Professional Documents
Culture Documents
HANOI – 2023
MINISTRY OF EDUCATION AND TRAINING MINISTRY OF HEALTH
HANOI MEDICAL UNIVERSITY
Major: Epidemiology
Code: 8720117
HANOI – 2023
ACKNOWLEDGMENT
TABLE OF CONTENT
LIST OF ABBREVIATIONS
LIST OF TABLES
INTRODUCTION ........................................................................................... 1
CHAPTER 1: LITERATURE REVIEW ...................................................... 3
1.1. Dementia .................................................................................................... 3
1.1.1. Definition of Dementia....................................................................... 3
1.1.2. Epidemiology of Dementia ................................................................ 3
1.1.3. Classification of Dementia ................................................................. 7
1.1.4. Diagnosis of Dementia ..................................................................... 10
1.1.5. Dementia care ................................................................................... 12
1.2. Knowledge, attitude, and confidence about dementia care ..................... 14
1.2.1. Definition of KAP survey ................................................................ 14
1.2.2. Assess the knowledge, attitude, and confidence of dementia care .. 15
1.2.3. Knowledge, attitude, and confidence about dementia in the world . 18
1.2.4. Knowledge, attitude, and confidence about dementia in Vietnam .. 22
1.5.Conceptual framework .............................................................................. 26
CHAPTER 2: SUBJECTS AND RESEARCH METHODOLOGY ........ 28
2.1. Duration and location of the study ............................................................ 28
2.2. Study subjects............................................................................................ 28
2.3. Methods ..................................................................................................... 28
2.4. Study variables and indicators .................................................................. 31
Independent variables (exposures): ................................................................. 31
2.5. Research instruments and collection method............................................ 35
2.6. Data management and analysis ................................................................. 37
2.7. Bias and measures to control .................................................................... 38
2.8. Ethical considerations ............................................................................... 38
CHAPTER 3: RESULTS .............................................................................. 39
3.1. Participants‘ Characteristics ..................................................................... 39
3.2. Knowledge, attitude and confidence in dementia care ............................ 42
3.3. Factors associated with knowledge, attitude and confidence in dementia
care .................................................................................................................. 46
CHAPTER 4: DISCUSSION ....................................................................... 60
4.1. Knowledge about dementia ...................................................................... 60
4.2. Attitude toward dementia care ................................................................. 63
4.3. Confidence in dementia care .................................................................... 64
4.4. Key Finding .............................................................................................. 66
4.5. Limitation ................................................................................................. 66
CONCLUSION .............................................................................................. 68
RECOMMENDATION ................................................................................ 69
REFERENCE
LIST OF TABLES
Table 2.1: Sampling frame of nurses in elderly care facilities in Hanoi ........ 29
Table 3.1: Demographic characteristics among nurses................................... 39
Table 3.2: Dementia-related training and experience among nurses .............. 40
Table 3.3: Knowledge about general dementia among nurses (DKAS score) 42
Table 3.4: Knowledge about palliative care for advanced dementia among
nurses .............................................................................................. 43
Table 3.5: Attitude toward general dementia among nurses .......................... 44
Table 3.6: Attitude toward palliative care for advanced dementia among nurse 44
Table 3.7: Confidence in providing dementia care among nurses .................. 45
Table 3.8: Knowledge score about general dementia (DKAS-25) according to
nurses‘ characteristics ..................................................................... 46
Table 3.9: Knowledge score about palliative care for advanced dementia (K-
qPAD-23) according to nurses‘ characteristics .............................. 48
Table 3.10: Attitude score toward general dementia (DAS-20) according to
nurses‘ characteristics ..................................................................... 49
Table 3.11: Attitude score toward palliative care for advanced dementia (A-
qPAD-12) according to nurses‘ characteristics .............................. 50
Table 3.12: Confidence score in providing dementia care (CODE-9)
according to nurses‘ characteristics ................................................ 52
Table 3.13: Multivariable linear regression for factors associated with
knowledge about general dementia................................................. 55
Table 3.14: Multivariable linear regression for factors associated with
knowledge about advanced dementia ............................................. 56
Table 3.15: Multivariable linear regression for factors associated with attitude
toward general dementia ................................................................. 57
Table 3.16: Multivariable linear regression for factors associated with attitude
toward advanced dementia.............................................................. 58
Table 3.17: Multivariable linear regression for factors associated with
confidence in providing dementia care ........................................... 59
LIST OF FIGURES
INTRODUCTION
Dementia is currently the seventh leading cause of death and one of the
major causes of disability and dependency among older people worldwide.1
There is often a lack of community awareness and understanding about
dementia, resulting in stigmatization and barriers to timely diagnosis by
healthcare providers in primary care settings as well as effective care
coordination between healthcare facilities and social support networks,
particularly in low- and middle-income countries.2 In 2015, it was estimated
that there were more than 600,000 people suffering from dementia in
Vietnam.3 4
Vietnam has a low-resource healthcare system where the stress
of family caregiving may be amplified by a lack of community resources,
cultural stigma discouraging the seeking of outside help, and the costs of
care.5 6 There are few dementia-specific healthcare facilities in Vietnam and
there is little training in dementia diagnosis and management for health care
providers.7
In Vietnam, several epidemiological studies in the elderly have been
conducted, providing information about the prevalence of dementia,
associated factors, and patient‘s healthcare needs.8 9
In addition, for the
caregiver population, qualitative and interventional studies have also been
carried out and published respectively, revealing insights into the burden of
care, the need for social support and preliminary effects in reducing distress
and burden of caregivers through psychological interventions.10 11 12 13 14
Chapter 1
LITERATURE REVIEW
1.1. Dementia
1.1.1. Definition of Dementia
Dementia is a syndrome – usually of a chronic or progressive nature – that
leads to deterioration in cognitive function (i.e., the ability to process thought)
beyond what might be expected from the usual consequences of biological ageing.
