Professional Documents
Culture Documents
149–182
doi:10.1093/medlaw/fwp001
Advance Access Publication May 6, 2009
I. INTRODUCTION
For most people, the idea that anyone would wish to have a perfectly
healthy leg amputated must seem bizarre. Such people exist. In 2000
there was a media furore, when it was disclosed that a Scottish
surgeon had operated upon two adult male patients reportedly suffering
from a rare form of a psychological condition known as body dys-
morphic disorder (BDD), in each case amputating a healthy leg. Since
then, the question of whether such surgery is ethically or legally permiss-
ible has been a matter of debate. The subject raises issues as to the extent
to which it is proper to treat adults with psychiatric or psychological dis-
orders with radical surgery, particularly where the appropriate diagno-
sis and treatment of the underlying disorder is uncertain or disputed; the
limitations which ought to be placed upon consent as a means of render-
ing surgery lawful and whether the criminal law ought to have a place in
controlling operations provided by qualified surgeons upon competent
adults with their consent.
Lecturer, Queen Mary University of London. I am grateful to Professors Emily
Jackson, Peter Alldridge, David Ormerod and the anonymous reviewers for
their constructive comments upon earlier drafts of this article. Errors and
omissions that remain are mine.
1
This description of BDD is based upon the diagnostic criteria set out in: Amer-
ican Psychiatric Association, Diagnostic and Statistical Manual of Mental Dis-
orders (4th edn, text revision Arlington, 2000) (‘DSM-IV-TR’) 507–10. BDD
is classified as a Somatoform Disorder, in which: ‘ . . . the presence of physical
symptoms . . . suggest a general medical condition . . . not fully explained by a
general medical condition, by the direct effects of a substance, or by
another mental disorder’, at 485.
The DSM-IV-TR is a manual that provides the standard classification of
mental disorders used by mental health professionals in the USA: http://
Medical Law Review # The Author [2009]. Published by Oxford University Press; all rights reserved.
For Permissions, please email: journals.permissions@oxfordjournals.org
150 M EDICAL L AW R EVIEW [2009]
Medical or surgical treatment may help the condition, but it may only
provide short-term relief, with the patient either re-focusing
concerns upon the perceived defect, sometimes with increased intensity
perhaps, or becoming preoccupied with a new feature of their body.10
According to approved diagnostic criteria,11 a diagnosis of BDD is
only to be made where the patient’s preoccupation with their body
cannot be better accounted for by another mental disorder, for
example, anorexia nervosa. It is not known precisely how common
BDD is within the general community, but preliminary data
suggest that BDD may affect 1 – 2% of the general population to a
greater or lesser extent.12 In the context of cosmetic surgery and derma-
tological treatment settings, rates of BDD have been reported as from 6
to 15%.13
and Menard concluded that BDD sufferers have high rates of suicide ideala-
tion and attempts: KA Phillips and W Menard, ‘Suicidality in Body Dys-
morphic Disorder: A Prospective Study’ (2006) 163 American Journal of
Psychiatry 1280.
10
Phillips suggests that two-thirds of BDD patients who had surgery or (non-
psychiatric) medical treatment reported that their condition was unchanged
or had deteriorated: above n 2, at 288.
11
DSM-IV-TR, above n 1, at 510.
12
Phillips, above n 2, at 21; above n 3 at 180.
13
DSM-IV-TR, above n 1, at 509.
14
Sergei Pankejeff. Discussed in S Freud The Case of the Wolf-man: From the
History of an Infantile Neurosis (Arian Press 1993).
15
Phillips, above n 2, at 19. The same may be said of healthy limb amputations:
C.f. J Johnston and C Elliott, ‘Healthy Limb Amputation: Ethical and Legal
Aspects’ (2002) 2 Clinical Medicine 431, at 431: who refer to a case
(described by Sue in 1785) of an Englishman who offered a French surgeon
100 guineas to amputate his healthy leg. When the surgeon declined, the Eng-
lishman forced him to conduct the amputation at gunpoint. Subsequently the
surgeon received payment for the operation of 250 guineas, together with a
letter in which the former patient stated: ‘You have made me the happiest
of all men, by taking away from me a limb which put an invincible obstacle
to my happiness’.
152 M EDICAL L AW R EVIEW [2009]
the left leg of a 39-year-old English man16, who had wished to have his
leg amputated since he was 8 because he did not feel it like a part of him,
felt unable to bear life with his left leg whole and intact, and who had
contemplated suicide.17 This was followed by a further amputation in
1999 upon a 71-year-old patient from Germany, who had felt that he
was ‘in the wrong body and . . . should have a leg amputated’18 since
the age of 14. Both patients had previously unsuccessfully sought ampu-
tation surgery at other hospitals in Europe. Both were reportedly very
pleased with the outcome of their operations.19 Robert Smith himself
described the surgery as: ‘ . . . the most satisfying operation I have ever
performed’.20
Following these two operations, Smith received further requests for
healthy limb amputation and had six people waiting for surgery, includ-
ing an American woman whose desire was to have both of her legs
amputated above the knee, and Dr Gregg Furth, a Jungian psychoana-
lyst from New York, who had wanted to have an above knee amputa-
tion on his right leg for many years21 and who had been approved for
such surgery by psychiatrists and Smith.22 However, in early 2000,
the Forth Valley Acute Hospitals NHS Trust, which had taken over
control of the Falkirk and District Royal Infirmary, refused permission
for the operation to take place at the hospital.23 A subsequent appli-
cation by Smith to conduct an amputation at a private hospital in Stir-
ling was also refused, partly because of the widespread public concern
about such surgery. 24 Robert Smith remains one of a very few surgeons
in the world who are willing to conduct healthy limb amputations, but
he has been effectively barred from conducting such operations in the
16
See e.g. P Taylor, ‘My Left Foot Was not Part of Me’ The Observer 6 Febru-
ary 2000, at 14; K Scott, ‘Voluntary Amputee Ran Disability Site’ The Guar-
dian 7 February 2000; S. English, ‘Amputee Surgeon “Was not Duped’” The
Times 7 February 2000.
17
Taylor, ibid.
