Professional Documents
Culture Documents
Everyday living
and arthritis
Everyday living
and arthritis
This booklet provides information
and answers to your questions
about everyday living and arthritis.
www.arthritisresearchuk.org
Arthritis Research UK
Everyday living and arthritis
What’s inside?
2 Everyday living and arthritis 35 Part 4: Stairlifts and homelifts
at a glance – Try before you buy
4 Part 1: Around your home – How do I choose a stairlift?
– Tips for every room – What if I use a wheelchair?
– The living room – What about other people
– The kitchen in the house?
– The bathroom – What are the costs?
– The bedroom – Breakdowns and safety
– Buying a new mattress – Who should I ask?
– DIY and housework 44 Part 5: Getting help and advice
– Where can I find products – How can Social Services help?
to help me? – Voluntary organisations
26 Part 2: Are you 44 What else can I do?
sitting comfortably?
46 Glossary
– Do I have the right chair
for my needs? 46 Where can I find out more?
– Buying a new chair 52 We’re here to help
– What should I look for?
– Comfort
– What else should I think about?
32 Part 3: Driving and arthritis
– What does the law say?
– Your car
– Who do I need to talk to?
– What about finance?
– Driving
– What about outdoor electric
vehicles?
At a glance
Everyday living
There are
and arthritis many simple
ways to help
with everyday
problems in
ow can I make everyday
H the home.
tasks easier?
These tips can make everyday tasks easier
and safer:
• Use bathroom and kitchen utensils with
large, easy-grip handles.
• Use a remote control with large buttons Can I adapt my home?
and a modified grip.
Some people find it helpful to adapt their
• Use special plugs and switches, such as homes, for example:
handiplugs or contour grips.
• raising or lowering cupboards or
• Use two hands or a kettle tipper to help
work surfaces
pour a full kettle, or buy a cordless or
lightweight travel model. • fitting lever taps in the bathroom
and kitchen
• Do chores such as ironing sitting down
to relieve pressure on joints. • installing a walk-in bath or shower
(although these can be expensive)
• A dressing stick helps get clothes
on and off your shoulders. • installing a bath seat (including
powered ones)
• A long-handled reaching stick (a ‘pick-
up stick’) makes picking things up easier • fitting grab rails around the bath and
as you don’t have to bend. toilet or on the stairs
For more details see ‘Part 1: • replacing some furniture, such as your
Around your home’. easy chair or mattress
• installing stairlifts and homelifts
(although these can be expensive and
will need lots of thought and planning).
For more information on home
adaptations, go to your nearest
Disabled Living Centre (also called
Independent Living Centres) or ask your
occupational therapist.
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Arthritis Research UK
Everyday living and arthritis
Figure 1
Letterbox
basket and
key turner
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Arthritis Research UK
Everyday living and arthritis
The following tips can help with switches, • Wrapping an elastic band around
dials and plugs: rounded door handles can make them
• Light switches are easier to use if they’re easier to open.
the large rocker, pull-cord or touch- Try the following tips to make using the
operated type. TV and phone easier:
• Electric or gas fires are easier to turn on • Remote controls with large buttons and
if the control knob is located at the top. modified grips are available, and some
• A contour grip will help if you have can be programmed for use on
difficulty turning dials or knobs a number of electrical appliances.
(see Figure 2). • Some phones have a hands-free
• Handiplugs and stick-on plug grips option which lets you use the phone
can make plugs easier to pull out without having to hold it to your
(see Figure 3). ear. Many mobile phones also have
loudspeaker options or can be used
• Built-up key handles are available to with a hands-free headset.
help with inserting and turning the
key in the lock (see Figure 1).
Figure 2
A contour grip
5
a) b) Figure 3
Plug
adaptations
Figure 4
A reaching stick
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Arthritis Research UK
Everyday living and arthritis
Figure 5
Ideal table
and chair
for comfort
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Arthritis Research UK
Everyday living and arthritis
The kitchen therapists or physiotherapists, who
If you decide to redesign your kitchen can give impartial advice. If possible,
or are moving to a new house, seek advice go with someone who can help to
from the Disabled Living Foundation, advise you.
the Disabled Living Centre in your area or
your occupational therapist. You’ll receive Choosing kitchen equipment
professional advice and be able to see, and layout
and try out, some helpful equipment and When buying new equipment or refitting
plan the layout efficiently. But it may be your kitchen, shop around to make sure
easier to adapt your existing kitchen. what you’re buying is easy to use and
Disabled Living Centres maintain. Ask yourself the following when
There are over 40 Disabled Living choosing:
Centres (or Independent Living • Are control knobs easy to reach, grip
Centres) in the UK. You can find the and turn, push or pull?
ones nearest to you by contacting • Are the worktops and cupboards the right
Assist UK, who lead the network of height for you to work at or reach into?