It affects memory, thinking, orientation, comprehension, calculation, learning
capacity, language, and judgement. Consciousness is not affected. The impairment
in cognitive function is commonly accompanied, and occasionally preceded, by
changes in mood, emotional control, behavior, or motivation18.
1.1.2. Epidemiology of Dementia
Epidemiology of Dementia in the world
The older the age, the higher the prevalence of dementia.
For every five-year increase in age, the incidence of total dementia nearly
doubles, from 1.5% at age 60-69 to 40% at age 90. A panel of experts estimated the
worldwide prevalence of dementia among people aged 60 years and over at 3.9%,
Africa at 1.6%, Eastern Europe at 3.9 %, China 4.0%, Latin America 4.6%,
Western Europe 5.4% and North America 6.4%. Of the causes of dementia,
Alzheimer's disease is the most common, accounting for 50 to 70%, followed by
vascular dementia from 14 to 25%, the rest are other causes19.
About every 20 years, the number of people with dementia doubles. China
and the Western Pacific region have the highest number of people with dementia (6
million), followed by the European Community (5 million), the United States (2.9
million) and India (1.5 million). The rate of increase in the number of dementia
patients varies greatly by region, three to four times higher in developing countries
than in developed countries. As a result, the proportion of people with dementia in
developing countries will increase from 61% (in 2000) to 65% (in 2020) and 71%
(in 2040)20.
4
of dementia in this study was 4.5% (4.3% in man and 4.7% in woman). This
prevalence increased by age. A significant relation between this prevalence of
dementia and age, level of education, history of stroke, Parkinson‘s disease and
familial history of dementia was observed23.
A cross-sectional study was performed in 342 elderly people (≥60 years of
age) in 2019. Information was collected through the Mini-Cog dementia screening
scale and prepared interview questions on socio-demographic characteristics, living
habits and sleep quality. The results showed that the rate of dementia in the elderly
was 33%. The proportion of elderly people with poor sleep quality was 78.1%. The
prevalence of dementia increases with age. The higher the education level, the
frequency of exercise, the frequency of social activities, the lower the rate of
dementia. People with poor sleep quality had higher rates of dementia than people
with good quality24.
A cross-sectional study was conducted by Dr. Tran To Tran Nguyen in 2019,
among inpatients aged ≥60 years in the geriatrics departments at three acute care
hospitals in Ho Chi Minh City, Vietnam to measure the prevalence of dementia,
evaluate their caregivers‘ understanding of dementia, and explore the caregivers‘
wishes for support services. Dementia was diagnosed by Diagnostic and Statistical
Manual-5 (DSM-5) criteria. A total of 367 participants were recruited with the
mean age of 77.5±9.2 years, females being 59.7%. The prevalence of dementia and
mild cognitive impairment were 24.3% and 14.4%, respectively. The vast majority
of the caregivers had a low level of understanding of dementia (92.1%), and 74.2%
of them reported a need for help in caregiving. The caregivers wished for help from
relatives and supportive home-care services from someone they could hire.9
Risk factors of Dementia25
Many factors can eventually contribute to dementia. Some factors, such as
age, can't be changed. Others can be addressed to reduce your risk.
Risk factors that can't be changed:
6
Age. The risk rises as you age, especially after age 65. However, dementia
isn't a normal part of aging, and dementia can occur in younger people.
Family history. Having a family history of dementia puts you at greater risk
of developing the condition. However, many people with a family history never
develop symptoms, and many people without a family history do. There are tests to
determine whether you have certain genetic mutations.
Down syndrome. By middle age, many people with Down syndrome
develop early-onset Alzheimer's disease.
Risk factors you can change: You might be able to control the following
risk factors for dementia.
Diet and exercise. Research shows that lack of exercise increases the risk of
dementia. And while no specific diet is known to reduce dementia risk, research
indicates a greater incidence of dementia in people who eat an unhealthy diet
compared with those who follow a Mediterranean-style diet rich in produce, whole
grains, nuts and seeds.
Excessive alcohol use. Drinking large amounts of alcohol has long been
known to cause brain changes. Several large studies and reviews found that alcohol
use disorders were linked to an increased risk of dementia, particularly early-onset
dementia.
Cardiovascular risk factors. These include high blood pressure
(hypertension), high cholesterol, buildup of fats in your artery walls
(atherosclerosis) and obesity.
Depression. Although not yet well-understood, late-life depression might
indicate the development of dementia.
Diabetes. Having diabetes may increase your risk of dementia, especially if
it's poorly controlled.
