Professional Documents
Culture Documents
The Ethics of Care and Justice in Primary Nursing of Older Patients
The Ethics of Care and Justice in Primary Nursing of Older Patients
Clinical Ethics
2019, Vol. 14(4) 187–194
The ethics of care and justice in primary ! The Author(s) 2019
Soile Juuj€
arvi , Kirsi Ronkainen and Piia Silvennoinen
Abstract
While the ethic of care has generally been regarded as an appropriate attitude for nurses, it has not received equal
attention as a mode of ethical problem solving. The primary nursing model is expected to be aligned with the ethic of
care because it emphases the nurse–patient relationship and enables more independent role for nurses in decision-
making. The aim of this study was to examine nurses’ ethical decision-making in the context of primary nursing.
Participants were seven nurses, and one physiotherapist from a geriatric rehabilitation unit of a public hospital in
Finland. Data were collected through focus group interviews and qualitatively analyzed through Lyons’ coding scheme
for moral orientations. The results showed that primary nurses employ empathic understanding and particularistic
thinking when building relationships with patients and their families, and when assessing their needs for coping at home
after discharge. Most ethical conflicts were related to discharge and were solved through balancing the ethics of care and
justice considerations. It is concluded that care and justice are integrated in nurses’ everyday ethical decision-making.
The ethic of care nurtures good patient–nurse relationships, while the ethic of justice is needed to address the fair
delivery of care in the context of an aging population and diminishing public resources. Both ethics should be acknowl-
edged in clinical practices and included in ethics education.
Keywords
Aged, ethical decision-making, primary nursing, the ethic of care, the ethic of justice, moral conflicts
mixed success. Within nursing, an ethic of care has aged care settings do not clearly support the effective-
been regarded as a recommendable attitude, but one ness of primary nursing in terms of patient well-being,
that is inadequate to guide decision-making in prac- maybe due to the limited incorporation of the model
tice.6 Disappointing outcomes may be due to the fact into practice.18
that Gilligan is a psychologist presenting empirical
observations, but has largely been interpreted as
having presented a ready-made ethical theory.8
The context of the study
However, few empirical studies explicitly employing Finland has the fifth oldest population in the world.19
Gilligan’s theory have pointed out that nurses use In order to arrest rising costs in public healthcare, the
both care and justice considerations in ethical deci- national legislation was revised in 2012 to support
sion-making.9,10 Moreover, longitudinal studies the independent living of older people, shifting the
among social and healthcare students have shown emphasis from institutional to home-based care.20
that they follow a developmental path of the ethic of This, as well as the varied financial resources of
care proposed by Gilligan11,12 and their level of care municipalities, frames healthcare professionals’ work
reasoning is reflected in their ethical decision-making.13 in hospitals, as long patient stays are not preferred.
The present article examines nurses’ ethical decision- On discharge, patients should be promptly located in
making in clinical settings specifically in the context of home, assisted living, or nursing home environments.
primary nursing of elderly care. We argue that primary This change in direction poses further challenges to
nursing might be aligned with the ethic of care by shar- strengthening shared decision-making and collabora-
ing emphasis on the patient–nurse relationship and tion among professionals within the care chain, and
heightened responsibility, requiring critical thinking requires inclusion of family members in care planning
and decision-making capacities. Thus, the scrutiny of and provision.21
the ethical conflicts that primary nurses encounter and The present study was conducted in a geriatric
how they solve them may reveal some of the essential rehabilitation ward of a public hospital in southern
dynamics of nurses’ ethical decision-making. Finland. At the time of data collection the ward had
30 beds, patients were 75 years of age on average, with
Primary nursing model approximately an eight week average length of stay.
