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Developmental Neurorehabilitation

ISSN: 1751-8423 (Print) 1751-8431 (Online) Journal homepage: http://www.tandfonline.com/loi/ipdr20

Can you see it too? Observed and self-rated


participation in mainstream schools in students
with and without autism spectrum disorders

Marita Falkmer, Kirsty Oehlers, Mats Granlund & Torbjörn Falkmer

To cite this article: Marita Falkmer, Kirsty Oehlers, Mats Granlund & Torbjörn Falkmer (2013):
Can you see it too? Observed and self-rated participation in mainstream schools in students
with and without autism spectrum disorders, Developmental Neurorehabilitation, DOI:
10.3109/17518423.2013.850751

To link to this article: http://dx.doi.org/10.3109/17518423.2013.850751

Published online: 04 Dec 2013.

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ISSN: 1751-8423 (print), 1751-8431 (electronic)

Dev Neurorehabil, Early Online: 1–10


! 2013 Informa UK Ltd. DOI: 10.3109/17518423.2013.850751

ORIGINAL ARTICLE

Can you see it too? Observed and self-rated participation in mainstream


schools in students with and without autism spectrum disorders
Marita Falkmer1,2,3, Kirsty Oehlers3, Mats Granlund4, & Torbjörn Falkmer3,5,6
1
School of Education and Communication, CHILD Programme, Institute of Disability Research, Jönköping University, Jönköping, Sweden,
2
Department of Education, Municipality Council of Norrköping, Sweden, 3School of Occupational Therapy & Social Work, Curtin Health Innovation
Research Institute, Curtin University, Perth, WA, Australia, 4CHILD Programme, School of Health Sciences, Institute of Disability Research, Jönköping
University, Jönköping, Sweden, 5School of Occupational Therapy, La Trobe University, Melbourne, Victoria, Australia, and 6Division of Rehabilitation
Medicine, Department of Medicine and Health Sciences (IMH), Faculty of Health Sciences, Linköping University & Pain and Rehabilitation Centre,
UHL, County Council, Linköping, Sweden

Abstract Keywords
Objectives: To examine the degree to which observations can capture perception of Autism, COP, involvement,
participation, observed and self-rated levels of interactions for students with and without multi-methodological design,
autism spectrum disorders (ASD) were explored. observations, questionnaires
Developmental Neurorehabilitation

Methods: Frequencies and levels of involvement in interactions with classmates were observed
and compared in 22 students with ASD and 84 of their classmates in mainstream schools, using History
a standardized protocol. Self-reported participation measurements regarding interactions with
classmates and teachers from five questionnaire items were correlated with the observations. In Received 24 September 2013
total, 51 516 data points were coded and entered into the analyses, and correlated with 530 Revised 26 September 2013
questionnaire ratings. Accepted 29 September 2013
Results: Only one weak correlation was found in each group. Compared with classmates, Published online 4 December 2013
students with ASD participated less frequently, but were not less involved when they actually
did.
Conclusions: Observations alone do not capture the individuals’ perception of participation and
are not sufficient if the subjective aspect of participation is to be measured.

Introduction [4, 5]. However, awareness that children with cognitive


impairments also experience limitations in their participation
An inclusive school has been a goal for school policies since
has emerged [3]. The notion of participation incorporates the
the Salamanca Declaration declared that all children should
importance of the perceived quality of the school experience
have access to mainstream schools [1]. Inclusive schools
[2]. Participation is therefore not only referring to a student’s
should be designed to meet the unique needs of students,
presence in an activity within a specific context, but also to
encompassing their individual characteristics, interests, abil-
the subjective feeling of having participated [6]. Students’
ities and learning needs. One remaining problem in the
perception of participation is affected both by possibilities to
attempt to evaluate the effectiveness of inclusion as a practice,
attend activities (frequency) and their involvement in a
and refine interventions to promote it, is the lack of a clear
specific activity. Involvement may also be seen as related
definition of the concept of inclusion [2]. However, the
to motivation, which is an important aspect of perceived
possibility to be present, to participate and to achieve goals is
participation [7]. The subjective aspect of participation
often defined as key elements of inclusive schools, indicating
can best be rated by the individual, but the involvement
that mere attendance at school is not enough [2].
(level of engagement) may be observed by others within that
Participation is a complex construct. Despite a general
context [6].
acceptance that participation is crucial in order to feel
It is challenging to collect information directly from
included, there is little agreement on how to document and
children and, hence, participation is often measured by
measure participation [3]. To date, many studies of partici-
observations or reports from parents/teachers rather than from
pation have included children with physical impairments
the children themselves [3]. Observations regarding the
frequency in which students participate in activities can
Correspondence: Professor Torbjörn Falkmer, Senior Research Fellow at gain important information regarding the accessibility of
the School of Occupational Therapy and Social Work, Curtin Health activities. However, students may frequently be observed
Innovation Research Institute (CHIRI), Faculty of Health Sciences, participating in activities in which they are not particularly
Curtin University of Technology, GPO Box U1987, Perth, Western
Australia 6845, Australia. Tel: +61 8 9266 9051. Fax: +61 8 9266 3636. involved [8]. It is, unfortunately, unclear to what extent
E-mail: t.falkmer@curtin.edu.au observations can capture the students’ subjective perception
2 M. Falkmer et al. Dev Neurorehabil, Early Online: 1–10

