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TERMINALLY ILL
AND A DYING
PATIENT
Structure
10.0 Objectives
10.1 Introduction
10.0 OBJECTIVES
After studying this practical, you should be able to:
10.1 INTRODUCTION
All of us are aware of the fact that death is an inevitable certainity. Yet, it
involves considerable channelization of coping mechanism of a dying person
and also the care providers/relatives to face this certainty. Knowledge and
understanding of these are important for giving effective care. This practical
presents some of the basic ideas that you will require to nurse a terminally ill
or a dying patient. While studying this practical it is essential for you to keep
contact with dying or grieving family in order to develop the understanding of
a process of dying. This practical will focus on adoption to the dying process
in which nursing interventions serve vital importance to a peaceful and
98 dignified death.
Care of Terminally HI
10.2 TERMINAL ILLNESS AND EMOTIONAL and a Dying Patient
STAGES
Patients who have lost hope to get well are termed as terminally ill patients.
You might have experienced while nursing patients in the ward that knowledge
of terminal illness is shocking for some patients and disturbing to every patient.
Patient usually reacts by denial or feeling of anger, envy or resentment.
Denial
Anger
Physical comforts and realistic hope form the basis of nursing care of such
patient. The patient should feel that life is well spent. To do so you need to
have the knowledge of different emotional stages through which such patients
usually go through.
You may also come across such patients or circumstances in which the dying
patient may not move through all the emotional stages or any of the stage may
be interrupted by sudden death in accident, heart attack, etc. which will take
only few minutes or hours to pass all emotional stages. Therefore, it is
important for you as nurse that you should recognize unique nature of
emotional reaction to death in different patients. Some of these reactions you
may recall from your earlier experience with patient approaching death could
be.
Panic
Negotiation
You would have also experienced in hospitals and otherwise the patient tries to
negotiate with self/God about death. In the process he/she is also likely to come
in conflict with self or God and may resolve to leave living with such bargain.
You may recall some of your reaction in such situations, which reinforced
patient's negotiations rather than remaining realistic. Your realistic approach in
this should be directed in understanding patient, respect his decision and help
him to accept reality.
Commitment
This is the phase when realistic hope moves into acceptance, or it may be a
despair ending in resignation. Hope (acceptance) is confirmed in assurance
when patient feels that everything will be all right whereas in resignation the
patient gives into inevitable. Nurse plays important role in building hope in
patients.
C;ompletion
This is the stage when finally death approaches the patient and life either with
a sense of fulfillment or hopelessness. In fulfillment stage patient dies in peace
and dignity and enriches life of those around. Hopelessness stage make patient
to tolerate each pain and welcome death as end to suffering. Nurses in such
situations are prone to get emotionally involved and may find difficulty in
helping family and patient. Therefore, you are in such a situation it is important
for your to express your feelings with fellow nurse, supervisor or even priest.
At least when patient has found some peace and wish to be alone, he/she may
be allowed this. Communication usually is non-verbal. Visitors may be limited
to close relations/friends. The patient at this point may wish to make/alter will
or express gratitude to his close and dear relatives.
................................................................................................... : .
100
Care of Terminally III
10.3 NURSE AND PATIENT'S PERCEPTION and a Dying Patient
OF DEATH
In this section you will learn about the perception of death by the nurse and the
patient and implication of these in nursing care.
No matter how skillful a nurse may be in the care of a living patient, but her
approach to dying patient is typical with some feeling of uncertainity,
helplessness, and anxiety.
Uncertainty because of her best effort to comfort has not helped. Helplessness
comes because she is not able to sustain patient's life. Feels anxious how to
communicate this painful matter to patient and relative, etc. All those feelings
become quite taxing for a nurse. She is likely to loose hope of attaining and
maintaining the goal of health. She often tries to disassociate from the death
and patient itself. Unconsciously or consciously tries to indulge in nursing task,
equipment, disease process, and superficial conversation to hide fear of death
and like. Nurse may even avoid contact with dying patient. This behaviour of
nurses in many studies in described as slow response of nurses in answering
terminally ill patient's signals. In the light of these it is important for you to
analyze and understand your own behaviour as nurse that may cause you
discomfort. You should express your discomforting feelings with your senior
nurse and supervisor or doctor to help you to ease these so that you face your
patient confidently and help him purposefully in coping with the inevitable.
You have seen in hospitals that in addition to patient's physical needs other
issues viz. morale, religious, legal, economic etc. are also associated with death.
Whether death is sudden or gradual, series of defenses, attitudes unique and
specific to death surface. Most common question that arises in nurse's mind or
others mind is should the patient be told truth about the state of his illness?
