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Children with Tourettes syndrome (TS) are statistically overrepresented in special education
classes; however, the extent to which tics contribute to such placement is unclear. In this article,
the results of a survey of parents or guardians of 71 children and adolescents with TS are
described within the broader context of discussing the impact of tics and educational practices.
One half of the respondents reported moderate to significant tic-related academic impact, and
48% reported moderate to significant tic-related peer problems. Peer education and in-school
counseling were generally not offered nor provided. In the minority of cases where behavioral
interventions for tics were reported, contingent aversive consequences were reported to be inef-
fective or counterproductive, while positive reinforcement for modifying tics reportedly pro-
duced some successful results. The identification of research-validated academic accommoda-
tions and increased involvement of school psychologists are suggested as necessary and
potentially helpful supports for students with TS and their teachers.
Correspondence concerning this article should be addressed to Leslie E. Packer, Ph.D., 940 Lin-
coln Place, North Bellmore, NY 11710; e-mail: lpacker@tourettesyndrome.net
BEHAVIOR MODIFICATION, Vol. 29 No. 6, November 2005 876-899
DOI: 10.1177/0145445505279383
2005 Sage Publications
876
COMORBID CONDITIONS
tions have varied considerably (see King & Scahill, 2001; Scahill,
Tanner, & Dure, 2001; Zohar et al., 1999, for discussions of method-
ological difficulties in estimating prevalence and implications of sam-
pling methods). Because ADHD and OCD are generally accepted as
the two most common comorbid or associated conditions, they are
discussed below; however, it is important to note that mood disorders
or other problems may also contribute significantly to a students
school difficulties.
As noted in the section on TS and LD, one possible impact of
comorbid ADHD may be to increase the rate of LD in children with
TS; however, there is evidence to suggest that comorbid ADHD may
also increase the need for SpEd for other (non-LD) reasons. For exam-
ple, Abwender et al. (1996) reported that after excluding children with
TS who were diagnosed with LD, 33% of the remaining 108 children
with TS in a tertiary clinic sample experienced significant school dif-
ficulties (defined as grade retention and/or placement in SpEd). Fur-
ther analysis of the data revealed that in the absence of LD, ADHD
was the sole significant predictor of school difficulties. Neither the
presence of tics nor the self-report measure of mental energy spent
suppressing tics had any systematic relationship to school difficulties.
These findings were supported by Spencer and colleagues, who found
that when children with TS-ADHD were compared to those with
ADHD only, the two groups did not differ from each other on mea-
sures of cognitive impairment, academic impairment, or placement in
SpEd. ADHD symptom severity correlated with placement in SpEd;
however, tic symptom severity was not correlated with placement,
supporting the suggestion that TS was not contributing to the child-
rens placement in SpEd (Spencer et al., 2001; Spencer et al., 1998).
Obsessive-compulsive behaviors or full OCD are also commonly
comorbid with TS. Children with OCD are significantly more likely to
exhibit VMI impairment and may have other types of executive dys-
function, although relatively little neuropsychological research has
been conducted on children with OCD (de Groot, Yeates, Baker, &
Bornstein, 1997; Schultz et al., 1999). A priori, interference from
obsessive thoughts and/or compulsive rituals would seem to pose a
somewhat obvious risk factor for school problems; however, no
research has specifically looked at the placement of students with
OCD, and the results of two studies that do provide some quantitative
Even if tics or TS might not increase the need for SpEd, tics might
impair functioning in the classroom or lead to peer rejection. No sur-
veys of school personnel have been conducted; however, in an unpub-
lished study on the impact of TS on school functioning, Hagin and
colleagues recruited parents to complete a survey published in the
Tourette Syndrome Association Newsletter. The survey addressed
educational settings, sources of support, and specific educational
practices. Some of the major results included reports by parents that
(a) having a refuge to go to (at the childrens discretion) when their tics
became severe was an important accommodation; (b) many of their
children experienced a sense of isolation and occasional outright peer
rejection; (c) almost all of the children reportedly had handwriting
problems; and (d) testing conditions were very important for older
youngsters (Hagin, Beecher, Pagano, & Kreeger, 1980, as cited in Sil-
ver & Hagin, 1990). Although the Hagin et al. (as cited in Silver &
Hagin, 1990) survey provided interesting insights as to parental per-
ceptions of their childrens experience, it provided no information as
to whether academic functioning improved if tics remitted
spontaneously or because of treatment.