of participation [3]. Self-reports, including the level of evaluation of interventions to promote it [6]. In order to
involvement indicates that subjective measurements generate develop assessment tools when planning interventions to
additional information regarding the experience of participa- promote participation, knowledge regarding the correspond-
tion [7]. Results regarding how well measurements from ence between self-ratings, observed participation and levels of
observations and self-ratings correspond in regard to students involvement in children with ASD in mainstream schools
with impairments are, however, inconsistent [6, 9]. needs to be further expanded. Hence, the aim of the present
An increasing number of students with autism spectrum study was to investigate correlations between observed and
disorders (ASD) are now attending mainstream schools [10]. self-rated levels of interactions in students with and without
Estimations of the prevalence of ASD in school-aged children ASD. Furthermore, the frequencies and involvement in
indicate that school services have to be prepared for the fact interactions with classmates and other activities in students
that approximately 1–2% of their students are likely to have with and without ASD were compared.
ASD [11]. Attendance at mainstream schools offers students
with ASD the possibility to interact with peers, which is Methods
crucial for social learning [12, 13]. However, the manifest-
Participants
ations of ASD are: impairment of social interaction, impair-
ment of social communication and impairment of social Information letters and invitations were sent out to families
imagination [14], and these difficulties tend to have a negative included in registers at The Swedish National Autism and
influence on social participation [6, 15, 16]. Consequently, it Asperger Association and their local associates, paediatric
has been reported that social interactions between children clinics and local support teams in special education that had a
with ASD and their peers is markedly different to the social child with ASD in year 3–6 in Swedish mainstream schools.
interaction between children without ASD [17–19]. Children For ethical reasons, the authors did not have information
with ASD tend to have difficulties engaging in spontaneous about exactly how many invitations to participate were sent
interactions with other children, due to the social complexities out and had no information regarding the families that
of such activities [20, 21]. Children with ASD struggle to received the information, since the families were identified
Developmental Neurorehabilitation

begin and maintain friendships and peer relationships often through the before mentioned organization. Hence, the first
do not go beyond task-related interactions in the classroom author was contacted by the families that were willing to
[20, 22, 23]. It has been hypothesized that impaired ‘‘Theory participate but did not receive any information about families
of Mind’’, executive functions and emotion recognition may that did not consider participating in the study. Unfortunately,
constitute the constructs underlying poor social competence this procedure made it impossible to conduct a drop-out
[24]. However, persons with ASD may have difficulties analysis.
affecting their ability to socially interact also on a basic level If the parents consented to their child participating in the
that affect their ability to recognize faces and emotions in study, they contacted the first author. If the child, the
others even though they do not have any intellectual headmaster and the classroom teacher/teachers also all gave
impairments [25–28]. This could explain the fact that it is their written informed consent/assent to participate, the child
not uncommon that teachers underestimate students’ prob- was included in the study. Twenty-two students with ASD
lems related to participation [29]. Furthermore, for students (16 boys) 9–13 years old (mean age 10.7, median 11, standard
with ASD there seems to be a discrepancy between self- deviation [SD] 1.1) were included in the study. The rationale
reports and observations of their involvement in social for choosing to include students of these age groups was two-
networks in the classroom [9]. The divergence between how folded. First, a self-rated measurement of participation was
students with ASD are perceived and how they perceive administered, in which students were asked to independently
themselves in relation to participation could be due to a weak read and fill in a questionnaire. Grade 3 was considered to
‘‘Theory of mind’’, which is regarded as a core characteristic constitute the lowest possible grade, in which a majority of
in ASD [30]. As a consequence, students with ASD encounter students could manage such a task. Second, in the Swedish
difficulties to reflect not only upon others’ minds but also school system, students up to grade 6 are frequently taught in
upon their own minds. Differences between self-reported and one single classroom, aka a ‘‘home room’’, and the class stays
observed participation may therefore be a result of students together during the majority of the school-day. In grade 7 and
with ASD being unaware of the existence of varying levels of onwards the students instead attend several classrooms and
participation [9]. For example, students may report that they are taught by numerous teachers. In order to be able to
have lots of friends, while rarely being observed interacting observe the student with ASD and his/her classmates in a
with classmates. Another possibility may be that students with well-known social environment, grade 6 was considered to
ASD do perceive their situation differently and, despite constitute the highest possible grade to be included in the
observed lack of participation based on the observers’ norms, present study. The students attended 21 different mainstream
still perceive their participation as satisfactory [9, 31]. schools. Two of the students with ASD were taught in the
Differences between self-ratings and observations can also same classroom. As reported by their parents, the students
be due to the fact that the former represent the student’s with ASD were diagnosed by independent medical clinics in
interpretation of how a situation generally is perceived, i.e., as accordance with DSM IV criteria. For ethical reasons, no
retrospectively measured, whereas observations measure medical records were collected. All students with ASD were
participation in specific activities as they occur [6]. following the national curriculum and could therefore be
Finding ways to determine students with ASDs’ level of considered as representing students without an intellectual
participation is essential for the implementation and impairment.
DOI: 10.3109/17518423.2013.850751 Can you see it too? 3