Patients usually come from units of special care and
Since the 1960s, primary nursing has been considered
are not yet able to cope outside the hospital setting.
as the ideal model of care delivery that enhances the
Hip and other fractures, worsened health conditions,
nurse–patient relationship and enables a more indepen-
and memory disorders are the general reasons for
dent role for nurses in clinical decision-making. The
admission. The main aim of rehabilitation is to
assigned nurse assumes overall responsibility for
advance patients’ self-sufficiency in order to support
patient care during the hospital stay and is answerable
to the patient, the patient’s family, and to colleagues. their independent or assisted living for as long as pos-
Previous research shows that the model contributes to sible. The staff adopted the primary nursing model in
nurses’ increased senses of job control and autonomy.14 2015 to ensure quality of care. Every patient is
Primary nursing enables a more holistic role for nurses assigned a primary nurse who is responsible for devel-
across a caring process that is often fragmented in con- oping and implementing an individual care plan
temporary healthcare contexts. It drives nurses to through the hospital period, including networking
address patients’ complex needs, rather than to per- with family members and other professionals, as well
form specific job tasks under given structures.15 In as planning and preparing the discharge process.
practice, the primary nurse builds a sound relationship The primary nurse is responsible for service needs
with a patient, as well as develops and implements the assessments concerning the patient’s coping at home
plan of care for individual patients. The model is sup- and preparing applications for institutional care
posed to promote ongoing communication between the placements. Decisions on discharge are made in
patient, family, nurses, and physicians, and to facilitate weekly meetings by a multi-professional team com-
discharge planning.16 In order to achieve a high quality prising of physicians, nurses, physiotherapists, and a
of care, primary nurses need to work closely with col- service manager.
leagues and other professional groups.14 The authors from a local university of applied sci-
Primary nursing is a method of delivering individ- ence were invited to plan and carry out the project
ualized care that is assumed to be especially suitable aiming at improving primary nursing practices in
for older patients,17 who are more often frail and vul- 2016. The project was triggered by difficulties experi-
nerable and so require a holistic approach to their enced in the discharge process, and was co-planned
management. However, few intervention studies in with a head nurse and staff members.
Juuj€arvi et al. 189
come on-site. And conducting interviews is precisely this paper. Next, we introduce the remaining three eth-
what we do, we ask the family members to fill in the ical conflicts to illuminate primary nurses’ ethical
family surveys. decision-making.
We attend the discharge meetings, too, we discuss For me, there was maybe a feeling that we cannot do it,
issues in a multi-professional way, where doctors and the nurses and our doctors, all of us, that we cannot let
physiotherapists and head nurses and all are present the patient go. That then the next day the patient will
(. . .) There is also a service manager who guides and be back in hospital again with a new fracture. So what
advises them on follow-up matters. So we all work in is there to do (. . .) Is it, in a way, also a question of
cooperation, we do not make the decision alone (. . .) respecting the right to self-determination or is it, in a
Of course, when we make a referral for a service needs way, abandonment?
assessment (during patient assessment) it also includes
some free text, so the opinion of the primary nurse The resolution of this ethical conflict seemed cognitive-
becomes clear. It also includes the opinions of family ly easy, because nurses were deeply committed to
members and the patient, but also the nurse and the uphold a patient’s right to self-determination and the
multi-professional team, on whether the patient is still city strategy also supports independent living as long as
capable of coping at home or not. possible. Mild and moderate dementias alone do not
necessitate and justify admission to institutional care.
When preparing the patient’s discharge, the primary
nurse needs to collaborate with family members. Then there is the fact that we have clear guidelines and
Empathic understanding is used to adapt negative deci- indicators that provide a framework for us. In a way, it
sions to both the patient’s and family members’ emo- is easy to rely on them (. . .) you must try staying at
tional states by showing concern and softening the tone home before going directly to an institution.
of communication when trying to solve emerging dis-
putes and conflicts. As a solution that combines care and justice, the pri-
mary nurse may persuade the patient to stay in hos-
Ethical conflicts in primary nursing practice pital for a longer time. The difficulty of the ethical
Participants brought up four types of typical ethical conflict arises from the nurses’ unawareness about
conflict, three of which were related to the decision- how things are actually managed at home after dis-
making about patient discharge and one to the charge, leaving them with unease. Because they have
patient–nurse relationship. Table 1 summarizes care no access to out-patient records and there are no reg-
and justice considerations and proposed solutions for ular meetings with the homecare staff, they do not get
each conflict. Conflict 4 directly addressed the nurse– a definitive answer as to whether their work has been
patient relationship that is disturbed by a growing successful or not.
number of patients who do not comply with the role
of being “cared-for” but rather impose themselves as I cannot say whether the decisions have been correct or
customers by treating primary nurses as servants and not, I really do not know, it is difficult to say (. . .) But,
asking for favors. According to the interviews, this is a of course, you continue to think about your own
relatively recent phenomenon obviously coupled with a patient, or patients, the most, that ‘what if?’. And
cultural change in “care culture.” Due to space limits, then you always talk about it with the other prima-
further analysis of this conflict has been omitted from ry nurse.
