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Nurse Education Today (2006) 26, 501–510

Nurse
Education
Today
intl.elsevierhealth.com/journals/nedt

The palliative care education needs of


nursing home staff
Evelyn Whittaker a,1, W. George Kernohan b,2
, Felicity Hasson b,*
,
Valerie Howard c,3, Dorry McLaughlin d,4

a
Northern Ireland Hospice, 71A Saintfield Road, Belfast, BT8 7HN, United Kingdom
b
University of Ulster, Institute of Nursing Research, School of Nursing, Shore Road,
Newtownabbey BT37 0QB, United Kingdom
c
Northern Ireland Hospice, 74 Somerton Road, Belfast BT15 3LH, United Kingdom
d
Northern Ireland Children’s Hospice, Horizon House, 18, 0’ Neill Road, Newtownabbey BT36 6WB,
United Kingdom

Accepted 13 January 2006

KEYWORDS Summary
Nursing home; Background: Palliative care is delivered in a number of settings, including nursing
Palliative care; homes, where staff often have limited training in palliative care.
Hospice Aim: We explored the level of palliative care knowledge among qualified staff deliv-
ering end-of-life care in nursing home settings, to inform the development of an
appropriate education and training programme.
Design: An audit of the educational needs assessment was performed using an anony-
mous postal questionnaire sent to 528 qualified nursing staff within 48 nursing homes.
Findings: In total, 227 questionnaires were returned giving a response rate of 43%.
Results indicated that less than half the sample had obtained formal training in the
area of pain assessment and management and less than a quarter had obtained training
in non-malignant conditions. Registered nurses in this study reported a lack of aware-
ness of palliative care principles or national guidelines.
Conclusion: Qualified nursing home staff agree that palliative care is a valuable
model for care in their setting. There are clear opportunities for improvement in nurs-
ing home care, based on education and training in palliative care. Results also support

* Corresponding author. Tel.: +44 028 90 366895; fax: +44 028 90 368202.
E-mail addresses: evelyn.whittaker@nihospicecare.com (E. Whittaker), wg.kernohan@ulster.ac.uk (W. George Kernohan), f.hasson@
ulster.ac.uk (F. Hasson), valerie.howard@nihospicecare.com (V. Howard), dorry.mclaughlin@nihospicecare.com (D. McLaughlin).
1
Tel.: +44 028 90 78 1836; fax: +44 028 90 79 6499.
2
Tel.: +44 028 90 366532; fax: +44 028 90 368202.
3
Tel.: +44 028 90 781836.
4
Tel.: +44 028 90 777635.


0260-6917/$ - see front matter c 2006 Elsevier Ltd. All rights reserved.
doi:10.1016/j.nedt.2006.01.004
502 E. Whittaker et al.

the need for enhanced liaison between nursing homes and specialist palliative care
services.
c 2006 Elsevier Ltd. All rights reserved.

