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SPIRITUALITY AND HEALTH INTERNATIONAL

9: 230–240 (2008)
Published online 22 July 2008 in Wiley InterScience
(www.interscience.wiley.com). DOI: 10.1002/shi.353

Rehabilitation nurses’
experiences providing
spiritual care
Mary Catherine Gebhardt

Abstract
The purpose of this phenomenological study was to examine rehabilitation nurses’
experiences providing spiritual care. Rehabilitation nurses provide care for patients and
their families after life-threatening events and are in a unique position to meet holistic
health care needs. Little is written about rehabilitation nurses’ perceptions of providing
spiritual care. Fourteen rehabilitation nurses self-identified as providing spiritual care
and agreed to participate in individual interviews. The interviews focused on the
nurses’ definition of spiritual care, interventions the nurses perceived as spiritual and
their comfort in providing spiritual care. More studies are needed to determine if
providing spiritual care improves patient outcomes. Copyright © 2008 John Wiley &
Sons, Ltd.

Key words: spiritual care, rehabilitation nursing, holistic care, phenomenological research

Introduction orthopaedic injuries. Few studies in the


literature describe how rehabilitation
Spiritual care and promotion of health are nurses define or provide spiritual care.
important aspects of nursing care and have Rehabilitation nurses are in a unique position
been since Florence Nightingale’s time to provide spiritual care and promote health
(Burkhardt and Nagai-Jacobson, 2002). Nearly because of patients’ extended stay in the
100 years ago, the founder of present-day rehabilitation unit. Patients and their families
nursing addressed the idea that spirituality often rely on the nurses to meet holistic
and health are connected and that nurses are health care needs, and spiritual care is
the primary promoters of health. included in these needs.
Rehabilitation nurses provide care for patients Rehabilitation nurses attending a
following catastrophic injuries such as spinal national conference participated in this
cord injuries, brain injuries and severe phenomenological study. These 14 nurses

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10.1002/shi
Rehabilitation nurses describe spiritual care 231

self-identified as providing spiritual care patients (Burkhardt and Nagai-Jacobson,


participated in individual interviews on the 2002). Nursing theorists have identified the
topic of spiritual care. This paper presents the need to consider aspects of spirituality when
essences of the interviews and proposes caring for patients (Watson, 1999; Leininger,
suggestions for future studies. 2002). Nurses in specialty areas other than
rehabilitation nursing have identified the
Background importance of providing spiritual care
(O’Brien, 2000; Greasley et al., 2001; Tuck
Defining spirituality is difficult, and many et al., 2001; Hoover, 2002; Strang et al., 2002;
times the definition of spirituality is confused Mc Sherry, 2006; van Leeuwen et al., 2006)
with religiosity. The assumption that one can and patients and their families have identified
define spirituality presumes that one can the need for spiritual care (McColl et al.,
associate words to the spiritual experience. 2000; Sheldon, 2000; Boswell et al., 2001;
Regardless of the difficulty defining Hermann, 2001; Chapman and Grossoehme,
spirituality, many definitions exist. One useful 2002; Kloosterhouse and Ames, 2002; Ferrell
definition of spirituality is connectedness et al., 2003; Taylor, 2003; Theis et al., 2003;
within one’s self and others (Reed, 1992; Tanyi et al., 2006). In these studies, patients
Sherwood, 2000). Other authors describe described spiritual care as the nurses being
spirituality as giving meaning and purpose kind and respectful, talking and listening to
(Clark et al., 1991; Fitchett, 1995; Sherwood, them, praying with them, connecting with
2000; Legere, 2003). Zinnbauer et al. (1999) them and their family, providing quality care
note that there is not a single definition for and assisting them in obtaining religious
the word spiritual and that existing resources.
definitions differ considerably. There have been a number of studies
In attempting to differentiate spirituality about psychiatric community health nurses
and religiosity, Zinnbauer et al. (1997) found providing spiritual care (O’Brien, 2000;
that the terms describe different concepts. Greasley et al., 2001; Tuck et al., 2001). Most
Religiosity was associated with formalities, of these studies suggest that, in order to
rituals and rules, while spirituality was better provide spiritual care, a relationship between
described as relationships with self and the nurse and the care recipient must develop.
others, purpose and inner dimension. Taylor Despite the fact that extended contact between
(2002) interviewed nurses who suggested that rehabilitation nurses and their clients allows
spirituality may or may not have a religious them to develop in-depth relationships, the
component. author of this paper found no study
Pastoral care literature notes the describing how rehabilitation nurses provide
importance of medical professionals spiritual care.
considering spiritual care needs of patients Therefore, this study describes
(Leech, 1989; Cassidy, 1994; Willows and rehabilitation nurses’ perspectives about how
Swinton, 2000). Dyson (1983) suggests that they cared for the spiritual needs of their
pastoral theology and other disciplines need patients, and examines the lived experiences
to develop a ‘reciprocal’ arrangements in of rehabilitation nurses when providing
order to meet the spiritual needs of spiritual care.
individuals. The research questions were as follows:
Florence Nightingale, the founder of
nursing, identified the importance of a strong 1. How do rehabilitation nurses define spiritual
spiritual base when caring for the needs of care?

