails that specific discourses travel along. In particular,
we show that the development of Unmanned Aircraft Systems (UAS, often referred to
as drones) is importantly determined by its military progeny, as the civilian context
inherits specific discourses from the military context. Contemporary ideas of privacy
and security in drone use can be largely traced back to this original context. We show
that concepts and their relative importance primarily depend on the discourses
that travel together with the technologies on which the concepts aim to act. There
is no technological reason for privacy and security to be implemented the way they
are, nor can their implementation be explained merely from socio-political or moral
discourses. Instead, material and discursive mechanisms successfully enact and
reproduce the dominant military viewpoint.

Keywords: drones, privacy, security

Introduction Under the umbrella term of UAS, a wide


range of airborne devices is captured which,
Whenever technologies migrate from one in one way or another, fly without a human
context to another, concepts by which pilot on board. Well known are the military
people understand and harness those devices used by, amongst others, the United
technologies travel with them. While States to assassinate alleged terrorists in
unmanned aircraft systems (UAS) or areas outside its sphere of military control
‘drones’ are no longer merely military (Syed, 2013). Less prominent is the use of
devices – but now also commercial and similar devices for mere reconnaissance
even leisure devices – some remnants of and espionage purposes. At the same time,
their military genesis can be discerned in unmanned aircraft carrying a payload are
the discourses that surround them. Looking increasingly used for civilian purposes such
at a particular class of UAS, we trace back as infrastructure monitoring (Woody, 2014)
how incumbent conceptions of security, and crowd control (Heise, 2013) and even
and adjacent notions of safety and privacy, for leisure by private persons – for example
inherit from this military history a tendency to take photos and footage of themselves
to ‘externalize’ human values from the from above. Compared to the much longer
design of UAS. history of military uses, leisure and civilian

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Science & Technology Studies 2/2015

purposes that do not focus on the aspect of are modified and translated in their new
flying have only appeared fairly recently. habitus, and how they lead to particular
The proliferation of UAS applications ‘enactments’ of the concepts of privacy and
naturally raises issues of privacy: aerial security (Law, 2004).
observation becomes less costly and less
risky, and thereby more affordable. We show The Case: Unmanned
that privacy is not some abstract value that is Aircraft Systems (UAS)
either respected or violated by a technology
such as UAS. Instead, we consider it The empirical base of our argument is a
as multiple, situated and contingent case study on Unmanned Aircraft Systems
(Gutwirth, 2002; Finn et al., 2013). What used for surveillance purposes. UAS are also
privacy consists of in this particular case is referred to as Unmanned Aerial Vehicles
itself defined in the process of developing (UAVs), Remotely Piloted Aircraft Systems
an operational UAS. In this development, (RPAS) or simply as drones. UAS have been
or so we will argue, military narratives have defined more systematically as ‘powered,
seemed to be able to persist, even though aerial vehicles that do not carry a human
the practice has moved beyond the military operator’ and that ‘can fly autonomously or
context. be piloted remotely, can be expendable or
We aim to shed new light on the tensions recoverable, and can carry a lethal or non
around privacy when pursuing regulation of lethal payload’ (Bone & Bolkcom, 2003: 1).
UAS by looking particularly at the concept Systems typically comprise a ground station
of security. Much like privacy, the concept and a data communication link (see figure
of security in the drone context lacks an ex 1). Depending on the payload, UAS can be
ante definition – for example, as to what is to deployed in various military and civilian
be secured, and how. Rather, such notions scenarios. In this case study, military
emerge in the many negotiations – which scenarios will be acknowledged, but the
include social, economic, political, technical focus will be on non-military governmental
and cultural aspects – that take place in and commercial applications. We intend to
the process of development. Since UAS explain how the meanings of privacy and
have a substantial history of applications security emerge in this context, as opposed
in (national) security, particular notions of to considering how UAS are, or are not,
security and particular configurations of ethically problematic.1
UAS are fundamentally co-produced. In this paper, we will engage with one
At the same time, transferring UAS – or particular class of UAS, namely the fixed-
elements thereof – from military to civilian wing type suitable for both civilian and
contexts, will generally modify or translate military purposes. Historically, most
both the technological design and the military UAS have been of the fixed-wing or
specific notions of security. Thus, we find ‘aeroplane-like’ type, quite different from
ourselves confronted with a double set of the multi-rotor type that flies much more
questions. On the one hand, it merits further like a helicopter. The history of the latter
scrutiny whether, and how, narratives with is much more tied to civilian applications.
a military origin persist into practices of Hence, if there is one site to spot military
non-military UAS application – in other discourses riding piggyback on technology
words, which ‘hinterlands’ (Law, 2009) transfer, it should be with the fixed-wing
they carry with them. On the other hand, type.
we should investigate how these narratives

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Sven Braun, Michael Friedewald and Govert Valkenburg

Beyond line of
sight link
Unmanned
aircraft

Air traffic control


communication Data link to
ground team
Line of
sight link

Ground
connectivity UAS Ground
Station

Figure 1. Communication links between ground station, airport, satellite and unmanned
aerial vehicle

