Professional Documents
Culture Documents
L
ITTLE IS KNOWN about demographic, deafness-related, and diagnostic
characteristics of deaf and partially hearing people with psychosocial or
psychiatric problems. A study was conducted derived from data from
intake assessment interviews of people with hearing loss treated at a
Dutch ambulatory mental health center for the deaf between 1987 and
1999. Both sexes were equally represented. People who were postlin-
gually deaf, hard of hearing, below age 22 years, or above age 65 years
were less likely to ask for help than other groups in the study. Men pre-
sented more psychiatric disorders, and women more psychosocial
problems, especially partially hearing women. The authors recom-
mend stronger emphasis on mental health care for postlingually deaf
people, severely hard of hearing people, adolescents, and retirement-
age people. They also recommend development of skills for rational
and emotional self-expression in the education and rearing of children
ED DE BRUIN AND RON DE GRAAF with hearing loss.
In the past, very little was known mental health status of deaf people in
DE BRUIN IS HEAD OF PSYDON, THE
about the mental health problems of a few countries, among them the
NORTHWEST NETHERLANDS MENTAL HEALTH
deaf and hard of hearing people. Help United Kingdom (Adams, 1989; Den-
CENTER FOR THE DEAF AND PARTIALLY
for such problems was often inade- mark, 1966; Denmark et al., 1979),
HEARING, MENTRUM COMMUNITY MENTAL
quate, too. Care professionals were Norway (Basilier, 1964), and the
HEALTH INSTITUTE, AMSTERDAM,
unfamiliar with the experiential world United States (Althshuler, 1971).
NETHERLANDS. DE GRAAF IS A SENIOR
of deaf and partially hearing people, In the Netherlands, this lacuna in
SCIENTIST IN THE MONITORING AND
and were unaware of the role that the social services to the deaf was
EPIDEMIOLOGY DEPARTMENT, PSYCHIATRIC
deafness could play in their emotional pointed out in 1988. At that time, social
EPIDEMIOLOGY UNIT, NETHERLANDS
problems. Most professionals could work with deaf and partially hearing
INSTITUTE OF MENTAL HEALTH AND
not even communicate adequately people was done by deaf institutes,
ADDICTION, UTRECHT.
with deaf people. Usually this resulted which meant that adults with mental
in inadequate diagnoses and in unpro- health problems had to go “back to
ductive or prematurely terminated school” to get help. Much has changed
treatments (Gerber, 1983; McEntee, since then. Social work services have
1993; Steinberg, 1991). Some limited become independent of the deaf in-
information was available about the stitutes, and the Regional Institutes for
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385
dance with the DSM-IV classification Results of the females lived in Amsterdam, a
system (American Psychiatric Associa- Demographic Data significant gender difference. As ex-
tion, 1994). The database allowed for Over the 13-year period, the clients pected, most clients had received
the entry of several Axis I scores, with (N = 214) were almost evenly distrib- their primary education in a school
the most prominent symptom always uted between females (108) and for the deaf or a school for the par-
entered first. In the present analysis, males (106). Table 1 shows that the tially hearing, but it is worth noting
we used this primary Axis I diagnosis large majority of both male and fe- that as many as 7% had not finished
only. male clients were in the age category primary school at all. About three
22 to 65 years. About half the clients quarters of the males and a little over
Data Analysis of both genders were single at the half of the females had completed
X2 tests were used to identify statisti- time of intake; about a third were only lower vocational school after
cally significant differences between married or cohabiting. About three their primary education. Significantly
subgroups. quarters of the males and nearly half more women than men had com-
Table 1
Demographic Data at Intake for 214 Deaf or Severely Hard of Hearing Clients, Northwest Netherlands Mental Health Service for
the Deaf and Partially Hearing (PsyDoN), 1987–1999
Age (years) n % n % n % X2 df P
0–21 25 24 19 18 44 21
22–65 79 75 86 80 165 77
> 65 2 2 3 3 5 2 1.31 2 .52
Civil status
Single 55 52 56 52 111 52
Married/cohabiting 31 29 34 31 65 30
Divorced 10 9 8 7 18 8
Living with parents 10 9 10 9 20 9 0.34 3 .95
Residence
Amsterdam 77 73 53 49 130 61
<50 km from Amsterdam 14 13 23 21 37 17
>50 km from Amsterdam 15 14 32 30 47 22 12.74 2 .002
Primary education
School for the deaf 68 64 75 69 143 67
School for the partially hearing 21 20 12 11 33 15
No primary school completed 8 8 6 6 14 7
School for the hearing 9 815 14 24 11 4.56 3 .21
Secondary and postsecondary education
Lower vocational 82 77 55 51 137 64
Middle secondary 4 4 16 15 20 9
Middle vocational 15 14 26 24 41 19
Higher education 5 5 11 10 16 7 17.12 3 .00
Employment
No paid employment 66 62 56 52 122 57
Paid employment 33 31 47 44 80 37
Student 7 7 5 5 12 6 3.59 2 .17
Cultural origin
Ethnic Dutch 76 72 85 79 161 75
Not ethnic Dutch 30 28 23 21 53 25 1.41 1 .24
Note. Because of rounding, percentages may not total 100 in all cases.