Copyright © 2008 John Wiley & Sons, Ltd. 9: 230–240 (2008)


10.1002/shi
232 Mary Catherine Gebhardt

2. How do rehabilitation nurses describe their Recruitment


experiences providing spiritual care? Fourteen rehabilitation nurses currently
3. How do rehabilitation nurses describe working in a rehabilitation setting
their level of comfort in providing spiritual participated in the study. The nurses were
care? recruited during the Association of
Rehabilitation Nurses 30th Annual Educational
Methods Conference held in Atlanta, GA, in 2004.
They responded to a flyer posted at the
The researcher used a Heideggerian registration desk asking for participants who
phenomenological approach to obtain stories provided spiritual care to participate in a
from rehabilitation nurses about providing study. The nurses received a $20 gift
spiritual care. Heideggerian certificate from a bookstore for participating
phenomenological research focuses on the in the study.
meaning of the phenomenon for the person
experiencing it, recognizing that the
Participants
researcher’s interest in the topic cannot be
separated from the data and will have an All of the participants were female. Their
impact on the data as they are collected and ages ranged from 35 to 73 years, and they
analysed (Koch, 1995). This research had been practising nursing for 9 to 55 years.
approach also refers to ‘being there’, which Eight had associate degrees as their basic
emphasizes the ‘situatedness’ of human level of nursing education, and six of these
reality (Reed, 1994). Nurses find the aspect had continued their education and received
of ‘being in the world’ an important baccalaureate degrees in nursing. Six nurses
component of nursing care, and this concept had baccalaureate degrees in nursing as their
makes Heideggerian phenomenology a entry-level education. All but one of the
particularly useful methodology for this nurses had advanced certification in
study. rehabilitation nursing. Thirteen were
Using this approach, the author asked Caucasian, and one identified herself as a
nurses how they provided and defined Black Haitian. The nurses were from various
spiritual care and how they differentiated areas of the United States and one nurse
spirituality from religiosity. Additionally, the worked in Canada. Thirteen identified the
nurses were asked to describe acts they primary age of their clients as adults, but
performed that they viewed as spiritual. The one cared mainly for paediatric clients. All
researcher used the Heideggerian identified religious affiliations including
phenomenological framework when Catholic, Christian, Seventh Day Adventist,
conducting this study because it provided a Methodist, Assembly of God, Baptist and
guide for the research questions and assisted Non-Denominational. The author replaced
in guiding the analysis of the data. Following the nurses’ actual names with pseudonyms
this methodological framework, the during transcription to maintain
researcher and the nurses co-constructed this confidentiality.
research. The Institutional Review Board at
both the institution of education and Procedure
employment of the researcher approved this The researcher explained the study to each
study and all associated consent forms. participant and obtained written informed
Interviews were tape-recorded and transcribed consent. Using a semi-structured interview
verbatim for accuracy. guide, the researcher interviewed each nurse