Classmates attending the same classrooms were given  twenty-seven frequency statements, some of them asking
an information letter and an invitation to participate by the student to rate the frequency, e.g., ‘‘I am with my
their schools. In accordance with the ethical approval, classmates during recess’’. Some of these statements
the classmates were included if they and/or their parents were also phrased in order to rate the level of self-
did not actively decline participation. Classmates that determination in regard to these activities, e.g., ‘‘I want
declined participation were given alternative activities by to be with my classmates during recess’’.
their teacher, whilst participating students filled in the The adapted version of the questionnaire has been
questionnaire that was included in the data collection of described in previous studies [31, 38]. Five of the original
the present study. 46 items from the questionnaire regarding interactive
In addition to responding to the questionnaire, students activities that also could be observed according to the COP-
with ASD and four of his/her classmates (two girls and two 2 protocol were selected as measurements of self-rated
boys who had not declined participation) were observed participation: ‘‘I am with my classmates during recess’’,
during lectures and recess. Their actions were coded with the ‘‘I talk to my classmates in the classroom’’, I talk to and am
use of the Child Observation in Preschools (COP-2) protocol together with friends my age’’, ‘‘I talk to teachers during
[32]. The classmates were selected by the teacher with the recess’’ and ‘‘My classmates like me’’. They were selected
following criteria: through a consensus process among three of the authors.
 they were students without any recognized special
education needs; and,
Child observation protocol
 they were the same age and if the class regularly split up
in groups they frequently attended the same group as the COP-2 [32] has previously been used to study social
student with ASD. competence of children in need of special support in
Since two students with ASD attended the same classroom, Swedish pre-school classes [39, 40].
84 classmates (42 boys, mean age of 10.8, median 11, SD 1.2) As presented in Table I, the COP-2 allows for structured
were included in the present study. observations of nine variables, each with different coding
Developmental Neurorehabilitation

alternatives. The different variables provide information


regarding both frequencies (how often) and type of activity.
Participation questionnaire
The observed level of the child’s engagement in, and focus on,
Data on self-rated perceived participation were collected an activity is rated as the child’s involvement in that activity
through a questionnaire. The participation questionnaire used in the COP-2. The COP-2 is used to provide a succession of
in the present study consisted of a merged version from two snapshots of specific child behaviours. This is done by each
previously used questionnaires (Children’s participation in observation protocol consisting of 18 snapshots. In the coding
school [age 7–12] and Adolescents’ participation in school procedure, the first student is located and observed for 3 s.
age 13–17). Both questionnaires aimed to measure aspects of After that, scoring on all variables in the first line of the
perceived participation in school. The original questionnaires protocol is completed, resulting in a snapshot of the students’
consisted of a Swedish version of an availability and behaviour being recorded. The procedure is then immediately
participation scale [33] and of a Swedish version of autonomy repeated for each of the five students. This is called an
and locus of control scales from The Arc’s self-determination observation ‘‘sweep’’. Consequently, each ‘‘sweep’’ includes
scale [34], adapted to school age children and teenagers. observations of all the students that are observed, and it
When used with Swedish children with impairments, moder- captures the students’ activities within a short period of time.
ate to high internal consistency and construct validity have Each single snapshot may in itself be regarded as providing
been reported for the two scales (‘‘Children’s participation insufficient information. However, since each observation
in school’’ and ‘‘Adolescents participation in school’’) consists of 18 snapshots, combined they provide aggregated
[6, 35–37]. The adaptation of the participation questionnaire information regarding how children spend their time and
used in the present study consisted of a merged version of the about their preferences. In the present study, the aim was to
two original questionnaires. Hence, it was necessary to capture activities during an ordinary school-day. Hence, the
minimize the number of statements. Consequently, statements snapshots were distributed in order to capture activities
in the original questionnaire that focused on activities relevant during both lectures and recess. In addition to the original
for students in non-mainstream school settings were removed. observation guidelines, that only cover observations inside the
However, the formulations in the original statements, i.e., the classroom, recess was added as a context in which observa-
‘‘I do’’, ‘‘I agree’’ and frequency response statements were tions were conducted, since spontaneous unstructured peer
kept for validity and reliability reasons. The participation interactions are even more likely to occur during recess.
questionnaire used in the present study comprised Before starting the data collection, an inter-rater reliability
46 statements. The statements included: was conducted on COP-2, proving a 90% agreement between
 six ‘‘I do’’ statements, e.g., ‘‘Me and my classmates the first author and a colleague experienced in child
decide together what to do’’, which asked the student to assessments.
indicate what was most in accordance with what the As presented in Table II, coding for relevant variables that
student usually did; jointly would constitute an observed activity corresponding to
 thirteen ‘‘I agree’’ statements, e.g., ‘‘My classmates like each of the five selected questionnaire items was defined.
me’’, which asked the student to indicate to what degree If an observation contained a combination of these pre-
he/she agreed with the statement being true and; defined variables, it was regarded as one count representing
4 M. Falkmer et al. Dev Neurorehabil, Early Online: 1–10

Table I. The variables constituting one COP-2 observation sweep and the coding alternatives for each variable. Only variables in bold were included in
the counts, as presented in Table II, whereas variables in italics were used for between-groups comparisons, as shown in Tables IV and V. All Materials
and Action variables (in grey) were accepted for all counts and were thus excluded from further analyses.

