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Rethinking service design for youth with mental health needs: The
development of the Youth Wellness Centre, St. Joseph's Healthcare Hamilton
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Robert B Zipursky
McMaster University
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1
Department of Psychiatry and Behavioural
Neurosciences, McMaster University, Abstract
Hamilton, Ontario, Canada Aim: This article describes the development and design of the Youth Wellness Centre
2
Youth Wellness Centre, St. Joseph's
(YWC), an innovative, youth-friendly centre providing mental health and addiction
Healthcare Hamilton, Hamilton, Ontario,
Canada services for emerging adults aged 17 to 25 in Hamilton, Canada. We also report on
3
School of Psychology, University of Ottawa, demographic and clinical characteristics of clients to evaluate how the YWC is serv-
Ottawa, Ontario, Canada
4
ing populations at increased risk of developing mental disorders.
Centre for Addiction and Mental Health,
Toronto, Ontario, Canada Methods: Data were extracted from clinic databases for 1520 youth at the YWC
5
Department of Psychiatry, University of between March 2015 and 2018 to report on demographic characteristics, clinical
Toronto, Toronto, Ontario, Canada
profiles, primary presenting problems, service use and overall satisfaction with
Correspondence services.
Alyssa Wang, Department of Psychiatry and
Behavioural Neurosciences, St. Joseph's
Results: Marginalized groups, particularly street-involved individuals and LGBTQ+
Healthcare Hamilton, West 5th Campus, youth, are highly represented at the YWC, keeping with the centre's mandate of
100 West 5th Street, Hamilton, ON L9C 0E3,
Canada.
reaching at-risk populations. Youth at the YWC carry significant mental health bur-
Email: alyssa.wang@medportal.ca dens, with 80.8% having a history of suicidal ideation and 32.8% having a history of a
substance use disorder. The primary route of referral is self-referral and the number
of new clients has increased by nearly 20% in the first 3 years of operations. Overall
satisfaction with the centre is on par with or slightly above provincial averages.
Conclusions: The YWC was developed to meet the mental health needs of
transition-aged youth in Hamilton by providing early intervention, system navigation
and transition services. The success of the YWC in reaching high-risk youth is dem-
onstrated by the significant proportion of clients reporting demographic and clinical
risk factors associated with increased risk for development of mental disorders. The
increasing referrals to the YWC highlight the ongoing need for similar services.
KEYWORDS
adolescent health services, delivery of health care, early intervention, mental health services,
young adult
Early Intervention in Psychiatry. 2019;1–8. wileyonlinelibrary.com/journal/eip © 2019 John Wiley & Sons Australia, Ltd 1
2 WANG ET AL.
Wells, 2002; Kessler, Avenevoli, & Ries Merikangas, 2001; Offord, Staff with knowledge of community resources consolidated partner-
Boyle, Fleming, Blum, & Grant, 1989). Within the young adult popula- ships with community agencies, post-secondary institutions, primary
tion, certain marginalized groups (Kessler, Davis, & Kendler, 1997) care and existing MH&A services to ensure integration with existing
including low-income (Canadian Mental Health Association, 2007), services. The YWC maintains bidirectional communication with com-
indigenous (King, Smith, & Gracey, 2009; Kirmayer, Brass, & Tait, munity partners, who both provide and accept referrals.