Smoking. Smoking might increase your risk of developing dementia and
blood vessel diseases.
7
Although not all causes of Alzheimer's disease are known, experts do know that a
small percentage are related to mutations of three genes, which can be passed down
from parent to child. While several genes are probably involved in Alzheimer's
disease, one important gene that increases risk is apolipoprotein E4 (APOE).
Alzheimer's disease patients have plaques and tangles in their brains. Plaques are
clumps of a protein called beta-amyloid, and tangles are fibrous tangles made up of
tau protein. It's thought that these clumps damage healthy neurons and the fibers
connecting them.
Vascular dementia. This type of dementia is caused by damage to the
vessels that supply blood to your brain. Blood vessel problems can cause strokes or
affect the brain in other ways, such as by damaging the fibers in the white matter of
the brain.
The most common signs of vascular dementia include difficulties with
problem-solving, slowed thinking, and loss of focus and organization. These tend to
be more noticeable than memory loss.
Lewy body dementia. Lewy bodies are abnormal balloon like clumps of
protein that have been found in the brains of people with Lewy body dementia,
Alzheimer's disease and Parkinson's disease. This is one of the more common types
of progressive dementia.
Common signs and symptoms include acting out one's dreams in sleep,
seeing things that aren't there (visual hallucinations), and problems with focus and
attention. Other signs include uncoordinated or slow movement, tremors, and
rigidity (parkinsonism).
Frontotemporal dementia. This is a group of diseases characterized by the
breakdown of nerve cells and their connections in the frontal and temporal lobes of
the brain. These are the areas generally associated with personality, behavior and
language. Common symptoms affect behavior, personality, thinking, judgment, and
language and movement.
9
Mixed dementia. Autopsy studies of the brains of people 80 and older who
had dementia indicate that many had a combination of several causes, such as
Alzheimer's disease, vascular dementia and Lewy body dementia. Studies are
ongoing to determine how having mixed dementia affects symptoms and
treatments.
1.1.3.2. Other disorders linked to dementia
Huntington's disease. Caused by a genetic mutation, this disease causes
certain nerve cells in your brain and spinal cord to waste away. Signs and
symptoms, including a severe decline in thinking (cognitive) skills, usually appear
around age 30 or 40.
Traumatic brain injury (TBI). This condition is most often caused by
repetitive head trauma. Boxers, football players or soldiers might develop TBI.
Depending on the part of the brain that's injured, this condition can cause dementia
signs and symptoms such as depression, explosiveness, memory loss and impaired
speech. TBI may also cause parkinsonism. Symptoms might not appear until years
after the trauma.
Creutzfeldt-Jakob disease. This rare brain disorder usually occurs in people
without known risk factors. This condition might be due to deposits of infectious
proteins called prions. Signs and symptoms of this fatal condition usually appear
after age 60.
Creutzfeldt-Jakob disease usually has no known cause but can be inherited. It may
also be caused by exposure to diseased brain or nervous system tissue, such as from
a cornea transplant.
Parkinson's disease. Many people with Parkinson's disease eventually
develop dementia symptoms (Parkinson's disease dementia).
1.1.3.3. Dementia-like conditions that can be reversed
Some causes of dementia or dementia-like symptoms can be reversed with
treatment. They include:
10
D. The cognitive deficits in Criteria A1 and A2 are not due to any of the
following:
3. Substance-induced conditions
F. The disturbance is not better accounted for by another Axis I disorder (e.g.,
12
Currently in Vietnam, we can contact the aged care service: 1800 6896
(Hanoi) or 1800 6894 (Ho Chi Minh). This is very helpful when starting a search
for a care coordinator; often, this service is often linked to home care packages.
c) Dementia and rehabilitation services
People with dementia will benefit from maintaining a healthy and active
lifestyle that contributes to improved health and well-being, including:
• Exercise regularly
• Maintain a healthy diet
• Monitor your weight periodically and contact help during weight change
• Maintain oral health through regular checkups
• Stay engaged in meaningful and enjoyable activities
• Maintain daily routines
• Maintain contact in social activities
• Manage other health problems (comorbidities)
d) Caregiver support
Taking care of and supporting someone with a disability or illness for a long
time is stressful and can be exhausting
Caregivers need support to maintain the physical and mental health of
themselves and the patients they care for. They also need advice on how to get
better. As well as having access to many services and being able to get support
when needed
e) End of life care
As the disease progresses, more emphasis is placed on palliative care (or
hospice).
Planning and preparing for this phase will help the person with dementia have
a pleasant end, consistent with the aspirations they have expressed and documented
in the ―planning‖ documents. early care‖ or a pre-prepared care plan. It should be
14
particularly noted that these documents should be prepared soon after diagnosis and
reviewed periodically to ensure that the wishes of the person with dementia are
being met. In some cases, it is possible to find a lawyer who understands the
patient's wishes.
f) Value in care
Healthcare professionals and aged care workers should provide patient-
centered care by recognizing and responding to the needs and aspirations of each
person with dementia, caregiver and the patient's family. The following 10
principles of genuine value in care serve as standards for implementing and
evaluating care. If care is not being delivered according to these guidelines, it
should be discussed with the healthcare provider.
