Professional Documents
Culture Documents
Newby
Laura Weiss Roberts
Editors
Pediatric Neuropsychology
Case Studies
From the Exceptional to the Commonplace
Chapter 15
The Energizer Bunny Meets Shirley Temple:
Attention Deficit Hyperactivity Disorder,
Combined Type
Michael J. Zaccariello
‘‘She will not sit still and be quiet! She just goes and goes nonstop.’’ Jenna’s
exasperated mother moaned during the initial clinical interview. Her voice was
tinged with both frustration and guilt over her reactions to her daughter’s behavior
that occasionally resulted in abrupt, sharp rebukes. In addition, Jenna herself had
begun to realize that something was ‘‘wrong.’’ This previously effervescent and
optimistic child began to remark that she was stupid and dumb and was being
ridiculed by peers at school.
Historically, Jenna was a highly energetic toddler who talked excessively.
Although never significantly or consistently oppositional or argumentative, her
behavior became increasingly more difficult to control as she grew older. Jenna’s
mother noted that she literally played all day long and seemingly never tired. In
addition, it was impossible for her to sit down appropriately for longer than a few
minutes at a time. She constantly fidgeted, kicked her legs, or touched objects.
Cognitively, she had extreme difficulty staying focused and on-task, and needed
frequent redirection or a quiet, nonstimulating environment to complete work. She
had a tendency to be impulsive, rushing through her school assignments, which
resulted in careless mistakes. She had organizational problems in her day-to day-
activities (e.g., frequently losing objects or articles of clothing). Academically, she
had always been an average to above average student, but starting in the second
grade she began to demonstrate some struggles in mathematics, spelling, and
handwriting. Her mother’s perception was that Jenna’s difficulties in these academ-
ic areas were not reflective of a skill deficit but, rather, extreme problems with
sustained focus and impulsivity.
Medically, Jenna was in perfect health, and both language and motor develop-
mental milestones were reached within normal limits. She had no significant
problems with vision, hearing, eating, or sleeping. She was prescribed no medica-
tion at the time of the evaluation.
Socially, Jenna was described as an outgoing and engaging child who enjoyed
horseback riding and any outdoor activities. She lived with her parents and an older
brother who had been diagnosed with Attention Deficit Hyperactivity Disorder-
Primarily Inattentive Type (ADHD-I) by a pediatric neuropsychologist. The home
environment was described as positive and loving.
Jenna’s parents requested a neuropsychological evaluation to identify her pattern
of cognitive strengths and weaknesses. However, their prime concern was her
increasing restlessness and difficulties with attention. They were also concerned
with the emotional toll of social ridicule because of her high energy behavior. Her
parents questioned if she met formal criteria for Attention Deficit Hyperactivity
Disorder (ADHD) and wished for professional corroboration of their suspicion.
Jenna had never undergone a neuropsychological evaluation, and her mother
was curious about her overall cognitive skill set. Consequently, a broad approach
was taken, with a focus on attention and mental executive function measures.
Measures of attention are thought to assess one’s ability to direct and maintain
focus on a task. Executive functions are considered a related construct and involve
higher-ordered, goal-directed abilities that are organizational or supervisory in
nature. This cluster of abilities allows one to engage in abstract reasoning, prob-
lem-solving, judgment, cognitive flexibility, planning, and organization. Utilizing
feedback to correct responses, inhibit inappropriate behavior, and sustain one’s
attention is also considered in this area. Specific domains that were assessed
included intellectual ability, fine motor functions, attention, executive functions,
language fluency, visual-spatial abilities, and comprehensive academic skills de-
velopment. Behavioral ratings scales completed by both Jenna’s teacher and par-
ents were included as a critical foundation of the assessment.
With the introduction of the Diagnostic and Statistical Manual of Mental Disorders,
Third Edition, in 1980, delineation was made between the presence and absence of
hyperactive symptoms in children with attentional difficulties. Current diagnostics
further clarified this distinction into three types: primarily inattentive (ADHD-I),
primarily hyperactive-impulsive (ADHD-H), and combined (ADHD-C). However,
some recent studies have questioned the diagnostic accuracy of the current categor-
ical subtypes of ADHD and propose more of a dimensional model (Frazier, Young-
strom, & Naugle, 2007). Prevalence studies indicate that ADHD (devoid of a
specific subtype) is diagnosed three times as often in boys than girls in community
samples. This discrepancy rises to five to nine times more often in clinic-referred
groups. It is thought that ADHD-C occurs more often in boys and that ADHD-I
tends to be diagnosed more in girls. As children age, hyperactive symptoms
typically dissipate, but inattention symptoms can remain prominent. In a sense,
one does not typically outgrow ADHD.
