The Stakeholder Advocacy
Partner of the Academy of
Coalition for Imaging and Bioengineering Research
April, 2010
Special Edition
…………....
Advocate Staff
Renee L. Cruea
President
Editor in Chief
Virginia Lathrop
Senior Editor
Lisa Novitsky
Editorial Assistant
………………..
Steering Committee
William G. Bradley, Jr.,
MD, PhD
Chair, Dept. of Radiology
University of California, San Diego
Chairman
R. Nick Bryan, MD, PhD
Professor and Chairman
Dept. of Radiology
University of Pennsylvania Health System
Jim Beckett
Vice President, Clinical Research
Philips Medical Systems, N.A.
N. Reed Dunnick, MD
Chair, Dept. of Radiology
University of Michigan Medical Center
Steven Haberlein
Vice President, Sales
FUJIFILM Medical Systems USA, Inc.
James Jorkasky
Executive Director
National Alliance for Eye
and Vision Research
Michael Kalutkiewicz
Director of Government Affairs
International & American Associations
for Dental Research
Bich Le
General Manager, Academic Segment
GE Healthcare
Richard Mather, PhD
Senior Manager, Clinical Programs
Toshiba Medical Research Institute USA
Martha Nolan
Vice President, Public Policy
Society for Women’s Health Research
Christi M. Pedra
Senior Vice President,Strategic New
Business Development & Marketing
Siemens Healthcare
Lenny Reznik
Director, Enterprise Imaging
and Information
Agfa Healthcare Corporation
Sheila Ross
Special Counsel
Lung Cancer Alliance
…………………………
CIBR
1029 Vermont Avenue, NW, Suite 505
Washington, DC 20005
Email: rcreau@imagingcoaliion.org
Ph: 202.347.5872 Fax: 202.347.5876
Patient and Imaging Community Intersect at Academic Council Reception
Renee Cruea
James Jorkasky of the National Alliance for
Eye and Vision Research, Carolyn C. Meltzer,
MD from Emory University, Martha Nolan, of
the Society for Women’s Health Research,
Steven Seltzer, MD from Brigham and
Women’s Hospital and Nadine Goldberg of
First Candle
Patients and their grassroots
efforts have always been the
driving force behind changes in
policy that ultimately benefit their
constituency. The radiology
community has long lamented
over a perceived lack of clear
and obvious patient advocacy
groups to collaborate with as the
“Achilles’ heel” of imaging. To
address this issue, the Academy
of Radiology Research formed
two divisions: the Academic
Council (ARRAC) and the Coali-
tion for Imaging and Bioengineer-
ing Research (CIBR). ARRAC
consists of leading Radiology
departments throughout the
country and CIBR is a diverse
advocacy Coalition representing
and led by leaders from each of
the segments of the imaging
community (academia, patients,
industry and professional imag-
ing societies).
In this Issue
Academic Council Reception— 1
Meetings at NIH — 2
Dialog on Radiation Exposure—3
ARRAC & CIBR are collaborating
with patient groups who have a
patient constituency that is di-
rectly affected by medical imag-
ing. These patient advocates
have expressed their support for
Steven Seltzer, MD talks with Nadine
Goldberg of First Candle
continuing research to improve easy for patient advocacy lead-
medical imaging and have em- ers to disseminate to their mem-
braced CIBR as a place to go for bership.
information about imaging that
they can trust.
On April 12th, several patient
advocacy leaders attended a
reception hosted by the Acad-
emy of Radiology Research Aca-
demic Council in Washington DC
as a step in our continuing effort
to cultivate relationships with
patient groups that recognize the
importance of medical imaging
research. Also in attendance at
the reception were several of the
country’s top Radiology chairs
and academic researchers.
Feedback from the patient advo-
cacy community confirmed that
Congressional Visits—4
Congressional Reception— 5
New CIBR Members—6
Radiology Research
www.imagingcoalition.org
we are certainly on the right
track. Patient advocacy leaders
have direct access to patients
who are most likely to find them-
selves on the receiving end of
imaging procedures. Collaborat-
ing with patient advocacy groups
over the past two years has
shown me that patients have a
need for information about imag-
ing, the risks and benefits, and
that they often struggle to find
appropriate, thorough information
to help them make decisions
about their care. ARRAC and
CIBR are in an ideal position to
collaborate with patient leaders,
industry and professional imag-
ing societies to reframe the dia-
log about imaging in a way that is
cont. on page 4.
“CIBR provides an excellent opportu-
nity for interaction and dialog with the
radiological research community, both
academic researchers and industry that
helps to advance issues of mutual con-
cern and/or interest from the patient
advocacy community.”
Martha Nolan, Society for Women’s
Health Research
 Special Edition Page 2