Introduction Literature

Increasing numbers of people now spend the last In the UK ‘‘nursing homes’’ offer nursing and social
months or years of their life in a nursing home care to older people and ‘‘residential care homes’’
with chronic and progressive conditions, as well offer mainly social care. Within both types of
as suffering from multiple pathologies associated home, the General Practitioner (GP) and the Dis-
with older age. It is widely accepted that pallia- trict Nurse (DN) have traditionally provided most
tive care should be part of the care extended to end-of-life care. Today, some hospice services
patients who have a chronic progressive disease have been incorporated into nursing home care to
and for whom a cure is not possible (National provide palliative care for selected residents. How-
Council for Hospice and Specialist Palliative Care ever, specialist palliative care staff only become
Services, 1998; Addington-Hall and Altmann, involved in certain circumstances (Froggatt and
2000; Department of Health, 2000) regardless of Hoult, 2002) and have been found to be largely
care setting (National Institute for Clinical Excel- reactive, addressing immediate clinical needs,
lence, 2004). rather than providing comprehensive palliative
Recent regional policy (DHSSPS, 2000) has rec- care for all those with an incurable disease (Frogg-
ommended that all staff providing care in the inde- att et al., 2002; Froggatt and Hoult, 2002; Good-
pendent sector should have access to education in man et al., 2003). Therefore nursing home staff
palliative care and standards should be developed need to have impeccable general palliative care
to assure quality care. However, research indicates skills in order to meet the palliative care needs of
that nursing home residents have limited access to a large proportion of residents.
palliative and hospice care (Zerzan et al., 2000; Nonetheless, research has found that nursing
Strumpf, 2004). Although research reveals that homes do not always provide adequate end-of-life
nursing home staff regard palliative care as an care (Casarett et al., 2001). Pain and symptom
important part of their role (Wronska and Gozdek, management in nursing homes has been described
1994; Copp, 1994), evidence suggests, that they as inadequate (Stein and Ferrell, 1992; Institute
may be educationally unprepared to provide a high of Medicine, 1997; Bernabei et al., 1998; Won
level of end-of-life care (Shemmings, 1996; Ersek et al., 1999) with training required in syringe driver
et al., 1999; Raudonis et al., 2002). Indeed, con- usage (Froggatt, 2000). In addition, the persistence
cern has been expressed over the quality of care of attitudes, such as fear of addiction, has been re-
provided by homes’ own care staff (Avis et al., corded as a serious problem adversely affecting
1999; Katz and Peace, 2003). pain management and end-of-life care (Ferrell
While several UK-based projects have addressed et al., 1992; Gibbs, 1995). Zerzan et al. (2000) re-
palliative care education in nursing homes (Sidell ported that dying residents experience high rates
et al., 1997; Avis et al., 1999; Welton, 1999; Frogg- of untreated pain, additionally residents and their
att, 2000); none have been developed in Northern family members are isolated from social and spiri-
Ireland. Since nursing homes are an increasingly tual support.
important context for end of life care, it is reason-
able to anticipate growing demand for palliative
care in this setting. It is therefore essential to de- Training needs
fine nursing staff’s educational needs for palliative
care. This paper presents the findings of the first Nursing home staffing and training needs may be
stage of a audit which explores the level of pallia- similar to those identified in care of the elderly hos-
tive care knowledge among qualified staff deliver- pitals (Bennett, 1986), but concerns have been ex-
ing end-of-life care in nursing home settings in pressed over the level of training and skilled
one UK region, to inform the development of an nursing care in homes (Nazarko, 1994, 1996, 1999;
appropriate educational and training programme, Sone, 1997; Department of Health, 1999). Raudonis
to meet identified needs. et al. (2002) claimed that one of the most critical
The palliative care education needs of nursing home staff 503

