Professional Documents
Culture Documents
Nurse
Education
Today
intl.elsevierhealth.com/journals/nedt
a
Northern Ireland Hospice, 71A Saintfield Road, Belfast, BT8 7HN, United Kingdom
b
University of Ulster, Institute of Nursing Research, School of Nursing, Shore Road,
Newtownabbey BT37 0QB, United Kingdom
c
Northern Ireland Hospice, 74 Somerton Road, Belfast BT15 3LH, United Kingdom
d
Northern Ireland Children’s Hospice, Horizon House, 18, 0’ Neill Road, Newtownabbey BT36 6WB,
United Kingdom
KEYWORDS Summary
Nursing home; Background: Palliative care is delivered in a number of settings, including nursing
Palliative care; homes, where staff often have limited training in palliative care.
Hospice Aim: We explored the level of palliative care knowledge among qualified staff deliv-
ering end-of-life care in nursing home settings, to inform the development of an
appropriate education and training programme.
Design: An audit of the educational needs assessment was performed using an anony-
mous postal questionnaire sent to 528 qualified nursing staff within 48 nursing homes.
Findings: In total, 227 questionnaires were returned giving a response rate of 43%.
Results indicated that less than half the sample had obtained formal training in the
area of pain assessment and management and less than a quarter had obtained training
in non-malignant conditions. Registered nurses in this study reported a lack of aware-
ness of palliative care principles or national guidelines.
Conclusion: Qualified nursing home staff agree that palliative care is a valuable
model for care in their setting. There are clear opportunities for improvement in nurs-
ing home care, based on education and training in palliative care. Results also support
* Corresponding author. Tel.: +44 028 90 366895; fax: +44 028 90 368202.
E-mail addresses: evelyn.whittaker@nihospicecare.com (E. Whittaker), wg.kernohan@ulster.ac.uk (W. George Kernohan), f.hasson@
ulster.ac.uk (F. Hasson), valerie.howard@nihospicecare.com (V. Howard), dorry.mclaughlin@nihospicecare.com (D. McLaughlin).
1
Tel.: +44 028 90 78 1836; fax: +44 028 90 79 6499.
2
Tel.: +44 028 90 366532; fax: +44 028 90 368202.
3
Tel.: +44 028 90 781836.
4
Tel.: +44 028 90 777635.
0260-6917/$ - see front matter c 2006 Elsevier Ltd. All rights reserved.
doi:10.1016/j.nedt.2006.01.004
502 E. Whittaker et al.
the need for enhanced liaison between nursing homes and specialist palliative care
services.
c 2006 Elsevier Ltd. All rights reserved.
Introduction Literature
Increasing numbers of people now spend the last In the UK ‘‘nursing homes’’ offer nursing and social
months or years of their life in a nursing home care to older people and ‘‘residential care homes’’
with chronic and progressive conditions, as well offer mainly social care. Within both types of
as suffering from multiple pathologies associated home, the General Practitioner (GP) and the Dis-
with older age. It is widely accepted that pallia- trict Nurse (DN) have traditionally provided most
tive care should be part of the care extended to end-of-life care. Today, some hospice services
patients who have a chronic progressive disease have been incorporated into nursing home care to
and for whom a cure is not possible (National provide palliative care for selected residents. How-
Council for Hospice and Specialist Palliative Care ever, specialist palliative care staff only become
Services, 1998; Addington-Hall and Altmann, involved in certain circumstances (Froggatt and
2000; Department of Health, 2000) regardless of Hoult, 2002) and have been found to be largely
care setting (National Institute for Clinical Excel- reactive, addressing immediate clinical needs,
lence, 2004). rather than providing comprehensive palliative
Recent regional policy (DHSSPS, 2000) has rec- care for all those with an incurable disease (Frogg-
ommended that all staff providing care in the inde- att et al., 2002; Froggatt and Hoult, 2002; Good-
pendent sector should have access to education in man et al., 2003). Therefore nursing home staff
palliative care and standards should be developed need to have impeccable general palliative care
to assure quality care. However, research indicates skills in order to meet the palliative care needs of
that nursing home residents have limited access to a large proportion of residents.
