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Article

Chronic Illness
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Using projective exercises to ! The Author(s) 2019
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identify patient perspectives sagepub.com/journals-permissions
DOI: 10.1177/1742395319872788
of living with comorbid type 2 journals.sagepub.com/home/chi

diabetes and asthma

Michelle L Litchman1 , Nancy A Allen1,


Carrie McAdam-Marx2 and Michael Feehan3

Abstract
Objective: Patient self-management of a single chronic condition can be challenging, but few
studies have examined the emotional impact of living with comorbid conditions and how that
differs from a single chronic condition. This study examined patient perspectives of the emotional
impact of living with asthma or asthma with comorbid type 2 diabetes (asthmaþdiabetes).
Methods: Data were collected from 41 adults (asthma only n ¼ 22, asthmaþdiabetes n ¼ 19)
using semi-structured interviews on two separate online bulletin boards. Respondents engaged in
discussions that leveraged two projective exercises: describing their health condition(s) as an
animal, and selecting one of eight images that best illustrated how they were living with and
managing their health condition(s).
Results: Respondents described physical and emotional challenges related to managing asthma
or asthmaþdiabetes. Animal- and image- projective exercises were categorized by response and
health condition. Thematic analysis across both projective exercises identified four themes:
(1) frustrations with dual diagnosis, (2) juggling the dual diagnosis, (3) anticipating the future,
and (4) unpredictability.
Discussion: Projective exercises are one way to elicit feelings about living with chronic
conditions. Healthcare providers can improve support for patients with more than one health
condition by providing education on how to manage comorbid conditions.

Keywords
Diabetes, asthma, online bulletin board, projective exercise, multimorbidity
Received 1 February 2019; accepted 30 July 2019

3
Kantar LLC, San Francisco, CA, USA
1
University of Utah College of Nursing, Salt Lake City, Corresponding author:
UT, USA Michelle L Litchman, University of Utah College of
2
University of Utah College of Pharmacy, 30 S 2000 E, Salt Nursing, 10 S 2000 E, Salt Lake City, UT 84112, USA.
Lake City, UT, USA Email: michelle.litchman@nurs.utah.edu
2 Chronic Illness 0(0)

Introduction include measuring daily peak air flow


through the lungs, managing maintenance
Approximately 30.3 million Americans are
medications such as inhaled corticosteroids,
living with diabetes,1 and 25 million have
recognizing when to use a rescue
asthma.2 These conditions are linked phys-
inhaler, recognizing deterioration in symp-
iologically. When controlling for potential
toms, recognizing and avoiding triggers,
confounders, individuals diagnosed with
and knowing when to seek professional
diabetes have an 8% higher risk for
help or emergency treatment. In patients
asthma than patients without diabetes,3
with both diabetes and asthma, disease
and patients with asthma have a 25% self-management is more complicated.
higher odds of having diabetes.4 The mech- Managing multiple conditions often
anism(s) for this relationship are not requires complex medication regimens that
completely understood, though multiple may lead to drug–drug or drug–condition
pathological pathways have been hypothe- interactions, competing behavioral and life-
sized. Higher rates of reduce lung function style modifications, and engagement with
and asthma in patients with diabetes multiple healthcare providers.9
may be due to diabetes-driven alterations
to the connective tissue in the lung Asthma, diabetes, and emotional distress
and hyperglycemia-induced microangiop-
athy.3 The development of diabetes in The stressors related specifically to diabetes
individuals with asthma may be due to or asthma have been well studied. Stressors
asthma medications, such as corticoste- associated with asthma include fear of having
roids.5 Additionally, patients with asthma an asthma attack or having an asthma attack
have been found to have a higher risk of in public.10 Asthma symptoms can worsen
developing pro-inflammatory conditions quickly during exacerbations, which can
including diabetes.6 Furthermore, reduced often be frightening. Such a scare can lead
lung function can limit physical activity, to health-related anxiety and hypervigilance,
resulting in weight gain that can trigger which can further trigger asthma.11 Diabetes-
insulin resistance which may progress related research has shown that perceived
to diabetes.7 control, self-efficacy and diabetes-related dis-
tress are related to glycosylated hemoglobin
A1c and several self-management behaviors
Diabetes and asthma self-management
such as medication adherence.12
Diabetes and asthma both require a great However, few studies have examined the
deal of self-management, i.e. tasks that indi- emotional impact of specifically having
viduals must undertake to live with one or both asthma and diabetes. While it is
more chronic conditions.8 These tasks known that the pressures of living with mul-
require the “confidence to deal with medical tiple conditions are associated with reduced
management, role management and emo- quality of life, lower self-efficacy, and
tional management of their conditions” higher rates of depression,13 patient percep-
(p. 57).8 Individuals with diabetes must per- tions and the stress that they face in simul-
form several daily activities to manage their taneously managing these two common,
diabetes, e.g. monitor glucose levels, take chronic conditions are not known. As a
medications, follow a recommended diet first step to filling this gap in knowledge,
and exercise plan, problem solve issues this study examines patient perspectives of
such as hyperglycemia, and learn coping the emotional impact of living with asthma
skills.1 Asthma self-management tasks with or without comorbid type 2 diabetes.
Litchman et al. 3

