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Child:

Original Article
care, health and development
doi:10.1111/j.1365-2214.2010.01138.x

Children’s understanding of cancer and views on


health-related behaviour: a ‘draw and write’ study cch_1138 289..299

K. Knighting,* N. Rowa-Dewar,† C. Malcolm,† N. Kearney‡ and F. Gibson§


*Nursing, Midwifery and Social Work Department, University of Manchester, Manchester
†Cancer Care Research Centre Department of Nursing & Midwifery, Department of Nursing and Midwifery, University of Stirling,
Stirling
‡School of Nursing and Midwifery, University of Dundee, Dundee, and
§Clinical Professor of Children and Young People’s Cancer Care, Great Ormond Street Hospital for Children and London South Bank
University, London, UK

Accepted for publication 23 May 2010

Abstract
Background Few studies have explored young children’s understanding of cancer and health-
related behaviours yet this is essential to develop health promotion initiatives that build on young
children’s current knowledge levels and awareness.
Method An exploratory descriptive design using the ‘draw and write’ technique was used to
investigate children’s views of cancer and health behaviours. The sample included 195 children
aged eight to 11 years from five schools in deprived, affluent and rural locations in Scotland.
Results When asked about cancer children demonstrated a good level of awareness by
responding with text and drawings about the what they understood cancer to be; types of cancer;
causes of cancer; what happens to people who have cancer; their personal experience of cancer
and the emotions they associated with cancer. Older children, and children attending affluent
schools, have more defined ideas about the causes of cancer and awareness of broader issues such
as the risk of passive smoking or the potential impact on the family. Factors such as alcohol and
illegal drugs were only reported by children attending schools in deprived locations. Children
Keywords
cancer, children’s views, demonstrated considerable knowledge about healthy and unhealthy lifestyle behaviours; however,
health beliefs, health it is not clear whether this knowledge translates into their behaviours or the choices offered within
promotion
their home environment.
Correspondence:
Conclusions Children view cancer in a negative way from an early age, even without personal
Katherine Knighting, experience. There is a need to demystify cancer in terms of its causes, how to recognize it, how it is
Nursing, Midwifery and
treated and to publicize improved survival rates. There is a need for targeted and developmentally
Social Work Department,
University of Manchester, appropriate approaches to be taken to health education in schools, with an awareness of the
Manchester M13 9PL, UK influence of the media on children’s information. Strategies should take into consideration the
E-mail:
katherine.knighting@
socio-economic and cultural contexts of children’s lives which influence their choices and
manchester.ac.uk behaviours.

during their lifetime [Information Services Division (ISD)


Introduction
2008]. The number of new cancer cases is estimated to rise
Cancer is one of the most significant health problems in Scot- globally by 50% by 2020 (WHO 2003). Scotland experiences
land with one in three people developing some form of cancer higher incidence and mortality rates of cancer compared with

