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Eat Weight Disord (2013) 18:413–420

DOI 10.1007/s40519-013-0050-y

ORIGINAL ARTICLE

A comparative analysis of anorexia nervosa groups on Facebook


Martin Teufel • Eva Hofer • Florian Junne •
Helene Sauer • Stephan Zipfel • Katrin Elisabeth Giel

Received: 15 March 2013 / Accepted: 18 July 2013 / Published online: 27 July 2013
 Springer International Publishing Switzerland 2013

Abstract Keywords Eating disorders  Anorexia nervosa 


Purpose To analyze the content and culture of anorexia Motivation  Social support  Social media
nervosa (AN)-related communication on the current major
social network site (SNS) Facebook.
Methods We searched for groups and sites related to AN Introduction
on Facebook by means of a faux profile of a young female.
Identified groups/sites were analyzed with respect to (1) The role of the Internet as a mass media has significantly
category (education, self-help, professional help, pro-ana, grown over the last decade. Information seeking is
anti pro-ana), (2) activity, (3) motivational aspects (prose, becoming more and more important via the Internet. With
pictures), and (4) social support. the development of Web 2.0, the Internet has emerged as a
Results Numerous relevant groups were found in all tool that is increasingly and often predominantly used for
categories except that professional help was almost non- communication, via social media applications such as
existent. Pro-ana groups were found to be the most active, Facebook, Myspace, or Twitter [1, 2].
best organized, and offered the highest levels of social With respect to Internet use, patients with eating disor-
support. Prose motivation was distinctly offered in all ders express their wish for professional, evidence-based
categories. Motivation with pictures was particularly evi- online information and expert-guided treatment [3].
dent in pro-ana groups. The most functional motivation Research on Internet-based treatment approaches is grow-
was found in self-help groups. ing and results are promising [4]. On the other hand, a large
Conclusions SNS appears to be a relevant way for young pro-eating disorder community has developed on the
females suffering from AN to communicate and exchange Internet with the purpose of promoting anorexia nervosa
disease and health-related ideas. Caregivers, researchers, not as an illness, but as a lifestyle choice. Norris et al.
and institutions in the field of eating disorders should be (2006) characterizes the typical content of such pro-ana
aware of the existence, possibilities, dysfunctions, and webpages as follows. One section describes the founders of
influence of SNS. Whether SNS can help persons with AN the page and their medical history considering the eating
to get therapeutic assistance as well as whether it can be disorder. Eventually, a disclaimer that this is a pro-ana
integrated into psychotherapeutic strategies should be homepage can be found. There are sections that encourage
examined in future studies. unhealthy eating behaviors through text (referred to as
‘‘Tips and Tricks’’), images, or videos (‘‘Thinspiration’’).
Additionally, one might find a forum where users can talk
to each other [5].
M. Teufel  E. Hofer (&)  F. Junne  H. Sauer  S. Zipfel  Over the past decade, the pro-ana movements have been
K. E. Giel scientifically analyzed, concerning their structure [6–8],
Department of Psychosomatic Medicine and Psychotherapy,
their way of communication [2], and the harm they
University Hospital Tübingen, Osianderstrasse 5,
72076 Tübingen, Germany potentially cause to ill as well as to healthy individuals.
e-mail: eva-maria.hofer@med.uni-tuebingen.de Visiting pro-eating disorder webpages was associated with