To elicit patients’ emotional response to OBBs are a useful platform that allows
managing these conditions, we used projec- moderators to probe in-depth individual
tive exercises in an online focus group set- respondents’ health experiences and to
ting. Projective techniques have a history of convey the aggregate responses to all
use in mental health research and have been respondents for group discussion to solicit
more recently used in market research and wide variation in opinions over an extended
to describe patient experiences with chronic period.18 OBBs have also been used as a
conditions.14–16 In recent applications, platform for peer-to-peer support patient
projective exercises facilitate an inhibited care settings.19 Given the ability of OBBs
discussion, which may generate more com- to elicit information and the narrow study
plete responses than through direct aim, recruitment efforts targeted 20 partic-
questioning.17 ipants per arm to ensure saturation.20

Methods Measures
This qualitative study was conducted in Each OBB was moderated by a researcher
2016 by a contract market-research compa- team who led respondents through two pro-
ny using an online bulletin board (OBB) jective exercises to facilitate discussions
with investigator oversight for sampling about managing asthma or asthmaþdiabe-
and data collection. The study protocol tes. Projective exercises, whose responses
and consent forms were reviewed by the are categorized as association, completion,
University of Utah Institutional Review construction, expressive and choice order-
Board and considered exempt based on ing, are used in qualitative research to
applicable guidelines involving the ethical elicit participants’ deeper, more visceral
treatment of human subjects. The market- and often unconscious beliefs, attitudes
and motivations.16 This technique has
research organization recruited patients,
been used in patients with chronic health
hosted and moderated the OBB discussions
conditions including idiopathic lung dis-
with investigator oversight.
ease, cystic fibrosis, and diabetes15,21 and
as well as other public health issues.22
Sample and setting In the first projective exercise, respond-
Adults (>18 years old) were recruited by the ents were asked to describe their asthma or
contract market-research company using asthma þ diabetes as an animal and explain
these criteria: (1) diagnosed with either why they choose that animal. Respondents
asthma or both asthma and type 2 diabetes with asthma þ diabetes were asked to
(asthma þ diabetes) and (2) had filled at choose two animals, one for asthma and
least one prescription for an asthma and/ one for diabetes. When making their selec-
or diabetes medication by a community tion, respondents were asked to consider
pharmacy within the past year. Eligible how the animal behaves, its personality
adults were screened before inclusion to and how it makes them feel.
obtain a geographically diverse sample In the second projective exercise,
with mixed gender, age, race, ethnicity, respondents were asked to select an abstract
employment status, annual household image (Figure 1) that best illustrated their
income and type of asthma and/or diabetes experience living with and managing
medication. Respondents were allocated to asthma or asthma þ diabetes and why they
one of two mutually exclusive OBBs: chose that image. In each projective exer-
asthma only and asthma þ diabetes. cise, the moderator probed respondents to
4 Chronic Illness 0(0)

Figure 1. Abstract art image for projective exercise.

