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ARTICLE IN PRESS

Relationships among Communication Self-Efficacy,


Communication Burden, and the Mental Health of the Families
of Persons with Aphasia

Hiroshi Tatsumi, PhD,* Shutaro Nakaaki, MD, PhD,† Masayuki Satoh, MD, PhD,‡
Masahiko Yamamoto, MD, PhD,* Naohito Chino, PhD,§ and
Kazuo Hadano, MD, PhD‖

Background: The purpose of this study was to elucidate the relationships among
communication self-efficacy (SE), communication burden, and the mental health
of the families of persons with aphasia using structural equation modeling (SEM).
Methods: This study examined 110 pairs of persons with aphasia receiving home
care and 1 family caregiver per person with aphasia. The survey items for this
study consisted of the Communication Self-efficacy Scale, the Communication Burden
Scale, the Geriatric Depression Scale—Short Form—Japanese, and the Health-
Related Quality of Life: SF-8 Health Survey. The relationships between the constructive
concept of “communication self-efficacy” and “communication burden,” and “mental-
health status” were analyzed using SEM. Results: The results of the SEM analysis
revealed that a high communication SE of the families was associated with low
burden of communication and good mental-health status. Conclusions:
Psychoeducational programs that address the communication SE of family care-
givers may have the potential to reduce the burden of communication and to improve
the mental health of caregivers. These programs could lead to an enhanced quality
of life for both persons with aphasia and their families. Key Words: Aphasia—family
caregiver—communication self-efficacy—communication burden—mental health.
© 2015 National Stroke Association. Published by Elsevier Inc. All rights reserved.

Introduction listening, reading, speaking, and writing. Furthermore,


sufficient time and much effort are needed to recover from
Aphasia is an acquired language impairment caused by
aphasia, and a complete recovery of language functions
organic brain damage. Persons with aphasia have impair-
is often not obtained. Therefore, aphasia leads to a marked
ments in all aspects of language modalities including
deterioration in the quality of life (QoL) of persons with
aphasia.1-4
From the *Department of Health Science, Aichi Gakuin University,
Given the above, a communication environment con-
Japan; †Department of Neuropsychiatry, Keio University School of ducive to coping with aphasia may be necessary to
Medicine, Japan; ‡Department of Neurology, Mie University School maximize communication skills and to improve the QoL
of Medicine, Japan; §Department of Psychology, Aichi Gakuin of persons with aphasia. Under these circumstances, family
University, Japan; and ‖Department of Social Welfare, Bukkyo
caregivers may struggle to provide a better communi-
University, Japan.
Address correspondence to Hiroshi Tatsumi, PhD, Department of
cation environment for persons with aphasia under their
Health Science, Aichi Gakuin University, 12 Araike, Iwasaki-cho, care. However, families often feel very embarrassed and
Nisshin City, Aichi 470-0195, Japan. E-mail: ta23164@gmail.com. may find it difficult to communicate with persons with
Received July 31, 2015; revision received September 7, 2015; accepted aphasia.5 The high stress and anxiety levels of family care-
September 19, 2015.
givers can negatively influence their care burden and
1052-3057/$ - see front matter
© 2015 National Stroke Association. Published by Elsevier Inc. All
mental health.6 In turn, the high care burden and poor
rights reserved. mental health of the family caregivers may further de-
http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2015.09.018 teriorate the communication environment surrounding

