You are on page 1of 10

European Oncology Nursing Society (2004) 8, 306–314

www.elsevier.com/locate/ejon

The professional role of breast cancer nurses


in multi-disciplinary breast cancer care teams
Z. Amira,*, J. Scullyb, C. Borrillb

a
Macmillan Practice Development Unit, School of Nursing, Midwifery and Health Visiting, University of
Manchester, Gateway House, Piccadilly South, Manchester M60 7LP, UK
b
Work and Organisational Psychology, Aston Business School, Aston University, Birmingham B4 7ET, UK

Summary Since the 1970s breast cancer services have witnessed considerable
KEYWORDS
changes in the management of patients. One significant change was the introduction
Breast cancer care
of specialist core personnel, including the breast care nurse (BCN). The role of the
nurse; Nursing practice;
BCN has been gaining credence rapidly in the British NHS and this service is
Multi-disciplinary team perhaps the paradigm of care for other services.
working; With the lack of specific evidence of the role of specialist nurses in the breast care
Patients advocate; team, the current study aims to explore this area by in-depth interviews with core
Nurses’ role in the team team members, and observations of 16 multi-disciplinary teams in England.
The study explores the following themes: Nurses’ unique informal management
leadership role in ensuring the co-ordination, communication and planning of the
team work; nurses’ innovatory role in making the bureaucracy respond to patients
and their relatives needs; nurses supportive role in the provision of expert advice
and guidance to other members of the team; nurses confidence and humour in
well- performing teams; and the limitations of the professional role of the breast
cancer nurse.
This study indicates that there is evidence that the BCN is practicing at an
advanced level of practice. However, there is a severe lack of evidence-based
description of that advanced practice. Cancer nurses including the BCNs should
develop and participate in programmes of research in line with cancer legislation
in order to build an evidence base that ultimately supports their unique role.
& 2004 Elsevier Ltd. All rights reserved.

Zusammenfassung Seit den Siebziger Jahren hat sich eine bemerkenswerte


Wandlung der Behandlung von Patienten im Rahmen der Brustkrebsversorgung
vollzogen. Eine wesentliche A. nderung war dabei die Ausbildung von
spezialisiertem
Kempersonal einschliehlich der Pflegekraft fu. r Brustkrebs (Breast Cancer
Nurse BCN). Die Rolle der BCN hat innerhalb des Britischen Gesundheitsdienstes
NHS rasch an Glaubwu. rdigkeit gewonnen, sodass diese besondere
Versorgungsleistung wohl zum Paradebeispiel fu. r Krankenversorgung an sich
geworden ist.
Angesichts des Mangels an spezifischen Nachweisen fu. r das Berufsbild
der speziellen Pflegekraft fu. r Brustkrebs im Rahmen eines Versorgungsteams zielt
diese Untersuchung darauf ab, dem mit Tiefeninterviews mit Angeho. rigen des
Kernperso- nals und Beobachtungen von 16 multidisziplina. ren Teams in England
abzuhelfen.
Die Studie befasst sich mit den folgenden Themen aus dem Arbeitsbereich der
BCN: mit ihrer einzigartigen informellen Fu. hrungsrolle im Management zur
Sicherung von Planung, Koordination und Kommunikation im Team; mit ihrer
innovativen Rolle bezu. glich der Reaktionen der Verwaltung auf Belange von
Patientinnen und deren

*Corresponding author. Tel.: þ 44-161-237-2159; fax: þ 44-161-237-2172.


E-mail address: ziv.amir@man.ac.uk (Z. Amir).
1462-3889/$ - see front matter & 2004 Elsevier Ltd. All rights reserved.
doi:10.1016/j.ejon.2003.12.011
The professional role of breast cancer 3

Angeho. rigen; mit ihrer hilfreichen Unterstu. tzung der anderen Teammitglieder
durch Anleitung und sachkundigen Rat; mit ihrem Selbstvertrauen und ihrer
emotionalen Stimmungslage in einem guten Team; und schliehlich mit den
Einschra. nkungen und Grenzen ihrer beruflichen Rolle.
Die Untersuchung la. sst Hinweise erkennen, dass die BCN ihre Ta. tigkeit auf
einem gehobenen Niveau an Berufserfahrung ausu. bt. Allerdings mangelt es
an einer abgesicherten Beschreibung dafu. r. Pflegekra. fte fu. r Krebserkrankte
einschliehlich der BCN sollten sich in U. bereinstimmung mit der Gesetzgebung zu
dieser Krankheit
weiterbilden und an Forschungsprogrammen teilnehmen, damit eine beweiskra. ftige
wissenschaftliche Grundlage geschaffen und so letztlich ihre einzigartige Rolle im
Gesundheitswesen gefo. rdert wird.
& 2004 Elsevier Ltd. All rights reserved.