palliative and hospice care (Zerzan et al., 2000; Nonetheless, research has found that nursing
Strumpf, 2004). Although research reveals that homes do not always provide adequate end-of-life
nursing home staff regard palliative care as an care (Casarett et al., 2001). Pain and symptom
important part of their role (Wronska and Gozdek, management in nursing homes has been described
1994; Copp, 1994), evidence suggests, that they as inadequate (Stein and Ferrell, 1992; Institute
may be educationally unprepared to provide a high of Medicine, 1997; Bernabei et al., 1998; Won
level of end-of-life care (Shemmings, 1996; Ersek et al., 1999) with training required in syringe driver
et al., 1999; Raudonis et al., 2002). Indeed, con- usage (Froggatt, 2000). In addition, the persistence
cern has been expressed over the quality of care of attitudes, such as fear of addiction, has been re-
provided by homes’ own care staff (Avis et al., corded as a serious problem adversely affecting
1999; Katz and Peace, 2003). pain management and end-of-life care (Ferrell
While several UK-based projects have addressed et al., 1992; Gibbs, 1995). Zerzan et al. (2000) re-
palliative care education in nursing homes (Sidell ported that dying residents experience high rates
et al., 1997; Avis et al., 1999; Welton, 1999; Frogg- of untreated pain, additionally residents and their
att, 2000); none have been developed in Northern family members are isolated from social and spiri-
Ireland. Since nursing homes are an increasingly tual support.
important context for end of life care, it is reason-
able to anticipate growing demand for palliative
care in this setting. It is therefore essential to de- Training needs
fine nursing staff’s educational needs for palliative
care. This paper presents the findings of the first Nursing home staffing and training needs may be
stage of a audit which explores the level of pallia- similar to those identified in care of the elderly hos-
tive care knowledge among qualified staff deliver- pitals (Bennett, 1986), but concerns have been ex-
ing end-of-life care in nursing home settings in pressed over the level of training and skilled
one UK region, to inform the development of an nursing care in homes (Nazarko, 1994, 1996, 1999;
appropriate educational and training programme, Sone, 1997; Department of Health, 1999). Raudonis
to meet identified needs. et al. (2002) claimed that one of the most critical
The palliative care education needs of nursing home staff 503
challenges is the lack of education in palliative care the supportive care needs of residents at the end-
among qualified staff, arguing that nurses can only of-life (Hanvey, 1989; Counsel and Care, 1995;
practice what they know; their basic nursing educa- Shemmings, 1996). Such findings are confirmed by
tional programmes being the foundation for their Katz et al. (2001), who investigated the care of dy-
knowledge. Yet, recent studies have documented ing residents in residential, nursing and dual-regis-
deficiencies in end-of-life training in most nursing tered homes in England using a multi-method
schools (Ferrell et al., 1999; Lloyd-Williams and approach. They found the degree of understanding
Field, 2002). Mallory (2003) argues that this lack regarding palliative care varied among homes and
of education has been reflected in the level and staff and identified a lack of training in communi-
quality of end-of-life care provided to patients. In- cation skills and in particular little access to train-
deed, UK research suggests that the educational ing in bereavement care for staff.
needs of nursing home staff may be greater than Other studies suggest that lack of knowledge
those of clinicians in other settings for example, about providing specialised palliative care also
Gibbs (1995) found that nurses working in nursing contributes to family dissatisfaction and possible
homes were unlikely to have had continuing educa- conflicts with staff (Hanson et al., 1997). It is
tion on pain management and palliative care, when therefore not surprising that the education and
compared with nurses in hospital-based care of the training of staff in palliative care within care
elderly wards. One reason for this is that few care homes has been identified as one of the most
homes have an established budget for training. Katz important means of improving the quality of care
et al. (1999) noted that nursing home staff under- for the dying (Komaromy et al., 2000; Froggatt
standing of palliative care was over simplified and and Hoult, 2002; Nolan et al., 2003).
