Research ethics aim to protect human participants by requiring informed consent, the right to withdraw, and privacy of personal data. Key considerations include fully informing participants of any risks, allowing them to leave the study at any time, anonymizing data for publication, and debriefing participants if deception was used. All research proposals must be approved by an ethics committee to ensure compliance with ethical standards before a study can begin.
Research ethics aim to protect human participants by requiring informed consent, the right to withdraw, and privacy of personal data. Key considerations include fully informing participants of any risks, allowing them to leave the study at any time, anonymizing data for publication, and debriefing participants if deception was used. All research proposals must be approved by an ethics committee to ensure compliance with ethical standards before a study can begin.
Research ethics aim to protect human participants by requiring informed consent, the right to withdraw, and privacy of personal data. Key considerations include fully informing participants of any risks, allowing them to leave the study at any time, anonymizing data for publication, and debriefing participants if deception was used. All research proposals must be approved by an ethics committee to ensure compliance with ethical standards before a study can begin.
Research ethics are basically the set of ethical considerations a research team has to
consider while conducting research. They are in place to protect the participants of a study from physical, psychological or social harm through participation in the study.
Examples include:
Informed consent - participants must consent to their taking part in the
study and to do so they must have enough information to make an informed decision. This includes any risks inherent in the study (side effects of drugs or treatments given). There is scope to deceive the participants here if it is relevant to the study but most of the info they get should be open, honest and clear. Right to withdraw - participants can, at any time, choose to withdraw from the study and the research team should allow them to do so. Privacy and data protection - as per Data Protection Act and now GDPR, data collected by any organisation is protected and there are rules about how it should be stored, managed and used. This mainly applies to research in the context of publication. All published data (especially interview transcripts and observation notes) should be anonymised. Usually names are changed (a common method is to call them by letters, for example Miss A, Mr D, Mrs F). The research team also have an obligation to not use the data for any other purpose than the research the participants signed up for and ideally should be destroying the personal data (addresses, phone numbers, email addresses) after the work is done. Deception - it is sometimes necessary to deceive participants in a trial. Usually this is for psychological research (famous examples include the Milgram and Sanford studies in the 60s) where the participant knowing the purpose of the study will bias their responses. Research ethics say you should debrief the participants after the study is over to tell them what you were really looking for. All of this is managed by an ethics committee - which all universities and hospitals will have. Before any study can be performed, the researchers have to present details of it to the committee for approval. This includes the methods being used and what is planned to be done with the results. The committee will discuss any ethical issues they see in the proposal and ask how these will be handled and will then make a ruling. They may reject outright. They may state things that have to be done before they will allow it. They may pass it without change. For example, one of my studies was passed but on the proviso we took no more than 60ml of blood from each patient - this limit being set to ensure the comfort and safety of the participants, some of whom would have been elderly and some with long term conditions.
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