Introduction personnel, including the clinical nurse specialist


(Poole, 1996). The first BCNs were recruited in
Since the 1970s breast cancer services have the mid-1970s. One aspect of their role was to
witnessed considerable changes in the manage- provide psychosocial support to patients. The role
ment of patients. There has been an increased of the BCN has been gaining credence rapidly in
awareness of the problems that patients with the the British NHS and this service is perhaps the
disease face and, in some instances, what might paradigm of care for other services.
be done to help. The typical service for Additional recommendations have also been
symptomatic breast patients prior to the 1970s made by the recent publication of the Nurses
was provided by general surgeons, usually within Contribution to Cancer Care (DoH, 2001b) and the
general surgical outpatient clinics. The last three NHS Cancer Plan (DoH, 2000) supporting the need
decades wit- nessed multidisciplinary involvement for an increase in the number of cancer and
in the diag- nosis and management of breast palliative care clinical nurses.
cancer. Professional groups such as the British The BCN’s work has been evaluated in various
Breast Group and British Association of Surgical settings and findings have shown they have made
Oncology (BASO, 1995) positively advocated multi- a significant contribution to patients’ well-being
disciplinary teams (MDT) for breast cancer in the (Walby et al., 1994). It is well documented that
early 1990s. This model gained strong support in the specialist nurses with specialist training in
the Calman–Hine recommendations (DoH, 1995) counselling and communication are core members
and the implemen- tation circular that followed of the multidisciplinary team (MDT), and provide
it. Moreover, the NHS Executive cancer site- psychosocial support, education and information to
specific Guidance (Working Party of the British cancer patients, and this helps them to meet
Breast Group, 1995) made the membership, roles their health-care needs (Addington-Hall et al.,
and working arrangements of breast teams an 1992; McCorkle et al., 1989; Weintraub and
explicit part of national policy. Core team Hagopian, 1990; Ambler et al., 1999; Edmonds et
members of a breast cancer care team include al., 1999; Rustoen et al., 1998). Notably, the
health professionals who have a particular studies on BCNs have been written from a medical
expertise, as well as designated time, to manage perspective. In this sense they differ from the
breast cancer patients, and currently include multiple studies on the nursing profession which
designated breast surgeons, breast care nurses have been written from a feminist perspective
(BCNs), pathologists, radiologists and oncologists. (Annandale, 2002). Whilst this paper
Teams function in designated cancer units char- acknowledges the limitations of the BCNs role in
acterising the evident shift towards breast cancer relation to the wider power dynamics of the
services that are predominantly characterised by: consultant/ nurse ‘gendered’ relationship, it
seeks to explain the multiple professional role of
*
individual specialisation in breast disease; the breast cancer care nurse within the MDT
*
multi-professional working based on multidisci- context.
plinary breast teams; and Despite the increase in the number of clinical
*
the increasing demarcation of breast services, nurse specialists, there is a paucity of research
with designated clinics and facilities. studies to demonstrate their effectiveness. With
the current emphasis on clinical and cost-effec-
Integral to the provision of a high-quality tiveness, there is an urgent need to evaluate the
service is the collaborative functioning of contribution of the clinical nurse specialist. This is
specialist core
3 Z. Amir et

particularly important as clinical nurse specialists In addition to interviews, observations were