Coalition for Imaging and Bioengineering Research www.imagingcoalition.org

Scope for the Academy Broadens at the National Institutes of Health

The Academy of Radiology Re-
search Academic Council
(ARRAC) hosted its second
annual Legislative Forum on
April 12 and 13th. Twelve
academic radiologists at-
tended meetings at the Na-
tional Institutes of Health
(NIH), visiting with directors
or senior staff at Institutes
within NIH that have a sig-
AARAC department chairs receive nificant imaging component
research update from NNIBIB to include: NIBIB, NCI,
NHLBI, NIA, NIMH, NINDS,
and NCRR. These meetings are
a result of an initiative to signifi-
cantly broaden our outreach ef-
forts and scope.
and interventionalists empha-
sized the key and growing role
for image guided therapies/
interventions and tissue sam-
pling as areas of opportunity.
At NIBIB, attendees met with
Deputy Director Belinda Seto,
PhD and Extramural Science
Programs Director William
Heetderks, MD, PhD. Drs. Seto
and Heetderks addressed a
variety of issues raised by the
Academic Council. Themes
included the integration of the
physical and life sciences and
the impact of imaging research
on patient care.
At NCRR, attendees met with
Barbara Alving, MD (Director)
and Anthony Hayward, MD, PhD
(Director, Clinical Research).
NCRR has been supportive of a
wide variety of proposals coming
from imaging departments for
shared instrumentation, con-
struction and major program pro-
ject grants.
Additionally, Carolyn Meltzer,
MD, met with Michael Huerta,
PhD, Associate Director, NIMH;
and Gregory Postel, MD, met
with Alan Koretsky, PhD, Senior
Investigator, Functional and Mo-
lecular Imaging, NINDS.