There has been much debate in the literature concerning the usefulness
and relevance of neuropsychological tests in the diagnosis of ADHD. Although
a comprehensive review of this issue is beyond the scope of this brief case,
15 The Energizer Bunny Meets Shirley Temple 143
indications suggest that the most scientific and powerful diagnostic indicator of
ADHD is a significant level of inattention or hyperactive symptoms as reported on
behavioral rating scales.
So, this begs the question, what is the point of a comprehensive neuropsycho-
logical evaluation of a child with ADHD features? Although not necessarily
diagnostic, a neuropsychological evaluation can provide a snapshot of how signifi-
cantly inattention or hyperactivity interacts with performance in other cognitive and
academic domains. Once such areas have been identified, specific recommenda-
tions beyond those typically given for ADHD can be outlined in the report to
maximize a child’s learning potential (Tables 15.1–15.3).
Test Results
instructions. Despite these behaviors, she was relatively easy to redirect but did
require constant prompting throughout the test session.
Consistent with Jenna’s test session behavior, both her parents and teacher were
observing a significant level of inattentive and hyperactive symptoms. Her mother
also noted marked problems with impulse control, general organizational skills, and
the ability to self-monitor behavior. Her cognitive and behavioral difficulties were
leading to mild to moderate compliance issues at home and school.
146 M.J. Zaccariello
On the basis of the responses to behavioral questionnaires and test session behavior,
Jenna had significant inattention, distractibility, impulsivity, and motor restless-
ness, which were consistent with individuals diagnosed with ADHD-C. She could
not sit appropriately for longer than 10–15 min at a time and frequently reached for
test stimuli or blurted out answers.
Jenna was subsequently diagnosed with ADHD-C, which includes a mixture of
problems with behavioral inhibition, sustained attention, organization, consistency
of performance, and/or goal-directed behavior. ADHD-C is the most common form
of ADHD that arises in childhood in 3–7% of the population (American Psychiatric
Association, 2000). The symptoms of ADHD do not spontaneously disappear in the
majority of cases but can be treated to some extent with behavior management and/
or medication. Jenna’s combination of ADHD-C features included average intel-
lectual ability and average to above average underlying academic skills. Therefore
it would be realistic for her to attain average to above average performance in
school most of the time.
Although not directly assessed, another important finding concerned is the
Jenna’s emotional functioning. During the assessment, she acknowledged strug-
gles in school and admitted self-esteem issues related to her attentional prob-
lems. Studies have shown that 40% of children with ADHD show signs of either
depression and/or anxiety (Spencer, Biederman, & Wilens, 1999). It is vitally
important to address the behavioral and cognitive difficulties that children with
ADHD typically experience. However, professionals, caretakers, and school per-
sonnel should also be acutely aware of the impact and range that ADHD can have
on a child’s emotional and social well-being. Her parents were provided with
psychotherapy referrals, which they could use if her distress continued or worsened.
At least 75% of children with ADHD benefit from stimulant medication. Jenna’s
behavioral and cognitive presentation of ADHD symptoms make an evaluation for
stimulant medication routinely recommended. If she continues using the medica-
15 The Energizer Bunny Meets Shirley Temple 147
tion over a long period of time, observation trials off medication for a week at a time
approximately twice during each school year would be useful to monitor her
ongoing benefit or need for the medication.
Standard suggestions for managing attention and organization problems in the
classroom included obtaining eye contact with Jenna prior to delivering directions.
It may be helpful to place a hand on her shoulder or arm and to be sure that
directions are clear, simply stated, and given one at a time. Delivering more com-
plex directions in brief, simple, numbered steps (e.g., ‘‘First, read pages 1–10;
second, answer questions 1–5; and third, check answers in the back of the book’’)
would also be helpful. If Jenna continues to have difficulty, writing down key
instructions and taping them to her desk may help cue her.