© 2010 Blackwell Publishing Ltd 289


290 K. Knighting et al.

other western European countries [Scottish Executive Health iours. Unhealthy behaviours included smoking, an unhealthy
Department (SEHD) 2001]. A key factor in reversing this trend diet (such as sugar, fast food and chocolate), the environment
will be raising awareness of both cancer prevention and early and alcohol. Children also suggested other causes of poor
detection with the Scottish public. health, such as violence, hygiene and some medicines. This
Establishing healthy lifestyles from childhood may prevent study demonstrated that children and young people were aware
many chronic health problems, such as cancer, in later life of the predominant health education messages yet many were
(Franks et al. 2007). The National Healthy Schools programme thought to lead less than healthy lifestyles. The role of health
[Department of Health (DH) and Department for Education education in informing children was considered by
and Employment (DEE) 1999], The National Fruit Scheme (DH the authors to be overshadowed by the role of television and
2001) and The National Child Measurement Programme (DH other media.
2007a) are examples of policy schemes to improve the health Since 1995 information and communication technologies
of children. As a result, both health surveillance and health have opened up new possibilities in the field of health educa-
promotion are highlighted in national standards such as healthy tion, encouraging both children and adults to take responsibil-
eating, exercise and citizenship. Health education that builds on ity for the choices they make regarding their health (DH 2005,
an accurate understanding of the beliefs and knowledge about 2007b). Much has changed in terms of healthy messages, where
health in the target group is thought to be more effective than health education and informing the general public about the
strategies which lack this foundation (Tones 1990). risks and prevention of cancer has increased (see NHS choices
Understandings of health and illness differ and develop http://www.nhs.uk/Pages/HomePage.aspx). There has also been
across the life-span (Backett & Davidson 1992) and there is a a considerable body of literature published which has looked at
growing body of literature exploring children and young peo- the importance of children’s health beliefs and behaviours in
ple’s understanding. While children and young people tend to relation to lifestyle issues (e.g. Gosling et al. 2008) and particu-
emphasize psychosocial and sports activity criteria in their defi- lar health topics such as smoking (Woods et al. 2005) and sun
nitions of health, middle-aged and older adults tend to define protection (McWhirter et al. 2000). However, there have not
health more according to conditions which may limit it (Piko been any papers which have explored children’s understanding
2000). Cognitive competence plays a role in children’s concepts of cancer and cancer care in Scotland so the time is therefore
of health and illness with younger children’s understandings ripe to undertake a study similar to Oakley et al. (1995) to
more likely to be based on their own experiences. Hence, con- improve our understanding of the knowledge and beliefs
tamination and contagious agents frequently appear in younger of children in Scotland today in order to consider
children’s accounts (Goldman et al. 1991; Solomon & Cassima- recommendations for age-appropriate health improvement
tis 1999). Pre-adolescent children are a particularly interesting initiatives.
group for health promotion programmes as they, with increas-
ing experience and knowledge, often have an understanding
Methods
of health behaviours and already show negative attitudes to
risk behaviours. These negative attitudes and their awareness
Design
of health education messages can then potentially be reinforced
by age-appropriate health improvement initiatives (Piko & Bak The findings presented in this paper are drawn from a larger
2006). qualitative study which aimed to establish what people living in
Despite its significance, few studies have explored children’s Scotland think about cancer and cancer care (Rowa-Dewar et al.
views of cancer specifically. One exception is a key study by 2008). While not wholly representative of the views of the
Oakley et al. (1995). This study explored issues about health and people of Scotland, it is the largest scale study of a cross-section
cancer prevention with children (9–10 years) using an interview of the Scottish population to date and the findings have impor-
schedule with a draw and write technique, and with young tant implications for health promotion initiatives. This paper
people (15–16 years) using a questionnaire. The results revealed presents data focusing exclusively on the children’s accounts of
that young people had limited knowledge about cancer gener- cancer and health using the draw and write technique (Prid-
ally, often simply referring to death and smoking. Considerable more & Bendelow 1995). Because children may know more than
knowledge about the factors that contribute to good and bad they are able to say, using children’s drawings combined with
health were evident, with a healthy diet, exercise and sport, their writing can potentially be a powerful way of accessing their
hygiene, not smoking, and sleep depicted as key healthy behav- accounts (Pridmore & Bendelow 1995; Piko & Bak 2006). This

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
Children’s understanding of cancer and health behaviours 291

paper will report the views from children from different socio- school in relation to whether an ‘opt-in’ slip was required from
economic communities across Scotland in order to understand parents. Only one school chose to ask parents to sign the letter
what children’s knowledge and beliefs are in relation to health and return it if they wanted their child to participate. All other
and cancer. It will also compare the findings of this study with schools were happy to be verbally notified by parents if they did
the findings of the Oakley et al. paper to explore whether there not want their child to participate. Children’s verbal consent to
has been any change in the way children are writing or drawing participate was also ascertained at the start of data collection.
about health behaviours and cancer. Eighteen families asked for their children not to be included
across the schools in the study, and three children chose to leave
the classroom after the session had been explained.
Sample and setting
Data were collected from a total of 195 children attending five
schools in socio-economically deprived (n = 2), affluent (n = 2)
Data collection and procedure
and rural communities (n = 1). They were selected using a
census-based DepCat score system (Carstairs & Morris 1991). The draw and write technique (Pridmore & Bendelow 1995) is
The Carstairs and Morris Index of Deprivation is often used as becoming increasingly popular as a method of eliciting chil-
a measure of quantifying relative socio-economic deprivation dren’s views within health care (Oakley et al. 1995; Horstman &
or affluence in different localities across Scotland. The Depri- Bradding 2002; Woods et al. 2005; Driessnack 2006; Franck
vation scores are derived by combining four census variables et al. 2008). It is considered non-threatening to children, as
which best indicate material disadvantage for each postcode virtually all school-age children are familiar with producing
sector in Scotland. The variables used are proportion of house- drawings and writing about themselves (Horstman et al. 2008).
holds with male unemployment, lack of car ownership, over- In each of the five schools the research team were given
crowded housing and the head of the household being in social access to the children for 1 hour. Presence of teachers/helpers
class IV or V. There are seven deprivation scores (DepCat) with in the class varied depending on their preference, with teachers
DepCat 1 being the most affluent and DepCat 7 being the most being present in three out of the five schools. After the research
deprived. The study included 90 Primary 4 children aged eight team introduced themselves they explained the purpose of the
to 9 years and 105 Primary 6 children aged 10 to 11 years. There study, what was expected from the children, that the activities
were 90 children attending schools in deprived areas and 96 were not a test, that their drawing or writing would not be
children attending schools in affluent areas (Table 1). Because of identified by their name and the voluntary nature of the study.
their small number the children from the rural school have not Sufficient time was allowed for children to ask questions and
been included in the socio-economic analysis. Any differences make a decision on whether to leave the room or stay. Children
found for this group because of their remote location have been were observed closely by teaching and research staff to pick up
discussed in the paper, however, in order to highlight potential on any overt signs of worry or distress. The two activities were
differences in the experience of children who live in the large outlined separately and children were asked to: ‘please write
remote locations across Scotland. or draw anything you know about cancer’ (Task 1), and ‘please
All primary schools invited to take part in the study agreed write or draw what keeps you healthy and what makes you not
to participate. Access was negotiated with head teachers. A letter healthy’ (Task 2). Children worked individually while sitting at
and an information sheet which described the study and their usual tables with three to six other children, depending
emphasized its voluntary nature were sent home with the chil- on the size of the class. The research team members supported
dren. The research team were guided by the head teacher in each the children by clarifying their questions and checking
meaning of drawings, while encouraging the children to draw
or write their own views and not copy from other children on
Table 1. School sample by DepCat rating and age category
their table.
School DepCat rating Primary 4 Primary 6
Following the completion of data collection, the researchers
School 1 Deprived 26 26 responded to any questions the children had about the session
School 2 Deprived 13 25
School 3 Rural 5 4
and encouraged the children to talk to their teacher or parents if
School 4 Affluent 24 25 they had any further questions. Schools were given cards from
School 5 Affluent 22 25 the charity Cancerbackup with contact details in case further
Total 90 105
information was needed and were also reassured that they could