1.2. Knowledge, attitude, and confidence about dementia care
1.2.1. Definition of KAP survey
Based on researches:
• Types/ titles of work 16
• Number of working years 16
• Level of confidence 16
• Knowledge 31
• Feelings 31
16
Therefore, in the scope of this study only focuses on factors associated with
the three components that influence practice: knowledge, attitude and confidence.
In this study, four tools were selected for overview: DKAS, DAS, qPAD
(two parts) and CODE. In which, DKAS, qPAD-23 for knowledge assessment;
DAS, qPAD-12 for attitude assessment and CODE for confidence assessment.32 33
34 35
In particular, the qPAD scale was introduced to measure long-term care staff
knowledge and beliefs, perceptions, and attitudes about palliative and end-of-life
care for persons with advanced dementia.36
part instrument that measures long-term care staff knowledge, and beliefs,
perceptions, and attitudes about palliative and end-of-life care for persons with
and Intuition (coefficient a = .75, .73, and .58, respectively), explaining 67% of the
total variance. Factor analyses of the Attitude Scale (coefficient a= .83) produced 3
factors: Job Satisfaction, Perceptions and Beliefs, and Work Setting Support of
Families (coefficient a = .90, .64, and .67, respectively), explaining 68% of the total
variance. These initial findings hold promise for an instrument that measures both
knowledge and attitudes of long-term care staff in the care of persons with
advanced dementia
was used to measure confidence in working with people with dementia. The Kaiser-
size is sufficient relative to the number of items in the scale. The KMO if an item
was deleted was above 0.8 for each item; this represents good sample adequacy.
The questionnaire was scored on a five-point Likert scale with anchored ratings of
‗not confident‘, ‗somewhat confident‘, and ‗very confident‘. This meant that it was
possible to gain a total score between 9 and 45, with a higher score representing
better confidence in working with people with dementia. The Cronbach alpha value
was 0.91 and the overall KMO was 0.90, suggesting that the scale had good internal
Pilot
Control group:
Windy Randomize
40:40 Health 35.1±8.0/50 (post)
Chan 2020 Hongkong d
43 professionals Intervention group:
Controlled
(80) 36.9±8.0/50 (post)
Trial
Chong Kar
a private hospital Cross-
Lim et al 102 nurses 23.59±6.79/50
in Perak, Malaysia sectional
2021 44
institutions of long-
Regula Blaser cross-
term care in the
and Barset 417 nurses sectiona
48
German-speaking 114.67±13.51 /140
2017 l
part of Switzerland
20
Anthony cross-
in a hospital in 132 full-time
Scerri et al sectiona 99.45±12.52/140
Malta staff
2019 49 l
1069 Pre-and-
Helen Chan 218 facilitators in Pre: 102.2±12.0/140
healthcare post
et al 2020 40 China Post: 112.0±11.2/140
staff study
Universitas cross-
Sunaryo et al 334 nursing
Gadjah Mada, sectiona 99.60±10.25/140
2020 41 students
Indonesia l
Nico cross-
University of 113
Saccasan sectiona 107.5±12.52/140
Malta, Malta practitioners
2020 51 l
cross-
Anhong 325 medical
China sectiona 89.10±8.93/140
Dong 2021 52 students
l
Pre: K: 14.3±2.6/23
Miharu long-term care
60 nursing Pre-and- A: 43.8±6.2/60
Nakanishi 2014 facilities in
home staff post study Post: K: 15.1±2.8/23
53 Japan
A: 45.2±6.2/60
Dementia
special care
Carol Long 129 care staff Pre-and- Pre: K: 15.13±3.46/23
units in 3 large
2017 56 and managers post study Post: K: 16.17±3.53/23
nursing homes
in New York
Australian
Tim Luckett 2019 290 nursing Cross- K: 15.2±2.8/23
57
long-term care
staff sectional A: 47.7±5.9/60
(LTC)
241 nursing
Three of the largest
staff, head
Mara metropolitan T1: 23.77±6.84 /45
nurses, Pre-and-
Gkioka general hospitals of T2: 31.43±6.08/45
physiotherapists post study
2020 60 Thessaloniki- T3: 32.31±5.77/45
, administrative
Greece
staff.
A university
Clarissa
hospital in the Cross-
Shaw 2021 65 nursing staff 33.9±4.9/45
62
midwestern United sectional
States
• Age 41
• Experience of dementia caregiving 37 41 45
• Geographic location 37
• Dementia education 37 38 43 45
• Self-rated knowledge 37 38
• Length/practice time of dementia care 46
• Work in geriatrics 46
• Highest level of education 50
• Experience of searching for dementia information 50
• Willingness to receive dementia training 50
• Unit/department size 66
24
• Age 41
• Gender 47
• Knowledge 41
• Types/ titles of work 47
• Types of departments 48 50
• Experience of dementia care 50
• Length/practice time of dementia care 47 50
• Interest in dementia care 50
• Dementia education 47 67
• Communication skill 66
• Ethical dilemmas 66
• Psychological factors (fear or frustration) 66
Factors associated with confidence of dementia care
In this study, we will only conduct the study in the Department of Geriatric
and Mental Health - the satellite geriatric unit with 17 nurses.
In this study, we will only conduct the study in the Department of Geriatrics
- the satellite geriatric unit with 12 nurses.