elicit the emotional impact of their condi- Transcripts of each projective exercise
tion (e.g. can you tell me more about why were read and coded separately by two
you chose that image?). independent researchers to avoid bias due
to an individual researchers subjectivity.
Data collection Using matrices categorized by health condi-
tion(s), animal projective-exercise data were
Data were collected through OBB inter-
categorized by animal type and/or rationale
views following a semi-structured discus-
for animal selection; and abstract image
sion guide programmed for online textual
projective-exercise data were categorized
administration. Respondents engaged in
by image selection and rationale for image
OBB discussions for approximately
selection and the number of participants
2 hours spread over the course of a day, as
choosing each image. Saturation was
convenient. They could log on to answer
reached25 and through a group interpretive
initial questions posted to the board and
process, overarching themes about respon-
respond to moderator follow-up questions.
dent experiences living with asthma and
Each board ran from 4 a.m. to 3 a.m. EST
asthma þ diabetes were identified.26
the following day (1 am to 12 am PST) to
allow for maximum participation across
time zones and employment considerations. Results
Respondents received an honorarium for
Of 41 respondents, 24 participated in the
their participation.
asthma only OBB. Of these, 22 completed
the discussion on the day of the research.
Data analysis Another 23 respondents took part in the
OBB transcripts were analyzed using prin- asthma þ diabetes discussion, of which 19
ciples of qualitative description.23,24 completed the OBB discussion on the day
Litchman et al. 5

Table 1. Respondent demographics.

Asthma only (n¼22) Asthmaþ diabetes (n¼19)

n (%) Mean  SD n (%) Mean  SD

Female 12 (54) 12 (63.2)


Age (years) 43  11.2 51 11.4
Residence
Urban 11 (50) 7 (36.8)
Suburban 8 (36.4) 10 (52.6)
Rural 3 (13.6) 2 (10.5)
White 14 (63.6) 9 (47.3)
BMI 329.7 356.5
BMI > 30 10 (45.5) 14 (73.7)
College graduate 11 (50) 7 (36.8)
Employment status
Full-time 16 (72.7) 11 (57.8)
Part-time 1 (5) 4 (21.1)
Retired 2 (9) 2 (10.5)
Student 1 (5) 0 (0)
Unable to work 1 (5) 2 (10.5)
Unemployed, looking 0 (0) 1 (5.3)
Prefer not to answer 1 (5) 0 (0)
Household income
$10,000–$19,999 1 (5) 2 (10.5)
$20,000–$29,999 0 (0) 3 (15.8)
$30,000–$49,999 6 (27.3) 3 (15.8)
$50,000–$69,999 3 (13.6) 3 (15.8)
$70,000–$99,999 8 (36.4) 2 (10.5)
>$100,000 3 (13.6) 6 (31.6)
Prefer not to answer 1 (5) 0 (0)
Insurance (not mutually exclusive)
Private – through employer 13 (59.1) 11 (57.9)
Private–personal 3 (13.6) 2 (10.5)
Medicaid 4 (18.2) 3 (15.8)
Medicare 3 (13.6) 6 (31.6)
Uninsured 1 (5) 1 (5.3)

of the research. Detailed demographics of examples and representative quotes for


respondents are in Table 1. asthma and diabetes are in Table 2.

Animal projective exercise Image projective exercise


Animals projected to depict asthma and Respondents with asthma and asthmaþdia-
diabetes were categorized into five catego- betes were asked to select an image that
ries: (1) sneaky or unpredictable, (2) heavy, represented their disease(s). Overall, more
constricting and slow (3) trainable, (4) respondents with asthma than with diabetes
annoying, and (5) masquerading. Animal chose images, with the majority selecting
6 Chronic Illness 0(0)

Table 2. Animal projections.

Animal
Theme examples Asthma quotes Diabetes quotes

Animals that are Snake Asthma would be a bear. Diabetes is a piranha fish that
sneaky or Tiger Generally, it hibernates but eats you little pieces at a time.
unpredictable Lion during certain times of the Diabetes is a rat that can repro-
Bear year can be ferocious.If my duce at an enormous rate, full
Cheetah asthma were an animal it of ugly poison that is hard to
Goat would be a cheetah because get rid of. A vicious unforgiv-
Rabbit asthma attacks happen sud- ing disease. More like a silent
Mouse denly and need to be acted killer. You don’t realize just
Chameleon upon fast. Also, cheetahs can’t how bad it was kicking your
Cat be tamed and neither can my ass until it’s too late.
Piranha asthma.Cats are gentle, playful It doesn’t bother me, [gorillas
Sloth and tame at times, but also are] laid back and peaceful, but
Gorilla wild and uncontrollable as when it flares up it has an
Wolf well. It makes me feel that explosive side for a few sec-
Whale having Asthma can be unpre- onds and then it is calm again.
dictable and predictable at [Lions] can be mild mannered
times, because you don’t but raging when out of control
know when an attack will can devour everything in sight.
start, and at the same time [It] can affect all areas
you can also mange living with of health.
asthma by controlling how
much you do to prepare for an
attack and take the necessary
steps to prevent a
major attack.
Animals that are Snake “Even if I’m not having an attack N/A
heavy, constrict- Fish out of it still feels like it has a grip on
ing and slow water me. Especially if I attempt to
Octopus do anything too physical it
Fire breathing reminds me that it is ready to
dragon squeeze the life out of me.”
Panting dog
Elephant
Bear
Sloth
Animals that Dogs Cats’ can be intimidating at first My diabetes is a very large dog. If
are trainable Cats but them [sic] once you get to you train it well and are disci-
Elephants know them you know how to plined, it’s controllable. If you
handle them correctly. This is don’t, you’re in trouble.
the way I felt at first, I was Elephant. . .because they are
intimidated. But once I figured large and heavy and that is
out my triggers and how to how I feel about having diabe-
manage them, it was a whole tes. . .like something is weigh-
lot easier. ing on me all the time.
(continued)
Litchman et al. 7