History Afghanistan and Pakistan (since 2001) to


name a few recent examples (McBride,
UAS have been around since the First World 2009; Gregory, 2011). Except for small
War. As soon as the technology emerged, it scale UAS, unmanned aircraft are currently
was immediately adopted by the military. only allowed to fly in dedicated zones. A
While initially used for training anti- worldwide legislative process aimed at the
aircraft crews, transport of weaponry and integration of UAS into the civil airspace
for remotely launching bombs, their usage is currently underway, which would
as reconnaissance aircraft began with the ultimately enable manned and unmanned
Vietnam War (Fahlstrom & Gleason, 2012). aircraft to share the same airspace. In the
Throughout history, UAS have been most European Union, this integration depends
commonly associated with the military, on initiatives at both member state level
only to appear in civilian applications and at Union level. In the United States, the
more recently. They have been extensively aim is to achieve full integration by 2015 –
used in armed conflicts for intelligence although this is considered very ambitious
gathering and so-called targeted killing (Kornmeier, 2012: 8). Pilot applications
missions, e.g. in Kosovo (1999), Iraq (2003), for UAS may be possible by 2015, but

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not general integration. Furthermore, a on large-scale military products, all these


global coordination of national airspace technical requirements are reflected in the
regulation by the International Civil technical design and thus in the resulting
Aviation Organisation (ICAO) is planned systems themselves.
to be complete by 2025. Only after this UAS are systems consisting of a flying
coordination will integration be complete unit, usually equipped with some kind
(according to developer D3 involved of payload. Those units require a ground
in the regulation process; interviewee station and a communication and data link
codes are explained below). This process (see figure 1). They can be as small as an
depends not only on legal issues, but also insect or as large as an airliner (Eick, 2009).
on technological developments, e.g. on Often UAS are classified by weight (from less
the improvement of sensor and collision than 100 grams to 5 tons), range (from 1 to
avoidance systems and other as yet over 2000 kilometres), altitude (from less
underdeveloped mechanisms to guarantee than 250 metres to 20 kilometres and above)
sufficient operational dependability and endurance (from less than 20 minutes
and safety. Small-scale UAS can already to 48 hours of permanent flight). Shapes
be operated without major restrictions, also vary considerably: airplane-like fixed
whereas large UAS have a lengthy wing designs and multi-rotor systems that
application process in most countries can vertically take off and land are currently
(European RPAS Steering Group, 2013).2 prevalent, UAS with other aerodynamic
Despite the regulatory barriers, the shapes are in development (Kornmeier,
number of users of unmanned aircraft 2012: 13).
has been growing slowly but steadily Usually systems are remotely operated
(Kornmeier, 2012: 8). It is expected that and monitored by human flight operators
once the integration of UAS into civil (pilots) and additional evaluator(s) for
airspace is complete, it will open the market interpreting payload data – all normally
for unmanned aviation. located at the ground station. The number of
operators depends on the size of the system.
Current Technology Only one person is needed to operate very
small UAS, while huge fixed-wing models,
In the last few years, UAS have received such as the MQ-9 Reaper by Northrup
considerable media coverage in relation Grumman, requires more than 180 people
to targeted killing at war – not least the (The Economist, 2011). However, not all
‘war on terror’.3 Requirements for UAS to systems require human operators in real
successfully execute combat, surveillance time. There are aircraft that can fly (semi-)
and reconnaissance missions are: the autonomously, e.g. on the basis of GPS
ability to fly at high altitude, long flight and other sensor data, and, for example,
endurance time, long range and sometimes supported by a collision avoidance system.
also undetectability. In addition to the Coordinates and/or routes are calculated on
flight requirements, the payload is expected the basis of data obtained through sensors
to deliver high quality sensor data. In in real time during flight (Hing & Oh, 2009:
the ground station, the data must then 6). Additionally, some UAS also have the
efficiently be interpreted automatically capability to operate in ‘swarms’, where
or manually. According to multiple units communicate with each other and are
interviewees (D3–D5; interviewee codes able to perform complex tasks together.
will be explained below) who are working

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Sven Braun, Michael Friedewald and Govert Valkenburg