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
292 K. Knighting et al.

contact the research team if any significant issues arose from the schools in affluent communities wrote that cancer was a
sessions that would require a second visit. ‘disease’ (n = 6) or drew pictures of balls with the text ‘balls of
gas’ (n = 2). The older children in Primary 6 who responded
mainly described cancer as a medical disease or illness (n = 29),
Data analysis
and wrote the word such as ‘lumps’ (n = 1). One child from this
Techniques of thematic content analysis (Coffey & Atkinson group also drew a picture of a cell suggesting a more biological
1996; Elo & Kyngäs 2007) were applied to the booklets from one view (n = 1).
school for both Primary 4 and Primary 6 by two independent
researchers in order to develop an initial list of codes. These
Theme 2: types of cancer
codes were then discussed and once there was agreement on the
codes and their definitions a random selection of drawings and Almost half of the children responded with some type of
writings from schools were coded as an intercoder agreement cancer in their responses (n = 93, 47%). Most of the responses
exercise. The level of intercoder agreement was 98% which consisted of lists of body areas where children thought it was
demonstrated a high level of agreement (MacQueen et al. 2008). possible to have cancer. Some children provided drawings of
The codes were then systematically applied to the remaining people next to the lists. The type of cancer most frequently
data by two researchers working independently and then reported by both groups of children was breast cancer (n = 26).
checked for consistency. New codes were developed and agreed Lung cancer was the second most frequently reported
as required. During the final stage of analysis the individual cancer, although it was only reported by children in Primary
codes were collapsed into themes. Quantitative data for the 6 (n = 14). Five children from both age groups simply wrote
number of items for each code, age and school community type ‘different types’ (n = 10) suggesting they knew that there were
were entered into a computer database and simple statistical several types of cancer but did not have sufficient knowledge
tests of significance (mainly c2) used to examine any differences to provide details.
in relation to age and school community. The younger children in Primary 4 listed six areas of the body
that could have cancer (breast, tongue, kidney, heart, mouth,
skin) and the older children in Primary 6 listed 19 areas (breast,
Results
lung, penis, testicular, heart, mouth, eye, brain, throat, bowel, leg,
Data from both tasks are presented below using tally counts to bone, ear, arm, hand, skin, liver, stomach, head). Some of
indicate the frequency of specific factors in the text or drawings. the body areas were well-known types of cancer such as lung,
Most of the children provided more than one factor in their testicular and skin cancer. Other body areas listed are rare cancers
drawings or writings so the written and drawn responses have and may have been listed by some children as body parts, such as
been collapsed together to generate the final number of factors ear, eye, arm and tongue, rather than demonstrating knowledge
for each code in order to provide an overview of the frequency of areas where people can develop cancer. Upon questioning
of each code. Any differences in style of response between the some of the children told the researchers that they were showing
schools are highlighted in the sections below. they were aware that cancer could develop anywhere in the body.
There were no statistical differences between the school com-
munities or age but it was noted that the largest number of body
Task 1: what do you know about cancer?
areas was provided by children in Primary 4 attending schools
When the children were asked to ‘write or draw anything you in deprived communities and children in Primary 6 attending
know about cancer’ six main themes were identified in their schools in affluent communities.
responses.