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a higher drive for thinness and higher levels of perfec- were geared toward providing social support. Ringwood
tionism [9]. Harper (2008) [10] as well as Bardone-Cone (2008) [21] already described the mediation of social
and Cass et al. (2007) [11] showed that viewing a pro- support by pro-ana groups on social networking sites and
eating disorder webpage was associated with more nega- highlighted the necessity of providing an alternative for
tive effects, negative body image, and less social self- users.
esteem in healthy individuals. Also, a reduction of the This is to our knowledge the first study that compre-
actual calorie intake of healthy individuals and individuals hensively analyses the culture of AN-oriented communi-
with AN after viewing a pro-eating disorder webpage could cation on the current major SNS Facebook in detail. We
be shown [12, 13]. The majority of scientific publications searched not only for pro-ana groups, but also for groups
on the issue underline these potentially harmful effects of that aim to provide education, self-help, or professional
pro-ana webpages. However, there are also authors who help for people suffering from AN. The primary aim of the
argue that those webpages could be a way of social support study was a detailed description and comparative analysis
for socially stigmatized patients [14, 15] and that the pro- of anorexia nervosa-related groups/sites. Furthermore, as
ana forums could be a form of supplement for support that an exploratory approach we sought to describe differences
cannot be obtained from off-line relationships [16]. Fur- in social support and motivational aspects.
thermore, clinicians should be informed about pro-ana
webpages. Being aware of ‘‘Tips and Tricks’’ that patients
are promoting and using might help in being better Methods
equipped to recognize the symptoms of anorexia early in
treatment [17]. Faux profile
As the importance of the Internet is growing, the
importance of social network sites (SNSs) is expanding as To identify and observe groups concerning AN, a faux
well. SNSs are considered an increasingly important Facebook profile of a young female was created. The faux
medium for communication and to get in touch with peers profile aimed to mimic typical AN-specific member char-
and interest groups [1, 2]. Their importance is growing acteristics. To fit into the pro-ana setting and for being
through the increasing number of members and concomi- accepted there, the profile had to be adapted concerning
tant commercialization with financial benefits. The biggest name, profile picture, and basic information according to
SNS temporally is Facebook with over 901 million observed pro-ana. For example, the name was changed to
monthly active users [18]. the pseudonym ‘‘Jana T-Spo’’. Names that included terms
Facebook contains public or semi-public profiles within like ‘‘Ana’’, ‘‘Thinspo/T-Spo’’, ‘‘Princess’’, etc., could be
a bounded system, where users can share information with observed throughout the pro-ana community on Facebook.
other users with whom they share a certain form of con- Likewise, the picture was modified to be a portrait picture
nection, referred to as a ‘‘friendship’’ [1]. On profiles one of a popular, emaciated white model, with BMI of about
can present oneself via profile pictures, interests, or on a 14 kg/m2, aged about 16 years. This was a profile that
‘‘wall’’. The ‘‘wall’’ of one’s profile is a place where one’s could be observed throughout the community as well. We
own ideas and thoughts can be made public and where defined that the faux profile was accepting friendship
friends can leave ‘‘posts’’. The content of posts can be requests, but not making any requests. Accepting was
messages, ideas, thoughts, or media-like pictures or videos. important for getting access to more hidden pro-ana
Studies show that the way an individual presents oneself on groups. The profile joined groups and sites, but never
an SNS seems to reflect the actual personality traits the user posted or commented on them. With the approach of
has [19]. Furthermore, it is possible to create special observing passively, we intended to avoid influencing
‘‘groups’’ with other users who share a common interest. group/site members or reinforce AN in members as much
Those groups can be modified in their privacy settings as possible. This procedure was developed together with
within a range from public to private, where only registered the local ethics committee of the medical faculty.
group members can see the content and communication of
the group. Posts can be made on walls of groups/sites as Search process
well. Other users can comment or ‘‘like’’ posts of other
users. Posts, likes, and comments are used as a communi- Informed by previous research [6, 20] and experiences
cation tool on Facebook [18]. collected throughout the Facebook search, our search
Juarascio et al. (2010) [20] analyzed the two large SNSs, included the following terms: anorexia; bulimia; eating
Myspace and Facebook regarding the existence of pro-ana disorder; ABC Diet; MiAna; AnaMia; thinspiration;
groups within them. They found a wide range of pro-eating thinsperation; thinspo; pro-ana; pro-mia; stop pro-ana; stop
disorder groups/sites and stated that the majority of them thinspo; and anti pro-ana. The Facebook search mask has