In most civilian applications, payload shape that life world. This implies that
will typically consist of an attached video, translating a technology from one practice
infrared or thermal camera to get a bird’s eye to another may offer particular concepts
view. Surveillance missions often require and the discourses organized around them
additional signal intelligence hardware. the opportunity to ride piggyback on the
Armed UAS for law-enforcement purposes technology. While the intrinsic political
are envisioned (Homeland Security News qualities attributed to technologies – as in
Wire, 2011; Brumfield, 2014), but to the best Winner’s famous discussion of the allegedly
of our knowledge not in use yet. Sometimes racist bridges on Long Island (Winner, 1988)
the data captured by the payload is – have long been questioned, postulating
processed on-board, e.g. to calculate the a connection between discourses and
flight path. However, it is more common for artifacts does allow us to see how incumbent
the payload to transfer data to the ground discourses come to appear as poorly
station. There, it can be processed directly applicable to the practice they relate to.
– for example, using pattern-recognition While there are no such things as, the
algorithms, or by human operators – or it military realm and the civilian realm, we
can be stored for future analysis. do observe certain elements in debates
In terms of operational advantages, concerning the civilian use of drones that
unmanned aircraft are ideal for use due are surprising in light of existing moral
to the possibility of deploying small- and political discourses. These would,
scale systems on demand and due to the at the same time, be less surprising in a
high range and altitude capabilities and, military context. Notably the low relative
most important, the endurance of larger importance attributed to privacy by
systems. In addition, UAS are argued particular players in the development of
to be more economically efficient than drones, to be discussed shortly, seems
manned aircraft. However, this applies unacceptable once programmes such as
mainly to small-scale systems (Kornmeier, Privacy by Design (Cavoukian, 2009) have
2012: 8).4 These characteristics can be seen the light of day. Additionally, the fact
taken advantage of in different mission that privacy has become a leading principle
scenarios, including border protection, law in the development of other surveillance
enforcement and surveillance, airborne technologies such as automated license
sea patrol, search and rescue operations plate recognition and the body scanners (van
or scientific data collection (e.g. in Lieshout et al., 2015) that are nowadays
hurricanes or forest fires). In general – at omnipresent at international airports,
least in comparison to manned aircraft – clearly dismisses as overly simplistic the
UAS are typically deployed in dull, dirty or explanation that technologists in general
dangerous missions.5 would be unreceptive to moral arguments.
Also, it is highly unlikely that there is
Civilian Technologies, something exceptional to UAS in some
Military Narratives technological sense that hampers privacy-
friendly implementations. That would be
Within science and technology studies, it is a rather substantive, even deterministic,
commonly understood that concepts by understanding of technology (cf.
which people understand and take control Feenberg, 1995) and the argument would
of their life worlds cannot be separated be particularly unconvincing in regards
from the technologies through which they of the other aforementioned privacy-

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sensitive technologies. In fact, a rejection • Langheinrich’s first pattern is that


of such determinism provides an important researchers do not feel morally
ontological foundation for a doctrine such responsible for privacy, either
as Privacy by Design to be deemed feasible because privacy problems would
in the first place. not be applicable to their field of
Rather, if politics are understood as a expertise, or because other social
struggle for discursive hegemony (Hajer, processes were felt to be more
2005), then this is one way artifacts adequate to regulate such issues.
have politics. As will be articulated, the • The second rhetoric pattern is that
conceptual frameworks that travel with privacy does not need to be paid
UAS technology are successfully displacing any heed, since existing security
the aforementioned privacy-sensitive mechanisms sufficiently safeguard it.
frameworks. That they are indeed discourses • Third, privacy as such appears as a
travelling with the technology (Harris, premature issue or even a non-issue
2010), and not some category of essential in many cases, since researchers
properties belonging to the technology thought that privacy could only
itself, is revealed when researchers and be properly addressed after initial
developers are invited to reflect on the prototypes had been built.
possibilities of implementing privacy- • The fourth pattern is based on the
friendly features on UASs. A considerable third, namely that privacy would
number of times they argue that such things be no problem for prototypes, since
would be possible, yet not the primary privacy is not part of the context in
concern of UAS developers. Interviewee D1 which the early development takes
(interviewee codes will be explained below) place.
stated clearly what the primary concern is: • Fifth, some researchers thought of
‘In our development process, privacy plays privacy as too abstract of a problem
no role in the first instance. Because when to offer any sensible input to a
you develop technology, you try to solve a technical design process.
technical problem.’ • Finally, privacy is often not part of
In the following empirical sections, we specifications and requirements,
will present examples of such discourses, which entails that it is also not
and explicate the clashes between those included in deliverables.
discourses that come with the technologies
and those discourses that come from the Variants of these patterns or story lines can
purportedly ‘more civilian’ spheres of be recognized clearly in the interviews that
society. we conducted with UAS developers (D1–D5)
When looking systematically at and one researcher (R1). We understand
reasons for privacy not to be considered a these patterns as particular ways of
technical problem, strong parallels appear ‘externalizing’ privacy concerns from the
with six rhetoric patterns articulated technology development discourse. This
by Langheinrich (2003) in discourses is an important constitutive element of the
concerning the potential privacy relevant discourse coalition, i.e. the group
implications of ubiquitous computing:6 of actors across practices that share this
discourse and its meaning (Hajer, 2005):
by tapping into this repertoire of story
lines, the actors enact drones as something

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Sven Braun, Michael Friedewald and Govert Valkenburg

fundamentally distinct from discussing Civilizing Drones


privacy. They thus reproduce and sustain a
practice of UAS development that is devoid Moving UAS from military uses into civilian
of privacy concerns, and uphold their uses, their ‘civilising’ if you like, involves
legitimacy to do so. their translation (Latour, 1987): not only
are they to be moved physically to different
Empirical Base spaces and sociotechnical practices, they
also have to undergo qualitative changes
This case study is based on an analysis in order to be fit to, and function in their
of relevant literature and ten qualitative new context. Likewise, the discourses
interviews with UAS operators, developers, that we presume travel with them, will
manufacturers and researchers in undergo translation. Like any translation,
German-speaking countries, conducted this is a negotiation in which various
in August/September 2013. Two users discourse coalitions strive for hegemony.
and two potential users of UAS were Translation of both the technology and the
interviewed, five industrial developers accompanying discourses requires work, as
and/or manufacturers, and one academic with new contexts come new demands.
researcher in the field of unmanned aerial If translation is the case, it is not self-
systems (see table 2). evident for any element of either technology
In addition, freedom of information or discourse to survive or to decease: it
requests regarding privacy impact requires explanation why some elements
assessments related to UAS were sent change while others don’t.
to police forces in Essex, Merseyside, We focus on a particular element of the
Staffordshire and Derbyshire in the United military discourse that seems to survive
Kingdom and to the police in the German this translation: a low priority assigned
state of North Rhine-Westphalia as well as to concerns of privacy. Even though our
the German Federal Police. The aim was analysis does not warrant an explanation of
to understand which UAS privacy impacts the low priority of privacy concerns merely
police forces had identified and how they in terms of the military origin of fixed-wing
had dealt with them. drones, it is worth pointing out that this
prioritization appears both in the military

