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Maintaining

employment and
insurance on dialysis

Learn more about dialysis


and chronic kidney disease www.davita.com
© 2008 DaVita Inc. All rights reserved. DCOM-3450
Maintaining
employment and
insurance on dialysis

In addition to health concerns,


Employment and 03
people with kidney disease who 1 health benefits
need dialysis treatment may also
have financial concerns. This book 2 Your work rights 05
provides information about keeping
your job and health benefits, makes 3 Avoiding disability 07
you aware of laws that protect your
work rights and gives you a list of
4 Paying for treatment 08
resources that may help you pay for
kidney disease treatments.
5 Medicare basics 10

Resources 12
6

www.davita.com
Maintaining employment and
insurance on dialysis

1
Employment and With any chronic illness, you can
expect to get bills from doctors,
health benefits hospitals, laboratories and
pharmacies. Having a good health
Employment and insurance benefits plan and understanding
information for chronic kidney your benefit coverage can reduce
your out-of-pocket expenses and
disease (CKD) patients
assure you the widest range of
treatment choices. Health insurance
Our goal at DaVita is to help keep
is complex and changes to your
your life with CKD as normal as
insurance may have a substantial
possible and to make sure you
impact on how your treatment is
receive all of the available benefits
paid. DaVita Social Workers and
for treatment. We know that keeping
Guest Services Specialists (GSS) can
your job and your health insurance
help. Contact DaVita GSS whenever
play an important part in making
you plan to change your job or health
this happen. So that you feel more
insurance, reduce your work hours or
in control, it is important for you to
discontinue working.
stay updated on changes to your
insurance and how federal and
You may be told by different people
state policy and regulation changes
(e.g., transplant teams, Medicare/
affect your employer health benefits,
Medicaid offices and discharge
COBRA, Medicare and Medicaid
planners) that you should elect
policies. This information will help
Medicare or other coverage. DaVita
you know your rights and be able
GSS can help answer your questions,
to make informed decisions about
look at work options, review financial
employment and insurance.
assistance options and ensure
you receive the maximum amount
For information on financial and
of coverage through your health
insurance concerns, call DaVita
insurance plan. We want our patients
Guest Services at 1-800-244-0680.
to have all the facts before making
decisions regarding changes to their
Having a good health benefits benefits.
plan and understanding your
benefit coverage can reduce
your out-of-pocket expenses
and assure you the widest range
of treatment choices.

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Maintaining employment and
insurance on dialysis

Keeping your job and health


benefits is the best way to keep
your life as normal as possible
and to pay for your kidney
disease treatment.
Stay Healthy
When you have kidney disease, you
can continue to work by taking care
of yourself. One of the best ways to
do this is to follow the advice of your
physician and health care team.
• Take medicines as directed.
• Tell your physician or nurse if you
feel sick or tired.
• Eat a healthy diet.
• Make healthy lifestyle choices.
Rest and exercise to help you feel
better and have more energy.

Choose a Work-friendly Treatment


When you start dialysis, choose a
treatment that fits with your work
schedule.
• Peritoneal dialysis (PD) is flexible
— as long as you fit in your
exchanges as prescribed. People
who can use a cycler are able
to do their exchanges at night,
while they sleep.
• Home hemodialysis (HHD) lets you
choose when you do dialysis. This
choice is not offered in all facilities.
• If you choose in-center
hemodialysis, ask to schedule your
treatments around your work.

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Maintaining employment and
insurance on dialysis

2 Your work rights these changes and discuss them


with your Social Worker and
DaVita GSS:
o Decreased work hours
Changes in your employment o Termination
status can signal changes in (self- or employer-initiated)
your health care insurance. o Layoff