challenges is the lack of education in palliative care the supportive care needs of residents at the end-
among qualified staff, arguing that nurses can only of-life (Hanvey, 1989; Counsel and Care, 1995;
practice what they know; their basic nursing educa- Shemmings, 1996). Such findings are confirmed by
tional programmes being the foundation for their Katz et al. (2001), who investigated the care of dy-
knowledge. Yet, recent studies have documented ing residents in residential, nursing and dual-regis-
deficiencies in end-of-life training in most nursing tered homes in England using a multi-method
schools (Ferrell et al., 1999; Lloyd-Williams and approach. They found the degree of understanding
Field, 2002). Mallory (2003) argues that this lack regarding palliative care varied among homes and
of education has been reflected in the level and staff and identified a lack of training in communi-
quality of end-of-life care provided to patients. In- cation skills and in particular little access to train-
deed, UK research suggests that the educational ing in bereavement care for staff.
needs of nursing home staff may be greater than Other studies suggest that lack of knowledge
those of clinicians in other settings for example, about providing specialised palliative care also
Gibbs (1995) found that nurses working in nursing contributes to family dissatisfaction and possible
homes were unlikely to have had continuing educa- conflicts with staff (Hanson et al., 1997). It is
tion on pain management and palliative care, when therefore not surprising that the education and
compared with nurses in hospital-based care of the training of staff in palliative care within care
elderly wards. One reason for this is that few care homes has been identified as one of the most
homes have an established budget for training. Katz important means of improving the quality of care
et al. (1999) noted that nursing home staff under- for the dying (Komaromy et al., 2000; Froggatt
standing of palliative care was over simplified and and Hoult, 2002; Nolan et al., 2003).
often limited to personal experience, viewing palli- Education of nursing staff has been shown to in-
ative care as technical and inappropriate for resi- crease knowledge, skills and improve patient out-
dents dying in the nursing home setting. comes (Ferrell et al., 1993; Grant et al., 1995;
Kenny, 2001; Strumpf, 2004). However, for pro-
grammes to be effective they must be based on
Palliative care in nursing homes an assessment of the learning needs of the partici-
pants, to ensure that new knowledge and skills are
A number of US studies have explored nursing home built upon the learners’ experiences and existing
staff experiences and needs in providing care of knowledge and skills (Ersek et al., 1999). This pa-
the dying in long term facilities (Ersek et al., per describes the learning needs of qualified nurses
1999; Bradley et al., 2001; Raudonis et al., 2002; in nursing homes with regards to palliative care, to
Stillman et al., 2005), all of which reported defi- inform the development of appropriate education
ciencies in nurses’ training and substantial gaps in and training.
knowledge of palliative care. Similar findings have
been reported in the UK, Froggatt (2005) expressed
concerns regarding inadequate resources especially
staffing levels and knowledge and claimed that Method
these factors may inhibit the ability of nursing
homes to introduce new palliative care practices. An audit was undertaken between June and July
In addition, a number of studies have reported spe- 2004. Ninety-one private nursing homes, located
cialist palliative care providers’ concerns about the within one health board area in Northern Ireland
absence of a palliative care approach and a lack of were invited to take part in the audit. In total,
resources required to meet the palliative care managers of 48 homes agreed to participate. Alto-
needs of residents in homes (Avis et al., 1999; gether the 48 nursing homes at the time of data
Hirst, 2004). Froggatt and Hoult (2002) employed collection employed approximately 528 qualified
a postal survey of 730 clinical nurse specialists’ staff. The majority of the homes were group
perceptions of their educational and care deficits homes, providing care to a mixture of residents,
in nursing home settings. Respondents identified including physical disablement, elderly mentally
several aspects of palliative care practice that ill, learning disabilities and terminal care. Most
could be addressed in educational programmes, of the residents in the homes were over 65 years
such as: syringe driver use, pain and symptom con- of age. The number of beds in each home ranged
trol, communication skills, bereavement skills and from 20–70, the majority having more than 35
strategies for working with dying patients. beds. All managers expressed a commitment to
Previous UK studies, based on a small number of provide a high level of palliative care to their
homes, found that staff felt unqualified to meet residents.
504 E. Whittaker et al.

