Professional Documents
Culture Documents
applied to perinatal health disparities practices and subjective birthing ex- work office, and some with the partic-
by qualitatively examining women’s periences among Black women liv- ipants’ children present. Women were
prenatal and birthing care experi- ing in urban North Florida. Given given $20 cash for their participation.
ences. These experiences are impor- that Black women in North Florida
tant components of understanding are at an increased risk of experienc- Measures
disparate perinatal health outcomes, ing adverse perinatal outcomes,9 as We employed a qualitative ap-
as care during pregnancy is largely well as their history of racial mistreat- proach through semi-structured,
considered an indispensable com- ment in the US medical care system,8 individual interviews lasting 15-70
ponent of perinatal health promo- we undertook this study to explore minutes. Times varied due to differ-
tion.6 For some women, contempo- ways in which Black women lever- ences in participants’ descriptions
rary medical-model prenatal care can age personal strengths, community about their pregnancies and birth-
appropriately address physical and resources, and decision-making strat- ing experiences. Interviews were
mental health needs.7 For many oth- egies during pregnancy and birth. conducted by a member of the re-
search team – a Black woman – to
maintain racial and gender concor-
Methods dance. A 3-minute questionnaire
assessed participant demographics
Study Design and pregnancy outcomes for each
This was a non-random, cross- of their births (ie, birthweight,
The purpose of this study sectional, qualitative pilot study. complications during birth). Upon
obtaining written consent, par-
was to explore prenatal Study Sample/Recruitment ticipants discussed their prenatal
practices and subjective Participants were recruited using decisions and experiences, describ-
convenience and snowball sampling. ing the strategies they employed to
birthing experiences A flyer was disseminated via social ensure a healthy birth and infancy
media, text message, and e-mail to for their child. The interview guide
among Black women potential participants known to the had eight open-ended questions
living in urban North research team. Inclusion criteria in- and pre-defined probes related to
cluded: a) self-identifying as African the study’s objectives (Table 1).
Florida. American or Black; b) gave birth in the
counties of interest within the last 5 Data Analysis
years or were currently pregnant; and All interviews were audio-record-
c) at least 18 years of age. Participants ed and transcribed verbatim. Data
self-selected into the study; dates, were analyzed and coded using a
times, and locations for the interviews thematic analysis approach between
ers, this strategy is insufficient in ad- were agreed upon during an initial two trained coders. Parent codes were
dressing their needs and preferences.6 eligibility discussion. This study was developed using the interview guide
For Black women, a difficult his- approved by the Florida State Uni- and transcripts for direction. After-
tory and general mistrust of the medi- versity Institutional Review Board. wards, coders reviewed the transcripts
cal system has created a paradox be- a second time for an in-depth ap-
tween new institutional childbirth Data Collection plication of codes to each interview
norms and women’s individual deci- Interviews were conducted in transcript. Since each participant’s
sions about prenatal care and birth- July 2017 at a convenient time and experiences were variably unique
ing methods.8 Therefore, the purpose in a place that offered privacy for the and complex, attention to positive
of this study was to explore prenatal participants, often in their homes or events and cases was emphasized.
R esults
Table 1. Interview guide
1. I see that you have been pregnant ___ times in the last 5 years. Tell me a little bit about
This study group consisted of 11 your pregnancy experience, from receiving prenatal care to giving birth.
women aged 25-36 years (M=30.77, a. What health or medical concerns, if any, did you or your medical provider have
SD=3.95; Table 2). Most women about your pregnancy, such as high blood pressure, anemia, or gestational diabetes? (If
any) Tell me more.
(n=8; 72.7%) had at least a bachelor’s
2. Did you see a medical provider for your pregnancy?
degree, followed by some college
a. (If yes) When did you first see your medical provider?
(n=2; 18.2%), and high school diplo- b. (If no) What prevented you from going to the doctor before, during and after your
ma/GED (n=1; 9.1%). Almost half pregnancy?
of the participants (n=5; 45.4%) were 3. Tell me about negative and positive health care experiences before, during or after your
pregnancy.
married, followed by single/never
4. If you could change something about your health care experiences before, during and
married (n=3; 27.3%), living with a after your pregnancy, what would you change?
partner (n=2; 18.2%), and divorced/ 5. What things in your community helped you have a healthy, or are barriers to having a
separated (n=1; 9.1%). Three partici- healthy, pregnancy?
