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Patient Education and Counseling 103 (2020) 1263–1271

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Patient Education and Counseling


journal homepage: www.elsevier.com/locate/pateducou

Review Article

Empowerment in healthcare: A thematic synthesis and critical


discussion of concept analyses of empowerment
Kristin Halvorsen* ,1, Alfhild Dihle1, Camilla Hansen, Marita Nordhaug, Heidi Jerpseth,
Sidsel Tveiten, Pål Joranger, Ingrid Ruud Knutsen
Faculty of Health Sciences, Institute of Nursing and health Promotion, Oslo Metropolitan University, Postbox 4, St. Olavs Plass, N-0130 Oslo, Norway

A R T I C L E I N F O A B S T R A C T

Article history: Objective: The objective of this study is to shed light on common characteristics revealed in concept
Received 5 November 2019 analyses of empowerment to contribute to further understanding. A further objective is to discuss how
Received in revised form 5 February 2020 the perspective of healthcare service users appeared in the concept analyses.
Accepted 12 February 2020
Methods: The review was performed by systematically searching Medline, CINAHL, EMBASE, PsycINFO
and ERIC. The search yielded 255 abstracts, which were reduced by relevance and critical appraisal to the
Keywords: 12 concept analyses included. The analysis process involved thematic synthesis as described by Thomas
Empowerment
and Harden.
Concept analysis
Patient participation
Results: The synthesis led to 13 descriptive themes structured according to antecedents, attributes and
User experiences consequences of empowerment. The synthesis revealed how sparsely the question of equality and power
User involvement in the relation between health professionals and healthcare service users is addressed.
Thematic synthesis Discussion: To a great extent empowerment is viewed as a helping process of making patients act
differently, rather than redistribution of power. For groups that are particularly vulnerable to oppression,
questions of power are of severe importance.
Practice implications: As user participation is a growing discourse in health policy, health professionals
need education to develop and address dimensions of power and reciprocity in empowering relations
between users and themselves.
© 2020 The Authors. Published by Elsevier B.V. This is an open access article under the CC BY license
(http://creativecommons.org/licenses/by/4.0/).

Contents

1. Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1264
1.1. Objective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1264
2. Methods . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1264
2.1. Eligibility criteria . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1264
2.2. Databases and search strategy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1264
2.3. Selection of articles and critical appraisal . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1265
2.4. Data extraction and analysis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1265
2.4.1. Coding the text . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1265
2.4.2. Developing descriptive and analytical themes . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1265
3. Results . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1266
3.1. The included articles . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1266
3.2. The common characteristics – descriptive themes . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1266
3.2.1. Descriptive themes reflecting antecedents to empowerment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1266
3.2.2. Descriptive themes reflecting attributes of empowerment . .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1268

* Corresponding author.
E-mail addresses: kristin.halvorsen@oslomet.no (K. Halvorsen), alfhild.dihle@oslomet.no (A. Dihle), camilla.hansen@oslomet.no (C. Hansen),
marita.nordhaug@oslomet.no (M. Nordhaug), heidi.jerpseth@oslomet.no (H. Jerpseth), sidsel.tveiten@oslomet.no (S. Tveiten), pal.joranger@oslomet.no (P. Joranger),
ingrid.ruud.knutsen@oslomet.no (I. Ruud Knutsen).
1
Shared first authorship.

https://doi.org/10.1016/j.pec.2020.02.017
0738-3991/© 2020 The Authors. Published by Elsevier B.V. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
1264 K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271

3.2.3. Descriptive themes reflecting consequences of empowerment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1268


3.3. Analytical themes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1269
4. Discussion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1269
4.1. Study limitations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
5. Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
5.1. Practice implications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
Funding . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
Authors’ contributions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
Acknowledgement . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270
References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1270