Table 1. Overview of interviewees


Identifier Role Description
R1 Researcher In public research and technology organization
D1 Developer In medium-sized aerospace company
D2 Developer In small company specialized in mini UAS
D3 Developer In big aerospace and defence company
D4 Developer In medium-sized company specialized in UAS
D5 Developer In big aerospace and defence company
U1 Potential user Use in commercial environment
U2 User Use for law-enforcement, part of the management
U3 Potential user Use for law-enforcement, part of the management
U4 User Use in commercial environment, sometimes in cooperation with
law-enforcement

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Science & Technology Studies 2/2015

context and in the civilian contexts of UAV the duty of the competent supervisory
deployment. This is especially noteworthy, authority: they must supervise the privacy
as privacy is among the primary concerns compliant application of UAS. The
when technologies with a potential interviewees mentioned the aeronautical
information impact are considered for authorities and the authorities that grant
application in non-military contexts. The flight clearances as a potential source
discourses enacting this prioritization of compliance monitoring. A certain
resemble the story lines identified in displacement is visible: if the problem
an abstract sense above by means of of privacy is predominantly enacted as
Langheinrich’s (2003) conceptual inventory. external to design practice, it is indeed likely
Also, we see that it is not only a discourse to re-emerge somewhere else.
with low priority for privacy, but also a Interestingly, interviewees did not
further enactment and institutionalization mention data protection authorities in this
of the externalization of privacy issues: regard, which is again an interesting parallel
those are literally delegated to sites outside with military practices, as data-protection
the design practice. authorities concern situations of peace
In the first place, many of the rather than war.
narratives held up by people involved Interviewed user U2 assumed that if there
in drones reproduce an externalization were any privacy impacts in the technology,
of considerations of privacy. Those they would have been addressed in the
considerations are not reckoned part of the procurement procedure. The freedom of
design space in which drone development information requests we sent to police forces
takes place. This is atypical, as privacy asking for privacy impact assessments made
considerations are amongst the primary in the context of UAS procurements, showed
hurdles that may be expected to appear if a that no such impact assessments had been
technology is to be deployed with potential made prior to any procurement. Therefore
public impact. Notably, within the same we assume that privacy considerations
population of experts, awareness is reflected were not part of procurement procedures.
of the existence of approaches such as All explanations provided boiled down to
Privacy By Design (Cavoukian, 2009), which the idea that ‘there is no legal requirement
explicitly pursue the implementation of for us to do so’.7 Alternatively, user U3 lists
privacy through (amongst other means) a number of privacy measures such as non-
technological design. Also, in the light retention policies and compliance with data
of their own expertise and position, processing laws as protection mechanisms,
interviewees recognize that much more is which relate to operation rather than design
technically possible to implement privacy – technical measures and early-phase
than is currently done in the development design adaptations being notably absent.
of civil-purpose UAS. It is in the ambiguity Reasons for privacy not to be part
of whether or not privacy is external to of the design problem also exist in the
technology design that, at least apparently, form of perceived attributions of moral
military styles of inference seem to retain responsibility. Five out of six interviewed
dominance. developers and the researcher (D1–D5,
In addition, the externalisation of privacy R1) did not feel morally responsible for
issues appears clearly as an institutional protecting privacy. If at all, privacy would
distribution of responsibilities. Both users become important in later development
and engineers see the issue primarily as processes such as system integration and

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Sven Braun, Michael Friedewald and Govert Valkenburg