Presenting material in small, successive units that can be mastered hierarchically
would allow Jenna to maximize her attentional capacity, assist in organizing the
material to be learned, reduce the feeling of being overwhelmed by the material,
and develop greater self-confidence as she progresses through the material.
Jenna would need distractions minimized to the greatest extent possible in the
classroom (e.g., seating her at the front of the class and increased one-to-one contact
with the teacher), as well as regular feedback provided with concrete suggestions for
appropriate behaviors. It would also be helpful to provide consistency and structure
through daily schedules; standard seating arrangements; clearly defined class-
room expectations, rules and consequences; and clear places for necessary materi-
als, such as color-coded subject folders, and reinforcement for using organizers.
Jenna needs guided practice in planning how to complete assigned tasks (what
is needed, how to break tasks into manageable parts, estimating time needed for
each part) and to be assigned tasks or classroom duties that she can successfully
complete.
It would be helpful to provide other organizational checklists, such as steps to
get ready to go home after school, and to remind Jenna at the end of the day about
what she needs for home and the next day. Also, Jenna would benefit from pacing
her work and changing the pace or task frequently and from opportunities for
controlled movement.
Given Jenna’s inattentive and hyperactive tendencies, she would not always be
expected to perform at top efficiency level on timed tasks. Extra time can be given
strategically when needed, and curriculum requirements such as timed math tests
might be loosened or modified for her, but not omitted.
At home, Jenna needs more frequent attentional cueing. Adults should help her
break complex tasks into smaller steps. Commands should be given one or two at a
time, and longer sets of commands should be repeated, rehearsed, or written down.
More frequent attentional cueing (e.g., ‘‘look at this now’’; ‘‘this is important to pay
attention to’’) in everyday life will be needed in the long run, and adults should try
to avoid becoming frustrated with this need. She should be given extra instruction in
organizational skills such as outlining, diagramming, planning a sequence of steps
in complex tasks, and taking strategic breaks during extended study time.
Jenna and her family would benefit from ongoing consultation with a psycholo-
gist who is knowledgeable about behavior management approaches for children
148 M.J. Zaccariello
Additional Resources
References
American Psychiatric Association. (2004). Diagnostic and statistical manual of mental disorders
(4th ed., Text revision). Washington, DC: American Psychiatric Association.
Barkley, R. A. (2006). Attention-deficit hyperactivity disorder. (3rd ed.). New York: Guilford
Press.
Cutting, L. E., & Denckla, M. B. (2003). Attention: Relationships between attention-deficit
hyperactivity disorder and learning disabilities. In H. L. Swanson, K. R. Harris, & S. Graham
(2003), Handbook of learning disabilities (pp. 125–139). New York: Guilford Press.
Ellison, P. (2005). School neuropsychology of attention-deficit/hyperactivity disorder. In R. C.
D’Amato, E. Fletcher-Janzen, & C. R. Reynolds (Eds.), Handbook of school neuropsychology
(pp. 460–486). New Jersey: Wiley
15 The Energizer Bunny Meets Shirley Temple 149
Frazier, T. W., Youngstrom, E. A., & Naugle, R. I. (2007). The latent structure of attention-deficit/
hyperactivity disorder in a clinic-referred sample. Neuropsychology, 21, 45–64.
Spencer, T., Biederman, J., & Wilens, T. (1999). Attention-deficit/hyperactivity disorder and
comorbidity. Pediatric Clinics of North America, 46, 915–927.
U.S. Department of Education, Office of Special Education Programs’ (OSEP), Individuals with
Disabilities Education Act (IDEA) web site: http://www.idea.ed.gov/explore/home
laid back, with no overt anxiety or depression (other than situational and generally
related to normal adolescent issues). Robert had never been defiant with his parents
or had any problems with his conduct. He also had no sleep problems. Reportedly,
he had recently become interested in his physical health, and he was active in
exercising and remaining fit in hopes of joining his high school football team. His
interest in football had also driven his decision not to use alcohol or other drugs.