Dien Hong Nursing Centre: Dien Hong Nursing Centre is a private nursing
home established in September 2014. Currently, this center become a reliable
26
address for families with elderly people, people suffering from accidents, and
occupational accidents in Hanoi and other provinces in the country.
Dien Hong Nursing Center has 4 facilities located in three urban districts of
Hanoi, with more than 100 employees. In which, the team of daily care specialists
consists of 78 nurses in all facilities.
The center established a single facility located in the city center with 72 beds
and more than 50 employees. In which, the team of daily care specialists consists of
10 nurses.
Components of framework:
Diagram:
27
Chapter 2
SUBJECTS AND RESEARCH METHODOLOGY
2.1. Duration and location of the study
Study setting: The study was conducted from 01/08/2022 - 30/05/3023. The
data was collected from 01/12/2022 – 31/03/2023 in National Geriatric hospital, E
hospital, Dong Da general hospital and three nursing homes named Dien Hong,
Nhan Ai and Orihome in Hanoi.
2.2. Study subjects
Participants in the study are nurses who work in:
+ 12 clinical departments of the National Geriatric Hospital.
+ 2 geriatric departments of 2 general hospitals: Dong Da hospital and E
hospital.
+ 3 nursing home systems: Nhan Ai Elderly Care Center, Orihome Elderly
Care Center, Dien Hong Nursing Center (4 facilities).
Inclusion criteria:
Working with full-time employment
Have worked at least 1 month in a clinical department
Exclusion criteria:
Refuse to participate in the study
2.3. Methods
Study design: A cross-sectional study
Sample size calculation: Key nonfamily long-term care sources using
nurses as the primary care workforce include nursing homes, nursing centers,
rehabilitation hospitals, geriatric hospitals and general hospitals with geriatric
departments.71
Sample size formula: The sample size was calculated based on the primary
outcome. This study used the knowledge outcome for calculating, which is the
nurses‘ dementia knowledge using the Dementia Knowledge Assessment Scale
(DKAS). An early study examined sample of nurses using the same instruments and
reported mean knowledge scores of 23.59±6.79/50.44 Using this score as a reference
for sample size calculation with a 95% confidence interval, a beta error of 10% and
an alpha of 0.05, the required sample size was calculated using this formula:
• ES = μ /σ; μ = 1; σ = 6.79
• Zα/2 = 1.96
• Zβ = 1.28
A sample size of 484 was required for an infinite population. Because the
study population is a finite population with 576 full-time nurses working in geriatric
units (Table 1), a sample correction formula called Modified Cochran Formula for
Small Populations was used to minimize the sample size:
[ ]
Hence, the sample size was minimized to 264. Considering a response rate of
86.5% from a previous survey study on healthcare workers in Vietnam, 307
participants were needed in the study. 73
Sampling: Since the study needed to select a total 307 people out of 576. In
this study, a multi-step sampling was used to recruit enough nurses.
Cluster sampling: In the next step, the study needed to recruit: 307 - (181 -
31
15) = 141 more nurses out of 395 from all the rest facilities in the sample frame. In
this stage, cluster sampling was applied to cluster units that are facilities. Each
facility or department counts as a cluster and was classified into three categories
based on their size (2 large, 4 medium and 11 small). Therefore, we randomly
selected at least 1 large cluster, 1 medium cluster and 3 small clusters by computer
software to recruit enough 141 people which includes nurses from all sizes of
clusters. Then, all nurses in these selected clusters were invited to participate in the
study.
Sampling results: Dien Hong Nursing Center (large cluster), Nhan Ai Elderly
Care Center (medium cluster), OriHome Elderly Care Center, Dong Da – geriatric
department and E – geriatric and mental health department (small clusters) were
randomly selected units. In fact, combined with the nurse population in NGH, a
total number of 313 nurses in all selected facilities were eligible to enter the study.
Table of variables:
Var group Var name Definition Var type
2-year Diploma
(BSN)
Seniority in
Time (in years) of nursing experience continuous
healthcare
most: 75-100%
General 20 items
continuous
attitude Likert 7 scale
The Dementia Attitude Scale (DAS) was used to assess nurses‘ attitudes
toward dementia care. It reflects the affective, behavioral, and cognitive
components of their attitudes toward dementia into a two-factor structure with the
first factor covering ―dementia knowledge‖ (cognitive items) and the second factor
covering ―social comfort‖ (affective and behavioral items forming a single factor).76
The instrument consists of 20 items on a seven-point Likert scale with responses
ranging from 1 (strongly disagree) to 7 (strongly agree). The total scores achievable
for this scale ranged from 20 to 140, with a higher score indicating a more positive
attitude toward the provision of dementia care.
continuous independent variables with each KAC score while Pearson correlations
were used to measure the extent of correlation between the individual KAC scores.
Initial examination of the regression models indicated no multicollinearity. All
three linear mixed models have approximately zero variance in the random-effect
parts and LR tests with p>0.05, therefore multivariate linear regression models were
reported in this thesis. The assumptions required for the linear regression were not
violated.
2.7. Bias and measures to control
Mainly related to information bias due to measurement instruments used.
How to fix:
Reviewing the questionnaire.
Conduct a pilot investigation and make appropriate corrections.