COP-2 variables
Verbal To whom Schedule Proximity Interaction Type task Involvement Materials Action
No Teacher(T) WG T Non-academicg Passive-instructionm High Math Math
Yes Child SGc Child Parallelh Non-sequentialn Medium/High Literacy Literacy
Listening Small Group Centres (C)d SG Associativei Sequentialo Medium Science Other
Fuss/cry (SG)a SGCe SG/T Cooperativej Fantasy/drama Medium/low Social studies No
SG/T Transition WG Alone None Low Toy
Whole group (WG)b Meal time WG/T Onlooker Otherf Art/music
WG/T Otherf Self Socialk Social Drama
Self Recess Unoccupiedl Disruptive Computer
No talk Gross Motor
TV/Video
No
Can’t code
a
To whom: SG denotes two children or more and does not include a teacher or adult.
b
To whom: WG denotes 75% or more of the class, but without the teacher being present.
c
Schedule: SG refers to non-optional activities facilitated by a teacher or an adult.
d
Schedule: C refers to arranged activities, in which the students have limited choice in regard to which one they choose to do, but they can move around
in the classroom.
e
Schedule: SGC refers to a combination of small groups and centres occurring in the classroom simultaneously.
f
Other is coded if the activity observed is not otherwise listed or described.
g
Interaction: The child is waiting, looking for material, moving from one activity to another.
h
Interaction: The child is using the same materials as the other children, although no observable interaction is occurring.
i
Interaction: The child, with or without the teacher being present, is interacting in a task or an activity with no predetermined outcome or
Developmental Neurorehabilitation

co-constructing ideas.
j
Interaction: The child engaged in formal games and activities with rules and organization.
k
Interaction: The child interacts verbally and not in relation to learning activities.
l
Interaction: Only coded if the child is still not attending any particular activity after two consecutive 3 s observations.
m
The primary task is to listen to teacher or other child.
n
Activity or material that does not include a predetermined series of steps.
o
Activity or material that includes a clear sequence of steps.

one observed activity corresponding to the related question- repeated over three days (486 coded variables/student).
naire item. The total amount of observations representing one In total, 51 516 variables were coded. Since the classroom
statement was summoned and regarded as a measurement for teacher decided which days it was possible to visit the
how often the student was observed as being in the situation classroom, the observations could not target specific subjects
the statement represented. As shown in Table II, the counts or be conducted at the same time of day in each classroom.
were numbered according to the questionnaire item they However, for all observations, classroom time and recess time
represented, i.e., Count 1 was regarded to correspond to the were included. The selected students were not informed that
statement ‘‘I am with my classmates during recess’’; Count 2 they, in particular, were observed. Even though the observa-
to the statement ‘‘I talk to my classmates in the classroom’’; tions did not take a full day to complete, the first author was
Count 3 to the statement ‘‘I talk to and am together with present during three full school-days, in order to make the
friends my age’’; Count 4 to the statement ‘‘I talk to teachers presence of an additional adult in the classroom and on the
during recess’’ and Count 5 to the statement ‘‘My classmates playgrounds less remarkable.
like me’’.
Consequently, comparisons between students with and Statistical analyses
without ASD regarding observed activities involving different All relevant variables were tested for normal distribution
aspects of interactions were made by comparing numbers of with the Kolmogorov–Smirnov test. The number of Counts
noted counts. The coding for the COP-2 variable involvement 1–3 and 5 fulfilled that criterion. However, Mann–Whitney
was analysed as a separate variable, in order to explore the U-tests were conducted for between-groups comparisons
students’ levels of involvement whilst participating in school due to the differences in group size. Spearman’s rank
activities and in interactions. correlation tests were conducted in all correlation analyses,
since the questionnaire item ratings were made on a
Procedures
Lickert scale, providing ordinal data. The percentages of
The first author visited all classrooms on three different days. Counts were compared between the groups with the use of 2
The first day the questionnaire was distributed to all students and Fischer’s exact tests. A power calculation was made on
that were included in the study. The questionnaire was the assumption of an a-level of 0.05 and a b-level of 0.2,
collected on the same day. On each day a minimum of 18 given a sample size of 22 in the smaller group, showing that a
observation snap shots (9  18 ¼ 162 coded variables) were 0.86 Cohen’s d or larger could be detected in the between-
coded for each of the 106 students. The observations were group comparisons. For the correlation analyses, the
DOI: 10.3109/17518423.2013.850751 Can you see it too? 5
Table II. The coding alternatives within the relevant variables presented in bold in Table I, which constituted the counts corresponding to each of the
five items from the participation questionnaire.