often limited to personal experience, viewing palli- Education of nursing staff has been shown to in-
ative care as technical and inappropriate for resi- crease knowledge, skills and improve patient out-
dents dying in the nursing home setting. comes (Ferrell et al., 1993; Grant et al., 1995;
Kenny, 2001; Strumpf, 2004). However, for pro-
grammes to be effective they must be based on
Palliative care in nursing homes an assessment of the learning needs of the partici-
pants, to ensure that new knowledge and skills are
A number of US studies have explored nursing home built upon the learners’ experiences and existing
staff experiences and needs in providing care of knowledge and skills (Ersek et al., 1999). This pa-
the dying in long term facilities (Ersek et al., per describes the learning needs of qualified nurses
1999; Bradley et al., 2001; Raudonis et al., 2002; in nursing homes with regards to palliative care, to
Stillman et al., 2005), all of which reported defi- inform the development of appropriate education
ciencies in nurses’ training and substantial gaps in and training.
knowledge of palliative care. Similar findings have
been reported in the UK, Froggatt (2005) expressed
concerns regarding inadequate resources especially
staffing levels and knowledge and claimed that Method
these factors may inhibit the ability of nursing
homes to introduce new palliative care practices. An audit was undertaken between June and July
In addition, a number of studies have reported spe- 2004. Ninety-one private nursing homes, located
cialist palliative care providers’ concerns about the within one health board area in Northern Ireland
absence of a palliative care approach and a lack of were invited to take part in the audit. In total,
resources required to meet the palliative care managers of 48 homes agreed to participate. Alto-
needs of residents in homes (Avis et al., 1999; gether the 48 nursing homes at the time of data
Hirst, 2004). Froggatt and Hoult (2002) employed collection employed approximately 528 qualified
a postal survey of 730 clinical nurse specialists’ staff. The majority of the homes were group
perceptions of their educational and care deficits homes, providing care to a mixture of residents,
in nursing home settings. Respondents identified including physical disablement, elderly mentally
several aspects of palliative care practice that ill, learning disabilities and terminal care. Most
could be addressed in educational programmes, of the residents in the homes were over 65 years
such as: syringe driver use, pain and symptom con- of age. The number of beds in each home ranged
trol, communication skills, bereavement skills and from 20–70, the majority having more than 35
strategies for working with dying patients. beds. All managers expressed a commitment to
Previous UK studies, based on a small number of provide a high level of palliative care to their
homes, found that staff felt unqualified to meet residents.
504 E. Whittaker et al.
Table 1 Respondents demographics showing a Table 3 Formal training had been undertaken by
reasonable spread of age, experience and seniority many respondents
Demographics Frequency Percentage Educational areas Frequency Percentage
Respondents age Pain assessment 81 36
22–30 32 14 Pain management 94 41
31–40 68 30 Assessment of other 82 36
41–50 63 28 symptoms
51–60 60 26 Nausea and vomiting 90 40
Missing 4 2 Other gastro-intestinal 86 38
symptoms, e.g., bowel
Position
obstruction/dysphagia
Matron/nurse manager 22 10
Constipation 106 47
Staff nurse 155 68
Oral problems 93 41
Enrolled nurse 19 8
Shortness of breath 98 43
Other 29 13
Restlessness 86 38
Missing 2 1
Fatigue/cachexia 67 29
Years of experience as qualified nurse Communication issues 87 38
Less than 1 yr 7 3 Care in the last days 87 38
1–5 yr 23 10 of life
6–10 yr 39 17 Nutrition and hydration 88 39
11–15 yr 34 15 issues at the end of life
16–20 yr 32 14 Non-malignant conditions 52 23
21 plus 86 38 Multidisciplinary 83 37
Adaptation 1 0.4 team working
Missing 5 2 Bereavement support 64 28
few registered nurses had undertaken syringe dri- Respondents acknowledged the lack of availabil-
ver training. Consequently these devices were ity to formal counselling linked to the nursing
rarely used and residents had to be referred to a home for residents and staff members. Although
District Nurse or Specialist Palliative Care Service. some indicated that counselling could be gained
Free comments regarding syringe-driver illustrate from pastoral services if required, it was
this: acknowledged that a system of support or an
established link nurse system for qualified staff
‘‘Would be provided by palliative care team or Dis-
would be beneficial. When asked about this, com-
trict Nurses, none in the home’’ Res. 113
ments included:
‘‘I know that this can be obtained through the GP
and District Nurse or Macmillan Nurses but we do ‘‘None – nothing formal although all staff endeav-
not have assess to one in the nursing home’’ Res. our to offer each other support’’ Res. 52
77 ‘‘Many benefit from staff training in bereavement
counselling with access to outside counselling ser-
Many respondents, recorded deficits in knowl-
vices’’ Res. 1
edge and skills required to effectively use this
‘‘ . . . if a member of staff could develop counselling
equipment.