Remind the research subject to read the question carefully.
Review the answer sheet for completeness and request re-completion if there
is missing information.
2.8. Ethical considerations
This study was approved by the Hanoi Medical University Institutional
Ethical Review Board (786/IRB HMU).
39
Chapter 3: RESULTS
3.1. Participants’ Characteristics
There were 269/313 nurses who completed all assessments and included
were included in the analysis (response rate 86%).
Table 3.1: Demographic characteristics among nurses
Nurse in Nurses in
nursing homes geriatric units Total
p
(n=111) (n=158)
% % %
13.02±17.2
Number of patients (person) 20.91±23.66 7.48±6.35 <0.001
4
Most of nurses were female (78.8%), lived in rural areas during their
childhood, living in urban areas currently (79.6%) and had 3-year Bachelor of
Nursing degrees (55.4%). The mean of age and seniority in healthcare were 31 and
6.34 years respectively. The average number of patients in per day was 13.
Between the two groups, very few nursing home nurses had lived in urban
40
areas during their childhood. Most nursing home nurses had 2-year Diploma and 3-
year Bachelor degrees in Nursing while 4-year Bachelor of Science and 3-year
Bachelor were common degrees accepted in hospitals. Hospital nurses have a
higher average age and seniority than nurses working in nursing homes, while the
data is contrary to the number of patients they have to care for, with nursing home
nurses having to care for nearly three times as many as hospital nurses.
Table 3.2: Dementia-related training and experience among nurses
Nurse in Nurses in
nursing homes geriatric units Total
p
(n=111) (n=158)
% % %
Rare (<20%) 11.7 24.7 19.3
Percentage
Less than half (21%-49%) 21.6 46.2 36.1
of dementia <0.001
Half or more (50%-74%) 41.4 26.6 32.7
patients
Most (75%-100%) 25.2 2.5 11.9
Dementia-related training in the workplace
Trained in neuroscience Yes 37.8 47.5 43.5 0.117
Trained in psychology Yes 30.6 44.3 38.7 0.023
Trained in geriatric Yes 47.7 84.2 69.1 <0.001
Trained in dementia pathology Yes 45.9 62.0 55.4 0.009
Trained in dementia hands-on care Yes 68.5 65.8 66.9 0.650
Dementia information seeking channels
Non-specialist channels Yes 68.5 65.8 66.9 0.650
Specialist channels Yes 45.1 52.5 49.4 0.227
Expert consultation Yes 18.0 39.2 30.5 <0.001
Mean ±SD Mean ±SD Mean ±SD p
Previous training score (0-5) 2.31±1.74 3.04±1.78 2.74±1.80 <0.001
Seniority in dementia care (year) 1.79±2.54 3.79±4.03 2.96±3.63 <0.001
Self-evaluation (0-10) 5.35±2.07 5.04±1.91 5.17±1.98 0.212
Desired level in dementia training (0-10) 8.10±2.16 7.65±1.90 7.84±2.02 0.074
In terms of percentage of patients with dementia in the total number patient
41
that nurses have to care for, majority of nursing home nurses have from 20%-100%
of dementia patients with mainly more than half of patients suffering from
dementia, while this figure in the hospital ranged from 0-74% with most dementia
cases accounting for less than half of all patient (p<0.001).
In the workplace, there was no difference in the percentages of training in
neuroscience and dementia care between the two groups, while the percentages of
training in psychiatry, geriatrics and dementia pathology in the hospital nurse group
were statistically significantly higher (p<0.05). In particular, dementia-specific
training such as hands-on care was more commonly implemented in the workplace
at over 65% compared to around 50% at the undergraduate level in both nurse
groups, while pathology training for both undergraduate and postgraduate nursing
home nurses remained below 50%.
Regarding the information seeking channels, while most nurses searched for
dementia information through non-specialist channels, less than half sought
dementia information through specialist channels and consulted experts. Especially
with expert consultation, hospital nurses had a significant higher rate of consulting
(p<0.001).
In both groups, nurses self-rated their knowledge as relatively modest with mean
scores of approximately 5/10 points and were highly eager for dementia-related
training with mean scores of approximately 8/10.
42
Knowledge about general dementia (max 2 points each item, max 50 points in total)
<0.00
Causes and characteristics (7 items) 5.95±2.87 7.51±3.24 6.87±3.18
1
Table 3.4: Knowledge about palliative care for advanced dementia among nurses
(K-qPAD-23 score)
Nurse in Nurses in
nursing homes geriatric units Total
(n=111) (n=158) p
Knowledge of palliative care in advanced dementia (1 point each right item, max 23 points in total)
The overall mean qPAD-23 score of survey respondents was 12.74/23 points.
In which, a quite good level of knowledge in ―Preventing Negative Outcomes‖ was
reported while the score for ―Anticipating Needs‖ for people with dementia was
poor.
Between the two groups, hospital nurses showed better performance in
almost aspects of palliative care. They showed more understanding in anticipating
care needs for advanced cases and also more knowledgeable in preventing negative
outcomes for patients than nursing home nurses (p<0.001 and p=0.040).
