Professional Documents
Culture Documents
DOI 10.1007/s40519-013-0050-y
ORIGINAL ARTICLE
Received: 15 March 2013 / Accepted: 18 July 2013 / Published online: 27 July 2013
Springer International Publishing Switzerland 2013
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414 Eat Weight Disord (2013) 18:413–420
a higher drive for thinness and higher levels of perfec- were geared toward providing social support. Ringwood
tionism [9]. Harper (2008) [10] as well as Bardone-Cone (2008) [21] already described the mediation of social
and Cass et al. (2007) [11] showed that viewing a pro- support by pro-ana groups on social networking sites and
eating disorder webpage was associated with more nega- highlighted the necessity of providing an alternative for
tive effects, negative body image, and less social self- users.
esteem in healthy individuals. Also, a reduction of the This is to our knowledge the first study that compre-
actual calorie intake of healthy individuals and individuals hensively analyses the culture of AN-oriented communi-
with AN after viewing a pro-eating disorder webpage could cation on the current major SNS Facebook in detail. We
be shown [12, 13]. The majority of scientific publications searched not only for pro-ana groups, but also for groups
on the issue underline these potentially harmful effects of that aim to provide education, self-help, or professional
pro-ana webpages. However, there are also authors who help for people suffering from AN. The primary aim of the
argue that those webpages could be a way of social support study was a detailed description and comparative analysis
for socially stigmatized patients [14, 15] and that the pro- of anorexia nervosa-related groups/sites. Furthermore, as
ana forums could be a form of supplement for support that an exploratory approach we sought to describe differences
cannot be obtained from off-line relationships [16]. Fur- in social support and motivational aspects.
thermore, clinicians should be informed about pro-ana
webpages. Being aware of ‘‘Tips and Tricks’’ that patients
are promoting and using might help in being better Methods
equipped to recognize the symptoms of anorexia early in
treatment [17]. Faux profile
As the importance of the Internet is growing, the
importance of social network sites (SNSs) is expanding as To identify and observe groups concerning AN, a faux
well. SNSs are considered an increasingly important Facebook profile of a young female was created. The faux
medium for communication and to get in touch with peers profile aimed to mimic typical AN-specific member char-
and interest groups [1, 2]. Their importance is growing acteristics. To fit into the pro-ana setting and for being
through the increasing number of members and concomi- accepted there, the profile had to be adapted concerning
tant commercialization with financial benefits. The biggest name, profile picture, and basic information according to
SNS temporally is Facebook with over 901 million observed pro-ana. For example, the name was changed to
monthly active users [18]. the pseudonym ‘‘Jana T-Spo’’. Names that included terms
Facebook contains public or semi-public profiles within like ‘‘Ana’’, ‘‘Thinspo/T-Spo’’, ‘‘Princess’’, etc., could be
a bounded system, where users can share information with observed throughout the pro-ana community on Facebook.
other users with whom they share a certain form of con- Likewise, the picture was modified to be a portrait picture
nection, referred to as a ‘‘friendship’’ [1]. On profiles one of a popular, emaciated white model, with BMI of about
can present oneself via profile pictures, interests, or on a 14 kg/m2, aged about 16 years. This was a profile that
‘‘wall’’. The ‘‘wall’’ of one’s profile is a place where one’s could be observed throughout the community as well. We
own ideas and thoughts can be made public and where defined that the faux profile was accepting friendship
friends can leave ‘‘posts’’. The content of posts can be requests, but not making any requests. Accepting was
messages, ideas, thoughts, or media-like pictures or videos. important for getting access to more hidden pro-ana
Studies show that the way an individual presents oneself on groups. The profile joined groups and sites, but never
an SNS seems to reflect the actual personality traits the user posted or commented on them. With the approach of
has [19]. Furthermore, it is possible to create special observing passively, we intended to avoid influencing
‘‘groups’’ with other users who share a common interest. group/site members or reinforce AN in members as much
Those groups can be modified in their privacy settings as possible. This procedure was developed together with
within a range from public to private, where only registered the local ethics committee of the medical faculty.