In addition to potential impairment involving specific academic
activities, peer relationships may also be impaired by tics. A number
of studies have indicated that (a) children with tics are more likely to
experience peer problems, and the peer problems are because of, at
least in part, the presence of tics; (b) children with tics are more likely
to be rated significantly lower on social acceptability measures
because of the tics; and (c) peer problems may not correlate with tic
METHOD
PARTICIPANTS
PROCEDURE
RESULTS
have the disabling or interfering symptoms and (b) they enable the stu-
dents to perform in a way that allows them to demonstrate their knowl-
edge or skills without giving them an advantage over peers who do not
have the disability-related symptoms. If accommodations seem indi-
cated, consultation with the student (if appropriate), the childs par-
ents, and the treating clinicians should be arranged.
For the current sample, 72% of the children reportedly received
accommodations specifically for their tics. Table 1 provides a fre-
quency distribution of the reported accommodations or strategies.
The mean number of accommodations per student was 4.47 (SD =
4.08), after excluding the strategy of ignoring tics, which is not con-
sidered an educational accommodation within the generally accepted
definition of accommodation. As can be seen in Table 1, ignoring tics
was the most frequently employed strategy, while the most common
accommodations reported were giving the student permission to leave
the room, allowing extended time for class work and tests, use of pref-
erential seating, testing in a separate location, allowing the student to
use a word processor, and reducing homework.
The final column in Table 1 indicates the number of respondents
who identified a particular strategy or accommodation as being the
single most important strategy or accommodation. Respondents in
this survey generally agreed with respondents in the Hagin et al. (cited
in Silver & Hagin, 1980) survey as to what accommodations or strate-
gies were particularly helpful. Although the absence of objective mea-
sures in both studies precludes firm conclusions as to the actual effec-
tiveness of ignoring tics for these children, the results of another study
indicate that talking to children about their tics may lead to a tic exac-
erbation (Woods, Watson, Wolfe, Twohig, & Friman, 2001). Thus,
even if ignoring tics might not reduce tics, the parental reports may be
quite correct that it is a useful strategy to employ because it might
prevent a worsening of tics.
Extended time was also reported to be an important accommoda-
tion by respondents in both surveys, and there is some empirical sup-
port for it, as mentioned earlier (Gallina, 1990; Hagin & Kugler,
1988). Extended time for tests, class work, and homework may be
necessary because of a variety of TS-related reasons: (a) VMI impair-
ment-related handwriting problems, (b) VMI impairment-related
TABLE 1
Reported Classroom Strategies in Response to Tics
Accommodation or Strategy n Single Most Important
NOTE: The number of students receiving each type of accommodation or strategy as reported by
respondents (n) and the number of respondents who indicated that it was the single most impor-
tant accommodation or strategy for their childrens academic functioning.
a. One student was allowed to carry a water bottle with him at all times, another student was
allowed to stand at his desk instead of sitting, and a third child was allowed to suck hard candy.
that the peer education programs were somewhat helpful, and one par-
ticipant reported that the program was not effective. Because of the
small sample size, the absence of a standardized peer education pro-
gram, and lack of objective data, no firm conclusions can be drawn
from the current study as to whether peer education would make a sig-
nificant difference in reducing teasing or peer rejection; however, a
study by Friedrich et al. (1996) and my experiences (Packer, 1997)
suggest that a peer education program might be of at least some
benefit.
TABLE 2
Frequency and Reported Effectiveness of In-School Behavioral Inter-
ventions to Modify Tics
Outcome
Behavioral Strategy Negative Neutral Positive
Negative consequences
Publicly pointing out tics or commenting on them 4 0 0
Keeping child in at recess for ticcing 3 0 0
Sending child from room 3 0 0
Sending child to building administrator 2 0 0
Withholding field trips 1 0 0
Neutral or ambiguous consequences
Discreetly signal child when ticcing 3 4 0
Positive consequences
Reward for modifying tic 0 1 2
Reward for competing response 0 2 0
Reward for decreasing ticcing 0 1 0
Home reward for decreased tics in school 0 1 0
Home reward for modifying tic in school 0 1 0
Tics are the cardinal feature of TS; however, they may be the least
of a students problems in school (Packer, 1997). In the absence of
research using children and adolescents with uncomplicated TS, no
firm conclusions can be drawn about whether TS significantly
increases the need for SpEd; however, the results of parent surveys
consistently suggest that students with tics or TS often need accom-
modations in the classroom and support in developing peer relation-
ships. Although parents in two surveys that were conducted more than
20 years apart provided almost identical reports in terms of what par-
ticular strategies or accommodations are helpful, controlled research
NOTES
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