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Chronic Illness
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Using projective exercises to ! The Author(s) 2019
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identify patient perspectives sagepub.com/journals-permissions
DOI: 10.1177/1742395319872788
of living with comorbid type 2 journals.sagepub.com/home/chi
Abstract
Objective: Patient self-management of a single chronic condition can be challenging, but few
studies have examined the emotional impact of living with comorbid conditions and how that
differs from a single chronic condition. This study examined patient perspectives of the emotional
impact of living with asthma or asthma with comorbid type 2 diabetes (asthmaþdiabetes).
Methods: Data were collected from 41 adults (asthma only n ¼ 22, asthmaþdiabetes n ¼ 19)
using semi-structured interviews on two separate online bulletin boards. Respondents engaged in
discussions that leveraged two projective exercises: describing their health condition(s) as an
animal, and selecting one of eight images that best illustrated how they were living with and
managing their health condition(s).
Results: Respondents described physical and emotional challenges related to managing asthma
or asthmaþdiabetes. Animal- and image- projective exercises were categorized by response and
health condition. Thematic analysis across both projective exercises identified four themes:
(1) frustrations with dual diagnosis, (2) juggling the dual diagnosis, (3) anticipating the future,
and (4) unpredictability.
Discussion: Projective exercises are one way to elicit feelings about living with chronic
conditions. Healthcare providers can improve support for patients with more than one health
condition by providing education on how to manage comorbid conditions.
Keywords
Diabetes, asthma, online bulletin board, projective exercise, multimorbidity
Received 1 February 2019; accepted 30 July 2019
3
Kantar LLC, San Francisco, CA, USA
1
University of Utah College of Nursing, Salt Lake City, Corresponding author:
UT, USA Michelle L Litchman, University of Utah College of
2
University of Utah College of Pharmacy, 30 S 2000 E, Salt Nursing, 10 S 2000 E, Salt Lake City, UT 84112, USA.
Lake City, UT, USA Email: michelle.litchman@nurs.utah.edu
2 Chronic Illness 0(0)
To elicit patients’ emotional response to OBBs are a useful platform that allows
managing these conditions, we used projec- moderators to probe in-depth individual
tive exercises in an online focus group set- respondents’ health experiences and to
ting. Projective techniques have a history of convey the aggregate responses to all
use in mental health research and have been respondents for group discussion to solicit
more recently used in market research and wide variation in opinions over an extended
to describe patient experiences with chronic period.18 OBBs have also been used as a
conditions.14–16 In recent applications, platform for peer-to-peer support patient
projective exercises facilitate an inhibited care settings.19 Given the ability of OBBs
discussion, which may generate more com- to elicit information and the narrow study
plete responses than through direct aim, recruitment efforts targeted 20 partic-
questioning.17 ipants per arm to ensure saturation.20
Methods Measures
This qualitative study was conducted in Each OBB was moderated by a researcher
2016 by a contract market-research compa- team who led respondents through two pro-
ny using an online bulletin board (OBB) jective exercises to facilitate discussions
with investigator oversight for sampling about managing asthma or asthmaþdiabe-
and data collection. The study protocol tes. Projective exercises, whose responses
and consent forms were reviewed by the are categorized as association, completion,
University of Utah Institutional Review construction, expressive and choice order-
Board and considered exempt based on ing, are used in qualitative research to
applicable guidelines involving the ethical elicit participants’ deeper, more visceral
treatment of human subjects. The market- and often unconscious beliefs, attitudes
and motivations.16 This technique has
research organization recruited patients,
been used in patients with chronic health
hosted and moderated the OBB discussions
conditions including idiopathic lung dis-
with investigator oversight.
ease, cystic fibrosis, and diabetes15,21 and
as well as other public health issues.22
Sample and setting In the first projective exercise, respond-
Adults (>18 years old) were recruited by the ents were asked to describe their asthma or
contract market-research company using asthma þ diabetes as an animal and explain
these criteria: (1) diagnosed with either why they choose that animal. Respondents
asthma or both asthma and type 2 diabetes with asthma þ diabetes were asked to
(asthma þ diabetes) and (2) had filled at choose two animals, one for asthma and
least one prescription for an asthma and/ one for diabetes. When making their selec-
or diabetes medication by a community tion, respondents were asked to consider
pharmacy within the past year. Eligible how the animal behaves, its personality
adults were screened before inclusion to and how it makes them feel.
obtain a geographically diverse sample In the second projective exercise,
with mixed gender, age, race, ethnicity, respondents were asked to select an abstract
employment status, annual household image (Figure 1) that best illustrated their
income and type of asthma and/or diabetes experience living with and managing
medication. Respondents were allocated to asthma or asthma þ diabetes and why they
one of two mutually exclusive OBBs: chose that image. In each projective exer-
asthma only and asthma þ diabetes. cise, the moderator probed respondents to
4 Chronic Illness 0(0)
elicit the emotional impact of their condi- Transcripts of each projective exercise
tion (e.g. can you tell me more about why were read and coded separately by two
you chose that image?). independent researchers to avoid bias due
to an individual researchers subjectivity.