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Eat Weight Disord (2013) 18:413–420 415

certain limitations concerning the reproducibility of the Motivational aspects


results. Facebook search results depend on personal con-
text, social context, the query, and global popularity. Those Motivational aspects were assessed by categorizing
factors tend to change when accepting new friend request ‘‘posts’’ (statements group/site users can make on the wall
or joining groups, etc. So, the results a query might get in of a group/site). Motivation with words reflects posts that
the first place will not be the same as when the search takes contain quotes, summons, reassurances, etc. [‘‘you could
place at a later point of time or through another individual be the model type, skinny with no apetite…’’, ‘‘The only
[22]. We screened the first 90 results that each term difference between FAT and EAT is one line’’, ‘‘Real
delivered (corresponding to the first two pages of search women have curves and aren’t afraid to show them’’, ‘‘just
results). Further analyses were performed on those groups/ take care and stay strong…this (whatever it is that you are
sites that met the following inclusion criteria: content AN going through) too shall pass…let this be your mantra’’]
(character of the groups/sites needed to be no tweet, no on groups/sites. Motivation with pictures reflects posts
event, etc.); accessibility; group-size ([2 members); and with motivational pictures or videos of motivational con-
language (German, English, French, Italian, or Spanish). tent on the groups/sites, e.g., skinny models, skinny body
parts (especially hip bones, thighs, collarbones, the gap
Categories between the legs), skinny celebrities, or on the other hand
pictures that intend to motivate a more recovery-oriented
The results were then coded into five primary categories behavior (videos with pictures of landscapes or flowers,
(education, anti pro-ana, self-help, professional help, pro- music videos, pictures of tattoos or drawings of symbols
ana). The aim of education groups/sites was to provide with special meanings, or pictures of dangerously emaci-
objective education about the topic of eating-disordered ated women).
and anorectic behavior. Their first goal was not to offer
self-help, but to inform people unaware of AN. Anti pro-
Social support
ana groups/sites were considered for educational purposes
as well, but as a direct reaction to pro-ana. Their principal
Social interaction played a central role in SNS and was
purpose was to create awareness of the existence of pro-ana
assessed by counting the number of comments/likes to a
groups and their unfavorable influence on vulnerable
post. We took the quantity of comments/likes as a bench-
individuals. Self-help groups/sites were established by
mark of visible reactions that followed a post. Due to the
individuals affected by AN or relatives of affected indi-
primary descriptive character of the study, we did not
viduals. Their main purpose was to give not only infor-
distinguish between positive and negative comments.
mation, but also to offer help such as advice or support to
Given that these social interactions via comments/likes on
other affected individuals. Professional help groups/sites
SNS are comparable to a sort of social support, we defined
were conducted by larger groups with a higher level of
and calculated a new variable, reflecting the amount of
internal organization such as institutions or even hospitals.
comments/likes per post and thus the extent of social
Pro-ana groups/sites were bound to support the opinion
support. Social support was measured to tips and tricks to
that AN is a lifestyle choice rather than a disease, similar to
overcome or maintain AN (e.g., exercise, food, weight), as
pro-ana webpages on the World Wide Web [5–7].
well as to AN-specific emotionally relevant themes (e.g.,
experiences with AN, reasons for AN, significance of AN,
Site logistics
attitudes toward therapy).
Group/site size was defined as the number of users who
stated themselves to be members of a group or liked a site. Statistical analysis
The visual representation of the group/site through a pic-
ture (usually given by the founder) reflects identity and According to the aim of the study, analysis was primarily
self-perception [23]. Pictures were split into food, body, or descriptive. Only for exploratory issues significant differ-
other content. The activity of groups/sites was assessed ences concerning motivation and social support were cal-
by evaluating the time since the last post made by a user culated. Because the data were not normally distributed,
(B1 day,\3 days ago,[3 days ago,[1 week ago,[1 month the Kruskal–Wallis test was applied to compare groups.
ago, [3 months ago, or no activity at all). The number of Significance level was set at the a = 0.05 level. Profes-
spam posts was counted. The contents of spam posts were sional help was not included in further analysis due to not
primarily offers of diet pills, sexual contact, and dubious being statistically representative. We used SPSS 19 for
health promotion. Mac OS X in conducting the analysis.