1. Introduction 1.1. Objective

Empowerment as a scientific concept emerged in the literature The objective of this paper is to assemble concept analyses on
in the 1960s and 70s, particularly in relation to civil rights and empowerment to achieve a deeper understanding of the perspec-
democratization processes in e.g. South Africa, South America and tive of the healthcare service user.
the US. Empowerment is rooted in social action and aims to The following research question were asked:
increase the autonomy, power and influence of oppressed groups.
Lack of empowerment was associated with the patriarchal and i What are the common characteristics of empowerment in
authoritarian concept of power [1,2,3]. In this context, power refers concept analyses of empowerment from the perspective of the
to status and to the possibility to control people, their actions and healthcare service user?
economic resources. The political ideals of empowerment were to ii How is the healthcare service user perspective revealed in
draw attention to the capacities and abilities of individuals, to concept analyses of empowerment?
promote power and participation, rather than focusing on their
deficits and needs [1–3].
In 1986, the World Health Organization (WHO) introduced the 2. Methods
new public health strategy in the Ottawa Charter [4]. Three main
principles can be interpreted from this 1) Redistribution of power The method chosen for synthesizing concept analyses of
from health professionals to healthcare service users, 2) Participation empowerment is thematic synthesis as described by Thomas and
and 3) The healthcare service user as an expert on him/herself. The Harden [15]. Their development of thematic synthesis is built on
increased focus on empowerment is described as representing a the approach to meta-ethnography developed by Noblit and Hare,
shift from a paternalistic to a participatory way of thinking about and is rooted in the research tradition of grounded theory [15]. The
health and healthcare [2–5]. Consequences following this are that method consists of three stages: 1) coding text 2) developing
user participation, involvement and health competency are given descriptive themes and 3) generating analytical themes. As in all
increased attention in healthcare and research the last two types of systematic reviews, the process of searching for and
decades. selecting relevant research is highlighted as an important aspect of
According to several authors, empowerment is seen as a a thematic synthesis of high quality, and this is also described by
concept, a process and as a result [6–8]. Moreover, empowerment Thomas and Harden [15]. Performing this protocol driven synthesis
is a widely used concept, described to take place on different levels, the PRISMA checklist is followed (Appendix 1, Supplementary
from a political macro level to the level of groups and individuals material).
[2]. Knol and van Linge [9] lean on the work of Quinn and Spreitzer
[10] to describe individual empowerment as a cognitive motiva- 2.1. Eligibility criteria
tional factor coming from within. Theories of empowerment refer
to a dynamic understanding, directed at solutions, growth and To ensure a broad perspective of the concept of empowerment,
development in achieving empowerment on individual and our inclusion criteria were initially comprehensive and included
societal levels. These theoretical perspectives have a common various concepts related to empowerment. The inclusion criteria
focus on the power in empowerment, which is addressed in were (i) concept analyses of Empowerment, Partnership in
different studies, e.g. by Spence and Tengland [11,6]. VanderPlaat healthcare, Health promotion, Health literacy, Health assessment,
underlines that empowerment is not something “given”; more- Health Coaching, Health efficacy, Co-production, Citizenship,
over, power is something “equally taken” in equal relations [12]. Healthcare supervision, Health supervision, (ii) concept analyses
Over the years, different theoretical perspectives have been based on both primary and review studies, (iii) studies focusing on
used to understand how empowerment unfolds, drawing on e.g. the user perspective in healthcare, (iv) studies published in
psychology, sociology, management and critical social science English, Danish, Norwegian or Swedish, (v) studies involving adults
[7,12]. In healthcare theory, empowerment is termed an ideology (18+), (vi) studies published since the Ottawa Charter in 1986.
[13], a paradigm [14] and a philosophy [11], illuminating the broad Exclusion criteria were (i) studies involving people under 18, (ii)
understanding of empowerment. qualitative or quantitative individual studies without a concept
Several concept analyses have been performed in the last 20 analysis, (iii) a concept analysis that drew only on theoretical
years in order to explain and define empowerment as a concept. To perspectives, (iv) a concept analysis from a nursing or healthcare
our knowledge, there are no papers synthesizing concept analyses provider perspective or from an organizational and management
of empowerment. A synthesis may contribute to further under- perspective, (v) studies published before 1986.
standing of the concept and initiate new discussions of how to
understand the concept for the future. As empowerment involves a 2.2. Databases and search strategy
participatory way of thinking, it seems reasonable to explore how
perspectives of healthcare service users appear when empower- A systematic search was conducted in the databases Medline,
ment is approached as a concept. CINAHL, EMBASE, PsycINFO and ERIC. Additionally, we searched for
K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271 1265