18
BBC, ‘Horizon: Complete Obsession’ 17 February 2000, Programme transcript
available at http://wwwbbc.co.uk/science/horizon/1999/obsession_script.shtml
accessed 9 July 2006; c.f. Taylor, above n 17, and Melody Gilbert’s documen-
tary, ‘Whole’, (2003).
19
G Seenan, ‘Healthy Limbs Cut Off at Patients’ Request’ The Times 1 Febru-
ary 2000, p. 9. Mr Smith waived his fee for the operations, but the hospital
was paid £1,400 for the first operation and £6,600 for the second: Taylor,
above n 16.
20
G Harris, ‘Surgeon Content at Removal of Healthy Leg’ The Times
1 February 2000.
21
Dr Furth had previously seriously contemplated resorting to illegal surgery:
see People v Brown (2001) 91 Cal App 4th 256.
22
BBC, above n 18.
23
BBC News, ‘Trust Bans ‘Private’ Amputations’ 1 February 2000: http://
news.bbc.co.uk/1/hi/scotland/627183.stm accessed 27 February 2006.
24
S English, ‘Hospital Blocks Limb Surgeon’ The Times 26 August 2000.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 153
UK, because no hospital will permit the surgery to take place on their
premises.25
25
C Fracassini, ‘Call for NHS Amputations of Healthy Limbs’ Sunday Times
23 November 2003; R Henig, ‘At War with Their Bodies, They Seek to
Sever Limbs’ New York Times 22 March 2005.
26
C Dyer, ‘Surgeon Amputated Healthy Limbs’ (2000) 320 British Medical
Journal 332; S Ramsay, ‘Controversy Over UK Surgeon Who Amputated
Healthy Limbs’ (2000) 355 The Lancet 332.
27
See e.g. BBC Horizon, above n 18; Taylor, above n 17; S McGinty and
S Leonard, ‘Secret World of Would-Be Amputees’ Sunday Times 6 February
2000; T Stuttaford, ‘A Craving for Change Can Be Obsessive’ 3 February
2000 The Times.
28
Harris, above n 20.
29
MB First, ‘Desire for Amputation of a Limb: Paraphilia, Psychosis or a New
Type of Identity Disorder’ (2005) 35 Psychological Medicine 919, at 920.
30
J Money, R Jobaris and G Furth, ‘Apotemnophilia: Two Cases of Self
Demand Amputation as a Paraphilia’ (1977) 13 Journal of Sex Research 115.
31
DSM-IV-TR, above n 1, at 566.
32
See e.g. TN Wise and RC Kalyanam, ‘Amputee Fetishism and Genital Muti-
lation: Case Report and Literature Review’ (2000) 26 Journal of Sex &
Marital Therapy 339.
154 M EDICAL L AW R EVIEW [2009]
fetishism is. From personal experience and the limited medical literature
upon the topic, one might have concluded that the disorder is rare.
However, internet searches upon the topic reveal something of a com-
munity built around the subject of amputee fetishism, ranging from
information websites,33 to chat rooms,34 to sites where pornography
relating to amputees is readily available.35 This community has even
developed its own terms to categorise interested parties: ‘DPWs’ or
‘devotees’, ‘pretenders’ and ‘wannabes’. ‘Devotees’ are non-disabled
people who have a special interest in and/or are sexually attracted to
amputees.36 ‘Pretenders’ are non-disabled people who act as if they
are disabled by using devices such as wheelchairs and crutches, so
that they ‘feel’ disabled and, if such behaviour is conducted in public,
so that others will see them as being disabled.37 ‘Wannabes’ are those
who wish to become disabled, usually by becoming paraplegic or
by having a limb amputated.38 Clearly it is this last group that is
most relevant when one is considering the topic of healthy limb
amputation.
The belief that there is a link between sexual desire and the desire to
become an amputee has been contested in recent years, particularly by
Robert Smith and his associates, who argue that apotemnophilia is
not about sexual gratification, but about a desire and need to achieve
a physical body that reflects what they firmly believe to be their true
identity: a body that is ‘complete’ with an amputation.39 Smith has
33
E.g. Amputee website: http://www.amputee-online.com; OverGround: http://
www.overground.be/ accessed 5 June 2008.
34
C.f. RL Bruno, ‘Devotees, Pretenders and Wannabes: Two Cases of Factitious
Disability Disorder’ (1997) 13 Journal of Sexuality and Disability 243;
C Elliott, Better Than Well: American medicine Meets the American
Dream (WW Norton 2003) 216 –7. The internet discussion listserv which
Elliott names: ‘amputee-by-choice’, appears to have moved or to have been
closed down.
35
C.f. Wise and Kalyanam, above n 32, at 342.
36
A condition known as ‘acrotomophilia’: Elliott, above n 34, at 209–10. C.f.
Bruno, above n 34; A Kafer, ‘Amputated Desire, Resistant Desire: Female
Amputees in the Devotee Community’ (2000) Disability World June–July,
http://www.disabilityworld.org/June-July2000/Womens/SDS.htm accessed
14 August 2006.
37
Bruno, above n 34.
38
Ibid.
39
GM Furth and R Smith, Amputee Identity Disorder: Information, Questions,
Answers, and Recommendations About Self-Demand Amputation (First
Books Library 2002) 71; R Dotinga, ‘Out on a Limb’ (2000) Salon.com,
http://dir.salon.com/health/feature/2000/08/29/amputation/index.html
accessed 13 October 2003. This does not mean that, in the case of individuals
for whom identity is the motive for seeking amputation, there is no sexual
element to their wish, since sexuality is an inherrent part of identity: ‘what
you are attracted to (or not attracted to) is part of who you are’. Elliott,
above n 34.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 155
40
S Leonard, ‘Surgeon Makes Fresh Plea on Amputations’ Sunday Times
28 January 2001.
41
Dr First, a psychiatrist at the University of Columbia, was the editor of
DSM-IV-TR and is working on the next edition DSM-V.
42
MB First, ‘Desire for Amputation of a Limb: Paraphilia, Psychosis or a New
Type of Identity Disorder’ (2005) 35 Psychological Medicine 919, at 926.