deployment. It is reflected in the majority configured payloads. This means that non-
of interviews that ‘each system operator is military governmental customers in some
responsible for a lawful operation’ (D2), respects have similar technical possibilities
including privacy laws, as the exact privacy as do military customers. As the market
relevance of the technology hinges upon its supply of civilian fixed-wing UAS is not
particular application. very high compared to the military market,
All interviewed developers and the purchase options outside military-oriented
researcher (D1–D5, R1) stated that privacy suppliers are limited. This means that for
is too abstract of a problem to solve potential civilian users, a tendency exists
technically. D2 even stated ‘that [it] is not towards the purchasing of technologies that
possible’ to solve technically. They argued have been developed in a context in which
that during the development process, it is privacy was not a primary consideration.
not foreseeable how privacy will be situated Also, D4 argues that military parties are
in the contexts in which the system is to be hegemonic in the development of drones.
used. One interviewee stated that privacy As a consequence, privacy is not likely to
is not a problem for prototypes, since these be a feature in the ‘drone catalogue’. Even if
preliminary models will never be used non-military governmental customers have
outside the development context. Thus, other requirements, it is difficult for them to
from their point of view, there is no need find alternatives (Rodrigues, 2015).
to protect privacy in a technical way, as it These institutional and discursive
is not part of the UAS’s problem and design forms of externalization consistently
description. Five out of six literally confirm render privacy a retro-fitting problem, to
that privacy is not part of their deliverables, be resolved once the functional design of
since customers do not ask explicitly for the UAS is more or less completed. This is
such features. Also, as manufacturers, where the paradox, that possibilities for
they are not obliged to implement privacy implementing privacy in a technological
protecting features. While we would not way are both confirmed and denied,
go as far as claiming that the developers becomes even more pressing. Indeed, with
maintain a purely instrumental view of Privacy by Design in mind, it should be
technology, it is clear that they do maintain expected that such retrofitting will at best
a view of technology that attributes much deliver sub-optimal solutions (Cavoukian,
of the meaning of the technology to the 2009).
context of operation. Remarkably, the interviews do not
In addition, there is yet another provide any evidence that the persons
institutional arrangement that helps see involved in the development of UAS think of
privacy as not being a design problem. The security as a value that is to be implemented
market for fixed-wing UAS is dominated by in merely technological terms. Much like the
manufacturers who supply to both military general trend in the story lines mobilized
and non-military customers. Interviewees when discussing privacy, security is also
D2 and D4 stated that they sell their systems not seen as something particularly linked
only to users who are certified to comply to technology, but rather as something that
with laws and do not abuse the technology. is the result of a practice in which some
One interviewee from this group (D4) stated technologies happen to be deployed. Both
that his company sells exactly the same the engineers and the users interviewed
fixed-wing systems to the military and law agreed that security is something that
enforcement agencies, be it with differently emerges as a result of how technologies are

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Science & Technology Studies 2/2015

used, not as an unmediated consequence time. The literature has widely disproved
of those technologies. Developer D2, for the idea that privacy and security must be
example, mentions that UAS technology mutually exclusive values (Solove, 2008,
‘alone cannot contribute to public security’ 2011; van Lieshout et al., 2013; Valkenburg,
but rather adds to an already existing set 2015). Yet, in the discourse coalition of UAS
of tools of governmental users. This view producers and users it seems as if these
is consistent with the other engineering values cannot be served at the same time:
interviewees who claimed that they provide it takes the function of security as the main
a tool that is then deployed by someone driver for the development of drones, while
else. This view was epitomized in one putting privacy ‘on hold’ for a later phase of
interview, when developer D4, who is only development.
supplying to governmental customers, The idea that privacy is not a moral
explicitly rejected the view of UAS as being obligation for designers and producers to
a security technology. Rather, he described implement into their UASs, is of course
it as platform systems: ‘It depends on what closely related to what they think privacy
you do with this platform, how you equip this is. All five engineers (D1–D5) and the
platform, which payload will be mounted, researcher (R1) interviewed reproduce a
and above all, how the [information legalistic understanding of privacy in the
generated by the] payload will be used in the context of UAS development, namely that
ground station’ with security being only one ‘what is meant here by privacy is enshrined
of many use cases. in law’ (D3). It became clear that this
This is again the intricate balance between view hinges heavily on the principle of
technological instrumentalism and radical informational self-determination and
social constructivism: neither technologies on existing data protection laws. When
nor socio-cultural arrangements determine talking about privacy, most interviewees
what privacy and security are, but rather did not distinguish between the protection
how the technology operates in its proper of personal data and the protection of
context. It is vital to recognize here that this privacy and the private sphere in a wider
shape of the discourse silences contestation sense. Thus, the ontology predominantly
of hegemonic perspectives. In particular, maintained in practice constitutes a
it silences privacy issues, and it leaves relatively narrow definition of privacy.
perspectives on security uncontested. In This results in a low likelihood for privacy
this very particular arrangement, a strong to become an integral part of the design
parallel is reflected with the military process.
deployment of drones, and their appearance This is again a salient similarity between
as security devices. While the latter may the military discourse and the de facto
not be the cause of the former, it is worth discourse on civilian UAS. In war and
pointing out that the de facto structure of combat situations, military operations are a
the discourse on civilian UAS is favourable matter of life and death. The life of a soldier is
towards patterns already existing around valued highly, even when national security
military UAS. is at stake. This means that even if national
Thus far, we have mainly considered how security ultimately outweighs the soldier’s
privacy is thought to be something existing security, the two are at least commensurate
outside the technological design space. in the sense that it is considered that both
Another question is whether or not privacy should be considered and weighed against
and security can be realized at the same each other. To deliver these two forms of