Journal of Stroke and Cerebrovascular Diseases, Vol. ■■, No. ■■ (■■), 2015: pp ■■–■■ 1
ARTICLE IN PRESS
2 H. TATSUMI ET AL.
persons with aphasia and disrupt the relationship Examination (BDAE) scale (a severity scale graded
between persons with aphasia and their families. This from 0 to 5). BDAE scores of 4 and 5 were defined as
situation suggests that in the treatment of aphasia, the mild aphasia, scores of 2 and 3 were defined as moder-
emphasis of not only functional training to improve ate aphasia, and scores of 0 and 1 were defined as severe
the language impairments in persons with aphasia but aphasia.11 For the questionnaire survey for the family care-
also systematic specialized interventions to resolve the givers, questionnaires were handed to the family caregivers.
psychosocial problems of family caregivers may be The completed questionnaires were then collected on the
important.7 day of request or within a few days.
To reduce the care burden and to maintain the good
mental-health status of family caregivers, it is crucial to
increase their stress tolerance during their communica- Procedures and Assessments
tion with persons with aphasia and to improve their The survey items consisted of the basic characteristics
communication skills. Self-efficacy (SE) is a psychologi- (age, gender, and years of education) of the persons with
cal factor that strongly affects the stress tolerance and aphasia and of the family caregivers, the family relation-
communication skills of family caregivers. Bandura8 pro- ship between the 2 individuals, and the period of care.
posed the concept of SE in his social learning theory. SE The CSES was used to assess the SE of communication,
represents a person’s anticipation of the possibility of re- the Communication Burden Scale (COM-B) was used to
alizing an action. This factor strongly enhances the assess the burden of communication,12 the Geriatric De-
motivation for action, improves the learning efficiency, pression Scale (GDS)-15 was used to assess depression,13
and reduces the levels of depression, anxiety, and sense and the 8-item Short-Form Health Survey (SF-8) was used
of disappointment in families.9 Therefore, SE is ex- to assess the health-related QoL.14
pected to have the potential to improve the care of persons The CSES is an SE scale consisting of 16 items related
with aphasia. Family caregivers with high SE may be better to communication with persons with aphasia. To measure
equipped to understand the linguistic impairments of in- the degree of certainty with which respondents believes
dividuals with aphasia fully and to acquire appropriate that they can execute particular communication actions,
communication skills, which are not necessarily easy for that is, a sense of “confidence of being able to realize,”
ordinary families. Communication SE is an indicator of they are required to rate each item using an 11-point scale,
the families’ expectations of “to what extent they can com- ranging from 0 to 10. A higher total score indicates a higher
municate patiently with persons with aphasia.” Tatsumi SE (minimum of 0 to a maximum of 160 points). The re-
et al10 created a scale to assess the communication SE (Com- liability and validity of this scale have been verified, and
munication Self-Efficacy Scale [CSES]) of family caregivers. a factor analysis has confirmed that the CSES can be cat-
The reliability and validity of CSES have been verified, egorized into 3 subscales: consideration of the speech
and its clinical utility has been confirmed. However, the environment, consideration of the confirmation of intent,
relationships among the CSES, the burden of communi- and consideration of the communication tool. This English
cation and mental health remain unclear in the family version of CSES is given in Appendix S1.
caregivers for persons with aphasia. The COM-B is a specialized family care burden scale
The purpose of this study was to verify the relation- for the communication disorders of persons with aphasia.
ships among communication SE, communication burden, It consists of a total of 30 items, and the respondent is
and the mental health of family caregivers using struc- required to rate each item using a 5-point scale (1-5 points).
tural equation modeling (SEM). A higher total score indicates a heavier care burden
(minimum of 0 to a maximum of 150 points). A factor
analysis has revealed that the COM-B can be classified
Materials and Methods into 4 subscales: caregivers’ activity restriction, lan-
guage impairment, cognitive and emotional impairment,
Participants
and responsibility for household management.
This study was conducted in 110 pairs of persons with The GDS-15 is a scale for assessing depression (minimum
aphasia receiving home care and 1 caregiver per person of 0 to a maximum of 15 points). Persons with a score
with aphasia. The inclusion criteria for persons with aphasia of 11 or higher are assessed as being in a very de-
in this study were as follows: (1) age of 30 years or older, pressed state, those with a score of 10-6 as having a
(2) aphasia caused by a language-dominant-hemisphere tendency toward depression, and those with a score of
stroke, (3) cohabitation with 1 or more family members 5 or less as having no tendency toward depression.
at home, (4) attendance at an outpatient clinic, and (5) The SF-8 is an abridged version of the SF-36, which
no history of mental illness. Medical information about is a health-related QoL scale. Its reliability and validity
the person with aphasia was obtained from the pe- have been demonstrated. The assessment is based on
rson’s speech language pathologist. The severity of aphasia mental and physical summary scores that are deter-
was assessed using the Boston Diagnostic Aphasia mined using special scoring software for SF-8.
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COMMUNICATION SELF-EFFICACY AND BURDEN 3