44
Attitude toward dementia (max 7 points each item, max 140 points in total)
Nurse in Nurses in
nursing geriatric
Total
homes units p
(n=111) (n=158)
Total Advanced Attitude score (12 items) 45.09±6.50 43.29±5.96 44.03±6.24 0.020
Job Satisfaction (7 items) 25.69±4.00 24.39±4.08 24.93±4.09 0.010
Perceptions and Beliefs (3 items) 11.18±2.07 10.73±1.82 10.92±1.94 0.063
Confidence in dementia care practice (max 5 points each item, max 45 points in total)
With a mean score of 28.26/45 for entire nursing sample, which corresponds
to the ―somewhat level‖ according to the author, nurses showed that they were not
confident in providing dementia care.
In comparison between two groups, nursing home nurses self-reported
greater confidence with 29.42/45 points compared to 27.44/45 points for hospital
nurses.
46
DKAS score
Mean ± SD p
No 28.9 9.0
Non-specialist channels 0.268
Yes 27.7 7.5
DKAS score
Mean ± SD p
No 26.7 7.9
Expert consultation <0.001
Yes 31.3 7.5
rho sig
(T-test, ANOVA and spearman correlation analysis; ª post-hoc test after ANOVA)
Table 3.8 shows factors associated with the nurses‘ knowledge score about
general dementia. Having a 4-year BSN degree in comparison with 2-year Diploma,
actively seeking information about dementia through specialist channels and expert
consultation, older age, having been trained previously in more related disciplines,
greater seniority in healthcare and dementia care, and higher desired level of
dementia training were associated with a higher total knowledge score (p<0.05).
48
Table 3.9: Knowledge score about palliative care for advanced dementia (K-
qPAD-23) according to nurses’ characteristics
K-qPAD-23 score
Mean ± SD p
Male 12.7 3.1
Sex 0.989
Female 12.7 3.5
2-year Diploma 11.3 3.5
Highest qualification 3-year BN 12.3 3.5 <0.001
of nursing degree 4-year BSN 13.9 2.9 <0.05ª
+2 years MSN/CNS 14.9 2.4
Nurse staff 12.5 3.4
Position 0.014
Chief nurse 14.1 2.8
Rare (≤20%) 12.7 3.3
Percent of patients Less than half (21-49%) 13.3 3.8 0.039
with dementia Half or more (50-74%) 12.7 3.2 0.025ª
Most (75-100%) 11.3 2.8
No 12.5 3.4
Non-specialist channels 0.452
Yes 12.9 3.4
No 12.2 3.6
Specialist channels 0.004
Yes 13.3 3.1
No 12.4 3.4
Expert consultation 0.011
Yes 13.5 3.4
rho sig
Age (years) 0.25 <0.001
Number of patients (persons) -0.06 0.348
Seniority in healthcare (years) 0.36 <0.001
Previous training (0-5) 0.20 0.001
Seniority in dementia care (years) 0.28 <0.001
Self-rated confidence in knowledge (0-10) 0.08 0.176
Desired level in dementia training (0-10) 0.14 0.022
(T-test, ANOVA and spearman correlation analysis; ª post-hoc test after ANOVA)
ª: Dip<BSN p=0.002, Dip< MSN p=0.043; BN<BSN p=0.004
49
Table 3.9 shows factors associated with the nurses‘ knowledge score about
palliative care for advanced dementia. Higher nursing degree, working as a chief
nurse, actively seeking information about dementia through specialist channels and
expert consultation, older age, having been trained previously in more related
disciplines, greater seniority in healthcare and dementia care, and higher desired
level of dementia training were associated with a higher total advanced knowledge
score (p<0.05).
Table 3.10: Attitude score toward general dementia (DAS-20) according to
nurses’ characteristics
DAS score
Mean ± SD p
Male 103.2 12.9
Sex 0.489
Female 101.8 13.5
Percent of patients with Less than half (21-49%) 100.7 13.0 0.021
dementia Half or more (50-74%) 105.6 13.1 0.039ª
No 102.3 13.1
Non-specialist channels 0.907
Yes 102.1 13.5
No 99.9 13.5
Specialist channels 0.007
Yes 104.3 12.9
50
DAS score
Mean ± SD p
No 101.7 13.9
Expert consultation 0.423
Yes 103.1 12.0
rho sig
(T-test, ANOVA and spearman correlation analysis; ª post-hoc test after ANOVA)
The percentage of patients with dementia from 50-74% in comparison with
<20% that they cared for, specialist channels seeking, the higher average number of
patients received their care on a daily basis, self-rated knowledge, desired level of
dementia training were associated with more favorable attitudes toward dementia
care (p<0.05).
Table 3.11: Attitude score toward palliative care for advanced dementia
(A-qPAD-12) according to nurses’ characteristics
A-qPAD-12 score
Mean ± SD p
Male 44.9 6.0
Sex 0.241
Female 43.8 6.3
A-qPAD-12 score
Mean ± SD p
No 44.2 6.6
Non-specialist channels 0.756
Yes 44.0 6.1
No 43.4 6.1
Specialist channels 0.070
Yes 44.7 6.3
No 44.4 6.1
Expert consultation 0.198
Yes 43.3 6.5
rho sig
(T-test, ANOVA and spearman correlation analysis; ª post-hoc test after ANOVA)
Working as a chief nurse, the higher percentage of patients with dementia,
self-rated knowledge and greater desired level of dementia training were associated
with more favorable attitudes toward advanced dementia care (p<0.05).