Data collection tional themes emerged from the participants’ re-


sponses (Pope and Mays, 1995). Qualitative data
The audit was conducted using an anonymous post- were subjected to content analysis (Weber,
al questionnaire sent to all qualified staff in the 1990). Qualitative material was read and sentences
participating nursing homes. Nursing home quali- with identical or similar meaning were clustered
fied staff numbers were obtained from the nursing together and summarised, concentrating upon
manager of each participating nursing home. Postal shared perceptions. Themes were developed from
questionnaires were deemed most suitable as they this analysis and these form the basis of the find-
allowed respondents to remain anonymous and ings from this study. The results of this analysis
were also considered to be reliable in that all are employed to provide illustrative quotes in the
respondents were asked the same standardised results section.
questions (Parahoo, 1997). It also enabled the col-
lection of views of qualified nurses across a wide Ethical issues
geographical area.
As this is an audit, research governance does not
Instrument apply. However other ethical issues were consid-
ered. Operational permission to proceed was
Key informants in palliative care and pre-existing sought from all participating nursing homes. Each
manuals on palliative care (including, Partnerships participant was furnished with a written explana-
in Caring document (DHSSPS, 2000) were used to tion of the audit in the cover letter. All participants
develop the questionnaire. It contained a mixture were fully informed of the purpose of the research
of open and closed questions pertaining to educa- and were able to withdraw without prejudice at
tional needs and format of training programme any time before or during the study. Having the
required. The questionnaire had three sections: staff return their questionnaire anonymously en-
demographics (including age, level of education, sured confidentiality. Consent was implied by
professional data); involvement in palliative care; receipt of completed questionnaires.
and educational needs (including format and
barriers to attending continuing educational pro-
grammes). Respondents were asked to identify if Results
they had obtained formal training in 16 educational
areas (see Table 3). Open questions probed staff’s Of the 528 qualified nursing staff invited to partic-
views and knowledge on palliative care, total pain ipate, 227 (43%) completed the questionnaire.
concept, syringe drivers and educational pro-
grammes. A section for respondents to add further
comments was provided. Demographics
One limitation of this approach is the low re-
sponse rate it can generate (Burns and Grove, Respondents ranged between the ages of twenty-
1995). Therefore, the questionnaires were taken two to over sixty years with the majority of respon-
to nursing home managers who distributed them dents (68%, n = 155) identifying themselves as staff
to qualified staff. Many of the nursing homes nurses; however, 13% identified other titles that in-
chose to distribute surveys at meetings that were cluded adaptation nurse and nursing sister. See Ta-
attended by all nursing staff. A letter was at- ble 1 for respondents’ demographics.
tached to the questionnaire detailing the purpose,
voluntary participation, and return date. Re- Education and palliative care training
sponses were anonymous, and refusal to partici-
pate was granted. Completed questionnaires The majority of participants were prepared to RGN
were left in the manager’s office or collected by level of education (see Table 2). Other educational
one of the investigators (EW). qualifications recorded included for example, Oph-
thalmic Nursing Diploma and Ophthalmic eye
Data analysis Theatre Course, Diploma in Health Education, Di-
ploma in Midwifery and BSc. (Hons) in Psychology.
The quantitative data from the questionnaire were Respondents were asked to record if they had
subject to descriptive analysis on all closed vari- received training in a number of palliative care is-
ables using SPSS (VS 11). As would be expected sues (see Table 3). Findings revealed that, less than
from a method using open-ended questions, addi- half the sample had obtained formal training in the
The palliative care education needs of nursing home staff 505

Table 1 Respondents demographics showing a Table 3 Formal training had been undertaken by
reasonable spread of age, experience and seniority many respondents
Demographics Frequency Percentage Educational areas Frequency Percentage
Respondents age Pain assessment 81 36
22–30 32 14 Pain management 94 41
31–40 68 30 Assessment of other 82 36
41–50 63 28 symptoms
51–60 60 26 Nausea and vomiting 90 40
Missing 4 2 Other gastro-intestinal 86 38
symptoms, e.g., bowel
Position
obstruction/dysphagia
Matron/nurse manager 22 10
Constipation 106 47
Staff nurse 155 68
Oral problems 93 41
Enrolled nurse 19 8
Shortness of breath 98 43
Other 29 13
Restlessness 86 38
Missing 2 1
Fatigue/cachexia 67 29
Years of experience as qualified nurse Communication issues 87 38
Less than 1 yr 7 3 Care in the last days 87 38
1–5 yr 23 10 of life
6–10 yr 39 17 Nutrition and hydration 88 39
11–15 yr 34 15 issues at the end of life
16–20 yr 32 14 Non-malignant conditions 52 23
21 plus 86 38 Multidisciplinary 83 37
Adaptation 1 0.4 team working
Missing 5 2 Bereavement support 64 28

