You are on page 1of 23

Disability and Rehabilitation: Assistive Technology

ISSN: (Print) (Online) Journal homepage: https://www.tandfonline.com/loi/iidt20

Technology for activity participation in older


people with mild cognitive impairment or
dementia: expert perspectives and a scoping
review

Stacey L. Schepens Niemiec, Elissa Lee, Raquel Saunders, Rafael Wagas &
Shinyi Wu

To cite this article: Stacey L. Schepens Niemiec, Elissa Lee, Raquel Saunders, Rafael
Wagas & Shinyi Wu (2022): Technology for activity participation in older people with mild
cognitive impairment or dementia: expert perspectives and a scoping review, Disability and
Rehabilitation: Assistive Technology, DOI: 10.1080/17483107.2022.2116114

To link to this article: https://doi.org/10.1080/17483107.2022.2116114

View supplementary material

Published online: 06 Sep 2022.

Submit your article to this journal

Article views: 321

View related articles

View Crossmark data

Full Terms & Conditions of access and use can be found at


https://www.tandfonline.com/action/journalInformation?journalCode=iidt20
DISABILITY AND REHABILITATION: ASSISTIVE TECHNOLOGY
https://doi.org/10.1080/17483107.2022.2116114

REVIEW

Technology for activity participation in older people with mild cognitive


impairment or dementia: expert perspectives and a scoping review
Stacey L. Schepens Niemieca , Elissa Leea, Raquel Saundersa, Rafael Wagasa and Shinyi Wub,c
a
Mrs. T.H. Chan Division of Occupational Science and Occupational Therapy, University of Southern California, Los Angeles, CA, USA; bSuzanne
Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, USA; cDaniel J. Epstein Department of Industrial and
Systems Engineering, University of Southern California, Los Angeles, CA, USA

ABSTRACT ARTICLE HISTORY


Purpose: This two-phased study aimed to collate, summarize and characterize – through the lens of an Received 10 September 2021
occupation-based, person-centred framework – ongoing research and practice featuring activity participa- Accepted 17 August 2022
tion-supportive digital health technology (DHT) for direct use by older persons with mild cognitive impair-
KEYWORDS
ment or Alzheimer’s disease and related dementias (PwMCI/ADRD).
Alzheimer’s disease and
Materials and methods: Phase 1: Using scoping review procedures, PubMed, MEDLINE and PsycInfo related dementias; digital
were searched to identify primary research studies. Phase 2: Semi-structured interviews were completed health technology; activity
with MCI/ADRD expert stakeholders identified through publicly available biographies and snowball refer- participation; scoping
ral. Thematic analysis was used to identify, synthesize and cross-compare emergent themes from both review; older adults;
data sources that were subsequently organized into core facets of the Human Activity Assistive activities of daily living;
Technology (HAAT) model. digital divide
Results: The scoping review resulted in 28 studies, which were primarily feasibility work with small sam-
ple sizes. Interviewed experts (N ¼ 17) had 4þ years of MCI/ADRD experience, came from a variety of set-
tings, and held myriad roles. Real world and research-based use of DHTs held some commonalities,
particularly around support for social participation and instrumental activities of daily engagement. No
DHT for sleep or work/volunteerism were noted in either phase. People with milder MCI/ADRD conditions
were most often targeted users. Soft technology strategies facilitating implementation centred on product
design (e.g., prompting software, customisability, multimedia/multisensory experiences), instructional
methods and technology partner involvement.
Conclusions: This study demonstrates that although DHT supportive of activity participation is being
studied and integrated into the lives of PwMCI/ADRD, there are still key opportunities for growth to meet
the needs of diverse MCI/ADRD end users.

� IMPLICATIONS FOR REHABILITATION


� Mainstream digital health technologies (DHTs) are being utilized by persons with mild cognitive
impairment and Alzheimer’s disease and related dementias (PwMCI/ADRD) in everyday life, in limited
capacities, to support social participation, leisure, health management and instrumental activities of
daily living (IADL).
� Innovative research-based technologies to be used directly by PwMCI/ADRD are under development,
particularly to facilitate management of ADL, social participation and IADL in persons with mild-to-
moderate forms of cognitive impairment.
� Soft technology strategies to support technology implementation with MCI/ADRD target users
include close attention to design of the technology (e.g., customisability, sensory stimulators and
prompting features), instructional strategies that promote learning and motivation and involvement
of technology partners to facilitate engagement with the technology.
� Future studies will require more robust research designs with transparent reports of participant char-
acteristics and facilitative instructional methods to expand DHT’s potential to account for and better
meet the needs of diverse MCI/ADRD communities in real-world contexts.

Introduction [2] – jeopardizes health-related quality of life, affecting myriad


Approximately 50 million people worldwide live with Alzheimer’s domains of health and function, such as memory, motivation and
disease and related dementias (ADRD), with this number expected social behaviour [1,3]. Meaningful participation in everyday activ-
to grow to 132 million by 2050 [1]. ADRD – as well as mild cogni- ities – a “vital part of the human condition and experience”
tive impairment (MCI) which may precede ADRD in many cases that contributes to life satisfaction and psycho-emotional

CONTACT Stacey L. Schepens Niemiec schepens@usc.edu Chan Division of Occupational Science and Occupational Therapy, University of Southern California,
1540 Alcazar St, CHP-133, Los Angeles, CA 90089-9003, USA
Supplemental data for this article can be accessed online at https://doi.org/10.1080/17483107.2022.2116114.
� 2022 Informa UK Limited, trading as Taylor & Francis Group
2 S. L. SCHEPENS NIEMIEC ET AL.

wellbeing [4, p.640] – suffers in consequence. Getting dressed in satisfies the activity participation needs of the individual and opti-
the morning, planning a trip to the grocery store, having an mally supports actualization of their performance potential [19].
intimate conversation with others, achieving restful sleep, or To our knowledge, no study has applied the HAAT model to sum-
enjoying a favourite pastime occupation can become arduous, if marize and characterize the state of science and practice in the
not impossible. area of DHT use by PwMCI/ADRD.
Technological developments in the assistive technology arena This study aims to collate, synthesize and characterize –
have been extensively and increasingly studied for integration into through the lens of a person-centred, occupation-based frame-
ADRD care [5], particularly in the areas of cognitive assessment, cog- work and using a convergent design – evolving research and
nitive stimulation and assistance for daily activities [6,7]. A 2015 practice featuring activity participation-supportive DHT for direct
review of assistive technology for ADRD demonstrated that technol- use by older PwMCI/ADRD. The overarching goal of this study is
ogy (at that time) was primarily focused on memory aids, safety to complement and expand the work in this area, identifying
and day-to-day tasks (i.e., food/kitchen tasks and personal hygiene); opportunities for future research that can help bridge the multidi-
very few innovations addressed leisure or recreational participation mensional digital divide and bring cutting-edge DHT to diverse
[8]. This trend was observed once again in a later review suggesting older adults of the MCI/ADRD community in support of meaning-
mobile health (mHealth) technologies tended to support basic ful activity participation.
rather than higher-level human needs of PwADRD [9].
In the wake of COVID-19, technology-driven interventions have
Methods
become progressively vital to individuals’ health and function,
while simultaneously exacerbating persistent digital inequities This study utilized a two-phase design that included a scoping
[10]. Older people, especially those with disabilities and from review and expert interviews to capture complementary informa-
under-resourced communities, have been historically overlooked tion from the scientific arena and real-world practice. Methods for
and underrepresented as target users of digital health technology each separate study phase are described below.
(DHT; i.e., technology that integrates “computing platforms, con-
nectivity, software, and sensors” [11, para 3] to support health
Phase I – scoping review
and wellbeing), creating a digital rift that threatens equal access
to health-beneficial innovations [12,13]. The intersectionality of The first study phase featured a scoping review of the literature
older age, disability and other markers of inequity that perpetuate to identify and characterize recent DHT under research and devel-
digital exclusion [13] worsens the risk persons with mild cognitive opment that supports activity participation in PwMCI/ADRD.
impairment (PwMCI)/ADRD will be left behind as mainstream Scoping reviews aid in mapping broad topics and synthesizing
technology developments continue to accelerate. evidence to identify gaps in the literature [20]. We adopted
A recent review by Engelsma et al. [14] showed that older Arksey and O’Malley’s [20] methodological framework that
PwADRD face unique challenges, in addition to the ones experi- involved identifying a research question and relevant studies,
enced by the general ageing population, when using mHealth selecting studies, charting the data and summarizing results. The
technology. These ranged from cognitive barriers (e.g., planning review is reported according to the Preferred Reporting Items for
abilities and organizing thoughts) and “frame of mind” obstacles Systematic Reviews and Meta-Analyses extension for Scoping
(e.g., concentration and concern for stigmatization), to physical Review (PRISMA-ScR) guidelines [21]. In characterizing the litera-
ability impediments (e.g., gait unsteadiness and tremor), percep- ture through use of the HAAT model, we asked the following
tion problems (e.g., double vision and object/facial recognition) research questions: (1) What is the surrounding context in which
and speech-language barriers (e.g., reading and verbal expres- the research has been conducted? (2) What are the characteristics
sion). Despite these findings, researchers have pointed to the rela- of the target users (i.e., humans) who are being studied? (3) What
tive paucity of inclusion of PwMCI/ADRD as the target users and/ is the nature of the activity participation being supported? (4)
or as key critics of technologies under study, with primary atten- What is the nature of the DHT (i.e., assistive technology) and
tion oftentimes paid to care partners as the principal beneficiaries related supportive strategies being studied? (5) What is the nature
and keepers of insightful perspectives [15,16]. Encouragingly, of researchers’ recommendations to advance the science of activ-
more inclusive practices in ADRD technology development appear ity participation-supportive DHT for PwMCI/ADRD?
to be an emerging trend in this line of inquiry [7,14,17]. We performed a literature search on 15 March 2020 of pub-
Calls for adopting person-centred methods to advance lished articles (January 2009–March 2020) indexed in PubMed. An
research and development of technologies for PwADRD have additional search was conducted on 4 June 2020 of indexed
been made [9,17] – examining the landscape of both research articles (January 2009–May 2020) in MEDLINE (ProQuest) and APA
and real-world practice in this domain through the lens of the PsycInfo (ProQuest) and again on 21 February 2022 (spanning
Human Activity Assistive Technology (HAAT) model [18] is one January 2020–February 2022) in the same databases. Primary
way to contribute to this effort. The HAAT model is a popular the- search terms described the target population (e.g., “dementia”;
oretical framework, grounded in occupational therapy and “cognitive impairment”) and DHT (e.g., “electronic activity mon-
rehabilitation engineering, that was designed to guide assess- itors”; “mobile health”). DHT was defined as technology used to
ment, prescription and evaluation of assistive technology systems support health, function and wellbeing through use of
suitable for people with disabilities [18]. The respective compo- “computing platforms, connectivity, software, and sensors”[11,
nents of the model are illustrated by a human (person) engaging para 3]. Some examples of DHT, without consideration for the
in an activity (occupation) within a context (social, cultural, envir- activity participation-supportive requirement, include devices like
onmental and institutional) enabled by assistive technology (tech- wearable fitness trackers or software applications like a stress
nology) [19]. It proffers a person-centred approach, with the management smartphone app. Given DHT involves connectivity
essential outcome being facilitation of participation in preferred and computing power, low-tech health technologies such as man-
activities to meet a client’s goals across relevant contexts [19]. ual body weight scales, reachers and handheld magnifiers are not
Placing the person as central to the model ensures technology included. Activity participation search terms were not used to
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 3