2000), street-involved (Boivin, Roy, Haley, & du Fort, 2005) and Youth and stakeholder consultations also identified specific gaps
LGBTQ+ youth (Davidson, 2015; Meyer, 2003) are at increased risk in services for youth with MH&A concerns. The first was the lack of
of developing mental illnesses. In light of this, models of care focusing an early intervention service for youth experiencing mental health
on early detection and intervention have been on the rise (Rickwood, concerns other than psychosis, which resulted in the creation of an
Telford, Parker, Tanti, & McGorry, 2014; Wilson et al., 2017). Interna- Early Intervention stream. The second gap identified was a lack of
tionally, mental healthcare centres focusing on young adults (ages support for youth who had relied heavily on child MH&A services and
12-29) have emerged in the past 20 years in Australia (Orygen, head- were at risk of not connecting with adult services after age 18. The
space), the United Kingdom (Young Minds) and Ireland (Jigsaw). The Transition Support stream was thus developed to engage youth
Mental Health Commission of Canada has identified emerging adult- before they left the child system and ensure continuity of care. A third
hood as a developmental period needing increased attention and stream was designed with a Mobile Team to target two populations:
resource allocation (Mental Health Commission of Canada, 2017). In post-secondary students with barriers to accessing off-campus
2017, the Ontario government announced funding for nine Youth MH&A support and street-involved youth. The fourth stream that
Wellness Hubs ‘as fully integrated “one-stop-shops” for mental health, was developed was the Re-Engagement stream. After a year of opera-
substance use, primary care, education/employment/training, housing tions, a trend emerged, whereby numerous youth who self-referred
and other community and social services’ (Youth Wellness Hubs were found not to be new to adult services, but rather had not
Ontario, 2018, para. 1). engaged long enough to receive treatment in the adult system. This
This article (a) describes the development and design of the Youth stream aimed to provide a short-term service to help self-motivated
Wellness Centre (YWC), St. Joseph's Healthcare Hamilton, which youth reconnect with appropriate adult services.
arose to address the gaps in mental health services for transition-aged The final stages of planning included creating a multi-disciplinary
youth. We then (b) report on the demographic characteristics, clinical staffing model and designing a physical space. For ongoing program
needs and service use of youth engaged in services at the YWC to evaluation and comparison with similar international youth-centred
assess how the centre is achieving its mandate of reaching youth at models (Rickwood et al., 2014; Rickwood et al., 2015), a clinic data-
elevated risk for developing mental illness. base was created. A minimal data set was chosen that allowed for
integration with clinical operations and Research Ethics Board
approval was obtained to allow for dissemination of results beyond
1.1 | Service development the scope of internal quality improvement projects. Finally, a profes-
sional communications firm was consulted to publicize the centre. A
In 2010, prior to the Ontario Youth Wellness Hubs initiative, munici- campaign was put together using the hashtag #ReachOut, based on
pal healthcare leaders in Hamilton, Ontario began developing an input from a youth focus group, and publicized through both tradi-
evidence-based and sustainable solution for local youth mental health tional and social media. In March 2015, the YWC opened to the
services. The service was initially constructed around the concept of public.
patient navigators (Bieling, Madsen, & Zipursky, 2013), linking clients
to existing services. The preferences of young people and clinicians
for a variety of services parameters were collected from a quantitative 1.2 | Service design
study (Becker et al., 2016, 2017). Youth preferences included: choice
of multiple treatment modalities; family involvement; availability of The YWC operates upon principles of providing (a) accessible,
physicians, nurses and doctoral level staff; integrated addictions ser- (b) evidence-based, (c) youth-centred and (d) community-linked care
vices and text message or phone support (Becker et al., 2017). The to individuals aged 17 to 25 with MH&A concerns. To reduce barriers
service was designed outside a hospital setting in a central, downtown to access, referrals are accepted from youth (via an online self-referral
location to reach youth from marginalized populations. platform), family and friends, community agencies and healthcare pro-
As development continued, youth, family members, stakeholders viders. The YWC is co-located with Alternatives for Youth, an inde-
and community partners were again consulted. These consultations pendently run service addressing substance use and addictions in
resulted in maintaining ongoing youth involvement in the design of youth, allowing for concurrent access to both services. Treatments at
services and strong partnerships with other youth-based agencies. the YWC range in intensity and frequency to address varying levels of
Youth with lived experience of mental illness set the mandate for the readiness and need, ranging from low-barrier drop-in options, such as
Youth Council at the YWC, which mirrors existing practices for includ- 1:1 drop-in counselling, Art Drop-in and an Open Peer Support Circle,
ing youth perspectives in service provisions at the national level to short-term individual psychotherapy and specific group interven-
(Carver, Cappelli, & Davidson, 2015; MHCC Youth Council, 2018). tions. Specific evidence-based interventions offered include a Family
WANG ET AL. 3
successful transition between child and adult services (Carver et al., • Family education/support
2015; Repper & Carter, 2011). • System navigation
The YWC's four service streams, Early Intervention, Transition • Drop-in counselling
Support, Mobile Team and Re-Engagement, have individual intake • Addictions counselling
criteria outlined in Table 1. Additional information regarding clinical • Family counselling
services and staff is outlined in Table 2. • Psychiatric consultation
• Brief individual therapy
Clinical staff
2 | METHODS
• 1 addictions specialist • 2 psychiatrists (part-time)
• 2 clinical therapists • 1 psychologist
The YWC's Client Activity Tracking System (CATS) is a database that
• 1 family educator • 1 transition coach
contains demographic and service use data collected by clinicians at
referral and during clinical interactions, including initial assessment. • 1 intake worker • 4 youth mentors
The Global Appraisal of Individual Needs Q3 (GAIN-Q3; Titus et al., • 1 LGBTQ+ outreach • 1 indigenous youth wellness
worker coordinator
2012) provided additional demographic information from clients in
the Early Intervention and Mobile streams. It is a clinician-reported • 4 nurse care • 1 sexual violence/trauma