Data collection Using matrices categorized by health condi-
tion(s), animal projective-exercise data were
Data were collected through OBB inter-
categorized by animal type and/or rationale
views following a semi-structured discus-
for animal selection; and abstract image
sion guide programmed for online textual
projective-exercise data were categorized
administration. Respondents engaged in
by image selection and rationale for image
OBB discussions for approximately
selection and the number of participants
2 hours spread over the course of a day, as
choosing each image. Saturation was
convenient. They could log on to answer
reached25 and through a group interpretive
initial questions posted to the board and
process, overarching themes about respon-
respond to moderator follow-up questions.
dent experiences living with asthma and
Each board ran from 4 a.m. to 3 a.m. EST
asthma þ diabetes were identified.26
the following day (1 am to 12 am PST) to
allow for maximum participation across
time zones and employment considerations. Results
Respondents received an honorarium for
Of 41 respondents, 24 participated in the
their participation.
asthma only OBB. Of these, 22 completed
the discussion on the day of the research.
Data analysis Another 23 respondents took part in the
OBB transcripts were analyzed using prin- asthma þ diabetes discussion, of which 19
ciples of qualitative description.23,24 completed the OBB discussion on the day
Litchman et al. 5
Animal
Theme examples Asthma quotes Diabetes quotes
Animals that are Snake Asthma would be a bear. Diabetes is a piranha fish that
sneaky or Tiger Generally, it hibernates but eats you little pieces at a time.
unpredictable Lion during certain times of the Diabetes is a rat that can repro-
Bear year can be ferocious.If my duce at an enormous rate, full
Cheetah asthma were an animal it of ugly poison that is hard to
Goat would be a cheetah because get rid of. A vicious unforgiv-
Rabbit asthma attacks happen sud- ing disease. More like a silent
Mouse denly and need to be acted killer. You don’t realize just
Chameleon upon fast. Also, cheetahs can’t how bad it was kicking your
Cat be tamed and neither can my ass until it’s too late.
Piranha asthma.Cats are gentle, playful It doesn’t bother me, [gorillas
Sloth and tame at times, but also are] laid back and peaceful, but
Gorilla wild and uncontrollable as when it flares up it has an
Wolf well. It makes me feel that explosive side for a few sec-
Whale having Asthma can be unpre- onds and then it is calm again.
dictable and predictable at [Lions] can be mild mannered
times, because you don’t but raging when out of control
know when an attack will can devour everything in sight.
start, and at the same time [It] can affect all areas
you can also mange living with of health.
asthma by controlling how
much you do to prepare for an
attack and take the necessary
steps to prevent a
major attack.
Animals that are Snake “Even if I’m not having an attack N/A
heavy, constrict- Fish out of it still feels like it has a grip on
ing and slow water me. Especially if I attempt to
Octopus do anything too physical it
Fire breathing reminds me that it is ready to
dragon squeeze the life out of me.”
Panting dog
Elephant
Bear
Sloth
Animals that Dogs Cats’ can be intimidating at first My diabetes is a very large dog. If
are trainable Cats but them [sic] once you get to you train it well and are disci-
Elephants know them you know how to plined, it’s controllable. If you
handle them correctly. This is don’t, you’re in trouble.
the way I felt at first, I was Elephant. . .because they are
intimidated. But once I figured large and heavy and that is
out my triggers and how to how I feel about having diabe-
manage them, it was a whole tes. . .like something is weigh-
lot easier. ing on me all the time.
(continued)
Litchman et al. 7
Table 2. Continued
Animal
Theme examples Asthma quotes Diabetes quotes
Image B (n ¼ 7 for the asthma-only group) tunnel. The tunnel sometimes had a light
or Image F (n ¼ 12 for asthma-only group) at the end. For example, one respondent
(Table 3). said, “As long as a I take care of myself,
Image B was described in three ways: things will be ok and I can keep on moving
tunnel with light at the end, long and chal- forward.” In other instances, the tunnel was
lenging hallway, and narrowing airway. For referred to as a long and challenging hall-
nine respondents, the image represented a way with a heavy burden. The image was
8 Chronic Illness 0(0)
Asthmaþdiabetes N¼19
A 0 1 3
Swollen airway; trying, but not able to Spiral out of control or a whirlwind
catch a breath
B 7 5 6
þ Tunnel with a light at the end þ Tunnel with a light at the end
A long, challenging hallway with heavy burden. A long journey or road ahead, or a
Narrowing airway þ A steady path long hallway
C 0 1 2
þ Straight and narrow path to treating asthma.