centres (see section ‘Where can I find
out more?’). Most of these centres • Can you open the doors and drawers of
have a range of equipment for you to cupboards and electrical appliances?
try. Many of the staff are occupational
Figure 6
A kettle tipper
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Arthritis Research UK
Everyday living and arthritis
• Will you be able to clean and maintain Reaching into very low or high cupboards
equipment and surfaces easily? can be hard, particularly if they’re
• Can you lift/move the equipment easily cluttered or stacked several layers deep.
if you need to? The following tips might help:
Electric jug kettles are generally • Store items you use often within easy
easier to grip and pour from than reach on the work surface or at the front
traditional kettles. Designs vary, of cupboards at a convenient height.
and some pour more easily than • Have wall-mounted cupboards moved
others. Cordless kettles with a central to a lower position.
round power socket to fit onto are • Fit large handles or sliding doors.
easiest, or you could use a lightweight
travel model instead. Look for non- • Have shelves that slide or rotate out
slip handles and good balance when when you open the door.
lifting. You may find a kettle tipper • Have drawers mounted on rollers,
helpful if you find this difficult (see which run more easily than standard
Figure 6). A useful tip is to bring water drawers.
to the kettle in a lightweight plastic
• Use plate shelves, rather than piling
jug to avoid having to unplug or move
crockery up. Use step-shelves inside
the kettle. Alternatively, you could
cupboards to easily see and reach jars
think about installing a table-top
and tins.
water boiler so you don’t have to keep
refilling a kettle. Fast-boil hot-water
dispensers are also available.
Figure 7
Gadgets to help
prepare food
(b)
(a) (c)
(e)
(d)
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Arthritis Research UK
Everyday living and arthritis
Figure 8
Gadgets to help
with opening
(a) (b)
(c)
(d)
13
Try shopping
around for
gadgets before
you buy. You may Cooking and serving
find a better one With a conventional cooker, the following
to suit your needs. help you reduce strain on painful hands
and wrists:
• Use a lightweight, two-handled saucepan.
• Use a vegetable steamer – they can be
lighter than a saucepan because less
water is needed.
• A table-top slow cooker can be easier to
use than a casserole dish that you place
in the oven.
Most supermarkets sell ready-prepared
food such as chopped vegetables, • Use a slotted spoon to remove boiled
grated cheese and roasted potatoes. vegetables from the saucepan.
Have some pre-prepared ingredients • Use a wire chip basket, placed in the
and ready-made meals in the freezer saucepan first, to lift out vegetables
to avoid struggling when your arthritis when cooked.
is particularly troublesome. • Use a flat-bottomed ladle to remove
soups and stews from the saucepan.
Arthritis Research UK
Everyday living and arthritis
• You can make wooden spoon, knife and • To avoid stooping while washing up,
other handles bigger by adding some raise your washing-up bowl by putting
foam tubing (pipe lagging). it on blocks or another upturned bowl
in the sink.
What else might help?
• There’s a wide range of specialist cutlery
The following tips might help make things
available. Use lightweight crockery and
easier in the kitchen:
cups with large handles that can be
• Think about where you’ll be gripped with several fingers.
eating – do you need a food trolley
to transport food? • Insulated or pedestal mugs (which
have an extra ‘step’ on the bottom) can
• Lever taps are easier to use than regular be held with both hands because you
taps. You can buy these, or fit tap can support them underneath without
turners onto existing taps (see Figure 9). burning yourself.
(a) Figure 9
Tap turners
and lever taps
(b)
15
Figure 10
Bathing and
personal care
gadgets
(a) (b)
(c) (d)
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Everyday living and arthritis
Figure 11
A bath board
and seat
(a) (b)
or powered
bath seat
(a) A bath board and seat or (b) a powered bath seat lift may
help if you have difficulty getting in and out of the bath.
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Arthritis Research UK
Everyday living and arthritis
Figure 12
A walk-in
shower
A walk-in shower
with a fold-down seat
can be helpful if your
mobility is limited.
19
Figure 13
Dressing stick
b) Sock aid
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Everyday living and arthritis
You can also try using pegs to hold Buying a new mattress
the duvet in place on the bed to make We spend about a third of our lives in
it easier to pull the cover off. bed. Lying on a mattress that provides
no support for eight hours a night
Getting dressed can actually create pain in your joints.
Joints are often stiff and achey first thing A mattress has a set lifespan, and when
in the morning. This can make getting that’s over it’ll sag.
dressed time-consuming and tiring.
It’s usually easiest to sit down to dress, A bed needs to hold your spine correctly.
and there are a wide variety of gadgets When you lie on your side it should
to help, including: be straight, and when you’re on your
back it should retain its natural ‘S’ curve.