The purpose of visiting
with Institutes at NIH is
part of a three tiered
approach in broadening
our scope: familiarize
ourselves with the
imaging component of
each institute; offer
Academy expertise and
support for imaging
initiatives; and maintain
ongoing
communications with
the Director and senior
staff. As the Academy
advocates for imaging
research, it is vital for us
to understand the
priorities at each
institute. As part of our
expanded advocacy
effort, the Academy is
exploring opportunities
for patient advocacy
groups to collaborate
with the Institutes.
Listed below are very brief notes
regarding which Institutes we
met with, a list of attendees and
a broad view of topics discussed.
If you would like more detailed
summaries of the meetings, or if
you are interested in becoming
engaged in these specific out-
reach efforts, please contact
Virginia Lathrop at
VLathrop@imagingcoaltion.org.
At NCI, attendees met with John
Niederhuber, MD (Director);
James Tatum, MD (Associate
Director, CIP); Kevin Cam-
phausen, MD; Peter Choyke, MD
and Norman Coleman, MD from
the Center for Cancer Research;
Bradford Wood, MD (Director)
from the Center for Interventional
Oncology; and Anne Lubenow.
Dr. Niederhuber provided an
overview of the NCI imaging ef-
forts, both intramural and extra-
mural, articulating a view of im-
aging from the subcellular to the
human. The radiation oncologists
At NIA, Nick Bryan, MD, PhD
met with Tamara Jones, PhD,
RN, Chanda Dutta, PhD, and
Sue Resnick, PhD. NIA has a
broad imaging need and exten-
sive imaging elements in many
of its clinical projects. These
projects relate to defining
changes in organ systems over
time, and therefore it is critical
to define which imaging meth-
odology is best to answer a
particular study question.
At NHLBI, attendees met with
Susan Shurin, MD (Acting Di-
rector); Carl Roth, PhD (Acting
Deputy Director); James Kiley,
PhD; Mike Lauer, MD; Robert
Balaban, MD; Richard Cannon,
MD; Andrew Arai, MD. NHLBI
participants described support
for imaging from basic science
to comparative effectiveness
studies. In many cohort stud-
ies, imaging leads to insight into
the nature of the disease.
The purpose of visiting with Insti-
tutes at NIH is part of a three
tiered approach in broadening
our scope: familiarize ourselves
with the imaging component of
each institute; offer Academy
expertise and support for imag-
ing initiatives; and maintain on-
going communications with the
Director and senior staff. As the
Academy advocates for imaging
research, it is vital for us to un-
derstand the priorities at each
institute. As part of our expanded
advocacy effort, the Academy is
exploring opportunities for patient
advocacy groups to collaborate
with the Institutes.
 Special Edition
Coalition for Imaging and Bioengineering Research
Patient Focused Imaging Coalition Opens Dialog on Radiation Exposure
“Nothing in the legislation
is intended to dissuade
relationships between
academia and indus-
try. At the core of the bill
is a belief that these rela-
tionships are critical in
the development of new
technologies and new
treatments, and that at the
same time they should be
made open and transpar-
ent by a single nation-
wide disclosure require-
ment. That way, the
health care community
can better monitor poten-
tial conflicts of interest
and industry doesn’t have
to wrestle with numerous,
and often conflicting,
state laws.”
- Chris Armstrong, lead
staffer To Senator
Grassley on the Sunshine
legislation
Page 3
www.imagingcoalition.org
On Wednesday, April 14th the Coali- the information and make prudent To meet these needs, CIBR will de-
tion for Imaging and Bioengineering choices for their individual situa- velop a multifaceted national initiative
Research (CIBR) met in Washington tions. This is the goal of CIBR: To to ensure that our patient advocacy
DC to discuss ways in which the di- bring the truth about imaging and members have access to consistent,
verse group of members could col- radiation directly to the patient useful and understandable information
laborate on issues important to the advocacy groups. about imaging, as well as the steps
stakeholders of the imaging commu- that industry and academic research-
nity. Medical imaging has been in- ers are taking to help patients get the
creasingly used in the diagnosis, maximum clinical benefit with a radia-
Typically, coalitions are made up of management, treatment guid- tion dose that is As Low as Reasona-
and usually funded by large corpora- ance, planning and monitoring of bly Achievable (known as ALARA).
tions and industry groups, who also disease. Imaging technology and CIBR will work with our patient advo-
make up the leadership structure. associated refinements over the cacy members to help inform and em-
CIBR prides itself in structuring its past several decades have greatly power patients as they and their physi-
coalition differently. With a member- enhanced the value of medical cians struggle with imaging questions
ship consisting of over 40 patient imaging procedures in the setting and choices as part of their overall
advocacy groups with a vested inter- of a wide variety of medical condi- care plans.
est in imaging technology, 26 aca- tions and clinical indications.
demic radiology departments, 28 These span early disease detec- Chris Armstrong, lead staffer to Senator Grassley
imaging societies, and six imaging tion (e.g., mammography) that on the Sunshine legislation, attended the CIBR
equipment manufacturers, CIBR is improves survival, advanced meeting as a guest to answer any questions
structured to ensure that the patient diagnostic examinations that attendees had about the current legislation. Chris
passed out a 3 page summary of the scope of the
groups ultimately drive the agenda. improve disease staging or treat- legislation (available to members by contacting
The leadership of CIBR includes four ment selection (e.g., PET/CT in CIBR) and offered to meet with anyone from the
patient advocacy representatives, and lung cancer staging, brain MRI in imaging community who had concerns about
industry contributions account for less stroke evaluation), and non- it. When CIBR communicated to Chris that Radi-
ology Chairs and industry now have grave con-
than 10 percent of CIBR’s total dues. invasive therapeutic procedures cerns about their ability to collaborate on research
The mission of CIBR is patient fo- that replace more invasive and moving forward he stated:
cused, and we work to educate pa- costly surgical procedures (e.g.,
tient groups about the potential of aneurysm coiling rather than sur-
imaging technologies across many gical clipping).
disease conditions and the challenges
facing imaging research. Our goal is Yet the use of such imaging tech-
to inform the patient advocacy leaders nologies is not without risk, and
so that they have a very clear view increasing use in medical practice
and understanding of the complex warrants greater scrutiny of indi-
issues surrounding imaging as well as vidual risk. Understanding that
the benefits that imaging offers to the individual risk while also under-
patients they represent. standing the fundamental value a
procedure offers to a patient is
The current media-driven concerns challenging for many physicians,
regarding radiation exposure resulting and intimidating for most patients.
from inappropriate use of CT scan- Beyond providing information “Nothing in the legislation is intended to
ners have been written about in many about the current risks and bene- dissuade relationships between academia
high profile papers recently. As a fits of imaging, CIBR recognizes and industry. At the core of the bill is a
result, patients are increasingly con- the compelling need to go beyond belief that these relationships are critical in
the development of new technologies and
fused and left with very little helpful current technologies and prac- new treatments, and that at the same time
information. What is missing from tices to find ways to manage and they should be made open and transparent
these stories and articles are funda- reduce the amount of ionizing by a single nation-wide disclosure require-
mental truths about imaging, the risks radiation that patients receive ment. That way, the health care community
and the benefits, in a way that pa- from diagnostic imaging studies. can better monitor potential conflicts of
interest and industry doesn’t have to wrestle
tients can process and understand with numerous, and often conflicting, state
laws.”
 Special Edition Page 4