Variable COP-2 codes corresponding to selected questionnaire item


Questionnaire item/count Verbal To whom Schedule Proximity Interaction
‘‘I am with my classmates during recess’’/Count 1 No Child Recess Child Non-academic
Yes SG SG Parallel
Listening WG WG Associative
Fuss/cry No Talk Cooperative
Onlooker
Social
Unoccupied
‘‘I talk to my classmates in the classroom’’/Count 2 Yes Child WG Child Non-academic
Listening SG SG SG Parallel
WG C SG/T Associative
SGC WG Cooperative
Transition Onlooker
Meal time Social
Other Unoccupied
‘‘I talk to and am together with friends my age’’/Count 3 No Child WG Child Non-academic
Yes SG SG SG Parallel
Listening WG C SG/T Associative
SGC WG Cooperative
Transition Onlooker
Meal time Social
Other Unoccupied
Recess
‘‘I talk to teachers during recess’’/Count 4 Yes Teacher Recess T Non-academic
Developmental Neurorehabilitation

Listening SG/T Parallel


WG Associative
WG/T Cooperative
Onlooker
Social
Unoccupied
‘‘My classmates like me’’/Count 5 No Child WG Child Non-academic
Yes SG SG SG Parallel
Listening C SG/T Associative
SGC WG Cooperative
Transition Onlooker
Meal time Social
Other Unoccupied
Recess

Table III. Correlations between self-reported and observed participation.

Questionnaire item/count Students with ASC (n ¼ 22) Classmates (n ¼ 84)


I am with my classmates during recess/Count 1 rho ¼ 0.21 (p ¼ 0.34) rho ¼ 0.22 (p ¼ 0.043)*
I talk to my classmates in the classroom/Count 2 rho ¼ 0.17 (p ¼ 0.45) rho ¼ 0.15 (p ¼ 0.18)
I talk to and am together with friends my age/Count 3 rho ¼ 0.20 (p ¼ 0.37) rho ¼ 0.22 (p ¼ 0.050)
I talk to teachers during recess/Count 4 rho ¼ 0.43 (p ¼ 0.049)* rho ¼ 0.02 (p ¼ 0.86)
My classmates like me/Count 5 rho ¼ 0.01 (p ¼ 0.97) rho ¼ 0.07 (p ¼ 0.74)

*Statistically significant correlation.

corresponding correlation coefficient was estimated to be the students’ behaviour more than necessary, information
rho ¼ 0.43 or larger. about which students were observed was not given. The study
design and procedures conformed to the Helsinki declaration
Ethical considerations and the project was approved by the Regional Ethical
Information was given regarding the aim and the procedures of Committee in Linköping, Sweden (Dnr 175-08).
the study and how data would be collected, stored confiden-
Results
tially and published. All students were informed, verbally and
in writing, that they could choose not to fill in the questionnaire As shown in Table III, a correlation was found in each group.
or not to answer individual statements. No explanation for such In classmates, the statement ‘‘I am with my classmates during
an action was required. All students were informed that the first recess’’ correlated with Count 1. Another correlation was
author would follow the class during three school-days, found between the statement ‘‘I talk to teachers during
observing school activities. However, in order not to affect recess’’ and Count 4 in students with ASD. However, most of
6 M. Falkmer et al. Dev Neurorehabil, Early Online: 1–10

the correlations were weak and non-significant in both interactions were therefore also examined. The definitions of
groups. interactions used in the present study align to those used in the
In a previous questionnaire study, perceived participation COP-2, as presented in Table I. The students with ASD were
in school activities and social interaction in mainstream observed as being alone, unoccupied or an onlooker more
schools was compared between students with and without often than classmates. However, no differences between the
ASD [31]. That questionnaire comprised, among other items, groups were found regarding the level of involvement in these
the five items used in the present study. On four of these five interactions, indicating that there was no significant differ-
items there were significant differences between the groups, ence in how students with and without ASD perceived them.
with the students with ASD rating themselves as participating As shown in Table V, the students with ASD were less
less than their classmates. The exception was on the item ‘‘I frequently, but with a higher level of involvement, observed to
talk to teachers during recess’’ where no differences between take part in parallel activities compared with classmates
the groups was found. An analysis to examine possible (mean 3.23 for students with ASD, 3.08 for classmates).
difference in observed participation was therefore conducted, When interaction was coded as ‘‘Parallel’’, it denoted that the
comparing the two groups in regard to each of the five defined student was observed in proximity to classmates and
Counts. As shown in Table IV, there were significant participating in an activity in which the student was using
differences in observed participation in interactions in all the same materials as the classmates, with no observable
five Counts. Compared with classmates, the students with social interaction taking place. The classmates participated
ASD were observed as having fewer interactions with more often than students with ASD in social and cooperative
classmates overall, but somewhat more frequent interactions interactions. The former was defined as the student being
with teachers. engaged in games and activities with rules and organization,
Analyses were conducted to examine possible differences while the latter was defined as the student, with or without the
between the groups in levels of involvement in regard to the teacher being present, interacting in a task or an activity with
variable interaction and in regard to specific activities, no predetermined outcome or co-constructing ideas.
defined by the variable type task in the COP-2 protocol. However, no differences in the level of involvement were
Developmental Neurorehabilitation

As shown in Table V, students with ASD had a higher level found between the groups in those interactions.
of involvement than classmates when the comparison In accordance with the results regarding interactions,
included all types of interaction (mean 3.24 for students students with ASD showed a higher level of involvement
with ASD, 3.09 for classmates). Levels of involvement in compared with classmates when all types of tasks were
regard to specific types of interactions and the observed included in the comparison (mean 3.24 for students with
frequency in which the two groups participated in specific ASD, 3.09 for classmates). Consequently, further

Table IV. Comparisons between the two groups in regard to each of the defined counts.