First concedes that the study sample size was small (52) and that therefore
his results can only be regarded as preliminary. It should be noted that
sexual arousal, even where not the primary motivation for the desire for
amputation, was still a relevant factor: for 52% of the subjects sexual
desire was given as a secondary reason for amputation: Ibid., at 922.
43
Ibid., at 926.
44
Furth and Smith, above n 39, at 5.
45
C.f. AA Lawrence, ‘Clinical and Theoretical Parallels Between Desire for
Limb Amputation and Gender Identity Disorder’ (2006) 35 Archives of
Sexual Behavior 263. According to DSM-IV-TR the diagnostic features of
GID are:
(A) A strong and persistent cross-gender identification (not merely a desire
for any perceived cultural advantages of being the other sex) . . .
(B) Persistent discomfort with his or her sex or sense of inappropriateness in
the gender role of that sex . . .
(C) The disturbance is not concurrent with a physical intersex condition.
(D) The disturbance causes clinically significant distress or impairment in
social, occupational, or other important areas of functioning.
Above n 1, at 581.
46
Furth and Smith, above n 39, at 87.
156 M EDICAL L AW R EVIEW [2009]
47
Furth and Smith, ibid., at 87–9. They have drafted diagnostic criteria for this
disorder:
(A) There must be evidence of a strong and persistent disability identifi-
cation, which is the desire to be, or the insistence that one is, internally,
disabled.
(B) The disability identification must not merely be a desire for any perceived
cultural advantages of living with a disability. There must also be evi-
dence of persistent discomfort about living as an able-bodied person,
or a sense of inappropriateness in that same role.
(C) The diagnosis is not made if the condition is better explained by another
medical or psychiatric diagnosis.
(D) To make the diagnosis, there must be evidence of clinically significant
distress or impairment in social, occupational, or other important
areas of functioning.
According to this definition, both criteria A and B must be present for a diag-
nosis of BID be made. The DSM-IV’s description of GID is used as a template
for these draft criteria.
48
First, above n 42, at 926.
49
Ibid. C.f. The BIID website: http://www.biid.org/BIID%20Basics.htm
(accessed August 14 2006).
50
See e.g. the website http://www.BIID.org, set up by ‘a group of medical,
psychological and psychiatric professionals committed to increasing the
knowledge about this disorder’ accessed 4 March 2009; ED Sorene,
C Heras-Palou and FD Burke, ‘Self-amputation of a Healthy Hand: a
Case of Body Integrity Identity Disorder’ (2006) 31 Journal of Hand
Surgery 593.
51
See e.g. http://biid-info.org, a website ‘about BIID, by people who have BIID’
(accessed March 4 2009). For the purposes of this article, I will hereafter use
the term BIID as a label for the condition.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 157
52
JM Bensler and DS Paauw, ‘Apotemnophilia Masquerading as Medical Mor-
bidity’ (2003) 96 Southern Medical Journal 674; RM Henig, above n 25.
53
Bruno, above n 34, at 27. This diagnosis suggests that psychotherapy is an
appropriate way of treating the disorder, so that the patient can develop
awareness of their condition, acknowledge that they have not received the
love and attention that they have desired, and end their disability-related
obsessions and compulsions (at 258). C.f. A Bridy, ‘Confounding Extremi-
ties: Surgery at the Medico-ethical Limits of Self-modification’ (2004) 32
Journal of Law, Medicine & Ethics 148, at 150. Bayne and Levy suggest
that, based on the limited data available, Bruno is wrong, and the desire
for amputation is not reduced by psychotherapy: T Bayne and N Levy,
‘Amputees by Choice: Body Integrity Identity Disorder and the Ethics of
Amputation’ (2005) 22 Journal of Applied Philosophy 75, at 84.
54
Lawrence, above n 45, at 269.
55
Ibid.
56
R Smith and K Fisher, ‘Healthy Limb Amputations: Ethical and Legal
Aspects’ (2003) 3 Clinical Medicine 188.
57
See e.g. Bayne and Levy, above n 53, at 76– 7, who note that there are numer-
ous instances in which a person’s physical body and their body image may
differ. E.g. children born without a limb may experience phantom limb sen-
sations, and it has been suggested that: ‘ . . . perception of our limbs is ‘hard-
wired’ into our brain and that sensations from the limbs become mapped
onto these brain networks as we develop’. J. Cole, ‘Phantom limb pain’
(2006) Wellcome Trust website: http://wellcome.ac.uk/en/pain/microsite/
medicine2.html accessed 14 September 2006. C.f. Bridy, above n 53, at 151.
58
VS Ramachandran and P McGeoch, ‘Can Vestibular Caloric Stimulation Be
Used to Treat Apotemnophilia?’ (2007) 69 Medcial Hypotheses 250.
59
Ibid.
60
Ibid. They have suggested that parallels may be drawn between BIID and a
condition called somatoparaphrenia, which may occur following a stroke
in the right parietal region, and which leads to the patient denying ‘ownership
of a limb on the left side of his body—typically the arm’, (Ibid., at 251) and
158 M EDICAL L AW R EVIEW [2009]
be required to confirm this. The truth is that, although there are various
theories with regard to this condition, there is a long way to go before it
is properly understood.61 Although Smith contends that study of
patients with BIID who have undergone elective amputation indicates
that surgery is the only truly successful treatment for the condition,62
these studies are on a very small scale, and vulnerable to criticism on
the ground of bias, since the subjects may well be self-selected and
there is a lack of any control group.63 This may be contrasted with
the published studies of patients who have been diagnosed as suffering
with BDD, which suggest that surgery, although commonly sought by
such patients, is generally an unsuccessful treatment for the disorder,64
and that treatments such as cognitive behavioural therapy and the
administration of selective serotonin reuptake inhibitors65 are much
more effective.66
73
This is significant when considering the question of capacity because the
courts have emphasised that a patient’s capacity must be ‘commensurate
with the gravity of the decision . . . The more serious the decision, the
greater the capacity required.’ Re T (Adult: Refusal of Treatment) [1993]
Fam 95 at 115 –116, per Lord Donaldson MR; c.f. Re MB (Medical Treat-
ment) [1997] 2 FLR 426 (CA) 436 –7 per Butler-Sloss LJ.