relevant concept analyses from the reference lists of all articles consequences were useful tools in the analytical process and
read in full text. Search terms were combined by using the Boolean constituted a framework in the data extraction and analysis in this
terms “or” and “and”. For all of the databases, the search terms paper. Antecedents are those events or incidents that must take
were used as both keywords and MeSH terms according to the place prior to the occurrence of the concept in focus. Attributes are
different databases. We searched for publications from 1 January described as what characterize and give the best insight into
1986 to 31 August 2019. A complete search history from CINAHL is empowerment, while consequences are the conditions or changes
found in Fig. 1. that arise as a result of empowerment.

2.3. Selection of articles and critical appraisal


2.4.1. Coding the text
The coding process was performed line by line, article by article,
Four of the authors conducted the main searches. Our searches
as a back and forth process according to meaning and content, as
resulted in 255 relevant hits after all duplicates were removed. The
recommended by Thomas and Harden [15]. The coding process
abstracts of these were screened and 83 relevant articles were
consisted of finding both main and sub-codes. The codes were
included where the terms empowerment and concept analysis
given separate colours to aid visibility. During the coding process,
were found in the title or abstract, or in both. All 83 articles were
the codes were split and merged. The way the codes emerged
read in full text by pairs of authors, and discussed by all authors.
across the articles was described. Table 2 shows an overview of the
After the reference lists were screened, one more article was
identified codes across the selected articles.
added. After the full-text reading, 70 articles were excluded
because they were not concept analyses of empowerment, not
based on empirical studies or for quality reasons. All articles that 2.4.2. Developing descriptive and analytical themes
did not include concept analysis of empowerment in title or During the coding process, descriptive main and sub-themes
abstract were excluded. Thirteen articles were then re-read in full reflecting the concept of empowerment across the articles
text by all authors. became more evident. The descriptive themes represent the
A critical appraisal was performed using the Joanna Briggs common characteristics of empowerment, according to research
Institute Critical Appraisal Tool (http://joannabriggs.org/research/ question i, framed within antecedents, attributes and conse-
critical-appraisal-tools.html) [16]. The appraisal tool for system- quences of the concept of empowerment. Thirteen descriptive
atic reviews was chosen as the most appropriate, since most of the themes were developed (Table 3). The descriptive themes
included concept analyses were based on reviews of research. One reflected research question i, focusing on the common character-
article was excluded due to methodological weakness. Twelve istics of the concept of empowerment found across the concept
concept analyses were included (Fig. 2). analyses, structured according to antecedents, attributes and
All the included articles, their methods of concept analysis, consequences. According to Thomas and Harden [15], the
their empirical basis and the results of the critical appraisal are objective of creating analytical themes is to translate and
shown in Table 1. synthesize the findings from the descriptive themes into a higher
understanding, adding something more to the understanding of
2.4. Data extraction and analysis the concept, here empowerment. Based on the descriptive
themes and research question ii, two analytical themes were
Most of the included concept analyses approached the concept established to gain a more comprehensive understanding for a
of empowerment in three dimensions: 1) antecedents, 2) attributes discussion of how the healthcare service user perspective became
and 3) consequences. For that reason, antecedents, attributes and apparent in the concept of empowerment.

Fig. 1. Complete Search history in CINAHL.


1266 K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271

Fig. 2. Flow diagram of included and excluded articles in the synthesis.

