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What is autism spectrum disorder? world in which they have limited ability to successfully
communicate and interact with others. Children with
Autism spectrum disorder (ASD) is a developmental ASD may have difficulty developing language skills
disability that can cause significant social, communication, and understanding what others say to them. They
and behavioral challenges. The term “spectrum” refers also often have difficulty communicating nonverbally,
to the wide range of symptoms, skills, and levels of such as through hand gestures, eye contact, and facial
impairment that people with ASD can have. expressions.
ASD affects people in different ways and can range from The ability of children with ASD to communicate and
mild to severe. People with ASD share some symptoms, use language depends on their intellectual and social
such as difficulties with social interaction, but there are development. Some children with ASD may not be able to
differences in when the symptoms start, how severe communicate using speech or language, and some may
they are, the number of symptoms, and whether other have very limited speaking skills. Others may have rich
problems are present. The symptoms and their severity vocabularies and be able to talk about specific subjects
can change over time. in great detail. Many have problems with the meaning
and rhythm of words and sentences. They also may be
The behavioral signs of ASD often appear early in
unable to understand body language and the meanings
development. Many children show symptoms by
of different vocal tones. Taken together, these difficulties
12 months to 18 months of age or earlier.
affect the ability of children with ASD to interact with
others, especially people their own age.
Who is affected by ASD?
Below are some patterns of language use and behaviors
ASD affects people of every race, ethnic group, and
that are often found in children with ASD.
socioeconomic background. It is four times more common
among boys than among girls. The Centers for Disease } Repetitive or rigid language. Often, children with
Control and Prevention (CDC) estimates that about ASD who can speak will say things that have no
1 in every 54 children in the U.S. has been identified as meaning or that do not relate to the conversations they
having ASD. are having with others. For example, a child may count
from one to five repeatedly amid a conversation that
How does ASD affect communication? is not related to numbers. Or a child may continuously
repeat words he or she has heard—a condition called
The word “autism” has its origin in the Greek word echolalia. Immediate echolalia occurs when the child
“autos,” which means “self.” Children with ASD are repeats words someone has just said. For example,
often self-absorbed and seem to exist in a private the child may respond to a question by asking the
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Some children with ASD may never develop oral speech ASD who have limited speech and language skills (https://
and language skills. For these children, the goal may be www.nidcd.nih.gov/research/workshops/nonverbal-school-
learning to communicate using gestures, such as sign aged-children-autism/2010), resulting in two groundbreaking
language. For others, the goal may be to communicate by articles.1 Another NIDCD workshop on measuring language
means of a symbol system in which pictures are used to in children with ASD (https://www.nidcd.nih.gov/research/
convey thoughts. Symbol systems can range from picture workshops/language-benchmarks-children-autism/2007)
boards or cards to sophisticated electronic devices that resulted in recommendations calling for a standardized
generate speech through the use of buttons to represent approach for evaluating language skills. The benchmarks
common items or actions. will make it easier, and more accurate, to compare the
effectiveness of different therapies and treatments.
What research is being conducted to
NIDCD-funded researchers in universities and organizations
improve communication in children
across the country are also studying:
with ASD?
} Ways to reliably test for developmental delays in speech
The federal government’s Autism CARES Act of 2014 and language in the first year of life, with the ultimate
brought attention to the need to expand research and goal of developing effective treatments to address the
improve coordination among all of the components of the communication challenges faced by many with ASD.
National Institutes of Health (NIH) that fund ASD research. } How parents can affect the results of different types of
These include the National Institute of Mental Health language therapies for children with ASD.
(NIMH), along with the National Institute on Deafness
and Other Communication Disorders (NIDCD), the Eunice } Enhanced ways to improve communication between
Kennedy Shriver National Institute of Child Health and children with and without ASD. This could involve a
Human Development (NICHD), the National Institute of communication board with symbols and pictures, or even
Environmental Health Sciences (NIEHS), the National Institute a smartphone app.
of Neurological Disorders and Stroke (NINDS), the National } Techniques to help researchers better understand how
Institute of Nursing Research (NINR), and the National Center toddlers with ASD perceive words, and the problems they
for Complementary and Integrative Health (NCCIH). experience with words.
Together, five institutes within the NIH (NIMH, NIDCD, } Cost-effective ways to prevent or reduce the impact of
NICHD, NIEHS, and NINDS) support the Autism Centers conditions affecting speech, language, and social skills in
of Excellence (ACE) (https://www.nichd.nih.gov/research/ high-risk children (for example, younger siblings of children
supported/ace), a program of research centers and networks with ASD).
at universities across the country. Here, scientists study a } The development of software to help people with ASD
broad range of topics, from basic science investigations who struggle with speech to communicate complex
that explore the molecular and genetic components of thoughts and interact more effectively in society.
ASD to translational research studies that test new types of
behavioral therapies. Some of these studies involve children
1 Kasari, C., Brady, N., Lord, C., & Tager-Flusberg, H. (2013). Assessing
with ASD who have limited speech and language skills, and the minimally verbal school-aged child with autism spectrum disorder.
could lead to testing new treatments or therapies. You can Autism Research, 6(6), 479–493. doi: 10.1002/aur.1334.Review.
visit the NIH Clinical Trials website (https://clinicaltrials.gov/) Retrieved November 8, 2016, from https://www.ncbi.nlm.nih.gov/
and enter the search term “autism” for information about pubmed/24353165.
current trials, their locations, and who may participate. Tager-Flusberg, H., & Kasari, C. (2013). Minimally verbal school-aged
children with autism spectrum disorder: the neglected end of the
The NIDCD supports additional research to improve spectrum. Autism Research, 6(6), 468–478. doi: 10.1002/aur.1329.
Review. Retrieved November 8, 2016, from https://www.ncbi.nlm.nih.
the lives of people with ASD and their families gov/pubmed/24124067.
(https://www.nidcd.nih.gov/research/autism-research-and-
nidcd). An NIDCD-led workshop focused on children with
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