74
A Grubb, Principles of Medical Law, 2nd edn. (Oxford University Press,
2004) para. 3.81. C.f. BMA, Medical Ethics Today (2nd edn BMJ Books
2004) 94.
75
Mental Capacity Act 2005, (‘MCA’), s.1(2). This puts in statutory terms the
common law presumption of capacity: c.f. In re T (Adult: Refusal of Treat-
ment), above n 73.
76
Law Commission, No. 231, Mental Incapacity (1995) 3.5.
77
In the Matter of MM (an adult) [2007] EWHC 2003 (Fam) at [64] per
Munby J.
78
In the Estate of Park, Park v Park [1954] P 112.
79
Above, n 77.
80
See e.g. In re T (Adult: Refusal of Treatment), above n 74. C.f. Re B (Consent
to Treatment: Capacity) [2002] 1 FLR 1090; P Bartlett, Blackstone’s Guide
to the Mental Capacity Act 2005 (2nd edn Oxford University Press 2008)
33–34, 47.
81
Mental Capacity Act 2005, Code of Practice (‘CoP’), (2007), paras 4.24.10.
C.f. Re C (Adult: Refusal of Treatment) [1994] 1 WLR 290, 294;
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 161
was severely mentally ill and suffering from delusions, he was still found
to have capacity to refuse to have his leg amputated,82 and patients suf-
fering from GID are nevertheless found to have capacity to consent to
gender re-assignment.83
The test for capacity laid down in the MCA, s.2(1) establishes that:
A person lacks capacity in relation to a matter if at the material time
he is unable to make a decision for himself in relation to the matter
because of an impairment of, or a disturbance in the functioning of,
the mind or brain.
Section 3(1) provides that, for the purposes of section 2, a person is
unable to make a decision for himself if he is unable:
(a) to understand the information relevant to the decision,
(b) to retain that information,
(c) to use or weigh that information as part of the process of making the
decision, or
(d) communicate his decision (whether by talking, using sign language
or any other means).84
Given this statutory test and the principles set out in section 1 MCA, it
cannot be said that the views of those seeking healthy limb amputation
are so abnormal that they must necessarily lack capacity: the decision-
making of each patient in relation to each decision to consent would
have to be carefully assessed to see whether the presumption of capacity
was rebutted, bearing in mind that one of the principles underlying the
B. Harm or Therapy?
A further objection to healthy limb amputation is that, notwithstanding
the patient’s consent, such surgery may be regarded as harming the
patient and is therefore ethically impermissible. The principle of nonma-
leficence, enshrined in the frequently used maxim, ‘Above all, do no
harm’,88 is one of Beauchamp and Childress’s four basic principles of
medical ethics,89 and, even if one does not necessarily endorse the prin-
ciplist approach,90 the duty to avoid or minimise harm to patients is
nevertheless a key concept in medical ethics.91 As the BMA have
observed:
Mutilating surgical procedures are usually seen as a last resort in
cases where a physical disease has been identified. Therefore most
doctors have an intuitive aversion to the notion of deliberately
removing healthy tissue in the absence of physical disease, even at
the patient’s request.92
Smith has indicated that he was concerned that, by amputating healthy
limbs, he was harming his patients,93 but that ultimately, he was more
concerned that these individuals would kill or seriously injure them-
selves if surgery did not take place.94 There is some justification for
85
MCA, s.1(3): ‘A person is not to be treated as unable to make a decision
unless all practicable steps to help him do so have been taken without
success’; CoP, paras 4.44–4.54.
86
C Dyer, above n 26; BBC Horizon, above n 27.
87
BBC Horizon, ibid.
88
Primum non nocere. TL Beauchamp and JF Childress, Principles of Biomedi-
cal Ethics (5th edn Oxford University Press 2001) 113. C.f. Ryan, above n 60,
at 27–8.
89
Beauchamp and Childress, above n 88, Ch. 4.
90
See e.g. K Danner Clouse and B Gert, ‘A Critique of Principlism’ (1990) 15
Journal of Medicine and Philosophy 219.
91
BMA, above n 74, at 7.
92
Ibid.
93
In M Gilbert’s film, Whole, above n 18.
94 My fear is that someone will injure themselves or kill themselves, I have
very serious concerns that they will go to an unlicensed practitioner, or
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 163
they may take the law into their own hands and go and lie on a railway
line and wait for a train, or they may take a shotgun.
C Norton, ‘Disturbed Patients Have Healthy Limbs Amputated’ The Indepen-
dent 1 February 2000.
95
Furth and Smith, above n 39, at 41–4.
96
First, above n 29, at 922.
97
Elliott, above n 34, at 216.
98
See e.g. People v Brown (2001) 91 Cal App 4th 256 (Cal C.A.).
99
Bayne and Levy, above n 53, at 79. The BMA appear to accept that that there
might be circumstances in which such surgery would be ethically acceptable
(above n 74, at 95):
Some people accept amputation as an effective form of treatment for body
dysmorphia in extreme cases where other forms of treatment such as
medication or psychotherapy have failed. In order for this to be convin-
cing, it would have to be shown that all other less invasive alternatives
had been exhausted and that the patient is expected to suffer even more
serious harm if the procedure is not carried out.
100
Cf. e.g. R Gillon, Philosophical Medical Ethics (John Wiley 1986) 25.
164 M EDICAL L AW R EVIEW [2009]
As long as you say that people can have a sex change for what is a
severe psychological disease, then it is difficult to say that you
cannot have an amputation for this form of severe psychological
disease.102
101
Bayne and Levy, above n 53, at 79. An illustration of the sad consequences
which may ensue for the patient if wrong decisions are made may be found
in an ABC News item upon the subject of BIID, which referred to the case of
Karl, who had frozen both of his legs with dry ice, so that surgeons would
have to amputate them. He had also had a desire to amputate his left hand,
but this desire had disappeared following intensive therapy and drug treat-
ment. He was reportedly somewhat regretful about his condition, comment-
ing: ‘What the hell was I thinking?’: ABC News, ‘What Drives People to
Want to Be Amputees?’ 5 April 2006 http://abcnews.go.com/Primetime/
health/ accessed 14 August 2006.
