Professional Documents
Culture Documents
Baby refuses to eat: Mostly, babies sleep all of the time and are dependent on
their parents. Sometimes, babies tend to make their parents feel worried and
anxious with their attitude by refusing to eat.
E. Concerns of the family with a physically
challenged or chronically ill
The struggle with their own emotions- Anger, guilt- physical and mental
exhaustion: Parents will experience a range of emotions, most notably, shock,
denial, magical thinking, sadness, guilt, anger, disappointment, lack of control
and resentment related to the chronic illness or disability of their child.
Stress on the marriage: When parents learn that their child has a disability or
special health care need, they begin a process of continuous, lifelong
adjustment.
Figuring out how to support their child: feeling alone in fighting every
resource (schools, agencies, the health care team, insurance or Medi-Cal, social
worker) for the care they deem their child needs
E. Concerns of the family with a physically
challenged or chronically ill
Stress over making medical decisions for their child and not
understanding what is going on: Most parents can relate to an experience in
their lives during which a healthcare visit or medical procedure was upsetting
and anxiety-provoking.
Fear of medical treatments and their outcome: Where their child's condition
causes them to suffer, the scales may still be tipped against treatment.
Fear of an emergency situation and knowing when to get help: Parents
have additional pressures regarding an emergency situation to manage their
child’s well being as they often experience difficulty and uncertainty when
negotiating medical and support services.
E. Concerns of the family with a physically
challenged or chronically ill
Guilt around the wellbeing of siblings:
When a child is disabled, it affects everyone in a family - parents, siblings,
grandparents. Often, siblings get lost in the shuffle. All the attention is
focused on the brother or sister. Everything seems to be about them, they
get the visitors and the toys. Sometimes special occasions are forgotten
when medical emergencies arise.
F. Nutrition and the Physically ill
challenged or chronically ill
Caloric and Nutrient Density: Infants with certain health conditions may
have increased caloric or nutrient needs.
Gastrointestinal Issues: Some infants may experience gastrointestinal
issues, such as reflux or difficulty digesting certain nutrients.
Allergies and Intolerances: Infants with chronic illnesses may be more
prone to allergies or intolerances.
Medication Interactions: Consider the potential interactions between
medications and nutrition.
Tube Feeding: In severe cases where oral feeding is not possible,
tube feeding may be necessary.
F. Nutrition and the Physically ill
challenged or chronically ill
Bone Health: Certain chronic illnesses or medications may impact bone
health.
Fluid Management: Some conditions may require strict fluid management.
Individualized Plans: Each infant's situation is unique.
Long-Term Planning: For infants with chronic illnesses, consider long-term
nutritional planning.
Psychosocial Support: Chronic illness can impact the psychosocial
well-being of both the infant and the family.