Coalition for Imaging and Bioengineering Research www.imagingcoalition.org

cont. from page 1…

This year, one of the many goals of both ARRAC and CIBR is to deepen our relationships with pa-
tient groups. A key initiative involves partnering each patient advocacy member with a specific radi-
ologist who specializes in their area of research. This partner radiologist will get to know the patient
group’s priorities and interests and will be available to provide information on imaging to the group,
speak at meetings and events, and contribute to patient newsletters. These relationships will allow
CIBR to provide additional opportunities for patients to meet with academic researchers. Addition-
ally, CIBR will continue to collaborate with NIH to organize tours of the Clinical Center at NIH, a
valuable tool that exposes patient advocacy leaders and legislative staff to current cutting edge
imaging research in the pipeline. These tours fill up within days of the invites and are requested
often by both patient groups and Congressional staff.

Creating a Coalition that is lead by patients in collaboration with academia, industry and profes-
sional societies enables patient advocates to drive the agenda in a way that will educate patients
about medical imaging in an effective manner, which allows them to make well-informed, appropri-
ate decisions about their care. These efforts benefit the radiology community as a whole as they
struggle with high profile negative media reports about imaging that are high on drama, but low on
basic benefit/risk facts. Industry members, who make up the smallest segment of our membership,

Congressional Visits Educate and Inform

Our message: As a
member of CIBR, a
diverse patient fo-
Academic researchers and Radiology need for consistent funding for the
cused coalition department chairs met with offices of NIH, the high value of imaging re-
which includes rep- their Members of Congress on Tues- search, current issues such as radia-
resentatives from day, April 13th. Our message: As a tion exposure, and general welcom-
each segment of the member of CIBR, a diverse patient ing introductions that will lead to long-
imaging community,
we offer you our focused coalition which includes repre- term relationships. The goal is to
expertise when you sentatives from each segment of the ensure that the Member and their
need information imaging community, we offer you our staff know that they have a constitu-
about issues related expertise when you need information ent to turn to if they have imaging
to imaging.
about issues related to imaging. related questions.