Statistical Analysis Ethical Considerations


This study was conducted as a cross-sectional study. The study protocol conformed to the ethical guidelines
of the 1975 Declaration of Helsinki and was conducted with
the approval of the Ethics Committee of the Faculty of Psy-
General Characteristics of CSES chological and Physical Science, Aichi Gakuin University.
The basic characteristics of the subjects, including the
primary disease, the severity and type of aphasia in the Results
persons with aphasia, and the period of care by the family
Basic Characteristics of the Subjects with Aphasia and
caregivers, were investigated, in addition to the age, gender,
Their Families
years of education of both the persons with aphasia and
the family caregiver, and the family relationship between The mean age of the persons with aphasia was 65.7 years
the 2 individuals. Differences in the results of the as- (standard deviation [SD]: 10.6 years; range, 31-87 years),
sessment scores for the CSES, COM-B, GDS-15, and SF-8 as shown in Table 1. Of the total, 71 were male and 39
between male and female family caregivers were com- were female. The primary brain diseases were cerebral in-
pared using Student’s t-test. The results of assessment farction in 53 patients and cerebral hemorrhage in 39 patients.
scores for the CSES were compared using one-way anal- Regarding the severity of aphasia, 53 persons with aphasia
ysis of variance according to the family relationships and had mild aphasia, 38 had moderate aphasia, and 19 had
the severity and type of aphasia. Tukey’s test was used severe aphasia. Regarding the types of aphasia, almost half
for multiple comparisons. Furthermore, Pearson’s corre- (58) of the persons with aphasia enrolled in this study had
lation coefficients (r) and P values were calculated for Broca’s aphasia, 19 had Wernicke’s aphasia, and 33 had other
comparisons of the age and the severity of aphasia of types of aphasia (conduction aphasia, amnesic aphasia, etc.).
the persons with aphasia with the age, years of educa- The mean age of the family caregivers was 61.2 years
tion, period of care, and the COM-B, GDS-15, and SF-8 (SD: 13.2 years; range, 27-84 years), as shown in Table 1.
scores of the caregivers. Of the total, 82 were female and 28 were male. The mean
years of education were 13.1 years (SD: 2.4 years). The mean
period of care was 88.7 months (SD: 57.8 months). Overall,
SEM 77% of the family caregivers were the spouses of the patients.
SEM is a statistical method used to examine the rela-
tionships among multiple constructs. We conducted a SEM Results of the Questionnaire Surveys and Gender
analysis using a model that assumed that communica- Differences among the Family Caregivers
tion SE affects the communication burden and mental Table 2 shows the results of the CSES, COM-B, GDS-
health of family caregivers. 15, and SF-8 assessments. The mean total CSES score was
Three latent variables, “communication self-efficacy,” 105.5 (SD: 27.5). The mean scores for the consideration of
“communication burden,” and “mental-health status,” the speech environment, the consideration of the confir-
were established as constructs. “Communication self- mation of intent, and the consideration of the communication
efficacy” was used as the independent variable, and tool subscales were 50.3 (SD: 14.5), 42.5 (SD: 10.9), and 12.6
“communication burden” and “mental-health status” were (SD: 4.9), respectively. The scores for the COM-B subscales
used as dependent variables. For “communication self- for caregivers’ activity restriction, language impairment, cog-
efficacy,” scores on the 3 CSES subscales were adopted nitive and emotional impairment, and responsibility for
as the observed variables. For “communication burden,” household management were 19.7 (SD: 7.9), 30.3 (SD: 9.9),
scores on the 4 COM-B subscales were used as the ob- 13.1 (SD: 5.6), and 6.4 (SD: 3.2), respectively. The GDS-15
served variables. For “mental-health status,” the GDS- score was 4.7 (SD: 3.8). The scores were 11 or more in 10
15 and SF-8 mental summary scores were used as the adults, and 6-10 or lower in 33 adults. Subjects assessed
observed variables. An Amos minimized discrepancy chi- as having “depression” or a “tendency toward depres-
square criterion (CMIN; χ2 test) was used to test the sion” accounted for 39% of all the subjects. The SF-8 physical
goodness-of-fit of the whole model. The goodness-of-fit and mental summary scores were 47.8 (SD: 7.0) and 47.7
index (GFI), adjusted goodness-of-fit index (AGFI), com- (SD: 7.1), respectively. A gender difference was observed
parative fit index (CFI), and root mean square error of only in the SF-8 score for “general health.”
approximation (RMSEA) were entered as the goodness-
of-fit indicators.
Communication SE of the Family Caregivers of Persons
SPSS Version 20.0 for Windows (IBM SPSS Inc, Chicago,
with Aphasia
IL, USA) was used for the statistical analyses. The SEM
analysis was performed using SAS Version 9.3 (SAS In- The CSES scores according to family relationship and
stitute, Cary, NC, USA). The statistical significance was the severity/type of aphasia are shown in Table 3. We
set as a P value less than .05. found no differences in the CSES scores according to the
ARTICLE IN PRESS
4 H. TATSUMI ET AL.
Table 1. Demographic data of persons with aphasia and their family caregivers