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416 Eat Weight Disord (2013) 18:413–420

Results Site logistics

118 groups/sites met the inclusion criteria (Fig. 1). 22.2 % Our search revealed a larger number of groups at 83.9 %
of the pro-ana groups/sites that took part in the analysis (n = 99) when compared with sites at 16.1 % (n = 19).
were not received via Facebook search, but by being Concerning language, we found a large quantity of
invited for ‘friendship’ via the faux profile. English-speaking groups/sites with 70.3 % (n = 83), fol-
The number of groups within one of the previously lowed by 11.0 % German-speaking groups/sites with
defined five main categories differed substantially. (n = 13), 8.5 % Spanish-speaking groups/sites (n = 10),
Especially, the section concerning professional help was 6.8 % Italian-speaking groups/sites with (n = 8) and 3.4 %
found to be only marginally represented (four groups/ French-speaking groups/sites with (n = 4).
sites of 114). Because of the small number of groups/ Group/site size showed the following distributions:
sites in this section, professional help was excluded education had a mean group/site size of 469.7 (median
and 114 groups/sites could be included in further 108), self-help 1,327.2 (median 144), anti pro-ana 297.0
analysis. (median 140.5), and pro-ana 883.3 (median 66).

Fig. 1 Search process and


groups/sites included in analysis Facebook search revealed
3524 results

118 groups/sites 3406 groups/sites


met inclusion did not meet
criteria inclusion criteria

Education Not in the top 90


29 groups/sites per search item
2473 groups/sites

Anti pro-ana
34 groups/sites Group/Site size too
small
35 groups/sites
Self-help
24 groups/sites

No regular
Professional help groups/sites
4 groups/sites 304 groups/sites

Pro-ana
Content not AN
27 groups/sites
399 groups/sites

Languages other
than ger, eng, fre,
ita, spa
81 groups/sites

Access denied
21 groups/sites

Others
93 groups/sites

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Eat Weight Disord (2013) 18:413–420 417

The representation of the group/site through the group


picture is shown in Table 1. Education, anti pro-ana, and
pro-ana showed a more body-associated sampling of group/
site pictures, while self-help chose more pictures of other
content than body or food.
The activity of a group/site was assessed by the last
post users made on the wall (Table 2). Pro-ana was found
to be most active with 33.3 % showing the last post within
the last 24 h. On the other hand, about half of the edu-
cation and anti pro-ana groups showed low activity levels
with the last post made more than 3 months ago. The
amount of spam found on the groups/sites showed pro-ana
(1.23 % spam posts) and self-help (1.56 %), well-kept in
comparison to education (7.11 %) and anti pro-ana
(4.33 %).

Motivation

Motivation with words exists in all categories with self-


help revealing most prose motivation (Fig. 2a). We found
no significant differences among the categories in this
respect (p = 0.09). As seen in Fig. 2b, motivation with
pictures was predominantly represented in pro-ana
(p = 0.05). Motivational pictures in education, self-help,
and anti pro-ana describe being underweight as negative,
whereas pro-ana describe it as positive.
Fig. 2 a Motivational quotes/sentences as found on the group/sites
(frequencies). b Motivational pictures as found on the group/sites
Social support (frequencies)

Social support to tips and tricks (comments/likes per post) themes (comments/likes per post) was similar in all cate-
predominantly occurred in pro-ana with 6.67 per post and gories (p = 0.60; see Fig. 3b).
differed significantly from the other categories (p = 0.02;
see Fig. 3a). Social support to eating disorder-specific
Discussion
Table 1 The representation of the group/site via the group picture
Food Body No picture Other This is to our knowledge the first study to investigate the
associated associated % (n) % (n) role of SNS related to AN analyzing Facebook content, as
% (n) % (n) this is currently the largest SNS. Since previous research
Education 3.4 (1) 51.7 (15) 20.7 (6) 24.1 (7) focused predominantly on dysfunctional pro-ana activity
Self-help 4.2 (1) 33.3 (8) 4.2 (1) 58.3 (14) [5–7, 14, 20], we also included recovery-oriented groups
Anti pro-ana 2.9 (1) 55.9 (19) 11.8 (4) 29.4 (10)
(education, self-help, anti pro-ana).
Pro-ana 3.7 (1) 70.4 (19) 18.5 (5) 7.4 (2)
AN-specific groups were found to be numerous in the
SNS Facebook with self-help groups having the highest