Juuj€arvi et al. 191
(1) Patient wants to go Primary nurse wants to prevent Patients have a right to self- Multi-professional team
home, while the team harm and suffering; primary nurse determination; nurses have a makes a geriatric assess-
judges that the patient is concerned but often unaware legal duty to prevent ment including cognitive
is not capable of coping of a patient’s coping at home abandonment abilities; nurses persuade
at home after discharge patients and
family members
(2) Patient does not want Patient feels unsafe; relies on pri- Patient is not eligible for hospital Primary nurse chooses the
to be discharged, while mary nurse; is stuck to primary care, nursing home care, or appropriate moment to
the multi-professional nurse; primary nurse does not assisted living according to inform about the decision;
team judges that the want to destroy trusting rela- official standards; primary explains the criteria for
patient is capable of tionship; does not want to hurt nurse has a professional duty decision; asks a physician
coping at home the patient of advocating the or service manager talk to
patient’s interests the patient; organizes aid
or assisted living; antici-
pates the rightness of a
solution through assess-
ment and home visits
(3) Family members Nurses are empathetic about family Patient is not eligible for institu- Nurses ask for support from
oppose the patient’s members’ concerns; understand tional care (hospital, nursing the head nurse; contact
discharge to home and/ their situations; understand their home care, or assisted living) complaining family mem-
or make demands for unawareness about current according to official standards; bers; listen to them;
institutional care elderly care practices; forgive family members compromise explain the patient’s health
their unjustified complaints the patient’s right to self- status and current criteria
determination; family mem- for institutional care
bers look down on staff’s
professional authority
(4) Patient and family Patient and family members treat Patient’s requests are beyond the Nurses are paired to share
members remain pas- the primary nurse as a servant; nurse’s professional duties the emotional load
sive recipients of care make complaints about care; ask
for favors; give commands; do not
co-operate in the rehabilita-
tion process
Patients want to stay in hospital, while the multi-professional uphold the official standards for hospital care provi-
team judges that they are capable of coping at home. Within sion? The conflict is complicated by the fact that
this typical ethical conflict, patients do not want to according to the prescribed duties of the primary
leave the hospital or return home because they lack nurse, she is obliged to advocate for the patient’s inter-
self-confidence in their coping abilities. They ask the ests (justice). She also does not want to destroy a trust-
primary nurse to advocate their wish to stay in the ing relationship and hurt the patient’s feelings by
multi-professional meeting that makes decisions on dis- betrayal (care).
charge. Usually these patients are in relatively good
physical shape, but due to previous falls or sudden Yeah, the professional staff (. . .) thinks that the patient
medical episodes they feel unsafe. They are also could return home but, on the other hand, the nurse
prone to cling to their primary nurses due to their vul- also understands the patient, what it is that makes the
nerable state and run the risk of hospitalism. patient not want to go home and why he or she feels
This ethical conflict has several dimensions. On one unsafe. And then there is the fact that you try to justify
hand, the primary nurse empathically understands the that opinion, when the patient has to be transferred
patient’s fears, but on the other, she knows that accord- but, on the other hand, you feel bad for the patient,
ing to the criteria and her own professional judgment, that you should not betray his or her trust. Because, as
the patient should already be capable of performing the primary nurse, you are the patient’s advocate.
daily activities at home. The ethical conflict lies
between the ethics of care and justice: how to respond As a basic solution for the ethical conflict, the primary
to the patient’s psychological needs and simultaneously nurse seeks to adjust the discharge process according to
192 Clinical Ethics 14(4)
the patient’s needs. She tries to do her best by organiz- wishes if the patient’s condition does not meet the cri-
ing home care and other aids to help the patient. The teria for a prolonged stay in hospital or institutional
conflict is also mitigated by the primary nurse’s profes- care. Sometimes family members’ wishes also contra-
sional knowledge that the patient’s prolonged hospital dict the patient’s desire to live at home and undermine
care does not necessarily enhance their rehabilitation, their right to self-determination.