role within the home or referral system to outside
agency’’ Res. 29
Family care: bereavement support Some respondents pointed out the need for
unqualified staff to receive training in this area as
Most respondents felt that they were adequately they were seen as developing close relationships
prepared to speak to relatives about any planned with residents and therefore would benefit from
future management of their loved one; many some form of bereavement support.
recognised that it was much easier to talk to a
resident or his/her family if they had built up a
relationship with them. Nevertheless, for some Awareness of palliative care concepts
nurses, this was recognised as being emotionally
draining and the cause of stress. Many nursing homes were supported by a range of
Some respondents believed that their wealth of other health care professionals in the delivery of
practical experience and attending additional palliative care such as the GP, DN, Hospice teams
training sessions on bereavement counselling had and Macmillan nurses. Although the majority of
put them in a better position with regards to know- respondents were aware of the role of the GP, DN
ing how to respond and handle such situations. Two and Hospice Specialist Nurse, within their nursing
staff said: home, 39% (n = 86) stated that they were not aware
of written information available within the home
‘‘During the last 12 years I have gained more confi-
regarding referral to specialist services.
dence in discussing issues relating to death and
When asked if they were aware of the Liverpool
dying with relatives’’. Res. 18
Care of the Dying Pathway, which is being imple-
‘‘I did a brief bereavement course about 6 years
mented nationally within the UK, 76% of respon-
ago and also my vast experience with dying has
dents (n = 155) stated that they were not aware.
helped me greatly’’. Res. 146
When respondents were questioned about what
Others, who worked night-duty, felt inade- they understood by the term palliative care re-
quately informed about the residents and had no sponses revealed that 59% (n = 119) were not famil-
relationship with the resident’s family. iar with the principles of palliative care. Many
When asked about information available within respondents mentioned that palliative care in-
the homes for bereaved relatives, 20% (n = 46) of volved ‘‘the care of a resident at the end of life’’,
respondents indicated that information was given ‘‘providing care, not necessarily cure’’ and focused
orally to relatives along with emotional support at on the management of symptoms and pain control.
the time of death. The majority of respondents However, fewer respondents recorded that it also
were not aware of whether or not written informa- involved holistic supportive care including the care
tion was available for this group within their homes. of the resident’s family circle.
Some staff had been involved in the care of a Qualitative comments indicated that many
resident for a number of years and developed an respondents believed residents would require palli-
attachment. Staff strategies to deal with grief in- ative care nursing at the end-of-life, when they
cluded attendance at funerals and gaining sup- were deteriorating, at the stage when pain control
port from colleagues and management figures. is required. As stated:
The palliative care education needs of nursing home staff 507
pain and symptom management as a factor in pre- UK, which may limit the generalisability of its
venting optimal care (Ferrell et al., 1992; Gibbs, findings and therefore further research is required
1995). Like Froggatt (2000), the issue of syringe dri- to explore national trends.