Know Your Work Options Companies need workers who come


You may not feel well when first on time and do their jobs well. If you
starting dialysis, but many people will start treatment soon or are on
find that after getting used to the dialysis now, you may need to miss
treatments, they feel well enough to some work time. Ask your boss for
keep working full- or part-time. time off as soon as you know you
• If you are too ill to work, take a need it, and talk with your human
temporary leave of absence resources department to determine
instead of quitting. exactly what benefits are available
• Talk to your employer about to you. You can keep your job when
working part-time or flexible hours you have kidney disease. The U.S.
to keep your benefits. government identifies kidney failure
• By keeping your job, you will have as a disability even if you continue
more flexibility financially than if to work. So, there are laws that
you stopped working. protect you from workplace bias due
• By continuing to work, you can to illness.
keep your health benefits, which
cover treatments and medicines. The Rehabilitation Act of 1973
• If you must leave work, ask if The Act protects people who work
you are eligible for COBRA. for the U.S. government. It bans
COBRA would allow you to discrimination due to illness against
continue your company benefits those employed by the executive
for at least 18 months. Talk to your branch of government, by federal
Social Worker and DaVita Guest contractors and by anyone who
Services Specialist (GSS) about receives federal funds. Each federal
how you can pay for the COBRA agency enforces its own rules.
premiums and other out-of-pocket Call the Department of Justice at
medical expenses. 1-800-514-0301 to file a complaint.
• Changes in your employment
status can signal changes in your
health care insurance. Be aware of

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Maintaining employment and
insurance on dialysis

to return to work. Your employer


Americans with Disabilities may require, or you may request, to
Act of 1990 substitute vacation time for unpaid
If you work for a company with at leave. Contact the U.S. Department of
least 15 employees and ask for a Labor, Frances Perkins Building, 200
reasonable accommodation to do Constitution Avenue NW, Washington,
the essential functions of your job, D.C. 20210. Or call 1-866-4-USWAGE
your employer must agree, unless the (TTY 1-877-889-5627).
requested accommodation causes an
undue burden. If you interview for a Other Laws
new job, someone can ask you if you State laws may protect you from
need a reasonable accommodation bias. Find out who to call about your
to perform the essential functions of state’s antidiscrimination laws at
the job, but no one can ask whether www.dol.gov/odep/state/state.htm.
you have a disability and what that
disability is. Learn more at the EEOC
website, http://www.eeoc.gov.

You can keep your job when you


have kidney disease.
Another organization, the Disability
Rights, Education and Defense
League, offers attorney referrals and
information on the ADA. Contact
them at 1-800-348-4232 or
www.dredf.org.

Family and Medical Leave Act of 1993


If you’ve worked long enough for a
company with at least 50 employees
within a 75-mile radius, you may
qualify to take 12 weeks of unpaid
FMLA leave within a 12-month period
for certain reasons. Your employer
can’t penalize you for taking leave,
but may ask you for a doctor’s release

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Maintaining employment and
insurance on dialysis

3 Avoiding disability for you to know your company’s sick


leave policy. If you need to take an
extended sick leave, remember
the Family and Medical Leave Act
As a kidney patient, you may (FMLA).
worry that you are going to be
disabled. DaVita wants to help Know Where to Get Help
you learn how to stay healthy If you cannot keep your current job
and avoid disability. even with workplace changes, think
about your other choices. If you
Stay Fit can, move to another job in your
Staying active is key for you to feel company so you can keep your health
your best. Kidney disease reduces insurance, sick leave, vacation and
blood flow to your muscles—and seniority. If not, you have job skills
exercise can help bring it back. Talk and experience. Update your résumé
with your doctor about what type of and use a state or private vocational
activity is right for you. Examples can rehabilitation counselor and/or the
include walking, biking, weightlifting Internet to find another job.
or swimming. Yoga may be an option
to help relieve stress and increase Look for companies large enough to
flexibility. Follow your doctor’s be covered under the Americans with
recommendations and start slowly, Disabilities Act and Family Medical
building up gradually. You will be glad Leave Act. Remember that a potential
you did. employer can only ask you if you
need a reasonable accommodation to
Working perform the essential functions of the
In the U.S., many of us spend almost job. If you do not need any special
as much time at work as we do arrangements or changes, you
at home. Working and talking to do not have to talk about your
co-workers can help to keep your kidney disease.
mind focused on things besides
your health. For many of us, our co- Could you work for yourself? The
workers are part of our family and can Small Business Administration and
give us strength and support. Senior Corps of Retired Executives
can help you write a business plan
Deal with Health Setbacks and find funds.
Health setbacks can happen with
any chronic illness. It is important

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Maintaining employment and
insurance on dialysis