• a buttonhook for fastening buttons For most people with arthritis, a giving
• long-handled shoehorns surface is most comfortable. This means
• a dressing stick, with a hook at one a mattress that conforms to and supports
end and a rubber thimble at the other your body to avoid excessive pressure
(see Figure 13) – this will help pull points on your joints.
clothing over your feet, and you can
push shirts off shoulders and socks off
heels with the rubber end
• a sock aid holds the sock open,
and then you pull it up your leg
using the long tapes (see Figure 13).
There’s a similar gadget for putting
on tights, and stiffer versions can be
used for putting on surgical stockings.
You can adapt clothes by replacing
some fastenings with Velcro.
Try placing a zip pull tag, small piece
of ribbon or key ring on a zip to hook
your finger through.
• Try out several mattresses to find the Choosing a comfortable pillow can
best one. help reduce neck and shoulder pain.
A shaped or memory foam pillow can
• Many people find memory foam help. Be careful not to prop your pillow
mattresses or toppers helpful. too high, as this can put your neck at
• You get what you pay for – cheap prices an uncomfortable angle. Remember,
may mean good value, but generally your spine should be straight when you
the more you pay the longer the lie on your side. Use a gel pad placed
mattress will last and the better quality between your knees to reduce knee
of support you get. pain in this position.
• There’s no substitute for trying out beds
yourself. You should really try them See Arthritis Research UK booklets
out in the same position in which you Back pain; Neck pain; Shoulder pain;
prefer to sleep. Many people buy a bed Sleep and arthritis.
by admiring the pattern and prodding
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Everyday living and arthritis
DIY and housework • Use a tumble dryer – take the clothes
There are many things you can do to make out straight away and hang up to
DIY or housework easier and less painful: reduce creasing (and ironing).
• Organise storage in your workshop, • It might help to sit down to iron.
potting shed or garage using the same • Setting up an ironing board to a low
ideas as suggested for the kitchen – level can help with shoulder pain,
worktops should be at a comfortable but it shouldn’t be low enough to make
height and you should sit or perch you stoop.
to work.
• Use an iron-flex holder which keeps
• Pad the handles of tools to make them the iron’s cord out of the way to reduce
easier to grip and buy lightweight, wrist strain.
power-assisted tools such as drills or
screwdrivers. Some manufacturers now • For small amounts of ironing, use a
produce tools with large grips. Look for metallised ironing cloth/thick towel
non-slip, comfortably shaped handles. on a worktop.
• Wear wrist splints while polishing, • Use a reflective ironing board cover
sweeping and doing DIY to ease pain. so you only need to iron clothes on
one side.
• Use a long-handled dustpan and brush
so you don’t have to bend down. • Plan ahead and buy non-iron clothes
and fabrics.
• Use a towelling mitt for dusting or
cleaning mirrors/windows as it’s easier • If you’re redesigning your living space,
than gripping a cloth. you may want to consider a pull-out
ironing board.
See Arthritis Research UK booklet
Gardening and arthritis. What can I do to make shopping easier?
You may find shopping is difficult and
tiring, but there are ways round this
The following tips may help when
problem:
washing, drying and ironing clothes:
• You can shop by phone or internet
• You may find it easier to do half-loads with home delivery, or by using mail-
when washing.
order catalogues.
• A reaching gadget may help to get the • Plan to shop on a day when you don’t
clothes out of the machine.
have many other things to do.
• Raising a clothes basket on a block • Don’t attempt to carry too much
or box will make it easier to pick up,
in one go.
or use a clothes basket or plastic box
with wheels and a handle if possible. • Use plastic bags with firm handle-grip
inserts, which are easier to carry (you
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Everyday living and arthritis
can buy these at some supermarkets). Where can I find products that
You can also try adapted grips to will help me?
prevent carrier bags digging into Many of the products mentioned in this
your fingers. section are available in supermarkets,
• Take someone with you to help. hardware, household and DIY stores,
kitchen shops and chemists.
• Ask for help at the supermarket,
especially with packing and loading Prices can vary so shop around.
into the car (most supermarket chains You should also try out equipment
will happily provide this service). before buying it to make sure that
it’s right for you. If this can’t be done
• Consider using a shopping basket/
in a shop, there are demonstration
trolley on wheels for short trips on foot.
centres where items can be tried out
• Ask friends or neighbours to shop and expert advice given. These include
for you. Disabled Living Centres, Social Services
• Social Services may arrange for centres and hospital occupational
someone to help if it’s impossible therapy departments.
for you to shop.
Many large stores provide wheelchairs
for customers’ use, and town councils run
Shopmobility schemes where you can
hire wheelchairs and scooters.
Part 2: Are you sitting Do I have the right chair for
comfortably? my needs?