coordinators counsellor
questionnaire administered during initial assessment and is electroni-
• 1 occupational therapist
cally hosted by Chestnut Health Systems. Clinical information is
4 WANG ET AL.
Year 3, 2017-2018 575 37.8 SOFAS score was between 61 and 70 indicating, ‘some difficulty in
social, occupational or school functioning’ (Rybarczyk, 2011). The
Total 1520 100.0
mean DERS score at orientation was 114.35 (SD = 25.10) and mean
Wait times Days SD
K10 was 32.81 (SD = 7.87), indicating very high emotion dys-
Referral to orientation 46.6 25.0
regulation and psychological distress. Lifetime SI was present for
Orientation to initial assessment 56.2 58.4
80.8% of youth, with 40.2% reporting SI in the last month. A history
Referral to initial assessment 72.7 95.9
of substance use disorder based on Diagnostic and Statistical Manual
Attendance n % of Mental Disorders, Fifth Edition (DSM-V) criteria was present for
Initial assessment 32.8% of clients.
Did not attend, notice given 19 1.8
Did not attend, no notice given 115 11.0
Attended 910 87.2 3.3 | Service use and overall satisfaction
Total 1044 100.0
Orientation Across all streams, 46.5% of youth self-referred. Referrals from com-
Did not attend, notice given 2 0.3 munity and healthcare partners came from 44 discrete clinics and
organizations. The number of new clients per 12-month period has
Did not attend, no notice given 61 8.8
increased since the YWC's opening, from 480 clients during the first
Attended 630 90.9
12 months to 575 during the third 12-month period of operation.
Total 693 100.0
The majority of youth (55.1%) were engaged in the Early Inter-
vention stream. The mean number of days from referral to orientation
was 46.6 days (SD = 25.0). The mean wait from orientation to initial
assessment was 56.2 days (SD = 58.4) and from referral to initial
analyses. Of these clients, 756 had data in REDCap; 376 from the assessment was 72.7 days (SD = 95.9). Orientation and initial assess-
Early Intervention and Mobile streams had data from the GAIN-Q3 ment appointments were attended by 90.9% and 87.2% of youth,
and 135 completed the OPOC. respectively (Table 4).
For the three measures of overall satisfaction on the OPOC, mean and is much greater than the 1% of youth in Ontario accessing treat-
scores at the YWC were significantly higher than provincial averages ment for substance use related concerns (Cairney, 2015). While this
for two items with effect sizes of d = 0.36 and d = 0.28, and not signif- indicates that the YWC is engaging youth with high-risk substance
icantly different than provincial averages for one item (d = 0.11; use, it could also indicate that youth who visit the YWC feel more
Table 5). comfortable speaking about substance use in this setting.