Students with ASC (n ¼ 22) Classmates (n ¼ 84)


Number Number
Count of counts Mean (SD), median (IQR), range of counts Mean (SD), median (IQR), range Between-groups comparisons
1 170 7.7 (4.0), 7.5 (5.5), 16 861 10.3 (3.8), 11 (5), 17 Z ¼ 2.69, p ¼ 0.007*
2 144 6.5 (3.8), 6.5 (5.25), 14 1032 12.3 (4.9), 11.5 (7), 19 Z ¼ 4.69, p50.001*
3 452 20.6 (8.6), 23 (13.25), 32 2655 31.6 (6.4), 32.0 (10), 26 Z ¼ 5.11, p50.001*
4 20 n.a., 1 (2), 5 14 n.a., 0 (0), 3 Z ¼ 2.81, p ¼ 0.05*
5 447 20.3 (8.5), 22 (13.5), 32 2646 31.5 (6.4), 32 (10), 26 Z ¼ 5.14, p50.001*

*Statistically significant difference.

Table V. Observed level of involvement in interactions overall and across the different types of interactions defined by the coding alternatives in the
COP-2.

Students with ASC (n ¼ 22) Classmates (n ¼ 84) Between-groups comparisons


Involvement Number Median Number Median
in interactions of counts (IQR), range of counts (IQR), range Number of counts Level of involvement
Across all 1170 3, (0), 1–5 4281 3, (0), 1–5 n.a. Z ¼ 7.74, p50.001*
Non-academic 89 3, (1), 2–5 290 3, (1), 2–5 2 ¼ 1.84, p ¼ 0.18 Z ¼ 0.19, p ¼ 0.85
2
Parallel 379 3, (0), 2–5 1734 3, (0), 1–5  ¼ 16.17, p50.001* Z ¼ 4.32, p50.001*
Associative 159 3, (0), 2–5 606 3, (0), 1–5 2 ¼ 0.00, p ¼ 0.98 Z ¼ 1.67, p ¼ 0.096
Cooperative 76 3, (1), 1–5 387 3, (1), 1–5 2 ¼ 5.77, p ¼ 0.02* Z ¼ 1.11, p ¼ 0.27
Alone 175 3, (1), 1–5 171 3, (0), 1–5 2 ¼ 199.15, p50.001* Z ¼ 0.97, p ¼ 0.33
Onlooker 51 4, (1), 1–5 87 3, (0), 1–5 2 ¼ 22.57, p50.001* Z ¼0.45, p ¼ 0.66
Social 191 3, (0), 1–5 929 3, (0), 1–5 2 ¼ 11.60, p ¼ 0.001* Z ¼ 0.41, p ¼ 0.68
Unoccupied 50 5, (0.25), 3–5 77 5, (1), 3–5 2 ¼ 27.37, p50.001* Z ¼ 0.06, p ¼ 0.95
Missing data 18 n.a. 255 n.a. n.a. n.a.

n.a., Not applicable.


*Statistically significant difference.
DOI: 10.3109/17518423.2013.850751 Can you see it too? 7
Table VI. Observed level of involvement across all tasks overall and across the different types of tasks defined by the coding alternatives in the COP-2.

Students with ASC (n ¼ 22) Classmates (n ¼ 84) Between-groups comparisons


Involvement Number Number
in tasks of counts median (IQR), range of counts Median (IQR), range Number of counts Level of involvement
Across all 1170 3, (0), 1–5 4278 3, (0), 1–5 n.a. Z ¼ 5.74, p50.001*
Passive instruction 215 3, (1), 2–5 867 3, (0), 1–5 2 ¼ 0.63, p ¼ 0.43 Z ¼ 3.92, p50.001*
Non-sequential 270 3, (0), 1–5 1111 3, (0), 1–5 2 ¼ 1.60, p ¼ 0.21 Z ¼ 2.57, p ¼ 0.010*
Sequential 291 3, (0), 1–5 915 3, (0), 1–5 2 ¼ 10.58, p ¼ 0.001* Z ¼ 0.83, p ¼ 0.41
¥
Fantasy/drama 0 n.a. 4 n.a. p ¼ 0.31 n.a.
None 89 4, (1), 3–5 147 4, (2), 3–5 2 ¼ 43.03, p50.001* Z ¼ 0.52, p ¼ 0.61
2
Other 115 3, (1), 2–5 281 4, (1), 1–5  ¼ 17.76, p50.001* Z ¼ 0.41, p ¼ 69
Social 181 3, (0), 1–5 916 3, (0), 1–5 2 ¼ 14.94, p50.001* Z ¼ 0.71, p ¼ 0.48
Disruptive 9 n.a. 37 n.a. 2 ¼ 0.04, p ¼ 0.84 n.a.
Missing data 18 n.a. 258 n.a. n.a. n.a.

n.a., Not applicable.