Robert’s mother described her pregnancy and delivery with him as normal and
without complication; however, he was delivered 2 weeks late. He was described as
an ‘‘easy-going and funny’’ infant, who developed into a good kid. He met all of his
developmental milestones within normal limits. Starting at approximately 4 years
of age, he developed chronic ear infections, which were treated with adenoidect-
omy and tonsillectomy, as well as placement of ear tubes. At this time, he was
diagnosed with asthma and prescribed an inhaler to use on an as-needed basis,
which he continued to use at the time of evaluation. He also had seasonal and
environmental allergies, for which he was prescribed medications. Robert experi-
enced a concussion while playing football last year, following helmet-on-helmet
contact. He did not lose consciousness and was able to walk off the field by himself.
Following the game, he experienced a severe headache for several days, although
no memory loss or vomiting was involved. He was taken to the hospital, and cranial
magnetic resonance imaging (MRI) and a computed tomography (CT) scan were
normal. He remained out of practice for several weeks, following which he returned
with no subsequent complications. His additional medical history consisted of only
minor injuries throughout his lifetime.
At the time of evaluation, Robert was living with his mother. His parents
divorced when he was approximately 3½-years of age. He spent every other
weekend with his father. Maternal family history was described as remarkable for
mild depressive symptoms in his mother upon the deaths of her parents and learning
difficulties in a nephew. Paternal family history was remarkable for alcohol pro-
blems and depressive symptoms. Family stressors were significant; when Robert
was 2½-years old, the family experienced the loss of his infant brother. Approxi-
mately a year later, his parents divorced, and he and his mother moved in with his
maternal grandparents. When Robert was around 6½-years of age, he and his
mother moved into their own apartment; however, he remained close with his
grandparents. At age 13, Robert experienced the death of his grandfather. Over
the subsequent year, his grandmother became quite ill, and he and his mother were
actively involved in her care. Robert was with her when she died the following
summer. Following her death, he and his mother relocated, and he enrolled in his
new high school and started ninth grade.
Test Results
Given Robert’s past difficulties with distractibility, attention, and possible emotional
challenges, these areas were the focus of assessment.
16 He is not Working up to Potential 153
both verbal and visual tasks requiring the greatest amount of abstract thought.
Further, he demonstrated mild relative weaknesses in executive skills including
verbal fluency, the inhibition of behaviors, vigilance, and attention. He demon-
strated average visual fluency, overall processing speed, and problem-solving
16 He is not Working up to Potential 155
skills. This pattern of mild executive dysfunction does not formally fall within the
diagnostic category for Attention Deficit Hyperactivity Disorder (ADHD). How-
ever, the conceptualization of ADHD as a neuropsychiatric disorder of executive
functions leaves open for interpretation how to categorize those children with mild
executive difficulties.
The lack of specific diagnostic categories for various types of executive deficits
often results in ADHD becoming the default diagnosis. Often these children exhibit
symptoms that meet formal DSM-IV-TR criteria for the disorder, although in
Robert’s case, his symptoms met formal criteria only minimally. He was qualified
as inattentive because of his difficulties with attention to detail, sustained attention,
follow-through, organization, and forgetfulness. However, these symptoms were
not clear enough to teachers and caregivers for Robert to appear as ‘‘classically
ADHD.’’ In cases like Robert’s, the clinician must help those living and working
with the child to understand how relative weaknesses in verbal fluency, impulsive
verbal behaviors, variable attention, mild distractibility, and lower relative abstract
reasoning skills can be conceptualized as a variant of ADHD and result in impaired
functioning.
Individuals who experience fundamental weaknesses in executive functioning
generally demonstrate a host of difficulties with their behaviors. Executive func-
tions allow a person to solve problems, think abstractly and flexibly, plan and
organize behavior, and alter behaviors based on experience and feedback. Problems
in these areas can result in difficulties organizing information and efficiently
managing large amounts of information. Individuals may not use prompts well
and may have trouble thinking flexibly, often becoming stuck responding in ineffi-
cient manners. Formal testing offers a window into a person’s executive skills but
does not comprehensively measure such a complex construct. Indeed, the introduc-
tion of executive function measures is still relatively new in the field of neuropsy-
chology, with some areas having a greater predominance of research available.