Table 2. Continued
Animal
Theme examples Asthma quotes Diabetes quotes

I think an elephant. My asthma is


a big thing, it can tower over
your life and interactions but it
can also be controlled. It can
be managed. You just have to
be trained on how to manage
it properly. Having asthma to
me is just another thing. I do
not let it dictate my life or my
decisions. I still live every day
and enjoy life to its fullest. I
refuse to let it cripple me.
Animals that are Pesky My asthma is a mosquito – it’s Diabetes is like a mosquito there
annoying or mosquito annoying, but avoidable. Use a all the time and annoying. It
never go away Leech bug spray! makes me feel useless and
Ant concerned, and at time debili-
Rat tated.
Monkey A Rat. Rats can reproduce at an
enormous rate. Their [sic]
ugly full of poison, can be hard
to get rid of. Should they bite
you, you’ll need a series [of]
shots to fight [them] off.
My diabetes is like an ant. When
ants are in a colony they are a
nuisance and getting rid of
them is a pain. Diabetes is a
nuisance and pain when not
controlled.
Diabetes would be a monkey,
because it takes over your life.
Like having another child.
Animals that are Flamingo Asthma would be flamingo, N/A
masquerading because you can’t tell they
don’t fly. . .so pretty on the
outside you wouldn’t know
they really struggle.

Image B (n ¼ 7 for the asthma-only group) tunnel. The tunnel sometimes had a light
or Image F (n ¼ 12 for asthma-only group) at the end. For example, one respondent
(Table 3). said, “As long as a I take care of myself,
Image B was described in three ways: things will be ok and I can keep on moving
tunnel with light at the end, long and chal- forward.” In other instances, the tunnel was
lenging hallway, and narrowing airway. For referred to as a long and challenging hall-
nine respondents, the image represented a way with a heavy burden. The image was
8 Chronic Illness 0(0)

Table 3. Projective image selections by group.

Asthmaþdiabetes N¼19

Image Asthma only N¼22a Asthma responses Diabetes responses

A 0 1 3
Swollen airway; trying, but not able to Spiral out of control or a whirlwind
catch a breath
B 7 5 6
þ Tunnel with a light at the end þ Tunnel with a light at the end
A long, challenging hallway with heavy burden. A long journey or road ahead, or a
Narrowing airway þ A steady path long hallway
C 0 1 2
þ Straight and narrow path to treating asthma.
D 0 1 0
þ/– The straight lines of the star represent
good days of living with asthma; points on
the lines represent when asthma had been
triggered and required multiple treatments.
E 0 1 1
White area represents the lack of air; the þ Stability, stable and currently
small purple circle represents the small comfortable with their condition
amount of air getting into their
lungs during an asthma attack
F 12 10 4
A long and winding, never ending road, and an Twists and turns that come with
uphill battle having diabetes
Never knowing what is going to be around An uphill battle requiring focus
the turns and attention
The ups and downs of living with asthma
G 1 0 0
Hills and valleys, always having to climb a hill in
order to breathe better
H 0 0 3
þ Positive – jump for joy, for having
“diabetes under control”
þ Sunshine, things would be okay
a
Two are missing image selections for asthma-only group.