ver usage was reported as being problematic, how-
ever, respondents’ lack of competency must be
linked to the scarcity of such equipment within Conclusion
the nursing home environment and lack of formal
training in this subject area. Palliative care is focused on quality of life issues
With regards to bereavement support most for people with advanced progressive disease by
respondents identified a gap in service provision means of pain relief and symptom control using a
with regards to formal support structures for resi- holistic approach. Such care is provided in a range
dents and staff members, to deal with the death of care settings such as hospice facilities, hospi-
of another resident. Only 30% of respondents in this tals, and in nursing homes. As more people end
study had obtained formal training in bereavement their lives in nursing homes, this are of care has
support; many noting that supporting residents’ increasing relevance. The caring behaviours of
families was stressful, as was dealing with their nursing home staff are critical elements in the
own emotions. This area needs to be addressed if experience of nursing home residents with pallia-
residents, relatives and nursing home staff in these tive care needs. This audit has shown deficiencies
settings are to have their bereavement needs met. in knowledge and skills in palliative care amongst
Such findings are reflective of Katz et al. (2001) re- registered nurses. There is an opportunity for
search, which reported a lack of training in com- improvement in nursing home care and it is recom-
munication skills and little access to training in mended that a palliative care educational-training
bereavement care in nursing homes. programme be considered.
Findings suggest the need for the development
of an educational programme for qualified staff,
focusing on enhancing palliative care in nursing
homes. The findings of this audit will be used to de- Acknowledgements
velop an palliative care educational programme for
registered nurses working in nursing home settings. The authors thank the nursing home for their par-
ticipation in this study and the Big Lottery fund
for funding this project.
Limitations
The present study was subject to a number of lim- References
itations for example, from the 91 private nursing
homes’ invited to take part in the research; it is Addington-Hall, J., 2000. Care of the Dying and the NHS. The
Nuffield Trust, London.
unclear why only 48 homes agreed to participate.
Addington-Hall, J., Altmann, D., 2000. Which terminally ill
In addition the low response rate to the study cancer patients in the United Kingdom receive care from
postal questionnaire means that the results re- community specialist palliative care nurses? J. Adv. Nurs. 32
ported must be treated with some caution. There 799–806.
was no systematic way of encouraging all staff to Avis, M., Greening Jackson, J., Cox, K., Miskella, C., 1999.
Evaluation of a project providing community palliative care
complete the survey therefore findings may be a
support to nursing homes. Health Soc. Care Comm. 7 (1), 32–
result of biased sampling since the most experi- 38.
enced and confident of staff may have chosen to Bennett, J., 1986. Private nursing homes: contribution to long
respond. In addition, it is unclear whether staff stay care of the elderly in Brighton Health District. Br. Med.
knowledge and confidence in their abilities is J. 293, 867–870.
Bernabei, R., Gambassi, G., Lapane, K., Landi, F., Gatsonis, C.,
based on actual expertise, as no research was
Dunlop, R., Lipsitz, L., Steel, K., Mor, V. for the SAGE Study
undertaken to observe staff in clinical practice. Group, 1998. Management of pain in elderly patients with
The use of questionnaires to study this topic is cancer. JAMA 279, 1877–1882.
also problematic as it they only provide a brief in- Bradley, E., Cherlin, E., McCorkle, R., Fried, T., Kasl, S.,
sight into the problem being investigated and Cicchetti, D., Johnson-Hurzeler, R., Horwitz, S., 2001.
Nurses’ use of palliative care practices in the acute care
therefore further research should consider the
setting. J. Prof. Nurs. 17 (1), 14–22.
use of other qualitative methods to identify gaps Burns, N., Grove, S.K., 1995. The Practice of Nursing Research:
in training and practice. Furthermore this is a Conduct, Critique and Utilisation. W.B. Saunders Company,
small scale study conducted in one area of the Philadelphia.
The palliative care education needs of nursing home staff 509
Casarett, D.J., Hirschman, K.B., Henry, M.R., 2001. Does Katz, J., Sidell, M., Komaromy, C., 2001. Death in homes:
hospice have a role in nursing home care at the end of life? bereavement needs of residents, relatives and staff. Int. J.