You should think about the following:
We all like a comfy chair. But if you have
arthritis what was once an easy chair can • Do you find it difficult to get out of
develop into something difficult, or even your chair?
painful, to sit in for any length of time. • Do you have to use cushions to make
An uncomfortable chair will only make it comfortable?
the aches and pains you already have • Do you get more aches and pains after
worse (see Figure 14). You may even you’ve been sitting for a while?
find that problems which you thought • Does the chair make you slouch?
were due to your condition are in fact
caused by a badly designed armchair. • Is it too large or too small?
If you have a badly designed chair it’ll If you answered yes to any of the above,
be more difficult to get out of, as you’ll then you should think about getting
have to bend the aching joints more than a chair that’s properly designed for
necessary. You may also get extra pain your needs.
because of the extra effort.
There are literally thousands of easy chairs
A well-designed chair won’t cure your on the market today and many claim
arthritis, but it’ll help ease discomfort, to be specially designed for people with
pain and associated problems. arthritis. We won’t specify which chairs
are best, but we’ll provide guidelines
on things to look for when choosing.
Figure 14
A bad design
can make
pains worse.
27
Are armrests important? • Check the armrests are at the right
If you have painful joints in your hands, height. Sit down and rest your arms
wrists, elbows or shoulders, it can be very on them. If you have to hunch your
difficult to use the armrests on a chair. shoulders then the armrests are too
However, using the armrests can be high. If your elbows don’t reach then
as effective in helping you get up as they’re too low.
having a higher chair. So look for armrests • Check the armrests don’t stick out too
designed to allow you to use them far beyond the front legs – this can
properly. Look for the following: sometimes tip the chair up when you
• A good handgrip. You’ll find the put your weight on it.
armrests easier to grip if they’re made
of wood and stick out a few inches. Easy rising
This will allow you to wrap your fingers The way you get up out of a chair makes
around the end. a big difference. For instance, it’s easier
• Check that the armrests are padded if you tuck your feet back underneath
for comfort and warmth. you than if you place them out in front.
This is because you can bring your weight
over your feet more quickly.
Arthritis Research UK
Everyday living and arthritis
If you choose a chair that allows you you to a standing position. Make
to bring your feet back to get a better sure the chair still follows the other
position you’ll be surprised how much guidelines in this section and also
easier it is to get up. When you’re looking complies with the British Standards
for a new chair, check that it has space Electrical Safety Standards.
at the front beneath the seat. • Spring-assisted seats can also
be useful but often prove to be
Special chairs to aid rising
uncomfortable. Spring-assisted seats
For some people their condition means
have to be adjusted to your own
they would have great difficulty rising
weight. This is fine if you alone use the
from even the perfect easy chair.
chair, but be careful if you’re using one
Anyone who experiences this problem
that will also be used by other people.
may find a motorised chair or spring-
It may cause someone to get seriously
assisted seat useful (see Figure 15):
hurt if they happen to be much lighter
• Motorised chairs use an electric than you.
mechanism to lift the seat and bring
Figure 15
Assisted chairs
29
Comfort Backrests
What makes a chair comfortable? Apart It’s important that your back is fully
from the features mentioned so far, there supported. A backrest that’s gently
are other points worth looking out for. sloped to fit the curves of your back is
helpful. But everybody’s back is different,
The seat so it’s important to try before you buy.
You should look closely at the seat You should think about the following:
to make sure it’ll give you support, • Check that the backrest isn’t at an
comfort and a firm base to push up from. awkward angle – if it slopes too far
You should think about the following: forward, it’ll stop your back muscles
• Check the cushion is made from relaxing as they’ll be forced to keep
good-quality foam – cheaper foams working to stop you slumping forward.
may go soft and start sagging after If it slopes too far backwards, it’ll make
a few months. it harder to get up.
• Try to avoid seats that sag like a • Check that the backrest is high enough
hammock when you sit in them – this to support all of your back, shoulders
can be uncomfortable as it can cause and head. This is particularly important
your bottom to press through and rest if you suffer from ankylosing spondylitis
on the base of the seat. It may also be or other back problems.
difficult to rise from a sagging seat.
• If there’s a headrest, make sure it
• Check the dimensions of the doesn’t protrude forward as this will
seat with your body size in mind. cause neck ache.
Avoid narrow seats – there should
• Some people like to use a reclining chair
be enough room for you to easily
so that they can change their posture
change position because sitting still
easily but remain supported.
for long periods in the same position
can be uncomfortable.
See Arthritis Research UK booklet
• Check that the seat isn’t too deep. Ankylosing spondylitis.
Deep seats may be appealing, but
they may not be good for your back.