also described as a narrowing airway. Two the ups and downs of living with asthma;
respondents described the airway as “trying Respondents reported that sometimes they
to take a breath out of a tiny straw” or would be fine, and other times they would
“claustrophobia and panic that I feel experience a trigger that would lead to an
when I can’t breathe.” To one respondent, asthma exacerbation. Triggers included
the image indicated asthma was on a mold, pollen, perfume, and animals. The
“steady path”. winding road was also described as an
Image F was described in two ways: a “uphill battle” or “never knowing what is
long, winding, and never ending road; and going to be around the turns.” For one
Litchman et al. 9

respondent, the winding road described the Thematic analysis


activities experienced prior to asthma diag-
Two researchers reviewed transcripts to
nosis, such as shortness of breath, respira-
identify themes. During the process, four
tory infections, and emergency department
themes clearly emerged from the data with
visits. Respondents raised concerns about a
no disagreement between investigators in
maintenance-only approach without cure.
terms of identified themes: (1) frustrations
They described the “highs and lows” of
with dual diagnosis, (2) juggling the dual
asthma. The high points included being
diagnosis, (3) anticipating the future, and
able to maintain a balance between the (4) unpredictability.
right amount of medication to exercise
and to breathe freely. The low points
Frustrations with dual diagnosis
included being inactive, stopping taking
medications, or experiencing unpredictable Individuals with asthmaþdiabetes reported
asthma exacerbations. more frequent physical and emotional
Image responses for respondents with effects of having two chronic conditions.
diabetes were more diverse, but they also One respondent noted, “I feel unhealthy
commonly chose images B (n ¼ 6) and F having asthma and diabetes; it makes me
(n ¼ 4) to represent diabetes. Image B was sad and angry.” Another respondent
described by the diabetes group, similar to stated, “It makes me feel useless and con-
the asthma group, as a light at the end of a cerned, and at times, debilitated.” While
tunnel, a long journey or road ahead, or a one may feel healthy for a period of time,
long hallway. Respondents noted that that a crisis or disease progression from either
they had to be mindful along this path, disease could result in major issues for the
checking glucose levels, watching their other condition. For example, one respon-
diet, exercising, and being in tune with dent described not being able to exercise as
their body. For some, the path seemed so she wanted to due to asthma, which impact-
long that it was discouraging. ed her diabetes. Respondents realized they
Image F was also used to describe the are responsible for managing both condi-
twists and turns that come with having dia- tions. While some were angry, worried
betes. In contrast to the asthma group, and tired, others tried to remain optimistic
however, the diabetes group described this because they realized the alternative (i.e.
image as representing an uphill battle that death) if they did not manage
requires focus and attention. One respon- both conditions.
dent noted, “My eating habits, mood, just
my whole being can be disrupted if my glu- Juggling the dual diagnosis
cose levels are off.” In general, asthma and diabetes were both
While less commonly selected, Image H identified as important health concerns.
was used by two respondents to provide However, respondents differed in how
positive sentiments about diabetes. One they viewed their asthmaþdiabetes.
described legs jumping in the air with joy Perceived effective management of one con-
for having “diabetes under control,” while dition did not always reflect the perceived
another respondent reported that her regi- management of the other condition.
men was working and the image repre- Severity of asthma (i.e. number of medica-
sented sunshine, indicating things would tions and triggers) and diabetes (i.e. ability
be okay. For more detailed descriptions of to make lifestyle changes, number of medi-
images, see Table 3. cations, and diabetes complications)
10 Chronic Illness 0(0)