gather the initial set of potentially eligible papers. Supplementary additional details as needed. Queried topics centred on needs of
Table 1 details the search strategy. the MCI/ADRD population; instructing PwMCI/ADRD in new tasks,
Studies were included if (1) they were available in English; (2) especially those involving technology; and application of technol-
they tested a DHT-based intervention designed to facilitate par- ogy with consideration of facilitators and barriers.
ticipation in meaningful activities or occupations a person needs A manifest (surface-level) content analysis [51,52] of tran-
or wants to do (i.e., engagement in physical, cognitive, and social scribed interviews – managed using spreadsheets – was con-
activities, including activities of daily living [ADL] and instrumental ducted to identify themes specific to technology use and related
ADL [IADL]); and (3) primary target users of the DHT were older supportive strategies and design for PwMCI/ADRD. Such analysis
adults with MCI/ADRD. Studies were excluded if target users were permits classification of qualitative information using a predeter-
the MCI/ADRD care partners; the technology’s purpose was for mined coding scheme. Initial categorical codes (e.g., technology
diagnosis, assessment, MCI/ADRD prevention or facilitation of pre- use in daily life, barriers to technology use and technology facili-
paratory tasks (e.g., cognitive skill building, fine motor control tation strategies) developed from the semi-structured interview
improvement); or the intervention focused on telehealth proc- guide were agreed upon at a team meeting and were subse-
esses. Eligibility was further limited to primary studies and the quently applied by two independent coders. As data were sorted
most recent or key study of an intervention by the same into the overarching categories, coders developed sub-codes as
research team. appropriate (e.g., accessibility barriers, technology design barriers).
Search results were organized using Covidence systematic Through regular discussions between coders, the researchers
review software (Veritas Health Innovation, Melbourne, Australia, modified their sub-codes as needed (e.g., adding a sub-code to
available at www.covidence.org). Citations from the literature coder one’s coding scheme that coder two had found relevant)
search were uploaded into Covidence and duplicates were and were later checked by a third analyst. Discrepancies were dis-
removed. Two reviewers independently screened all articles. At cussed by all three analysts until consensus was reached.
each stage, conflicts regarding eligibility were resolved in consult- Summaries of the overarching themes were created and specific
ation with a third reviewer; decisions were based on consensus. quotes were highlighted when they captured the essence of a
During the initial screening stage, selection criteria were particular theme. Finally, content was organized within relevant
applied to titles and abstracts. Review studies were excluded after HAAT model domains.
reference lists were hand searched for relevant citations. Two
independent reviewers conducted a full-text review of remaining Merging phase I and II
articles, extracting data to a spreadsheet with the following head-
ings: study purpose, study design, sample size, demographics, Strands of data from both study phases were merged using the
activity participation domain targeted, technology characteristics, spreadsheet created for extracting and synthesizing data for the
intervention implementation methods and key findings. Based on scoping review phase as the foundation. This decision was made
extraction results, additional articles were eliminated. Results were based on the in-depth level of granularity organizing data result-
synthesized in tabular format (see Tables 1 and 2) and summar- ant from characterization and analysis of the scoping review
ized narratively for further analysis, and finally organized under articles. Summarized data from the expert interviews were
HAAT model domains. mapped onto the scoping review table to facilitate cross-study
comparison. The team searched for and discussed similarities, dis-
crepancies and convergence. Where gaps were noted in available
Phase II – Expert stakeholder interviews data that could be cross-referenced, coders of the interview data
The second study phase featured interviews of MCI/ADRD expert revisited transcripts to seek, extract and map additional informa-
stakeholders, referred hereafter as experts. This phase was con- tion as necessary. Organization of the results under HAAT model
ducted with the purpose of gaining experts’ real-world viewpoints domains facilitated cross-phase synthesis.
on technology use among older PwMCI/ADRD, thereby producing
a complementary set of perspectives that could be compared Results
with the research landscape characterized from the scoping
review, and allowing convergence of findings from both the sci- Phase I – Scoping review
entific and practice arenas. The University of Southern California The screening and review process is depicted in the PRISMA flow-
Institutional Review Board approved all procedures. Using a pur- chart (Figure 1). The PRISMA-ScR checklist [21] was applied for
posive sampling strategy, we sought individuals from wide-rang- transparency (Supplementary Table 2). Database searches yielded
ing backgrounds and experiences relevant to MCI/ADRD. 2227 articles and hand searching systematic review references
Participants were identified using the research team’s professional added 67, leaving 1713 after deduplication. Title and abstract
network combined with an online search of publicly available aca- screenings resulted in 42 articles for full-text review. After data
demic, professional, clinical and community organization biogra- extraction, 28 studies were included in the final review. Figure 2
phies. Snowball referral supplemented these tactics. Enrolment provides a high-level summary of the scoping review phase
was limited to persons who were English-speaking, had �1 year results as situated within the HAAT model.
of experience in MCI/ADRD, and were actively working with the
target population in some capacity (e.g., providing therapy, con- Context of research
ducting research and volunteering). Table 1 contains basic characteristics of included studies, as
Interviews were conducted by trained research personnel via organized within the HAAT model, providing information about
telephone or video call, and took place between October 2019 the context of the research conducted and the humans (PwMCI/
and June 2021. Researchers followed a semi-structured interview ADRD) who were studied. All but one study from Japan [49] were
guide to ensure consistency [50], and interviews were approved conducted in Western countries/regions, with most from the UK
to last 1 h or less. Participants were asked open-ended questions (n¼ 6), Italy (n¼ 5), and the USA (n¼ 4). Most were small-scale
to allow free expression of viewpoints; probing questions elicited (median MCI/ADRD sample size ¼ 10) feasibility/pilot studies and
4
Table 1. Characteristics of included studies in the Scoping Review Study Phase, as situated in the HAAT Model.
Context Human
Study design/ Sample size Setting where tech Mean age or age range; race/ethnicity
Citation and country research methods (n) of MCI/ADRD Length of testing/exposure was studied n; female/male; education of MCI/ADRD Diagnosis and severity
Pilot randomized controlled trial 55 1–1.5-h training session þ 3 months Home Experimental: 72.7 yr; race/ethnicity NA; 12f/ MCI; mild dementia including AD,
NLD [28] in-home trial 16m; �2o edu 14, higher edu 11 frontotemporal dementia,
Control: 71.7 yr; race/ethnicity NA; 11f/20m; vascular dementia; very mild
�2o edu 12, higher edu 10 cognitive decline
Longitudinal, non-randomized, 7 3 months with weekly technical Adult living community 81 years; race/ethnicity NA; 5 f/2 m; edu NA MCI, AD, ADRD
USA [41] single-arm, repeated measures office hours available if needed with independent
(pre-post) living, managed care
and dementia care
Mixed-methods with participatory 9 3 workshops across 4 months Dementia NI group 60–81 yr; race/ethnicity NA; sex 3f/6m; Mild-to-moderate dementia
S. L. SCHEPENS NIEMIEC ET AL.

UK [42] design and usability study empowerment edu NA


meetings and/or
living space
lab setting
Repeated observations 9 1–2 standard tasks within 4 different Home 73–86 yr; race/ethnicity NA; 4f/5m; edu NA Mild-to-moderate dementia
UK [39] formats þ 1 individually chosen
task exploration per visit (67 total
visits among 9 participants)
UK [47] Beta test with pre-post interview 26 2 distinct phases (different samples), Home 80 yr; race/ethnicity NA; 12f/14m; edu NA Mild-to-moderate cognitive
4 weeks each impairment with dementia (AD,
vascular, or mixed AD/vascular)
NOR, PRT [32] Qualitative interview study 12 2–3 times/week for 16 weeks or 2–3 Care home 84.1 yr; race/ethnicity NA; sex NA; edu NA Moderate-to-severe dementia
times/week for 12 weeks, with including AD, dementia with
each session lasting 30–60 min Parkinson’s, dementia with Lewy
bodies, vascular dementia,
alcohol-related dementia, and
unspecified
USA [30] Pilot and feasibility study using a 10 One 3-h session Lab 80.3 yr; white 8, unknown 2; 7f/3m; edu MCI, mild dementia, or “cognitive
within-participant, 16.4 yr (mean) scores falling within [MCI through
counterbalanced, cross- mild dementia] range”
over design
NLD [46] Mixed methods: interview, survey, Interview: 6 Single session for each event Interview: Home Interview: 71 yr (median); race/ethnicity NA; MCI, AD, frontotemporal dementia,
observation Survey: 88 (different recruitment procedures) Survey: Home 1f/5m; edu NA dementia with Lewy bodies
Observation: 4 Observation: Home or Survey: 67 yr; race/ethnicity NA; 35f/44m
university (9 NA); edu NA
workstation Observation: 66.5 yr; race/ethnicity NA; 1f/3m;
edu NA
UK [27] Secondary analysis of data from a 37 6-month period within 12-month Home 70.4 yr; race/ethnicity NA; 16f/21m; �2o edu AD, vascular dementia, Lewy body
randomized controlled trial parent study 34, higher edu 3 dementia, mixed dementia,
dementia (type unspecified), MCI
CAN [45] Longitudinal pre-post 3 Varying based on participant: 12, 24 Home 69 yr; race/ethnicity NA; 1f/2m; edu 12,14, AD and atypical AD
and 9.5 months, including 21 yr (median 14)
intervention (non-specific) until
mastery, then regular and
systematic post-intervention use
UK [36] Exploratory: two-arm, non- 30 3 sessions over 5-d period Care service centre 84.2 yr; race/ethnicity NA; 22f/8m; edu NA Dementia – non-specified
randomized, repeated measures

USA [31] Feasibility cohort study 22 3 months Home Veteran group: 65 yr; Black 10, white 4, Dementia – non-specified (impaired
Hispanic/Latino 1; 0f/14m; edu NA to significantly
Non-veteran group: 78 yr; Black 8, Hispanic/ impaired cognition)
Latino 0; 3f/5m; edu NA
ITA, ESP, AUT [43] Multicenter field trial 30 12 weeks Home Intervention: 72 yr (median); race/ethnicity Mild MCI due to AD or mild AD
NA; 9f/6m; edu NA
Control: 74 yr (median); race/ethnicity NA; 7f/
8m; edu NA
ITA [49] Non-concurrent multiple baseline 11 3 min x 3–6 baseline sessions; Centres for people 83 yr; race/ethnicity NA; 6f/5m; edu NA Moderate AD
3–5 min/intervention sessions, with ADRD
2–4 sessions/day, 51–107 sessions
based on participant availability
(continued)
Table 1. Continued.
Context Human
Study design/ Sample size Setting where tech Mean age or age range; race/ethnicity
Citation and country research methods (n) of MCI/ADRD Length of testing/exposure was studied n; female/male; education of MCI/ADRD Diagnosis and severity
ITA [33] Two studies: non-concurrent Study 1: 8 Study 1: 1.5–2-h sessions, including Centres for people Study 1: 84.8 yr; race/ethnicity NA; 3f/5m; Study 1: mild-to-moderate AD
multiple baseline Study 2: 9 1st baseline 2–4 sessions, 2nd with ADRD edu NA Study 2: moderate-to-severe AD
baseline 3–6 sessions, 3–4 Study 2: 79.6 yr; race/ethnicity NA; 5f/4m;
introductory sessions, and 37–82 edu NA
intervention sessions based on
participant availability
Study 2: 3 min � 3–7 sessions/day,
4–11 baseline sessions, 73–119
intervention sessions based on
participant availability
ITA [34] Non-concurrent multiple baseline 26 5-min sessions, 3–5 sessions/day, Residential social- Group 1: 83 yr; race/ethnicity NA; sex NA; edu Advanced AD
21–38 pairs of sessions medical centres NA
(control þ intervention) Group 2: 85 yr; race/ethnicity NA; sex NA;
edu NA
ITA [50] Adapted non-concurrent Group 1: 4 2–3 h sessions, including 3–5 Activity and Group 1: 71 yr; race/ethnicity NA; 3f/1m; edu Mild-to-moderate AD
multiple baseline Group 2: 4 baseline 1 sessions (no tech), 3–5 care centres NA
baseline 2 sessions (no tech), 3–4 Group 2: 75 yr; race/ethnicity NA; 4f/0m;
introductory sessions (tech), and edu NA
34–78 intervention sessions (tech)
DEU [51] Open-label, non-randomized, cross- 14 15 min training, 15 min task Hospital campus 71.9 yr; Mild-to-moderate AD
sectional, mono-centric pilot completion � 1 session race/ethnicity NA; 9f/5m; edu 6–10 yr
AUS [35] Qualitative study with observation, 3 6 months Dementia wing of long- 76–87; race/ethnicity NA; 1f/2m; edu NA Moderate-to-advanced dementia
focus groups, and interview term care facility including Lewy body disease, AD,
and dementia (non-specified)
USA [26] Pilot randomized controlled trial 48 6 months Home All: 74.9 yr Dementia, MCI, self-identified
Intervention: 74.2 yr; Non-Hispanic white 16, memory concern
Hispanic white 2, �2 races 1; 11f/9m; �2o
edu 4, higher edu 16
Control: 75.4 yr; Non-Hispanic white 20, Asian
1, �2 races 2; 14f/14m; �2o edu 7,
higher edu 20

Not specified [40] Non-concurrent multiple baseline 5 Mean 7-min sessions (10 min max), Day centre for persons 80 yr; Mild-to-moderate AD
1–2 sessions/day, 3–5 baseline with ADRD race/ethnicity NA; 5f/0m; edu NA
sessions (no tech), 5 intervention
practice sessions (tech), 20–50
intervention sessions (tech)
CAN [29] Phase 2: Qualitative observation 3 One 30-min session Long-term care facility 81–90 yr; race/ethnicity NA; 3f/0m; edu NA Moderate dementia
ESP, SWE [44] Feasibility-usability study Phase 1: 19 Phase 1: 1 introductory and user Phase 1: Clinical setting Blekinge site (BTH): 77 yr; race/ethnicity NA; MCI, mild dementia
Phase 2: 17 testing session Phase 2: Home 3f/6m; edu NA
(same subject pool for Phase 2: 4-week in-home test þ 1 in- Barcelona site (CST): 80 yr; race/ethnicity NA;
both phases) clinic user evaluation session 5f/5m; edu NA
UK [52] Qualitative study with interviews 15 12 weeks Home 61–94; race/ethnicity NA; 6f/9m; edu NA Mild-to-moderate dementia
SWE [37] Qualitative observation and interview 3 29 sessions among 3 participants Home “Older women” – no age specified; race/ Dementia (non-graded)
(varying lengths and total ethnicity NA; 3f/0m; edu NA
completed/participant): 8 without
support, 12 with CIRCA, 9
with CIRCUS
AUS [53] Pilot feasibility study 15 12 weeks total: Home 83 yr; race/ethnicity NA; 7f/8m; edu Mild-to-moderate dementia
Weeks 1–2: 40 min/week 11 yr (mean)
Weeks 3–4: 60 min/week
Weeks 5–6: 80 min/week
Weeks 7–8: 100 min/week
Weeks 9–12: 120 min/week
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA

(continued)
5
6 S. L. SCHEPENS NIEMIEC ET AL.

featured qualitative components; only three studies included a

Spain; Exp: experiment; f: female; HAAT: Human Activity Assistive Technology; ITA: Italy; JPN: Japan; m: male; min: minute(s); MCI: mild cognitive impairment; NA: not available; NLD: Netherlands; NOR: Norway; PRT:
2o: secondary; AD: Alzheimer’s disease; ADL: activity of daily living; ADRD: Alzheimer’s disease and related dementias; AUS: Australia; AUT: Austria; CAN: Canada; edu: education; DEU: Germany; DNK: Denmark; ESP:
randomized controlled trial [22,30,41]. Intervention/trial periods
Diagnosis and severity
Early stage dementia (mild-to-
were as short as a single session to as long as 24 months.

moderate impairment)
Settings where technology implementation took place were pri-
marily where PwMCI/ADRD lived (n¼ 19) or at community venues
AD, varying severity
(e.g., day centres; n¼ 7); Purves et al. [43] was the only study
describing a rural context.

MCI/ADRD end users (humans)


Mean/median age of the target users, for those reported, ranged
Human

from 65 to 85 years. Participants’ ethnoracial information was


n; female/male; education of MCI/ADRD
Mean age or age range; race/ethnicity

specified in only three studies [28,33,41]. Roughly equal numbers


69.7 yr; race/ethnicity NA; 2f/4m; edu NA

78.8 yr; race/ethnicity NA; 4f/0m; edu NA

of males and females participated (pooled sex distribution: 227


females vs. 247 males). Seven studies reported education level.
Alzheimer’s disease was the most frequently cited diagnosis
(n¼ 17). Fourteen studies included participants with either mild or
mild-to-moderate conditions; four included advanced-stage ADRD
[27,35,36,40]. Three neither reported specific diagnoses nor condi-
tion severity [32,41,46].

Activity supported with DHT


The second two components of the HAAT model (i.e., activity and
assistive technology) that characterize the scoping review studies
Setting where tech

are presented in Table 2. The DHT interventions for PwMCI/ADRD


was studied

targeted participation in various domains of activity – subse-


quently classified using occupation categories from the
Occupational Therapy Practice Framework 4th ed [53]. Several
(n¼ 12) were multi-focused. Most facilitated engagement in ADL
Home

Home

(n¼ 12), social participation (defined as activities involving social


interaction with others [53]; n¼ 11), and/or IADL (n ¼ 10). Other
DHTs facilitated participation in health management (n¼ 6), edu-
Exp 2: 20- and 30-s videos 9–15 d
Length of testing/exposure

Exp 1: 40-min sessions � 3–8 d

cation (n¼ 4) and leisure (defined as non-obligatory activities


engaged in during discretionary time; n¼ 2). None addressed
Portugal; SWE: Sweden; tech: technology; UK: United Kingdom; USA: United States of America; yr: year(s).

rest/sleep or work/volunteerism.
over �2 weeks

Digital health technology (assistive technology)


Although labelled as assistive technology, the HAAT model can
8 weeks

accommodate technology more broadly [19], and in this study’s


case encapsulates DHTs. Details of the researched DHT systems/
interventions are available in Table 2. Activity prompting systems
facilitated ADL, IADL and leisure activity completion [25,28,36]).
(n) of MCI/ADRD

4 (same subjects for

Videophone systems [42,49] and multimedia apps loaded with


Sample size

photographs, videos and music [24,34,40] fostered social partici-


both exp)

pation. Electronic day planners and organizers [31,44] and Web


portals/apps with curated health information [22,29] assisted with
IADL, education, and health management.
6

Two experiments: modified ABABAB

Hard technology. To further characterize technological compo-


Mixed methods: longitudinal, pre-

nents, the HAAT model differentiates hard and soft technology


[19]. The hard technology (i.e., tangible, physical components) was
research methods
Study design/

method; ABBA method

almost exclusively mainstream, regularly featuring touchscreen tab-


post, case studies

lets and smartphones [23,26,28]. Other less frequently reported


hard technology included smartwatches [34,41,48], Bluetooth ear-
pieces [36–38], computers [36,42,49], durable protective cases
[32,34] and easy-to-activate microswitches [36,42].

Soft technology: design. By nature of studying DHT, the soft tech-


Citation and country
Table 1. Continued.

nologies were much more prominent and varied. Soft technology


refers to external supports enabling individuals to learn and use
products successfully, such as instruction manuals, software, strat-
egies and other people [19]. Table 2 divides the DHT systems’ soft
DNK [48]
Context

JPN [25]

technology into design elements of the software, instructional


strategies implemented and technology partner descriptions and
Table 2. Characteristics of the Digital Health Technology Interventions Featured in the Scoping Review Study Phase, as Situated in the HAAT Model.
Digital health technology
(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
[28] Health management, FindMyApps is a self-service Web Touchscreen Personalized settings for app user profile One- to 1.5-h training to instruct PwMCI/ADRD Caregivers were trained on use of the app
education, social app containing a database of tablet interface including large font size, minimal text, use and caregivers on how to use the tablet and and how to provide continued support to
participation apps that support self- of non-animated pictures, Dutch FindMyApps selection tool; errorless learning the PwMCI/ADRD during the intervention.
management, social language-only app choices, simplified strategies were implemented (e.g., stepwise
participation, and meaningful gesture-control for operation, and more approach, discouraging guessing during task Research staff provided dyads with initial
activity engagement. detailed instructions in the help feature; performance, mistake-free repetition) to training on the tablet and app and
explanation button when help is needed. instruct on basic and complex tasks within the operated an email/phone helpdesk during
app; training was accompanied by a written the trial.
instruction manual; caregivers were trained in
using errorless learning techniques;
demonstration video uploaded to the tablet
covering tablet and app functions; phone and
email support was made available.
[41] ADL Visual mapping software Touchscreen Home screen automatically appears upon Visual mapping using keywords/pictures Caregivers identified ADL to be addressed
presented on a tablet to assist tablet interface task completion, showing next scheduled sequencing; caregivers trained to demonstrate and guided participants in carrying out
people with memory difficulties ADL; “Next” and "Previous" navigation and support; weekly tech support available. tech-supported ADL.
to complete ADL. buttons; customisable template library of
ADL visual maps, which caregivers were Research staff remained available for
trained to modify and personalize. troubleshooting.
[42] Social participation InspireD, a digital app featuring Touchscreen Minimalistic design; clear, bold colours Use of the app was demonstrated by research Carer involvement was optional. Carers
photographs, videos, and tablet interface segmenting the user interface; staff on a large screen and tablet. Set-up reported providing explanation and
music, facilitates joint combination of typography and instructions were provided to participants and demonstration support, “keeping track” of
reminiscence for PwD and iconography to guide navigation and help choices of layout, wording, and usability were device, implementing enrolment process,
their carers. users understand app functionalities; step- agreed upon. and troubleshooting device and software.
by-step linear approach for cognitively
challenging tasks (e.g., uploading photos);
non-stigmatizing language.
[39] ADL, IADL Customisable prompting app for Touchscreen Text, recorded voice, picture, and video Progressive, ongoing support based on Caregiver present during implementation to
multistep tasking. tablet interface prompts; researchers manually triggered participant need, including reiterating provide reassurance; supported
prompts when participant appeared instructions, pointing, and physical identification of meaningful tasks prior to
ready; built-in delay of “Next Step” button demonstration; different prompt types were intervention.
so users can process prompt without studied; user-led exploratory approach for one
being distracted by the idea of moving to individualized task. Research staff assisted with task completion
next steps; appearance, position, and as needed.
wording of a self-forwarding feature
allows user to move at own pace;
wording of self-forwarding feature
changed based on task (“Next Step” vs.
“Next Page”).
[47] ADL, IADL App-based prompter for Touchscreen Audio, picture, and text prompts; carers Device prompting and instruction manual Carer-user dyads worked as a team for the
everyday tasks. tablet interface could set up series of prompts, combining provision; phase 1 included tech training full tech implementation process
type of prompts used, tailored to PwD’s demo to user-carer dyad; phase 2 had no
needs and ADL; "Touch here for next demo, just reliance on intuitive design. Carer involvement varied (e.g., selection of
step" button leading to next sequential multistep tasks and step-by-
step; tablet set to only run the prompting step prompts).
software, all other apps were disabled to
decrease distraction.
[32] Social participation SENSE-GARDEN is a room within a Large-screen projector; Personalized digital media to trigger memory; Written instructions along with video tutorials on via the SENSE-GARDEN tablet app, formal
dementia care setting that aroma dispenser; interactive features to engage multiple how to set up and implement SENSE-GARDEN caregivers (professional care staff) worked
features digital tech and game controller; senses; large-screen projections that do sessions were provided to care staff; an online with family members of the PwADRD to
multisensory stimuli (e.g., stationary bike not require tech manipulation on the helpdesk for tech support was available prepare personalized SENSE-GARDEN
aromas, movement-based PwADRD’s part. as needed. sessions and facilitated the intervention.
games, music, large-screen
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA

projections) based on an Family members collaborated with care staff


individual’s life story, to engage to prepare SENSE-GARDEN sessions by
(continued)
7
8
Table 2. Continued.
Digital health technology
(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
PwADRD in socially supported, providing photographs, videos, and other
reminiscence activities. personal life story information about the
PwADRD. They were invited to attend
sessions with the PwADRD.

A technical team was made available through


an online helpdesk to receive and
S. L. SCHEPENS NIEMIEC ET AL.

respond to participants’ technical issues.


[30] ADL SmartPrompt is a smartphone- Smartphone Simple interface with large, clear text and Target users underwent a brief 10–15-min hands- Caregivers received training in how to
based reminder app designed touchscreen buttons; time-based auditory alerts/ on training prior to device use. Research staff programme tasks and reminders into the
to improve daily function in interface; device prompts to draw attention and trigger followed a detailed script that involved SmartPrompt app.
older adults with MCI/mild placed in a carrying task initiation; brief text indicating task verbalized instructions paired with
ADRD by addressing case to keep on the goals and instructions; regular reminders demonstration and practice of desired tasks. Research staff trained target users and
impairments in executive user’s person. and nudges; photo log of task completion Users received a handout to follow during caregivers in device use and
function to facilitate everyday to promote task tracking; points awarded verbal instructions. The handout included brief task completion.
task completion. for logging completed tasks to text aside images of task steps, highlighted
address motivation. with red arrows/circles to direct attention to
key details. Staff reviewed all instructions once
and prompted questions and repeated
instructions as often as participants needed
until understanding was confirmed. Caregivers
received a non-interactive, brief training
session with verbal instruction and
demonstration of device/task setup. They
completed a performance quiz to demo
understanding.
[46] Health Online patient portal with No specific hard Welcome Page describing main functionalities Accessibility and community interaction No specific tech partner involvement noted.
management, educational/ informational technology noted of portal using “clear font, calm considered in programme design; testing
education content, patient-provider backgrounds, and contrasting colours”; intuitiveness of design through hands-on tasks
communication tools, and clicking Welcome page functions leads (no training apparent).
social support features. users further into the website with
additional options from which to choose;
accessible language, animations, photos,
videos, and messaging.
[27] Education, health CAREGIVERSPRO-MMD is an online Touchscreen Curated information specific to PwD and At an in-home visit, PwD-carer dyads were Carers received their own tablet to access the
management, social social-media style platform to tablet interface their carers. provided 2 touchscreen tablets and instructed platform independently. They attended
participation provide informational support on how to use the CAREGIVERSPRO-MMD initial training and could attend optional
(e.g., articles on ADRD services platform. Optional group training sessions that group training sessions. Carers provided
and events) and social support included platform tutorials and written step- PwD assistance in using the platform.
(e.g., shared posts among by-step guides were offered 4 times per
friends) to PwD and month as follow-up support. Research staff provided initial and follow-up
their carers. trainings to dyads and groups of users.
[45] ADL, IADL AP@LZ is an electronic day Smartphone Predetermined list of appointment types Structured, 3-phased training sessions including Research staff led systematic tech training
planner and organizer app to touchscreen provided; all other apps on the phone are errorless learning: 1) Acquisition – participant sessions.
support memory for daily interface blocked; number of functions and options completes series of tasks given 3� in random
activity engagement. limited to reduce confusion; ringtone order; learning curve calculated based on Caregiver involvement required as part of
volume softened to decrease reluctance to number of correct responses. 2) Application – study to help as needed (e.g.,
use; pictures to accompany text info; role-play to act out real life scenarios when encouraging device carrying, reminding
auditory reminders/alarms. one would use the app; trainer omitted details participant to note activities in the app).
about events to prompt user to ask questions.
3) Adaptation–user inputted 5–6 real activities
into the app.
[36] Leisure Customized accessibility settings Touchscreen tablet Game page ready on screen upon Research staff led a singular, standardized, Research staff preset games on screen and
for two commercial game apps. interface; maximized presentation; notifications disabled. physical demonstration of gameplay encouraged participants to play
volume and accompanied by verbal instruction. independently if support was requested.
(continued)
Table 2. Continued.
Digital health technology
(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
brightness; stable, Solitaire features: consolidated control
durable case to methods to only drag-drop; option to
protect device and alter input method that triggers toolbar
power button from and to enhance visual emphasis of auto-
accidental shutdown prompts.