52
CODE score
Mean ± SD p
No 27.8 7.2
Non-specialist channels 0.457
Yes 28.5 6.0
CODE score
Mean ± SD p
No 28.6 6.4
Expert consultation 0.186
Yes 27.5 6.5
rho sig
<0.00
Self-rated confidence in knowledge (0-10)
0.33 1
(T-test, ANOVA and spearman correlation analysis; ª post-hoc test after ANOVA)
In terms of the total confidence score, male sex, chief nurse position, the
greatest percentage of patients with dementia (75-100%) and higher self-rated
knowledge were associated with greater confidence (p<0.05).
54
Table 3.13: Multivariable linear regression for factors associated with knowledge
about general dementia
DKAS score
Coef 95%CI
3-year BN (ref)
Seniority in healthcare
0.29* (0.03; 0.56)
(years)
Table 3.14: Multivariable linear regression for factors associated with knowledge
about advanced dementia
K-qPAD-23 score
Coef 95%CI
3-year BN (ref)
21%-49% (ref)
Table 3.16: Multivariable linear regression for factors associated with attitude
toward advanced dementia
A-qPAD-12 score
Coef 95%CI
21%-49% (ref)
Table 3.17: Multivariable linear regression for factors associated with confidence
in providing dementia care
CODE score
Coef 95%CI
Chapter 4:
DISCUSSION
searching through non-specialist channels such as internet may not be accurate and
seeking through specialist channels (guidelines of the Ministry of Health/guidelines
of dementia organizations/medical textbooks) can lead to misleading without visual
explanation. Improving physician group collaboration and communication, as well
as explaining the roles of other multidisciplinary team members in dementia care,
81
were also explored. Therefore, receiving useful information and having face-to-
face discussions with specialist doctors and nurses seemed more significant to
nurses than self-learning resources and need to encouraged in the workplace as well
as ensuring quality counselors in non-hospital settings. Weaker associations with
number of years of professional experience (greater length of service associated
with higher DKAS score) and desired level in dementia training (higher self-
reported desired level associated with higher DKAS score) were also identified and
82 37 83
in line with other prior findings. This suggests that understanding is
delineated by experience and regular interaction with people who live with
dementia. The explanation might be experience of working in the caring job could
be perceived as a route into finding relevant dementia information and improving
knowledge. Understanding the processes and having frequency in interacting with
both health care professionals and patients contributed to being able to be proficient
in knowledge. Although multivariate examination of our results did not reveal an
association between prior education and dementia knowledge, they contribute to the
84
validation of existing evidence. In an earlier regional study, education seemed to
increase dementia understanding among Australian health professionals
85
independent of demographic factors and personal experience. The current study
supports these findings and suggests potential routes for developing effective
interventions. In the future, further discovery should be conducted to explore the
extent to which evidence-based dementia education can increase health professional
63
knowledge and whether this knowledge change translates into better care and
patient outcomes.
total knowledge and confidence score and the same situation for the previous
training factor. Therefore, future research could explore if there is a relationship
between confidence and specific categories of knowledge that might be more
pertinent to hands-on care activities. Confidence improved after training in various
interventions, which might be attributed to the program's inclusion of the factors
58 59 63
previously mentioned. Clarifying which components of knowledge are
critical to confidence will aid in the development of more successful training
programs.
4.4. Key Finding
This is the first study to explore knowledge, attitudes, and confidence in
providing dementia care among nurses in different aged care facilities in Vietnam.
Specifically, this is also the first study on the capacity of the healthcare workforce
in nursing homes in the country, a common form of elderly care facilities in the
world but still relatively new in Vietnam and only was invested in the central cities
of the three regions. The findings suggested the surveyed nurses had insufficient
knowledge, a low level of positive attitude related to social comfort towards
dementia cases and were not really confident in providing care. Ineffective
communication between nurses and patients was identified as the most challenging
of all KAC aspects in dementia care practice. Prior seeking of dementia information
through expert consultation was found to be associated with better dementia
knowledge. A positive correlation was reported between the knowledge and attitude
scores, and between the attitudes and confidence scores. This study implies that a
national strategy on dementia care training and the development of a dementia
curriculum for learners in nursing at both undergraduate institutions and workplaces
in Vietnam are critical.
4.5. Limitation
This study has some limitations. The cross-sectional study design limits the
ability to establish causal relationships, only concluding associations between
factors and KAC scores. Secondly, because the study sample included nurses from
67
the national specialty hospital, their capacity may be superior to the target nursing
population in Hanoi as well as in the region and is a limitation on the generalization
of our findings. Thirdly, the self-administered questionnaires could lead to
inaccuracies in knowledge outcomes because nurses randomly selected the correct
answer instead of honestly answering that they did not know, or positive inflations
in the responses about attitudes and confidence. For capacity assessment as well as
in real practice, checklists for evaluating clinical performance in dementia care are
ideal and need to be developed in the future. Finally, besides personnel factors that
have been studied in this study, it is necessary to consider environmental factors
and barriers that hinder good care practice in further studies.
68
CONCLUSION
RECOMMENDATION