Measures of fluency, verbal working memory, inhibition, and planning have rela-
tively significant bodies of research contributing to overall validity. However, many
of these measures are not available at all ages. Further, our understanding of how all
aspects of executive skills develop in children continues to be an area requiring
further research. Therefore, while measures in these areas can inform, they are not
all inclusive in their explanation of a child’s functioning. Robert appeared to
struggle with some of these skills, particularly relative to his overall average
intellectual abilities. These relative weaknesses were likely to impact his ability
to acquire adequate study skills. However, his additional cognitive strengths were
areas from which he could build upon in order to learn to compensate for his
relative weaknesses.
156 J.N. Apps, D. Pflugradt
Parents often find tutors in a wide variety of places. A few places to start inquiring might
include the following:
l Family members with a background in education
l Past and current teachers
l Local universities and colleges
l Neighbors
l Pastors or church members
16 He is not Working up to Potential 157
or mentor should have experience working with children with mild attention and
executive problems (Box 16.2). Robert and the tutor should meet as necessary,
probably two to three times a week, and the tutor could provide structured study
skills. Such a relationship will also allow for additional presentations of material as
needed, guidance in organizing and keeping track of classes and assignments,
structure and discipline in study skills, and alternative explanations for more
difficult abstract concepts. Further, the tutor would be encouraged to help Robert
learn how to recognize hints or cues in assignments that describe what output is
expected and could model and help Robert learn how to break larger tasks into
logical steps. An overall goal for Robert would be to learn better self-evaluation
skills, so that he can more effectively monitor and alter his own behavior and
actions academically.
Robert’s tutor and his parents were encouraged to work closely with each of his
teachers to encourage assistance, such as additional visual study aids or written
handouts of any lectures. Robert was likely to have greater difficulty than other
students in taking notes in a timely fashion and remaining orientated to longer
auditory lectures. Utilizing multimedia formats in the classroom may be helpful,
such as tape recording lectures.
If Robert’s school were to need a formal document to provide him with these
recommendations, his parents were encouraged to share the neuropsychologist’s
report with his school’s special education director and to request that Robert be
evaluated for a 504 plan to assist him with his academic weaknesses. Section 504
ensures that children with disabilities who do not qualify for formal assistance
through the special education department still have access to accommodations that
they may require.
Robert’s family was advised to continue to monitor his academic and emotional
development. Returning to a mental health care professional was recommended
should any further emotional or cognitive struggles develop. However, it was
anticipated that with the improved understanding both Robert and his family now
had about his executive weaknesses, he would be able to develop compensatory
strategies and experience increased academic success and improved self-esteem.
Additional Resources
504 Plan Part of the civil rights act, Rehabilitation Act of 1973, which protects
the rights of people with various forms of disabilities to ensure that they are not
denied access to any program that receives federal funding.
References
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders
(4th ed., text revised). Washington, DC: American Psychiatric Association.
Barkley, R. A. (2005). ADHD and the nature of self-control. New York: Guilford Press.
Dawson, P., & Guare, R. (2004). Executive skills in children and adolescents: A practical guide to
assessment and intervention. New York: Guilford Press.
Furman, L. (2005). What is attention-deficit hyperactivity disorder (ADHD)? Journal of Child
Neurology, 20, 994–1002.
Nigg, J. T. (2006). What causes ADHD: Understanding what goes wrong and why. New York:
Guilford Press.
Pliszka, S. R. (2003). Neuroscience for the mental health clinician. New York: Guilford Press.
Shallice, T., Marzocchi, G. M., Coser, S., Meuter, R. F., & Rumiati, R. (2002). Executive function
profile of children with attention deficit hyperactivity disorder. Developmental Neuropsychol-
ogy, 21, 43–71.
Voeller, K. K. S. (2004). Attention-Deficit Hyperactivity Disorder (ADHD). Journal of Child
Neurology, 19(10), 798–814.
Robert F. Newby
As Angie’s father was reading to her one evening near the end of junior kindergar-
ten, he paused in the story to play a game with her of matching letters to their
sounds. Angie had been slow in learning to recognize printed letters earlier that
year, and he thought it would be good to practice some more advanced alphabet
skills now. He was dismayed to discover during the game that she was bafflingly
inconsistent at recognizing even the /a/ sound that began her own name. Had
Angie’s teacher not commented recently that the class was working on this for
the past several weeks?