Adults with Family


aphasia caregivers
(n = 110) (n = 110)

Variables Mean SD Mean SD

Age (year) 65.7 10.6 61.2 13.2


Educational level (year) 13.3 2.8 13.1 2.4
Caregiving duration (month) — — 88.7 57.8

Numbers % Numbers %

Gender Male 71 64.5 28 25.5


Female 39 35.5 82 74.5
Etiology of disease Cerebral infarction 53 48.2 — —
Cerebral hemorrhage 39 35.5 — —
Subarachnoid hemorrhage 9 8.2 — —
Cerebral trauma 7 6.4 — —
Others 2 1.8 — —
Aphasia severity Mild 53 48.2 — —
(BDAE) Moderate 38 34.5 — —
Severe 19 17.3 — —
Aphasia type Broca’s aphasia 58 52.7 — —
Wernicke’s aphasia 19 17.3 — —
Other aphasias 33 30.0 — —
Conduction aphasia, — —
amnesic aphasia, etc.
Family relationship Spouse — — 85 77.3
Children — — 16 14.5
Others — — 9 8.2
Parents, daughter-in-law, etc.

Abbreviations: BDAE, Boston Diagnostic Aphasia Examination; SD, standard deviation.


The severity of aphasia was assessed using the BDAE scale.
In regard to classification of the severity of aphasia, grades 4 and 5 on the scale were rated as representing mild aphasia, grades 2 and 3 as
representing moderate aphasia, and grades 0 and 1 as representing severe aphasia.

family relationships, but significant differences were ob- tool” did not differ according to either the aphasia se-
served in the total CSES scores and the scores of two of verity or the aphasia type (Table 3).
the subscales according to the severity and type of aphasia.
Multiple comparisons among the severity groups re- Correlations of the Variables with the CSES Scores for
vealed that the scores were significantly higher in the the Family Caregivers of Persons with Aphasia
“mild” aphasia group than in the “moderate” or “severe”
Table 4 shows Pearson’s correlation coefficients (r) and
aphasia groups (total CSES score: F [2.107] = 8.41, mean
P values between the CSES scores and other items. The
square error [MSE] = 5584.0, P < .001; concerns of the speech
total CSES score and the scores on two of the subscales
environment: F [2.107] = 9.08, MSE = 1656.2, P < .001; and
were positively correlated with the severity of aphasia,
concerns of the confirmation of intent: F [2.107] = 8.67,
and were negatively correlated with the scores on 4 COM-B
MSE = 904.5, P < .001). Moreover, multiple comparisons
subscales and the GDS-15. A negative correlation between
among the aphasia groups divided according to the aphasia
the CSES subscale for the consideration of the commu-
type showed that the scores were significantly higher in
nication tool and the COM-B subscale for “responsibility
the “group with other types of aphasia” than in the “Broca
for household management” was also observed.
aphasia group” or the “Wernicke aphasia group” (total
CSES score: F (2.107) = 6.87, MSE = 4678.5, P = .002; con-
SEM as Covariance for Family Caregivers of Persons
cerns of the conversation environment: F (2.107) = 7.46,
with Aphasia
MSE = 1397.9, P < .001; concerns of the confirmation of
intent: F (2.107) = 6.37, MSE = 691.3, P = .002). The score A total of 83 subjects, excluding 27 with missing SF-8
on the subscale for the “consideration of the communication data, were analyzed using SEM. A model with paths from
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COMMUNICATION SELF-EFFICACY AND BURDEN 5
Table 2. Results of CSES, COM-B, GDS-15, and SF-8 in family caregivers