3. Results occur in different phases of the empowerment process. The themes


are presented in Table 3.
3.1. The included articles
3.2.1. Descriptive themes reflecting antecedents to empowerment
Antecedents are those events or incidents that must take place
The data consisted of twelve concept analyses of empower-
prior to the occurrence of the concept in focus. In this review, it
ment, but these described the concept in relation to different
implies what are the prerequisites for the empowerment process
contexts, user groups, countries and methods of concept analysis.
being an issue. What initiate the need for empowerment? The
The contexts reflected in our included articles were both hospitals
range of the antecedents are wide and represent extremes of
and homecare/community healthcare. The user groups included
experiences from powerlessness to partnership in relations. The
patients with epilepsy, chronic obstructive pulmonary disease
antecedents are thematised according to commonality and width
(COPD), chronic illness in general and mental health challenges,
of characteristics.
and patients in intensive care, hospital patients in general,
patients in general and user groups in midwifery and in health 3.2.1.1. Powerlessness, loss of control, stigma and/or need of
promotion. Two of the selected articles were based on primary competence. Five papers describe experiences of
empirical studies of user experiences [17,18], while the other ten powerlessness, loss of control and stigma as common
had reviews based on user experiences as the basis for their antecedents of empowerment [18–21]. Bennett et al. [22] argue
concept analysis. Some of these reviews focused on both users that loss of power and control is required for empowerment to
and health professionals. However, our focus was only on occur, and describes how e.g. people with epilepsy feel less
healthcare service users. An overview of the included studies is empowered when dealing with services, relating this to a lack of
presented in Table 1. information and poor quality of consultations. They also argue
that stigma based on the epilepsy diagnosis underlines the feeling
3.2. The common characteristics – descriptive themes of being disempowered. Another related prerequisite for
empowerment is being in need of competence, referring to
In developing the descriptive themes, it was important to be as patients’ need of competence and development of the necessary
descriptive as possible to ensure that all the common character- knowledge, skills and attitudes to make choices on issues
istics of the concept of empowerment in the selected articles were important to them [22–25].
reflected in the themes. In the included articles, we found
overlapping themes of the antecedents, attributes and conse- 3.2.1.2. Motivation, change and/or transition. Motivation is
quences. In the analysis, overlapping values and properties could described as important [19,21,22,24,26,27]. Wahlin [27] explains
K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271 1267

Table 1
Matrix of included studies.

Authors/Year/ Aim Method of concept analysis Setting/Participants Critical


Country appraisal
1 Bennett et al., To undertake a concept analysis of empowerment with Synthesis of Norris’ and Rodgers’ Epilepsy services Patients with Good
2016 Ireland reference to epilepsy services methods Review of 159 articles epilepsy and their providers
2 Castro et al., To clarify the meaning of the overlapping concepts of patient Walker & Avant and Haase et al. Hospital care Patient group not Good
2016 Belgium empowerment, patient participation and patient-centredness Review of 103 articles specified
3 Dowling et al., To explicate a model of empowerment appropriate to clients Synthesis of Norris’ and Rodgers’ Setting not specified Patients with Average
2011 Ireland living with a chronic illness, in particular COPD methods Review, number of chronic illness, in particular COPD
articles not specified
4 Finfgeld, 2004 To examine concept analyses related to empowerment, Walker & Avant Review, number of Setting not specified Individuals Average
USA evaluate ways in which quality findings support these articles not specified with mental health problems
analyses, and propose a model based on this work
5 Fotoukian To clarify the meaning and the nature of the empowerment A hybrid model, Rodgers and Hospital care 7 old people with Good
et al., 2014 Iran concept in relation to some older Iranians suffering from Knafl. Literature review/ chronic diseases, 1 head nurse, 1
chronic diseases integrative review with 60 articles nurse, 1 nursing instructor, 3
included family members
6 Gibson, 1991 To define the concept of empowerment and determine if this A synthesis of strategies from Setting not specified Individuals, Poor
USA concept has some utility for nursing practice Norris, Rodgers, Schwartz-Barcott families and communities
& Kim and Walker & Avant
Literature review
7 Hermansson & To analyse the empowerment concept in the midwifery Hybrid model Schwartz-Barcott & Prenatal clinics, delivery and Good
Mårtensson, context, focusing on the childbearing period, with the aim of Kim Literature review maternity wards 9 midwives and
2010 Sweden clarifying its meaning in order to enable comprehension and 12 couples
use in clinical practice, education and research
8 Holmström & To explore and compare the concepts of patient-centredness Walker & Avant Review of Health professionals Patients, Average
Röing, 2010 and patient empowerment, and clarify a possible relationship theoretical and empirical numbers and types not specified
Sweden between the two from the perspective of the encounter literature with 40 articles
between patients and their healthcare providers included
9 McCarthy, To examine the attributes, characteristics, and uses of Walker & Avant Literature review Not specified Average
2008 empowerment within diverse disciplines to clarify its
meaning and explore its potential application to nursing
challenges that cross settings, disciplines, and time
10 Ntshingila To define the central concept of “facilitation of self- Walker & Avant Initial steps of Women with borderline Average
et al., 2016 empowerment” of women living with borderline personality Chinn & Kramer Review of personality Numbers unknown
South Africa disorder literature
11 Rodwell, 1996 An analysis of the concept of empowerment and its use in Walker & Avant Rodgers Literature Not specified Poor
England nursing practice, education, research and health promotion review
12 Wåhlin, 2017 To analyse how the concept of empowerment is defined in the Walker & Avant Literature review ICU patients were in focus in six of Good
Sweden scientific literature in relation to critical care. As 22 articles were found to these articles, next of kin in four
empowerment is a mutual process affecting all individuals correspond and staff in 12 articles
involved, the perspectives of not only patients and next of kin
but also staff were sought.

