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A recent paper, Promoting Excellence in End-of-Life Care (Byock, 2006), aimed at addressing
documented deficiencies in the care of patients, did mention those with pre-existing mental health
problems as a population that they served. We also work to influence policy, including Government
at the highest levels. Thus, it is evident that these parents go through enormous stress in caring for
their special child. Nonetheless, there has been media interest in this area indicated by a recent
debate on the subject hosted by Radio 4 (Sept 2007). Tate, F. (2005) Death and dying: implications
for inpatient, psychiatric care. Tele-rehabilitation services are available for many years, for which
necessary infrastructure, laws, and instructions have been considered, but in Iran, there are no
regulations or instructions for telerehabilitation services. Similarly, the appointment of a designated
link person to act as a bridge between mental health and palliative care services would greatly
enhance the sharing of information and expertise thus facilitating effective communication (Davis,
2006; Baker, 2005). Finally, it will be the tenth anniversaries of the National Service Framework
(NSF) for Mental. Arie, T. (2006) Review of Ethical Foundations of Palliative Care for Alzheimer
Patients. The relationship between palliative care and mental health issues may feature more strongly
should these NSFs be “refreshed” or renewed. Training issues also involved a lack of resources to
fund appropriately trained staff. A primary concern was the lack of effective partnerships between
disciplines; with hospices saying that they had difficulty accessing services, there was no joint
working and no clear pathway of responsibility. The overall consensus in this literature is that this
group of people are not receiving the care they need with the majority of research explicitly stating
that there is an urgent need for future research and clearer guidelines. Mitchell et al. (2007) Hospice
care for patients with dementia. Cockell et al. (2002) Development of a decisional balance scale for
anorexia nervosa. Felker et al (1996). Mortality and medical co-morbidity among psychiatric
patients: A review. Methods and Material: It was cross sectional study conducted at RINPAS,
Samples were recruited through purposive sampling technique. Journal of the American Geriatrics
Society, 55(8), 1316-1317. While palliative care for adults with learning disabilities is recognised as
an important topic in its own right, literature in this area is not examined in this review. The
Foundation has suggested to the NCPC that Help the Hospices should be invited to contribute to
this briefing. Chochinov, H. (2004) Palliative Care: An Opportunity for Mental Health Professionals
Canadian Journal of Psychiatry, 49(6), 347-349. Of the 12 respondents to the survey 5 hospices said
they had patients with pre-existing severe mental health problems. Incidence was difficult to
determine as it was unclear whether hospices understood the definition of severe mental health
problems, and it likely that some figures included mental health problems that had developed
following a terminal diagnosis. The Problem of Stigma during End-of-life Care at a Psychiatric
Institution. If you would like to make a donation, please call us on 020 7803 1121. The relationship
between palliative care and mental health issues may feature more strongly should these NSFs be
“refreshed” or renewed. Craun, M. (1997) Hospice care of the psychotic patient. This term does not
include mental health problems that have not resulted in contact with mental health services. Results:
The awareness and knowledge were very poor among general population when compare. Research
into end-of-life decision-making in those with severe mental health problems is scant and has been
dominated by the work of Foti (2003, 2004, 2005). Both the survey and the literature review
highlight current gaps in the provision of care and recommendations have been proposed to help
address this.
A primary concern was the lack of effective partnerships between disciplines; with hospices saying
that they had difficulty accessing services, there was no joint working and no clear pathway of
responsibility. With the number of dementia patients reaching as high as 50% it is essential that
research is carried out to determine the quality of care they are receiving and ways it can be
improved. For example, a hospice in Scotland has worked closely with the national dementia research
centre to improve palliative care for people with dementia. Maricle et al (1989) The coexistence of
physical and mental illness among two samples of Oregon's chronically mentally ill. A semi-
structured interview schedule was used to gather data about how a family coped with muscular
dystrophy in two children. The Foundation has suggested to the NCPC that Help the Hospices
should be invited to contribute to this briefing. Spiess et al. (2002) Palliative care: Something else we
can do for our patients. Koranyi, E. (1979) Morbidity and rate of undiagnosed physical illnesses in a
psychiatric clinic population. Madsen et al (1997). Physical health in mentally ill patients. Black
(2001) Palliative care nurses and mental health nurses: sharing common ground. If you would like to
find out more about our work, please contact us. Similarly, a second hospice said that if close
psychiatric monitoring and support was required, it might be deemed more appropriate for the
patient to be cared for by mental health services. The prevalence of mental disorders is kept on rising
globally. There are several reasons why it is particularly timely to consider work in this field. Working
beyond narrow, stereotypical definitions of palliative care as restricted to terminal cancer patients,
this balanced and thought-provoking volume examines the many interrelated issues that face the
individual, families, and caregivers, setting the groundwork for improved, ethical relationships and
interventions. Being illiterate and having no formal education (42.4%) was associated with severe
burden. Also, 60.6% of those having a low income experienced severe burden. Parents are in family
who deal with the issues associated with child's disability and also maintain the household so it is
very important for parents to take some time to care for themselves as individuals and getting
enough sleep, eating regular meals, taking a short walk, and doing the things that they really enjoy.