Table 2 The last activity (time passed since last post) of a group/site
B24 h % (n) \3 days % (n) [3 days % (n) [1 week % (n) [1 month % (n) [3 month % (n) No activity % (n)

Education 0 (0) 3.4 (1) 3.4 (1) 27.6 (8) 10.3 (3) 44.8 (13) 10.3 (3)
Self-help 12.5 (3) 12.5 (3) 0 (0) 12.5 (3) 20.8 (5) 37.5 (9) 4.2 (1)
Anti pro-ana 8.8 (3) 2.9 (1) 0 (0) 17.6 (6) 17.6 (6) 52.9 (18) 0 (0)
Pro-ana 33.3 (9) 14.8 (4) 11.1 (3) 7.4 (2) 11.1 (3) 18.5 (5) 3.7 (1)

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find out in what form resources for recovery are available


on Facebook as a major SNS and how they present them-
selves in comparison to pro-ana. SNSs with their high
amount of given structures for their group/sites grant for
the first time the opportunity to draw a direct comparison
between pro-ana and self-help and education groups with
regard to AN.
The trend of pro-ana webpages being well organized and
maintained [6, 7, 20] could be observed on Facebook as
well. While the last activity of recovery-oriented groups
was on average later than a week ago, pro-ana had its
highest amount of activity on a daily basis to extend to
3 days. Also, the amount of spam found on the groups/sites
showed pro-ana well kept in comparison to education and
anti pro-ana. These impressions suggest that pro-ana
groups/sites have a higher interest of keeping their groups
organized and neat. This could be going along with per-
fectionism as a relevant personality trait in a non-recovered
stadium of AN [24].
Both education and anti pro-ana groups often gave the
impression that they were founded to make a statement
against AN-related behavior or against AN itself, unlike
self-help and pro-ana groups/sites, which seemed to be
established to serve as a real forum for support and help.
Concerning the way support and help was presented and
Fig. 3 a Social support concerning tips and tricks (comments/likes
per post). b Social support concerning eating disorder-associated offered, pro-ana and self-help groups varied in certain
themes (comments/likes per post) points. While chosen pictures representing the self-under-
standing of pro-ana as well as education and anti pro-ana
number of members. On the whole, pro-ana groups were groups were mainly body-associated, self-help groups
found to be the most active ones. They predominantly displayed pictures that were neither body nor food asso-
identify themselves with body-associated pictures, whereas ciated. This suggests different motivational stages of
self-help groups use pictures apart from AN-relevant change in the different groups [25]. The aim of self-help
objects (food or body). For motivational aspects, pictures seems to be a communication without potential AN-trig-
are very important in pro-ana groups. All categories gering cues. Given that the group/site picture is one of the
motivate users with words. Social support was similar in all first to be seen by approaching groups, education and anti
categories concerning emotional AN-specific themes. pro-ana, which tend to have body-associated pictures,
Social support concerning tips and tricks (e.g., ‘‘Crunch on possibly aim for a different target group than self-help. The
some ice chips if you are feeling a hunger craving. This target groups of education and anti pro-ana seem to be
will help you feel as if you are eating something sub- users interested in pro-ana or users at the beginning of an
stantial.’’ ‘‘How do you all feel about laxatives?’’) was eating disorder with the aim of giving information or to
most pronounced in pro-ana groups. scare. The target group of self-help are users or their next
Since pro-ana has developed throughout the Internet into of kin who are in at least partial recovery from AN.
a strong and highly active movement, its existence on a Motivation with pictures is most common in pro-ana
popular SNS such as Facebook was expected. The nature of groups/sites with body-related pictures being most fre-
pro-ana as being harmful to individuals on the one hand quently used (e.g., skinny models). This aspect is similar to
and giving a certain amount of support to their users on the the type of group picture for self-representation described
other hand has been extensively debated before [5, 7, 8, 10, above in pro-ana groups. This finding is in accordance with
14]. However, there is another important aspect that should experimental research (e.g., using functional magnetic
be taken into consideration: How is pro-ana and its social resonance imaging (fMRI) to assess brain activity and eye
support positioned in comparison to other groups dealing tracking to assess gaze patterns) demonstrating that
with the topic of AN? patients with AN show marked differences in the pro-
Our aim was not only to show the perspective of the cessing and evaluation of body-related pictures as com-
dysfunctional behavior related to the illness, but also to pared to healthy subjects [26, 27]. AN patients tended to be

