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This document will expire as APA policy in 10 years (2031). Correspondence regarding the Guidelines for the Evaluation of Dementia and Age-Related
Cognitive Change should be addressed to the American Psychological Association, 750 First Street, NE, Washington, 20002-4242.
Suggested Citation
American Psychological Association, APA Task Force for the Evaluation of Dementia and Age-Related Cognitive Change. (2021). Guidelines for the
Evaluation of Dementia and Age-Related Cognitive Change. Retrieved from https://www.apa.org/practice/guidelines/
The Guidelines 6
Conclusion 19
References29
GUIDELINE 1 GUIDELINE 2
Psychologists gain specialized competence in Psychologists performing evaluations of dementia are
assessment and intervention with older adults. familiar with the prevailing diagnostic nomenclature and
specific diagnostic criteria.
Rationale
A central ethical tenet for psychologists is that they practice only Rationale
within their area of competence (APA, 2017a). In addition to meeting A clear understanding of how cognitive disorders are defined and diag-
general competency benchmarks for the practice of professional nosed is important for developing assessment plans, providing feed-
psychology (APA Competency Benchmarks in Professional back to individuals and their family members, and communicating
Psychology, 2012a), psychologists who conduct evaluations of effectively with other professionals involved in an individual’s care.
dementia and age-related cognitive changes are encouraged to Differential diagnosis requires knowledge of a broad range of psy-
obtain special competencies required for this activity. Specialized chological and medical conditions that can affect an individual’s
training in geropsychology and/or neuropsychology and/or rehabil- cognitive and behavioral functioning and an appreciation of both the
itation psychology provide conceptual and clinical foundations for general trends and individual differences that characterize typical
practice in this area. cognitive aging. Because diagnostic nomenclature and criteria
evolve in response to clinical and scientific advances, updating of
Application knowledge is important to sustain a high level of proficiency in
Psychologists engaged in evaluation of dementia and age-related assessing cognitive disorders.
cognitive change have a solid foundation in clinical psychology. In
addition, they are encouraged to obtain and maintain fundamental Application
education, training, and supervised experience in specialties and Psychologists are encouraged to obtain training and continuing educa-
subfields including but not limited to geropsychology, neuropsychol- tion to enhance and maintain their expertise and to utilize current
ogy, rehabilitation psychology, psychopharmacology, neuropathol- diagnostic methods, concepts, criteria, and nomenclature in their
ogy, and psychopathology. Competence in gathering clinical history; evaluations of older adults.
conducting clinical interviews; administering, scoring, and interpret- The Diagnostic and Statistical Manual of Mental Disorders (5th ed.;
ing psychological and neuropsychological tests; and delivering inter- DSM–5; American Psychiatric Association, 2013) outlines diagnostic
ventions to people living with dementia or age-related cognitive criteria for the clinical syndromes of major neurocognitive disorder
impairment and their families is necessary but may not be sufficient. and mild neurocognitive disorder. Although the nomenclature of the
Psychologists obtain training in cultural psychology and strive for DSM-5 is different from ongoing research definitions and prior DSM
multicultural competence in clinical practice with older adults. diagnoses, in general, a major neurocognitive disorder that is thought
Psychotherapy and other intervention training, as well as training in to be due to a likely neurodegenerative etiology is consistent with a
interprofessional consultation is beneficial for psychologists work- classification of dementia and mild neurocognitive disorder is
ing with older adults and their families as they navigate the chal- consistent with the concept of mild cognitive impairment (MCI; note
lenges that dementia and cognitive impairment have on daily living, it is also possible to have a major or mild neurocognitive disorder due
particularly interventions designed to help individuals to adjust to to non-degenerative etiologies such as Traumatic Brain Injury (TBI),
diagnosis and its implications, assist family caregivers, reduce unmet infection, or other disease processes). The DSM-5 now includes
needs, and address behavioral and psychological symptoms that additional criteria for determining the likely etiologies of a neurocog-
occur in the context of dementia. Psychologists also strive to stay nitive disorder due to Alzheimer’s disease (AD), (e.g. frontotemporal
abreast of state laws pertinent to dementia evaluations and lobar degeneration, vascular disease, dementia with Lewy bodies).