Table 2
Codes according to antecedents, attributes and consequences.

IDENTIFIED CODES

Antecedents Attributes Consequences


Loss of power and control Interpersonal factors Self-concept (positive and negative)
A sense of distrust and trust Transformation of consciousness/personal change and empathy Sense of mastery and control
Motivation Self-care, management and recognition of disease Sense of connectedness
Active participation Partnership Independence
Competences Education process Ability to set and reach goals
Intrapersonal resources Participating Development of competencies
Interpersonal resources Aspects such as autonomy and self-determination Quality of life
Transformation of consciousness Personal and subjective process of outcome Responsibility
Social participation Negotiation/dialogue Trust
Patient-centred approach Self-efficacy and self-development Enabling
Support/family support Trust Active participation
Environment

that motivation is the driving force that provides direction and 3.2.1.3. Participatory relationships, person-centredness, support, trust
meaning, and that this antecedent to empowerment operates at and respect. Client participation is considered another essential
both a conscious and subconscious level. Finfgeld [19] argues that prerequisite for empowerment. Castro et al. [23] argue that the
motivation alone does not guarantee a change in power. Change is approach towards the patient in empowerment should involve
discussed in some of the articles (as an antecedent, attribute and patient-centredness, and call for a customization of care to
consequence) and Holmström and Röing [21] and McCarthy and individual needs, desires and circumstances of patients [p.
Freeman [25] argue that the ability to reflect on benefits of 1926]. Support involves a helpful, warm and supportive
behaviour changes and the willingness to accept change represent atmosphere from health professionals, family members and
an antecedent to the empowerment process. network [24,27] and opportunities for meaningful choices.
1268 K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271

Table 3
Overview of descriptive themes in antecedents, attributes and consequences.

Descriptive themes: antecedents Descriptive themes: attributes Descriptive themes: consequences


Experiencing powerlessness, loss of Being in a process of mutual partnership, reciprocity, trust, respect, participation Enabling a conscious self-understanding and
control and stigma and dialogue to enhance competence improved quality of life
Need of competence Being in an enabling process of change in interaction with others Enabling mastery, control, competencies and
goalsetting
Experiencing motivation, change and Being in a process of strengthening self-determination A trustful and participatory relationship
transition
Active participatory relationships
Experiencing (mutual) trust and
respect
Experiencing person-centredness
Experiencing support from others