impacted asthmaþdiabetes management. constant threat and lack of predictability


Some respondents found that diabetes is created stress and worry for many. Several
more manageable than asthma, in part (n ¼ 13) noted that they attempted to gain a
because of the inability to control environ- sense of control by avoiding social situa-
mental factors that may trigger asthma, tions with triggers (e.g. going to the home
whereas the environment specific to diabe- of a friend with pets). However, all
tes was perceived to be controllable. Some respondents mentioned times when they
respondents with seasonal asthma symp- were caught unaware by a trigger that led
toms or mild asthma requiring only a to an attack (e.g. being stuck in an elevator
rescue inhaler found asthma easier to with someone wearing a lot of perfume).
manage than diabetes. However, many The unpredictability of asthma can be
respondents found asthmaþdiabetes to be scary, but many had learned to avoid trig-
equally challenging, with only two partici- gers and prepare for the worst (i.e. always
pants indicating that they felt their asthma carrying their rescue inhaler).
and diabetes were well managed. Exacerbations were scary and stressful for
many, as they fought for air. Memories of
Anticipating the future attacks motivated individuals to carry their
rescue inhaler and may have increased
Most respondents indicated that they stress levels when they were exposed to a
expected their asthma to remain more or trigger and wondered if an exacerbation
less the same in the future, but saw an would occur again.
opportunity for further improvement par-
ticularly through exercise or healthier
behaviors (healthier diet to lose weight).
Discussion and conclusion
Exercise was commonly mentioned as Discussion
having major limitations, which kept them
from fully committing to a more active life- In this study, we identified the emotional
style. The outlook for diabetes in patients impact of living with asthma or asth-
with both conditions was slightly less opti- ma þ diabetes, using projective exercises.
mistic. Many respondents were unsure Among those with asthma, with or without
about their ability to commit to the dietary diabetes, respondents described their health
constraints and healthier lifestyle to condition as an animal who was unpredict-
adequately manage diabetes. A few able, a burden, and annoying. In the image
respondents (n ¼ 3) were more attuned to exercise, many respondents selected images
the connection between the two conditions, that portrayed their asthma as a long
recognizing the possibility for improvement tunnel with a heavy burden or a long, wind-
in both conditions by making healthier life- ing road with ups and downs. These image
style choices. descriptions were aligned with animal meta-
phors depicting disease burden and unpre-
dictability. Most projections related to
Unpredictability
asthma were negative, although a few were
Asthma exacerbations were a real and more optimistic, depicting a light at the end
unpredictable threat often lurking in the the tunnel or optimism in the ability to make
background of respondents’ daily routine. progress with asthma management.
Many felt that their asthma could be Respondents with asthma þ diabetes
docile and manageable one moment and projected their experience of living with dia-
aggressive and threatening the next. This betes in an overlapping, but broader
Litchman et al. 11

manner than that of respondents with of patient care,28,29 and can help providers
asthma only. Diabetes was similarly associ- acknowledge and address patient concerns,
ated with unpredictability and disease help establish appropriate expectations
burden in the projective animal exercise. about treatment and outcomes, and ideally
However, these respondents also projected help patients develop healthy coping skills.30
their diabetes as silent and sneaky as well as Further, the Institute of Medicine (IOM)
slowly taking over their health, consistent cautioned against treating conditions sepa-
with the progression of type 2 diabetes.1 rately in Crossing the Quality Chasm: A
These respondents offered a greater diversi- New Health System for the 21st Century.31
ty of responses to the projective image exer- Rather, the report suggested that day-to-day
cise for diabetes, which is perhaps related to problem-solving skills overall may be more
varying treatment options or time since important than disease-specific education.
their diabetes diagnosis. Like the Such skills may help patients overcome
projective-image responses for asthma, self-care challenges such as medication use,
those elicited for diabetes included a long adherence to diet and exercise recommenda-
tunnel or winding road with twists and tions, and effective communication with
turns, but diabetes was also sometimes pro- their health-care provider, as well as in man-
jected to be “out of control” or a whirlwind aging emotions.31
impacting all aspects of life. On the other Knowledge of patients’ emotional
hand, more positive responses were elicited response to asthma and diabetes could be
for diabetes than for asthma, indicating incorporated into patient care and allow
positive feelings about managing diabetes providers to tailor conversations and mes-
well and the ability to live with diabetes. sages that reflect patient hopes, expecta-
Overall, however, these finding are aligned tions, and concerns.32,33 For instance,
with a study by Slightam et al.,27 which knowing that a patient is optimistic about
found that in patients with multiple comor- diabetes but frustrated with the unpredict-
bid conditions, diabetes and lung condi- ability of asthma control help providers and
tions were among the most bothersome. patients understand that optimism about
When asked about co-managing these diabetes may facilitate medication compli-
diseases, asthmaþdiabetes respondents ance, while frustration and fear of asthma
noted the physical and emotional demands, attacks may cause the same patient to avoid
challenges and frustrations of simulta- exercise. This turn could lead to discussion
neously managing these conditions. that taps into patient optimism (e.g. the
Despite more optimistic responses overall positive effects of exercise on diabetes and
for diabetes versus asthma, when asked asthma) and coping skills (e.g. avoiding
about their future experiences, asthmaþdia- asthma triggers and use of a rescue inhaler
betes respondents were less optimistic with during exercise). This approach is poised to
diabetes than with their asthma. These create patient–provider relationships that
themes may reflect concerns and stress facilitate patient engagement and participa-
tion in treatment decisions.
over day-to-day asthma control versus the
However, in busy practice settings, pro-
long-term implications of suboptimal dia-
viders may find it challenging to engage
betes control.
patients at this level to identify and address
the emotional aspects of living with and
Clinical implications self-managing chronic diseases. Projective
Understanding patient’s emotional response exercises may help balance time and
to chronic conditions is an important aspect resource constraints with the value of
12 Chronic Illness 0(0)