diagnosis. Separate from the DSM-5, familiarity with other diagnostic
schemes for dementia and MCI such as the International
Classification of Diseases (ICD) codes and disease-specific task
forces is encouraged. For example, for Alzheimer’s disease, slightly
different classification guidelines for dementia and MCI due to AD,
as well as preclinical AD, have also been provided by task forces
jointly established by the National Institute on Aging (NIA) and the
Alzheimer’s Association (AA; Albert et al., 2011; Jack et al., 2018;
McKhann et al., 2011; Sperling et al., 2011). The NIA-AA guidelines
GUIDELINE 3 to lack the capacity to refuse the evaluation. When describing the purpose, nature,
Psychologists are aware of the In some situations, the capacity evaluation and procedures of the evaluation with the
special issues surrounding informed stops there. In other situations, where a older adult, the psychologist uses terms in
capacity evaluation is court ordered, the a manner that will foster optimal under-
consent in older people living with
psychologist may be asked to provide an standing. To do this, psychologists consider
cognitive impairment. opinion based on his or her observations of the many factors that may impact
the person (ABA & APA, 2008, p.35).” decision-making (e.g., educational
The presence of dementia alone does background, culture, experience in health-
Rationale not imply that the person lacks decision-mak- care settings) and tailor their language
ing capacity. accordingly. In securing informed consent,
Psychologists recognize that informed con- Questions of capacity are addressed psychologists explain to individuals and
sent can be a special challenge in dementia with focused capacity evaluations that their legal proxies the following issues,
evaluations. Informed consent requires that address specific capacity domains (e.g., including but not limited to:
one’s agreement to assessment and treat- medical and financial decision making • what to expect in the evaluation (e.g.,
ment be competent, voluntary, and informed capacity) through assessment procedures the length of the appointment, how and
(American Bar Association [ABA] & APA, described by the ABA and APA (2008). to whom feedback will be provided, the
2008; Moye & Wood, 2020). Informed These include not only assessment of cogni- absence of invasive or painful proce-
consent implies the person has the capacity tive change, but also functional elements dures, the challenging nature of cogni-
to understand the significant benefits, risks, relevant to the capacity domain, other tive testing),
and alternatives of the proposed assess- psychological disorders, value and prefer-
ences, as well as steps that can enhance • the financial costs of an evaluation (e.g.,
ment and to make and communicate a
capacity including supported decision-mak- what insurance will and will not pay for,
health care decision (Uniform Health-Care
ing (ABA & APA, 2008; Moye, 2020). who is ultimately responsible for paying
Decisions Act, 1994). Yet cognitive impair-
Supportive decision-making enables older costs),
ment in the context of dementia may limit
one’s capacity to make healthcare decisions adults with cognitive impairment to make • the benefits and risks for the person
without support. This dilemma creates the decisions about their life and care, while
being assessed,
appearance of a double bind regarding receiving help and guidance from a trusted
obtaining informed consent for dementia network of people (Moye & Wood, 2020). • limitations to confidentiality (including
evaluations. Psychologists also recognize that exploita- reporting suspected elder abuse),
tion of older adults does occur and evaluate
• constraints on release of raw test data,
Application the possibility that an assessment may be
and
requested for reasons that may not be in the
The ABA and APA’s (2008) Assessment of Older best interest of the client (e.g., a family • mandatory reporting requirements.
Adults with Diminished Capacity: A Handbook for member hoping to take control over
Psychologists provides guidance to help the Benefits of the assessment may
finances for their own gain).
clinician when assessing persons who may include gathering of helpful clinical infor-
Consistent with the APA Code of
have diminished capacity. This handbook mation to be used in diagnosis and treat-
Ethics, when conducting evaluations of
notes, ment planning including ways to develop
dementia and cognitive change, psycholo-
“The person may have capacity to supports that would optimize their auton-
gists seek to balance the person’s autonomy
consent to the evaluation, and either agrees omy, while potential risks may include the
and protection (Bush, Allen, & Molinari,
or refuses. In this case, the person has loss of decision-making rights, preclusion
2017). The development of dementia may
provided a valid agreement or refusal, and from certain services or nursing home
threaten one’s autonomy and increase the
this can be documented. Alternatively the placement, potential lack of confidentiality,
need for greater protections to enhance
person may not have the capacity to consent and the possible need for a guardian or
safety such as supported decision-making;
to the evaluation, and either agrees or conservator. Psychologists recognize these
however, psychologists also seek to
refuses. If the person agrees, [they are] potential risks and inform the patient/client
promote as much autonomy as possible,
generally said to have “assented” and the what documentation will arise from an
recognizing that overprotection and
assessment process goes forward. If the evaluation (e.g., written report, verbal
inappropriate removal of one’s rights also
person disagrees, and refuses to comply communication, note in chart) and ways the
carries risks to the well-being of people
with an interview, then the psychologist information from the evaluation may be
living with dementia.