are at the top end of the grading scale and are selected as another research method, to enable
viewed as costly. Thus there is an issue for those the researchers to observe the activity of the MDT
purchasing health care that they need to see the meeting, and to provide an insight into the
value of the contribution that the clinical nurse interactions between team members in their
specialist makes. work- ing context. The researchers who
This paper argues that in addition to BCN’s conducted the fieldwork were informed by an
contributing to patients’ well-being, they demon- understanding of research on sensitive topics
strate professional organisational and (Burgess, 1982; Lee, 1993) and aware of the
management work role competency, especially in biasing effect of their own, and their gatekeepers
building and maintaining a therapeutic team to characteristics on the find- ings (Dingwall, 1980).
provide opti- mum therapy (Fenton, 1985). Each team was visited by two researchers, allowing
Furthermore, the quantitative stage of this study them to verify findings from their field notes and
(Haward et al., 2003) established that team compare the observations they had made at the
composition, working methods and workload are end of each day. The researchers spent between 2
related to measures of effectiveness, including the and 3 days with all of the 16 breast cancer teams.
quality of clinical care. One significant finding is
the strong and positive association between the
proportion of breast cancer nurse in the team and
the overall measure of clinical performance. Selection of method: interviews
With the lack of specific evidence of the role of and observation
specialist nurses in the breast care team (Richard-
son, 2001), the qualitative phase of the study All of the core members from the 16 teams
aims to highlight their professional role through approached agreed to be interviewed, and all of
the findings of in-depth interviews and the team leaders went to considerable effort to
observations of 16 multi-disciplinary breast care assist in the arrangements to conduct the
teams in England. research. Interviews were mainly conducted in
the respon- dents’ offices, which were generally
small and crammed with files. On a number of
occasions interviews took place in rooms adjacent
Methodology to wards, where it was possible to hear radios and
the bustle of people passing in the corridors.
The qualitative phase of the national quantitative Face-to-face structured in-depth interviews were
study (Haward et al., 2003) explored team mem- conducted with all of the core team members
bers roles in the MDTs. Sixteen breast teams were individually. The time of the interviews ranged
then selected for in-depth work from a sample of between one and one and a half hours. In total 139
85 teams that had participated in the quantitative in-depth inter- views were conducted with: 24
stage of the research. For the qualitative stage BCNs, 25 consultant surgeons, 14 consultant
the eight teams with the highest scores on team oncologists (clinical and medical), 20 consultant
working and effectiveness, and the eight teams radiologists, 20 patholo- gists, six other nurses,
with the lowest scores on these dimensions from and 30 other professionals who contributed to the
the quantitative study, were selected. The ratio- work of the breast care team (database manager,
nale was to explore in depth which factors led to administrators, clerical staff, other doctors).
effective team work and which factors mitigated A structured interview schedule, developed by
against effective team work. To avoid bias in the Hackman (1980) was used to assess the extent to
qualitative stage of the research the field research- which the organisational context was supporting
ers were not told which of the 16 teams were the the MDT working in breast care, and the impact of
high performing teams and which were the lower this on team working and the delivery of patient
performing teams. In preparation for the qualita- care. More specifically the aim was to gather
tive phase a pilot study was conducted on one information on factors which promote team work-
breast care team, which assisted in an advisory ing, factors which detract from, or make team
capacity. The three visits at this breast care team working difficult, and to explore precisely how
familiarised the field researchers, who did not effective team working contributes to providing
have a medical background, with the area of quality patient care. Team processes were
study, enabling the researchers to test the ques- probed, which included clarity of objectives,
tionnaire on core team members and observe a MDT participation, task orientation, support for
meeting. innovation, reflexivity,
The professional role of breast cancer 3