6. What does the term “healthy pregnancy” mean to you?
pants reported ever having a miscar-
7. What kinds of things were stressful during your pregnancy? What things did you do to
riage, two reported having gestational deal with your stress? What other things could have helped you with your stress?
diabetes or (mild) preeclampsia, 8. What advice did your mother, grandmother, other family, or friends give you about
and one reported a premature birth. staying healthy before, during and after your pregnancy?
Four main themes emerged from 9. Is there anything else you would like to tell me related to what we’ve been discussing?
delivery; non-medicated births; personal; somebody who tal and then have, you know,
herbal practices during pregnancy; would talk to me about, like, the whole slew of things hap-
out-of-hospital (OOH) births; and my day-to-day activities…” pen [that can] cause you to
delayed cord-clamping and bathing have a C-section or an epidural
for their newborns. Specifically, five In agreement, another woman indi- and all that. So, it was some-
women reported use of midwifery cated: thing I just knew that I want-
at some point in their pregnancies, ed to do was to at least try to
four indicated preference for an “I could see why women would have a home birth and try to
OOH midwife or doula-supported stress out when they were in have a non-medicated birth.”
births, and two had OOH births. those four white walls. And I
Women indicated several un- just...didn’t want to have any Similarly, other mothers also en-
derlying factors during pregnancy part of it. Just because it’s not a dorsed OOH births that allowed
that drove their desires for non-tra- natural environment, period… them to have a greater sense of con-
ditional practices, including want- the white building, the four trol during their labor, indicating
ing a more intimate connection walls, you know people in white preferences for being able to move
with their health care profession- coats…they don’t know you.” around freely during labor and to use
als. While OBGYNs were sources natural pain management techniques
of support for about half of the Women also reported that mid- (ie, bathing/showering, massaging).
women, many indicated that the wives and doulas helped educate them
hospital and doctor’s office settings on methods available for a safe deliv- Accessing Formal Resources
imposed time constraints that were ery without invasive medical proce- for Pregnancy and Childbirth
significant barriers to their desired dures. Here, women described work- To support their pregnancy and
patient-provider rapport styles. ing with their midwives or doulas to delivery desires, all the women sought
For example, one woman stated: treat their health concerns in ways that resources within their local communi-
they felt were more “natural and ho- ties. Although women acknowledged
“The doctors did try when I told listic,” (ie, probiotics to address yeast the availability of resources that could
them like, you know ‘I’m not infections vs a medicinal regimen). enable their desired pregnancy and
getting what I need from you.’ Lastly, women expressed an in- childbirth experiences, they also in-
They did try to change it up. But terest in non-medicated births. dicated that these resources were not
they were always so busy…” Many addressed concerns regarding easily accessible or inclusive. Specifi-
epidurals, long hospital-based la- cally, women expressed a desire for re-
Conversely, midwives and bors, and fear of having their birth sources and educational opportunities
doulas were cited as a resource preferences disregarded within a that were available during non-tradi-
for women who were looking medical setting, specifically, pres- tional business hours and that were
to engage in more in-depth dis- sure to undergo unnecessary cesar- inclusive of Black women and moth-
cussions with their providers. ean deliveries. One woman shared ers. For working mothers in the sam-
Here, the same woman shared: her rationale for selecting a mid- ple, it was important to be able to ob-
wife-supported home birth, saying: tain information that would support
“I started off with an OB- their needs (ie, birthing and breast-
GYN with my first baby, and “I’ve always been in the mind- feeding classes), but many struggled
then when I entered my sec- set of women are able to give to find classes that they could take
ond trimester I switched to birth without any assistance outside of regular business hours,
a midwife outside of the hos- naturally and so I knew I didn’t including evenings and weekends.