While disability payments are 4 Paying for


a safety net, they may not
be enough to pay your bills. treatment
Most people on disability must
Many people with kidney
change their lifestyle.
disease worry about how they
Understand Disability will pay for treatment. There are
If you continue to be too ill to keep many sources of coverage.
working, you can apply for Social
Security Disability Insurance (SSDI). Employer Health Insurance
You will have to wait to become Health insurance through an employer
eligible for SSDI for at least six often provides better benefits than
months. Supplemental Security any state or federal program. The
Income (SSI) may be available to you Health Insurance Portability and
if you have little or no work history Accountability Act (HIPAA) may help
and have little income or savings. you and your family get other health
While disability payments are a safety insurance if you change jobs or lose
net, they may not be enough to pay your insurance. Neither you nor your
your bills. Most people on disability dependents can be denied coverage
must change their lifestyle. or should have to wait for treatment
due to pre-existing health conditions
If you’re on SSI or SSDI and feel under HIPAA. You cannot use HIPAA
healthy enough to return to work, to get other coverage if you have
there are work incentives that may Medicare or Medicaid—but your
assist you. These can help you ease family may.
back into work, without losing your
disability benefits right away. Ask the Contact: 1-800-MEDICARE for the
Social Security Administration (SSA) booklet Protecting Your Health
about disability and work incentives. Insurance Coverage (CMS-10199).

Your DaVita Guest Services


Specialist can help you
understand your insurance
choices.

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Maintaining employment and
insurance on dialysis

COBRA are elderly, disabled or have kidney


If you or your spouse is working failure. We will talk about this in more
and has employer health insurance detail in the next section.
but will be losing that coverage
through termination, discontinuing Medicaid
employment, reduced work hours Medicaid is state-funded medical
or layoff, you may be eligible to buy assistance. You may qualify for
group coverage for you and your Medicaid if you are 65 or older,
family for a limited time. disabled or have dependent
children, and have little income or
If you are entitled to COBRA benefits, savings. Medicaid covers services
your health plan must give you a such as hospital charges, doctor
notice stating your right to choose fees, prescription medicines and
to continue benefits offered by the transportation. Each state has
plan. COBRA is your same health different rules about what is covered,
insurance coverage, but at a higher so you will need to learn about the
cost. COBRA beneficiaries are rules where you live by contacting
generally eligible for coverage for 18 your state welfare office.
months, but this can be extended in
some instances. Depending on the Medigap (Medicare Supplement)
employer’s insurance policy, if you Some insurance companies sell plans
become entitled to Medicare benefits to cover all or part of what Medicare
before you elect to receive COBRA, does not pay. States have different
then you will be able to carry both plans to choose from, with varying
policies. However, if you have group benefits and cost. People who are
health insurance under COBRA and at least 65 and apply in the first six
then become entitled to Medicare, months of having Medicare can’t be
your COBRA policy may terminate. denied or made to wait for coverage
If you are qualified, you have 60 because of kidney disease. If you are
days to elect coverage and then 45 under 65, your state may allow you to
days to pay the initial premium for buy Medigap coverage.
the COBRA coverage. Your DaVita
Guest Services Specialist can help you Call your state insurance commission
understand your choices. to learn which Medigap plans are
available and whether you are eligible.
Medicare Contact: 1-800-MEDICARE for the
Medicare is a federal program run booklet Choosing a Medigap Policy
by Social Security for people who (CMS 02110).

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Maintaining employment and
insurance on dialysis

Veterans’ Benefits
Some veterans get dialysis at VA
5 Medicare basics
hospitals, while others go to dialysis
facilities where the VA may pay all
or part of the cost. Veterans may be Medicare is available to most
able to get medicines for a small fee. people in the U.S. This is a
Contact: http://www1.va.gov/health/ special insurance program for
index.asp. people who are 65 years or
older, on disability for two years
Indian Health Service (IHS) or have kidney failure. If you
The IHS may pay for dialysis for
have kidney failure, Medicare
Native Americans and Alaska Natives
who live on or near reservations and will pay for covered medical
who don’t have any other coverage. expenses, but it is important
for you to know that Medicare
State Kidney Programs only pays for 80% of the cost.
Your state may have a program to You will need a way to pay for
help people with kidney disease pay the 20% of cost that Medicare
for dialysis, drugs and transportation.
doesn’t cover. Medicare is
Programs vary from state to state
and year to year. Your DaVita Social run by the Social Security
Worker or Guest Services Specialist Administration and you need to
(GSS) can tell you if your state has a sign up by phone or mail—
state kidney program. it’s not automatic. There are
two parts:
American Kidney Fund (AKF)
AKF assistance is for patients on Part A
dialysis. AKF may be able to assist Pays for hospitalizations including
with paying for COBRA benefits, hospital stays, skilled nursing facilities,
employer plan premiums and hospice and rehabilitation facilities.
Medicare Part B premiums. Your Most people get Part A for free. You
Social Worker and DaVita Guest pay a deductible for inpatient hospital
Services Specialist can tell you more stays, inpatient blood transfusions
about AKF. and kidney transplant costs.