communication, decision-making, formal and in- regular occurrence. Overall the efficiency of MDT
formal leadership and organisational support. In- breast cancer meetings depended upon the extent
terviewees were asked to describe occasions of organisational support that was available to each
when each of these factors were identified as team. We observed how this factor impacted upon
important to team effectiveness, or had the workload of the breast cancer care nurse, and
hampered team effectiveness. In addition, the later in the process of analysis, were able to
researchers probed key themes that merged during identify how poor organisational support was
the fieldwork visits, particularly during the particularly evident in the less well performing
informal meetings with team members. teams. We also observed how the deficits in the
organisational context were patched up by the
range of the tasks that the breast cancer nurse
undertook.
The research setting A number of the surgeons invited the
researchers to observe their clinics. Similar to the
The researchers observed all of the 16 MDT weekly MDT meeting the researchers witnessed the speed
meetings, which lasted between 1 and 2 h, and in a at which the teams worked, and were told how
number of cases were invited to observe the teams were managing eight times the number of
clinics. The field work spanned more than 45 patients they were seeing 10 years ago. For one
days, and the researchers were aware of their team this had meant an increase from 200 new
own sharp learning curve in relation to the patients in 1992 to 1700 in 1999, with no extra
community they were studying during that period, resources, as well as the obligations to respond to
and how that might influence their findings. Both the waiting times for urgent referrals to be seen
researchers noted separately that gaining rapport within a 2-week maximum waiting time.
with each team seemingly became somewhat The researchers were also invited to meet the
easier as the study progressed, and recognised team members in less formal settings, an aspect
how their con- fidence could potentially bias the of the fieldwork which allowed the researchers a
data collection. In this sense the study did not fit greater insight into the team dynamics and the
easily into the ethnographical terms of ‘short’ or organisational setting (Strauss et al., 1985). In-
‘long’ fieldwork (Gurney, 1991) work because the formal discussion was generally located around
landscape chan- ged considerably in every team food and ranged from canteen breaks to being
meeting, although the accounts of the different invited to dinner. Much of the discussion in these
team members shared more in common than not. informal meetings focussed on the extra pressures
The venue and time allocated for each MDT on the service without the adequate resources
meeting varied considerably. At worst, teams provided by government and the trust, and the
were meeting at an inconvenient time in a room concern that the 2-week wait served to inflame
too small for the number of attendees, which the possibility of a less adequate service for
subse- quently restricted observation of the patients who were not seen as high risk. However,
clinical presentations. In one meeting the room the setting also allowed the researchers to observe
was so small professionals climbed over chairs and how informal networks are a characteristic of
their colleagues to view the clinical findings. breast cancer care teams. The researchers own
Meetings were observed that had been convened by feelings of exhaustion after each of the field visits
the Trust at a time that did not suit some of the served to heighten their own awareness, and that
core team members. Two started at 7.30 a.m. they were engrossed in a form of research method
and another at 6 p.m. which meant attendance that is the most personally demanding and
was patchy, and not all of the team was involved analytically com- plex.
in patient care. In contrast others had lecture
style theatre facilities that enabled good viewing,
and ample space for other team members to
participate and view the clinical findings. Most of Data analysis
the timings allocated for the MDT’s required the
core members to partici- pate in a working lunch. Field work observations rendered a ‘rich’ but
In one team the BCN’s organised the MDT meeting unsystematic file of data. This problematic, which
as a working breakfast. On another occasion the is common to qualitative studies, has been mini-
room had an overlap booking and another team mised by rigour in the analytical stages of the
consistently banged on the door to try and hurry research process (Bradburn, 1983) and we
the breast cancer team out. The researchers selected grounded theory as the way forward
were told that this was a with our key
3 Z. Amir et