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Sven Braun, Michael Friedewald and Govert Valkenburg

security, the highest possible quality of Oddly enough, only interviewee U1 gave
data is needed, without any limitations, or a thought to technical mechanisms to
so it is argued in the military discourses ensure compliance with legal requirements
that we observed in multiple interviews. regarding data protection and privacy.
In such situations, privacy is not much
of a concern, and certainly ranks below Conclusion
national security and soldier life. Thus, if
indeed a military perspective is assumed, It followed from the interviews that the
it is at least understandable that privacy problem of privacy was largely assigned to
becomes excluded from the discourse, and users, not to designers. However, as existing
by consequence fails to become part of discourses show, quite some potential exists
technical requirements for military UAS. for privacy to be pursued in the (arguably
Interviewee D5, who is working for the technical) design phase, rather than post-
governmental as well as for the commercial hoc in the form of regulation. There is no
market, reported that his company’s natural or self-evident reason why this
business model is not just to sell UAS, but potential could not be realized, and in
also to offer services based on unmanned fact interviewees often acknowledged
aviation, e.g. monitoring of critical this potential as realistic. We have tried
infrastructure such as gas pipelines. In this to explain the ‘unrealisation’ of this
case an interesting situation emerges: the potential by reference to the capability of
manufacturer is also the user who has to military discourses to travel with the very
comply with all regulations. Consequently, technologies in question.
this interviewee has a general interest in Part of the answer, as we argued above,
technological designs that implement and might be in the military history that
guarantee privacy and, at the same time, preceded the current state of affairs in
fulfil the desired mission. These thoughts unmanned flying. Privacy simply is not an
confirm that privacy could indeed become important concern in military operations.
part of the technical problem description Also, since, even today, the military is still
through the shifting and merging roles of an important client of UAS vendors, it is to
manufacturers and users. Hitherto, though, some degree understandable that incentives
while this opens the door for Privacy are missing to pay more attention to privacy
by Design and similar approaches, the in the development of UAS. However,
emphasis is yet on operational and post- this explanation is far from complete: as
design solutions, not on the implementation unmanned flying is currently developing
of privacy in the technological design at an rapidly, especially in the civilian sector, it
early phase. could be equally self-evident that there is
The interviewed users’ and potential economic potential in creating marketable
users’ understanding of privacy concurs products that offer innovative solutions to
with the engineers’ understanding of privacy concerns.
privacy as a post-design issue. An important It is for this reason that additional
difference was, though, that the users research might reveal further reasons
additionally reflected on the socio-political why this seemingly military discourse is
consequences of UAS deployment and so attractive outside the military sphere.
even had personal concerns and fears While it long has been suggested that it
regarding privacy. This aspect did not is not naturally given for technological
come up in interviews with engineers. design practices to realise other values than

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efficiency (Feenberg, 2002), it is also fair to redesigning how costs and benefits are
say that considerable attention has been defined and how they are distributed, and
paid to examples of technologies where it involves redefining the notion of privacy
other human values are yet inscribed, not itself so as to make it apt for informing
least the Privacy By Design framework technological design in this particular
mentioned earlier (Cavoukian, 2009). More practice. That is to say: the problem of
detailed study of the histories and contexts privacy will have to be translated such that
of involved people might reveal why privacy it fits the development process of UAS. In
has yet not become part of their practice. It this respect, it is important to realize that
might have been missing in their education, the technical potential to develop privacy-
it might be that tacit parts of the corporate friendly solutions is not something that
structures they work in are particularly sits on a shelf to be picked up, but requires
geared against such considerations, it might further adjustment and fine-tuning towards
be that spheres in which procurement takes the very design of UAS. In consequence,
place are unfavourable to such offers, or making privacy respecting UAS takes more
other. than simply discussing what privacy could
Yet, despite the fact that we at least have be in this particular context. It also requires
to be open to such alternative explanations discussing how the development process
that are neither confirmed nor disproved of UAS must itself be revised, and how
by our empirical analysis, we can conclude discourses and institutional structures must
first, that a particular distribution of be devised that resemble less the military
responsibility is apparently reproduced in context and discourses that externalize the
the practices of UAS development. This issue of privacy.
reproduction takes both material and If the argument of this paper cuts ice,
discursive shapes. The discursive part any normative program pursuing a more
has been explained above: as is clearly privacy-friendly design for UAS should
witnessed in the interviews, people keep start not at the level of normative ideas,
talking about UAS in the particular frame but at the meta-level of how discourses
that renders privacy a non-issue – or at are arranged. This should include an idea
least as a non-issue for technical design. of how this meta-level depends itself on
The material part is the fact that change the technologies it discusses and of how
is always costly in the short term: it is not technologies and discourses are closely
surprising that the cheapest option is simply knit together. Only then can the more
to recycle military designs (the so called conceptual avenue, of discussing how
‘lock-in effect’). It is also in the fact that once privacy can be internalized such that it
these UAS are there, they pre-structure how becomes commercially interesting, be
people tend to talk and think about them. explored and hence made part of the
Some options are more within reach than (technical) design specifications. This would
others, simply because a particular material include an exploration of ways the design of
configuration already exists. UAS can be better politicized, rather than
Second, part of the answer to the defining privacy outside the scope of design
question of why respect for privacy is not requirements, thus emptying the design
an internal part of the design process may practice of one particularly controversial
lie in the fact that ‘implementing privacy’ is issue. Bringing it in will likely generate the
never just that. It also involves redesigning friction that is needed to come to creative
notions of safety and security, it involves solutions and connect the radically different