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10.1002/shi
Rehabilitation nurses describe spiritual care 233

in a private setting conducive to audiotaping Methods to increase trustworthiness


the interview. The interviews were In order to increase trustworthiness of results,
audiotaped and transcribed for accuracy. Each the researcher used several strategies. The
interview lasted approximately 1 hour. The author conducted and transcribed all
researcher asked the nurses to define interviews, thus becoming very familiar with
spirituality and spiritual care. Additionally, the life experiences these nurses shared. The
the researcher asked the nurses to discuss the interviewer also coded all the interviews;
differences between spiritual and religious therefore, the meanings of the codes and sub-
care, and asked each nurse how she learned codes were not subject to various
to care for patients spiritually. Following a interpretations. However, because another
phenomenological approach, the researcher researcher verified the codes, trustworthiness
asked the nurses to share as many of results was assured. This prolonged
experiences as they felt comfortable sharing engagement with the data was one method of
about the times they provided spiritual care. ensuring validity. Using the ‘circular’ method
After the interview, the nurses were asked to of data analysis, the researcher identified
tell colleagues about the study if they patterns in the experiences of the nurses.
thought they would be interested in Finally, clustering similar codes and
participating. The researcher obtained contact describing the true meanings that gave
information in order to send a summary of common understanding, or essences, allowed
the essences found in the interviews to the discovery of similar essences across all
participants to validate the findings. This experiences. The researcher compared the
form of participant validation assured that essences identified in the interviews to
the findings were present in the responses of determine if similarities were present and
the nurses. then wrote a description of the essences to
describe the phenomenon.
Analysis
Member checking was conducted by
The author conducted, coded and transcribed sending participants the interpretations of the
all the interviews. After the 12th interview, themes identified from the data after coding
no new codes emerged from the data; to verify that they agreed with the findings.
however, the researcher coded two additional The letter instructed the nurses to contact the
interviews to assure saturation. After researcher within two weeks if the codes
saturation was attained, all interviews were identified did not reflect their experiences.
recoded to verify whether codes identified in Only two nurses responded to the letter, and
later interviews were actually present in prior these responses affirmed the findings.
interviews. This process of coding forward
and backward continued until no new codes Results
were identified;, thus, saturation was verified.
This ‘circular’ method of data analysis allows As the nurses defined spiritual care, three
moving back and forth between the essences emerged: being respectful, being
individual coded interviews and the whole supportive and building a relationship with
(Speziale and Carpenter, 2003). An expert patients and their families. When the nurses
qualitative researcher reviewed and verified described their experiences providing
the codes. In addition to tape recording, the spiritual care, three essences became
researcher wrote field notes during each apparent: little things, bonuses and being
interview to improve the accuracy of the used by a higher power. Finally, as the nurses
transcription. described how they became comfortable

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10.1002/shi
234 Mary Catherine Gebhardt

providing spiritual care, two essences Providing spiritual care in this instance placed
materialized: repetition and the nurse’s own her in the difficult position of being in
sense of spirituality. conflict with the institutional practices.

Defining spiritual care She [the patient] didn’t want to eat. She
wanted to die. She was ready to go. Her
In order to answer the first research question,
family was OK with all of that, and I
the researcher asked the nurses to define
remember having the biggest row with my
spiritual care. Whatever the nurse described
head nurse because she kept saying, ‘You
as spiritual care was considered her definition
have to feed her’. And I said, ‘I’m not going
of spiritual care in her practice. Therefore, a
to feed her. You have got to realize that she
definition of spiritual care emerged for these
is at a place in her life where she’s making a
rehabilitation nurses. The nurses’ perception
decision about what she wants to do, and
of spiritual care may differ from the patients’
you’re not gonna make her do what you
perception of spiritual care; however, because
want. She’s got the right to finish her life the
the interest was the lived experiences of the
way she really, really wants to’.
nurses, their definition of spiritual care was
sought. These rehabilitation nurses mentioned
Building a relationship
three ideas defining spiritual care: respect,
support and building a relationship. The third definition of spiritual care that
emerged from the interviews was making a
Respect connection or building a relationship. All of
Even though the researcher specifically asked the nurses thought spiritual care involved
the nurses to define spiritual care, some of developing relationships with patient and
the nurses defined spiritual care in terms of their families. Ann said that spiritual care
respecting the ‘religious’ practices of patients. meant making the patient ‘know that there is
Spiritual care meant the nurses respected a link between themselves and someone in
these thoughts and beliefs. Jan noted: the world at that moment’. Lynn talked about
making a connection with a patient who had
I can remember having patients, who, three actually been an acquaintance of her father
times a day you didn’t go in their room,
many years ago. She knew her father had
because they had to be praying facing, I
helped a man and his family but did not
can’t remember which direction, but
know much about the relationship. Through
whatever direction it was, they had to
her conversation with the man, she developed
pray . . . and you had to respect that.
a special connection. Lynn recounted the
experience:
Support
And he [the patient] looked up at me and he
The nurses defined spiritual care as being said, ‘Oh, I’ve seen those eyes before’. And I
supportive. Ann described the following just looked at him, and I said, ‘Where did
experience with a particular patient’s family: you see these eyes at?’ And he said, ‘The
‘I understand that whatever they’re doing is right for them kindest man I ever met, years ago. And he
at that time, for that family member. [I am] trying to be helped me and he helped my family at a time
supportive to them’. Another nurse spoke about when no one else would’. And I knew right
supporting the patients and their families’ then who I was talking to.
wishes when the current practices of the
hospital differed. She was willing to help the In Lynn’s recounting of this story, she
patient and family carry out their wishes. thought the connection she felt with this man