concepts (Glaser and Strauss, 1967). With the worked with the team. In particular BCNs are
exception of one respondent, who declined to be allowed to wear their own clothes and not the
taped all of the interviews were taped, standard nurse uniform of the particular trust. All
transcribed and entered into Atlas, a qualitative were extremely smartly dressed, and presented
analysis package. All of the respondents were an image of authority that was akin to the
offered their tape and tape transcription. One manage- ment and higher medical structure.
respondent accepted this offer, and the tape and However, there was no evidence to show that their
transcript was duly sent. The researchers moved management role was valued by the hierarchy of
from the systematic selection of concepts and the trust that they worked for. Rather, the
problems drawn from observations of team themes identified below relate to their role
settings and the respondents’ interviews into specifically within the team. The key findings of
themes that could be theorised into a model of the paper present three key themes that were
the organisation (Becker and Geer, 1982). common to all of the teams, and one key theme
The data were coded and emergent themes that was common to the well functioning teams.
drawn from the data in accordance with the broad
principles of grounded theory (Glaser and Strauss,
1967; Becker and Geer, 1982). To maximise Informal leadership role: nurses’ role
internal validity (Bradburn, 1983), confidential in ensuring the co-ordination,
summary reports were sent to each of the 16
teams, whose members were invited to comment
communication and planning
upon them. The reports con- tained themes from
The breast cancer care nurses were acknowledged
their teams’ findings, and presented anonymous
as the informal leaders of the team. Quality
recommendations that respon- dents had suggested
health care requires co-ordination,
would improve team effective- ness. Three teams
communication and planning, which can all be
replied; one team leader thanked for the report,
enhanced by team working. Analysis of data from
another asked for more feedback on leadership
the interviews indicates that BCNs have a very
and a third explained that subsequent changes
significant role in the above three components of
had been made in the team structure.
quality health care. Above all, they are perceived
The field researchers learned first hand how
as the informal leaders of the teams:
collaborative team research places extra strains
on ethical issues (Goffman, 1961). The ‘‘I don’t have a lot of problems as the team leader. I
researchers were aware they would have not don’t find it takes up a lot of my time. I get a lot of
easily gained access to this setting without the help from the breast care nurse, and in a way she is
project board being comprised of influential seen as the official team leader’’ (surgeon).
members of the medical community. As such, their A theme common to all of the teams was the
status within the breast cancer community BCNs role in co-ordinating other core members of
facilitated in Dingwall’s (1980) terms ‘a hierarchy the team:
of consent’ that enabled the ‘gatekeeping’ access
into the clinical commu- nity that was studied. ‘‘I think that breast care nurses tread out of role in co-
ordinating and liaising, but I think without, and this
This ease of access was mitigated by an added
isn’t blowing our trumpet, I think without we wouldn’t
ethical awareness of how the community that was
be as tight knit and as good at what we do as we
being studied was studying the researchers. At the are’’ (BCN).
time of this study it was not compulsory with the
new research governance guidelines to obtain ‘‘We are a team after all, so very much my role and
ethical approval to interview health-care indeed yI am right at the hub, because I am main
professionals; however, the ethical issues of liaison with everybody else including the patient’’
(BCN).
confidentiality and anonymity permeated the
research process from its inception to the In general, they took responsibility to make
decision on data storage. During the fieldwork sure that internal communication within the team
participants were promised that their identity is efficient:
would be kept confidential, a promise that has
‘‘Lately there was an incident where communication
been maintained. was really very poor on an issue y. It became quite
apparent to me that we were about to embark on a
slippery slope. So, as a result of that I got a meeting
Results convened to make sure that all the team were
together in the same room, an agenda was written
The researchers observed the distinct presence of
the BCNs in relation to the clinical staff nurses
that
The professional role of breast cancer 3

up y.. as a result of that we now run the team


that quality health care could be achieved. As the
meetings monthly’’ (BCN).
patients’ advocate, they considered implementing
This included planning and documenting the innovative changes as integral part of their role:
team meetings:
‘‘As I said, breast care nurse brings things and we
‘‘I have to say that. She is responsible for all the design formsFI’ve designed GP referral forms. I think
documentationFI write some of the clinical evolution isn’t it? We started really doing the FNAs
docu- mentation but she is responsible for a lot of in one day and bringing the X-ray department to the
the preparation and presentation of all the same floor. This was also progression y’’
documents’’ (surgeon). (Oncologist).

‘‘I am the one that tried to co-ordinate the bits that Their role involves developing and using a
we need to put through, organise the joint audit network of contacts in different departments
meeting, etc., that we have with MrFas the lead throughout the system that can assist them in
clinician, on the accreditation process’’ (BCN). getting things done efficiently:
In some teams nurses build up contacts with ‘‘As a nurse I can implement a lot of things within
relevant agencies outside the team itself: my domain to make it work, such as bringing the
outpatients staff in, bringing the ward staff in and
‘‘There is a good relationship with the Directorate and making them part of the team’’ (BCN).
the managers. Obviously, It’s down to myself and them
liaising together’’ (BCN). In their co-ordinating role, BCNs managed to
speed-up processes, which are resulted in better
‘‘I have found I have built up relationships and
outcomes for patients:
networks with people at the regional cancer project
team and you can solve problems easier’’ (BCN). ‘‘Yes. And I have to say I don’t know if it is the role
of the breast care nurse but we do a fair amount of
However, despite the recognition within the not letting things go unless they’re addressed, and
teams of the breast cancer care nurse as informal round- ing people up’’ (BCN).
leader and key co-ordinator there was no
evidence to show that they had been promoted in ‘‘We have changed practice, either I take the form
any of the teams as the official leader. down personally and then the lady’s is given her
date or there is a phone call made from clinic to
Furthermore, when discussions with the trusts
check that they can do it’’ (BCN).
management were high on the agenda, or
external meetings were held where important ‘‘y. therefore, I was able to take the X-ray forms to
decisions were made it was the designated the X-ray department and talk to the consultant
leader, normally the surgeon, who attended, and radiologist, and explain the situation, and we were
made the decisions. actually able to schedule the scans, yy, so we will
have the results by the time, well, before the time she
(the patient) would come in for surgery’’ (BCN).