group members can see the content and communication of
the group. Posts can be made on walls of groups/sites as Search process
well. Other users can comment or ‘‘like’’ posts of other
users. Posts, likes, and comments are used as a communi- Informed by previous research [6, 20] and experiences
cation tool on Facebook [18]. collected throughout the Facebook search, our search
Juarascio et al. (2010) [20] analyzed the two large SNSs, included the following terms: anorexia; bulimia; eating
Myspace and Facebook regarding the existence of pro-ana disorder; ABC Diet; MiAna; AnaMia; thinspiration;
groups within them. They found a wide range of pro-eating thinsperation; thinspo; pro-ana; pro-mia; stop pro-ana; stop
disorder groups/sites and stated that the majority of them thinspo; and anti pro-ana. The Facebook search mask has
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416 Eat Weight Disord (2013) 18:413–420
118 groups/sites met the inclusion criteria (Fig. 1). 22.2 % Our search revealed a larger number of groups at 83.9 %
of the pro-ana groups/sites that took part in the analysis (n = 99) when compared with sites at 16.1 % (n = 19).
were not received via Facebook search, but by being Concerning language, we found a large quantity of
invited for ‘friendship’ via the faux profile. English-speaking groups/sites with 70.3 % (n = 83), fol-
The number of groups within one of the previously lowed by 11.0 % German-speaking groups/sites with
defined five main categories differed substantially. (n = 13), 8.5 % Spanish-speaking groups/sites (n = 10),
Especially, the section concerning professional help was 6.8 % Italian-speaking groups/sites with (n = 8) and 3.4 %
found to be only marginally represented (four groups/ French-speaking groups/sites with (n = 4).
sites of 114). Because of the small number of groups/ Group/site size showed the following distributions:
sites in this section, professional help was excluded education had a mean group/site size of 469.7 (median
and 114 groups/sites could be included in further 108), self-help 1,327.2 (median 144), anti pro-ana 297.0
analysis. (median 140.5), and pro-ana 883.3 (median 66).
Anti pro-ana
34 groups/sites Group/Site size too
small
35 groups/sites
Self-help
24 groups/sites
No regular
Professional help groups/sites
4 groups/sites 304 groups/sites
Pro-ana
Content not AN
27 groups/sites
399 groups/sites
Languages other
than ger, eng, fre,
ita, spa
81 groups/sites
Access denied
21 groups/sites
Others
93 groups/sites
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Eat Weight Disord (2013) 18:413–420 417
Motivation
Social support to tips and tricks (comments/likes per post) themes (comments/likes per post) was similar in all cate-
predominantly occurred in pro-ana with 6.67 per post and gories (p = 0.60; see Fig. 3b).
differed significantly from the other categories (p = 0.02;
see Fig. 3a). Social support to eating disorder-specific
Discussion
Table 1 The representation of the group/site via the group picture
Food Body No picture Other This is to our knowledge the first study to investigate the
associated associated % (n) % (n) role of SNS related to AN analyzing Facebook content, as
% (n) % (n) this is currently the largest SNS. Since previous research
Education 3.4 (1) 51.7 (15) 20.7 (6) 24.1 (7) focused predominantly on dysfunctional pro-ana activity
Self-help 4.2 (1) 33.3 (8) 4.2 (1) 58.3 (14) [5–7, 14, 20], we also included recovery-oriented groups
Anti pro-ana 2.9 (1) 55.9 (19) 11.8 (4) 29.4 (10)
(education, self-help, anti pro-ana).