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discursive universes of the military and the European RPAS Steering Group (2013)
civilian realms (cf. Tsing, 2005). Roadmap for the integration of civil
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Sven Braun, Michael Friedewald and Govert Valkenburg

becoming-energys-new-roustabouts. 6 Ubiquitous computing is the concept


html?_r=0 (accessed 30.04.2015). to invisibly embed computing and
communication hardware in all kinds
Notes of object and in the environment
with the goal to make computing
1 For a recent analysis of the privacy and capabilities available everywhere and
ethical aspects of UAS surveillance see anywhere.
(Finn & Wright, 2012). 7 In Europe, privacy impact assessments
2 In Europe discussions are going on are a relatively new instrument and not
whether small scale UAS should required by law. As ‘data protection
be brought under the umbrella of impact assessment’ a variant is
European Civilian Aircraft Authorities proposed in Art. 33 of the draft General
as well; this also deals with the private Data Protection Regulation. See
use of UAS for sport and leisure. (European Commission, 2012)
3 Even though it is questionable whether
the war on terror is formally a war, we Sven Braun
believe this distinction is not relevant Technical University of Darmstadt
to the current argument. 64289 Darmstadt, Germany
4 Accordingly, small-scale systems sb@devbraun.de
mostly have low range, altitude and
endurance. Large and mostly fixed- Michael Friedewald
wing UAS having a high range, altitude Fraunhofer Institute Systems and
and endurance are mostly very Innovation Research
expensive. For example, the Global Breslauer Strasse 48
Hawk by Northrop Grumman, which 76139 Karlsruhe, Germany
is not yet in use for civil applications, michael.friedewald@isi.fraunhofer.de
costs about $ 222 million without
maintenance costs. In addition, Govert Valkenburg
interviewee R1 stated that due to Maastricht University
personnel and infrastructure costs an Faculty of Arts and Social Sciences
unmanned flight is generally more Maastricht, The Netherlands
expensive than manned flights, except g.valkenburg@maastrichtuniversity.nl
for systems that can be operated by
few persons. See (U.S. Government
Accountability Office, 2013: 113)
5 In the context of UAS `dull’ means
long-endurance missions requiring
very long flight times. `Dirty’ means
missions with a risk of human exposure
to nuclear, biological and chemical
agent concentrations. `Dangerous’
missions are those with a risk of human
exposure to air defence and counter-air
defences.

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Philippe Sormani. Respecifying Lab Ethnography:


An Ethnomethodological Study of Experimental Physics. Surrey, England:
Ashgate Publishing Limited. 2014. 278 pages.

What could another lab ethnography of This opens the door to additional and
physics research teach STS scholars? In related problems, Sormani argues, when
his new book, Philippe Sormani takes on a analysts assume from the outset that a fact
branch of experimental physics known to is “constructed” rather than beginning
practitioners as “STM” of “CSC” to showcase with the practical challenge and research
what he believes it can teach us. For the un- question “how do lab members recognize
initiated (like your reviewer), STM refers to facts?”. For decades, ethnomethodologists
Scanning Tunnel Microscopy and CSC refers and ethnomethodologically-informed
to Complex Superconducting Materials. sociologists have urged scholars to examine
One lesson Sormani offers has to do with members’ common sense knowledge of
a critique of an earlier generation of lab social structures. Building on these efforts
studies (i.e. Collins, 1985; Latour & Woolgar, to reinvigorate sociology, Sormani has
1979; Pickering, 1984; Pinch, 1986; Traweek encountered a paradox. Sormani argues that
1988). Sormani (2014: xiii) argues that his he contributes to STS discourse by analyzing
book “delivers [...] a critique of analogical members’ common sense knowledge
shortcuts in the ‘laboratory studies’ instead of importing the concepts popular
tradition”. The analogies here are comprised in STS. But in order to do this, he has
of analytical concepts central to STS, to use and analyze concepts that are
including but not limited to “construction” probably unfamiliar and/or unimportant
and “inscription”. Sormani treats the use to the anthropologists and sociologists who
of these concepts as a “shortcut” in order maintain an interest in lab studies. Thus,
to underscore his argument that earlier emphasizing member relevancies poses the
lab ethnographies have analyzed lab work risk of estranging the scholars whose work
with second order concepts rather than the it challenges and who are in a position to
first order concepts (Schutz, 1973) that lab describe and circulate its contributions to
members themselves use to organize lab STS discourse. As a sociologist informed by
life. In the case of STM of CSC, physicists some ethnomethodological ideas, I am very
use the first-order terms “measurement”, sympathetic to this trapped position stuck
“tip-sample approach”, and “local between a rock and a hard place. While
spectroscopy”. In a fascinating discussion, the focus on member relevancies can pose
Sormani also describes in great detail how this challenge, Sormani’s writing posed few
he learned these member relevancies. challenges for this reviewer. When he does
He does this by adopting Wieder’s (1974) develop second order concepts, his choices
policy of doing ethnography and treating seemed reasonable to me. For example, he
what members do with the ethnography describes his book as offering a “practice-
and ethnographer as opportunities to based video analysis”, a video analysis that
learn about the setting and its members.