*Statistically significant difference.
¥
Fisher’s exact test.

examinations of the frequency and level of involvement in A further finding of this study indicated that students with
specific tasks were conducted. As shown in Table VI, a ASD had a higher level of involvement than classmates when
difference in the observed level of involvement was found measured across all interactions. However, the difference was
between the groups when the students participated in the tasks found only in regard to interactions coded as ‘‘Parallel’’. This
defined as passive instructions (mean 3.36 in students with raises the question of the value of involvement itself, and
Developmental Neurorehabilitation

ASD, 3.17 in classmates) and non-sequential (mean 3.1 in queries the importance of whether that involvement relates to
students with ASD, 2.9 in classmates). Compared with participating in activities that occur with, alongside or
classmates, students with ASD participated more frequently separate to peers. Involvement, as coded in the COP-2 tool,
in tasks defined as sequential, none and other, and less is rated based on to what extent the child is observed being
frequently in tasks defined as social. However, no differences intently focussed in a meaningful and purposeful way while
in the level of involvement were found between the groups in performing an activity. The psychological benefits of involve-
those tasks. ment include the development of qualities such as persistence;
the establishment of a sense of achievement; the acquisition
Discussion of skills and the formation of a sense of well-being and
There are several key findings in this study. First, the results belonging [44]. These qualities heighten motivation and
show a discrepancy between students’ self-rated/perceived involvement for children, which are important aspects of
and their observed participation in interactions. However, this participation [44].
was not specifically the case for students with ASD but for all Students with ASD are impaired in relation to social
students. This is in accordance with previous results functioning [45]. However, most students with ASD do have
concluding that information collected from self-ratings pro- an interest in establishing social relations, but their difficulties
vides information that cannot be obtained through observa- with social interaction may result in few opportunities for
tions [41]. Observed and self-rated participation capture positive interactions with classmates [46, 47]. Our results
different aspects of participation and the use of both showed higher levels of involvement in students with ASD
measurements will contribute to a better understanding of compared with their classmates in parallel activities.
the student’s participation in school. The self-rated/perceived Interventions in order to facilitate interactions between
participation is probably a measurement of the students’ classmates with and without impairments have been sug-
perception of participation as it is perceived on average, while gested as necessary in inclusive settings [18, 20, 22, 23, 40].
observed participation is more dependent on contextual Parallel activities may therefore be considered as an important
factors occurring during the observation. Self-reports may means of engaging children with ASD in social interactions in
also be influenced by the students’ desire to report in a school setting. Involvement in parallel activities in close
accordance to what they perceive the researcher wants to proximity to peers has been reported to serve an important
report [42]. However, due to ‘‘Theory of mind’’ difficulties, function in typical social development [48–50]. Parallel
this is less likely to occur in the group of students with ASD activities provide an opportunity to synchronize actions to
[43]. This finding leads us to suggest that observed and self- those of others in close proximity [48]. To do the same thing
rated measurements could be seen as complementary. For at the same time offers opportunities to interact and commu-
example, the results that students with ASD were observed nicate about that particular activity. As a result, parallel
less frequently in interactions with classmates confirm the activities often transfer into more socially focused activities
previous results from the questionnaire study [31]. However, [48]. Participation in age appropriate constructive parallel
observations give more detailed information regarding which activities has been reported to be positively correlated with
specific interactions the groups differ in and the level of popularity among peers [50]. Popularity among classmates is
involvement in interactions [40]. essential, as positive relations between students with and
8 M. Falkmer et al. Dev Neurorehabil, Early Online: 1–10

without ASD are reported by parents as an important factor to expected consequence of high questionnaire rankings regard-
enhance inclusiveness in schools [51–54]. ing the perception of being liked by classmates should be
Interestingly, classmates were observed as more frequently observable as frequent, highly involved social interactions
participating in activities in which the interaction was coded with classmates. As a matter of fact, we found that we could
as ‘‘Parallel’’ than students with ASD. This may be an observe both frequency and involvement with respect to social
indication that such activities often occur in mainstream interactions, and whereas the involvement was not different
schools. The high frequency and the fact that these activities between the two groups, the frequency was much higher
are less socially challenging and therefore more predictable among the classmates. We could also confirm the findings
for students with ASD, may explain their increased involve- regarding this item from a previous study [31], suggesting that
ment in parallel activities. Although students with ASD it may be observable after all. However, comparisons between
participated less frequently in social interaction and social observed and self-rated participation measurements will
tasks, they were as involved whilst doing so as their always be challenging. In the present study, two previously
classmates. In other words, our observations indicate that validated tools, a questionnaire and COP-2 were used, but
children with ASD were observed as being highly involved in their criterion validity has not been explored, which suggests
social interactions even though they participated less fre- that the finding of the present study should be regarded with
quently in this type of interaction. This indicates that the adequate caution. With respect to the power of the study, the
students with ASD, in fact, enjoyed interacting with class- sample size in the ASD group was small but large enough to
mates. However, this finding raises an important question that be able to identify moderate correlations and large between
should be thoroughly assessed in each students with ASD, group differences. However, the significant correlation
namely, do they get the opportunity to interact as often as they reported in the group of classmates could be due to a Type
wish to? The finding regarding frequency and involvement in I error.
interactions where students with ASD participated more The use of COP-2 provided a structured overview of
frequently than classmates in tasks with supposedly less social activities and interaction during a school-day. The protocol is
demands (sequential, none, other) may further emphasize the developed for pre-school classrooms but the focus of the
Developmental Neurorehabilitation