While each visit was unique, most par-

ticipants discussed current cutting
edge imaging research in their Depart-
ments, the effects of ARRA and the

Rep. Judy Biggert of IL., Steven Seltzer, MD and

Renee Cruea

Rep. Gene Green of TX and Steven Seltzer. MD

 Special Edition
Coalition for Imaging and Bioengineering Research
Imaging Community Showcases Collaboration at Congressional Reception
For the first time, CIBR sponsored a
Congressional Reception as an op-
portunity for Members of Congress
and their staff to meet and greet as
well as ask questions related to im-
aging. This event was a resounding
success. In attendance at the re-
ception in the Rayburn Gold Room
were several Members of Congress,
legislative staff, patient advocacy
representatives, NIH staff, as well as
radiologists. Steven Seltzer, MD,
President of the Academy, wel-
comed the attendees and introduced
two researchers, Kiaran McGee,
PhD from the Mayo Clinic, who had
his first grant funded through ARRA,
and Rebecca Fahrig, PhD from
Stanford University, who received
her largest grant through ARRA.
The presentations were informative
but brief so that attendees spent
most of the time reading the posters
Rep. Bob Etheridge of NC and Steven Seltzer, MD
Sheila Ross, Belinda Seto, PhD and Andrew Menard
Miriam O’Day speaks with Andrew Menard of Brigham and
Women’s Hospital
“Several of your scientists approached me regarding
projects that they are working on or interested in that
they wanted to explore further with the COPD Founda-
tion. Specifically your group from Johns Hopkins Uni-
versity, Brigham and Women’s Hospital, and NIH partici-
pants. I learned so much at your reception - I found it
quite enjoyable. Thanks for including us.”
Miriam O’Day, COPD Foundation
Pablo Ros, MD, MPH articulates the content on
display
Page 5
www.imagingcoalition.org
and speaking to the radiologists.
Members of Congress and legislative
staff who attended were genuinely sup-
portive of and interested in imaging
research. Based on comments made
by attendees, it was clear that they
value what CIBR does and want to
learn more about imaging research
particularly in their Districts; on a per-
sonal level, many described their own
experiences with imaging and ex-
pressed their support for consistent
and continuing research. To take the
time to personally attend a reception as
a Member of Congress is a rare occur-
rence these days, yet this reception
was full. CIBR’s members drew en-
couragement from their conversations
with the Representatives and the level
of attendance by Congressional Mem-
bers and staff was itself perceived as a
statement of support for the value of
imaging and imaging research.
Jen Ayers and Arthur Stillman, MD
 Special Edition Page 6