but instead could compound their potential for institu- Employing the ethic of care framework, nurses try
tionalization. The decision is legitimized by a multi- to empathetically understand the actual situation of the
professional team leaning on objective measurements. patient’s spouse and children. First, children are usual-
The primary nurse chooses the appropriate moment to ly in the rushed middle-age of life with multiple respon-
inform the patient about the decision, provides infor- sibilities in their families and workplaces, and at the
mation that is adjusted to the patient’s emotional state, same time they try to keep an eye on their vulnerable
and takes time to discuss it repeatedly in order to reach parents living on their own. Therefore, the parent’s
an agreement. admission is in some ways a relief and frees them tem-
porarily from stressful care-taking.
It somewhat depends on the case, on what the patient is
like, you have to consider where you are at. If you say Sometimes those situations have of course been really
something at the wrong time that may torpedo it (. . .) hard for the family members for a long time at home,
kind of just add to it – the anxiety and other things. so they can be really tired. Then (. . .) they feel that it is
So. . . the issue must be handled, it just has to be. And a kind of salvation that now he or she is in treatment.
how do you say it. You need to be able to justify it, Because it is definitely psychologically stressing if you
although often, if family members or the patient are are having a really hard time, for example, a patient
really difficult, we will have a doctor come and discuss with dementia at home who needs constant care. And
it (. . .) However, usually all agree in the end (. . .) You the spouse is a family caregiver. It is not very easy.
are not left with a feeling that you have forced anyone
to go anywhere. So you cannot say that the right deci- Second, family members have not yet learnt about
sion was made, but an agreement of some kind was developments in elderly care practices which prioritize
found, anyway. home-based care, meaning that the admission
criteria for institutional care have become more strict.
Sometimes the primary nurse is indecisive as to whether The interviewees felt that both patients and their fam-
the patient can cope at home even when assisted and ilies were unaware of the changing legislation sur-
can make extra efforts to prepare a comprehensive rounding elderly care, and this resulted in conflict
needs assessment to convince the authorities making situations where primary nurses felt they were often
decisions on admissions to institutional care. This how- the target for general frustrations with the new system.
ever elicits a new ethical dilemma as to whether it is
right to advance the interests of a particular patient at We have a really, like, sort of a long history that if you
the expense of other elderly people who may be in more are ill, you are in hospital, or that if you cannot cope at
desperate need of institutional care? home, you are taken into a nursing home (. . .) Here we
see that this will change and has already changed a lot.
We ended up applying for a place in assisted living, but But people out there do not understand that it cannot
it just came to my mind whether we are taking a place continue in the same way anymore, that everyone
from someone else who is in worse shape. Even though, would live in an institution at some point. It has
as the primary nurse, I understand that, of course, the changed and is changing all the time here.
family members and the patient are really worried
about coping, especially due to previous falls. The ethical conflict is intensified when family members
make accusations, threaten to take the case to the
newspapers or court, or behave in other assertive
Family members oppose a decision on a patient’s discharge to ways. They also seek information on the web and
home. An ethical conflict arises when the multi- social media for arguments for advocating a better
professional team has made a decision about instituting quality of care. Nowadays, while criticizing care deliv-
a discharge process that is opposed by family members, ery, family members may also question the professional
typically by the patient’s children. In conjunction with authority of nurses right away and make online state-
the head nurse, primary nurses are often involved in ments, as one of senior nurses put it: “And the fact that
disputes with family members who wish the patient to there are all these (digital) devices that you can use to
stay in hospital for longer, or to be moved into resi- quickly write, write so quickly (. . .) In the old days, you
dential or nursing homes. Nurses cannot go along their had to get the typewriter out of the closet first.”