Total Male Female


(n = 110) (n = 28) (n = 82)

Measures Mean SD Mean SD Mean SD T values P

CSES Total score 105.5 27.5 105.9 31.0 105.4 26.3 .08 .94
Consideration of the 50.3 14.5 50.1 16.4 50.4 13.9 −.11 .91
speech environment
Consideration of the 42.5 10.9 43.1 12.0 42.4 10.6 .30 .77
confirmation of intent
Consideration of the 12.6 4.9 12.7 5.5 12.6 4.7 .10 .92
communication tool
COM-B Caregivers’ activity 19.7 7.9 19.3 8.5 19.8 7.7 −.29 .77
restriction
Language impairment 30.3 9.9 29.0 10.5 30.7 9.8 −.82 .42
Cognitive and emotional 13.1 5.6 11.6 5.6 13.5 5.6 −1.54 .13
impairment
Responsibility for 6.4 3.2 5.8 3.0 6.6 3.2 −1.25 .21
household management
GDS-15 Total score 4.7 3.8 4.1 4.6 4.9 3.6 −.89 .38

Total Male Female


(n = 83) (n = 20) (n = 63)

SF-8 Physical functioning 48.5 7.5 50.3 4.8 47.8 8.2 1.43 .16
Role—physical 48.5 7.7 49.6 6.7 48.1 8.1 .78 .44
Bodily pain 48.7 8.4 51.5 7.6 47.5 8.5 1.96 .06
General health 48.8 6.6 51.1 6.7 47.9 6.4 2.07 .04*
Vitality 50.5 6.1 52.4 5.1 49.7 6.4 1.80 .07
Social functioning 46.8 9.4 47.7 9.3 46.4 9.5 .58 .56
Role—emotional 48.4 7.5 49.5 6.7 48.0 7.8 .87 .39
Mental health 48.4 6.8 49.9 7.4 47.7 6.5 1.32 .19
Physical summary scores 47.8 7.0 49.8 5.0 46.9 7.6 1.75 .08
Mental summary scores 47.7 7.1 48.6 7.7 47.3 6.9 .74 .46

Abbreviations: CSES, Communication Self-Efficacy Scale; COM-B, Communication Burden Scale; GDS, Geriatric Depression Scale;
SD, standard deviation; SF-8, 8-item Short-Form Health Survey.
Student’s t-test was used for the certification of the difference by a family caregiver’s gender.
*Significant at P < .05.

the latent variable of “communication self-efficacy” to the coefficient from “communication burden” to “mental-
other latent variables of “communication burden” and health status” was −.568 (P < .001), suggesting the strong
“mental-health status,” and from “communication burden” influence of the burden of communication on the mental-
to “mental-health status” showed the best goodness-of- health status. Furthermore, the path coefficient from
fit (Fig 1). A goodness-of-fit test of this model gave a CMIN “communication self-efficacy” to “mental-health status”
value of 2.6149 (df = 24, P = .995). Goodness-of-fit indi- was −.231 (P = .015), implying that SE had a minimal effect
cators for this model yielded the following values: on mental health.
GFI ≈ .993, AGFI ≈ .972, CFI ≈ 1.00, and RMSEA ≈ .000. All Among the relationships between the constructs (latent
the goodness-of-fit indicators were statistically signifi- variables) and the observed variables, “communication
cant. The estimated path coefficient from “communication self-efficacy” was affected by each of the observed vari-
self-efficacy” to “mental-health status” had a P value of ables for the consideration of the speech environment (path
.015, while all the other estimated path coefficients had coefficient, .998; P < .001), the consideration of the con-
P values less than .001. firmation of intent (path coefficient, .789; P < .001), and
Regarding the relations between the constructs, the path the consideration of the communication tool (path coef-
coefficient from “communication self-efficacy” to “com- ficient, .557; P < .001).
munication burden” was −.430 (P < .001), indicating that “Communication burden” closely reflected the lan-
a high SE reduces the care burden. In addition, the path guage impairment (path coefficient, .957; P < .001), the
6
Table 3. The general characteristics of the CSES in family caregivers