Theme 3: causes of cancer


Theme 1: what is cancer?
The two main behaviours reported by children in both age
There were only 39 responses in this theme (20%) suggesting groups as causing cancer were smoking cigarettes (n = 106) and
that their understanding of cancer itself was difficult for chil- exposure to the sun or sun beds (n = 25). The majority of
dren to visualize or communicate. Only one child in Primary children drew cigarettes or smoking, the no smoking symbol,
6 attending a school in a deprived community provided a the sun and sun beds. A few written responses were provided
response in this theme. The Primary 4 children attending about the link between smoking and cancer, passive smoking

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
Children’s understanding of cancer and health behaviours 293

causing cancer and smoking making people vulnerable but responses from the older children included plastic surgery
these tended to be only the odd word included with drawings. (n = 1) and sex (n = 1).
Other responses from both age groups included illness (asthma There were no statistically significant differences between the
and eczema, n = 10), drugs (hash and pills, n = 7) and environ- school communities but some factors were only reported by
mental factors (car pollution, breathing in gas, microwaves, tele- distinct groups of children. Children in Primary 6 from schools
vision, fires and mobile phone, n = 6). The older children in in affluent communities reported an awareness of passive
Primary 6 demonstrated a greater awareness of potential causes smoking as a cause of cancer and children across both age
reporting additional items of alcohol (n = 14), a diet high in groups from schools in deprived communities reported alcohol
sugar (n = 4) and lack of exercise (n = 1). Other additional and illegal drugs as causes of cancer.

Figure 1. Example of a drawing in the ‘causes


of cancer’ theme.

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
294 K. Knighting et al.

Some children provided longer statements about the causes


Theme 4: what happens to people who have cancer?
of cancer which are detailed below:
The children’s’ responses in this theme consisted of drawings or
To me cancer is a seriously bad disease. I think a main
writing about the physical things that people with cancer may
reason for that is you can get cancer anywhere on your
experience such as immobility (e.g. drawings of people in
body. I also think though that it is silly to smoke, or to do
wheelchairs, in bed or on crutches, n = 30); hair loss (n = 29);
any other things like – that makes the risk a lot higher.
and spending time in hospital (e.g. drawings of people in a
(P6, School 4, Affluent)
bed attached to a drip, n = 11). Children also associated death
Cancer I think is shocking I think the main reason people
(n = 25) with having cancer writing statements such as ‘it
get cancer is because of passive smoking and smoking.
kills you’ and ‘die’. Several responses related to the potential for
Another reason people get cancer is because of fires and
treatment with drawings of syringes, tablets and bottles (n = 2),
the smoking. (P6, School 4, Affluent)
surgery (n = 2) and stoma bag (n = 1). There were some positive
Dunk a cigarette in the ashtray, and say goodbye, KILL +
responses relating to cure (n = 3) with text such as ‘might be able
it causes Kancer. (P4, School 1, Deprived)
to stop it’.
The longer statements provided by older children from There were no statistical differences between school commu-
schools in affluent communities and their larger number of nities but only children from schools in affluent communities
responses demonstrates an increasing awareness of causes of included pain in their responses (n = 2) and they provided a
cancer and the element of risk in behaviours. Only one child higher number of responses about treatment, surgery and being
from the younger age group at a school from a deprived com- in hospital demonstrating a greater awareness of what may
munity provided a written statement (Fig. 1). happen to people who have cancer. It was interesting to note

Figure 2. Example of a drawing in the ‘what


happens to people who have cancer’ theme.

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
Children’s understanding of cancer and health behaviours 295