J. Am. Geriatr. Soc. 49 (11), 1493–1498. Palliative Nurs. 6 (6), 274–279.
Copp, G., 1994. Palliative care nursing education: a review of Kenny, L., 2001. Education in palliative care: making a different
research findings. J. Adv. Nurs. 19, 552–557. to practice? Int. J. Palliative Nurs. 7 (8), 401–407.
Counsel and Care, 1995. Last Rights. Counsel and Care, London. Komaromy, C., Sidell, M., Katz, J.T., 2000. The quality of
Department of Health, 1999. Fit for the future? National terminal care in residential and nursing homes. Int. J.
required standards for residential and nursing homes for Palliative Nurs. 6 (4), 192–200.
older people. Department of Health, London. Lloyd-Williams, M., Field, D., 2002. Are undergraduate nurses
Department of Health, 2000. The NHS Cancer Plan. DOH, taught palliative care during their training? Nurs. Educ.
London. Today 22, 589–592.
Department of Health, Social Services and Public Safety, 2000. Mallory, J.L., 2003. The impact of a palliative care educational
Partnerships in Caring: Standards for Service. DHSSPS, Belfast. component on attitudes towards care of the dying in
Ellershaw, J., Wilkinson, S., 2003. Care of the Dying. A Pathway undergraduate nursing students. J. Prof. Nurs. 19 (5), 305–
to Excellence. Oxford University Press, Oxford. 312.
Ersek, M., Kraybill, B.M., Hansberry, J., 1999. Investigating the National Council for Hospice and Specialist Palliative Care
educational needs of licensed nursing staff and certified Services, 1998. Reaching out: specialist palliative care for
nursing assistants in nursing homes regarding end-of-life adults with non-malignant diseases. Occasional paper 14,
care. Am. J. Hosp. Palliative Care 16 (4), 573–582. London.
Ferrell, B.R., McCaffery, M., Rhiner, M., 1992. Pain and National Council for Palliative Care, 2005. Improving Palliative
addiction: an urgent need for changing nursing education. Care Provision for Older People in Care Homes. Focus on Care
J. Pain. Symp. Manage. 7, 117–124. Homes, London.
Ferrell, B.R., Grant, M., Richey, K.J., Ropchan, R., Rivera, L.M., National Institute for Clinical Excellence, 2004. Supportive and
1993. The pain resource nurse training program: a unique palliative care for people with cancer NICE. <http://
approach to pain management. J. Pain. Symp. Manage. 8, www.nice.org.uk/page.aspx?o=110005> (assessed 3.03.05).
549–556. Nazarko, L., 1994. Nursing homes: past, present and future.
Ferrell, B., Virani, R., Grant, M., 1999. Review of communica- Nurs. Stand. 8, 36–39.
tion and family caregiver content in nursing texts. J. Hospice Nazarko, L., 1996. Nursing home nurses need support to update
Palliative Nurs. 1, 97–107. skills. Nurs. Times 92, 38–40.
Froggatt, K., 2000. Palliative care education in nursing homes. Nazarko, L., 1999. Quality of care in nursing homes. Nurs.
Abridged reports produced for Macmillan Cancer relief. Manage. 5, 17–20.
Macmillan Cancer relief, London. Nolan, M., Featherston, J., Nolan, J., 2003. Palliative care
Froggatt, K.A., Hoult, L., 2002. Developing palliative care philosophy in care homes: lessons from New Zealand. Br. J.
practise in nursing and residential care homes: the role of Nurs. 12 (16), 974–979.
the clinical nurse specialist. J. Clin. Nurs. 11 (6), 802–808. Parahoo, A.K., 1997. Nursing Research: principles, process and
Froggatt, K.A., Poole, K., Hoult, L., 2002. The provision of issues. Macmillan, Great Britain.