CSES

Consideration Consideration Consideration


of the of the of the
speech confirmation communication
Total score environment of intent tool

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Variables Numbers Mean SD Mean SD Mean SD Mean SD

Family Spouse 85 105.54 28.30 50.42 15.04 42.40 11.31 12.72 4.94
relationship Children 16 108.13 25.70 50.94 12.94 44.75 9.32 12.44 5.57
Others (parents, 9 100.56 24.23 48.44 12.65 39.89 9.97 12.22 3.96
daughter-in-law, etc.)
F (2.107) = .21, F (2.107) = .91, F (2.107) = .59, F (2.107) = .06,
P = .806 P = .913 P = .553 P = .946
Aphasia Mild 53 117.95 24.56 57.16 13.19 47.47 8.72 13.33 5.41
severity Moderate 38 99.42 20.66 ** ** 46.55 10.48 ** ** 40.58 8.77 * ** 12.3 4.35
Severe 19 95.68 31.17 45.38 16.23 38.21 12.93 12.09 4.85
F (2.107) = 8.41, F (2.107) = 9.08, F (2.107) = 8.67, F (2.107) = .71,
P < .001 P < .001 P < .001 P = .497
Aphasia Broca’s aphasia 58 99.45 27.98 47.21 14.50 40.28 11.67 11.97 4.89
type Wernicke’s aphasia 19 98.41 28.43 ** 45.88 14.08 ** 39.59 11.02 ** 12.94 4.66
* * *
Other aphasias 33 119.00 21.21 57.69 11.98 47.71 7.46 13.60 5.08
(conduction aphasia,
amnesic aphasia, etc.)
F (2.107) = 6.87, F (2.107) = 7.46, F (2.107) = 6.37, F (2.107) = 1.24,
P = .002 P < .001 P = .002 P = .292

Abbreviations: ANOVA, analysis of variance; CSES, Communication Self-Efficacy Scale; SD, standard deviation.
The differences in each group of aphasia severity, type, and family relationship were analyzed by one-way ANOVA.

H. TATSUMI ET AL.
The multiple comparison was carried out by Tukeys’ test.
*Significant at P < .05; **significant at P < .01.
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COMMUNICATION SELF-EFFICACY AND BURDEN 7
Table 4. Correlation between CSES and other variables

Consideration Consideration Consideration


Total of the speech of the confirmation of the
score environment of intent communication tool

Variables r r r r

Patient’s age .036 .084 .023 −.096


Aphasia severity .347 ** .350 ** .361 ** .107
Caregiver’s age −.016 .065 −.069 −.125
Educational level of family caregivers .004 −.006 .061 −.096
Caregiving duration −.170 −.194 * −.095 −.167
COM-B Caregivers’ activity restriction −.215 * −.261 ** −.158 −.078
Language impairment −.359 ** −.391 ** −.305 ** −.180
Cognitive and emotional impairment −.358 ** −.363 ** −.337 ** −.180
Responsibility for household management −.329 ** −.341 ** −.275 ** −.220 *
GDS-15 Total score −.208 * −.189 * −.199 * −.164
SF-8 Physical summary scores .161 .153 .165 .081
Mental summary scores .063 .066 .056 .030

Abbreviations: COM-B, Communication Burden Scale; CSES, Communication Self-Efficacy Scale; GDS, Geriatric Depression Scale; r,
Pearson’s correlation coefficient; SF-8, 8-item Short-Form Health Survey.
*Significant at P < .05; **significant at P < .01.