that only one of the children who lived in the rural community made to watch a family member fight it. Out of all the
had ever been in a hospital when they were an inpatient. None types of cancer breast cancer is the worst to me. (P6,
of the other children had visited a hospital despite family School 4, Affluent)
members having been in hospital as the hospitals were on the
mainland not the island where they lived. These children told Task 2: what keeps us healthy or makes us unhealthy
the researchers that their knowledge of what it was like to be in
There were no statistically significant differences between age
hospital was gathered from television programmes and books
groups or school communities for this task so the responses have
(Fig. 2).
been reported for the total sample. The responses to this task
were categorized into five main categories. The largest category
Theme 5: personal experiences of cancer associated with health was diet consisting of examples of healthy
Only 14 (7%) children reported having any personal experience food (n = 253) followed by healthy drinks (n = 80). The third
of cancer. Typically this was a family member, such as a grand- largest category was exercise behaviour with taking exercise be-
parent or family pet, who had died of cancer. There were no ing seen as healthy (n = 116). The fourth category for health was
personal stories of anyone surviving cancer. For many of the not smoking (n = 4), followed by use of medicines such as vita-
children their only experience of knowing someone who had mins and antibiotics (n = 13). Other miscellaneous healthy items
cancer was hearing about celebrities who were diagnosed with were ‘sleep’, ‘rest’, ‘being clean’ and ‘playing computer games’.
cancer on the news. The largest category associated with unhealthy behaviour was
diet consisting of unhealthy food such as fast food and choco-
late (n = 207) followed by unhealthy drinks such as fizzy pop
Theme 6: emotions associated with cancer
(n = 69). The third largest category after diet-related factors was
Only 15 (8%) of children provided responses relating to emo- smoking (n = 59). The fourth category was inactivity and being
tions. All the responses were provided by children from schools lazy (n = 32), followed by taking drugs such as illegal drugs (n =
in affluent communities. Younger children in Primary 4 drew 21). Miscellaneous unhealthy items were ‘not getting fresh air’,
sad faces (n = 4) or wrote that they would be ‘sorry for the ‘mobile phones’, ‘bed sores’, ‘being unclean’ and ‘not washing’
person’ (n = 1). The older children wrote emotive words to (Table 2).
describe cancer as a ‘bad’ or ‘nasty’ things (n = 9), or express In addition to drawing pictures, some of the children wrote
their feelings of sadness (n = 5) or sympathy (n = 1) for people statements explaining their thoughts about healthy and
with cancer. For example one child wrote: unhealthy behaviours:

Cancer to me is like a disease, it tears familys apart, break- Do lots of exercise and running playing sports makes you
ing bonds. Causing pain and fear to all familys who were fit and healthy. (P6, School 5, Affluent)

Table 2. Main categories in text and drawings


Primary 4 Primary 6 Total
of healthy and unhealthy behaviours by class
Category items (n) items (n) items (n)
group*
Diet
Healthy food (e.g. vegetables, fruit, fish) 117 136 253
Unhealthy food (e.g. fast food, chocolate) 118 89 207
Drinks
Health drinks (e.g. water, milk) 32 48 80
Unhealthy drink (e.g. fizzy drinks) 20 49 69
Exercise behaviours
Taking exercise (healthy) 60 56 116
Inactivity/lazy (unhealthy) 10 22 32
Smoking behaviours
Not smoking (healthy) 3 1 4
Smoking (unhealthy) 20 39 59
Use of medicines or drugs
Medicines (healthy) (e.g. vitamins, antibiotics) 7 6 13
Drugs (unhealthy) (e.g. pills, illegal drugs) 6 15 21

*There were no statistically significant differences between age groups or school communities for this task
(c2, P < 0.05).

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
296 K. Knighting et al.

Figure 3. Example of a drawing in the ‘healthy


and unhealthy behaviours’ task.

Sweetys are not good for you and chocolate is not good living conditions, particularly in children attending the schools
for you. If you are fat it is not really helfy for you. (P6, in deprived communities, for example one child told research-
School 2, Deprived) ers ‘I like broccoli but my mum never buys it’ (Fig. 3).
Frout like appls and bnannas kepe you helthey. . . . bad
things like smoking, sogars, drugs, burgus. (P4, School 5,
Discussion
Affluent)
Although children may have some of the same responses as
During the session in the classroom, it was clear, however, adults to serious diseases like cancer, such as thoughts of death
that awareness of healthy and unhealthy factors, such as eating and dying, children can also have a unique outlook and hence
a good diet, did not necessarily translate into the children’s should be supported to express their perspectives on matters
actual lifestyle choices, or those offered to them within their that affect their lives. The questions we asked children mirrored