Bubble Explode features: simplified layout of


opening screens; minimized text feedback
that were distractors; auto-prompts for
user inactivity; audiovisual redirection
prompts after invalid input.
[31] ADL Visual maps, which included step- Tablet Pictures and keywords presented in a step- Nondescript training was provided by Research staff conducted initial training and
by-step guidance with pictures touchscreen by-step sequence to support ADL research staff. development of ADL maps.
and keywords, displayed on a interface performance; individualization through
tablet to assist users in self-selection of visual maps based on
organizing and accomplishing preferences and needs; option to include
ADL like bathing and dressing. images from one’s own environment to
personalize visual maps.
[43] IADL MEMENTO includes 2 Connected e-ink Large font; clear language; symbols and Guidance and support from a peer contact was When available, caregivers were included in
interconnected e-ink tablets touchscreen tablets; images connected to text-based provided while participants (and caregivers the in-home orientation to the system.
with handwriting recognition inconspicuous information; individualization using when available) tried the system’s Caregivers could monitor system usage
housed in a protective protective notebook personal photographs; design modelled functionalities at an in-home visit. and user location through a web
notebook cover, a commercial cover to avoid on familiar, analogue desktop calendars interface.
all-day worn smartwatch to stigmatization; and notebooks; information and
relay assistance, and a web smartwatch; stable reminders accessible on tablet/smartwatch Research staff (presumably) installed the
interface. The system assists charger for any time; smartwatch reads lists aloud system.
with everyday activities like easy handling and calls caregiver if needed; one-button
medication management, panic option to contact caregiver and A peer contact provided system orientation
scheduling, and shopping. relay user’s location. and close-contact support throughout the
Caregivers have access to a trial. Biweekly check-in calls/meetings
web interface for system setup were provided.
and monitoring.
[49] ADL Smartphone-based intervention for Smartphone with Audio, single-step instructions delivered Three to six “familiarization sessions” in which Research staff set up tech for use during
goal-directed ambulation and Bluetooth connected through headphones; praise statements at research staff used verbal and physical intervention and provided user training
object use that integrated a to headphones/ completion of task steps; repetition of guidance to ensure accurate task completion. and guidance.
walker-affixed smartphone with earpiece eliminated instructions until task completed or timed
Bluetooth and light sensors, need to interact out; preferred stimulation (songs, hymns, Families and day-centre staff provided
battery-powered lights, and with tech directly comic sketches) as determined by staff recommendations for preferred content to
audio stimulation delivered and families, delivered at successful be used as stimulation.
through headphones. task completion.
[33] ADL, leisure Mobile device interventions Smartphone/tablet Study 1: pre-scheduled activities with verbal Study 1: 3–4 introductory/ practice sessions with Study 1: activities were selected, adapted,
involving: connected to audio reminders to begin tasks; verbal 1- explanations and guidance from research staff and scheduled based on individual
Bluetooth earpiece or 2-step instructions separated by pre- at activity initiation to facilitate accurate task participant characteristics (authors did not
Study 1: customisable app that to eliminate need to determined individualized intervals based performance. specify by whom).
provides reminders and verbal carry mobile device; on participant and activity type; praise
instructions, delivered on a microswitch paired statements during task performance; Study 2: five “introductory sessions” led by Study 2: research and day-centre staff
tablet or smartphone and with activities and frequency of verbal researcher staff who used physical and verbal collaborated to determine preferred
paired to a Bluetooth earpiece, notebook computer reminders adapted based on guidance to familiarize participants and allow content to be used as stimulation;
to aid completion of daily characteristics of participants. them to experience prompts and research staff set up tech for participant
activities. performance-contingent stimulation. use and provided guidance during
Study 2: audio stimulation and verbal introductory sessions as needed.
Study 2: shoe-affixed microswitch prompts delivered through earpiece,
paired with a notebook eliminating need to carry a device; brief
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA

computer that delivered verbal prompts (1–3 words) delivered


stimulating audio (e.g., music) after lack of participant response;
(continued)
9
Table 2. Continued.
10

Digital health technology


(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
and verbal prompts through an participant-preferred stimulation (songs,
earpiece, to hymns, prayers) that triggered positive
encourage ambulation. reactions, delivered at successful
task completion.
[34] ADL, A smartphone programme that Smartphone; radio Verbal audio prompts/ encouragement if no Four to six practice sessions whereby research Families and day-centre staff recommended
health management made use of an audio-based frequency-code- response from participant (10–15 s); staff provided verbal and physical guidance so preferred content to be used as
smart-prompting app, radio tagged objects preferred stimulation (songs, hymns), participants could experience prompts and stimulation.
S. L. SCHEPENS NIEMIEC ET AL.

frequency code-tagged objects, delivered at successful task completion. performance-contingent stimulation.


and a “receiving” smartphone Research staff set up tech for participant use
and app that responded to and provided guidance during practice
participant performance, to sessions as needed.
encourage upper extremity
exercise with everyday objects.
[50] ADL, IADL Customisable app that provides Tablet paired to a Pre-scheduled, personally relevant activities Three to four practice sessions whereby research Research staff (presumably) selected relevant
verbal audio reminders and wireless Bluetooth with verbal audio reminders to begin staff provided explanation and guidance so activities and timing for completion; audio
instructions, delivered via a earpiece allowed tasks; single-step instructions strung participants could become independent in recorded verbal instructions; set up tech
tablet paired to a Bluetooth audio prompts to together in 2–5 sets at a time (dependent activity performance, as well as error at the beginning of each session; and
earpiece, to aid completion of travel with task, on cognition); programmed interval correction when activity could not proceed if provided guidance at initial sessions, error
everyday activities. while tablet length between instructions varied based left unaddressed. correction as needed, and praise upon
kept remotely on participant performance. activity completion.
[51] IADL Smartphone assistive device that Smartphone Verbal and acoustic direction prompts Scripted verbal instruction from research staff Research staff provided verbal instructions
facilitates autonomous touchscreen delivered at decision points (i.e., prior to releasing the device to the PwD. upon giving participants device, and
environmental navigation/ interface intersections); redirection provided if PwD verbal reassurance/encouragement and
orientation. made a wrong turn; use of photo-realistic redirection as needed.
images of environment (vs. abstract
maps); arrows to indicate correct
direction; audible sound when device
provides new info.
[35] Social participation Tablet app loaded with personal Tablet Media personalized to PwD and their carers. Research staff provided individualized training Significant others were responsible for
and stock multimedia (e.g., touchscreen (unspecified) to family members on adding uploading content to the app and
photos, books, music, family interface content to Memory Keeper and using the app facilitating use with the PwD during visits.
movies) to stimulate with the PwD. Paper-based instructions were
reminiscence and social provided in one case. Long-term care facility staff were also
interaction. encouraged to use the device with the
PwD.

Research staff provided user training


and guidance.
[26] Social participation Smartphone app that employs Smartphone; App automatically recognizes individuals and Research staff demonstrated the tech and Target users and caregivers participated as
facial recognition software smartwatch sends alert via smartwatch vibration, “trained” participants to use it in a single in- dyads; caregivers reported providing
linked to a smartwatch to assist displaying the person’s image, name, and person session; ongoing tech support explanation and demonstration support,
with identification of people relationship to PwD; high-capacity as needed. “keeping track” of device, implementing
during social encounters. database to enrol up to 1,000 individuals. enrolment process, and troubleshooting
device and software.

Research staff provided training and tech


support as needed.
[40] IADL, social Computer-aided telephone system Computer; telephone Switch activation prompts computer to Five practice sessions to familiarize patients with Phone call partners consisted of family,
participation with video-displayed images with video display; perform tasks such as listing available call the system (i.e., how to rely on audiovisual friends, and caregivers.
and a microswitch for device microswitch activates partners (1 at a time), calling a partner, or info presented and respond by switch
operation to enable system with minimal disconnecting a call; 4–5 s delay to allow activation); physical and verbal prompts from Research staff (presumably) set up tech (e.g.,
independent phone hand contact response time; lack of switch activation research staff if patient failed to activate identifying call partners,
call completion. prompts system to display next available system or make a selection. uploading photos).
call partner in sequence; programme
provides picture and verbal identification
(continued)
Table 2. Continued.
Digital health technology
(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
of call partner’s name or relationship to
patient; partner’s picture is displayed
during conversation.
[29] Social participation Mobile app enabling access to Touchscreen Sequential presentation of information – A nondescript “brief orientation to the program” Dyad structure consisted of PwD paired with
locally and globally relevant monitor interface theme selection leads to media categories was given to the conversation partner. No care-aide, who functioned as a
digitized media including (photos, music, videos), followed by training was described for the PwD. “The conversation partner and facilitated
photos, short video clips, and further choices in each category; the program is easy to use [ … ], no training engagement with tech (e.g., encouraging
music, to facilitate reminiscent- programme (not the users) randomly is required”. interaction with touchscreen, selection
based conversation. selects topics to promote equality of topics).
between PwD and conversation partner;
media included brief titles and captions to
prompt conversational engagement; use
of materials linked to shared cultural
heritage to trigger durable emotional
memories of younger years.
[44] ADL, IADL, health Support Monitoring and Reminder Touchscreen Built-in cognitive supports like appointment One-time, “thorough and accessible” introduction Carers were considered “main users”
management, Technology for Mild Dementia tablet interface reminders, a calendar, and brain games; to the tablet and app, first with the person alongside persons with MCI and were to
education (SMART4MD) health app user agency to share health and status with MCI and then the carer, in a clinical assist when needed. They were trained to
adapted for individuals with information with family/friends/carers; environment. The app was explained and its use the app at outset.
mildly impaired cognition to personalized health information; simplified use was demonstrated. Dyads practiced tasks
assist with daily task home screen with solid background and after the demonstration. Lingering questions Research staff provided introduction to the
completion through use of deletion of non-essential app icons; were answered before in-home testing began. equipment and app. Weekly support calls
reminders, cognitive support disabled notifications of other apps; A paper-based manual was provided. were offered to all persons with MCI-carer
tools/tasks, and horizontal/vertical lock; deactivated dyads and staff could be contacted
information sharing. screen lock. anytime.

[52] Social participation Individual Specific Reminiscence in Tablet Limited limiting apps on home screen to Nondescript “information technology and Each participant had at least one partner
Dementia (InspireD) tablet app touchscreen only those necessary; bright colours; large reminiscence” training was provided by who was a relative (spouse, child, or
is a home-based, personalized interface buttons; icons with brief text. research staff. grandchild) who would engage in the app
reminiscence programme to with them.
facilitate reminiscence and
social interaction.
[37] Social participation Two web-based apps, CIRCA and Tablet Sequential presentation of information – Basic instructions on tablet use and use of CIRCA Dyad structure consisted of PwD paired with
CIRCUS, enabling access to touchscreen theme selection leads to media categories and CIRCUS were provided to the care-aid. No professional carer. The carer functioned as
curated multimedia (e.g., interface (photos, music, videos), followed by training was described for the PwD. a conversation partner, facilitated
pictures, videos, music), either further choices in each category. engagement with tech, and progressed
generic or personalized, conversation when necessary.
respectively, to facilitate CIRCA: the programme (not the users)
reminiscence and conversation. randomly selects pre-established topics to Research staff (presumably) set up tech (e.g.,
promote equality between PwD and uploading personalized pictures).
conversation partner and constrain choice
thereby dissuading repetition of same
conversations.