There is also evidence of increasing good practice in care for those with dementia. Mitchell et al.
(2007) Hospice care for patients with dementia. This finding was mirrored in an earlier study by
Lloyd-Williams et al. (1999), who concluded that access to psychiatry and psychology is variable and
problematic (see section 4 for these last two references). Journal of the International
Neuropsychological Society, 13(4), 635-641. O'Connor, M. (2006) Interdisciplinary teams in
palliative care: a critical reflection. Results: Finding of this study showed that parents of male
children have good Quality of Life in comparison to the parents of female children. Life-satisfaction
dimensions were measured through Life Satisfaction Scale developed and standardize by Dr. Pramod
Kumar and Dr. Jayshree Dhyani. Findings of present research reported that primary caregivers of
obsessive compulsive disorders have higher level of mental, social, job and marital satisfaction as
compared to caregivers of schizophrenia. The primary concerns in terms of impact is found to be on
caregiver's health, financial and psychological burden. Casey, D. (2005) Metabolic issues and
cardiovascular disease in patients with psychiatric disorders. The original brief included all types of
illnesses (physical and mental); depression and psychological distress that arose as a result of a
terminal diagnosis; pre-existing mental health problems; all locations of care, stages of illness,
therapies and psychological interventions; assessment; models of practice; the different groups of
people involved (for example carers, patients and professionals); and mental capacity issues. Short
periods of conditional leave may be as effective (or non-effective) as formal compulsory treatment in
the community. This is largely because an extensive literature currently exists for this population.
Sexual And Gender Identity, Personality, And Eating.
Journal of the International Neuropsychological Society, 13(4), 635-641. Psychosomatics: Journal of
Consultation Liaison Psychiatry, 42(1), 41-47. Results Of 1518 adult participants residing in Canada,
45% had high perceived knowledge, of whom 46% had high actual knowledge. Of the 7 articles
found that directly addressed the issue of multidisciplinary teams in palliative care, only 2 were
specifically concerned with how to improve palliative care for those with existing mental health
problems (Davie, 2006; Baker, 2005). Due to stressful events in war, veterans may face mental
health problems which seriously affects the quality of their lives, families and communities. One
hospice highlighted that groups of professionals who are excellent at managing, for instance, patients
with dementia, may not be so good at pain control. There is no doubt that there are current gaps in
the psychological support for people receiving palliative care, and literature concentrating solely on
the provision of mental health support in hospices is somewhat scarce (see section 4). Turrell (2005)
Capacity to consent to treatment in adolescents with anorexia nervosa. Keywords: Palliative care,
General public, Awareness, knowledge. Honig et al (1992) Physical illness in chronic psychiatric
patients from a community psychiatric unit revisited. While the development of such programmes is
important, the number of people with severe mental health problems that have a terminal illness will
be relatively small and it is therefore unrealistic to expect all palliative care and hospice services to be
fully conversant in the management of adults with severe mental health problems (Addington-Hall,
2000). Palliative care: symptom management and end of life care. (December 2003). We use our
findings to promote survival, recovery and prevention. The conundrum of opioid tapering in long
term opioid therapy for chronic pain. However, literature on mental health and psychological issues
in end-of -life care is extensive and covers a plethora of illnesses, therapies, assessment tools,
locations of care, and communication issues. People with pre-existing mental health problems who
develop a terminal illness and require end-of-life care are possibly among the most underrepresented
and deprived populations in our society (Davie, 2006). Review authors independently selected
studies, assessed their quality and extracted data. Below are 7 articles that outline the problems
associated with treating this population. Method: The study focused on the family of two boys with
muscular dystrophy. What needs to be achieved and priorities for future research. Aminoff (2007)
The new Israeli Law 'The Dying Patient' and Relief of Suffering Units. Baker (2005) Palliative and
End-of-Life Care in the Serious and Persistently Mentally Ill Population. While the relationship
between mental health problems and poor physical health is well documented and extensively
researched there was found to be relatively little literature on the challenges associated with treating
people with co-morbidity. Aim: To study the gender differences in term of Quality of Life among
parents of mentally challenged children. The post-COVID-19 scenario will multiply anxiety,
depression, suicide, and other psychological effects that will put novel challenges for mental health
services in the community. They are Daily care stress, emotional stress, family stress and social
stress. Kapo et al (2007) Palliative care for the older adult. This could be done through joint
education initiatives between palliative care and mental health professionals. Results: The findings of
the study showed that physical disability and the consequent cognitive impairment has a significant
negative impact on family. This will help determine exactly how many service users may have been
lost between services, and are not receiving sufficient or appropriate care.