FOR IMMEDIATE RELEASE: Media Contact:

Kay Cofrancesco
kay@lungcanceralliance.org
202-744-1541

LUNG CANCER ALLIANCE LAUNCHES FIRST OPEN ACCESS PATIENT DRIVEN

WEBSITE FOR CT SCANS AND CLINICAL DATA

Washington, DC [June 7, 2010]-- Lung Cancer Alliance (LCA), the only national non-profit
dedicated to providing support and advocacy for those living with or at risk for lung cancer,
announced today the launching of the first open access website for CT scans and clinical data
donated by patients, called Give a Scan, that will increase and accelerate research for lung cancer
screening, diagnosis, treatment and drug development.

LCA President & CEO Laurie Fenton Ambrose called the new website a “landmark event in a
patient-powered war on lung cancer.”

Under the Give a Scan program, patients can donate their scans and other clinical information to
LCA, which will de-identify the scans and upload the data to the new Give a Scan website where
they can be accessed without charge by researchers around the world.

“The patients themselves are going to drive the change that will bring more researchers and more
resources to the epidemic of lung cancer that most people do not even realize is the leading
cancer killer,” Fenton Ambrose said.

The War on Cancer, the popular description of the National Cancer Act passed by Congress forty
years ago, has had little impact on lung cancer mortality. The 5-year survival rate in the 1970’s
was 13% and is still only 15% today. Lung cancer, the leading cancer killer, takes more lives
each year than the next four biggest cancers - colon, breast, prostate and pancreatic cancers -
combined.

FentonAmbrose said there are two main reasons why so little progress has been made.

“First is the historic underfunding of lung cancer research and the lack of a comprehensive
approach - tragic health policy mistakes that will gradually change as more patients and their
families and caregivers come together and publicly speak out.”

“The second is the lack of raw material - not only tissue, blood and sputum samples, which are
now starting to be made available, but scans coupled with clinical data - are urgently needed for
research,” she said.

"Imaging is critical in the diagnosis, treatment and follow-up of lung cancer patients, and imaging
holds enormous potential for speeding the development of targeted drugs and monitoring the
effect of personalized treatments,” said Daniel C. Sullivan MD, Professor of Radiology at Duke
University Medical Center and Director of the Imaging Core, and Science Adviser to the
Radiological Society of North America (RSNA).
“But greater and more reliable accuracy in measuring small changes in tumor volumes must be
achieved in order for that potential to be fully realized," he noted.

Dr. Sullivan is a member of the Give a Scan Advisory Board, which was also announced today.

Research to achieve those goals has been hampered by the lack of access to patients’ scans with
enough clinical data to make headway possible and despite efforts over the years to make this
combination of data publicly available.

“This had not been done before so we were breaking new ground,” Fenton Ambrose said.

“Patients responded immediately to donate their scans and data,” she continued. “Gradually we
developed the infrastructure and legal documents needed for the program, while Rick Avila of
Kitware, Inc. donated countless hours to work on the new website and how to index and display
the data.”

The results of that successful pilot run are being released today to mark the official launch of the
Give a Scan program which can be viewed at www.giveascan.org.

Fenton-Ambrose thanked Kitware, Inc. for its assistance in developing the program and in setting
up the website, which will be available without charge to researchers around the world.

In addition to Dr. Sullivan, Mr. Avila, Senior Director of Healthcare Solutions at Kitware and a
leading expert on the computational analysis of medical images, is also a member of the new
Give a Scan Advisory Board.

Other board members are Jane Reese-Coulbourne, LCA Board Chair and consultant to the Food
and Drug Administration’s Critical Path Initiative and the Reagan-Udall Foundation; David
Yankelevitz, MD, a world-renown radiologist and one of the initiators of the International Early
Lung Cancer Action program; and Gail Matthews, a lung cancer survivor, LCA advocate and life
long active volunteer who has championed many social causes.

Lung Cancer Alliance, www.lungcanceralliance.org, is the only national non-profit organization

dedicated exclusively to patient support and advocacy for those living with or at risk for lung
cancer. Lung Cancer Alliance is committed to leading the movement to reverse decades of
stigma and neglect by empowering those with or at risk for the disease, elevating awareness and
changing health policy.

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