CIRCUS: includes personalized categories and


uploadable multimedia (photos, videos,
digitized materials) organized into a
digital memory book to activate
early memories.
[53] Health management StandingTall a fall prevention Tablet Audiovisual-based demos of desired tasks; A research physiotherapist introduced the Caregivers participated in the system
exercise programme consisting touchscreen automated progress tracking; in-app programme to the participant-caregiver dyad orientation and assisted participants with
of balance training exercises interface exercise scheduling; built-in coaching and at a home-visit. App features “were explained app usage during exercise sessions,
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA

and assessment delivered via automated tailoring of exercises and and demonstrated”. Phone support and information entry (e.g., perceived exertion
intensity based on user-inputted self- scheduled and as-needed home visits were ratings), and safety monitoring.
(continued)
11
Table 2. Continued.
12

Digital health technology


(Assistive technology)
Soft Technology
Activity System/intervention Design elements to maximize Technology partner(s) description and
Citation Targeted activity description Hard technology performance/engagement Instructional strategies involvement
tablet, with on-screen text, ratings of exertion; automated time-out made available to address issues with the
video demos, and voice-overs. and session closure if failure to interact programme. Instructions to complete exercises A research physiotherapist introduced the
with the app. included onscreen text, video guides/demos, programme and equipment to the dyads
and voice-over. and provided in-person and phone-
based support.
[48] IADL Use of Smartphone Self-report app prompts user to input info; Devices were introduced and personalized at a Live-in caregiver involved in all aspects of
smartphones þ smartwatches touchscreen standard home screen displaying time, tech orientation visit for the participant and tech use (e.g., training, implementation,
S. L. SCHEPENS NIEMIEC ET AL.

loaded with an activity and interface; appointments, and step count can be caregiver. Participants were shown how to use data reporting).
location monitoring app, a smartwatch individualized (e.g., add a picture dialling the apps. Instructions were repeated at a 1-
calendar app with appointment feature); data collection app ran in week follow-up visit. Tech support was Research staff (trained in psychology)
reminders, and a self-report background without needing user available via phone and at visits as needed. collaborated with participants to develop
app to provide personalized engagement to track activity and location An illustrated manual was provided. individualized goals, and provided tech
support of daily activities and data; Google Calendar was one app support as necessary.
objective monitoring of goal- selected for its simplicity and provided
based activity behaviours. to all.
[25] ADL, IADL, social Two videophone-based systems: Touchscreen PC PC remotely booted by conversation partner; No instruction for participants or caregivers Research staff (systems engineer) set up and
participation (1) remote reminiscence interface with auto-launch of software when PC turned was reported. maintained tech in partner’s and
conversation system to web camera on. participant’s home for study length.
promote conversational
engagement and psychological Remote Reminiscence Conversation Caregiver ensured tech stayed powered on
wellness and (2) schedule System: personal photos scanned onto PC for study length and observed and
prompter system to assist PwD and used by partner during conversation. reported on participant behaviours.
to perform household tasks.
Schedule Prompter System: audiovisuals (i.e., Remote Reminiscence Conversation
“beautiful pictures and soothing/ nostalgic System: research volunteer functioned as
music”) to draw users’ attention to PC; conversation partner and remotely
short 5-min videos to motivate (i.e., old activated tech; caregiver supplied photos
music videos, motor exercise video, photo (presumably);
videos of participant) followed by caregiver þ partner þ participant
scheduler video to cue household task collectively scheduled calls.
completion (e.g., take medication,
prep meal) Schedule Prompter System:
caregiver þ memory clinic
therapist þ participant selected and
scheduled tasks. Therapist or caregiver
was videoed explaining tasks.
Notes: AD: Alzheimer’s disease; ADL: activity/activities of daily living; ADRD: Alzheimer’s disease and related dementia; app: application; demo(s)¼demonstration(s); IADL: instrumental activity/activities of daily living;
MCI: mild cognitive impairment; PC: personal computer; PwMCI/ADRD: person(s) with dementia; QoL: quality of life; tech: technology.
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 13

Figure 1. Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) flowchart of the screening and inclusion process of literature for the scoping
review phase.

involvement. The DHTs investigated shared three primary design Researcher recommendations to advance the science
features: prompting software, customisability and multimedia/mul- Commonalities emerged from an analysis of the recommendations
tisensory experiences. Prompting software was implemented to researchers had made to advance science in DHT for PwMCI/
address device inactivity [32], to provide redirection and support ADRD, which could be similarly organized within the HAAT model
user decision making [39], and to simplify device navigation [23]. constructs. All but one study [46] noted future research should
Customisability enabled individualized tailoring to enhance motiv- entail enhanced study design contexts. They recommended lon-
ation to engage, such as by offering menu options from which ger, larger-scale trials with more robust methodologies
users could select meaningful activities [26]. Multimedia and mul- [23,33,47,48], as well as closely studying integration of DHTs into
tisensory experiences, such as use of soundscapes [27], videos real-life contexts such as within routine rehabilitation processes
[29,43], and vibration alerts [41] were also used to maximize [31] or environments that pose higher safety risk [39]. Researchers
attention and engagement. also recommended more attention to care partners situated
within PwMCI/ADRD immediate context by finding ways to reduce
Soft technology: instructional strategies. Descriptions of soft tech- their support burden [27,40], studying their wellbeing and care
nology related to instructional strategy supports were frequently burden outcomes [31,45,47], and gathering their perspectives on
brief; four studies [33,43,45,49,] included non-descript summaries practicality of the DHTs in daily context [35].
or made no mention of them at all. Popular reported (or infer- Meeting human needs was also at the top of researchers’
able) strategies included hands-on practice [28], training a second minds. They acknowledged the progressive, variable nature of
person involved in technology implementation [44], demonstra- ADRD diagnoses poses a challenge to DHT development [45] and
tion [22] and prompting/cueing from research staff [39]. Four that future DHT should accommodate diagnosis subtypes, comor-
studies [22,26,44,48] featured a supplemental user manual. bidities and changing needs as cognition and function decline
[22,28,32,40]. They stated more time should be spent on personal-
Soft technology: technology partners. A partner to support target ization and tailoring DHT to match what PwMCI/ADRD truly desire
users with the DHT during the intervention was described in all from the technology and to ensure it fits within their daily lives.
but one study [29]. Research staff and care partners frequently Others also suggested measurement of additional person-centred
served together as technology partners, with level of involvement outcomes such as social engagement [48], comfort with the DHT
varying from minimal [32] to substantial [41]. Research staff most [41], physiological benefits [35], mood [42] and perceived draw-
commonly provided the DHT training and technical support [49]. backs of the technology [ 38]. In only a few studies, broadening
Care partners, too, played a role in troubleshooting [24], encour- the sample diversity on key levels – socioeconomic status, race/
agement to engage with the technology [25], and technology ethnicity, targeted geographical regions, international participa-
customization [41]. tion, stages of ADRD – was noted as important [26,27,41,43,44,].
14 S. L. SCHEPENS NIEMIEC ET AL.

Figure 2. Common components of research studies addressing activity participation-supportive digital health technology for PwMCI/ADRD, as situated in the HAAT
Model. AD: Alzheimer’s disease; HAAT: Human Activity Assistive Technology; IADL: instrumental activity(ies) of daily living; PwMCI/ADRD: person(s) with mild cognitive
impairment or Alzheimer’s disease and related dementias; tech: technology; yr: years.

Advancing science in the activity domain was not discussed by experience, roles held and settings represented by experts. All
many aside from two studies with intentions to expand the capa- experts held multiple roles in their practice, ranging from clini-
bilities of the DHT to address more variety of activities [28,35]. cians and researchers to advocates, technology consultants and
Regarding future research recommendations for the studied assistive personal caregivers. Their practice settings spanned the con-
technology, researchers supported continued involvement of PwMCI/ tinuum of care, varying from outpatient and hospitals to commu-
ADRD in ongoing DHT design and development processes nity centres and home health. Figure 4 provides a high-level
[22,28,34,41,42,], including those with more advanced stage ADRD [27]. summary of the expert stakeholder interview phase results as situ-
Desired upgrades to the DHTs’ designs and functionalities were specific ated within the HAAT model.
to each study, ranging from adjusting timing of prompts [39] and mak-
ing onboarding less cumbersome [41], to increasing button colour con- Activity participation supported with technology
trast [24] and supplementing audio-alone elements with audiovisual Experts discussed several ways older PwMCI/ADRD were presently
options [42]. Several researchers planned to explore ways to reduce reli- using or seeking assistance to utilize mainstream technology for
ance on soft technology supports from others, such as by refining activity participation. Most commonly was technology for social
accompanying training for target users and/or tech partners participation and leisure as recalled by one expert: “A lot of them
[22,24,28,31,39,40], introducing more system automation [27], and do Words With Friends. Or they also use it [smartphone] to just
developing a more context aware (“smarter”) system [22,24,28,31,39,40]. stay connected with family, especially right now [during COVID-
19]. They do a lot of [ … ] apps that you can connect with people
on, like WhatsApp or Facebook”. Experts noted increased use of
Phase II – Expert stakeholder interviews
wearables and virtual platforms and portals for health manage-
All experts (N¼ 17) had �4 years of experience working/practic- ment. “I have several clients who call me just to get on their
ing/volunteering with older PwMCI/ADRD; most had 12þ years Zoom yoga classes”. Technology-supported IADL mentioned were
(n¼ 7). Respondents were primarily female (n¼ 14) and from the managing finances on banking websites, general IADL manage-
USA (n¼ 16), representing Western (n¼ 8), Northeastern (n¼ 5), ment via digital alarms/reminders, and community mobility (e.g.,
Southeastern (n¼ 2) and Midwestern (n¼ 1) states. One partici- bus transit apps). Other activity categories such as sleep, basic
pant was from Ontario, Canada. Regarding sub-types of condi- ADL, work/volunteering and education were not discussed.
tions/diagnoses of the older adults with whom the experts
interacted, all reported working with persons diagnosed with MCI Influential factors and strategies for technology implementa-
and AD. The next most common sub-types experts reported see- tion/uptake
ing in their practice were vascular dementia, Parkinsonian demen- Experts described a number of factors and considerations that
tia and mixed dementia. Figure 3 depicts the breadth of should be made – relevant to the remaining domains of the
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 15

Figure 3. MCI/ADRD-relevant practice settings represented and roles held by interviewed expert stakeholders. Several experts reported multiple roles across various
contexts in their professional and personal histories.

Figure 4. Expert stakeholder viewpoints of influential factors relevant to digital health technology, as situated in the HAAT Model. HAAT: Human Activity Assistive
Technology; IADL: instrumental activity(ies) of daily living; PwMCI/ADRD: person(s) with mild cognitive impairment or Alzheimer’s disease and related dementias;
tech: technology.

HAAT model – as well as supportive soft technology strategies don’t want to participate [in research] is because they say, ’Oh
that were deemed influential to technology implementation and well, I don’t have Internet,’” remarked an expert who conducts
uptake in PwMCI/ADRD. technology-based research in rural communities. Similarly, an
expert who serves older adults with lower socioeconomic statuses
Contextual factors. Experts highlighted several contextual factors highlighted cost as a barrier: “Not everyone has an unlimited data
dictating technology feasibility and uptake. They posited society’s plan, [ … ] a lot of health apps tend to use up [data]”. Availability
limited understanding of MCI/ADRD conditions has led to ineffect- of support systems as well as timely and preventive support,
ive or unusable products for PwMCI/ADRD. They also explained a including assisting novice users or those with higher levels of cog-
nexus of access, availability and affordability as highly influential. nitive impairment in technology navigation, was a broad need
Reliable and affordable internet access, especially for people from identified. “[I]n the early stages of cognitive decline [ … ] our cur-
rural regions, was a key issue. “The number one reason people
rent way of supporting someone is kind of watchful waiting. [ … ]
16 S. L. SCHEPENS NIEMIEC ET AL.