The top four primary presenting problems at YWC are reflective
of the most commonly self-reported rates of mental disorders pro-
4 | DISCUSSION vincially (mood, anxiety, alcohol-related and drug disorders; Cairney,
2015), suggesting that the YWC's clients' concerns are broadly rep-
The YWC was created to address a local need that also reflected a pri- resentative of the youth population in Ontario. The mean SOFAS
ority at the national level – to reach youth who, based on age alone, score for YWC clients of 61 to 70 indicating ‘some difficulty’ in func-
are more likely to present with symptoms of an initial psychiatric ill- tioning is slightly higher than Australian headspace clients, who pre-
ness, in addition to reaching subpopulations at further risk for devel- sent with a mean score of 51 to 60 indicating ‘moderate difficulty’ in
opment of mental illness. functioning (Rickwood et al., 2015; Rybarczyk, 2011). The mean
DERS score of 116.4 demonstrates that high emotional dys-
regulation considering this is over 2 SDs above mean scores for a
4.1 | Demographic characteristics healthy sample of men (M = 80.7) and women (M = 78.0; Gratz &
Roemer, 2004). Youth at the YWC present with very high levels of
The YWC is reaching many of the at-risk populations identified during psychological distress based on the K10 (μ = 33.0), with levels
its development, including visible minorities, LGBTQ+ and street- slightly higher than youth at headspace centres in Australia
involved youth. The 24.9% of YWC youth who identify as a visible (μ = 28.8) (Rickwood et al., 2015); this difference may be partly due
minority is comparable to the 19.0% from Hamilton 2016 census data to the lower age range of headspace clients (ages 12-25) compared
(Statistics Canada, 2017). There is limited Canadian data on the preva- with YWC clients (ages 17-25).
lence of LGBTQ+ individuals. A 2011 US report indicated 0.3% of the
general population identify as transgender and 3.5% identify as les-
bian, gay or bisexual (Gates, 2011). In comparison, transgender youth 4.3 | Service use and overall satisfaction
represent 4.2% of the YWC's clientele and 29.5% of our clientele
identify as LGBQ+. The high proportion of the YWC's clientele who The YWC was an early adopter of national and international guide-
identify as LGBTQ+ highlights a success of the YWC fostered by a lines outlining the need for early intervention and youth-centred
transgender support group, LGBTQ+ staff and a self-referral stream mental health services. The need for youth-centred, accessible and
(Colvin, Tobon, Jeffs, & Veltman, 2019). The prevalence of homeless- evidence-based mental health service delivery likely surpasses cur-
ness in youth is thought to be underreported at 0.07% to 0.1% of the rent resources; indeed the number of new clients at the YWC has
Canadian population (Kidd, Gaetz, & O'Grady, 2017). The lifetime increased nearly 20% in its first 3 years. Moreover, the 72.7 days
prevalence of homelessness of 18.5% and preceding 12-month preva- between referral and initial assessment is greater than provincial
lence of 9.2% at the YWC is well beyond prevalence rates expected in and municipal averages for individuals 0 to 24 years of age, which
Canada and highlights that the mobile stream is successfully reaching have hovered around 50 days (Cairney, 2015). This indicates a
street-involved youth. Efforts should focus on reaching Indigenous need for services similar to the YWC and also attests to the
youth, who are underrepresented at the YWC (1.4%) when compared acceptability of the YWC for the emerging adults who may not
with 3.3% of the 2016 Hamilton population (Statistics Canada, 2017). otherwise utilize traditional models of MH&A services. Despite its
wait times, a strength of the YWC's programming lies in weekly
offerings of orientation sessions and the immediate access youth
4.2 | Clinical characteristics and presenting have to drop-in groups and counselling after attending orientation.
problems The high rate of attendance for both orientation and initial assess-
ment appointments is encouraging and suggests that our services
Strikingly, 80.8% of youth at the YWC reported lifetime SI. In compar- are accessible and valued by youth. The large proportion of clients
ison, 13.5% to 14% of Canadian youth aged 15 to 24 report a lifetime who self-refer highlights the importance of self-referral as a path-
history of SI (Cheung & Dewa, 2006; Findlay, 2016). This highlights way for accessing services. Additionally, the YWC's mandate to
that the YWC is meeting its mandate to reach youth with elevated provide system navigation and maintain close ties with existing
mental health concerns. services is reflected in the 44 different community and healthcare
The 32.8% of YWC youth who meet criteria for a substance use partners from which clients are referred. Finally, analysis of OPOC
disorder is considerably greater than the estimate of 5.5% of Canadian data indicates a statistically significant difference between the
youth aged 15 to 24 who suffered harm or functional impairment in YWC and provincial means for two of the three items under ‘Over-
one or more domains due to substance use (Health Canada, 2014) all Satisfaction’ with small-to-moderate effect sizes.
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SUPPORTING INF ORMATION
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dimensional assessment of emotion regulation difficulties in ado-
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