102
Seenan, above n 19.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 165
103
BMA, above n 74, at 95.
104
See e.g. http://www.direct.gov.uk/en/MoneyTaxAndBenefits/BenefitsTax
CreditsAndOtherSupport/Disabledpeople/index.htm accessed 17 March 2009.
105
See e.g. P Alldridge, ‘Locating Disability Law’ [2006] CLP 289;
T Shakespeare, Disability Rights and Wrongs (Routledge 2006);
M Corker and T Shakespeare, Disability/Postmodernity: Embodying Dis-
ability Theory (Continuum 2002).
106
Bridy, above n 53, at 152 –3.
107
Ibid.; T Koch, ‘The Difficult Appendage’ (2001) 3 AMA Virtual Mentor, http://
www.ama-assn.org/ama/pub/category/3063.html accessed 11 July 2006.
108
Bridy, above n 53, at 152 –3.
109
Ibid.
110
Above n 19 and n 20. See the comments at: http://biid-info.org/Producing_
Identity:_Elective_Amputation_and_Disability accessed 4 March 2009. C.f.
HD Kaur, ‘Producing Identity: Elective Amputation and Disability’ (2004) 1
Scan, available at: http://scan.net.au/scan/journal/display.php?journal_id=38
accessed 4 March 2009.
166 M EDICAL L AW R EVIEW [2009]
D. A Misguided Treatment?
Further, it may be argued that amputation is not an appropriate treatment
for these patients in particular, and for psychological disorders in general.
Such concerns focus upon the uncertainty with regard to diagnosis and
treatment and the innovative nature of this treatment.111 As Johnston
and Elliott have reminded us, the history of psychiatry provides a caution-
ary tale, for it is littered with unhappy examples of surgery being used to
treat psychiatric problems.112 The use of lobotomy to treat psychosis113
and clitoridectomy to treat epilepsy, catalepsy and hysteria in women114
is but two examples. The fear is that, having undergone amputation
surgery, the patient will not be cured and will come to regret taking
this course. I have previously referred to the perceived similarity
between BIID and GID, and there have been cases where patients who
have undergone gender reassignment surgery have regretted their original
decision and have had to undergo several surgical procedures in an
attempt to reverse the results of the first operation.115 Such an outcome
in the case of amputation surgery, given its drastic and irreversible
nature, would be disastrous for the patient. Any surgeon ought to
proceed with great caution, with amputation being a treatment of last
resort. However, there is some, albeit very limited evidence to support
Robert Smith’s assertion that in some cases, amputation is a proper treat-
ment for BIID sufferers. In First’s recent study of ‘wannabes’, it was found
that six of the subjects had had a limb amputated in accordance with their
wishes. All of these patients reported that they had no desire to seek any
further amputation and made it clear that they had never felt better and
were happy with the outcome of their treatment.116
A further concern is not merely that surgery will not improve the
patient’s condition, but that the patient will return, seeking to have
the other leg amputated, or perhaps even to become a quadruple
111
Johnston and Elliott, above n 15, at 433– 4. C.f. Ryan, above n 60, at 28–
30.
112
Ibid. at 434.
113
E Shorter, A History of Psychiatry (John Wiley 1996) at 225 –9.
114
P Fennell, Treatment Without Consent: Law, psychiatry and the treatment
of mentally disordered people since 1845 (Routledge 1996) at 66– 7.
115
D Batty, ‘Sex-change Patient Complains to GMC: Consultant Broke Rules
for Surgery, Says Businessman’ Guardian 18 February 2004.
116
First, above n 42, at 926. First reports the following comments as having
been made by these patients: ‘I am absolutely ecstatic; I’m in possession of
myself and my sexuality’; ‘..the only regret is that I did not have it earlier;
since I had it done 5 years ago, I’ve felt the best I’ve ever felt’; ‘it finally
put me at peace . . . I no longer have that constant gnawing frustration.’, Ibid.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 167
117
S Lynch, Boxing Helena (Orion Pictures 1993). A much-derided feature film
in which an obsessed surgeon captures a young woman (Helena), imprisons
her in his mansion and amputates first her legs, and later both of her arms.
118
BBC Horizon, above n 18.
119
See e.g. Ibid; Gilbert, above n 18.
120
See e.g. TJ Moore and others ‘Prosthetic Usage Following Major Lower
Extremity Amputation’ (1989) 238 Clinical Orthopaedics 219.
121
Ibid. During the course of the documentary Robert Smith stated that:
Certainly a number of individuals have requested having both legs ampu-
tated and that is really quite a . . . concept . . . to try and grasp. Physically
it’s perfectly feasible to do bilateral amputations, but I think from a sur-
geon’s point of view it’s really asking a bit much to expect us to take this
on. I agree there is an irrepressible logic that if you’re prepared to remove
one leg why shouldn’t you be prepared to remove two legs if the patient
has this particular problem, but to a surgeon that’s a very difficult
concept to take on board.
168 M EDICAL L AW R EVIEW [2009]
This risk is compounded by the fact that, whereas the law tends to see
things very much in ‘black and white’ terms,123 psychiatrists, when
making diagnoses tend to see things more in shades of grey: mental dis-
orders have ‘fuzzy’ borders, which means that they are liable to
expand.124 The idea of a mental disorder such as BIID spreading
cannot be discounted, but appears to be unlikely, partly because the
procedure itself is so radical and partly because the results of such
surgery are ‘at odds with current conceptions of the ideal body image’.125
There are, however, two particular areas of difficulty which need to be
considered. First, there is the concern that people seeking amputation for
extreme body modification or sexual purposes will conceal their true
motives and learn the classified symptoms of the disorder in order to
repeat them to doctors so that they can get what they want.126 Second,
any surgeon, or hospital, who becomes known for conducting healthy
limb amputations is likely to attract, in addition to a good deal of
unwanted publicity, considerable attention from ‘wannabes’ all over
the world, not all of whom would be considered to be appropriate candi-
dates for such surgery. One website for ‘wannabes’ has 3000
members,127 and Furth has stated that he knows of about 200 people
who wish to amputate a healthy limb.128 Would-be amputees may go
to great lengths in an attempt to force hospitals to treat them, and hospi-
tals will need to consider carefully how they are to deal with such people.