We just kind of wait for something to happen before we demonstration with visual aids. One expert draws on abilities indi-
really help”. viduals are likely to retain despite cognitive decline, by incorpo-
rating multimedia: “[ … ] using the skills that this person actually
Human factors. Users’ prior experience with technology, especially has—they are losing a lot of words—so whenever I communicate
before cognitive decline, was a frequently cited human determin- [ … ] I use rhythm and music and visual cues”. Others capitalized
ant of use. Users “pick it up” easier with previous familiarity. on group dynamics, engaging PwMCI/ADRD in dyadic or small
Some described inexperienced users’ anxieties: “The number one group learning sessions. Repetition, consistency, and routine also
fear people have is that they’re going to destroy it [device] [ … ] surfaced as key. One expert repeatedly introduces technology
they’re so afraid I’m going to push this and try it and it’s gonna “the same time every day [ … ,] routine is very important for this
go kapoof on you [ … ]”. Along this vein, diagnosis type and asso- population”. Another explained making new technology compre-
ciated cognitive capacity was emphasized: “It depends on the per- hensible to PwMCI/ADRD by linking it to individuals’ lived
son [ … and] type of dementia they have, [ … ] it is so dependent experiences.
on their abilities”. Experts described how memory issues could Additionally, experts touted intuitive instructional design (i.e.,
impede technology use, such as recalling the necessary proce- structuring content to eliminate the need to think about how to
dures to operate the technology/software (e.g., steps to delete an respond) as beneficial. Using plain language, step-by-step instruc-
email) or remembering to use the technology at all (e.g., donning tion, and simplified content was recommended, as true for one
a sleep-tracking smartwatch before bedtime each night). Other expert’s client who wanted to learn his iPhone’s calendar app:
human factors were said to play a role, including motivation and “We were able [ … ] to break down steps and write them for him
interest to use technology and having a clear understanding of to follow”. Even with those strategies, however, the expert said
the value technology would add to one’s life. If the technology the learning process was “overwhelming” for that client. Other
“helps that person do what they want to do, it’s meaningful, and strategies mentioned included scaffolding, errorless learning,
it has a positive outcome, that is going to motivate [ … ] chunking, guided discovery, monitoring frustration and limiting
the person”. instructional time.
Consideration of user motivation carried through to experts’
Soft technology: design factors. Experts criticized lack of accom-
instructional approaches. If a technology’s meaningfulness to
modations for PwMCI/ADRD’s unique needs when it came to cur-
activity participation was not immediately apparent, some would
rent technology design – mainstream not assistive technology
first educate users about what the tool offered – “letting people
was referenced and discussions centred on soft not hard design.
know [ … ] what is it and why is it important” – before advancing
“Older adults are fighting not just what they need to learn that’s
to device operation. Another stated, “I would get their attention
new, but they’re also fighting the challenges of learning it on
to see the value of it for them to do other things in their life”.
something that might not be well designed for them. [ … ] Things
One expert posited motivation and complicatedness of learning
as basic as just the size and the style of what is being communi-
technologies are inextricably linked: “If you have more motivation,
cated through a digital device can have a huge effect on their
you can deal with greater complexity. [ … ]People with dementia
frustration tolerance of learning something new”. One expert
are figuring out how to use Zoom because it’s a way of being
remarked the problem stems from failure to involve PwMCI/ADRD
connected socially”.
in technology development: “We are designing it for what we
imagine they want rather than what they actually might want”.
Soft technology: technology partners. Embedded in experts’ dis-
Experts’ recommendations to improve technology design cen-
cussions of soft technology instructional practices was engage-
tred on simplification. One expert highlighted Jitterbug, a smart-
phone for older adults, as ideal to ease clients’ transition to new ment of technology partners – typically care partners, family
mobile technology. “It’s a little more simplified [ … ,] very organ- members or experts themselves. They described technology
ised [ … and] designed for ease of use”. They cautioned, however, implementation in PwMCI/ADRD as a dyadic, collaborative process
to make technology “simple but not childish” and to balance sim- initiated immediately upon introduction of new technology. “You
plicity and interactivity: “That’s counterintuitive to a lot of design- just need to make sure there’s a person to do it [operate a
ers who want to make it [ … ] active and interesting, but we want device] with them. Everything you’re going to do is gonna be
it very simple”. Another expert suggested the technology’s con- together”. Some pointed to the serious challenge this poses for
tent should minimize the need for abstract thinking, a challenge PwMCI/ADRD who have limited social support (a contextual
for PwMCI/ADRD. Experts also emphasized technology should be consideration).
designed to serve a meaningful purpose, assisting people with Experts commonly involved care partners in didactic sessions,
valued activities. In reference to physical activity-supportive tech- offering firsthand exposure of the “dementia experience” with
nology, “We can’t just assume that we know exercise is important technology use. They identified "troubleshooter" as an important
for them”. They suggested customisable components to help role of the partner that helped minimize users’ cognitive load.
accommodate differences in users’ needs, functional level and The assistant must be “friendly” and able to “communicate in a
context. The iPhone’s facial recognition feature – to easily unlock way they [PwMCI/ADRD] understand”. Experts remarked technol-
the phone – was an example given of customisation fostering ogy partners supplement shortcomings in design features by pro-
ease-of-use. Like simplicity, a caveat was noted: “Customisation is viding real-time prompting and encouragement of device usage.
a tricky one. If it’s done well, it can be helpful and not well, it can When users have more advanced ADRD, care partners serve as
be so confusing”. surrogate deciders of what technology would be meaningful to
the user: “It’s going to probably be the family caregiver who sees
Soft technology: instructional strategies. Experts described several this need”. Finally, having someone available to monitor use over
soft technology instructional approaches they utilize to support time was deemed critical: “[ … ] there needs to be another care
learning and functional use of technology by PwMCI/ADRD. partner [ … ] who is going to ensure that this person remains safe
Popular didactic techniques included modelling and as their cognition continues to decline”.
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 17

Discussion Characterizing PwMCI/ADRD as target end users


Informed by a scoping review and expert interviews, and analysed Transparency in characterizing the basic human factors of the
through the lens of an occupation-based, person-centred frame- study samples was lacking in the scoping review research. Details
work, this study aimed to collate, summarize, and characterize typically centred on age, sex/gender, broad diagnosis or condition
evolving research and practice featuring activity participation-sup- severity and occasionally educational level. Other key sociodemo-
portive DHT for direct use by older PwMCI/ADRD. Application of graphic characteristics including race/ethnicity, socioeconomic sta-
the HAAT model in this study provided a framework that tus or residence locale were not reported, save for four studies
acknowledges the fundamental interconnectedness among [28,33,41,43]. A review of mHealth apps for PwADRD noted similar
PwMCI/ADRD, the activities in which they desire to participate, omissions in the literature [16]. This leaves a limited understand-
and the DHT that can enable such participation, all with mindful- ing for whom present-day DHTs are being designed and devel-
oped and whether or not key person-centred, as well as
ness to the overarching influence of the sociocultural, environ-
aforementioned contextual factors influential to DHT access and
mental and institutional contexts. In characterizing and cross-
uptake, are being considered.
comparing both the ongoing research practices and expert expe-
Experts highlighted human factors (mostly different from those
riences, findings suggest both convergences and points of depart-
characterizing study samples in the scoping review) that afford
ure relevant to each domain of the HAAT model. Exploring the
certain PwMCI/ADRD advantages to successful technology use:
strengths and opportunities of growth in each area could expand having familiarity and comfort with technology prior to diagnosis,
DHTs’ potential to account for and better meet the needs of higher cognitive functioning and relevant motivation and interest
diverse MCI/ADRD communities in real-world contexts. to use the technology. Indeed, each of these factors has been
identified as influential to technology use in an ADRD population
[16]. Honing on diagnosis and cognitive function characteristics,
in no instances did experts describe end users with moderate-to-
Nature of the context severe ADRD of any diagnosis type; the “digital disability divide”
facing persons with more severe impairments [63] were apparent
The scoping review revealed that within the research and devel-
from their reports. In contrast, several scoping review DHTs under
opment context of DHT for activity participation and use by
development provided high-level assistance appropriate for per-
PwMCI/ADRD, work is still in its early stages despite more than a sons with moderate-stage impairments and, in a few rare studies,
decade’s worth of research. Only three studies presented pilot severe cognitive deficits. In these studies, the DHTs addressed sig-
randomized controlled trials; all others described preliminary feasi- nificant barriers to engagement in ADL and IADL in particular –
bility work with small sample sizes. This finding is aligned with ones also noted in a review of mHealth usability barriers experi-
reports from past reviews of technology relevant to the MCI/ enced by PwADRD [14] – such as task sequencing and decision-
ADRD community [54,55]. Moreover, studies almost exclusively making, offering solutions like video-based, step-by-step task
took place in Western regions of the world. This latter limitation guidance. DHT options to address activity participation for this
is not uncommon: Eastern countries’ research, aside from subset of PwADRD with greater cognitive impairments are import-
Australia, is not typically represented thus resulting in Western- ant, as quality of life is closely linked to ADL performance in later
biased interpretations of MCI/ADRD technological advancements stages of ADRD [64]. Some researchers of the scoping review also
[5]. A 2015 review of assistive technology for ADRD care identified endorsed directing future DHT development towards those with
at the time a need for more cross-cultural studies to broaden the greater impairments. Continued technology development to assist
applicability and uptake of technology being developed across persons with more advanced ADL disability, and making it widely
the globe [8]. At the more meso/micro environmental level, and accessible is vital, as demand for ageing in place grows and care
as a key strength, research frequently was conducted in the pla- partner support ratios decline [65].
ces where PwMCI/ADRD lived or at community venues, whether
that was in private homes, long-term care facilities or older adult Nature of the activity participation supported
community centres. This is important as it provides more eco-
logically valid insights and sets the stage for easier transfer of the Two activity participation domains supported with technology –
DHT from a research to real-world context [56]. social participation and IADL – emerged as high on the list of
Consideration of social contextual factors was of primary con- commonly reported and overlapped to varying degrees across the
two study phases. DHT enabling social participation was particu-
cern to experts, but those did not appear as salient in the scoping
larly desirable to older PwMCI/ADRD, as accounted by experts
review studies. Experts described issues of access, resource avail-
who described PwMCI/ADRD using mainstream technologies to
ability and affordability as strongly influential to why more tech-
stay connected with friends and family. This finding aligns with
nology was not taken up in the MCI/ADRD community. Although
research that consistently shows staying socially active is highly
many of the DHTs featured in the scoping review relied on widely valued by PwMCI/ADRD [66]. Unfortunately, social participation
available mainstream technologies (i.e., tablets and smartphones) remains a top unmet need in this population [67]. One promising
that are generally affordable in comparison with assistive technol- pathway to improving social participation opportunities for
ogies [57], access may still be out of reach for many. For instance, PwMCI/ADRD and meeting human needs at multiple levels [9] is
older adults with socioeconomic challenges and from commun- through appropriately designed technology that enables one to
ities of colour – groups with disproportionate risk and prevalence compensate for functional challenges with social interactions in a
of MCI/ADRD [58,59] – oftentimes lack familiarity with and oppor- non-stigmatizing manner [67]. The scoping review demonstrated
tunity to experience mainstream and assistive technology, despite researchers are steadily working towards this goal, developing
eagerness to engage [60–62]. Digital inequities like these stem- digital assistive technologies ranging from a computer-aided tele-
ming from PwMCI/ADRD social context, as noted by the experts, phone system with caller video display [42] to reminiscent-based
are likely to continue perpetuating the digital divide [12,13]. conversation starters featuring personalized multimedia [43].
18 S. L. SCHEPENS NIEMIEC ET AL.