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more attentive to body parts indicative of weight status institutions could easily be provided (e.g., addresses, hot-
(e.g., thighs), were more interested in pictures of under- lines, and external website pages). Our findings underline
weight bodies, and perceived them as more rewarding. the possibility of integrating SNS into treatment networks
These processing patterns might be correlates of body [4]. The role model for the design and structure of pro-
dissatisfaction and a pronounced thin ideal and might fessional help groups could be existing Internet platforms,
contribute to the maintenance of the disorder. Hence, the e.g., ProYouth an EU-Initiative [30] which gives ideas how
confrontation with body-related pictures on Facebook interactive online contact can be provided.
profiles might again elicit such processing and rewarding Several limitations occurred during our research: Given
patterns [28] and contribute to maintenance of symptoms the fact that Facebook is a constantly changing medium,
and behaviors related to the eating disorder. the reproducibility of the results was limited. A number of
All categories used motivational techniques with words groups/sites could not be included into the analysis because
for their health belief models. Categories with less activity of the restrictions of access. Due to limited access, an
showed also lower motivational aspects. Motivation in anti underestimation of the existence of pro-ana groups might
pro-ana groups were often through posts like ‘‘Close all be possible.
pro-ana groups’’ without the implication of a welcome Facebook and other SNSs are a completely new universe
response. The overall character of these groups is centered to young and middle-aged adults. AN patients share the
around the goal to get pro-ana groups/sites shut down same age cohort. Therefore, SNS seems to be a relevant
without giving help on how to battle AN. Education had way for affected persons and caregivers to communicate
few posts with motivational content in words or in pictures and get into social and therapeutic contact. The therapist
reflecting the aim of giving information and not assistance. should be aware that for patients with eating disorders
Education and anti pro-ana had few comments/likes per SNSs are common and life without them often is
post (social support) concerning relevant AN themes (1.07 unimaginable. SNS offers chances for therapists and
and 1.87). Pro-ana had with 3.9 comments/likes per post patients. To what extent SNS could, must, or must not be
the highest social support followed by self-help with 2.41. integrated into psychotherapeutic strategies should be
This finding reinforces the idea that pro-ana provides its assessed systematically in future studies. In this study, we
members a platform in the distant cyberspace that enables focused on the activity and structure of AN-related com-
to perceive a certain amount of social support without munication on Facebook. After this initial description,
being at risk of being valuated, criticized, or confronted further studies with the focus on qualitative research should
with the limitations of real life [29]. However, future be pursued. Profiles of individuals should be examined in
studies should address social support in more detail (e.g., more detail to identify possible approaches that might be
positive/negative valence of reactions to posts). Concern- useful for clinicians and psychotherapists. Researchers and
ing the care and motivation given in those groups, it is care-giving institutions dealing with eating disorders
obvious that Facebook offers a sanctuary for the pro-ana should be aware of the existence, possibilities, dysfunc-
community. On the other hand, the faux profile was cleared tions, and influences of SNS.
and inactivated by Facebook about half a year after being
adapted to pro-ana profiles. This shows that Facebook Conflict of interest All authors certify that there is no actual or
potential conflict of interest in relation to this article.
works with an intrinsic control. However, we have not been
able to get information from Facebook about criteria and
procedures for shutting down an account.
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