The Falkirk Royal Infirmary was forced to deal with such a case in 2005,
when a woman who had learnt of Robert Smith’s operations travelled to
Scotland from France, deliberately injured both of her legs with dry ice
and admitted herself to the Accident and Emergency Department,
seeking a double amputation. Her wish was not granted: she was
122
Elliott, above n 34, at 230. For an extended discussion of this in relation to
Multiple Personality Disorder (now Dissociative Identity Disorder), see
I Hacking, Rewriting the Soul: Multiple Personality and the Sciences of
Memory (Princeton University Press 1995).
123
For example either one has capacity to consent to medical treatment, or one
lacks it.
124
C.f. Elliott, above n 34, at 233.
125
Bayne and Levy, above n 53, at 85.
126
Elliott, above n 34, at 234, who suggests that a similar phenomenon was
experienced by gender-identity clinics in the 1970s.
127
Fracassini, above n 25.
128
Dotinga, above n 39.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 169
treated for her injuries and repatriated by air ambulance. The hospital
then issued a firm public statement to the effect that it would not
conduct healthy limb amputations in the future.129
129
S Leonard, ‘Woman Asks Falkirk Hospital to Cut Off Healthy Legs’ Sunday
Times 3 April 2005.
130
Johnston and Elliott, above n 15, at 434. The response of Smith to this
article is set out at: R Smith and K Fisher, ‘Healthy Limb Amputations:
Ethical and Legal Aspects’ (2003) 3 Clinical Medicine 188. The BMA
advises doctors to exercise ‘extreme caution’ and that ‘specific legal advice
is essential before proceeding with such a case’, above n 74, at 95.
131
C. Norton, ‘Disturbed Patients Have Healthy Limbs Amputated’ Indepen-
dent 1 February 2000.
132
Johnston and Elliott, above n 15.
133
PJ Richardson (ed), Archbold, Criminal Pleading, Evidence and Practice
(‘Archbold’) (Sweet & Maxwell 2009), para. 19–199.
134
R v M’Loughlin (1838) 8 C. & P. 635; J.C.C. (a minor) v Eisenhower [1983]
3 All E.R. 230.
170 M EDICAL L AW R EVIEW [2009]
135
DPP v Smith [1961] A.C. 290. The CPS guidance on offences against the
person, which gives examples of what would usually be regarded as
serious harm, is set out at http://www.cps.gov.uk/.
136
C.f. Woollin [1999] A.C. 82; Re A (Conjoined Twins: Surgical Separation)
[2000] 4 All E.R. 961, per Ward and Brooke LJJ); D Ormerod, Smith &
Hogan Criminal Law (12th edn Oxford University Press 2008) 97–101.
Where the charge is wounding or causing GBH with intent to cause GBH,
the word ‘maliciously’ adds nothing since ‘any mens rea which it might
import is comprehended within the ulterior intent’: Ormerod, ibid., at
615; Mowatt [1968] 1 Q.B. 421.
137
Brown [1994] 1 A.C. 212. Assault occasioning ‘actual bodily harm’ is an
offence contrary to s.47 OAPA. ‘Bodily harm’ ‘includes any hurt or injury
calculated to interfere with the health or comfort of the prosecutor. Such
hurt or injury need not be permanent, but must . . . be more than merely tran-
sient and trifling’. Donovan [1934] 1 KB 498 at 509 per Swift J This passage
was approved in Brown at 230 and 242.
138
(1981) 73 Cr. App. R. 63, at 66. This passage was cited with approval in
Brown [1994] 1 A.C. 212, at 243 per Lord Jauncey; at 253 –4 per Lord
Lowry.
139
A-G’s Reference (No 6 of 1980) (1981) 73 Cr. App. R. 63, at 66.
140
Brown [1994] 1 A.C. 212 (HL) at 266, per Lord Mustill.
141
Ibid., at 231 per Lord Templeman.
142
M Brazier and E Cave, Medicine, Patients and the Law (4th edn Penguin
2007) 100.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 171
Peter Skegg has suggested that the ancient common law offence of
maim or mayhem might apply to certain medical procedures.143
Maim was a common law felony and consisted of: ‘such a hurt of any
part of a man’s body whereby he is rendered less able, in fighting,
either to defend himself or to annoy his adversary . . . ’.144 Consent
apparently was not a defence to this crime.145 Skegg has argued that,
although supplanted by statutory offences, the crime of maim has not
been expressly abolished, and that there might be circumstances in
which a medical practice might amount to maim, in which case the
consent of the patient would not be a defence.146 However, I suggest
that the preferable approach is that adopted by Lord Mustill in
Brown,147 who, in a dissenting judgment, noted that there ‘was no
record of anyone being indicted for maim in modern times’, and
stated that the crime of maim was ‘obsolete’, because if Parliament
had intended to ‘perpetuate maiming as a special category of offence’,
some provision would have been made for it in the 1861 Act. This
view appears to have been accepted by Lord Lowry,148 although none
of the other law lords specifically considered the modern validity of
this ancient offence. Even if maim does still exist as an obsolescent
offence in English law, it is difficult to envisage circumstances in
which a medical practitioner would be prosecuted for maim arising
out of properly conducted medical or surgical treatment and even
more unlikely that such a prosecution would succeed.149 Most surgical
143
PDG Skegg, Law, Ethics and Medicine (Clarendon Press 1984) 43–6. The
terms maim and mayhem are interchangeable, mayhem being the old term
for the maiming of a person; DM Walker, The Oxford Companion to
Law (Oxford University Press 1980) 797, 818.
144
Hawkins’ Pleas of the Crown, 8th edn., cited in Brown [1994] 1 A.C. 212
(HL), Lord Mustill, at 262. C.f. Stephen, Digest of the Criminal Law
(1883), Article 206 (cited at p. 771); I Kennedy and A Grubb, Medical
Law, (3rd edn Butterworths 2000).