After bedtime, Angie’s father called his sister, who was a reading specialist in
the next town. ‘‘Classic sign,’’ she burst out immediately, ‘‘particularly since Angie
has talked up a storm since the first words came out of her mouth!’’ Classic sign of
what? How could Angie’s aunt detect something with such clarity after her dad’s
brief phone description? In fact, her aunt was right: Angie turned out to have
a classic case of emerging word reading disability, and catching it early was a
good thing.
On her aunt’s suggestion, Angie’s parents next requested testing by an
Individualized Education Program (IEP) team at school, who documented her
strong general intelligence, with robust verbal comprehension skills in particular.
Angie also was whizzing ahead in early math development, drew with artistic flair,
and wrote numbers with amazing precision, but she meandered through most attempts
to write letters as if she were drawing abstract expressionism. She simply could not do
the oral language tests that asked her to put together sounds like n-e-t into one word
(even though she was an avid fisherwoman) or to take out a single sound like the /c/
from the word cart to come up with the word for her favorite subject at school. She
also was very slow in saying the names of simple color spots on a page, even though
she already was choosing paint for her room with names like fuchsia.
The IEP team concluded that Angie was at risk for the emergence of a reading
disability and offered to pull her out of some class time during senior kindergarten
the next fall for extra training in phonemic awareness (like the test tasks just
illustrated), beginning phonics skills (the association of sounds and printed letters),
and early literacy conventions (such as scanning from left to right and handling
basic punctuation like periods).
Angie’s parents were stunned. Reading disability in such a bright girl? What
were they to do? They decided to invite Angie’s aunt for a coffee conference the
next day to try to put the puzzle together.
At coffee, Angie’s mom added an interesting twist to the story: ‘‘Ever since we
decided to pursue this testing, I have had this sinking déjà vu that I couldn’t quite
pinpoint, but it just came to me this morning. Remember when I spent that summer
after first grade at the college department of education clinic, being a guinea pig for
those graduate students practicing their teaching methods? And how hard reading
was for me all the way through grade school? Well, it is flashback time now: Angie
is me all over again.’’ Angie’s mom needed some support from both family
members and professionals to get around her fear that Angie was doomed to
struggle throughout her school career. At this point, Angie’s aunt felt that it
would be best for the family to have some additional expert consultation outside
of school, so she referred Angie for a neuropsychological evaluation to clarify the
apparent emerging reading disability and to add other relevant recommendations
for intervention.
Test Results
The evaluators considered all Angie’s results from the school’s testing valid and
reliable, because her effort, cooperation, attention, stamina, self-control, mood, and
social response were positive throughout all sessions. She was aged 5 years and 6
months at the time.
Angie’s overall intelligence was in the high average range, with no significant
difference between verbal and nonverbal reasoning abilities, including some
strongly above average subskills in each domain. Although none of the academic
skills tested at school were below average, indicators of alphabet knowledge,
beginning visual cue word recognition, and letter-sound awareness were in the
lower half of the average range. Graphomotor (paper and pencil) skills were
average, and math reasoning was high average to above average. In contrast, both
phonological awareness and rapid naming were mildly impaired and significantly
discrepant from verbal reasoning (Tables 17.1–17.3).
Some children have had enough relevant testing prior to referral for pediatric
neuropsychological evaluation, so that little or no further testing is necessary. In
these cases, the pediatric neuropsychologist assumes the role of a consultant,
explaining results coherently to parents and helping to flesh out an optimal treat-
ment plan. This is what happened with Angie.
Several other domains of neuropsychological functioning could have been
assessed for thoroughness, including manual dexterity, other basic sensory and
17 Sorting Sounds: Reading Disability with Phonological Awareness Deficit 161
or very low raw scores on several subtests raised questions about whether those
skills were being sampled with adequate range of item difficulty.