importance of assessing whether the students with ASD protocol is on the social dimension of the activity and not the
perceive that they have the possibility to interact to the extent activity per se, which makes it possible to obtain useful
they want to or not. However, they were not different in regard information regarding social participation also in older school
to their involvement compared with their classmates in these children. However, the aggregated time each child was
tasks. The fact that students with ASD were more involved observed is limited and the observations made in the present
than classmates in non-sequential tasks may also indicate that, study do not claim to capture the full extent of the students’
even if activities that are predictable are perceived as safer to activities and interactions during three school-days. In future
participate in, unstructured tasks can be appreciated and bring research, other means of observations, and other tools for self-
about high levels of involvement. rated participation should be employed, in order to expand the
The outcome that students with ASD were onlookers more knowledge regarding correspondence between self-rated and
often than their classmates may to some extent be due to a observed participation in social interactions and activities for
lack of skills in social participation. This can also partly students with and without ASD.
explain a higher frequency in teacher interactions, since A limitation of the present study was that the children’s
teachers often attend to passive students [39]. An awareness ASD diagnoses were not specified. Furthermore, their
of this pattern may serve as a guide to teachers to facilitate diagnoses were not confirmed by independent researchers.
peer interaction as an alternative to engaging the student in For ethical reasons, possible intellectual impairments were
teacher/student interaction. The importance of the develop- not checked for, medical records were not collected and no
ment of active strategies by teachers to facilitate peer relations assessments of the included students’ social functioning were
rather than engaging in interaction with the student with ASD done. Consequently, the fact that the students with ASD were
is emphasized by findings that frequent, passive, solitary reported to follow the national curricula does not absolutely
activities tend to be associated with social isolation later in ensure that they actually did meet the required standard of the
the child’s life [55]. curricula. It only suggests so. Furthermore, the categoriza-
Some results regarding involvement in activities for tions of children into specific diagnoses included in the ASD,
students with ASD are intriguing. They were observed as such as autism or Asperger syndrome, rely on clinical
more involved in passive instruction tasks that require definitions and are dependent on behavioural assessments
listening skills which, considering the communication which are susceptible to interpretive bias [56]. The manifest-
difficulties related to ASD, is somewhat surprising. ations of these specific diagnoses may vary greatly between
However, passive instructions are a parallel activity with two children with the same diagnosis, which indicates the
limited social demands. This fact may indicate that the subjectivity of determining them [57]. Nevertheless, all ASD
students included in the present study represented a group of diagnoses include manifest impairments in regard to social
children with ASD with good language skills. and communicational abilities and unusual, restricted or odd
behaviours, [45]. These are features that are likely to have a
negative influence on participation regardless of any specific
Limitations
ASD diagnosis [58, 59]. Acknowledging that communication
It could be argued that the perception of being liked by and social difficulties associated with ASD may entail
classmates (Count 5) is not possible to observe. However, an specific challenges, the focus of the present study was to
DOI: 10.3109/17518423.2013.850751 Can you see it too? 9

examine students with ASDs’ perception of participation and 5. Morris C, Kurinczuk JJ, Fitzpatrick R. Child or family assessed
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assumed that the results are primarily valid for a verbal school activities for children with and without disabilities. The
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Developmental Neurorehabilitation

intervention and further research. Journal of Autism and


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17. Ashburner J, Ziviani J, Rodger S. Surviving the mainstream:
The authors thank the participating students, their parents, the Capacity of children with autism spectrum disorders to perform
schools. We also thank AUW-Konsult for their assistance in academically and regulate their emotions and behavior at school.
entering data from the questionnaires. Research in Autism Spectrum Disorders 2010;4:18–27.
18. Gillis M, Callahan E, Romanczyk R. Assessment of social
behaviour in children with autism: The development of the
Declaration of interest behavioural assessment of social interactions in young children.
Research in Autism Spectrum Disorders 2011;5:351–360.
This study was funded by The Department of Education, 19. Pierce K, Glad K, Schreibman L. Social perception in children with
Municipality Council of Norrköping, Sweden, The Swedish autism: An attentional deficit? Journal of Autism and
Inheritance Fund, The Sunnerdahl’s Foundation, The Sven Developmental Disorders 1997;27(3):265–282.
Jerring Foundation and The Clas Groschinsky’s Foundation. 20. Macintosh K, Dissanayake C. A comparative study of
the spontaneous interactions of children with high functioning
The authors report no conflict of interest. The authors alone autism and children with asperger’s disorder. Autism 2006;10:
are responsible for the content and writing of the paper. 199–220.
21. Neuhaus E, Beauchaine T, Bernier R. Neurobiological correlates of
social functioning in autism. Clinical Psychology Review 2010;30:
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