There are two views expressed in this connection. Each of these has its own
merit. One such view is proponents of informing patient. This maintains that it
is not morally right as silence condemn the patient to die alone with a reality
of which he/she is aware. This approach is likely to deprive the patient of the
empathy of physician, nurse, friend and family when it is most needed. The
supporters of this view feel that the patient should be told truth.
Other view which supports telling truth to a patient about impending death is
inappropriate. Supporters of this view maintain that death in itself is unique
among human fears, normally defended by degree of denial. Envision of this
universal and unique fear if forced can do more harm than good.
Both these views have merits. There are number of examples in which blunt
disclosure of terminal illness has driven patient to despair. Conspiracy of silence
by physician or relatives has condemned the patient to go through the pain of
death alone. In both views such extremes have to be avoided. These approaches
should be selectively chosen after acquainting thoroughly with patient history
and personality. Patient's personal perception of death will affect the morale and
religious attitudes to death. You would have come across people who may be
prepared to die any day as deserved rest or relief from pain or death as
spiritual renewal. There may be others who may deny dying to self and others.
Such patients try to 'protect' self or the family from expressing grief.
101
'aring in Medical You would have observed that terminally ill patients react differently, some may
urgical Conditions like to talk, others may be silent or cry or may show anger, fear, guilt,
stoicism, may like to be left alone or these may fear being left alone.
You have earlier learnt in psychology of dying that patient tend to follow as
general pattern of behaviour. Understanding of this pattern will help you to
meet the individualized nursing care needs of the dying patient.
Read the following statement carefully and write True (T) or False (F).
a) Nurse while caring for dying patient at time feels helpless because her
best efforts in caring of the patient are not sustaining life. (TIF)
Activities
I) Talk to a patient who is terminally ill or dying in your ward. List his feelings,
compare those with which you have learnt in this section.
2) List your own feelings while caring for a dying patient. Discuss these with your
supervisor/Doctor. See how you felt thereafter.
Asphagia gradually sets in, there will be gurgling sound or death rattle. This _
sound comes because of the collection of mucous in the throat and mouth, air
passing through the secretion. Thus turning patient to one side will allow the
gravity drainage of the mouth secretion. Oropharyngeal suction can be used to
02 clear the secretion.
Hearing Care of Terminally III
and a Dying Patient
Hearing is a last sense to leave the dying persons. Peaceful environment, word
spoken to dying patient should be distinct and spoken close to the ears. Any
distressing conversation is to be avoided.
Peristalsis ceases: Stomach distends with what is swallowed. Anal and bladder
sphincters relax. There will be incontinence of feces and urine. Hence, bed need
to be protected with dry Macintosh and drawsheet. Catheter or candom drainage
and frequent bedpan giving help to keep patient clean and dry and also release
urinary retention, if any.
Column A Column B
Principles listed below are derived from behavioural sciences. These will help
you to have meaningful communication with a dying patient. These are:
b) You would have experienced onwards or otherwise that such patient often will
have need to talk to some specific people of hislher family, friends, etc. Social
environment in hospital must provide for such interaction.
c) You have also known that culturally approved roles requires specific social
behaviour. There are chances when such patient may react contrary to these. As
nurse you need to understand the psychosocial dynamic behind the reaction.
Patient may react by denial, bereaved, grief contrary to acceptance. Nurse in 103
Caring in Medical such situation is likely to be hostile instead of compassionate and doctor may
Surgical Conditions become helpless instead of helpful. Reason for patient reaction need to be
understood to give himlher support. Patient may be using disassociation or
denial as to suppress or control emotional reaction. Whereas the expression of
reaction is important for peaceful dying. Though there may be some tense
feeling between both patient and nurse during discussion, but as both unwind
their feelings in the process of discussion gain strength and comfort. Therefore,
as nurse you should provide for expression of patient's emotional reaction.
d) During period of stress and uncertainity our spiritual needs often tend to
increase in intensity. You as nurse should be attentive to such cues from patient
and help the patient in being willing and able to discuss with spiritual leader of
his/her religion.
8---7 +
8
Fig. 10.1: Dying person's environment
At times patient's relatives also pass through the stages of emotion a patient
passes. Their behaviour would become demanding. Nurses need to understand
this. Thus accepting their reaction you would help them to work through their
grief and at the same time assist them in providing support to the patient. You
have seen in your experience whether death is sudden or gradual the family is
never ready for such eventuality. The typical behaviour of the family is difficult
to anticipate. Observance of religious practices, familiar faces and also an
expressive handshake/embracing by a close friend or relative bring comfort. You
need to be sensitive and respectful to religious needs of a patient and be helpful
in procuring such support.