386
pleted higher education. Nearly two Mental Health Diagnoses fold for men and fivefold for women.
thirds of the males and more than half Table 3 summarizes the psychological The group above age 65 years was tiny
of the females did not have paid em- and psychiatric presentations at in- in both periods. Overall, males consti-
ployment. More than a quarter of the take, as assessed with the DSM-IV clas- tuted the majority of clients in the first
males and more than a fifth of the fe- sification system. Notably, the milder period (58%), but not in the second
males were of non-Dutch extraction. problem pattern “psychosocial prob- (47%).
lems” was significantly more prevalent
Data on Deafness and in females (50%) than in males (35%). Discussion
Communication Anxiety disorders and substance use We first wanted to know our clients’
Table 2 shows that about three quar- disorders were significantly more characteristics in terms of demogra-
ters of the male clients and about two common among males, and schizo- phy, auditory impairment, and mental
thirds of the female clients were phrenia was marginally more com- health problems. Viewed over the en-
prelingually deaf—that is, they had be- mon. tire 13-year period, PsyDoN served
come deaf before their third birthday, about equal numbers of male and fe-
before speech and language develop- Associations Between male clients. This contrasts with the
ment had gotten underway. Very few Demographic Characteristics Dutch population study of deaf and
postlingually deaf people (i.e., people and Severity of Mental Health severely hard of hearing people we
with hearing loss occurring at age 3 Problems have cited, which found that females
years or later) applied to the facility. As Table 4 shows, none of the variables were more likely than males to use
More than half the clients did not revealed significant differences be- some form of care, and also to use
know the cause of their deafness. The tween male clients with serious mental mental health care services (De Graaf
vast majority had no additional physi- health problems and males with milder & Bijl, 1999, in press). We have no
cal or psychological impairments. A problems. Although higher propor- clear explanation for these divergent
similar proportion reported no deaf- tions of the more seriously affected findings. Interestingly, more than
ness in their direct family line. Just un- males were single, were hard of hear- three quarters of our male clients
der half reported affinity with both the ing as opposed to prelingually deaf, resided in Amsterdam, against only
hearing and the Deaf cultures. No sig- and used speech and speechreading half of the female clients.
nificant gender differences emerged rather than NGT at intake, these differ- Another distinctive feature of our
on these deafness-related variables. ences were not statistically significant. clientele was its generally low level of
During the initial assessment, the Female clients (see Table 5) with more education. This was considerably be-
clients were almost equally as likely to serious problems were relatively more low the level found for the general
use speech and speechreading as to likely to be hard of hearing and less deaf population, although the authors
use some other language mode such likely to be prelingually deaf. They had of the population study could not rule
as NMG or self-devised gestures. NGT a nonsignificantly higher rate of paid out that better-educated deaf people
was far less common. For social set- employment. were overrepresented in their sample.
tings such as the parental family, Their study did suggest that the less
school, or work, deaf clients reported Numbers of Clients by Gender educated deaf people were more
predominantly using speech and and Age Over Time likely to use some type of care,
speechreading. Interviewers assessed Table 6 shows the numbers of clients, though not mental health services.
communication levels as normal or differentiated by gender and age, who Based on our general knowledge of
good in 61% of the male clients and applied to PsyDoN in two different pe- our research population, we have rea-
75% of the female clients. Significant riods, 1987 to 1992 and 1993 to 1999. son to believe that the education level
gender differences in communication The year 1993 marked the launch of of our clientele is lower than that in
mode were evident for the specific en- the current organizational structure the general deaf population.