Pro-ana 3.7 (1) 70.4 (19) 18.5 (5) 7.4 (2)
AN-specific groups were found to be numerous in the
SNS Facebook with self-help groups having the highest
Table 2 The last activity (time passed since last post) of a group/site
B24 h % (n) \3 days % (n) [3 days % (n) [1 week % (n) [1 month % (n) [3 month % (n) No activity % (n)
Education 0 (0) 3.4 (1) 3.4 (1) 27.6 (8) 10.3 (3) 44.8 (13) 10.3 (3)
Self-help 12.5 (3) 12.5 (3) 0 (0) 12.5 (3) 20.8 (5) 37.5 (9) 4.2 (1)
Anti pro-ana 8.8 (3) 2.9 (1) 0 (0) 17.6 (6) 17.6 (6) 52.9 (18) 0 (0)
Pro-ana 33.3 (9) 14.8 (4) 11.1 (3) 7.4 (2) 11.1 (3) 18.5 (5) 3.7 (1)
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Eat Weight Disord (2013) 18:413–420 419
more attentive to body parts indicative of weight status institutions could easily be provided (e.g., addresses, hot-
(e.g., thighs), were more interested in pictures of under- lines, and external website pages). Our findings underline
weight bodies, and perceived them as more rewarding. the possibility of integrating SNS into treatment networks
These processing patterns might be correlates of body [4]. The role model for the design and structure of pro-
dissatisfaction and a pronounced thin ideal and might fessional help groups could be existing Internet platforms,
contribute to the maintenance of the disorder. Hence, the e.g., ProYouth an EU-Initiative [30] which gives ideas how
confrontation with body-related pictures on Facebook interactive online contact can be provided.
profiles might again elicit such processing and rewarding Several limitations occurred during our research: Given
patterns [28] and contribute to maintenance of symptoms the fact that Facebook is a constantly changing medium,
and behaviors related to the eating disorder. the reproducibility of the results was limited. A number of
All categories used motivational techniques with words groups/sites could not be included into the analysis because
for their health belief models. Categories with less activity of the restrictions of access. Due to limited access, an
showed also lower motivational aspects. Motivation in anti underestimation of the existence of pro-ana groups might
pro-ana groups were often through posts like ‘‘Close all be possible.
pro-ana groups’’ without the implication of a welcome Facebook and other SNSs are a completely new universe
response. The overall character of these groups is centered to young and middle-aged adults. AN patients share the
around the goal to get pro-ana groups/sites shut down same age cohort. Therefore, SNS seems to be a relevant
without giving help on how to battle AN. Education had way for affected persons and caregivers to communicate
few posts with motivational content in words or in pictures and get into social and therapeutic contact. The therapist
reflecting the aim of giving information and not assistance. should be aware that for patients with eating disorders
Education and anti pro-ana had few comments/likes per SNSs are common and life without them often is
post (social support) concerning relevant AN themes (1.07 unimaginable. SNS offers chances for therapists and
and 1.87). Pro-ana had with 3.9 comments/likes per post patients. To what extent SNS could, must, or must not be
the highest social support followed by self-help with 2.41. integrated into psychotherapeutic strategies should be
This finding reinforces the idea that pro-ana provides its assessed systematically in future studies. In this study, we
members a platform in the distant cyberspace that enables focused on the activity and structure of AN-related com-
to perceive a certain amount of social support without munication on Facebook. After this initial description,
being at risk of being valuated, criticized, or confronted further studies with the focus on qualitative research should
with the limitations of real life [29]. However, future be pursued. Profiles of individuals should be examined in
studies should address social support in more detail (e.g., more detail to identify possible approaches that might be
positive/negative valence of reactions to posts). Concern- useful for clinicians and psychotherapists. Researchers and
ing the care and motivation given in those groups, it is care-giving institutions dealing with eating disorders
obvious that Facebook offers a sanctuary for the pro-ana should be aware of the existence, possibilities, dysfunc-
community. On the other hand, the faux profile was cleared tions, and influences of SNS.
and inactivated by Facebook about half a year after being
adapted to pro-ana profiles. This shows that Facebook Conflict of interest All authors certify that there is no actual or
potential conflict of interest in relation to this article.
works with an intrinsic control. However, we have not been
able to get information from Facebook about criteria and
procedures for shutting down an account.
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