The innovatory role: nurses’ role in


making the bureaucracy respond to The professional counsellor support role:
patients and family the provision of expert advice
A key role that was identified in this study was The BCNs were observed providing expert advice
that of innovation, and managing the bureaucracy and guidance, both formally and informally, to
to respond to patients and family immediate other members of the team in the MDT meetings.
needs. BCNs are constantly faced with the fact The ability to assess patients’ concerns that are not
that patients’ needs are often not met because of always as apparent to the other members of the
the way the bureaucracy functions. The findings team, was a commonality to all of the MDT
showed evidence of innovations that had been meetings. This key finding was supported by the
introduced by the breast cancer nurses despite evidence from the one to one interviews which
the difficulty of trusts’ organisational showed how they formulate plans to deal with
bureaucracy. Since policy changes often cannot these concerns, which reduce the anxiety of both
be initiated in time to meet patients’ immediate the patients and the other members of staff and
needs, the BCN identified ways to work around a increases the staff’s confidence in working with the
bureaucratic system. patient. In short they applied a knowledge that
BCNs reported undertaking deconstruction and spans the patient care journey, as well as managing
reconstruction of the environment/system of care the dynamics of the team meetings. In the MDT
to make radical changes to the nature of caring, meetings they were called upon to provide a profile
so
3 Z. Amir et

of the patient’s personal needs, and they spoke of for by the BCN’s. Also a considerable effort had
this aspect in their interviews: been made by the BCN’s to make sure that their
‘breaking bad news’ room was the most appro-
‘‘I can think of a specific young patient who had breast priate and softly furnished environment.
cancer, who was very frightened about her breast
The combination of the dual role as both
problem and I think the team worked very well
there, giving her the psychological support that she
patient advocate and management served to add
needed and we were able to make the diagnosis very value on patient care.
quickly for her and give her all the treatment
options, we were able to give her time to discuss it
with more than one person’’ (BCN). Confidence and humour in the
Notably, their role supports other core team MDT meeting
members who spoke of the burden of maintaining
the intensity of treatment, which would be intol- The researchers found no sharp distinction between
erable without the softer more emotion-focused the accounts of the BCN’s in the most- and less-
approach of their nursing colleagues. In effective performing teams. However, the re-
particular, oncologists and surgeons recognised searchers noted from their observations of the
the impor- tance of this form of support: MDTs that in some meetings the BCN’s had a greater
say than others, were confident to challenge the
‘‘This patient probably should be seen quicker than
ideas of other team members, and that frequently
say within three weeks’ because the history she’s
giving, it was completely different to what we read on
the debate was accompanied by humour. This was
the paperFthe referral letter. So, with their (BCNs) made apparent on one occasion when a surgeon
information we expedited the referral and saw them was challenged, and good heartedly accepted that
earlierFthere have been several cases like that not only daughters of patients should be seen at
where we have benefited from their (BCNs) skills’’ higher risk of breast cancer but also the families
(Oncologist). of sons. Although this combination of confidence
and humour was not the case in all of the high
‘‘I would not wish to do this sort of work without their performing teams it was not evident in any of the
(nurses) help really, because the patients will talk to
less well performing teams.
them about aspects of the disease, their lifesty-
leFwhich they (the patients) would not mention to
meFhow the disease and treatment affect their life,
their concerns about their domestic circumstances, The limitations of the professional role of
their relationships. Personal things that they wouldn’t the BCN
wish to discuss with me, and I’ve found that the
most helpful aspect of it’’ (Surgeon).
The authors noted at the start of this paper that the
‘‘That’s why we rely on nurses and as I said, they wider power dynamics of the consultant/nurse
are our right hand. We can’t function alone’’ ‘gendered’ relationship are discussed elsewhere
(Oncologist). (Annandale, 2002), but not, in relation to team
working. Yet, this study also acknowledges the
‘‘In actual fact, I (surgeon) think if you were to ask the
limitations of the BCNs role, which was pointed
patient who was the most important person, they
would say undoubtedly the breast care nurse’’. out on a number of occasions, particularly in
relation to BCNs having any power to make
In their interviews the BCN’s explained how decisions outside the team:
they recruit and train volunteers to work in the
clinics, a fact that was substantiated by informal ‘‘But when it comes to those sorts of political things
discussion with the volunteers, who were ex- I’ve no say really because I’m a nurse and not a
patients and provided support to new patients. doctor’’(BCN).
This form of support ranged from sitting with a
new patient and talking to them to walking them
from one depart- ment to another, and inviting Discussion
them to join support organisations.
In addition to the written information that the It is the contention of this paper that within the
BCN’s kept in their offices the researchers were breast cancer team, BCNs are located at the
also shown the range of attractive swimwear and juncture between the dominant influences of
fashionable scarf cool caps that patients were surgery, psychology, management, patients and
able to purchase at cost price. On two occasions oncology. They are poised between medical and
these garments had been identified in the USA
and sent
The professional role of breast cancer 3

