Chiu ngy 17/4 Ti hi trng tng 2 Vin Huyt hc Truyn mu Trung ng din ra bui hp mt dnh cho bnh nhn

hn Hemophilia v ngi nh. Bui l c t chc bi Hi ri lon ng mu di truyn Vit Nam v Vin Huyt hc Truyn mu Trung ng nhn ngy Hemophilia Th gii 17/4. Thng ip ca Ngy Hemophilia nm nay l Close the Gap Thu hp khong cch.

Bui l c s tham gia ca GS. TS Nguyn Anh Tr Ch tch Hi Ri lon ng mu di truyn Vit Nam, Th.S Nguyn Th Mai Ph trch trung tm Hemophilia, Vin huyt hc Truyn mu TW cng hn 300 bnh nhn v ngi nh bnh nhn trong c nc, cc nh ho tm, nh ti tr bn cnh l cc tnh nguyn vin ca Qu h tr gio dc Nhng ngi nh hnh phc (HHF). M u bui l, C L Thanh Hng tuyn b l do v gii thiu cc v i biu, Th.S Nguyn Th Mai gii thiu v tnh hnh Hemophilia ti Vit Nam. Tip theo, GS. TS Nguyn Anh Tr ku gi cc bnh nhn Hemophilia trc ht hy v bn thn mnh hy t cu ly mnh, n sinh hot ti Hi Hemophilia c chm sc, c t vn trong cuc sng. ng thi cng by t mong mun c s tham gia ca cc nh qun l v ton th x hi chung tay vi bnh nhn Hemophilia. Vin trng ha s tip tc xut v ch bo him bnh nhn Hemophilia c mt cuc sng tt p hn.

nh 1 - ThS. Nguyn Th Mai bo co tnh hnh iu tr cng nh qun l bnh nhn Hemophilia Vit Nam ti bui gp mt

nh 2 - GS.TS Nguyn Anh Tr Vin trng, Ch tch Hi Ri lon ng mu di truyn Vit Nam pht biu ti bui gp mt

nh 3 - Hn 300 bnh nhn v ngi nh n d bui gp mt

Trong bui l cn din ra s kin trao tng Bc tranh cha thng ip Hemophilia nn nay Close the Gap t pha Qu h tr gio dc Ngi nh Hnh phc (HHF) tng Hi Ri lon ng mu di truyn Vit Nam.

nh 4 - i din Qu H tr Gio dc Nhng ngi nh hnh phc - Ch tch - B Trn Th Minh Hi cng cc cng s l cc bn sinh vin n t nhiu trng i hc H Ni ang ni v ngha bc tranh Close the Gap

nh 5 Tit mc vn ngh n t cc bnh nhn Hemophilia Hng Yn

nh 6 Cc bnh nhn Hemophilia Hi Dng

nh 7 Tit mc nhy Im the best The Zoo v cng si ng

C th ni, y l mt dp c bit bnh nhn gn gi, on kt vi nhau hn, ton x hi hiu bit hn v cn bnh Hemophilia hn. Nhn dp ny rt nhiu cc hot ng c ngha din ra:

nh 8 GS.TS Nguyn Anh Tr trao quyt nh thnh lp Cu lc b Ri lon ng mu tnh Hng Yn, Thi Bnhv Hi Dng

nh 9 Giao lu vi cc bnh nhn Hemophilia n t cc tnh thnh trn c nc, nu bit cch chm sc bn thn, cc bnh nhn Hemophilia cn lm c nhiu iu tt p hn na cho bn thn v gia nh

Tip ni chng trnh l nhng mn o thut, nhng bi ht v c hi kch v cng cun ht v c sc.

nh 10 Bn Minh Cng vi nhng bc nhy iu luyn

nh 11 - Bn Tun Hng vi mn trnh din beatbox t chy hi trng

GS.TS.Nguyn Anh Tr tng nhng b hoa ti thm cm n cc nh ti tr, cc t chc v c bit l cc hng Dc phm v ang tip tc ng hnh cng vi nhng bnh nhn Hemophilia.

nh 12 - Li cm n t GS.TS Nguyn Anh Tr ti cc n v ti tr

Kt thc bui l, cc tnh nguyn vin cng cc bnh nhn nm tay nhau ht vang bi ca Ni vng tay ln.

nh 13 Sc mnh t cng ng s tng thm ngh lc, lng dng cm v ch quyt tm cho cc bnh nhn Hemophilia. o Mng Anh