The document discusses the important role of family caregivers in the healthcare system. It notes that when a family member becomes ill or disabled, the entire family is affected as responsibilities and roles change. Family caregivers take on many tasks to care for ill loved ones at home, but they often lack training, support, and resources. The document outlines several key needs of family caregivers, including information and education about the patient's condition, trust in healthcare providers, assistance advocating for patients, and help navigating the complex healthcare system and identifying available resources. It stresses the importance of healthcare professionals recognizing these needs and supporting both patients and their family caregivers.
The document discusses the important role of family caregivers in the healthcare system. It notes that when a family member becomes ill or disabled, the entire family is affected as responsibilities and roles change. Family caregivers take on many tasks to care for ill loved ones at home, but they often lack training, support, and resources. The document outlines several key needs of family caregivers, including information and education about the patient's condition, trust in healthcare providers, assistance advocating for patients, and help navigating the complex healthcare system and identifying available resources. It stresses the importance of healthcare professionals recognizing these needs and supporting both patients and their family caregivers.
The document discusses the important role of family caregivers in the healthcare system. It notes that when a family member becomes ill or disabled, the entire family is affected as responsibilities and roles change. Family caregivers take on many tasks to care for ill loved ones at home, but they often lack training, support, and resources. The document outlines several key needs of family caregivers, including information and education about the patient's condition, trust in healthcare providers, assistance advocating for patients, and help navigating the complex healthcare system and identifying available resources. It stresses the importance of healthcare professionals recognizing these needs and supporting both patients and their family caregivers.
Dr. Wael Mustafa Abuhassan assignment social #2 1. Family system in health work: The family system is comprised of a group of individuals who work together to adapt to outside influences. Individuals relate to each other in predefined ways. Power and decision-making responsibilities are understood among group members. Illness, injury, or disability of one family member affects the entire family, changes family dynamics, and may cause increased stress among all members. Children with special health care needs require more health-related services than those without such needs. Busy health care professionals may view family members as being overly concerned and “in the way.” Conversely, family members may view health care providers as being aloof and uncaring. Although both health professionals and family members want what is best for the client, they may have different views, which can place them in adversarial roles. Family caregivers play a significant role in the health care system in emotional, practical, and economic terms. The length of stay in hospitals has become very brief, and clients are often unstable on discharge. Health care professionals rely on family members to carry out procedures at home that used to be performed only by licensed personnel, such as providing wound care, monitoring respirators, administering medications, giving injections, and completing chemotherapy infusions. Family members suddenly find themselves in the role of “home care provider”. 2. Family needs: Family caregivers are often unseen, untrained, and lack support systems. They make up what has been called a “shadow workforce.” They serve as client “case managers, medical records keepers, paramedics and patient advocates to fill dangerous gaps in a system that is uncoordinated, fragmented, bureaucratic and often depersonalized”. A review of the literature indicates that family caregivers seek information, education, trust, and understanding from their health care providers. They further need support systems, the ability to speak on behalf of their family members, and assistance navigating the health care. Health care professionals need to recognize these issues and provide clients and family caregivers with mechanisms to obtain what they need to improve outcomes. Information and Education: Family caregivers want honest information about their loved ones’ diagnoses and prognoses. They need to understand the tests, diagnosis, treatment options, and prognosis for recovery. They require appropriate training so they can respond to disease-related issues as illnesses progress. Trust: Family caregivers want to be able to trust health providers, but fears related to errors of omission or commission cause them to avoid leaving loved ones alone in hospital settings. Advocacy: Elements of effective advocacy include knowledge of federal, state, and local regulations regarding health care services, insurance, and special education delivery; assertive communication skills; negotiation skills; and conflict resolution abilities. Because it is challenging to advocate for clients’ welfare when dealing with bureaucracies, caregivers benefit from validation and encouragement, as well as emotional and social support. Clients with cognitive or emotional deficits may have unrealistic goals or behavior problems, which require caregiver involvement. Caregivers’ decisions may conflict with the goals and desires of other family members or even with those of the client. If the client is over the age of 18, a legal process may be required to allow a family member to assume decision-making responsibilities. Some caregivers may need to become surrogate decision makers if the people in their care are under the age of 18; are frail, elderly, or diagnosed with dementia; or have physical, cognitive, or emotional deficits that render them unable to make their own decisions. Identification of Resources: Another need expressed by family caregivers is assistance in dealing with the health care system and obtaining necessary resources. Families caring for members who need home care services require professional advice and coordination. For example, they may not realize that, in addition to nursing and rehabilitation services, home health care agencies can provide home health aides to assist clients with activities of daily living. Programs like Meals-on-Wheels serve home care clients one meal daily. A raised toilet seat, grab bars in the hallway, or other accommodations may be installed to assist the client in safely maneuvering in the home. 3. Skills of family caregivers: Developing caregiver skills requires education, time, patience, and practice. Caregiving demands that family members monitor clients and observe subtle changes, interpret verbal and nonverbal cues, analyze information, make decisions about actions, keep track of what to do and when to do it, provide direct care, make adjustments as needed, manage treatment schedules, administer medications, seek outside help as needed, and negotiate the health care system. Responsibilities of family system and roles: Within each family system, everyone has roles and responsibilities, knows what is expected, and reacts to other family members according to his or her defined role. However, when a member of the family becomes ill or disabled, responsibilities and roles change. It is important to note the difference between these terms. Responsibilities are jobs that family members perform, such as cooking meals, paying bills, doing laundry, and going to school. Roles are more complex and difficult to define. Established over many years, they include who you are, how people see you, and what people expect of you. Roles can include that of parent, money manager, head of the household, child, and caregiver. Whereas some may be able to afford to hire people to fulfill household responsibilities, changing the roles within a family system is much more difficult.