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Spina Bifida

Health Professional
Expectations for Self-care
Skill Development in Youth
with Spina Bifida
Amanda Mckellar

Introduction
Spinda

Bifida education

Preventable secondary conditions


Health Care opinions

Cheyennes

Story

Evidence for Care


Spina

Bifida

Neural tube birth defect


Failure to close by 28th day after
conception
Various severities
Treatment

Evidence for Care


Dorthea

Orems self care deficit theory

Self reliance
Self care requisites
Potential health care problems
ADL requisites

Evidence Evaluation
Methods

& Results

72 SB clinics
97 health professionals
Email survey
25

item measure

Evidence Evaluation
Credibility

Came straight from SB clinics

Bias

Huge potential
Personal opinion

Limitations

Only 97 participants
Predominantly women

Patient Care Design


Condition

Management

Depends on Severity
Surgery
Prenatal Surgery
Continuing care

Patient Care Design


Findings

from the research


Moderate Impairment

All tasks attainable

Severe

Impairment

Lower ratings

Patient Care Design


Priority

Nursing dx
Self-care Deficit related to impaired
mobility

Assess ability to perform ADLs


Adapt environment to fit needs
Provide privacy
Provide referrals
EMPOWER!!

Advocate Role
Empathetic

Every patient is different


Put yourself in the patients shoes

Equitable

care

Resources
Home

care
ADL supplies

Advocate Role
Advocating!!!

Hospitals

may not be as familiar with SB

Advocate for education on self care


Different severities allow different
independence

Advocate Role
Importance

of research
Several reasons
Treatment, Prevention, & Cure
Education
Quality of life

References
Greenly, R. N. (2010, March). Health Professional Expectations for
Self-care Skill Development in Youth with Spina
Bifida. Pediatric Nursing, 36(2), 98-102.
Ladwig, G. B., & Ackley, B. J. (2012). Guide to Nursing
Diagnosis (4th ed., pp. 670-673). Maryland Heights, MO:
Elsevier.
Mayo Clinic Staff. (2014, August 27). Spina Bifida. In Mayo Clinic.
Self Care Deficit Theory. (2013). In Nursing Theory. Retrieved from
http://www.nursing-theory.org/theories-andmodels/orem-self-care-deficit-theory.php

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