Mutual trust and respect are an antecedent in several of the studies focus on strengthening self-care, self-help or self-development
[20,21,25,26,28]. Hermansson and Mårtensson [18] describe how [17,20,21,24,27]. Ntshingila et al. [28] define empowerment as
trust, openness and acceptance characterize a nurturing implying self-belief, trust and self-leadership. Moreover, it implies
environment and that meeting patients and users as equals is a an active role in “creating the future of your dreams” [p. 440].
necessary condition in an empowerment process. Another
antecedent is being in active participation [17,18,22–24,26], 3.2.2.3. Process of strengthening self-determination. Castro et al.
which is described as involving mutual commitment to the [23] argue that self-determination theory is an underlying theory
process [20]. The ability to participate in an active way in decision- of empowerment and that self-determination is a guiding attribute
making and goal setting is emphasized, where contextual factors in the empowerment process. McCarthy and Freeman [25] define
like time, choice, trust and care are important [28]. Another theme attributes of empowerment as including reciprocal interaction,
within the same area is the experience of person-centredness autonomy linked to accountability, shared transfer of power and
involving dialogue and enabling processes [17,18,21,22–26]. ultimately greater access to financial and intangible resources such
as knowledge and influence. They argue that empowerment must
3.2.2. Descriptive themes reflecting attributes of empowerment be part of a mutual and reciprocal interactive relationship on the
Attributes indicate the characteristics of the empowerment level of individuals, organizations or communities.
process, i.e. after the need for empowerment is elucidated and the
empowerment process is ongoing. Antecedents has some over- 3.2.3. Descriptive themes reflecting consequences of empowerment
lapping values and properties with the attributes. However, the Consequences are those conditions or changes that arise as a
difference lay in the process. Distinctive for the terms used in the result of empowerment.
attributes are that they all reflect positive laden attributes in
relationships. 3.2.3.1. Enabling a conscious self-understanding and improved quality of
life. Development of a conscious self-understanding appears in
3.2.2.1. Process of mutual partnership, reciprocity, trust, respect, several of the articles as a central consequence of empowerment [17–
participation and dialogue to enhance competence. Dowling et al. 19,21–24,26–28]. A conscious self-understanding is described in
explain that attributes are often described in a theoretical, and different ways and may involve a positive self-concept [17,20–22,24],
sometimes in a philosophical, manner [24]. In general, attributes self-esteem [18,26], an integrated self [24], sense of security and
reflect empowerment as a process. The empowerment process is identity [27], and inner strength and a process of transformation
described as a social process [20,22], a helping process [17,24]. Furthermore, empowerment involves self-development and
[20,21,23,27], and a dynamic process. Furthermore, the self-efficacy [18], increased understanding of oneself, personal power
empowerment process is described as an interactive process and self-management [21], hope for the future [26], personal growth,
[22,28], a transactional process [22] and an enabling process innersatisfaction[27] andconnectedness [20,24]. Ntshingila etal. [28]
facilitated in interaction with others [21,23,28]. It is also described describe empowerment as a consequence when women living with
as mutual partnership, trust, respect [27] and partnership in an borderline personality disorder know what is best for them and when
educational process [17,20,21,25,26]. For example, Fotoukian et al. they can take charge of their own lives, by playing an active role in
[17] describe how the empowerment process in senior care creating their life and having a feeling of security and connectedness.
involves an allocation of sufficient time for the patient and Additionally, improved quality of life is described as being a
significant others, and for the health professionals to surrender consequence of empowerment [18,20,23].
control, as older people know their disease and how it affects them,
but also how they live with the limitations their condition imposes 3.2.3.2. Enabling mastery, control, competencies and goal setting. A
on them. sense ofmasteryandcontrol isanotherconsequence ofempowerment
[17,18,20,23,24,26,27]. Hermansson and Mårtensson [18] describe
how consequences of empowerment in the midwifery context apply
3.2.2.2. Change and interaction with others. The empowerment
to both parents and the midwife. For the parents, empowerment
process involves personal change, self-reflection and
involves being better prepared to tackle new situations and control in
transformation of consciousness [17–21]. Hermansson and
their new life with a baby. For the midwife, a consequence is increased
Mårtensson [18] describe that the process starts with an
awareness of parents’ resources and capacity. Other consequences of
awareness that makes it possible to start reflecting on the
empowerment are enabled in competencies, goal setting [19,22,25]
changing situation. In the empowerment process, knowledge is a
and risk taking [20].
key aspect and a tool to access information; this is connected to the
perception of one’s own knowledge in relation to the situation that 3.2.3.3. Trustful and participatory relationships. Empowerment
one has to deal with [28]. Attributes of the empowerment process includes the development of trust and participatory relationships
K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271 1269