Figure 1. Structural equation modeling as covariance in the family caregivers for aphasia. Fit summary: χ2 = 2.6149 (P = .995), GFI = .993, AGFI = .972,
CFI = 1.000, RMSEA = .000. *P < .001, **P = .015. Error variables are omitted. Abbreviations: AGFI, adjusted goodness-of-fit index; CFI, comparative fit
index; COM-B, Communication Burden Scale; CSES, Communication Self-Efficacy Scale; GDS, Geriatric Depression Scale; GFI, goodness-of-fit index;
RMSEA, root mean square error of approximation; SF-8, 8-item Short-Form Health Survey.
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8 H. TATSUMI ET AL.
activity restriction (path coefficient, .717; P < .001), the cog- and a weak negative correlation with the score on the
nitive and emotional impairment (path coefficient, .943; GDS-15. There results suggest the existence of relationships
P < .001), and the responsibility for household manage- between the CSES of the family caregivers and their com-
ment (path coefficient, .848; P < .001) subscales of the COM- munication burden and mental health. One characteristic
B. Finally, the “mental-health status” was positively of concern about caregivers is their gender. In this re-
correlated with the SF-8 mental summary scores (path search, there were no significant differences in the scores
coefficient, .888; P < .001) and was negatively correlated on the CSES, COM-B, GDS-15, or SF-8 scale between the
with the GDS-15 scores (path coefficient, −.568; P < .001) 2 genders, except for the score on 1 subscale, namely,
(Fig. 1). “general health.” The issue of caregiver characteristics has
been studied intensively for many years in relation to
persons caring for dementia.15,16 Gallicchio et al17 pointed
Discussion out that a female caregiver is stronger against the neg-
ative impact of depression or anxiety than a male caregiver.
In this study, we clarified the relationships between the
We may need to accumulate a larger number of cases
CSES of the family caregivers of persons with aphasia
and reexamine the problem of the relationship between
and their care burdens for communication disorders as
stress and gender.
well as their mental health using a SEM path analysis.
The study revealed that the communication SE of the care-
givers differed depending on the severity and type of the
Relationships among Communication SE, Care Burden
aphasia experienced by the persons with aphasia under
for Communication Disorders, and Mental Health
their care. The SEM analysis revealed that a high com-
munication SE was associated with low caregiver burden In the present SEM analysis, paths were drawn between
for communication disorders and good mental-health status the following constructs: from “communication self-
of the family caregivers. These results suggested that sys- efficacy” to “communication burden” and from
tematic and specialized interventions for the families of “communication burden” to “mental-health status,” im-
persons with aphasia with the intention of increasing their plying that a high communication SE diminishes the care
communication SE might contribute to a reduction in their burden for communication disorders and that a reduced
care burden for communication disorders. care burden for communication disorders in turn pro-
motes the maintenance of good mental health. Therefore,
our analysis revealed that specialized interventions to in-
General Characteristics of Communication SE crease communication SE have a positive effect on both
the care burden and the mental health of the family care-
Statistically significant differences were found for the givers. However, it should be noted that the path from
total CSES score and the scores for two of the CSES “communication self-efficacy” to “mental-health status”
subscales according to the severity and type of aphasia, had a negative coefficient, although the value was very
but not according to the family relationships. Regard- small. It is possible that a high communication SE may
ing the significant difference in the CSES scores according lead the family caregivers to pursue an excessive level
to the type of aphasia, the percentage of cases with mild regarding the communication environment, thereby in-
aphasia in the “other aphasia” group was relatively higher, creasing their psychological burden. This issue will require
so the significance of this result may reflect the severity further investigation using a larger data sampling.
of aphasia. No significant difference in the CSES score
was observed between the group with Broca’s aphasia
and the group with Wernicke’s aphasia, suggesting that Limitations of the Study
the type of aphasia may not have a direct effect on the
communication SE of the family caregivers. Based on the The limitations of the present study were as follows:
absence of a significant difference in the CSES scores of (1) No clear causal relationships could be established
the family caregivers depending on their relationship with because of the cross-sectional design of the ques-
the persons with aphasia, SE may have universal char- tionnaire survey used in the study.
acteristics that transcend family relationships. Consideration (2) The relationships among communication SE, com-
of the communication tool, which is one of the lower items munication burden, and mental health could not
of the CSES, was not affected by the severity of aphasia. be examined according to the gender of the family
In other words, the family caregivers can respond with caregivers, the family relationships, or the severity/
constant confidence, regardless of the severity of aphasia, type of aphasia.
to the practical use of a substitution tool for communi- (3) CSES is an SE scale created for Japanese individu-
cation. Regarding the other evaluation criteria, the total als, and the clinical utility of CSES should be
CSES score and the scores on 2 subscales showed mod- investigated in other cultural spheres among sub-
erately negative correlations with the score on the COM-B jects speaking other languages.
ARTICLE IN PRESS
COMMUNICATION SELF-EFFICACY AND BURDEN 9
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