pital environment…I was want an epidural [and that] I The limited options that work-
looking for something more didn’t want to go to the hospi- ing women were left to choose from
often left them feeling a sense of often spoke about familial supports By accessing the informal net-
cultural disconnect. Participants ex- as a component of their decision- works of Black women within
pressed discomfort in participating making strategy. Several women their own communities, women
in classes that were run primarily by from the sample indicated that their in our study were able to find sup-
White women, perceiving that they birthing desires were influenced by ports that were not formally avail-
were not able to truly connect with their mothers, grandmothers, and able to them. This allowed women
the instructors and program staff. influential women in their partners’ to seek out answers to questions
One mother shared the following: families. Other trusted Black women they felt may be culture-specific,
in their communities were also used or to address concerns that they
“Their resources were really for information and support. It was were uncomfortable sharing in
good you know. We did one evident that trust within the commu- majority-White groups of women.
class every Monday. They had nity had been built with other Black Along with informal networks
a little video and worksheets women over time through “sister within their communities, women
and a lot of information… circles” (units of Black women with often used social media to seek ad-
But the people who ran it… similar thoughts and ideas), having a vice during their pregnancies. One
it was like Christian based. long-standing community presence woman indicated that after becom-
They had volunteers from [a advocating for and educating oth- ing pregnant, she felt she received ad-
local university and] all the ers on topics related to birthing and vice about more contemporary par-
women who worked there parenting (ie, breastfeeding, manag- enting practices from other women
were White so there was just a ing postpartum depression, and early on social media platforms, saying:
disconnect there you know?” child education). For women with a
desire to follow an alternative path “a lot has changed [since I last
If the community had a greater for pregnancy and delivery, it was gave birth]. There’s a lot of in-
degree of client-provider racial/eth- particularly important to seek advice formation out there… but it’s
nic concordance, in which providers from other women, which gave them just so much [that] I didn’t even
and clients shared a common racial access to new learning opportunities. know until joining these groups
and cultural bond, women felt there Support from familiar and now, so I’m learning a lot.”
would have been a greater degree of trusted Black women may be par-
comfort and knowledge transfer – ticularly salient for expectant Black Through social media, mothers
something that they felt is currently women. One woman shared: were able to learn about and explore
lacking within their local community. alternative care options that they felt
“You know, I’m not used were in the best interest of their infants.
Seeking Advice from Other to [being well represented
Black Women with Similar within perinatal education Being Confident in One’s
Perspectives on Birthing and groups]...I’m used to, you Decisions
Parenting know, if you go to a birthing Networks of Black women with
Where community resources were class [or] breastfeeding class, shared perspectives and experiences
insufficient in supporting expectant you don’t see a lot of us [Black also helped to empower expectant
mothers, women reported that get- women] there. You see more mothers to feel confident in their de-
ting advice from other Black women White women. The [name cision-making processes, as did hav-
who shared similar perspectives on stricken] group just gives me, ing supportive partners. One woman
birthing and parenting was a critical it makes me feel comfort- offered her perspective, which reflects
factor in their decisions to engage in able, like I’m able to even the consensus among nine of the
alternative pregnancy and birthing talk about different things.” women in our sample. She shared:
options. For example, five women
“No amount of research or that they were able to have the birth ternity care and birthing options us-
educating somebody is gon- of their choice. They also expressed ing online resources, including apps,
na make them change [their concern over the lack of culturally and Internet searches. Participants
opinion if ] they think that relevant and available resources to also utilized online and in-person
it’s right. So, instead of that, support their birthing preferences. support groups for Black women,
you need to have at least one While half of participants sought out as well as trusted members of their
person who understands care from midwives or doulas, nine of family and community. For many,
and supports your decision the eleven women gave birth in hos- the personal relationships developed
and who’s rooting for you.” pital, and the remaining two women from these supports became predomi-
gave birth OOH by a midwife or nant sources for information sharing
Women also shared that they felt doula. For context, less than 8% of and empowerment, especially regard-
more confident to make their preg- Florida births in 2018 were attended ing alternative birthing practices.
nancy decisions when they sought by midwives10 and 1.8% of Flori- From a positive deviance standpoint,
out educational supports. Women re- da births occurred OOH.11 Across women’s willingness to engage in al-
ported relying on a variety of educa- racial-ethnic lines, non-Hispanic ternative strategies for perinatal care
tional resources, ranging from formal and to form strong community-based
supports to more informal materials. supports is representative of a strate-
Among women who relied on for- gic approach to health promotion in
mal supports, they reported access- a region of the state that is charac-
ing scientific literature, educational These particular Black terized by disparate birth outcomes.