scientific knowledge of the disease and the illness sionals have adequate information about patients
experience of their patients and have to mediate and breast cancer issues, and that women are
between medical practice and its distressing prepared for each treatment stage.
impact on their patients. In addition to their The data from this study indicate that there is
prescribed medical role in the breast care team evidence that the BCN is practicing at an
they are the conduits of medical management, as advanced level of practice. What is also clear is that
well as the representative patients advocate. In there is a severe lack of evidence based
short the deficits in the trusts organisational description of that advanced practice. Cancer
context was patched up by the range of the tasks nurses including the BCNs should develop and
that the breast cancer nurse undertook in the participate in programmes of research in line with
team context. cancer legislation in order to build an evidence
The results from the current study strongly base that ultimately supports their unique role in
suggested that BCNs had a positive impact on the cancer care provision.
quality of care. The role of the BCNs is best The discussion in this paper has focused pre-
understood within the context of the multidisci- dominantly upon the BCN professional role within
plinary team. While the role is distinct and the team, illuminating their multiple role and
unique, it entails considerable interaction and their ability to manage the collective throughput
some degree of overlap with the roles of other of the patient, as well as supporting their team
health profes- sionals involved in the care of collea- gues. However, the authors have also
women with breast cancer. A significant noted that tensions do arise when decisions are
component of the BCNs role involves coordination made outside of the team context, and when the
and liaison with other treat- ment team members. breast cancer nurses have not been privy to the
As was demonstrated very clearly, BCNs are highly macro level decision making process.
valued within the treat- ment teams, precisely Finally, BCN’s were repeatedly identified as
because of their ability to link between members central to the delivery of Breast Cancer services.
of the team, and between women (and their They are perceived by their colleagues as con-
families and friends) and the team. The main tributing to patient well –being and
emphasis in relation to core components of the demonstrating professional and management work
role was the BCN as a pivot lynchpin of the role compe- tency. Nevertheless, this study has
treatment team. This related to the perception of not addressed issues around the effectiveness of the
the BCN as a conduit of information from women BCN from the patients’ perspective. It was beyond
patients to treatment team members, and from the remit of the current study to assess whether
the treatment team to the women. These nurses the existence of the BCN makes any difference to
also function as a conduit of information between patients’ outcomes. The possible beneficial effect
members of the team, they provide members of on pa- tients’ outcomes warrants further
the team the information about what has investigation.
happened to patients within other areas of the
hospital and during other treatment modalities.
Thus, the BCN facilitates information sharing and
References
knowledge of each patient’s progress and needs
within the treatment team. This important aspect Addington-Hall, J.M., MacDonald, L.D., Anderson, H.R., 1992.
of their role occurs in many different modalities, Randomised controlled trial of effects of co-ordinating care
ranging from formal multidisciplinary team meet- for terminally ill cancer patients. British Medical Journal 305,
ings to less formal discussions with individual 1317–1322.
Ambler, N., Rumsey, N., Harcourt, D., Khan, F., Cawthorn, S.,
team members.
Barker, J., 1999. Specialist nurse counsellor interventions
The perception that as specialist nurses, BCNs at the time of diagnosis of breast cancer: comparing
gain access to different information from patients advocacy with a conventional approach. Journal of
is significant here. It is a commonly held perception Advanced Nursing 29 (2), 445–453.
that the BCN’s emphasis on support and holistic Annandale, E., 2002. Feminist Theory and the Sociology of
Health. Routledge, London and New York.
care of the individual woman means that she feels
Becker, H., Geer, J., 1982. Participant observation: the
comfortable in sharing feelings and information analysis of qualitative field data. In: Burgess, R.G. (Ed.),
with the nurse, which she may not bring up with Field Research: a Sourcebook and Field Manual. Routledge,
other treatment team members. London and New York, pp. 80–97.
Additionally, BCNs are viewed as a positive British Association of Surgical Oncology (BASO), 1995. Guidelines
for surgeons in the management of symptomatic breast
resource within the treatment team. They ensure
disease in the United Kigdom. European Journal of Surgical
that care flows smoothly: namely, that referrals Oncology 21 (Suppl. A), 1–13.
happen when needed, that other health profes- Burgess, R.G., 1982. Field Research: A Source Book and Field
Manual. Routledge, London, New York.
3 Z. Amir et