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
Children’s understanding of cancer and health behaviours 297

the questions asked of the adult population in the larger public Another difference was the low number of children who
involvement project, ensuring that the views of all members of mentioned any positive impact of treatment such as a cure in
the public were included and valued (Rowa-Dewar et al. 2008). this study (3) compared with the three quarters of older chil-
Both age groups demonstrated awareness of the most dren in the Oakley et al. study (1995) who thought that cancer
common cancers, their potential causes and key healthy and could be cured and the significant level of awareness in the
unhealthy behaviours across the two tasks. As may have been younger children of the Oakley study who felt that cancer was
anticipated the older children provided more drawings and not necessarily incurable or fatal (reported in follow up paper
tended to used both drawing and text in more of their Bendelow et al. 1996). It is possible that those children with less
responses. The older children also had more defined ideas about personal experience of cancer will be less aware of the survival
the causes of cancer and awareness of broader issues, such as the rates of treatment.
risk of passive smoking, which was not found with the younger While children have clearly assimilated some ideas of health
children. promotion and disease prevention, they also reported ideas
Looking across the school communities, the main differences which are not connected with increased risk for developing
were that children attending affluent schools tended to demon- cancer, such as violence. It is notable that Oakley et al.’s (1995)
strate a greater level of awareness or knowledge of current study also reported factors such as violence as causes of cancer.
lifestyle issues, and only children attending deprived schools This perhaps points to a continued need to reinforce the differ-
included factors such as alcohol abuse and illegal drugs as causes ence between what might be considered ‘bad’ behaviour (vio-
of cancer. The social conditions in which children live can exert lence) from behaviours which might be considered ‘bad’ for your
an influence on their health but less is known about how socio- health or contribute to the development of ‘cancer’.
economic and cultural contexts of children’s lifestyles shape When comparing the findings for task two, children in this
children’s perspectives of health (Backett-Milburn et al. 2003; study had considerable knowledge about healthy and unhealthy
Irwin et al. 2006). This is an area that requires further study, lifestyle factors just like those in the Oakley paper. Many of their
particularly in relation to how children perceive and manage responses demonstrated awareness of individually based health
everyday health relevant behaviours. promotion messages, such as ‘five portions of fruit and veg is
When comparing the findings of task one with those in the good for you’ and an understanding of both environmental
Oakley et al. (1995) study these children were able to demon- factors and risk behaviours. It is not possible to say how well
strate a similar awareness of cancer, its potential causes and its children’s health beliefs are reflected in their actual behaviour
impact on the individual and family. A key difference in the based on the data collected. However, we do know that chil-
drawings of the children in this study, however, was the greater dren’s fruit/vegetable intake is still below recommended levels
awareness of what happens when you get cancer, such as the (DH 2000; Mangunkusumo et al. 2007), and poor school meal
need for treatment and spending a lot of time in hospital. This provision and personal taste preferences for fast food have been
was surprising given the low number of children who reported identified as barriers to healthy eating (Shepherd et al. 2006).
having any direct experience with someone who has cancer in The link between perceptions of health and sport activities
this study (14 of 199) compared with the higher proportion of identified in the literature was also evident in the children’s
children in the Oakley study (54 of 100 aged 9–10 year olds), views of healthy and unhealthy behaviours with the third largest
and lack of experience of hospitals in the children from the rural category associated with health being related to physical exer-
community. As the children reported in the classroom this high- cise. These findings suggest that we need to continue to build on
lights the impact of the media on children’s knowledge and children’s beliefs and their appreciation of risk behaviours with
perceptions, particularly in the absence of experience. More age-appropriate health improvement initiatives that tackle indi-
recently, we have seen an increase, and interest, in reporting vidual behaviour but also consider the social world of children,
personal experiences of diseases, particularly those that are both in school and at home. In order to do this we must con-
more harrowing and ‘news worthy’ and recent stories during the tinue to listen to the views of children, drawing on research
period of data collection were discussed by the children. The methods such as ethnography, to explore the social worlds
low number of children who reported any personal experience of children (Emond 2005) and evaluate the impact of any
of cancer may have been due to no direct question about per- initiatives.
sonal experience being asked in the study or that the children It could be argued that the older children from affluent
may have been protected by family members because of their school communities performed better on both tasks because
age. of being better able to express themselves. It should be noted,

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
298 K. Knighting et al.