145
Stephen, ibid.: ‘Everyone has a right to consent to the infliction upon himself
of bodily harm not amounting to a maim’. However, in Brown [1994] 1
A.C. 212, Lord Mustill observed (at 262) that: ‘No reported decision or
statute was cited in support of this proposition . . . ’.
146
Skegg, above n 143, at 43, 46.
147
[1994] 1 A.C. 212 (HL) at 262. C.f. Law Commission, Consent in the Crim-
inal Law, consultation paper No 139, (1995), para 8.23. The Offences
against the Person Bill 1998, cl.23, if enacted, would purport to abolish
the offence of ‘mayhem’: http://www.nationalarchives.gov.uk/ERO/
records/ho415/1/cpd/sou/oapdb.htm.
148
[1994] 1 A.C. 212 (HL) at 247 –8.
149
See e.g. R v Owens [1976] 1 WLR 840, at 842, where the Court of Appeal
commented negatively upon the fact that the ‘obsolescent offence of embra-
cery’ had been charged and R v Rimmington, Goldstein [2006] 1 AC 459,
where Lord Bingham stated:
[30] . . . Where Parliament has defined the ingredients of an offence,
perhaps stipulating what shall and shall not be a defence, and has
172 M EDICAL L AW R EVIEW [2009]
While the Law Commission has accepted that consent does not provide
a complete justification for a doctor’s exemption from criminal
liability ‘for acts done in the course of lawful medical or surgical
157
C.f. Feinberg’s liberal approach, which suggests that: ‘..one person cannot
properly be prevented from doing something that will harm another when
the latter has voluntarily assumed the risk of harm himself through his
free and informed consent’; J Feinberg, Harm to Others (Oxford University
Press 1984) 116 (see also 35–6 and 115); J Feinberg, Harm to Others
(Oxford University Press 1987) 165 –73). C.f. T Schramme, ‘Should We
Prevent Non-Therapeutic Mutilation and Extreme Body Modification?’
(2007) 22 Bioethics 8.
158
Jackson, above n 155, at 181; G Williams, Textbook of Criminal Law (2nd
edn Stevens 1983) 577.
159
Brown [1994] 1 A.C. 212 (HL) at 266. Similar comments were made by
Lord Mustill in Airedale NHS Trust v Bland [1993] A.C. 789(HL) at 891:
Proper medical treatment. How is it that, . . . a doctor can with immunity
perform on a consenting patient an act which would be a very serious
crime if done by someone else? The answer must be that bodily invasions
in the course of proper medical treatment stand completely outside the
criminal law. The reason why the consent of the patient is so important
is not that it furnishes a defence in itself, but because it is usually essential
to the propriety of medical treatment. Thus, if the consent is absent, and is
not dispensed within special circumstances by operation of law, the acts of
the doctor lose their immunity.
See e.g. Law Commission, above n 147, para 8.3; R v Barnes [2005] 1 Cr.
App. R. 30, in which Lord Woolf CJ, at [9], described Lord Mustill as
dealing with the legal position with ‘particular clarity’.
174 M EDICAL L AW R EVIEW [2009]
treatment’,160 since ‘the consent of the patient to the injury may usually
be a necessary, but it is certainly not a sufficient, condition of that
exemption’.161
160
Law Commission, Consent and Offences against the Person: A Consultation
Paper, Consultation Paper No.134 (HMSO 1994), para 2.4. For discussion
of the paper, see: MJ Gunn and DC Ormerod, ‘Second Law Commission
Consultation on Consent: (2) Consent – a Second Bash’ [1996] Crim L
Rev 694; P Alldridge, ‘Consent to Medical and Surgical Treatment – the
Law Commission’s Recommendations’ [1996] 4 Med L Rev 129.
161
Ibid.
162
(1981) 73 Cr. App. R. 63.
163
Ibid., at 66.
164
Ibid.
165
Female Genital Mutilation Act 2003; Archbold, above n 133, paras 19–
283 –19–285c, and previously under the Prohibition of Female Circumci-
sion Act 1985. Male circumcision is not unlawful, even if performed to
improve one’s sex life: A Grubb (ed) Principles of Medical Law (2nd edn
Oxford University Press 2004) 240; Hickey v Croydon AHA The Times
6 March 1985. C.f. Law Commission, above n 147, para 3.25. This view
has been challenged by M Fox and M Thompson: ‘A Covenant with the
Status Quo? Male Circumcision and the New BMA Guidance to Doctors’
(2005) 31 Journal of Medial Ethics 463. Feldman argues that non-
therapeutic circumcision conducted without the consent of the patient
may amount to inhuman treatment and violate Article 3 of the ECHR:
D Feldman, Civil Liberties and Human Rights in England and Wales,
(2nd edn Oxford University Press 2002) 272. C.f. H Gilbert, ‘Time to
Reconsider the Lawfulness of Ritual Male Circumcision’ [2007] EHRLR
279.
166
Jackson, above n 155, at 183.
167
RD Mackay, ‘Is Female Circumcision Lawful?’ [1983] Crim LR 717;
K Hayter, ‘Female Circumcision—Is There a Legal Solution?’ [1984]
J.S.W.L. 323; S.M. Poulter, English Law and Ethnic Minority Customs
(Butterworths 1986) at 155–6. C.f. L Bibbings, ‘Human Rights and the
Criminalisation of Tradition: The Practices Formerly Known as ‘Female
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 175
1. Organ Transplantation
Although in the past questions were raised as to whether the removal of,
for example, a kidney from a living donor for transplantation purposes
might amount to an offence,174 it is now recognised that:
. . . there can be no doubt that, once a valid consent has been forth-
coming, English law now treats as lawful operative procedures
175
Law Commission, above n 147, para 8.32. The organ most commonly
donated is the kidney (690 people received a living donor kidney transplant
in 2006– 2007), although liver lobes, lung segments and portions of the
small bowel may also be donated: http://www.uktransplants.org.uk/ukt/
statistics (accessed June 4 2008).