Youasaf and team’s review of research-based and commercial design/functionalities. Unfortunately, the latter level of support
health apps for PwMCI/ADRD had noted “leisure and socialization” has been linked to care partner burden [75] and older adults’ feel-
apps – the one common category to our DHTs discussed – ings of dependency [64], highlighting the imperativeness of bring-
although not as frequently available as apps for activity prepara- ing this research-based DHT into mainstream use.
tory purposes (i.e., cognitive training) or for care partners, have Consideration of sensory experiences was a focal point of tech-
begun to penetrate the commercial market [7]. nology design to facilitate activity participation. One expert
Technology to manage one’s IADL with autonomy was explained stimulating auditory senses using technology that deliv-
addressed in both study phases, but with different emphases. ers sound and music promotes learning and enjoyment, a similar
Experts reported persons with mild cognitive deficits were using position held by Dixon and Lazar [76]. Likewise, many research
mainstream technology to organize their routines (e.g., electronic teams in the scoping review recognized the importance of multi-
calendars) and to provide reminders to complete activities like modal interaction and sensory stimulation. Use of touchscreens
taking medication or attending appointments. Electronic calendars with haptic feedback, music to reward performance, and personal-
have shown to be useful in promoting ADL engagement in ized photos to stimulate conversation were just a few multisen-
healthy older adults and PwMCI/ADRD [68]. Digital assistive tech- sory features built into the DHTs’ designs and likely enhanced
nologies [69] compensating for cognitive impairments beyond motivation to engage. Along a similar vein, others have found use
prospective memory lapses relevant to IADL were not discussed of touchscreen tablets in an MCI/ADRD population promotes par-
by experts, but were regularly featured in the scoping review ticipation, social engagement and enjoyment [73]. Limiting sen-
studies. As noted above, research-based DHTs were available to sory distractors, such as icon clutter on home screens, was
help compensate for the more advanced cognitive barriers (e.g., another successful technique described in our study. Researchers
recognition, decision-making, thinking speed [14]) that can cause have recommended “intentional sensory stimulation”, whereby
obstacles to IADL completion. technology affords tailoring directly by the MCI/ADRD user for an
Activity participation domains addressed in neither study optimal sensory experience, as a key design component for future
phase included rest/sleep and working/volunteering. Because technology [76]. The aforementioned customisability of the
sleep disturbance is highly prevalent in the MCI/ADRD [70], there reviewed DHT suggests developers are moving in the
is ample opportunity and need for researchers and commercial right direction.
developers alike to produce innovations in DHT supportive of
quality sleep. Likewise, volunteerism proffers occasions for highly Instructional strategies
meaningful, productive and social activity engagement, while Although the above design recommendations/practices by experts
building resilience and slowing functional decline [71,72], but and technology developers overlapped substantially, soft technol-
PwMCI/ADRD are often excluded from such activities as they are ogy instructional strategies to support learning, motivation and
typically structured for high-functioning individuals [71,72]. DHTs functional use of technology appeared critical primarily to experts.
that could enable PwMCI/ADRD to more readily engage in volun- They spoke at length about successful instructional techniques,
teerism in promotion of quality of life is an avenue ripe for ranging from step-by-step guidance and demonstration with vis-
investigation. ual aids, to enfolding learning activities into routine, and capitaliz-
ing on intrinsic motivators to learn new technology. These
strategies have been recommended by others to support learning
Nature of the activity participation-supportive DHT and
in people with cognitive impairments [77–80] and are consistent
relevant strategies
with those summarized in a review of considerate mHealth design
A unique angle to our study was the focus on PwMCI/ADRD, for PwADRD [14]. The scoping review studies, on the other hand,
rather than care partners, as end users. Accordingly, we paid spe- provided little detail of instructional activities and supports, save
cial attention to characterizing the DHT (both hard and soft for one team [31,81], and yet acknowledged refinement of train-
technological components and strategies) implemented with ing and instruction as important for future research. This is a vital
these target users – information noted by others as relatively omission in the literature for DHT implementation in MCI/ADRD
absent in the literature [73]. Hard technology identified in either populations. Long-standing is research showing technology adop-
study phase was almost exclusively mainstream (i.e., tablets, tion in older adults is strongly influenced by the training and sup-
smartphones, smartwatches and Bluetooth), with only reference port they receive [82]. This warrants not only the development of
to protective cases as adaptive hard technology. The crux of DHT technology training protocols that accommodate new-generation
characterization comes in discussion of the soft technol- technologies and evolving user needs [83] as older people grow
ogy components. increasingly accustomed to integrating technology into everyday
life [84], but also greater transparency in what instructional strat-
Soft technology design egies and protocols involve.
Customisability to accommodate users’ unique needs, combined
with simplicity for ease of use was design characteristics encour- Technology partners
aged by experts and present in the reviewed DHT. Careful atten- Inclusion of technology partners was paramount in both study
tion to assistive features also crosscut the study phases. DHTs phases, aligning with research suggesting that having an available
within the scoping review studies frequently included auto- technology support network is key for uptake in older people
prompting – whether to encourage use, to direct attention, or to with memory complaints [85], particularly for those with more
assist in step-by-step task completion – to supplant the need for severe ADRD [17]. Experts described care partners (most often) or
human ADL support often shouldered by care partners [74]. themselves as assuming tech-support responsibilities, whereas
According to experts’ descriptions, tech-based prompting used by research staff aided by care partners frequently acquired those
PwMCI/ADRD was limited to reminder alarms to trigger activity duties in the scoping review studies. Experts characterized appro-
completion (e.g., taking medication); more advanced prompting priate technology partners as friendly, knowledgeable with device
was supplied by care partners to offset shortcomings in product use, available and communicative. Indeed, access to the just-right
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 19

technology partner and tech support is critical, as older adults’ detailed accounts of soft technology instructional protocols
decisions to abandon technology is partly informed by dissatisfac- adopted to ensure success of DHT implementation are just a few
tion with available assistance [86]. As researchers bring products examples of where directed efforts can be made to continue
to market, they will also need to consider who can feasibly advancing the science and mainstream penetration of DHT sup-
replace research staff to fulfil tech-support roles. Shifting such portive of activity participation in PwMCI/ADRD.
responsibility to care partners could threaten long-term sustain-
ability given additional burden on care partners’ loads is a known
Disclosure statement
barrier to older care recipients’ technology use [87], and an area
researchers in the scoping review noted required further No potential conflict of interest was reported by the author(s).
investigation.
Beyond tech support, experts discussed the need for technol- Funding
ogy partners to monitor technology use over time, particularly in
terms of safety – an acknowledgement of ADRD’s progressive This work was supported by the National Institute on Ageing of
impact on function [88]. In contrast, this topic was addressed in the National Institutes of Health under award number R21
only one team’s work [31,81] in the scoping review studies. AG052838-02S1. The content is solely the responsibility of the
Researchers’ lack of attention to the progressive nature of ADRD authors and does not necessarily represent the official views of
may be a limitation of the short-term study designs or an over- the National Institutes of Health.
sight of designers to consider the effect such decline could have
on long-term use of DHT. Failure to consider this may have
harsher consequences for socio-demographically disadvantaged ORCID
groups. For instance, older adults with MCI and low education lev-
els are at risk for greater decline in everyday technology use and Stacey L. Schepens Niemiec http://orcid.org/0000-0002-
progression to dementia – patterns of use are not solely dictated 3766-7015
by diagnosis [89]. Those from minoritized sectors should be moni-
tored and more closely supported to avoid deprivation from
meaningful activities that can be enabled through technol-
References
ogy [90]. 0[1] World Health Organization. Dementia. Geneva, Switzerland:
World Health Organization; 2020.
Limitations 0[2] Mitchell AJ, Shiri-Feshki M. Rate of progression of mild cog-
nitive impairment to dementia–Meta-analysis of 41 robust
This two-phased study is limited in several ways. The scoping inception cohort studies. Acta Psychiatr Scand. 2009;119(4):
review phase involved multiple database searches conducted sev- 252–265.
eral months apart due to logistical delays from COVID-19 that 0[3] Landeiro F, Walsh K, Ghinai I, et al. Measuring quality of
severely extended the timeline of the review. Limited resources life of people with predementia and dementia and their
prohibited us from exploring non-English publications and grey caregivers: a systematic review protocol. BMJ Open. 2018;
literature. Qualitative content analysis from the expert interview 8(3):e019082.
phase was limited to surface-level investigation. More in-depth 0[4] Law M. Participation in the occupations of everyday life.
interviews with detailed qualitative analyses are warranted. Am J Occup Ther. 2002;56(6):640–649.
Although interviewees represented a variety of professions and 0[5] Asghar I, Cang S, Yu H. Assistive technology for people
held multiple roles as stakeholders who practice within the MCI/ with dementia: an overview and bibliometric study. Health
ADRD community, most were recruited from the United States of Info Libr J. 2017;34(1):5–19.
America, and only one person had a dual experience of being an 0[6] Mancioppi G, Fiorini L, Timpano Sportiello M, et al. Novel
expert stakeholder and having an MCI/ADRD diagnosis. technological solutions for assessment, treatment, and
Accordingly, expert views presented in this paper are limited assistance in mild cognitive impairment. Front
almost exclusively to those of Western perspective and were not Neuroinform. 2019;13:58.
end users of the DHT. A wider net of expert stakeholders across 0[7] Yousaf K, Mehmood Z, Saba T, et al. Mobile-Health applica-
the globe, as well as a deep dive into the first-hand lived experi- tions for the efficient delivery of health care facility to peo-
ences of PwMCI/ADRD using DHT for activity participation would ple with dementia (PwD) and support to their carers: a
expand the work presented here. survey. Biomed Res Int. 2019;2019:7151475.
0[8] Evans J, Brown M, Coughlan T, et al. editors. A systematic
review of dementia focused assistive technology.
Conclusion
International conference on human-computer interaction.
Aligned with the international call for research on technology Berlin, Germany: Springer; 2015.
application for ADRD management [91,92], this study has offered 0[9] Koo BM, Vizer LM. Examining mobile technologies to sup-
a broad sweeping summary – through the lens of an occupation- port older adults with dementia through the lens of per-
based person-centred framework – of the nature and crossover of sonhood and human needs: Scoping review. JMIR Mhealth
ongoing research and real-world practices regarding activity par- Uhealth. 2019;7(11):e15122.
ticipation-supportive DHT for PwMCI/ADRD. Our study points to [10] Arighi A, Fumagalli G, Carandini T, et al. Facing the digital
remaining opportunities for growth in this arena. Transparent divide into a dementia clinic during COVID-19 pandemic:
reports of targeted users’ characteristics who have informed caregiver age matters. Neurol Sci. 2021;42(4):1247–1251.
development of current DHT, expansion of DHT innovation to [11] US Food & Drug Administration. What is digital health.
activity domains yet to receive attention in the MCI/ADRD com- Silver Spring (MD): US Food & Drug Administration; 2020.
munity (namely sleep and volunteerism), and providing more [updated September 22, 2020; cited 2022 April 26].
20 S. L. SCHEPENS NIEMIEC ET AL.

Available from: https://www.fda.gov/medical-devices/ [29] Purves B, Phinney A, Hulko W, et al. Developing CIRCA-BC
digital-health-center-excellence/what-digital-health. and exploring the role of the computer as a third partici-
[12] Urban M. Embodying digital ageing: ageing with digital pant in conversation. Am J Alzheimers Dis Other Demen.
health technologies and the significance of inequalities. 2015;30(1):101–107.
Precarity within the digital age. Berlin, Germany: Springer; [30] Hackett K, Lehman S, Divers R, et al. Remind me to remem-
2017. p. 163–178. ber: a pilot study of a novel smartphone reminder applica-
[13] Fang ML, Canham SL, Battersby L, et al. Exploring privilege tion for older adults with dementia and mild cognitive
in the digital divide: implications for theory, policy, and impairment. Neuropsychol Rehabil. 2022;32(1):22–50.
practice. Gerontologist. 2019;59(1):e1–e15. [31] Kelleher J, Zola S, Cui X, et al. Personalized visual mapping
[14] Engelsma T, Jaspers MWM, Peute LW. Considerate mHealth assistive technology to improve functional ability in per-
design for older adults with Alzheimer’s disease and sons with dementia: Feasibility cohort study. JMIR Aging.
related dementias (ADRD): a scoping review on usability 2021;4(4):e28165.
barriers and design suggestions. Int J Med Inform. 2021; [32] Goodall G, Andre L, Taraldsen K, et al. Supporting identity
152:104494. and relationships amongst people with dementia through
[15] Elfaki AO, Alotaibi M. The role of M-health applications in the use of technology: a qualitative interview study. Int J
the fight against Alzheimer’s: current and future directions. Qual Stud Health Well-Being. 2021;16(1):1920349.
mHealth. 2018;4:32–32. [33] Lancioni GE, Singh NN, O’Reilly MF, et al. Technology-based
[16] Brown A, O’Connor S. Mobile health applications for people behavioral interventions for daily activities and supported
with dementia: a systematic review and synthesis of quali- ambulation in people with Alzheimer’s disease. Am J
tative studies. Inform Health Soc Care. 2020;45(4):343–359. Alzheimers Dis Other Demen. 2018;33(5):318–326.
[17] Goodall G, Taraldsen K, Serrano JA. The use of technology [34] Lancioni GE, Singh NN, O’Reilly MF, et al. Smartphone-
in creating individualized, meaningful activities for people based interventions to foster simple activity and personal
living with dementia: a systematic review. Dementia satisfaction in people with advanced Alzheimer’s disease.
(London). 2021;20(4):1442–1469. Am J Alzheimers Dis Other Demen. 2019;34(7-8):478–485.
[18] Cook A, Hussey S. Assistive technologies: principles and [35] McAllister M, Dayton J, Oprescu F, et al. Memory keeper: a
practice. St. Louis (MO): Mosby Year Book, Inc.; 1995. prototype digital application to improve engagement with
[19] Cook A, Polgar J. Principles of assistive technology: intro- people with dementia in long-term care (innovative prac-
ducing the human activity assistive technology model. In tice). Dementia (London). 2020;19(4):1287–1298.
Cook A, Polgar J, editors. Assistive technologies: principles [36] Joddrell P, Astell A. Implementing accessibility settings in
and practice. St. Louis (MO): Mosby, Inc.; 2020. touchscreen apps for people living with dementia.
[20] Arksey H, O’Malley L. Scoping studies: towards a methodo- Gerontology. 2019;65(5):560–570.
logical framework. Int J Soc Res Methodol. 2005;8(1):19–32. [37] Samuelsson C, Ekstro €m A. Digital communication support
[21] Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for in interaction involving people with dementia. Logoped
scoping reviews (PRISMA-ScR): checklist and explanation. Phoniatr Vocol. 2019;44(1):41–50.
Ann Intern Med. 2018;169(7):467–473. [38] American Occupational Therapy Association. Occupational
[22] Graneheim U, Lundman B. Qualitative content analysis in therapy practice framework: Domain and process. 4th ed.
nursing research: concepts, procedures and measures to Vol. 74. Bethesda (MD): American Occupational Therapy
achieve trustworthiness. Nurse Educ Today. 2004;24(2): Association; 2020. p. 7412410010p1–7412410010p87.
105–112. [39] Boyd H, Evans N, Orpwood R, et al. Using simple technol-
[23] Potter W, Levine-Donnerstein D. Rethinking validity and ogy to prompt multistep tasks in the home for people
reliability in content analysis. J Appl Commun Res. 1999; with dementia: an exploratory study comparing prompting
27(3):258–284. formats. Dementia (London). 2017;16(4):424–442.
[24] Vaismoradi M, Turunen H, Bondas T. Content analysis and [40] Perilli V, Lancioni G, Laporta D, et al. A computer-aided
thematic analysis: implications for conducting a qualitative telephone system to enable five persons with Alzheimer’s
descriptive study. Nurs Health Sci. 2013;15(3):398–405. disease to make phone calls independently. Res Dev
[25] Yasuda K, Kuwahara N, Kuwabara K, et al. Daily assistance Disabil. 2013;34(6):1991–1997.
for individuals with dementia via videophone. Am J [41] Boatman F, Golden M, Jin J, et al. Assistive technology: vis-
Alzheimers Dis Other Demen. 2013;28(5):508–516. ual mapping combined with mobile software can enhance
[26] McCarron H, Zmora R, Gaugler J. A Web-Based mobile app quality of life and ability to carry out activities of daily liv-
with a smartwatch to support social engagement in per- ing in individuals with impaired memory. Technol Health
sons with memory loss: pilot randomized controlled trial. Care. 2020;28:121–128.
JMIR Aging. 2019;2(1):e13378. [42] Boyd K, Bond R, Ryan A, et al. Digital reminiscence app co-
[27] Howe D, Thorpe J, Dunn R, et al. The CAREGIVERSPRO- created by people living with dementia and carers: usabil-
MMD platform as an online informational and social sup- ity and eye gaze analysis. Health Expect. 2021;24(4):
port tool for people living with memory problems and 1207–1219.
their carers: an evaluation of user engagement, usability [43] Konig T, Pigliautile M, Aguila O, et al. User experience and
and usefulness. J Appl Gerontol. 2020;39(12):1303–1312. acceptance of a device assisting persons with dementia in
[28] Beentjes KM, Neal DP, Kerkhof YJF, et al. Impact of the daily life: a multicenter field study. Aging Clin Exp Res.
FindMyApps program on people with mild cognitive 2022;34(4):869–879.
impairment or dementia and their caregivers; an explora- [44] Quintana M, Anderberg P, Sanmartin Berglund J, et al.
tory pilot randomised controlled trial. Disabil Rehabil Assist Feasibility-Usability study of a tablet app adapted specific-
Technol. 2020;1–13. DOI:10.1080/17483107.2020.1842918. ally for persons with cognitive Impairment-SMART4MD
TECHNOLOGY FOR ACTIVITY PARTICIPATION IN DEMENTIA 21