[17,19,24,25]. McCarthy and Freeman [25] describe how 4. Discussion


empowerment increases status through the rights and
responsibilities gained through participation in the empowerment In this thematic synthesis, we aimed to explore how the
process. They describe the production of trusting, respectful and healthcare service user perspective is apparent in concept analyses
nurturing nurse-patient relationships that provide support, of empowerment and in particular, how user participation occurs
encouragement and information. Nevertheless, they do emphasize in the empowerment process. We found that the user perspective
that families must accept responsibility for health choices and and involvement in empowerment implied challenges of equality
behaviours [25]. Frustration and distress are described as a possible in the relationship between the healthcare service user and health
negative consequence of empowerment [19]. Bennet et al. [22] professionals, and that the question of power was scarcely
underline that one consequence of empowerment may involve being discussed.
more conscious of negative self-understanding, e.g. being aware of the Empowerment is revealed in the concept analyses as being
stigma and limitations of epilepsy. given by health professionals rather than taken by healthcare
service users, as also discussed by VanderPlaat [12]. Thus, the
3.3. Analytical themes empowerment process tends to be more like a behaviour change
approach, and is paternalistic in showing little regard for the
In the concept analysis, the descriptive themes involve both individual’s own perceptions, as also argued by Tengland [13]. The
intrapersonal aspects (e.g. loss of control, powerlessness, need of authors of the included articles only to a limited extent discuss the
competence) and interpersonal aspects (e.g. mutual partnership, obvious power relations in empowerment, which challenge
interaction, trust, support) of empowerment. However, there is equality between the parties, as also discussed in a more recent
little description of challenges in the transition of power between systematic review by Agner and Braun [29]. We will argue that lack
health professionals and the healthcare service user. Thus, equality of awareness to inequality and paternalism in the relationship
in the relationship between health professionals and healthcare between health professionals and the health care service user may
service users is hardly discussed. Accordingly, empowerment lead to a judgmental attitude and is a crucial barrier to
appears as a purpose-oriented action on the terms of health empowerment.
professionals, instead of a fundamental transition of power, which User participation is an important theme across the included
is the rationale for empowerment. Thus, when analysing and studies, as additionally emphasized in other studies [9,17–28,32].
synthesizing these articles in detail, we question whether a Moreover, participation is a growing discourse in health policy
paternalistic way of understanding empowerment still prevails, documents globally [4,5,30] and during the last three decades, the
but in a more implicit way, and whether equality in relations goal has been to change the role of the healthcare service user from
between health professionals and healthcare service users is still a passive receiver to an active partner [30–32]. Nevertheless,
problematic. To address research question ii, the following two research highlights that healthcare service users experience
analytical themes emerged for further discussion. limited user participation in relationships with health professio-
nals [33–35]. In addition, Agner and Braun [29] demonstrate that
i User perspective and involvement in empowerment – chal- healthcare service users frequently experience superficial involve-
lenges of equality in the relationship between the healthcare ment in decision-making as powerlessness and loss of freedom.
service user and health professionals. Some of the patients in their included studies described not being
ii A present focus on changing users to achieve empowerment able to participate in their own health choices as a form of coercion,
versus an absent focus on power in the relations between the while others had not even realized that involvement in decisions
healthcare service user and health professionals. was an option in a hierarchical healthcare system [29]. Despite
this, only two of the studies in our review [19,22] revealed
The development of trust and participatory relationships is challenges and questions of power and inequality in the relations
described in several of the concept analyses as a consequence of between health professionals and healthcare service users. In these
the empowerment process by Fotoukian et al. [17], Finfgeld [19] two studies, epilepsy and COPD were related to experiences of
and McCarthy and Freeman [25], while Castro et al. [23] stigmatization. These studies show that power is difficult to
highlight participation as an antecedent. Several of the included redistribute and that certain groups are particularly vulnerable to
studies refer to the necessity of opportunities for choices and a oppression. Patients who are chronically ill and depend on health
trusting, open, accepting and respectful relationship as a services on a regular basis are especially vulnerable [34,35].
requirement to start an empowerment process [21,25,26,28]. Moreover, these user groups are probably the ones who would
Even so, some of the concept analyses present obvious benefit the most from equality rather than paternalism in the
challenges in equality between healthcare service users and services. This might be compared to the findings of Agner and
health professionals [19,22,27]. For example, several papers Braun [29], who describe how a lack of control and participation
[21–25] describe how patients need competence and knowledge was strongly felt by mental health patients. This concurs with the
to make choices on their own behalf, while there is limited results from a study by Tveiten et al. [35] that aimed to understand
emphasis on health professionals’ need of competence and patient experiences of empowerment in a psychiatric context. The
attention to power differences in their relationship with extensive use of empowerment made Kuokkanen and Leino-Kilpi
patients. Additionally, our argument is based on the impression [7] warn against a broad and sweeping use of the concept that
that empowerment is described in the concept analyses as a undermined its value. Our findings support this concern.
recipe of acknowledgment and attentiveness with limited All our included articles elaborated the concept of empower-
discussion of challenges that follow from the ideals of ment in the perspective of the relationship between the healthcare
empowerment in healthcare. It seems that nurses or other service user and the healthcare provider in different contexts and
health professionals are supposed to create an empowerment with different groups of patients. However, only two of the concept
process in the patient relationship with the rationality of analyses were based on the authors’ own empirical work, studying
making patients act differently, thus changing the patient. The empowerment within a specific user group and context [19,19].
empowerment process occurs as more of a ‘helping process’ Despite this, the authors’ conceptualization of what the concept of
from the health professional than a mutual process between the empowerment implied within these groups did not differ
parties. significantly. Rivest and Moreau [36] claim that not studying
1270 K. Halvorsen et al. / Patient Education and Counseling 103 (2020) 1263–1271