Years of experience working in nursing home


setting
Less than 1 yr 32 14 Pain control and resources
1–5 yr 88 39
6–10 yr 30 13
11–15 yr 59 26 While some (36%, n = 82) respondents felt compe-
16–20 yr 15 7 tent to assess a patient’s need for a syringe driver,
21 plus 2 1 most (60%, n = 135) did not feel competent in man-
Missing 1 0.4 aging drivers. Ten respondents refrained from
answering this question. In addition, over half of
respondents (51% n = 115) recorded that they did
area of pain assessment/management and less than not feel competent to care for a patient with a syr-
a quarter had obtained training in non-malignant inge driver in situ using recognised guidelines.
conditions. When asked if respondents were aware of what
When questioned, only 16 participants (7%) sta- combinations of drugs are compatible in a syringe
ted that they were completing or had completed driver, 25% (n = 56) stated that they were; 66%
a course of study in palliative care, while 22% (n = 151) were unsure; 9% (n = 20) did not answer.
(n = 50) stated that they had attended a study day Qualified staff were asked to identify the three
in relation to palliative care during the last two most common types of medication, which could
years. The majority indicated that they had at- be used within a syringe driver. Although the
tended this training session within their own time. majority of participants were able to specify
appropriate drugs, the most popular medication
Table 2 Educational qualifications specified was Diamorphine followed by Cyclizine
and Hyoscine. Some participants were unsure as
Educational qualifications Frequency Percentage
to the appropriate medication to use. For example,
RGN 190 83 some respondents reported the use of anti-Parkin-
SEN 27 12 son’s drugs or Cyclimorph, which can be given as a
RMN 17 7
sub-cutaneous injection, but are not recommended
RMHN 6 3
Nursing Diploma 39 17
for use in a syringe driver. However, 55% (n = 125)
Nursing Degree 20 9 of the sample stated that they did not have access
Other 35 15 to a syringe driver within their nursing home
and many qualitative comments revealed that
506 E. Whittaker et al.