(support monitoring and reminder technology for mild [60] Batsis J, Naslund J, Zagaria A, et al. Technology for behav-
dementia. IJERPH. 2020;17(18):6816. ioral change in rural older adults with obesity. J Nutr
[45] Imbeault H, Gagnon L, Pigot H, et al. Impact of AP@ LZ in Gerontol Geriatr. 2019;38(2):130–148.
the daily life of three persons with Alzheimer’s disease: [61] Dong L, Freedman V, S�anchez B, et al. Racial and ethnic
long-term use and further exploration of its effectiveness. differences in disability transitions among older adults in
Neuropsychol Rehabil. 2018;28(5):755–778. the United States. J Gerontol A Biol Sci Med Sci. 2019;74(3):
[46] Hattink B, Droes R-M, Sikkes S, et al. Evaluation of the 406–411.
digital Alzheimer center: testing usability and usefulness of [62] Yoon H, Jang Y, Vaughan P, et al. Older adults’ internet use
an online portal for patients with dementia and their for health information: digital divide by race/ethnicity and
carers. JMIR Res Protoc. 2016;5(3):e144. socioeconomic status. J Appl Gerontol. 2020;39(1):105–110.
[47] Evans N, Boyd H, Harris N, et al. The experience of using [63] Sachdeva N, Tuikka AM, Kimppa K, et al. Digital disability
prompting technology from the perspective of people with divide in information society. J Inform Commun Ethics Soc.
dementia and their primary carers. Aging Mental Health. 2015;13(3/4):283–298.
[64] Giebel C, Sutcliffe C, Challis D. Activities of daily living and
2021;25(8):1433–1439.
quality of life across different stages of dementia: a UK
[48] Thorpe J, Forchhammer B, Maier A. Adapting mobile and
study. Aging Ment Health. 2015;19(1):63–71.
wearable technology to provide support and monitoring in
[65] Redfoot D, Feinberg L, Houser A. The aging of the baby
rehabilitation for dementia: feasibility case series. JMIR
boom and the growing care gap: a look at future declines
Form Res. 2019;3(4):e12346.
in the availability of family caregivers. Washington (DC):
[49] Lancioni G, Singh N, O’Reilly M, et al. Smartphone technol-
AARP Public Policy Institute; 2013.
ogy for fostering goal-directed ambulation and object use [66] Kerkhof Y, Bergsma A, Graff M, et al. Selecting apps for
in people with moderate Alzheimer’s disease. Disabil people with mild dementia: identifying user requirements
Rehabil Assist Technol. 2020;15(7):754–758. for apps enabling meaningful activities and self-manage-
[50] Lancioni G, Singh N, O’Reilly M, et al. A technology-aided ment. J Rehabil Assist Technol Eng. 2017;4:
program for helping persons with Alzheimer’s disease per- 2055668317710593.
form daily activities. J Enabl Technol. 2017;11(3):85–91. [67] Dro€es R, Chattat R, Diaz A, et al. Social health and demen-
[51] Lanza C, Kno €rzer O, Weber M, et al. Autonomous spatial tia: a European consensus on the operationalization of the
orientation in patients with mild to moderate Alzheimer’s concept and directions for research and practice. Aging
disease by using mobile assistive devices: a pilot study. J Ment Health. 2017;21(1):4–17.
Alzheimers Dis. 2014;42(3):879–884. [68] Nishiura Y, Nihei M, Nakamura-Thomas H, et al.
[52] Ryan AA, McCauley CO, Laird EA, et al. There is still so Effectiveness of using assistive technology for time orienta-
much inside’: the impact of personalised reminiscence, tion and memory, in older adults with or without demen-
facilitated by a tablet device, on people living with mild to tia. Disabil Rehabil Assist Technol. 2021;16(5):472–478.
moderate dementia and their family carers. Dementia [69] Olphert W, Damodaran L, Balatsoukas P, et al. Process
(London). 2020;19(4):1131–1150. requirements for building sustainable digital assistive tech-
[53] Taylor ME, Close JCT, Lord SR, et al. Pilot feasibility study of nology for older people. J Assist Technol. 2009;3(3):4–13.
a home-based fall prevention exercise program [70] Zhao QF, Tan L, Wang HF, et al. The prevalence of neuro-
(StandingTall) delivered through a tablet computer (iPad) psychiatric symptoms in Alzheimer’s disease: systematic
in older people with dementia. Australas J Ageing. 2020; review and Meta-analysis. J Affect Disord. 2016;190:
39(3):e278–e287. 264–271.
[54] Fleming R, Sum S. Empirical studies on the effectiveness of [71] Klinedinst NJ, Resnick B. The volunteering-in-Place (VIP)
assistive technology in the care of people with dementia: a program: providing meaningful volunteer activity to resi-
systematic review. J Assist Technol. 2014;8(1):14–34. dents in assisted living with mild cognitive impairment.
[55] Lazar A, Thompson H, Demiris G. A systematic review of Geriatr Nurs. 2016;37(3):221–227.
[72] Klinedinst NJ, Resnick B. Resilience and volunteering: a crit-
the use of technology for reminiscence therapy. Health
ical step to maintaining function among older adults with
education & behavior: the official publication of the society
depressive symptoms and mild cognitive impairment. Top
for public health education. Health Educ Behav. 2014;41(1):
Geriatric Rehabil. 2014;30(3):181–187.
51S–61S. (
[73] Hung L, Chow B, Shadarevian J, et al. Using touchscreen
[56] Czaja SJ, Sharit J. Practically relevant research: Capturing
tablets to support social connections and reduce respon-
real world tasks, environments, and outcomes. sive behaviours among people with dementia in care set-
Gerontologist. 2003;43(1):9–18. tings: a scoping review. Dementia (London). 2021;20(3):
[57] €
Borg J, Ostergren P-O. Users’ perspectives on the provision 1124–1143.
of assistive technologies in Bangladesh: awareness, pro- [74] O’Neill B, Gillespie A. Simulating naturalistic instruction: the
viders, costs and barriers. Disabil Rehabil Assist Technol. case for a voice mediated interface for assistive technology
2015;10(4):301–308. for cognition. J Assist Technol. 2008;2(2):22–31.
[58] Matthews K, Xu W, Gaglioti A, et al. Racial and ethnic esti- [75] Hughes T, Black B, Albert M, et al. Correlates of objective
mates of Alzheimer’s disease and related dementias in the and subjective measures of caregiver burden among
United States (2015–2060) in adults aged� 65 years. dementia caregivers: influence of unmet patient and care-
Alzheimers Dement. 2019;15(1):17–24. giver dementia-related care needs. Int Psychogeriatr. 2014;
[59] Caaman ~o-Isorna F, Corral M, Montes-Mart�ınez A, et al. 26(11):1875–1883.
Education and dementia: a meta-analytic study. [76] Dixon E, Lazar A. editors. The role of sensory changes in
Neuroepidemiology. 2006;26(4):226–232. everyday technology use by people with mild to moderate
22 S. L. SCHEPENS NIEMIEC ET AL.

dementia. The 22nd International ACM SIGACCESS CHI Conference on Human Factors in Computing Systems;
Conference on Computers and Accessibility; 2020. DOI:10. 2021. DOI:10.1145/3411764.3445702.
1145/3373625.3417000 [85] Briones S, Meijering L. Using everyday technology inde-
[77] Lanzi A, Burshnic V, Bourgeois M. Person-centered memory pendently when living with forgetfulness: experiences of
and communication strategies for adults with dementia. older adults in Barcelona. Gerontol Geriatr Med. 2021;7:
Top Lang Disord. 2017;37(4):361–374. 2333721421993754.
[78] Sohlberg M. Evidence-based instructional techniques for [86] Peek S, Luijkx K, Rijnaard M, et al. Older adults’ reasons for
training procedures and knowledge in persons with severe using technology while aging in place. Gerontology. 2016;
memory impairment. Rev Neuropsicol. 2006;1(1):14–19. 62(2):226–237.
[79] Saperstein A, Medalia A. The role of motivation in cognitive [87] Madara Marasinghe K. Assistive technologies in reducing
remediation for people with schizophrenia. Behav Neurosci caregiver burden among informal caregivers of older
Motivat. 2015;27:533–546. adults: a systematic review. Disabil Rehabil Assist Technol.
[80] Skrajner M, Camp C. Resident-assisted montessori program- 2016;11(5):353–360.
ming (RAMPTM): use of a small group reading activity run [88] Slaughter S, Bankes J. The functional transitions model:
by persons with dementia in adult day health care and maximizing ability in the context of progressive disability
long-term care settings. Am J Alzheimers Dis Other Demen. associated with Alzheimer’s disease. Can J Aging. 2007;
2007;22(1):27–36. 26(1):39–47.
[81] Imbeault H, Bier N, Pigot H, et al. Electronic organiser and [89] Hedman A, Nygård L, Almkvist O, et al. Patterns of func-
Alzheimer’s disease: fact or fiction? Neuropsychol Rehabil. tioning in older adults with mild cognitive impairment: a
2014;24(1):71–100. two-year study focusing on everyday technology use.
[82] Hill R, Betts L, Gardner S. Older adults’ experiences and Aging Ment Health. 2013;17(6):679–688.
perceptions of digital technology:(dis) empowerment, well- [90] Kottorp A, Nygård L, Hedman A, et al. Access to and use of
being, and inclusion. Comput Human Behav. 2015;48: everyday technology among older people: an occupational
415–423. justice issue–but for whom? J Occup Sci. 2016;23(3):
[83] Berkowsky R, Sharit J, Czaja S. Factors predicting decisions 382–388.
about technology adoption among older adults. Innov [91] World Health Organization. Global status report on the
Aging. 2018;2(1):igy002. public health response to dementia. Geneva, Switzerland:
[84] Pang C, Collin Wang Z, McGrenere J, et al. editors. World Health Organization; 2021.
Technology adoption and learning preferences for older [92] World Health Organization. Global action plan on the pub-
adults: evolving perceptions, ongoing challenges, and lic health response to dementia 2017–2025. Geneva,
emerging design opportunities. Proceedings of the 2021 Switzerland: World Health Organization; 2017.

You might also like