Part B
Pays for medical expenses including
doctor fees and most other

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Maintaining employment and
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outpatient charges, including dialysis. dialysis, Medicare will end coverage


You pay an annual deductible, a after 12 months unless you have
monthly premium, as well as the 20% another qualifying condition.
of charges not covered by Medicare.
Coordination of Benefits
Eligibility. People who are 65 When you, your spouse or parents
years or older, have received have health insurance through an
Social Security disability checks employer, that insurance is generally
primary for 30 months based on
for two years or have kidney patient’s Medicare entitlement date.
failure can get Medicare. During this time, Medicare provides
secondary coverage and can be billed
If you choose home dialysis, Medicare-allowable charges that your
Medicare will pay for your employer insurance doesn’t pay in full.
treatment right away, including After 30 months and with enrollment
the training you need. in Medicare, Medicare becomes
primary, and your employer insurance
When Medicare Starts and Ends is secondary and may pay for some or
If you or your spouse is working all of the expenses Medicare doesn’t
and has health insurance through an cover.
employer, there is a coordination of
benefits period. (Please see the next When to Enroll in Medicare
section for more information.) If you If you already have health coverage
choose home dialysis (peritoneal through your employer, a retirement
dialysis or home hemodialysis), plan, COBRA and/or an individual
Medicare will pay for your treatment plan, you should consult your Social
right away, including the training you Worker or DaVita Guest Services
need. If you choose in-center dialysis Specialist prior to electing Medicare.
(hemodialysis), Medicare won’t start When enrolling in Medicare, sign up
to pay until the first day of your for both parts A and B at the same
fourth month of treatment. time.

Medicare can help pay for a transplant Medicare and Medicines


and may even cover some of the Medicare pays for only a few drugs.
testing before you get a transplant. Most of these are injected at a clinic,
Medicare will end 36 months after a such as anemia medicine (EPO),
transplant unless you have another vitamin D and some antibiotics.
disability or are at least 65. If you stop Medicare also pays for some

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Maintaining employment and
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transplant drugs for 36 months after a


transplant. Since 2006, Medicare has
6 Resources
paid part of your drug costs. There
are also Medicare approved discount
drug cards and programs from drug At DaVita, we have a strong
makers that help some people afford commitment to helping you
prescribed medicines. keep your life as normal as it can
be. Let your Social Worker or
DaVita Guest Services Specialist
know if you have concerns
about continuing to work or
being able to pay for treatment.

Other resources to consider


include the following:
DaVita Insurance Consultation
1-800-244-0680 or www.davita.com
Contact DaVita and speak with an
insurance specialist at no charge.

Human Resources Department


If you have an employer-based
health plan or COBRA, it is important
to know and discuss your current
benefits with your company’s
human resources department on a
regular basis.

National Kidney Foundation (NKF)


1-800-622-9010 or www.kidney.org
Available materials: Working with
Kidney Disease: Rehabilitation
and Employment (NKF-#05-03R);
Financial Resources for Kidney
Patients (NKF-#05-39)

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Maintaining employment and
insurance on dialysis

Medicare
1-800-MEDICARE
or www.medicare.gov
Available materials: Medicare
Coverage of Kidney Dialysis and
Kidney Transplant Services:
A Supplement to Your Medicare
Handbook #10128
(Large Print: #10128-LE)

Social Security Administration


w or www.ssa.gov/pubs/
Available materials: Medicare
(#05-10043); Social Security: Basic
Facts (#05-10080); Social Security:
Understanding the Benefits (#05-
10024) and Working While Disabled—
How We Can Help (#05-10095)

Small Business Administration


www.sba.gov

Senior Corps of Retired Executives


www.score.org

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