Support to the

Transforming Care Programme

Information you need to collect
Inclusion North needs to send reports to the
Transforming Care Assurance Board. These reports
will collect together what you are finding out around the
country.
This checklist tells you what Inclusion North needs to
know.

Two important things to

remember.
1. In this checklist, we talk about people with learning disabilities
and their families affected by Transforming Care - this is
people with learning disabilities or autism who also need support
with their mental health or have the label of challenging behaviour.
All through this checklist, when we talk about people with learning
disabilities and family carers, we mean those people affected by
Transforming Care, NOT all local people with learning disabilities
and family carers
2. You NEVER need to collect information about or know the names
of individual people affected by Transforming Care. This work is
about thinking generally about how things are going
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Good information
Local people with learning disabilities and family
carers should know about Transforming Care and
the responsibilities that Local Authorities and
Clinical Commissioning Groups have.

Across your region you need to find out whether this is happening. You
will need to find out:

Do local self advocates and family carers know

about Transforming Care and what should be
happening locally?
Do local groups know who the people leading
Transforming Care work locally are?
Do local groups know how many local people are in
assessment and treatments and secure units - both
locally and around the country?

If you think that people dont know about

Transforming Care, then why might that be?
Can you give some examples of what is
happening, both things that are working and
things that are not?

Local people working together

Local self advocacy and family carer
groups should be linked into their
Transforming Care work-plan. They
should be working in partnership to plan
what needs to be done locally to make
sure Transforming Care really happens.

Across your region you need to find out whether this is happening. You
will need to find out:

Are local self advocacy and family carer groups

really partners in planning what local services and
support should look like?
Does this include people who have a learning
disability or autism and a mental health problem or
the label of challenging behaviour? Does it include
their family carers?

If you think that people are not being properly

involved, then why might that be?
Can you give some examples of what is
happening, both things that are working and
things that are not?

Good care in hospital

Local groups self advocates and family
carer groups should know about the plans
for people who are living in assessment
and treatment or secure units to leave.
These are called discharge plans.

Across your region you need to find out whether this is happening. You
will need to find out:
Do local groups know about whether or not people
who are in assessment and treatment or secure
units have discharge plans, including a discharge
date?
Do local groups know whether everyone living in an
assessment and treatment or secure units has a
care coordinator to make sure this happens?
Do local groups know about who is having Care
and Treatment Reviews? Do they know whether
Experts by Experience are part of Care and
Treatment Reviews?

If you think that people dont know about

peoples discharge plans, then why might that
be?
Can you give some examples of what is
happening, both things that are working and
things that are not?
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Stopping people going into hospital if they dont need to

Local self advocacy and family carer groups

should be working with the Transforming
Care Partnership and local Health and
Wellbeing Boards. Their job is to make sure
that services are being planned to stop
people needing to go into hospital. That
means really good support in the
community.
Across your region you need to find out whether this is happening. You
will need to find out:

Are local self advocacy and family carer groups

really partners in planning what local services and
support should look like?
Does this include people who have a learning
disability or autism and a mental health problem or
the label of challenging behaviour? Does it include
their family carers?
Do local self advocacy and family carer groups
know about the risk of admission register and how
it is working locally?

If you think that people are not involved properly

in planning local services, then why might that
be?
Can you give some examples of what is
happening, both things that are working and
things that are not?
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Keeping people safe

Local self advocacy and family carer

groups should be working with their
Safeguarding Board to make sure that
they are thinking about how to keep
people safe.

Across your region you need to find out whether this is happening. You
will need to find out:

Are local self advocacy and family carer groups

really working with their local Safeguarding Board
as equal partners?
Does this include people who have a learning
disability or autism and a mental health problem
or the label of challenging behaviour? Does it
include their family carers?

If you think that people are not involved

properly with their local Safeguarding Board,
then why might that be?
Can you give some examples of what is
happening, both things that are working and
things that are not?

Changing how care and support happens

Local self advocacy and family carer
groups should be able to see a real change
in how services are being designed and
delivered.
They should be able to see how care and
support is getting more person centred, so
that people really can get the support they
want.

Across your region you need to find out whether this is happening. You
will need to find out:

Do local self advocacy and family carer groups

have evidence that care and support is getting
more person centred?
Are more people getting personal budgets so
they can really plan the support they want?
Are peoples care and support plans more person
centred and show the outcomes that people want
from their lives?

If you think that care and support is not getting

more person centred then why might that be?
Can you give some examples of what is
happening, both things that are working and
things that are not?
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Thank your for all you hard work

in making this important work
happen!

If you need any more information then please get in

touch with Lucy at Inclusion North:

Phone:
07944 185 771

lucyvirgo@inclusionnorth.org