Research has shown that most
Also, ask yourself if you’ll be able to
people find discomfort occurs only
easily get out again. The seat should
after they’ve been sitting in the chair
be just deep enough to fully support
for more than half an hour. It’s no
your thighs when you sit as far back
good going into a shop and sitting
as possible.
in it for a few minutes to see if it’s
comfortable. You may have more time
to try out different chairs in a Disabled
Living Centre.
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Everyday living and arthritis
What else should I think about? Function versus fashion – If you have
Seat covers – Some people have a condition that makes getting in and out
such problems with their condition of a chair difficult, function is always more
that they find it difficult to get to the important than fashion. But this doesn’t
toilet. In this case you should think mean that your chair needs to look very
carefully about what type of seat different. Look around at all the available
cover would be best suited to you. chairs and try to buy one that blends
Although a vinyl covering is waterproof in with the rest of your furniture – but
and easy to wipe down, it can cause don’t buy one based on this alone.
you to sweat and may become slippery. Suitability – You may have to think
Removable covers over a waterproof about a different style of chair from those
vinyl cushion are more comfortable and you’ve had in the past in order to find
more convenient. These can be washed one that suits your needs. But if you think
whenever necessary. Covers made about your needs carefully and try it
of wool or washable sheepskin will be out properly, you may well be surprised
soft and warm, and they can absorb a lot at how easy it is to get up from a different
of moisture while allowing you to feel dry. kind of chair and how comfortable it is.
Further advice on these can be obtained
from an occupational therapist or at
a Disabled Living Centre.
Moving the chair – You may find that
if your condition gets worse it becomes
difficult for you to move your chair.
In this case it might be wise to choose
a fairly lightweight chair, but it must
be strong enough to take the knocks
of everyday use.
Part 3: Driving and Some people with arthritis ask if they
can leave their seat belt off. This isn’t
arthritis recommended because of the dangers
Arthritis can affect driving in a number if you have an accident. It’s better to
of ways. For example, you may have adapt the seat and seat belt height for
problems with manoeuvres because your comfort. There are also adaptations
of stiff joints. It may be difficult to grip available if you find it difficult to fasten
the steering-wheel because one or both your seat belt. Ask your occupational
hands are painful. Getting in and out therapist about these.
of your driving seat, turning to see
when reversing or manoeuvring, and Your car
using the foot pedals could all be more If you’re buying a car you should consider
difficult than normal. But most people a model with power-assisted steering and
with arthritis can learn to drive or carry automatic gears. These require less effort
on driving with help and advice about to use.
modifications to their car.
You could also try the extra features
What does the law say? suggested below:
If you hold a current driving licence and • a padded steering wheel cover, which
develop arthritis which affects your makes gripping more comfortable
driving and has lasted more than three
• a supportive headrest, which is essential
months, you must inform the Drivers
for your neck
Medical Group at the Driver & Vehicle
Licensing Agency (DVLA) in Swansea. • a moulded backrest
When applying for a provisional licence • a panoramic rear-view mirror and blind-
you must declare that you have arthritis. spot mirrors added to the wing mirrors,
You’ll have to pass the same test which may help to give a better view
of competence as any other drivers but if you have limited neck movement.
may be allowed extra time.
Who do I need to talk to?
It’s unlikely that a person with arthritis The Forum of Mobility Centres is a charity
would be asked to take another that helps people with medical conditions
driving test. However, you may be which may affect their ability to drive or
issued with a licence for a shorter get into a car. Your regional centre will be
period or need to adapt your car with able to help with:
special controls. If your doctor tells
you to stop driving because of your
• driving assessments which look at your
ability to drive – the assessor can give
medical condition, you must surrender
advice on how to make driving easier
your licence to the DVLA.
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and on gadgets (for example panoramic If you’re learning to drive and have very
mirrors, seat belt aids) which can help severe arthritis, it may be useful to visit
• practical advice on special car a driving assessment unit. Members of the
adaptations, such as swivelling seats, Forum of Mobility Centres offer this
wheelchair hoists or steering wheel service. You’ll have to pay for an
knobs assessment.
• passenger assessments to see how you You’ll need to tell your insurance
can get in and out of a car more easily. company that you have arthritis,
but, since the Disability Discrimination
The assessments provided aren’t driving Act, car insurance shouldn’t be any more
tests and they won’t be reported to the expensive because of your condition,
DVLA, although it’s still important to so shop around to see who gives the
tell the DVLA about anything that could best quote.
affect your ability to drive.
You should speak to your doctor and Blue Badges
insurance company about whether you You may be eligible for a Blue Badge
can wear splints, compression gloves or a for parking, which can be issued from
collar while driving – it’s usually possible your local council.
to do so. But remember, if your arthritis You’ll qualify automatically if you’re
causes dizzy spells when you turn your on the higher rate mobility component
neck you shouldn’t be driving. of the Disabled Living Allowance (DLA).