must document why the person is believed used by a recipient of that information
GUIDELINE 6 Psychologists strive to utilize dementia (ABA & APA, 2008; Mackinnon &
Psychologists strive to obtain all supported decision making approaches Mulligan, 1998). Obtaining contextual and
appropriate information for when the person’s ability to recall and historical information from interviewing the
communicate personal and medical infor- client and knowledgeable informants
conducting an evaluation of
mation is limited by cognitive impairment. improves diagnostic accuracy and, ideally,
dementia and age-related cognitive When an individual is able to give only considered in combination with perfor-
change, including pertinent medical limited self-report, psychologists seek mance-based measures and self-report
history and communicating with consent or assent from the individual to (Edmonds et al., 2014; Galvin et al., 2005;
relevant health care providers. gather corroborative information from Mast & Yochim, 2018; Monnot, et al., 2005).
other informants including family members Interview data from a corroborative source,
Rationale and care providers. Psychologists inform such as a caregiver or knowledgeable family
these sources of the potential uses of the member, can provide information on every-
Cognitive function and change are associ- information and the limits to confidentiality. day cognitive functioning (Waite et al.,
ated with several medical and psychosocial In obtaining collateral information, the 1998). A potential advantage of informant
conditions that must be considered in any psychologist considers the interpersonal/ history is the ability to assess change in
evaluation of current cognitive performance. family dynamics and cultural contexts as functioning from earlier in life, which also
However, individuals and even knowledge- well as the potential motivations of infor- provides an important context from which
able informants may be imperfect histori- mants. For example, depression can influ- to interpret the objective test scores (Jorm,
ans or lack information regarding the ence the reports of both the person referred 1996). Finally, obtaining data from infor-
individual’s past and current medical status, for assessment and their family caregivers. mant interviews can add greater precision
neuroimaging findings, medication use, and Utilization of multiple sources of data helps in the design of appropriate behavioral,
daily function. Medical, occupational, and offset these issues. environmental and pharmacological treat-
educational records and family history doc- In practice, the amount of reliable ments of dementia (Hartman-Stein et al.,
uments can provide important contextual information available to the psychologist for 2002; Mast, 2011; Waite et al., 1998).
and functional information pertinent to the the evaluation may be highly variable,
evaluation (ABA & APA, 2008). depending in part on the availability of Application
relevant records as well as knowledgeable
Application Clinical interviews with the client and knowl-
family, friends, and other professionals.
edgeable informants (e.g., family, close
Prior to conducting the evaluation, psychol- Conclusions and recommendations from
friends) provide a more complete picture of
ogists seek to clarify the referral question by the evaluation may be constrained by the
the person’s history, daily functioning, sup-
reaching out to the referral source. need for further information or a follow-up
port systems, and other social and psycho-
Psychologists strive to fully understand all evaluation.
logical resources. Directly interviewing the
facets of the referred individual’s context, person being evaluated for dementia com-
including the perspective of the person municates respect for the person’s perspec-
who has been referred for evaluation. tive and life history, while evaluating
Psychologists are encouraged to consult firsthand the level of cognitive function and
with other health care providers and seek GUIDELINE 7 the individual’s awareness of any cognitive
relevant records, particularly concerning Psychologists conduct a clinical and behavioral changes (Mast, 2011). It also
the individual’s health status, medical his-
interview as part of the evaluation. enables the psychologist to discern psycho-
tory, dementia-related biomarkers such as social stressors or other mental health
neuroimaging or cerebrospinal fluid infor- problemsthat may be contributing to cogni-
Rationale
mation, and current medications. Recent tive change. Such data obtained from direct
medical evaluations provide critical data Although objective testing provides valu-
interviews are invaluable for both diagnos-
concerning the onset and course of cogni- able data for diagnostic purposes, the clini-
tic and intervention planning purposes, and
tive changes. cal interview remains one of the central
enables the psychologist to tailor
elements of an in-depth assessment for
Application