empowerment in its context is an important criticism of studies of empowerment to improve empowerment in clinical practice.
empowerment. Thus, there is a danger of using empowerment Health professionals need education regarding users developing
discourses to “legitimatize practices that are not at their core based health competence. It is a matter of concern if researchers neglect
on an empowerment approach” [36]. We would also argue that the user perspective and instead develop grand theories that lack
there is a great risk of understanding the concept of empowerment nuances relevant to particular user groups and contexts.
in a generalized way without involving and approaching specific
groups of healthcare service users. All healthcare providers should Funding
be careful not to draw conclusions about an overall understanding
of empowerment for different user groups in diverse contexts. Funded with NOK 150.000 from Oslo Metropolitan University,
Faculty of Health Sciences, Norway.
4.1. Study limitations
Authors’ contributions
The primary aim of synthesizing qualitative research is to
address questions about people’s perspectives and experiences in KH and AD designed and led the project. KH, AD, CH, MN read all
complex and contested territory, which may also inform health abstracts and decided on full-text reading. All authors read and
policies and practices [15]. There are some weaknesses in this discussed all included articles. All authors participated in analysis
thematic synthesis. Firstly, the quality of the concept analyses of the included studies and in writing the manuscript. All authors
varied, which made the critical appraisal problematic, since no read the final version of the manuscript.
accurate quality appraisal tool exists for concept analyses. Some
articles were included, despite lower quality, as they represented Declaration of Competing Interest
the most read and cited concept analyses of empowerment in the
last two decades. Another challenge was that the selected articles There are no conflicts of interest.
mainly focused on the approach of the concept analysis, rather
than the methods of searching and reviewing the literature. Acknowledgement
Furthermore, in the critical appraisal it became clear that the
descriptions and methodological quality have improved in the Thanks to OsloMet, Faculty of Health Science for funding this
most recent concept analyses. Additionally, the term empower- work. Thank you to the Library at OsloMet for always good
ment is complex, which may have led to exclusion of relevant guidance.
search words. However, the methodological transparency
strengthened the validity of this synthesis. In a thematic synthesis, Appendix A. Supplementary data
the choice of analytical themes is subjective, as they develop from
what captures the researchers’ attention and interpretation [15], as Supplementary data associated with this article can be found, in
also underlined by Agner and Braun [29]. As a large group of the online version, at https://doi.org/10.1016/j.pec.2020.02.017.
authors, we conducted extensive discussions to strengthen the
study. A final question is whether concept analyses can be subject References
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