D 0 1 0
þ/– The straight lines of the star represent
good days of living with asthma; points on
the lines represent when asthma had been
triggered and required multiple treatments.
E 0 1 1
White area represents the lack of air; the þ Stability, stable and currently
small purple circle represents the small comfortable with their condition
amount of air getting into their
lungs during an asthma attack
F 12 10 4
A long and winding, never ending road, and an Twists and turns that come with
uphill battle having diabetes
Never knowing what is going to be around An uphill battle requiring focus
the turns and attention
The ups and downs of living with asthma
G 1 0 0
Hills and valleys, always having to climb a hill in
order to breathe better
H 0 0 3
þ Positive – jump for joy, for having
“diabetes under control”
þ Sunshine, things would be okay
a
Two are missing image selections for asthma-only group.
also described as a narrowing airway. Two the ups and downs of living with asthma;
respondents described the airway as “trying Respondents reported that sometimes they
to take a breath out of a tiny straw” or would be fine, and other times they would
“claustrophobia and panic that I feel experience a trigger that would lead to an
when I can’t breathe.” To one respondent, asthma exacerbation. Triggers included
the image indicated asthma was on a mold, pollen, perfume, and animals. The
“steady path”. winding road was also described as an
Image F was described in two ways: a “uphill battle” or “never knowing what is
long, winding, and never ending road; and going to be around the turns.” For one
Litchman et al. 9
manner than that of respondents with of patient care,28,29 and can help providers
asthma only. Diabetes was similarly associ- acknowledge and address patient concerns,
ated with unpredictability and disease help establish appropriate expectations
burden in the projective animal exercise. about treatment and outcomes, and ideally
However, these respondents also projected help patients develop healthy coping skills.30
their diabetes as silent and sneaky as well as Further, the Institute of Medicine (IOM)
slowly taking over their health, consistent cautioned against treating conditions sepa-
with the progression of type 2 diabetes.1 rately in Crossing the Quality Chasm: A
These respondents offered a greater diversi- New Health System for the 21st Century.31
ty of responses to the projective image exer- Rather, the report suggested that day-to-day
cise for diabetes, which is perhaps related to problem-solving skills overall may be more
varying treatment options or time since important than disease-specific education.
their diabetes diagnosis. Like the Such skills may help patients overcome
projective-image responses for asthma, self-care challenges such as medication use,
those elicited for diabetes included a long adherence to diet and exercise recommenda-
tunnel or winding road with twists and tions, and effective communication with
turns, but diabetes was also sometimes pro- their health-care provider, as well as in man-
jected to be “out of control” or a whirlwind aging emotions.31
impacting all aspects of life. On the other Knowledge of patients’ emotional
hand, more positive responses were elicited response to asthma and diabetes could be
for diabetes than for asthma, indicating incorporated into patient care and allow
positive feelings about managing diabetes providers to tailor conversations and mes-
well and the ability to live with diabetes. sages that reflect patient hopes, expecta-
Overall, however, these finding are aligned tions, and concerns.32,33 For instance,
with a study by Slightam et al.,27 which knowing that a patient is optimistic about
found that in patients with multiple comor- diabetes but frustrated with the unpredict-
bid conditions, diabetes and lung condi- ability of asthma control help providers and
tions were among the most bothersome. patients understand that optimism about
When asked about co-managing these diabetes may facilitate medication compli-
diseases, asthmaþdiabetes respondents ance, while frustration and fear of asthma
noted the physical and emotional demands, attacks may cause the same patient to avoid
challenges and frustrations of simulta- exercise. This turn could lead to discussion
neously managing these conditions. that taps into patient optimism (e.g. the
Despite more optimistic responses overall positive effects of exercise on diabetes and
for diabetes versus asthma, when asked asthma) and coping skills (e.g. avoiding
about their future experiences, asthmaþdia- asthma triggers and use of a rescue inhaler
betes respondents were less optimistic with during exercise). This approach is poised to
diabetes than with their asthma. These create patient–provider relationships that
themes may reflect concerns and stress facilitate patient engagement and participa-
tion in treatment decisions.
over day-to-day asthma control versus the
However, in busy practice settings, pro-
long-term implications of suboptimal dia-
viders may find it challenging to engage
betes control.
patients at this level to identify and address
the emotional aspects of living with and
Clinical implications self-managing chronic diseases. Projective
Understanding patient’s emotional response exercises may help balance time and
to chronic conditions is an important aspect resource constraints with the value of
12 Chronic Illness 0(0)
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