Juuj€arvi et al. 193
Nurses try to solve their ethical conflicts from both Frail patients are chronically in a vulnerable state and
care and justice perspectives. They anticipate and pre- family members are concerned about their ability to
vent controversies by careful listening and showing cope. The ethical validity of decision-making is consid-
an understanding of their difficult situations. They ered from both justice and care perspectives. The jus-
explain the official admission criteria for different tice perspective evaluates on what grounds a decision is
forms of care that are regarded as impartial rules con- justified and whether official standards for the hospital
stituting fairness in society. Ethical decision-making and institutional care are upheld. Within the care per-
is ultimately justified by arguments of impartiality, spective, it is evaluated as to what extent the decision
enabled thorough individual assessment and evidence- may pose risk to the patients’ welfare; increase their
based knowledge. burden, hurt, and suffering; and how these risks are
successfully minimized. How the discharge process is
Discussion finally worked out constitutes the ultimate evidence
of ethical decision-making.
The aim of this study was to examine primary nurses’
Results from this small-scale study are consistent with
ethical decision-making in a geriatric rehabilitation
previous qualitative studies9,10 pointing out care and jus-
unit by employing Gilligan’s framework for the ethics
tice are integrated in nurses’ natural decision-making.
of care and justice.1 The results indicate that care-based
Considerations of care and justice are often contradicto-
ethical reasoning is deeply grounded in primary nursing
ry, but they can also support each other. The principles
practice with older patients. The named nurse develops
a trusting relationship with her patient and takes of justice need to be interpreted and implemented in idi-
responsibility for planning and implementing care osyncratic care situations yielding tailored solutions that
and preparing the discharge process. Empathic under- accord to patients’ needs. The results also indicate that
standing builds rapport between the primary nurse and primary nursing as a model of care delivery enables
her patients and their families, and makes caring a nurses’ responsibility in decision-making that may relieve
morally valid enterprise. Particularistic thinking plays moral distress nurses experience due to hierarchical
a critical role in care planning and needs assessment, as nurse–physician relationships.26
the primary nurse gathers nuanced knowledge on her The nature of ethical conflicts brought up in this
patient’s unique characteristics and situations. This study reflects a significant development trend in
contextual knowing empowers nurses to have input in Western countries: aging population and diminishing
clinical and ethical decision-making in the multi- economic resources. This trend is coupled with the con-
professional context of rehabilitation. While physicians temporary rise of neo-liberalism and the new public
are legally accountable for decisions on discharge, pri- management ideology that regards care as a commod-
mary nurses feel morally responsible for these decisions ity among others. Nurses are increasingly challenged to
because they are answerable to their patients. The ethic address social and cultural inequalities in their daily
of care forms both an attitude and a mode of ethical work, and this means that relational care- and social
problem-solving in primary nursing. Its prescriptivity is justice-based approaches need to be fused in the moral
not derived from rules, norms, or principles but from deliberations and actions of nurses.27 It is important
idiosyncratic care situations bound by patients’ partic- to include the social ethics perspective in the nurses’
ular identities, time, and place, and therefore it cannot ethics education to meet recent challenges. The ethics
be replaced by the ethic of justice.2 The results are in of care and justice need to be integrated into the
line with a recent study showing that nurses favor rela- complex decision-making practices of all healthcare
tional ethics in clinical situations.25 professionals.
The results simultaneously show that the ethic of
justice is of equal importance in contemporary primary Declaration of conflicting interests
nursing practices because they are framed and con-
The authors declared no potential conflicts of interest with
strained by rules of care delivery. The primary nurse
respect to the research, authorship, and/or publication of
also has a prescribed duty to advocate for the patient’s
this article.
rights and defend her concerns in multi-professional
decision-making that in turn is guided by public stand-
Funding
ards for care delivery and leans on the principle of the
equal treatment of citizens. The standards behind dis- The authors disclosed receipt of the following financial sup-
charge decisions are justified by way of evidence-based port for the research, authorship, and/or publication of this
knowledge and are agreed within the multi-professional article: The research was conducted in Competent Workforce
team. However, the difficulty of this ethical conflict lies for the Future Project (303608) funded by the Strategic
in adapting decisions to meet patients’ authentic needs. Research Council (SRC) at the Academy of Finland.
194 Clinical Ethics 14(4)