Coalition for Imaging and Bioengineering Research www.imagingcoalition.org

Member Organizations
AdMeTech Foundation
Agfa HealthCare Corporation
Alliance for Aging Research
Alpha-1 Foundation
Welcome New CIBR Members
American Association for Women Radiologists
American Association of Physicists in Medicine
American Brain Tumor Association
American College of Nuclear Physicians Blinded Veterans Association ∙ www.bva.org
American College of Radiology
American Diabetes Association
The Blinded Veterans Association (BVA) is an organization of blinded veterans helping blinded veterans. Through our
American Institute for Medical and Biological Engineer- service programs, regional groups, resources, and advocacy before the legislative and executive branches of govern-
ing
American Institute of Ultrasound in Medicine
ment, we hope to make life better for blinded veterans. We also hope to be there with encouragement and support. There
American Osteopathic College of Radiology is no charge for any BVA service and membership is not a prerequisite to obtain help. All legally blinded veterans are also
American Pain Foundation
American Registry of Radiologic Technologists eligible for BVA’s assistance whether they become blind during or after active duty military service.
American Roentgen Ray Society
American Society of Emergency Radiology
American Society of Neuroradiology
American Society of Radiologic Technologists
Association for Research in Vision and Ophthalmology Cancer Schmancer ∙ www.cancerschmancer.org
Association of Community Cancer Centers
Association of Educators in Imaging and Radiologic The Cancer Schmancer Movement is dedicated to saving women's lives through early detection of cancer. We are:
Sciences
Association of University Radiologists/Association of • transforming women from patients into informed medical consumers
Program Directors in Radiology
Beth Israel Deaconess Medical Center Department of • educating women on the importance and methods of early detection
Radiology
Blinded Veterans Association
• shifting this nation’s priority from just looking for a cure, to prevention and early detection.
Brain Injury Association of America
Brigham and Women’s Hospital, Department of
Radiology
C3: Colorectal Cancer Coalition
Cancer Schmancer COPD Foundation ∙ www.copdfoundation.org
Case Western Reserve University , University Hospitals
Health System, Department of Radiology The COPD Foundation is a 501-c-3 not-for-profit organization created on June 14, 2004, and headquartered in Miami,
Children With Diabetes Foundation
COPD Foundation
Florida. In such a short period of time, the COPD Foundation has accomplished so much, bringing together the resources
Cooley’s Anemia Foundation
Duke University School of Medicine, Department of
in the COPD community and creating more opportunities in order to serve those affected by the disease. Currently, there
Radiology are 17 Members in the Board of Directors who volunteer their time and resources to helping advance the Foundation’s
Emory University School of Medicine, Dept of Radiology
First Candle mission and purpose.
FUJIFILM Medical Systems USA, Inc.
Gammex rmi
GE Healthcare
Georgetown University Medical Center, Department of
Radiology
Hydrocephalus Association
First Candle ∙ www.firstcandle.org
International & American Associations for Dental First Candle is a national nonprofit health organization uniting parents, caregivers and researchers nationwide with gov-
Research
International Society for Magnetic Resonance in ernment, business and community service groups to advance infant health and survival. With help from a national net-
Medicine
Intracranial Hypertension Research Foundation work of partner organizations, we are working to increase public participation and support in the fight against Stillbirth,
Johns Hopkins Medicine, The Russell H. Morgan
Department of Radiology and Radiological Science
Sudden Infant Death Syndrome (SIDS) and other causes of Sudden Unexpected Infant Death (SUID).
Juvenile Diabetes Research Foundation
Kidney Cancer Association
Lung Cancer Alliance
MaleCare
Mallinckrodt Institute of Radiology, Washington Univ National Spinal Cord Injury Association ∙ www..spinalcord.com
Massachusetts General Hospital, Department of
Radiology Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedi-
Mayo Clinic, Department of Radiology
Medical College of Wisconsin, Milwaukee WI, Depart- cated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury
ment of Radiology
Memorial Sloan-Kettering Cancer Center, Department and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day.
of Radiology
Mount Sinai School of Medicine, Department of
Radiology
National Alliance for Eye and Vision Research
National Cervical Cancer Coalition
National Spinal Cord Injury Association
National Patient Advocate Foundation
National Lung Cancer Partnership
Case Western Reserve University, University Hospitals Health System, Department of Radiology ∙ www.uhrad.com
Northwestern University, Feinberg School of Medicine, Chair: Pablo Ros, MD, MPH
Department of Radiology
Philips Medical Systems
Prostate Health Education Network
Pulmonary Fibrosis Foundation University of Lousiville, Department of Radiology ∙ louisville.edu/medschool/radiology
Radiological Society of North America
Radiological Society of North America Research and Chair: Gregory C. Postel, MD
Education Foundation
Siemens
Society for Imaging Informatics in Medicine
Society for Pediatric Radiology Georgetown University Medical Center, Department of Radiology ∙ radiology.georgetown.edu
Society for Women’s Health Research
Society of Chairs of Academic Radiology Departments Chair: James B. Spies, MD, MPH
Society of Computed Body Tomography and Magnetic
Resonance
Society of Interventional Radiology
SNM (formerly Society of Nuclear Medicine)
Society of Radiologists in Ultrasound
Society of Skeletal Radiology
Society Thoracic Radiology
Society of Uroradiology
Taking Control of your Diabetes
Toshiba Medical Systems Corporation 
University of California, Los Angeles, Department of
Radiology
Univ of California, San Diego, Department of Radiology
Univ of California, San Francisco, Department of
Radiology and Biomedical Imaging
University of Louisville, Department of Radiology
Univ of Michigan, Department of Radiology
Univ of Minnesota, Department of Radiology
Univ of North Carolina Chapel Hill, Dept of Radiology
Univ of Pennsylvania, Department of Radiology
Univ of Texas Medical School at Houston, Department
of Diagnostic and Interventional Imaging
Univ of Utah, Depatment of Radiology
Univ of Washington, Department of Radiology
Von Hippel—Lindau Disease Family Alliance
Yale Univ School of Medicine, Department of Diagnostic
Radiology
ZERO—The Project to End Prostate Cancer