Bradburn, N.M., 1983. Response effects. In: Rossi, P., Wright, J., Haward, R., Amir, Z., Borrill, C., Dawson, J., Scully, J., West, M.,
Anderson, A. (Eds.), Handbook of Survey Research. Academic Sainsbury, R., 2003. Breast cancer teams: the impact of
Press, New York. constitution, new cancer workload, and methods of opera-
Department of Health, 1995. Policy framework for tion on their effectiveness. British Journal of Cancer 89,
commission- ing cancer services: A Report by the Expert 15–22.
Advisory Group on Cancer to the Chief Medical Officers of Lee, R.M., 1993. Doing Research in Sensitive Topics. Sage
England and Wales, London HM Stationary Office. Publications, London, Thousand Oak, New Delhi.
Department of Health, 2000. The NHS Cancer Plan. McCorkle, R., Benoliel, J.Q., Donaldson, G., et al., 1989. A
Department of Health, London. randomised controlled trial of home nursing care of lung
Department of Health, 2001b. The Nursing Contribution to cancer patients. Cancer 64, 1375–1382.
Cancer Care. Department of Health, London. Poole, K., 1996. The evolving role of the clinical nurse
Dingwall, R.G., 1980. Ethics and ethnography. Sociological specialist within the comprehensive breast cancer centre.
Review 28, 871–911. Journal of Clinical Nursing 5 (6), 341–349.
Edmonds, C.V., Lockwood, G.A., Cunnigham, A.J, 1999. Richardson, A., 2001. Developing, delivering and evaluating
Psycho- logical response to long-term group therapy: a cancer nursing services: building the evidence base.
randomised trial with metastatic breast cancer patients. Nursing Times Research 4, 726–735.
Psycho-Oncol- ogy 8, 74–91. Rustoen, T., Wiklund, I., Hanestad, B.R., Moum, T., 1998. Nursing
Fenton, M., 1985. Identifying competencies of clinical nurse intervention to increase hope and quality of life in newly
specialists. Journal of Nursing Administration 15 (12), 31–37. diagnosed cancer patients. Cancer Nursing 21, 235–245.
Glaser, B., Strauss, A., 1967. The Discovery of Grounded Strauss, A., Fagerhaugh, S., Suczeck, B., Weiner, B., 1985.
Theory. The Social Organisation of Medical Work. Chicago
Aldine, Chicago. University Press, Chicago.
Goffman, E., 1961. Asylums. Penguin, Harmondsworth. Walby, S., Greenwell, J., Mackay, L., Soothill, 1994. Medicine
Gurney, J., 1991. Female Researchers in Male Dominated and Nursing Professions in a Changing Health Service. Sage,
Settings: Implications for Short-term versus Long-term London.
Research in Experiencing Fieldwork an Inside View of Weintraub, F.N., Hagopian, G.A., 1990. The effect of nursing
Qualitative Research. Sage Publications, Newbury Park consultation on anxiety, side effects, and self-care of
London New Delhi. patients receiving radiation therapy. Oncology Nursing Forum
Hackman, R.J., 1980. Work Redesign. Addison-Wesley, 17 (Suppl. 3), 31–36.
Reading, MA.

You might also like