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Rehabilitation nurses describe spiritual care 235

allowed her to care spiritually for him during So I went in and the first thing I did was I
his rehabilitation stay. touched her hand . . . I just asked her about
Another nurse spoke about building a her daughter because I figured she probably
relationship with patients and their families. wanted to talk about it with someone. There
Her first experience was with the family of a was no one else in the room with her and she
patient who had experienced a severe stroke. started to cry. And just holding her hand
She then narrated how she developed and through that time and trying to be a person
nurtured this relationship: that could listen to her needs at that time, I
think, was what she needed right then.
And, then I explained again, that I
understood how they were feeling about the The nurses also spoke about providing
role changes. I guess he had always been the spiritual care in everyday care-giving
strong one. And, his wife didn’t even drive, experiences. Deb stated, ‘I think it is very
he drove her everywhere. Everything was important that it’s part of your everyday activities’. Nan
turned around and backwards. I spent every was more explicit. She noted:
day with them.
But you can give a bath and be spiritual. I
remember one time, it was father’s day, and I
Caring spiritually
had just had my first pedicure, and I thought,
All 14 nurses interviewed were able to answer this feels great, I never had anybody
the second research question and describe the massage my feet, and I thought, I’m going to
times when they cared spiritually for patients. give all my fathers a foot massage on
As they shared their stories and examples of father’s day . . . So that was spiritual,
spiritual care, three essences emerged: ‘little because I wanted them to feel as good as I
things’, ‘bonuses’ and ‘being used’. did.

Little things Spiritual care also included other little


First, spiritual care meant little things such as things such as calling spiritual leaders, pastors
communicating with patients, spending time or ministers. Barb commented, ‘And she also
with patients and their families or performing asked that I call the bishop that she loved very much from
daily tasks such as giving baths or changing this Methodist Church. And so I did’. Gail spoke
bandages. These nurses thought they were about making the connection between a
spiritual because of the underlying motivation patient requesting spiritual guidance and the
they had while performing the task. Granted, hospital chaplain. She said, ‘We have a priest, the
the participants noted that many nurses chaplain, who comes and makes rounds and I make sure
perform these same tasks, but not all nurses that they connect’.
view these tasks as spiritual. However, the
nurses felt that, for them, these simple Bonuses
nursing tasks were spiritual. The nurses The nurses described the experience of
performed ‘little things’ for patients in order providing spiritual care as a situation in
to attempt to meet their needs, including which they received more than they provided.
spiritual needs. Ann told a story about caring It seemed as though it was a ‘bonus’:
for a patient whose daughter had died in the something unexpected or unearned. While
automobile accident that brought her to the providing spiritual care for patients, the nurse
rehabilitation unit. The patient was going to actually gained more than she felt she gave to
miss her daughter’s funeral. the patients. Helen noted, ‘I’m thinking she gave