176
See ss.32 –33, and the Human Tissue Act (Persons who Lack Capacity to
Consent and Transplants) Regulations 2006 (2006/1659). The relevant
Human Tissue Authority Codes of Practice: Code of Practice 1 – Consent
(2006) and Code of Practice 2 – Donation of Organs, Tissue and Cells
for Transplantation (2006), may be accessed at: http://www.hta.gov.uk/
guidance/codes_of_practice.cfm .
177
http://www.theregister.co.uk/ accessed 14 August 2006. C.f. Jackson, above
n 156.
178
Little v Little (1979) 576 SW (2d) 493, at 499 per Cadena CJ
179
Law Commission, above n 147, para 8.36.
180
All solid organ transplantation is cost-effective (except for liver transplan-
tation for alcoholic liver disease). The cost of a kidney transplant is about
£17,000 per patient per transplant, and the cost of immunosuppression
treatment is £5,000 per year. The average cost of dialysis is £21,000 per
patient per year: UK Transplant website: http://www.uktransplant.org.uk/
(accessed June 4 2008).
181
DW Meyers, The Human Body and the Law (2nd edn Edinburgh University
Press 1990) 223.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 177
It is clear from this and subsequent judicial statements185 that the courts
have left the question of what are ‘genuine therapeutic reasons’ in the
hands of the treating medical practitioners, adopting a ‘hands off’
stance in relation to questions of diagnosis and the development and
use of treatments for GID. It should also be noted that this apparent
acceptance of surgical methods as being lawful to treat what was then
termed ‘transsexualism’, pre-dated the first classification of this con-
dition as a recognised disorder in the DSM by a decade.186 Since
Corbett, the legality of such surgery does not appear seriously to have
been questioned,187 and has now been put beyond doubt following a
series of cases in which those who have undergone gender reassignment
have challenged behaviour which discriminates against them on the
ground of their gender, or have asserted their human rights,188 and by
the enactment of the Gender Recognition Act 2004.189 No medical
practitioner has been prosecuted for performing gender reassignment
182
Ibid. C.f. Law Commission, above n 147, paras 8.28–8.29.
183
[1971] p. 83. The case concerned the validity of a marriage between the
model April Ashley (who had been born a man, but who had undergone
gender reassignment surgery) and another man. C.f. R v Tan, Greaves and
Greaves (1983) 76 Cr App R 300, a case in which one of the defendants,
who had been convicted of keeping a disorderly house, had undergone
gender reassignment. The Court of Appeal applied Corbett v Corbett,
making no comment on the lawfulness or otherwise of the operation.
184
Ibid, at 83.
185
Ibid.; Bellinger v Bellinger [2003] 2 AC 467, at [8], [30] per Lord Nicholls,
[8]; at [76] per Lord Hobhouse.
186
‘Transsexualism’ first appeared in the DSM-III in 1980. It was replaced by
‘Gender Identity Disorder’ (GID) in DSM-IV: Bridy, above n 53, at 150.
187
Law Commission, above n 147, para 8.29.
188
For example Cossey v U.K. (1990) 13 EHRR 622; Goodwin v U.K. (2002)
EHRR 18; Bellinger v Bellinger [2003] 2 AC 467; Croft v Royal Mail Group
Plc. [2003] ICR 1425; Chief Constable of Yorkshire Police v A [2005] 1
AC 1. In Bellinger, Lord Nicholls, at [30], observed that:
Recognition of transsexualism as a psychiatric disorder has been
accompanied by the development of sophisticated techniques of medical
treatment. The anatomical appearance of the body can be substantially
altered, by forms of treatment which are permissible as well as possible.
189
The Act makes provision for a ‘gender recognition certificate’ to be issued to
give recognition to a person’s acquired gender. In the case of a male– female
178 M EDICAL L AW R EVIEW [2009]
3. Cosmetic Surgery
Cosmetic surgery is regarded as being lawful. The Law Commission was
‘unable to identify any English case in which the lawfulness of cosmetic
surgery carried out by consent has been called into question’,192 and, in
2005, the Department of Health recognised that such surgery was
lawful when it set up a ‘Cosmetic Surgery Website’ to provide infor-
mation about cosmetic procedures.193 This website provides infor-
mation and advice upon a wide variety of surgical procedures, from
‘belly button surgery194 to ‘female genital reshaping’,195 which is
clearly posited upon the basis that such treatments are lawful. Private
hospitals or clinics which provide invasive cosmetic surgery196 are
regulated by the Care Standards Act 2000,197 and are, until
Therapy also gives moral support to some cosmetic surgery, but not
all. The justification for padding bosoms, chiselling noses, and
restoring hymens lost in pre-marital encounters, is that the
patient is pleased and may be socially or maritally advantaged,
rather than that the operation is a psychiatric necessity.202
205
Ibid.
206
See e.g. Bupa cosmetic surgery website, above n 201; Harley Medical Group,
http://www.harleymedical.co.uk/; Transform Medical Group, http://
www.transforminglives.co.uk (both accessed June 4 2008).
207
Bupa and Transform Websites, ibid.
208
E.g. Transform Medical Group, above n 191.
209
Latham, above n 197, at 441 –3; Sheldon and Wilkinson, above n 167, at
274. C.f. V. Braun, ‘In Search of (Better) Sexual Pleasure: Female Genital
‘Cosmetic’ Surgery’ (2005) 8 Sexualities 407, at 418.
210
LM Liao and SM Creighton, ‘Requests for Cosmetic Genitoplasty: How
Should Healthcare Providers Respond?’ (2007) 334 Br Med J 1090
211
Ibid., at 1091.
212
Sheldon and Wilkinson, above n 167. C.f. M Berer, ‘It’s Female Genital
Mutilation and Should Be Prosecuted’ (2007) 334 Br Med J 1335, who
argues that cosmetic genitoplasty is a criminal offence under the Female
Genital Mutilation Act 2003.
Med.L.Rev. BDD, Radical Surgery and the Limits of Consent 181
213
Law Commission, above n 147, para 8.30.
214
Williams, above n 158, at 590 –1.
215
Above n 140.
216
Attorney-General’s Reference (1981) 73 Cr. App. R. 63, at 66, per Lord
Lane CJ.
217
Above at 27–30.
182 M EDICAL L AW R EVIEW [2009]