Arthritis Research UK
Everyday living and arthritis
35
layout of some homes will make it difficult In most areas you can get informed advice
or impossible to make these changes. from community occupational therapists,
Option two: move to more suitable who are usually based in the Department
accommodation – perhaps a bungalow of Social Services of the local council.
or ground-floor flat, or a house that can
be more easily adapted than your present
Try before you buy
Because each person’s needs are different,
home. Remember that local authorities
you should try out a stairlift or through-
have to judge how suitable a home is for
floor lift (also known as a homelift) before
a person with mobility problems before
you spend any money. You can do this
they can give a grant. For example,
either at a Disabled Living Centre, or
you might not get a grant if you choose
it may be possible for a lift company
a house that’s situated up a steep bank
representative to arrange a visit to see
with a lot of outside steps. Your local
a stairlift in someone else’s home. If
council will advise on this.
you’re thinking of getting a through-floor
Option three: introduce adaptations to lift we especially recommend seeing
your home – such as installing a stairlift – one in place, because it can be difficult
to make it safer and more comfortable to imagine what it would be like
for you. in your home.
This section stresses both the need for
professional advice before you make How do I choose a stairlift?
a decision and the need to find out about You’ll need a thorough assessment
any available grants for equipment or of both the layout of your home and your
conversions before any work is started. own physical problems in order to choose
the best stairlift for you.
Arthritis Research UK
Everyday living and arthritis
These are some of the main points you with hand, arm or wrist problems find
should consider: these difficult to use, so the ‘try before
you buy’ rule applies.
Unusual stairs
Is your stairway straight or curved? Doorway problems
Several types of stairlift are available If a door or passage at the very top
for stairs that curve either at the top or bottom of the stairs could be
or at the bottom. blocked by the track of the stairlift,
there are a number of models designed
Do you want a swivel seat? to overcome this problem. But remember
Swivel seats are designed to make it that if you choose a model whose track
safer to get off a stairlift (see Figure 16). stops short of the top of the stairs, the lift
They work like an office chair and swivel will also stop short of the top. This might
at the top of the stairs so you end up make getting off dangerous. A folding
facing the landing. These seats also have track is available for the bottom to give
armrests for you to grip, making them access to a doorway, but you’ll need
easier to get out of. Swivel seats have to make sure that you’re able to fold and
a control, allowing the chair to swivel unfold it.
when you want it to, but some people
Figure 16
A stairlift with
a swivel seat
37
Stairlifts and home
lifts can make a big
difference to your If you have any hip, knee or back
mobility at home. problems, the height of the stairlift seat
is important. Check that it’s right for
you at both the top and bottom of the
stairs. Some people find a swivel seat
with sturdy armrests easier to use, so
they can use the arms to push up from.
If you’re unable to sit upright because
of your arthritis, check that your knees
or feet won’t get caught against the
opposite wall or banisters, as this could
Folding and unfolding the chair be dangerous. Curved-rail lifts have
Some stairlifts make it difficult for others to cut the corner on bends, which may
in the house to climb the stairs. In these mean that your knees brush against the
cases the footplate, seat and armrests staircase post.
need to be folded out of the way. You can Don’t take a stick or walking frame
select a design where the footplate and (Zimmer) with you on the stairlift.
armrests automatically lift out of the way It might catch on the steps or banisters
when the seat is folded up. Some models while the lift is moving. Ask for
need the user to push the seat up, so you another walking aid so you can have
should check that you’re able to do this if one at the top of the stairs and one
necessary, but other types can lift the seat below. A handrail near the stairlift may
using the remote control. also be useful if you feel unsteady
If you want to be able to fold the footplate on your feet. Your local Social
yourself, check that you can do so safely Services department may be able
and easily, as you may have to do it to provide this.
several times a day. Be aware that folding
and unfolding the footplate can be tricky What if I use a wheelchair?
or even dangerous, especially at the top Advances in treatment mean it’s now less
of the stairs. common that people with arthritis will
have to use a wheelchair in the home, but
Your physical problems if you do use a wheelchair to get around
Hand or wrist problems can make the house you’ll need to look at the lift
it difficult to keep the drive button options slightly differently. You might
pressed for the whole trip. You may find want to look at a conventional stairlift,
a joystick mechanism easier to operate. a wheelchair platform stairlift or perhaps
Check that you can easily use both a through-floor lift.
this and any lever that allows the seat
to swivel.