pamphlets, and books. Regarding Our participants did not consis-
more informal educational materi- women valued working tently raise issues of cost or insurance
als, women reported accessing new coverage, although this could be a
information via apps and Internet together to ensure that they barrier to patients’ ability to obtain
searches. Regardless of the formality alternative birthing care. Doulas and
of the educational materials, when
were able to have the birth OOH births may generate higher
women felt they had enough knowl- of their choice. out-of-pocket costs to the patient,
edge about their pregnancy and birth although total cost of care might be
options, they indicated feeling more lower than those for an in-hospital
empowered overall in their decisions. birth. Further research is needed
to elucidate these cost/value issues.
desires; 3) ensuring an environment gap in adverse perinatal outcomes. riences collectively shape women’s
that is not only free of discrimina- Importantly, ICHRP emphasizes the health experiences. This study sug-
tion and disrespect, but that embod- need for culturally specific care dur- gests that the most important factors
ies respect (as perceived by patients ing the perinatal window, though the in prenatal and birthing decision-
of varied racial backgrounds) and programmatic details regarding what making are: 1) cultural support and
cultural competence; and 4) pro- is considered culturally specific are empowerment from other mothers
viding access to education and care unclear.15 Results from this study may who have experienced both the highs
outside of traditional work hours. help clarify some of the desired mech- and lows of birthing; and 2) support
Currently, there are a number of anisms through which Black women from their partners. These findings il-
promising programs that have imple- would like to receive care, including lustrate the critical role of community
mented components of these rec- midwife or doula support, commu- engagement and support in achieving
ommendations, including the Every nity-based care, strong patient-pro- optimal pregnancy and birthing ex-
Child Succeeds (ECS) home-visiting vider rapport, and greater degrees of periences. Future research should ex-
program, which provides women with provider-client racial concordance. plore the ways that interpersonal fac-
connections to community resources tors (ie, provider engagement styles
to help promote healthy family de- and racial concordance with their
velopment.13 Likewise, the Healthy Implications for Future patients) may affect perinatal health
Babies are Worth the Wait (HBWW) R esearch outcomes. Additionally, consider-
Community Program offers resources ation for practice location, hours, and
to support expectant and new moth- Several studies have identified the the types of payment accepted can ad-
ers and promote community engage- importance of employing an intersec- dress traditional definitions of acces-
ment.14 Although ECS and HBWW tional framework when investigating sibility. Further qualitative research
are examples of programs that help birthing outcomes, especially among is needed to better define cultural
to promote community engage- Black women.16-18 However, these acceptability and relevance for peri-
ment among mothers, additional studies highlight intersecting vari- natal support and health promotion.
programmatic efforts are needed to ables such as race, age, and socioeco-
help ensure that women have access nomic status among young mothers Study Limitations
to culturally relevant perinatal care with low education levels. In some This study provides a broad-brush
services for diverse birthing desires. ways, our study reflects a segment of picture of themes to explore in further
In 2017, the state of Minnesota the Black population which is under- research. It was limited by small group
launched the Integrated Care for studied, since most participants in size and a non-randomly selected
High Risk Pregnancies (ICHRP) the current sample had at least a col- study population. To further explore
initiative, which helps to meet some lege degree, were married, and had a the effects of positive deviance, future
of these goals. The ICHRP initiative mean age >30 years. Broad sampling research should aim to differenti-
collaborates with Minnesota com- using intersectional frameworks will ate the experiences and perspectives
munity health leaders to link women be necessary to represent the diverse of Black women who had positive
to resources that provide doula care, heterogeneity within the Black pop- birthing experiences and outcomes,
social workers, parenting classes, edu- ulation, in order to understand the relative to those with negative experi-
cational resources, and community spectrum of perspectives and values ences or adverse perinatal outcomes.
clinics that address perinatal health and preferences to address when edu-
needs via culturally specific prac- cating and counseling Black women.
tices.15 The ICHRP initiative may Further, studies examining dis- Conclusions
serve as an exemplar model for other parate perinatal health outcomes in-
states looking to introduce additional creasingly suggest needing to measure Results suggest that culturally
measures for closing the Black-White how social and interpersonal expe- relevant and patient-centered deci-