few registered nurses had undertaken syringe dri- Respondents acknowledged the lack of availabil-
ver training. Consequently these devices were ity to formal counselling linked to the nursing
rarely used and residents had to be referred to a home for residents and staff members. Although
District Nurse or Specialist Palliative Care Service. some indicated that counselling could be gained
Free comments regarding syringe-driver illustrate from pastoral services if required, it was
this: acknowledged that a system of support or an
established link nurse system for qualified staff
‘‘Would be provided by palliative care team or Dis-
would be beneficial. When asked about this, com-
trict Nurses, none in the home’’ Res. 113
ments included:
‘‘I know that this can be obtained through the GP
and District Nurse or Macmillan Nurses but we do ‘‘None – nothing formal although all staff endeav-
not have assess to one in the nursing home’’ Res. our to offer each other support’’ Res. 52
77 ‘‘Many benefit from staff training in bereavement
counselling with access to outside counselling ser-
Many respondents, recorded deficits in knowl-
vices’’ Res. 1
edge and skills required to effectively use this
‘‘ . . . if a member of staff could develop counselling
equipment.
role within the home or referral system to outside
agency’’ Res. 29
Family care: bereavement support Some respondents pointed out the need for
unqualified staff to receive training in this area as
Most respondents felt that they were adequately they were seen as developing close relationships
prepared to speak to relatives about any planned with residents and therefore would benefit from
future management of their loved one; many some form of bereavement support.
recognised that it was much easier to talk to a
resident or his/her family if they had built up a
relationship with them. Nevertheless, for some Awareness of palliative care concepts
nurses, this was recognised as being emotionally
draining and the cause of stress. Many nursing homes were supported by a range of
Some respondents believed that their wealth of other health care professionals in the delivery of
practical experience and attending additional palliative care such as the GP, DN, Hospice teams
training sessions on bereavement counselling had and Macmillan nurses. Although the majority of
put them in a better position with regards to know- respondents were aware of the role of the GP, DN
ing how to respond and handle such situations. Two and Hospice Specialist Nurse, within their nursing
staff said: home, 39% (n = 86) stated that they were not aware
of written information available within the home
‘‘During the last 12 years I have gained more confi-
regarding referral to specialist services.
dence in discussing issues relating to death and
When asked if they were aware of the Liverpool
dying with relatives’’. Res. 18
Care of the Dying Pathway, which is being imple-
‘‘I did a brief bereavement course about 6 years
mented nationally within the UK, 76% of respon-
ago and also my vast experience with dying has
dents (n = 155) stated that they were not aware.
helped me greatly’’. Res. 146
When respondents were questioned about what
Others, who worked night-duty, felt inade- they understood by the term palliative care re-
quately informed about the residents and had no sponses revealed that 59% (n = 119) were not famil-
relationship with the resident’s family. iar with the principles of palliative care. Many
When asked about information available within respondents mentioned that palliative care in-
the homes for bereaved relatives, 20% (n = 46) of volved ‘‘the care of a resident at the end of life’’,
respondents indicated that information was given ‘‘providing care, not necessarily cure’’ and focused
orally to relatives along with emotional support at on the management of symptoms and pain control.
the time of death. The majority of respondents However, fewer respondents recorded that it also
were not aware of whether or not written informa- involved holistic supportive care including the care
tion was available for this group within their homes. of the resident’s family circle.
Some staff had been involved in the care of a Qualitative comments indicated that many
resident for a number of years and developed an respondents believed residents would require palli-
attachment. Staff strategies to deal with grief in- ative care nursing at the end-of-life, when they
cluded attendance at funerals and gaining sup- were deteriorating, at the stage when pain control
port from colleagues and management figures. is required. As stated:
The palliative care education needs of nursing home staff 507