38
Arthritis Research UK
Everyday living and arthritis
40
Arthritis Research UK
Everyday living and arthritis
42
Arthritis Research UK
Everyday living and arthritis
43
Part 5: Getting help and services for help with gardening and
small household jobs such as changing
advice the batteries on smoke alarms. These and
How can Social Services help? other voluntary organisations which can
Social Services departments have help are listed in the ‘Where can I find out
Disability Teams with occupational more?’ section of this booklet. You may
therapists. They visit people at home also find others in the phone book – or
to assess their needs and to provide ask your Social Services department or
advice on specialist equipment and the Citizens Advice Bureau.
adaptations and, where possible, arrange
for their provision. The occupational
therapist can advise on what grants are
What else can I do?
available. Eligibility for equipment and As well as the practical tips listed in the
grants varies between areas and for rest of this booklet, several behaviour
different individuals depending on their changes could make life easier. You need
means. You may be able to have some of to try to find a way to carry out your
the equipment mentioned in this booklet everyday tasks that allows you to manage
on loan from your local Social Services your pain and tiredness and reduce the
department or hospital. stress on your joints. The key to success is
to do a variety of tasks, in stages and with
Social Services may also be able rest breaks.
to arrange for you to have help with
personal care and advise you on local
schemes that offer help with housework
and shopping.
Voluntary organisations
The British Red Cross runs an equipment
loan service for wheelchairs and other
specialist equipment, and Age UK helps
with shopping and housework in some
areas. Age UK also offers handyman
Arthritis Research UK
Everyday living and arthritis
Remember the four P’s – problem Pacing – Break tasks into achievable
solving, planning, prioritising and pacing: parts and spread them throughout the
Problem solving – Often it’s not what day or week, and take regular short
you do but the way that you do it rest breaks. Change your position
that makes a difference. Look at your or your activity regularly. Don’t use pain
daily routine. Start to notice if you as a guide for when to stop; change your
spend all morning doing a certain task or rest if you’re uncomfortable.
task or if your position causes pain or The four P’s – problem solving,
discomfort. If a task causes you a problem, planning, prioritising and pacing –
ask yourself, ‘How can I do it differently?’ can help you find ways to make life
Planning – Make a plan of the things you a little easier.
want to achieve during the day or over
the week. Plan how and when you’re See Arthritis Research UK booklet
going to do certain tasks. Make sure Looking after your joints when you
that the demanding jobs are spaced have arthritis.
out during each day or week.
Prioritising – If you list the tasks you
need to do, you can prioritise them
and decide what tasks you can remove,
delay or hand over. Ask yourself, ‘Does
this need to be done today? Does it need
to be done at all? Does it need to be me
who does it? Can I get someone to help
me with some parts of the task?’
45
Glossary Where can I find out more?
Ankylosing spondylitis – an If you’ve found this information useful
inflammatory arthritis affecting mainly you might be interested in these other
the joints in the back, which can titles from our range:
lead to stiffening of the spine. It can
Conditions
be associated with inflammation
in tendons and ligaments. • Ankylosing spondylitis
Carpal tunnel syndrome – a condition • Back pain
caused by pressure on the median • Carpal tunnel syndrome
nerve as it passes through the wrist. • Neck pain
Symptoms include pain and tingling
or numbness, which is usually worse • Osteoarthritis
in the thumb, index and middle fingers. • Rheumatoid arthritis
Median nerve – the nerve that controls • Shoulder pain
movement of the thumb and carries • What is arthritis?
information back to the brain about
sensations felt in the thumb and fingers. Therapies
Occupational therapist – a trained • Occupational therapy and arthritis
specialist who uses a range of strategies • Physiotherapy and arthritis
and specialist equipment to help people
to reach their goals and maintain their Self-help and daily living
independence by giving practical • Diet and arthritis
advice on equipment, adaptations or by • Fatigue and arthritis
changing the way you do things (such
• Gardening and arthritis
as learning to dress using one-handed
methods following hand surgery). • Keep moving
Physiotherapist – a trained specialist • Looking after your joints when you
who helps to keep your joints and have arthritis
muscles moving, helps ease pain and • Pain and arthritis
keeps you mobile.
• Sex and arthritis
• Sleep and arthritis
• Work and arthritis
46
Arthritis Research UK
Everyday living and arthritis
You can download all of our booklets and Assist UK (for information on Disabled
leaflets from our website or order them Living Centres)
by contacting: Redbank House
Arthritis Research UK 4 St Chad’s Street
Copeman House Manchester M8 8QA
St Mary’s Court Phone: 0161 832 9757
St Mary’s Gate, Chesterfield Email:general.info@assist-uk.org
Derbyshire S41 7TD www.assist-uk.org
Phone: 0300 790 0400 British Red Cross
www.arthritisresearchuk.org UK Office
44 Moorfields
London EC2Y 9AL
Related organisations
Phone: 0844 871 1111
The following organisations may
Email: information@redcross.org.uk
be able to provide additional advice
www.redcross.org.uk
and information:
Citizens Advice Bureau (CAB)
Arthritis Care
Can provide advice on benefits and help
Floor 4, Linen Court with filling in application forms. To find
10 East Road your local office, see the telephone
London N1 6AD directory under ‘Citizens Advice Bureau’,
Phone: 0207 380 6500 or contact Citizens Advice:
Helpline: 0808 800 4050 Phone (for England): 0844 411 1445
Email: info@arthritiscare.org Phone (for Wales): 0844 477 2020
www.arthritiscare.org.uk www.citizensadvice.org.uk or
Age UK www.adviceguide.org.uk
Tavis House DIAL Network (formerly Disability
1–6 Tavistock Square Information and Advice Line or
London WC1H 9NA
Dial UK)
Phone: 0800 169 6565
Phone: 01302 310 123
www.ageuk.org.uk www.scope.org.uk/dial
AskSARA (part of the Disabled Living An independent network of local
Foundation) disability information and advice services
www.asksara.org.uk run by and for disabled people, part of
Ask SARA gives helpful advice on Scope.