palliative care in nursing homes and residential care homes: Pope, C., Mays, N., 1995. Reaching the parts other methods
a survey of clinical nurse specialist work. Palliative Med. 16 cannot reach: an introduction to qualitative methods in
(6), 481–487. health and health services research. Br. Med. J. 311, 42–
Froggatt, K., 2005. Developing end-of-life care for older people 45.
in care homes. Int. J. Palliative Nurs. 11 (11), 560. Raudonis, B.M., Kyba, F., Kinsey, T., 2002. Long-term care
Gibbs, G., 1995. Nurses in private nursing homes: a study of their nurses’ knowledge of end-of-life care. Geriatr. Nurs. 23 (6),
knowledge and attitudes to pain management in palliative 296–301.
care. Palliative Med. 9, 245–253. Shemmings, Y., 1996. Death, Dying and Residential Care. Open
Goodman, C., Woolley, R., Knight, D., 2003. District nurse University Press, Buckingham.
involvement in providing palliative care to older people in Sidell, M., Katz, J., Komaromy, C., 1997. Death and dying in
residential care homes. Int. J. Palliative Nurs. 9 (12), 521– residential and nursing homes for older people: examining
527. the care for palliative careReport for the Department of
Grant, M., Ferrell, B.R., Rivera, L.M., Lee, J., 1995. Unsched- Health. Open University, Milton Keynes.
uled readmissions for uncontrolled symptoms. A health care Sone, K., 1997. Long hours and dirty linen. Nurs. Times 93, 12–13.
challenge for nurses. Nurs. Clin. N. Am. 30, 673–682. Stein, W., Ferrell, B., 1992. Pain in the nursing home. Clin.
Hanson, L.G., Danis, M., Garrett, J., 1997. What is wrong with Geriatr. Med. 12, 601–613.
end of life care? Opinions of bereaved family members. J. Stillman, D., Strumpf, N., Capezuti, E., Tuch, H., 2005.
Am. Geriatr. Soc. 45, 1339–1344. Staff Perceptions concerning barriers and facilitators to
Hanvey, C., 1989. Death in residence. In: Philpot, T. (Ed.), Last end-of-life care in nursing home. Geriatr. Nurs. 26 (4),
Things. Reed Publishing/Community Care, London. 259–264.
Hirst, P., 2004. Establishing specialist palliative care provision Strumpf, N.E., 2004. Palliative care in nursing homes: advance
for care homes. Cancer Nurs. Practice 3 (2), 29–32. directives and events at the end of life. Presented at the 15th
Institute of Medicine, 1997. Approaching death: Improving Care International Nursing Research Congress Sigma Theta Tau
at the End of Life. National Academy Press, Washington, DC. International, July 22–24, 2004, Building evidence for
Katz, J.S., Peace, S.M., 2003. Introduction. In: Katz, J.S., innovative models of geriatric care: the experience of the
Peace, S.M. (Eds.), End-of-Life in Care Homes: A Palliative Hartford Centers of Geriatric Nursing Excellence in the US.
Care Approach. Oxford University Press, Oxford, pp. 1–14. Available from: <http://stti.confex.com/stti/inrc15/tech-
Katz, J., Komaromy, C., Sidell, M., 1999. Understanding palli- program/paper_18304.htm>.
ative care in residential and nursing homes. Int. J. Palliative Weber, R.P., 1990. Basic Content Analysis, second ed. Sage,
Care 5 (2), 58–64. Beverley Hills, CA.
510 E. Whittaker et al.
Welton, M., 1999. Nursing initiatives. Palliative Care 7 (4), 35– Wronska, I., Gozdek, N., 1994. Aims and ethics of palliative care
36. – the views of a selected group of Polish nursing students.
Won, A., Lapane, K., Gambassi, G., Bernabei, R., Mor, V., Scand. J. Caring Sci. 8, 25–27.
Lipsitz, L.A., 1999. Correlates and management of non- Zerzan, J., Stearns, S., Hanson, L., 2000. Access to
malignant pain in the nursing home. J. Am. Geriatr. Soc. 47 palliative care and hospice in nursing homes. JAMA 284,
(8), 936–942. 2489–2494.