however, that their responses were more focused and appropri- an important role in changing people’s approach to cancer.
ate, demonstrating a greater awareness and knowledge about There is still a need to demystify cancer by maximizing oppor-
cancer and lifestyle factors. tunities available to present more positive images of cancer care,
Children reported that television, magazines and the internet treatment and survival rates through general health awareness
were their main sources of health information, suggesting that strategies. With reference to our study, we would suggest that
health education had a limited role in their responses. The any strategies need to take into consideration the socio-
importance of the media on children’s beliefs has been reported economic and cultural contexts of children’s lives which can
elsewhere (Food Standards Agency 2007) highlighting the need influence their choices and behaviour. In addition, these find-
for parents and educators to be aware of its strong influence of ings are highly relevant and have wider implications, both
media on children’s health beliefs. nationally and internationally, for advancing health promotion
The draw and write technique allowed the research team to in the childhood population.
engage with children using a non-threatening and open-ended
method to tap into children’s perceptions by inviting children
to use their own communication skills freely. Similar to others, Key messages
we would suggest that this combination of writing and drawing
can elicit more information from children than either compo- • Children between eight and 11 years of age have well-
nent alone (Pion et al. 1997; Horstman et al. 2008). One limi- formed views on cancer, and a good awareness of healthy
tation to the using this technique within the typical classroom and unhealthy lifestyle choices and behaviours.
setting was the opportunity for children to copy from each other • There are differences in the level of understanding and
rather than work independently. The researchers watched the awareness between children from schools in affluent and
children carefully to discourage copying of each other work- deprived areas.
books but it is unlikely that no instances occurred. However, • Despite being able to recite key health promotion messages
given that the main responses were found at different tables it is unclear whether this knowledge translates into chil-
across the different schools it is likely that the key factors and dren’s actual behaviour and choices available in their
themes identified would have arisen independently in most living environment.
children and were not related purely to copying each other. • Children reported a very negative view of cancer from an
early age which suggests a need to demystify cancer and
Conclusions publicize improved survival rates.
• There is a need for targeted and developmentally appro-
Despite the huge investments in health promotion in schools priate approaches to health promotion in schools and
this study suggests that the knowledge of children on health and wider interventions which take into account the socio-
unhealthy behaviours, cancer and cancer care have not changed economic and cultural contexts that impact on children’s
greatly since the Oakley et al. (1995) study. Children can recite lives and choices for a healthy lifestyle.
health messages but still prefer unhealthy food, and the differ-
ences identified between schools in affluent and deprived com-
munities suggest that there are some important issues to be
considered for health inequalities. It also highlights the need for References
targeted and developmentally appropriate approaches to be Backett, K. & Davidson, C. (1992) Rational or reasonable?
taken to health education in schools in different communities, Perceptions of health at different stages of life. Health Education
particularly in the deprived areas which may require a more Journal, 51, 55–59.
joined-up approach which will impact on the community and Backett-Milburn, K., Cunningham-Burley, S. & Davis, J. (2003)
families in order to have a lasting impact on children’s health. Contrasting lives, contrasting views? Understandings of health
This study has found that like the adult population of the inequalities from children in differing social circumstances. Social
Science & Medicine, 57, 613–623.
larger study children view cancer in very negative terms from an
Bendelow, G., Williams, S. J. & Oakley, A. (1996) It makes you bald:
early age, even without personal experience. There is nothing children’s knowledge and beliefs about health and cancer
unusual in viewing a serious disease like cancer in a negative prevention. Health Education, 3, May, 12–19.
way but in order to promote prevention behaviours and early Carstairs, V. & Morris, R. (1991) Deprivation and Health in Scotland.
detection professionals in health, social care and education have Aberdeen University Press, Aberdeen, UK.

© 2010 Blackwell Publishing Ltd, Child: care, health and development, 37, 2, 289–299
Children’s understanding of cancer and health behaviours 299