The decision was made against further testing in this case for three main reasons:
First, neither Angie’s history nor the testing already completed raised concerns in any
of these other domains. Second, there is something to be said for pragmatic focus to
conserve health care and rehabilitation resources. For instance, what if Angie’s
parents wanted to consider marshalling family funds to buy out-of-school tutoring
services more than exhaustive testing? Third, the psychometric considerations were
outweighed by the consistency of the pattern in data from all available resources.
research at this time involve systematic review of basic phonics elements, such as
letter sounds when needed; practice in segmenting short words in print; blending
methods, such as orally stretching out the sounds in words; contextual application
of analytic phonics methods, such as word families; and an integration of reading
and writing activities. Reading decoding work should focus on reading material that
is at Angie’s instructional level for word recognition at any given time.
Angie probably will need extra instruction in some aspects of written language,
particularly spelling. It is often most helpful to have children focus on spelling words
that are integrated with their reading curriculum and/or words that are grouped together
in phonologically related word families. The use of a ‘‘word wall’’ would be helpful for
Angie. In classroom application, this consists of a list of words on the wall, grouped
according to their beginning letters alphabetically, to which children can refer when
doing written work. Children are expected to spell correctly all words on the word wall
in their written work, and words are gradually added as they are taught in the curricu-
lum. Easily confusable similar words (e.g. what, when) are printed on different
colored paper and cut out with the outline shape closely following the configuration
of the letters in the word. This type of system can be individualized with a chart on
the child’s desk if the child is working at a lower level than the overall class or if
this type of system is not usable in the whole class format. In the long run, if
Angie’s spelling development does not fully normalize, the goal may be for Angie
to spell reliably a circumscribed list of commonly used words.
Parents and school staff should monitor Angie’s progress closely in the related
areas of reading fluency, reading comprehension, sentence construction, paragraph
structure, and organization of longer written products, in case extra instruction in
these areas becomes necessary.
Update
The end of Angie’s story? Taking advantage of the extra instruction available at
school during kindergarten and first grade, her aunt’s expertise in after-school
tutoring during weekends and summers, a semester in the small-group reading
program at the very same college clinic her mother had attended, and the wonderful
additional knowledge they gained by reading Dr. Sally Shaywitz’s book for parents
and teachers, Overcoming Dyslexia, Angie and the adults working with her accom-
plished just what the title of Shaywitz’s book says. Now in second grade, Angie
reads just above the average range in all three of the key areas of word decoding,
fluency or speed, and comprehension. Her spelling is still a little below average, but
in her free time she is already composing clever plays for her friends to act out.
Researchers in reading intervention now estimate that the majority of cases (with
numbers ranging from 75% to as high as a perhaps overoptimistic 95%) of ongoing
reading disabilities essentially could be prevented by the type of early identification
and intervention that Angie received.
Three other case examples, which illustrate variations that deserve the keen eye
of the sophisticated clinician, will be considered in the next chapters to further
17 Sorting Sounds: Reading Disability with Phonological Awareness Deficit 165
Additional Resources
References
Adams, M. J., Foorman, B. R., Lundberg, I., & Beeler, T. (1998). Phonemic awareness in young
children: A classroom curriculum. Baltimore, MD: P. H. Brooks Publishing.
Blachman, B. A., Ball, E. W., Black, R., & Tangel, D. M. (2000). Road to the code: A phonologi-
cal awareness program for young children. Baltimore, MD: P. H. Brooks Publishing.
Fletcher, J. M., Lyon, G. R., Fuchs, L. S., & Barnes, M. A. (2007). Learning disabilities: From
identification to intervention. New York: Guilford Press.
166 R.F. Newby
Harris, K. H., & Graham, S. (2005). Handbook of learning disabilities. The Guilford Press.
Pennington, B. F. (1991). Diagnosing learning disorders: A neuropsychological framework. New
York: Guilford Press.
Spear-Swerling, L., & Sternberg, R. J. (1994). The road not taken: An integrative theoretical model
of reading disability. Journal of Learning Disabilities, 27(2), 91–103, 122.
United States Department of Education, Office of Special Education Programs. IDEA – Building
the legacy of IDEA 2004. Retrieved November 21, 2007, from http://idea.ed.gov/explore/home
Wagner, R. K., Torgesen, J. K., & Rashotte, C. A. (1999). Comprehensive test of phonological
processing (CTOPP). Austin, TX: Pro-Ed.
In the print and online version of the original chapter, the second author’s name was
omitted. The correct authors line is Elizabeth N. Adams and Mariellen Fischer.
DOI 10.1007/978-0-387-78965-1