‘‘A resident would have palliative care needs when Discussion


they are no longer able to care for their own needs,
when analgesia needs to be increased and moni- As the population ages, it is becoming increas-
tored’’ Res. 37 ingly common for older people to die in nursing
‘‘When a resident is terminally ill and in serious homes. It is accepted that palliative care should
pain needing pain control measures’’ Res. 107 be provided regardless of care setting (National
Other respondents felt palliative care nursing Institute for Clinical Excellence, 2004) and that
was required at the stage of diagnosis. As nursing home staff are increasingly being required
commented: to meet the needs of palliative care residents. In
fact, it is estimated that 20% of deaths occur in
‘‘From the beginning of illness to the end-of- these settings and many residents would benefit
life’’ Res. 28 from palliation of symptoms at the end of life
‘‘From diagnosis initially, but especially when (Addington-Hall, 2000; Hirst, 2004; NCPC, 2005).
symptoms become noticeable’’ Res. 153 However this audit surveyed 48 nursing homes
‘‘From the time of admission’’ Res. 221 to determine qualified staff’ educational needs,
When questioned about their knowledge of the barriers to meeting those needs and their pre-
‘‘total pain concept’’, many respondents recorded ferred educational format and found inadequate
that they were not familiar with this terminology, knowledge and lack of awareness regarding the
while others believed it was in relation to pain principles of palliative care, which may prevent
management and pain relief. Respondents were optimal care.
then asked what conditions or situations would Findings revealed that most respondents had
they consider to be palliative care emergencies. not obtained any formal training in for example,
Qualitative findings revealed that the majority felt non-malignant conditions, bereavement support,
that such a situation would only arise when a dealing with fatigue or cachexia. Such findings
resident was experiencing pain or breathing confirm previous evidence (Mallory, 2003) that
difficulties. historically nurses have not been prepared to care
for dying patients and that nurse education lacks
an effective and efficient approach to educating
Palliative care education programme: nurses about end of life care. Nevertheless, find-
facilitators and barriers ings do indicate that respondents have a wealth
of experience working within the nursing home
The majority of respondents were in favour of fur- setting and have a keen interest in continuing
ther education on palliative care with many iden- education. Previous studies have identified similar
tifying their lack of knowledge, skills and formal educational needs among nurses who want to in-
training in this area as being a barrier to deliver- crease their competence in providing physical,
ing high quality care to residents. Respondents psychological and spiritual care to dying patients
identified a number of specific training areas (Ersek et al., 1999).
including assessment and management of pain, Staff were not always familiar with the palliative
and management of the psychological impact of care approach or the equipment required to meet
death on other residents, residents’ families and residents care needs, for example, most were not
nursing home staff. Some respondents also re- aware of the principles of palliative care or the Liv-
quested training in relation to legal and ethical is- erpool Care of the Dying Pathway (Ellershaw and
sues. One commented: Wilkinson, 2003). Many were also unfamiliar with
‘‘Update on legal, ethical issues, e.g., living wills, the term ‘‘total pain’’ concept. Substantial gaps
withdrawing, withholding treatment, assessing pal- in nurse training and deficiencies in nursing knowl-
liative care services, talking to and observing palli- edge of palliative care have also been reported
ative care specialists’’ Res. 1 elsewhere (Ersek et al., 1999; Bradley et al.,
2001; Raudonis et al., 2002).
Most respondents requested that training was In this study, respondents reported lack of com-
delivered in-house, with guest lecturers from palli- petence to: assess a patient’s need for a syringe
ative care services, and attendance at information driver, care for a patient with a syringe driver
days at Hospice sites, also suggested. The primary in situ using recognised guidelines and some could
factors influencing attendance at a palliative care not identify the appropriate medication to use with
training programme were potential loss of pay, such equipment. Several authors have also identi-
time and remote location of the training. fied a lack of nursing knowledge and skills regarding
508 E. Whittaker et al.

pain and symptom management as a factor in pre- UK, which may limit the generalisability of its
venting optimal care (Ferrell et al., 1992; Gibbs, findings and therefore further research is required
1995). Like Froggatt (2000), the issue of syringe dri- to explore national trends.
ver usage was reported as being problematic, how-
ever, respondents’ lack of competency must be
linked to the scarcity of such equipment within Conclusion
the nursing home environment and lack of formal
training in this subject area. Palliative care is focused on quality of life issues
With regards to bereavement support most for people with advanced progressive disease by
respondents identified a gap in service provision means of pain relief and symptom control using a
with regards to formal support structures for resi- holistic approach. Such care is provided in a range
dents and staff members, to deal with the death of care settings such as hospice facilities, hospi-
of another resident. Only 30% of respondents in this tals, and in nursing homes. As more people end
study had obtained formal training in bereavement their lives in nursing homes, this are of care has
support; many noting that supporting residents’ increasing relevance. The caring behaviours of
families was stressful, as was dealing with their nursing home staff are critical elements in the
own emotions. This area needs to be addressed if experience of nursing home residents with pallia-
residents, relatives and nursing home staff in these tive care needs. This audit has shown deficiencies
settings are to have their bereavement needs met. in knowledge and skills in palliative care amongst
Such findings are reflective of Katz et al. (2001) re- registered nurses. There is an opportunity for
search, which reported a lack of training in com- improvement in nursing home care and it is recom-
munication skills and little access to training in mended that a palliative care educational-training
bereavement care in nursing homes. programme be considered.
Findings suggest the need for the development
of an educational programme for qualified staff,
focusing on enhancing palliative care in nursing
homes. The findings of this audit will be used to de- Acknowledgements
velop an palliative care educational programme for
registered nurses working in nursing home settings. The authors thank the nursing home for their par-
ticipation in this study and the Big Lottery fund
for funding this project.

Limitations
The present study was subject to a number of lim- References
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