In case patient at this stage wish to change or make will be the hospital
procedure in this regard be followed, you need to communicate such desire of a
patient to your supervisor for desired (;.':.'ti0!l.
•
iii) Nursing Care of the Body After Death
nurse should be aware and selective in choosing resuscitative measures. and a Dying Patient
Preparation of the body for transfer to the mortury is carried .out by the nurse.
b) Points to Remember
• Nurse should wear plastic apron, mask, and gloves while packing the body.
Follow universal infection control measures.
c) Equipment
• Screen
• Death Kit containing shroud wrapping sheet; paper; body tags; tables;
4" x 4" dressing, cotton swabs; large packing forceps, safety pins,
plastic bag.
Steps of a Procedure
iv) Place body in supine position, eyes closed, denture in place, arms at sides or
across chest and place a pillow under the head.
xi) Put on gown or clothes as per hospital procedure. Restrain jaw, wrist, toes,
ankle, with sufficient padding and soft bandage.
xiv) In case of infections patient body is wrapped in double bed sheet and
thereafter with plastic sheet/bag to prevent any spilling of body discharge.
The body is labeled as 'biohazard'.
xvi) Secure safety belts or use broad bandage/draw sheets at knees and chest.
xix) Hand over patient's valuables, death certificate to relatives as per procedure
and take their signature.
xx) Record the procedure or any unusual observation on the chart and sign.
xxi) Death certificate is filled by the physician. This is to be sent to the health
authorities concerned with birth and death record. Death certificate is also
issues to the relatives before the body is permitted to be taken for burial or
cremation.
xxii) For doing autopsy, signature is to be taken from the relative. This is you may
recall usually done on patient who died of brief illness, unknown cause or in
case of crime/medico-legal etc. The autopsy will show the cause, extent of
condition and effect of treatment. This procedure is like operations. There
should not be unnecessary mutilation of the body. The mortician after
autopsy prepares the body so that there is no visible evidence of post-
mortem while handing over the body to relatives for cremation or burial.
Body Cooling
Soon after death you will find that body cools very fast. Thereafter, it proceeds
slowly until 24 hours and reaches temperature of the environment.
Rigormortis sets in within few hours of death. It starts from the muscles of the
jaw and passes successively down' the neck, arms, trunk and legs. The arms,
legs, become so stiff that these cannot be bent. This appears in 1 to 6 days.
Though muscles thereafter may become soft, but these never contract again.
ii) Did Iknow the social milieu of my patient and its stressful implication on
patient. and family?
iii) Did I provide physical comfort and emotional support to patient and also to
family that helped in dignified and peaceful death?
v) Did I screen the bed and provide privacy to my patient after death?
vi) Did I assemble necessary equipment for preparing dead body at the patient
bedside?
vii) Did I adjust bed to working height, and gave himlher appropriate position and
removed oxygen, suction if any?
viii) Did I remove ornaments or any other valuables from patient and listed these?
x) Did I bathe the body properly, packed orifices, changed dressing if any and
dressed the patient in appropriate clothing?
xi) Did I put identification tag as per procedure, wrapped the body in shroud or
sheet and labeled the body?
xii) Did I use correct body alignment while moving body from bed to the
stretcher and secured it for safer transfer to morgue?
xiii) Did I return to the patient bed for its stripping and cleaning, resetting?
I
xv) Did I do necessary recording on the patient chart and also wrote on other
register/form etc. as may be the hospital system?
The details of caring for a terminally ill and dying person may not be different
from those of caring for someone who is ill but may recover but they may,
sometimes, be perceived rather differently. In particular for a terminally ill and
. dying person, the quality of Ii re becomes especially important.
ii) It is the responsibility of the nurse/care giver to see that physical care,
emotional and spiritual support and available to the dying person.
iii) Terminally ill/dying elderly may identify one or two members of hislher family
for discussing hislher inner most feelings. This should be respected.
iv) Encourage family members to express their feelings towards the impending
loss of their loved one. Provide them with additional emotional support.
a) T
b) T
c) F
d) T
a) c
b) a
c) b
108
SELF ACTIVITIES Care of Terminally III
and a Dying Patient
Hams: 150
Marks: lOO
,''''
··;5.
",
Practical Title of the Activity Area Hrs. Marks
. No. No. and
Section
1Q9
Caring in Medical
Surgical Conditions S. Practical Title of the Activity Area Hrs. Marks
No No. and
Section
110
SUPERVISED ACTIVITIES Care of Terminally III
and a Dying Patient
Hours : 150
Marks: '100
III
Caring in Medical
Surgical Conditions S. Practical Title of the Activity Area Hrs. Marks
No. No. and
Section
112
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