information by quickly eliciting emotional responses in those who experience difficulties


responses from patients. This technique with linguistics or expression.36
may also be useful in children, who have
been responsive to projective exercises and Limitations
may have a more limited ability to effective-
The interpretation of our study findings has
ly communicate emotions.34
limitations. First, respondents were middle-
Yet, there is a dearth of literature explor-
ing the use of projective-exercise interven- aged, all had asthma, and those with diabe-
tions. While our study provides insights tes had type 2 diabetes, had Internet access,
into patient emotional experience with dia- and were familiar with OBB use (able to type
betes and asthma, more research is needed in English). Our findings cannot be general-
to develop and test projective-exercise inter- ized to adults with type 2 diabetes without
ventions in clinical care for patients with asthma, those with asthma and type 1 dia-
these conditions. Tools must be developed betes, or children. Second, this study used
and projective responses mapped to specific OBBs, which did not capture emotional
emotional states, followed by research to nuances, such as body language or tone of
establish relationships between emotional voice, that would have been captured using
states and disease distress, self- in-person interviews. Third, respondents
management behaviors, and outcomes. In were sampled by convenience from individ-
developing and testing projective exercises uals with computer access and time to par-
in asthma and/or diabetes, researchers can ticipate in the OBB, thus introducing a self-
look to pain research, which also has a selection bias whose impact on responses
strong emotional component. Abstract ani- is unknown.
mations called “Painimations” have been Finally, while projective techniques have
developed and tested for adults to commu- a long history in health care, particularly
nicate their pain and for providers to assess mental health and psychology, use in
that pain.35 This approach was well chronic conditions and for developing inter-
received by patients, with 82% of respond- ventions and guiding care is limited. While
ents agreeing or strongly agreeing that they useful for quickly exploring emotional
would use painimation to communicate response to chronic conditions, the validity
pain to their providers.35 and reliability projective exercises for this
In addition to having a role in clinical purpose have not been established. We
practice, projective exercises could play an took steps to reduce researcher bias in inter-
important role in research. In the current preting responses and identifying themes,
study, respondents could quickly identify but caution should be used in interpret-
animals or abstract images that represented ing results.
their feelings about their asthma, diabetes or
asthmaþdiabetes using OBBs, a form of
Conclusion
social media. This technique has application
potential in research using other social In this study, respondents identified their
media platforms such as Facebook, Twitter feelings about their asthma or asthmaþdia-
(such as tweet chats) or Instagram. This betes through animal-projective or abstract
approach may also be useful as an ice break- image-projective exercises. Most respond-
er in focus groups, for example, to facilitate ents with asthma had negative projections
participants’ willingness to openly discuss related to asthma. Overall, their health con-
health-related topics. Using projective exer- dition was associated with unpredictability,
cises as metaphors may elicit emotional burden, and annoyance. In contrast,
Litchman et al. 13

respondents with asthmaþdiabetes had a Guarantor


greater diversity of responses to the ML.
image-projective exercise for diabetes and
overall responses to the exercises were Informed consent
more positive. Respondents found these
Informed consent was obtained from the patient
exercises easy to complete and several clin- (s) for their anonymized information to be pub-
ical applications could be developed to elicit lished in this article. Specifically, participants
the emotional impact of living with chronic were phone screened and gave verbal consent,
conditions. Projective exercises are useful in then directed to the Online Portal where they
helping patients express their emotional completed electronic consent.
state regarding chronic disease manage-
ment. Healthcare providers must familiarize Trial registration
themselves with projective exercise techni-
N/A.
ques and consider them a resource when
assessing patients.
ORCID iD
Acknowledgements Michelle L Litchman https://orcid.org/0000-
0002-8928-5748
N/A.

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