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Science & Technology Studies 2015, Vol. 28(2) 88-90
Book Review

incorporates the practices of the analyst Inspired by Lynch’s (1985) discussion of


into the analysis. “incipient talk”, or talk that is interrupted
Sormani’s second argument is related to, with longer silences and that does not
but also distinct from the first one. Sormani require repair sequences like other spates of
provides a critique of video analysis in talk because members are engaged in silent
ethnomethodological inquiry. Surveying activities, Sormani describes some speech
ethnomethodological studies generally (and norms on the shop floor. For example, lab
not just ethnomethodologically-informed members do not expect others to ask them
STS research), Sormani argues that the ways questions as they are working. Members
they deploy video analysis tend to ignore or common sense knowledge of language,
discount the analysts practical experiences then, could be a useful means for STS
with the activity documented in the video or scholars to examine technoscience settings
the work of producing video documentation where scientists and engineers do not
of the activity. To address this, Sormani appear to be “compulsive talkers” (Amann
includes descriptions of his practical & Knorr-Cetina, 1989).
experiences struggling through the work While Sormani’s book features a number
of microscopic experimentation alongside of strengths, it also leaves an important
screenshots from videos he has made. unanswered question. The question
The old relationship between talk and concerns what lab members do with
action rears its head here. While Sormani writings. While lab members may refer to a
stakes out his contribution in terms of number of different kinds of writings such
displaying the member relevancies as as scholarly writings, textbooks, popular
talk, he doesn’t make the analytic mistake writings, and their own writings, Sormani
of reducing member relevancies to talk. only refers to lab members’ dissertations,
Instead, lab work is both symbolic and a textbook he uses to learn lab work, and
material, tacit and manifest. Lab work very briefly, a published article recounting
is symbolic because it is recognized and a discovery. The dissertations are referred
done, in part, through lab members’ and to in a discussion of discovery and the
ethnographers’ talk. It is material in the ethnographer, and the published article is
sense that it is only done through a set of described within a discussion of discovery.
material practices, practices of the body But there are few other references to
and practices that operate on material writings, and so we are left wondering
things. It is also tacit because as Sormani why? Sormani does not offer an account
and Lynch (1984) found, lab members rely for this. As a reader and reviewer I expected
on background knowledge to make sense complex, multivariable equations like
of talk, and this background knowledge is the “model equation” which outlines the
typically unspoken and difficult for users to ideal workings of the lab’s research to be
describe. Lab work is also manifest because encountered and explained with recourse
although lab members do not talk about to a scholarly article and/or textbook.
their background knowledge, they do swap Setting this unanswered question
short stretches of talk as they go about aside, there is a lot to like about this book.
doing lab work. Although the relationship Unlike the challenging writing choices
between talk and action is an old concern of earlier ethnomethodologists, Sormani
of sociology, Sormani’s approach offers a has produced a well-written book. It is
new vantage point on this old problem. For thoughtful, carefully reasoned, and very well
STS, there are some neglected resources. organized in terms of sections and ongoing

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Science & Technology Studies 2/2015

“conclusions” detailing what he makes of Pinch T (1986) Confronting Nature: The


what he has found. Based on Sormani’s Sociology of Solar-Neutrino Detection.
arguments, STS scholars interested in lab Dordrecht: Kluwer.
studies, ethnography, ethnomethodology, Schutz A (1973) Collected Papers I: The
visual methods, and the relations between Problem of Social Reality. The Hague:
talk, science, and technology should read Martinus Nijhoff.
this book. Sormani, Philippe (2014) Respecifying Lab
Ethnography: An Ethnomethodological
References Study of Experimental Physics. Surrey,
England: Ashgate Publishing Limited.
Amann K. & Knorr-Cetina K (1989) Thinking Traweek S (1988) Beamtimes and Lifetimes:
Through Talk: An Ethnographic Study The World of High Energy Physicists.
of a Molecular Biology Laboratory. Cambridge, MA: Harvard University
Knowledge and Society 8: 3–26. Press.
Collins HM (1985) Changing Order: Wieder DL (1974) Language and Social
Replication and Induction in Scientific Reality: The Case of Telling the Convict
Practice. London, England: Sage. Code. The Hague: Mouton.
Latour, B & Woolgar S (1979) Laboratory
Life: The Construction of Scientific Facts.
London, England: Sage. Matthew J. Cousineau
Lynch M (1985) Art and Artifact in Department of Sociology, Anthropology, &
Laboratory Science: A Study of Shop Talk Social Work
and Shop Work in a Research Laboratory. 7022 Haley Center
London, England: Routledge. Auburn University
Pickering A (1984) Constructing Quarks: A Auburn, AL. 36830
Sociological History of Particle Physics. MJC0035@auburn.edu
Chicago, IL: University of Chicago Press.

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Science &
Technology Studies
Volume 28, Issue 2, 2015

Articles

Michael Morrison 3
STS and Enhancement Technologies:
A Programme for Future Research

Karen Dam Nielsen 29


Involving Patients with E-health:
The Dialogic Dynamics of Information Filtration Work

Shai Mulinari, Tora Holmberg and Malin Ideland 53


Money, Money, Money?
Politico-Moral Discourses of Stem Cell Research in
a Grant Allocation Process
73
Sven Braun, Michael Friedewald and Govert Valkenburg
Civilizing Drones:
Military Discourses Going Civil?

Book Review

Philippe Sormani 88
Respecifying Lab Ethnography:
An Ethnomethodological Study of Experimental Physics
by Matthew J. Cousineau

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