Coffey, A. & Atkinson, P. (1996) Making Sense of Qualitative Data. children’s perspectives of health. Child: care, health and
Sage, London, UK. development., 33, 353–359.
Department of Health (DH) and Department for Education and MacQueen, K. M., McLellan_Lemal, E., Bartholow, K. & Milstein, B.
Employment (DEE) (1999) National Health School Standard. DH, (2008) Team-based codebook development: structure, process,
London, UK. and agreement. In: Handbook for Team-Based Qualitative Research
Department of Health (DH) (2000) The NHS Plan: A Plan for (eds G. Guest & K. M. MacQueen), pp. 119–136. Altamira Press,
Investment, A Plan for Reform. HMSO, London, UK. Lanham, MD, USA.
Department of Health (DH) (2001) The National School Fruit McWhirter, J. M., Collins, M., Bryant, I., Wetton, N. M. & Bishop,
Scheme: Evaluation Summary. DH, London, UK. J. N. (2000) Evaluating ‘Safe in the Sun’, a curriculum programme
Department of Health (DH) (2005) Delivering Choosing Health: for primary schools. Health Education Research, 15, 203–217.
Making Healthier Choices Easier. DH, London, UK. Mangunkusumo, R. T., Brug, J., de Koning, H. J., van der Lei, J. &
Department of Health (DH) (2007a) The National Child Raat, H. (2007) School-based internet tailored fruit and vegetable
Measurement Programme: Guidance for Pct’s: 2007–08 School Year. education combined with brief counselling increases children’s
DH, London, UK. awareness of intake levels. Public Health Nutrition, 10, 273–279.
Department of Health (DH) (2007b) Choice Matters: 2007–8: Putting Oakley, A., Bendelow, G., Barnes, J., Buchanan, M. & Husain,
Patients in Control. DH, London, UK. O. A. N. (1995) Health and cancer prevention: knowledge and
Driessnack, M. (2006) Draw-and-tell conversations with children beliefs of children and young people. British Medical Journal,
about fear. Qualitative Health Research, 16, 1414–1435. 310, 1029–1033.
Elo, S. & Kyngäs, H. (2007) The qualitative content analysis process. Piko, B. (2000) Health-related predictors of self-perceived health in a
Journal of Advanced Nursing, 62, 107–115. student population: the importance of physical activity. Journal of
Emond, R. (2005) Ethnographic research methods with children and Community Health, 25, 125–137.
young people. In: Researching Children’s Experience: Methods and Piko, B. & Bak, J. (2006) Children’s perceptions of health and illness:
Approaches (eds S. Greene & D. Hogan), pp. 123–139. Sage, images and lay concepts in preadolescence. Health Education
Thousand Oaks, CA, USA. Research; Theory & Practice, 21, 643–653.
Food Standards Agency (2007) Children’s Attitudes to Food. Food Pion, I. A., Kopf, A. W., Hughes, B. R., Wetton, N. M., Collins, M. &
Standards Agency, London, UK. Newton Bishop, J. A. (1997) Teaching children about skin cancer:
Franck, L. S., Sheikh, A. & Oulton, K. (2008) What helps when it the draw-and-write technique as an evaluation tool. Pediatric
hurts: children’s views on pain relief. Child: care, health and Dermatology, 14, 6–12.
development, 34, 430–438. Pridmore, P. & Bendelow, G. (1995) Images of health: exploring
Franks, A. J., Kelder, S. H., Dino, G. A., Horn, K. A., Gortmaker, S. L., beliefs of children using the ‘draw-and-write’ technique. Health
Wiecha, J. L. & Simoes, E. J. (2007) School-based programs: lessons Education Journal, 54, 473–488.
learned from CATCH, Planet Health, and Not-On-Tobacco. Rowa-Dewar, N., Ager, W., Ryan, K., Hubbard, G., Hargan, I. &
Preventing Chronic Disease (Serial Online), April 4(2). Available at: Kearney, N. (2008) Using a rapid appraisal approach in a
http://www.cdc.gov/ped/issues/2007/apr/06_0105.htm (last nation-wide, multi-site public involvement study in Scotland.
accessed May 2010). Qualitative Health Research, 18, 863–869.
Goldman, S. L., Whitney-Saltiel, D., Granger, J. & Rodin, J. (1991) Scottish Executive Health Department (SEHD) (2001) Cancer
Children’s Representations of ‘Everyday’ Aspects of Health and Scenarios: An Aid to Planning Cancer Services in Scotland in the
Illness. Journal of Pediatric Psychology, 16, 747–766. Next Decade. The Scottish Executive, Edinburgh, UK.
Gosling, R., Stanistreet, D. & Swami, V. (2008) ‘If Michael Owen Shepherd, J., Harden, A., Rees, R., Brunton, G., Garcia, J., Oliver, S. &
drinks it, why can’t I?’ – 9 and 10 year olds’ perceptions of Oakley, A. (2006) Young people and healthy eating: a systematic
physical activity and healthy eating. Health Education Journal, review of research on barriers and facilitators. Health Education
67, 167–181. Research, 21, 239–257.
Horstman, M. & Bradding, A. (2002) Helping children speak up Solomon, G. E. A. & Cassimatis, N. L. (1999) On facts and
in the health service. European Journal of Oncology Nursing, 6, conceptual systems: young children’s integration of their
75–84. understandings of germs and contagion. Developmental
Horstman, M., Aldiss, S., Richardson, A. & Gibson, F. (2008) Psychology, 35, 113–126.
Methodological issues when using the draw and write technique Tones, K. E. (1990) Why theorise? Ideology in health promotion.
with children aged 6 to 12 years. Qualitative Health Research, 18, Health Education Journal, 49, 2–6.
1001–1011. World Health Organisation (WHO) (2003) World cancer report.
ISD. NHS National Services Scotland (2008) Cancer in Scotland. Woods, S., Springett, J., Porcellato, L. & Dugdill, L. (2005) ‘Stop it,
Published in June 2004, Revised 2005, 2006, 2007, 2008. it’s bad for you and me’: experiences of and views on passive
Irwin, L. G., Johnson, J. L., Henderson, A., Dahinten, V. S. & smoking among primary-school children in Liverpool. Health
Hertzman, C. (2006) Examining how contexts shape young Education Research, 20, 645–655.

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