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10.1002/shi
236 Mary Catherine Gebhardt

me the spiritual lift’. Later in the interview, she and allowed them to build relationships. This
said, ‘The more spirituality you give out, it comes right extended time allowed the nurses to develop
back to you’. Katy thought this aspect of a sense of comfort providing spiritual care.
spiritual care might be a reason people go When these relationships were present, the
into nursing. ‘As nurses, that’s why we go into nurses reported more comfort providing
nursing. We want to help others, but we don’t see that in spiritual care. Barb talked about providing
turn by helping them, they’re helping us too. That’s part spiritual care to an amputee she cared for: ‘I
of spirituality’. walked in one morning, and we began talking. A
friendship or a kinship developed because I had seen her so
Being used often’. Fran thought the ‘connection and the
Some of the nurses felt a higher power relationship that you form with your patients
intervened and used them while providing and families’ facilitates a sense of comfort in
spiritual care. Sometimes their actions seemed providing care. Fran noted that rehabilitation
guided and the words they used seemed nursing was ‘different because you have more
inspired. The advice they gave seemed to time’.
come from another source. Ora said, ‘You know,
I had to figure it’s got to be the grace of God that puts me Personal sense of spirituality
in those places. That’s where I’m needed’. Emma said Finally, these nurses thought they had an
there were times when the families increased comfort in providing spiritual care
mentioned they thought her words were when they had a stronger sense of their own
inspired. She stated that patients and their spirituality. Cindy saw a connection between
families had told her, ‘Thank you so much for that, ‘caring spiritually and being comfortable in
I think what you told me was from God’. Emma what you’re doing on a daily basis’. She noted
described the phenomenon this way: ‘I believe that she provided spiritual care on a daily
God uses me. I’m His servant and He uses me to serve basis because she was ‘very spiritual’. Mimi
others, through nursing’. described her comfort in caring spiritually
this way: ‘I try to bring some form of spiritually into
Developing a sense of comfort my practice on a daily basis with whomever I’m working
Two essences emerged as the nurses answered with; [it] has to do with my own intrinsic spiritual
the third research question and described beliefs’.
how they developed comfort in providing
spiritual care: repetition and relying on their Summary
own sense of spirituality. The nurses defined spiritual nursing as being
‘respectful’, ‘being supportive’ and ‘building a
Repetition relationship’. They realized that they needed
The nurses said repetition in providing to be open to whatever beliefs the patients
spiritual care helped them become more and their families practised and they
comfortable. The more often they provided described this as respect. By respecting
spiritual care, the more comfortable they patients and their families, every other aspect
became. Jan described how she became of caring became spiritual for these nurses.
comfortable providing spiritual care. She Spiritual care was evident in the ‘little things’
stated, ‘Repetition’. She went on to say, ‘It gets the nurses did every day, in a task as simple
easier the more you do it’. as communicating with patients or spending
The nurses also said that the extended time with them and their families, or as
amount of time they experienced with commonplace as giving baths or changing
patients in a rehabilitation unit was an asset dressings. Spiritual care also included calling

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10.1002/shi
Rehabilitation nurses describe spiritual care 237

spiritual leaders such as pastors or ministers various specialty nurses interviewed by