gadgets and equipment to make
everyday activities easier. The website
will ask you to select the topic you’re
interested in (for example cooking) and
answer a few questions before giving
a personalised report.
47
Disability Rights UK (formerly Forum of Mobility Centres
Disability Alliance, RADAR and Phone: 0800 559 3636
the National Centre for Email: mobility@rcht.cornwall.nhs.uk
Independent Living) www.mobility-centres.org.uk
12 City Forum There are 17 regional mobility centres
250 City Road with driving assessment units throughout
London EC1V 8AF the UK. See the website for your
Phone: 0207 250 3222 nearest centre.
Email: enquiries@disabilityrightsuk.org
Motability
www.disabilityrightsuk.org
Warwick House
Disabled Living Foundation (DLF) Roydon Road
380–384 Harrow Road Harlow
London W9 2HU Essex CM19 5PX
Phone: 0207 289 6111 Helpline: 0845 456 4566
Helpline: 0845 130 9177 www.motability.co.uk
Email: info@dlf.org.uk
www.dlf.org.uk National Rheumatoid Arthritis
Society (NRAS)
Disabled Motoring UK
Unit B4 Westacott Business Centre
National Headquarters
Westacott Way, Littlewick Green
Ashwellthorpe
Maidenhead SL6 3RT
Norwich
Norfolk NR16 1EX Phone: 0845 458 3969
Phone: 01508 489 449 Helpline: 0800 298 7650
Email: info@disabledmotoring.org Email: helpline@nras.org.uk
www.disabledmotoring.org www.nras.org.uk
48
Arthritis Research UK
Everyday living and arthritis
49
Notes
50
Arthritis Research UK
Everyday living and arthritis
Notes
51
We’re here to help
Arthritis Research UK is the charity funding and giving insight into the latest
leading the fight against arthritis. treatment and self-help available.
We’re the UK’s fourth largest medical We often feature case studies and
research charity and fund scientific and have regular columns for questions
medical research into all types of arthritis and answers, as well as readers’ hints
and musculoskeletal conditions. and tips for managing arthritis.
We’re working to take the pain away
for sufferers with all forms of arthritis Tell us what you think
and helping people to remain active.
We’ll do this by funding high-quality Please send your views to:
research, providing information feedback@arthritisresearchuk.org
and campaigning. or write to us at:
Arthritis Research UK, Copeman
Everything we do is underpinned House, St Mary’s Court, St Mary’s Gate,
by research. Chesterfield, Derbyshire S41 7TD
We publish over 60 information booklets
which help people affected by arthritis The original text was written by Barbara
to understand more about the condition, Hatton, Rachel Hough, Paula Jeffreson, M. Ellis,
its treatment, therapies and how J. Munton, and Rose and Edwin Carne, who
to help themselves. have expertise in the subject. It was assessed
at draft stage rheumatology nurse specialist/
We also produce a range of separate
chair RCN rheumatology forum Vicky
leaflets on many of the drugs used Chamberlain, occupational therapist Joanna
for arthritis and related conditions. Harness, head of Research and Development
We recommend that you read the at the British Association/College of
relevant leaflet for more detailed Occupational Therapists Dr Elizabeth White
information about your medication. and rheumatology occupational therapist
Tracy White. An Arthritis Research UK editor
Please also let us know if you’d like
revised the text to make it easy to read and
to receive our quarterly magazine,
a non-medical panel, including interested
Arthritis Today, which keeps you up to date societies, checked it for understanding. An
with current research and education Arthritis Research UK advisor, Angela Jacklin,
news, highlighting key projects that we’re is responsible for the content overall.
52
Get involved
You can help to take the pain away
from millions of people in the UK by:
• volunteering
• supporting our campaigns
• taking part in a fundraising event
• making a donation
• asking your company to support us
• buying products from our online and
high-street shops.
www.arthritisresearchuk.org