vironments of the parental family (fe- and team composition of PsyDoN. In As we have seen, the over-65 age
males relatively more likely to use the second period, the number of category was very weakly represented
speech and speechreading), school clients under age 22 years more than in our study. This is largely consistent
(relatively more females using speech tripled for both genders. A sizeable ex- with the population findings, which
and speechreading), and work (rela- pansion also occurred in the group indicated that the oldest age group
tively more females using NGT). aged 22 to 65 years, which grew three- was unlikely either to receive care or
387
Table 2
Data on Hearing Impairment and on Communication for 214 Deaf or Severely Hard of Hearing Clients at Intake, Northwest
Netherlands Mental Health Service for the Deaf and Partially Hearing (PsyDoN), 1987—1999
n % n % n % X2 df P
388
Table 3
Diagnostic Data on 214 Deaf or Severely Hard of Hearing Clients at Intake, Northwest Netherlands Mental Health Service for the
Deaf and Partially Hearing (PsyDoN), 1987—1999
to report any unmet care needs. But that a professional will understand and male clients with more serious,
even in relation to those figures, our their problems better if they are ex- psychiatric conditions such as anxiety,
over-65 clientele was extremely small. pressed in speech, or that the clients substance use, and schizophrenic dis-
The vast majority of our clients were themselves may have an inadequate orders. This leads us to conclude that
prelingually deaf. Substantially fewer NGT vocabulary for articulating emo- even though similar numbers of males
hard of hearing people, and virtually tional problems. Language teaching and females applied for help, males
no postlingually deaf people, applied about such skills is still not very well faced more serious mental health
for mental health care. This came as no developed (Kitson & Fry, 1990; Stein- problems than females, in addition to
surprise, since the facility had originally berg, Sullivan, & Loew, 1998). doing worse on demographic meas-
been launched because prelingually The most prominent demographic ures such as level of educational at-
deaf people were thought to need spe- gender difference was in educational tainment and employment status. One
cial attention. In the course of time, attainment. Male clients were signifi- possible explanation for the severity of
the duties of the mental health care cantly more likely than female clients males’ problems is that they may wait
teams were expanded to include other to have low levels of education, and a longer than females before seeking
types of people with severe hearing im- (nonsignificantly) higher percentage help for emotional difficulties, so that
pairments. were outside paid employment. It the problems they finally present with
That such a large percentage of seems possible that deaf men were have become aggravated. It thus
clients used speech and speechread- (and still are) more commonly trained stands to reason that a sizable group of
ing did not seem unusual, since deaf for traditional manual trades, and deaf males with psychosocial prob-
education was long oriented to that women for the care and clerical sec- lems may now be going unnoticed by
communication mode. At the same tors. Traditional low-skilled manual professionals.
time, one notices that NGT tends to be jobs are increasingly scarce nowadays, Demographic and deafness-related
used more frequently in environments whereas deaf women may be finding characteristics in combination showed
outside home, school, or work. This growing opportunities in the clerical little connection to the severity of the
raises the question of why deaf clients and service sectors—a supposition mental health problems. The only ap-
nevertheless used more speech and that deserves further study. parent association was that hard of
speechreading while talking to an In terms of mental health diag- hearing females were more likely to
NGT-speaking professional. Possible noses, female clients were more likely present with psychiatric problems than
explanations are that clients may feel to present with psychosocial problems, prelingually deaf females. This is consis-
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deaf. American Annals of the Deaf, 138, Steinberg, A. (1991). Issues in providing mental sumer’s perspective. American Journal of
26–30. health services to hearing-impaired persons. Psychiatry, 7, 982–984.
Meyers, R. R. (1993). Model mental health state Hospital and Community Psychiatry, 42, Young, A. M., & Ackerman, J. (2001). Reflections
plan (MMHSP) of services for persons who 380–389. on validity and epistemology in a study of
are deaf or hard-of hearing. Journal of the Steinberg, A. G., Sullivan, V. J., & Loew, C. R. working relations between deaf and hearing
American Deafness and Rehabilitation As- (1998). Cultural and linguistic barriers to professionals. Qualitative Health Research,
sociation, 26, 19–28. mental health service access: The deaf con- 2, 179–189.
393