and praying with and for the patients, their Wilson (2007) also expressed.
families and peers. The nurses described the The nurses gave examples of providing
experience of providing spiritual care as a spiritual care. These acts were often very
situation in which they received more than simple nursing acts, but the nurses felt they
they provided. The nurses said this was a type were spiritual because of the attitude the
of ‘bonus’ because it was not something they nurse had when performing them. While
had expected. Some of the nurses felt they other professions have viewed simple acts
were ‘being used’ by a higher power while such as silence and listening as spiritual in
providing spiritual care. The nurses developed nature (Leech, 1989) and nursing theorists
comfort in providing spiritual care by have identified these acts as provision of
‘repetition’, and ‘relying on their own spiritual care (Ronaldson, 1997; Watson,
personal sense of spirituality’. They thought 1999) nursing research studies have not
rehabilitation nursing offered them unique identified these simple acts as aspects of
opportunities to develop this comfort. providing spiritual care. The rehabilitation
Rehabilitation nursing made it easier because nurses interviewed felt that other nurses who
patients spent an extended amount of time on do not self-identify as providing spiritual care
the rehabilitation unit and relationships may perform similar acts and not view them
formed. These nurses also felt that a strong as spiritual. For this reason, these experiences
sense of personal spirituality allowed them to were the perceptions of the particular nurses
nurse more spiritually. interviewed and cannot be generalized. Thus,
for some nurses, there is an intersection of
Discussion personal values and professional
responsibilities. Nurses in the rehabilitation
Nurses were able to offer a definition of setting may find opportunities to provide
spiritual nursing care; however, many times, spiritual care for families in crises. For some
the nurses described spirituality in terms of families, spiritual care may be important in
activities they performed. The difficulty in coping with and understanding the events
defining spiritual care rather than defining it that have occurred. Therefore, more research
by describing actions of spiritual care is needs to be conducted that would look into
similar to the argument by English et al. this connection between spiritual care and
(2003) that the difficulty encountered when coping.
defining spirituality assumes that spirituality The nurses felt that when they performed
can be described by using words that would spiritual care, they often received a
capture its meaning and discuss its essence. complementary benefit or ‘bonus’, from
The nurses defined spirituality as ‘respect’, providing care. Even though the nurses
which was similar to expectations of spiritual intended spiritual care to benefit the patient,
care the cancer patients and caregivers Taylor the nurses felt they also benefited from the
(2003) interviewed. These rehabilitation experience. They also talked about ‘being
nurses also defined spiritual care as used’ by a higher power during the provision
‘supporting’ patients and caregivers. The of spiritual care. They often did not know
psychiatric nurses O’Brien (2000) interviewed what to say or do in a particular situation but
included this aspect of support when they were inspired once in the situation. There
defined the nature of spiritual care. Finally, were even instances when patients and their
the nurses interviewed thought spirituality families mentioned they thought the words of
included a sense of ‘connectedness’, which the the nurse were coming from God. These two

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10.1002/shi
238 Mary Catherine Gebhardt

essences have not been identified in previous spiritual care from rehabilitation nurses who
nursing studies; however, they were noted in provide it. The nurses knew they would be
Cassidy’s (1994) recounting of her work as a asked about times they provided spiritual care
hospice physician and Leech’s (1989) work as for patients. Future studies need to be
a spiritual director. Further research might be designed to understand the perceptions of
able to determine whether this nursing nurses who provide similar care but do not
experience is unique to rehabilitation nurses view it as spiritual. Understanding how these
or whether other nurses providing spiritual nurses view spiritual care differently may be
care have similar experiences. beneficial. In addition, quantitative studies are
When exploring how to become needed to understand the prevalence of
comfortable providing spiritual care, the spiritual care giving experiences among
nurses described providing spiritual care nurses and how this care may contribute to
repeatedly, and they often provided care patient recovery.
based on cues they received from their The experiences of these nurses may help
patients. The nurses mentioned that their own other nurses realize the importance of
personal sense of spirituality guided them in spiritual care when caring for patients. Other
providing spiritual care. This phenomenon is nurses will recognize how they can meet
similar to recent nursing studies (van patients’ spiritual needs during very ordinary
Leeuwan et al., 2006; Wilson, 2007; Yang and acts of nursing care.
Mao, 2007) that identified nurses’ own sense
of spirituality and pastoral care literature Acknowledgements
(Bloomfield, 1978; Cassidy, 1994) which
notes that caregivers’ sense of spirituality This study was supported in part by a
often influences their attitudes regarding research grant from the Epsilon Alpha chapter
providing spiritual care for patients. of Sigma Theta Tau. Additional assistance was
provided by P. C. Clark, PhD, RN, FAHA,
Conclusion FAAN and P. Orpinas, PhD.

Rehabilitation nurses interviewed for this


study provided spiritual care and were able to Mary Catherine Gebhardt, PhD, RN,
define it. They noted that many spiritual CRRN
interventions were very basic nursing Assistant Professor, Byrdine F. Lewis
activities. The nurses thought that School of Nursing
rehabilitation nursing afforded them Georgia State University
opportunities, such as extended time with the PO Box 4019
patients and their families, which other Atlanta, GA 30302-4019
nursing specialties may not have. Tel: 404-413-1161. Fax: 404-413-1205.
The researcher specifically designed this Email: mgebhardt@gsu.edu
study to understand the perception of

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